Original_Question_from_Suite,Target_Category_GroundTruth,Source,Condition_suite,normalized_question_key_for_merge,Original_Question_from_AI_Response,Normalized Question,Cached?,Error,Condition_resp,AI_Predicted_Category,Answer Match Type,Tags,User Interests,Final Expert Answers JSON,Advice Video 1 ID,Advice Video 1 Title,Advice Video 1 Relevancy Score,Advice Video 1 Question Title,Advice Video 1 Answer Text,Advice Video 1 LLM Score,Advice Video 1 LLM Score Reason,Advice Video 2 ID,Advice Video 2 Title,Advice Video 2 Relevancy Score,Advice Video 2 Question Title,Advice Video 2 Answer Text,Advice Video 2 LLM Score,Advice Video 2 LLM Score Reason,Advice Video 3 ID,Advice Video 3 Title,Advice Video 3 Relevancy Score,Advice Video 3 Question Title,Advice Video 3 Answer Text,Advice Video 3 LLM Score,Advice Video 3 LLM Score Reason,Long form video 1 ID,Long form video 1 Title,Long form video 1 Relevancy Score,Long form video 2 ID,Long form video 2 Title,Long form video 2 Relevancy Score,Long form video 3 ID,Long form video 3 Title,Long form video 3 Relevancy Score
What is hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is hidradenitis suppurativa?,What is hidradenitis suppurativa?,What is hidradenitis suppurativa?,No,,,searchable,exact-match,condition overview,,"[{""id"":1859},{""id"":1959},{""id"":1958},{""id"":1950}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.6,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",60.0,"The transcript provides a partial answer to the question 'What is hidradenitis suppurativa?' by describing it as an inflammatory skin condition where the immune system attacks the skin, causing symptoms that resemble an infection but are not contagious. However, it lacks a comprehensive definition or explanation of the condition, such as its typical symptoms, affected areas, or potential causes. The focus is more on treatment options and public awareness rather than a detailed description of the condition itself. Therefore, while it touches on some aspects of hidradenitis suppurativa, it does not fully answer the question.",5010.0,CON6-Q19-How do I know if a lump is a pimple or HS-Garg.mp4,0.4,How do I know if a lump is a pimple or HS?,"It's a good question. When we refer to pimples, we typically are talking about acne, so pimples are small nodules that may appear on the face or the trunk. Whereas in HS, usually we're referring to boils, abscesses, or nodules, and they're usually happening in different areas of the body, such as under the arms, under the breasts, in the groin, or in the buttocks. So really pimples refer to different lesions altogether. Acne is different from HS.",40.0,"The transcript provides some context about hidradenitis suppurativa (HS) by contrasting it with acne and describing the typical locations of HS lesions. However, it does not directly define what hidradenitis suppurativa is. A more complete answer would include a definition of HS, mentioning that it is a chronic skin condition characterized by inflamed and painful lumps under the skin, often leading to abscesses and scarring. The transcript lacks this direct explanation, which limits its effectiveness in fully answering the question.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.4,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",40.0,"The transcript provides some symptoms and characteristics of hidradenitis suppurativa (HS), such as nodules, abscesses, tunnels, pain, and drainage. However, it does not offer a comprehensive definition or explanation of the condition itself, such as its causes, affected areas, or general impact on health. The answer lacks context about what HS is beyond its symptoms, which limits its effectiveness in fully answering the question.",586.0,Surgical Approaches,0.762615204,3494.0,Inflammation | Dr. Jim Januzzi,0.761720657,1113.0,Alopecia Areata | E9,0.757564843
How do I know if I have HS or just regular boils?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i know if i have hs or just regular boils?,How do I know if I have HS or just regular boils?,How do I know if I have HS or just regular boils?,No,,,searchable,exact-match,"symptoms,diagnosis",,"[{""id"":1848},{""id"":1951},{""id"":1958},{""id"":1959}]",4881.0,CON2-CH1-Q2-How do I know if a lump is a pimple or HS-Okoye.mp4,0.85,How do I know if a lump is a pimple or HS?,"So pimples, regular pimples like we get with acne, usually go away within two or three days. But with HS, these bumps tend to last a little bit longer. They tend to get much bigger than a regular pimple would. So for example, I see patients who have HS bumps that are the size of golf balls or the size of tennis balls. Now you're not dealing with a pimple, you're dealing with HS. So the size, how long it lasts, and how painful the bumps are, these are clues that you might be looking at HS.",85.0,"The transcript provides a good answer to the question by highlighting key differences between HS (Hidradenitis Suppurativa) and regular boils. It mentions that HS bumps last longer, are larger, and more painful compared to regular pimples or boils. These are important distinguishing features that can help someone determine if they have HS. However, the transcript could be improved by explicitly mentioning that regular boils also tend to resolve faster and are usually not as large or painful as HS lesions, which would provide a more direct comparison.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.85,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",85.0,"The transcript provides a detailed explanation of how to differentiate between HS (Hidradenitis Suppurativa) and regular boils. It emphasizes the importance of clinical observation and suggests seeing a dermatologist for a definitive diagnosis. It also lists specific symptoms and areas of the body where HS typically occurs, which can help the individual assess their condition. However, it does not explicitly describe what 'regular boils' are, which could have provided a more direct comparison. Overall, the transcript effectively guides the individual on how to approach their symptoms and seek a professional diagnosis.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.85,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",85.0,"The transcript provides a detailed description of HS symptoms, including nodules, abscesses, and tunnels, which are key differentiators from regular boils. It mentions pain and drainage, which are common in HS. However, it does not explicitly compare these symptoms to regular boils, which would help clarify the differences more directly for the question asked.",3536.0,How do I know if I have Obesity?,0.749964058,3651.0,How to Check Your Skin,0.74785018,3501.0,How do I know if I have obesity?,0.746304274
What causes hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what causes hidradenitis suppurativa?,What causes hidradenitis suppurativa?,What causes Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1833},{""id"":1919},{""id"":1887},{""id"":1852}]",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.85,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",85.0,"The transcript provides a comprehensive answer to the question by discussing the two-hit hypothesis, which involves genetic predisposition and environmental factors as potential causes of Hidradenitis Suppurativa (HS). It mentions specific environmental factors like tobacco smoking and higher weight, which can contribute to the development of HS. However, it also acknowledges that the exact causes are not fully understood, which is a realistic representation of the current medical understanding. The answer is detailed and covers multiple aspects, but it could be improved by explicitly stating that the exact etiology of HS is still under investigation.",4965.0,CON3-CH5-Q3-What are retinoids-Garg.mp4,0.6,What are retinoids?,"We get asked about this class of medication called retinoids all the time. Retinoids work by helping the skin to differentiate or mature or grow properly, and maybe that has some role in influencing the stickiness of a hair follicle. We think that HS in some ways results from hair follicles being plugged and then a cascade of inflammation that results from that plugging. So the idea is that if you can help hair follicles become less sticky because of the way the skin grows, that that might help ameliorate the symptoms of HS. In reality, ultimately the symptoms from HS originate from that really intense inflammation, and retinoids, we know just don't have really much, if any, anti-inflammatory activity. So for us, they're really not the ideal approach to managing HS, at least over the long haul. What's more important is using medicines that can really target inflammation, which is really the basis of the symptoms in HS.",60.0,"The transcript partially addresses the question by suggesting that Hidradenitis Suppurativa (HS) is caused by hair follicles being plugged, leading to a cascade of inflammation. This provides some insight into the pathophysiology of HS. However, the transcript primarily focuses on the role of retinoids in treatment rather than providing a comprehensive explanation of all potential causes of HS, such as genetic, hormonal, or environmental factors. Therefore, while it touches on a relevant aspect, it does not fully answer the question about the causes of HS.",4927.0,CON3-CH1-Q3-If it is not an infection why are antibiotics used-Daveluy.mp4,0.4,"If it is not an infection, why are antibiotics used?","I think every patient with HS wonders that at some point, once you figure out that it's not an infection, why are we using antibiotics? And the simple answer is that bacteria still play a role in HS. We've done studies where we look at the bacteria on the skin, inside the actual HS lesions or tunnels or bumps, and on other areas of the body, and we found that the bacteria are different. And so what we think happens is these different bacteria grow on, in, and around HS lesions and your immune system doesn't like those bacteria so it tries to fight them and that causes the inflammation and the changes that you see - the redness, the swelling, the discharge - and that's why it looks like an infection, because your body is sort of trying to fight these bacteria and getting rid of those bacteria can be helpful. So we can use antibiotics. The other part is that antibiotics can sometimes have two effects. So they not only help to kill bacteria, but they can also calm the immune system down. And most of the antibiotics we use in HS have that second effect of reducing inflammation, which is a second benefit for them. For that reason, sometimes I even use antibiotics at a lower dose where they don't affect bacteria and we only see those anti-inflammatory properties, so I'm not even really using them like an antibiotic in that sense.",40.0,"The transcript provides some insight into the role of bacteria and the immune response in Hidradenitis Suppurativa (HS), but it does not directly answer the question of what causes HS. It focuses more on the treatment aspect, particularly the use of antibiotics, and how they can help manage symptoms by targeting bacteria and reducing inflammation. However, it does not address the underlying causes of HS, such as genetic factors, hormonal influences, or other potential triggers. Therefore, while it touches on related aspects, it does not comprehensively answer the question about the causes of HS.",3494.0,Inflammation | Dr. Jim Januzzi,0.763099432,2321.0,Health Conditions Impacted by the Microbiome,0.754977763,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.749968767
Is HS genetic or hereditary?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is hs genetic or hereditary?,Is HS genetic or hereditary?,Is HS genetic or hereditary?,No,,,searchable,exact-match,,,"[{""id"":1835},{""id"":1969},{""id"":1833},{""id"":1917}]",4850.0,CON1-CH3-Q3-Is there a hereditary factor to HS-Garg-.mp4,0.85,Is there a hereditary factor to HS?,"That's also a really great question. When I meet patients with HS, I often hear them tell me that, oh yeah, my mother has this condition or my brother has this condition. And a common question of course is can I pass it on to my children? I think we're still really trying to understand how HS runs in families, and to do that, we just need a better understanding of what genes are involved and that's ongoing research. We're still trying to understand how HS is passed within families. What I can say is at this point, there probably is some kind of genetic link, but how exactly that works, we still aren't sure yet.",85.0,"The transcript addresses the question by acknowledging that there is likely a genetic component to HS (Hidradenitis Suppurativa), as it often appears in multiple family members. It also mentions ongoing research to better understand the genetic factors involved. However, it does not provide a definitive answer, as the exact genetic mechanisms are still unclear. The response is informative and relevant, but the lack of a conclusive answer slightly reduces the score.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.85,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",85.0,"The transcript provides a clear answer to the question by indicating that there is a genetic predisposition to HS, which suggests a hereditary component. However, it also clarifies that most patients do not have a family history, and most children of affected individuals do not develop the condition, implying that while genetics play a role, it is not the sole factor. This nuanced explanation effectively addresses the question, but it could be slightly improved by explicitly stating that HS is not strictly hereditary in the traditional sense.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.75,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",75.0,"The transcript provides a partial answer to the question by discussing the concept of genetic predisposition in the context of HS (Hidradenitis Suppurativa). It explains that HS may involve a genetic component, suggesting it could be hereditary, but also emphasizes the role of environmental factors in triggering the disease. However, it does not explicitly state whether HS is definitively genetic or hereditary, leaving some ambiguity. The explanation is informative but lacks a direct and clear answer to the question.",435.0,Prenatal Testing Options for Families with a Hereditary Condition,0.776120901,2309.0,What is Metabolic Syndrome?,0.774303675,933.0,HSS Minute | Early Life Low Bone Density,0.773000538
What are the stages of HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what are the stages of hs?,What are the stages of HS?,What are the stages of HS?,No,,,searchable,exact-match,,,"[{""id"":1961},{""id"":1962},{""id"":1958},{""id"":1965}]",5022.0,CON6-Q21-What are the stages of HS-Okoye.mp4,1.0,What are the stages of HS?,"So HS staging is not perfect, but there are three stages. In stage one, that's when you just get a bump here or there, and the bumps don't connect to each other. But in stage two, that's when you develop tunnels. And a tunnel develops when two bumps next to each other start communicating with each other under the skin. That's stage two. So if you have one tunnel or 10 tunnels, you still have stage two. And in stage three is if you have a lot of bumps and tunnels in one part of the body. So for example, if you have three tunnels and five bumps in your right underarm, but you have no lesions elsewhere, that's stage three. So it can be a little confusing.",90.0,"The transcript provides a clear and detailed explanation of the three stages of HS (Hidradenitis Suppurativa). It describes the characteristics of each stage: stage one involves isolated bumps, stage two involves the development of tunnels between bumps, and stage three involves multiple bumps and tunnels in one area. The explanation is thorough and addresses the question directly. However, it could be improved by mentioning the name of the staging system (Hurley staging) for completeness.",5004.0,CON6-Q22-What does the stage of my HS mean for my treatment-Okoye.mp4,0.2,What does the stage of my HS mean for my treatment?,"The stages in HS don't really affect our treatment choices that much. Honestly, what affects our treatment choices is how the HS is affecting you, what are your specific symptoms, and how much it's bothering you and affecting your life. So for example, if someone has stage two disease, but it's really affecting their ability to function, then I'm going to treat them with aggressive treatment. I'm not going to wait for them to have stage three disease to get aggressive treatment.",20.0,"The transcript does not directly answer the question about the stages of HS (Hidradenitis Suppurativa). Instead, it discusses how the stages do not significantly impact treatment decisions, focusing more on the symptoms and their impact on the patient's life. The transcript lacks a description or enumeration of the stages themselves, which is what the question specifically asks for.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.2,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",20.0,"The transcript does not directly address the stages of Hidradenitis Suppurativa (HS). Instead, it describes some symptoms and characteristics of the condition, such as nodules, abscesses, and tunnels. To effectively answer the question, the transcript should outline the specific stages of HS, which are typically classified into three stages known as Hurley stages. The current response lacks this structured information, hence the low rating.",2316.0,The Physical Fitness Performance Pyramid,0.772933304,3601.0,What are the stages of obesity?,0.766795516,3498.0,What are the stages of obesity?,0.765269339
What is Hurley staging for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is hurley staging for hidradenitis suppurativa?,What is Hurley staging for hidradenitis suppurativa?,What is Hurley staging for hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1961},{""id"":1950},{""id"":1908},{""id"":1975}]",5022.0,CON6-Q21-What are the stages of HS-Okoye.mp4,0.85,What are the stages of HS?,"So HS staging is not perfect, but there are three stages. In stage one, that's when you just get a bump here or there, and the bumps don't connect to each other. But in stage two, that's when you develop tunnels. And a tunnel develops when two bumps next to each other start communicating with each other under the skin. That's stage two. So if you have one tunnel or 10 tunnels, you still have stage two. And in stage three is if you have a lot of bumps and tunnels in one part of the body. So for example, if you have three tunnels and five bumps in your right underarm, but you have no lesions elsewhere, that's stage three. So it can be a little confusing.",85.0,"The transcript provides a clear and accurate description of the Hurley staging system for hidradenitis suppurativa, outlining the three stages: Stage 1 with isolated bumps, Stage 2 with interconnected tunnels, and Stage 3 with extensive involvement of bumps and tunnels. However, it lacks specific terminology such as 'abscesses' or 'scarring' that are often associated with the stages in medical literature, and it doesn't explicitly mention the name 'Hurley staging,' which could slightly confuse someone unfamiliar with the term. Overall, it effectively conveys the essence of the staging system.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.05,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",5.0,"The transcript does not address the question about Hurley staging for hidradenitis suppurativa at all. Instead, it discusses the general lack of awareness and misdiagnosis issues related to the condition. There is no mention of the Hurley staging system, which is a specific classification used to assess the severity of hidradenitis suppurativa.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.05,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",5.0,"The transcript does not address the question about Hurley staging for hidradenitis suppurativa at all. Instead, it discusses various surgical and non-surgical treatments for HS, such as laser hair removal, injections, deroofing, excision, and incision and drainage. Hurley staging is a classification system used to describe the severity of hidradenitis suppurativa, and the transcript does not mention this system or its stages.",4232.0,Stage 1 and Stage 2 Lung Cancer,0.773769855,4236.0,Stage 3 and Stage 4 Lung Cancer,0.76913321,1100.0,Breast Cancer | Staging,0.768728912
Can HS be cured?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs be cured?,Can HS be cured?,Can HS be cured?,No,,,searchable,exact-match,,,"[{""id"":1946},{""id"":1814},{""id"":1846},{""id"":1965}]",5024.0,CON6-Q2-Is there a cure for HS-Garg.mp4,0.9,Is there a cure for HS?,"We don't have a cure for HS today, and I think part of the problem is because we don't fully understand the disease. How does it happen? Why does it happen and what can we do to specifically address it? I think some of those questions are still outstanding, but there's a lot of research, a lot of people trying to understand exactly how this disease happens and why it happens. And I think as we get closer to those answers, the conversation around being able to cure the condition becomes much more likely.",90.0,"The transcript directly answers the question by stating that there is currently no cure for HS (Hidradenitis Suppurativa). It provides context by explaining the lack of understanding of the disease, which is a barrier to finding a cure. The response is comprehensive and informative, addressing the current state of research and the potential for future developments. However, it could be slightly improved by explicitly stating what HS stands for, as not all listeners may be familiar with the abbreviation.",4824.0,CON1-CH1-Q4-Can HS go into remission-Garg.mp4,0.75,Can HS go into remission?,"We come across patients who have had the disease for a number of years with a fair amount of activity and then over time it just becomes less and less active to the point where some people just have some residual scarring but no active boils or even tunnels. And so yes, we do believe that this condition can go into remission - how and when it happens, we're just not sure yet.",75.0,"The transcript provides a partial answer to the question by suggesting that HS (Hidradenitis Suppurativa) can go into remission, meaning symptoms can significantly reduce or disappear over time. However, it does not explicitly state that HS can be 'cured,' as remission implies the possibility of recurrence. The transcript acknowledges uncertainty about how and when remission occurs, which leaves some ambiguity regarding a definitive cure.",4872.0,CON1-CH6-Q3-Will there ever be a cure-Garg.mp4,0.6,Will there ever be a cure?,"Even just five years ago, if you had asked me, is there ever going to be a cure for HS, I'm not sure I could look you in the eye and say yes. But we've got treatments that I thought were never even possible. The progress is slow and steady, but we're getting there. And I think that there will be a near term in which we can at least think about a cure, at least discuss remission of symptoms.",60.0,"The transcript does not directly answer the question of whether HS can be cured. It suggests optimism about future treatments and the possibility of discussing remission, but it does not confirm the existence of a cure. The response is somewhat informative but lacks a clear, direct answer to the question posed.",556.0,"An Eventual ""Cure""",0.782756746,919.0,Can a Herniated Disc Heal on its Own?,0.779482067,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.775740862
Why does HS keep coming back?,searchable,Patient_Forums,Hidradenitis Suppurativa,why does hs keep coming back?,Why does HS keep coming back?,Why does HS keep coming back?,No,,,searchable,exact-match,,,"[{""id"":1946},{""id"":1979},{""id"":1858},{""id"":1853}]",5024.0,CON6-Q2-Is there a cure for HS-Garg.mp4,0.7,Is there a cure for HS?,"We don't have a cure for HS today, and I think part of the problem is because we don't fully understand the disease. How does it happen? Why does it happen and what can we do to specifically address it? I think some of those questions are still outstanding, but there's a lot of research, a lot of people trying to understand exactly how this disease happens and why it happens. And I think as we get closer to those answers, the conversation around being able to cure the condition becomes much more likely.",70.0,"The transcript addresses the question by explaining that HS (Hidradenitis Suppurativa) keeps recurring because there is no cure and the disease is not fully understood. It mentions ongoing research efforts to understand the disease better, which implies that recurrence is linked to the current gaps in knowledge and treatment. However, it does not provide specific reasons or mechanisms for recurrence, such as genetic factors, lifestyle influences, or treatment limitations, which would have provided a more comprehensive answer.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.3,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",30.0,"The transcript primarily addresses myths and misconceptions about HS (Hidradenitis Suppurativa), such as its causes related to hygiene, weight, and smoking, and demographic factors like race and gender. However, it does not directly answer the question of why HS keeps recurring. The transcript focuses on dispelling myths rather than providing an explanation for the chronic nature of HS or its recurrence. Therefore, while it provides valuable context about common misconceptions, it does not adequately address the specific question about recurrence.",4890.0,CON2-CH2-Q3-Why does my HS still smell when I bathe all the time-Okoye.mp4,0.2,Why does my HS still smell when I bathe all the time?,"Some patients really struggle with the smell of HS. And just to be clear, this has nothing to do with hygiene or cleanliness. What this has to do with is bacteria. So there are bacteria that live on your skin, they're supposed to be there, but when they get trapped in that pocket of the HS bump, they just overgrow and they produce these bad smells.",20.0,"The transcript addresses the smell associated with HS (Hidradenitis Suppurativa) and mentions bacteria overgrowth, but it does not directly answer why HS keeps recurring. The explanation focuses on the symptoms rather than the underlying causes of recurrence, such as genetic factors, immune system involvement, or lifestyle influences. Therefore, it only partially addresses the question.",1112.0,Vaccine Hesitancy | E8,0.753492653,907.0,HSS Overview,0.751106381,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.749388039
What is the difference between HS and acne?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is the difference between hs and acne?,What is the difference between HS and acne?,What is the difference between HS and acne?,No,,,searchable,exact-match,,,"[{""id"":1959},{""id"":1848},{""id"":1850},{""id"":1952}]",5010.0,CON6-Q19-How do I know if a lump is a pimple or HS-Garg.mp4,0.85,How do I know if a lump is a pimple or HS?,"It's a good question. When we refer to pimples, we typically are talking about acne, so pimples are small nodules that may appear on the face or the trunk. Whereas in HS, usually we're referring to boils, abscesses, or nodules, and they're usually happening in different areas of the body, such as under the arms, under the breasts, in the groin, or in the buttocks. So really pimples refer to different lesions altogether. Acne is different from HS.",85.0,"The transcript provides a clear distinction between HS (Hidradenitis Suppurativa) and acne by describing the types of lesions associated with each condition and their typical locations on the body. It explains that acne involves pimples, which are small nodules typically found on the face or trunk, while HS involves boils, abscesses, or nodules in areas like underarms, breasts, groin, or buttocks. However, the transcript could be improved by explicitly stating that HS is a chronic inflammatory skin condition, whereas acne is primarily related to blocked pores and bacterial infection. This additional information would provide a more comprehensive understanding of the differences between the two conditions.",4881.0,CON2-CH1-Q2-How do I know if a lump is a pimple or HS-Okoye.mp4,0.75,How do I know if a lump is a pimple or HS?,"So pimples, regular pimples like we get with acne, usually go away within two or three days. But with HS, these bumps tend to last a little bit longer. They tend to get much bigger than a regular pimple would. So for example, I see patients who have HS bumps that are the size of golf balls or the size of tennis balls. Now you're not dealing with a pimple, you're dealing with HS. So the size, how long it lasts, and how painful the bumps are, these are clues that you might be looking at HS.",75.0,"The transcript provides a comparison between HS (Hidradenitis Suppurativa) and acne by discussing the duration, size, and pain level of the bumps associated with each condition. It effectively highlights that HS bumps last longer, are larger, and more painful than typical acne pimples. However, it does not delve into other differences such as the underlying causes, affected areas, or treatment options, which could provide a more comprehensive answer to the question.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.4,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",40.0,"The transcript provides a partial answer by highlighting that HS (Hidradenitis Suppurativa) is characterized by extremely painful lesions, which is a distinguishing feature from acne. However, it does not provide a comprehensive comparison between HS and acne, such as differences in causes, typical locations on the body, or other clinical features. Therefore, while it touches on a key difference, it lacks depth and completeness in addressing the question fully.",3772.0,Understanding Type 1 and Type 2 Diabetes,0.742391109,1101.0,HSS Minute | Whole Lupus Patient,0.739433229,2309.0,What is Metabolic Syndrome?,0.738868296
How is hidradenitis suppurativa diagnosed?,searchable,Expert_Clinical,Hidradenitis Suppurativa,how is hidradenitis suppurativa diagnosed?,How is hidradenitis suppurativa diagnosed?,How is hidradenitis suppurativa diagnosed?,No,,,searchable,exact-match,diagnosis,,"[{""id"":1951},{""id"":1950},{""id"":1958},{""id"":1959}]",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.9,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",90.0,"The transcript provides a comprehensive answer to the question about how hidradenitis suppurativa (HS) is diagnosed. It correctly states that there is no specific blood or tissue test for HS and emphasizes the importance of clinical observation by an experienced dermatologist. It also describes the typical symptoms and areas affected by HS, which are crucial for diagnosis. The transcript effectively guides the patient on what symptoms to report to their doctor, which is a key part of the diagnostic process. However, it could be slightly improved by mentioning the chronic nature of the condition and the typical age of onset, which are also relevant to diagnosis.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.3,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",30.0,"The transcript provides some context about the challenges in diagnosing hidradenitis suppurativa (HS), such as its similarity to other conditions and the lack of awareness among doctors and patients. However, it does not directly answer the question of how HS is diagnosed. It lacks specific information about the diagnostic criteria, methods, or tests used to identify HS. Therefore, while it offers relevant background information, it does not adequately address the question.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.3,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",30.0,"The transcript describes symptoms of hidradenitis suppurativa (HS) such as nodules, abscesses, tunnels, pain, and drainage, which are relevant to the condition. However, it does not directly address how HS is diagnosed. Diagnosis typically involves clinical evaluation by a healthcare professional based on these symptoms, but the transcript does not mention diagnostic criteria, methods, or tests used to confirm HS.",586.0,Surgical Approaches,0.775143743,405.0,Understanding Minimally Invasive Surgery,0.768790364,564.0,When to Consider Surgery,0.767923772
Do I need a biopsy to diagnose HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,do i need a biopsy to diagnose hs?,Do I need a biopsy to diagnose HS?,Do I need a biopsy to diagnose HS?,No,,,searchable,exact-match,"diagnosis,testing",,"[{""id"":1956},{""id"":1951},{""id"":1955},{""id"":1826}]",5005.0,CON6-Q16-Can a biopsy help confirm my HS diagnosis-Garg.mp4,0.95,Can a biopsy help confirm my HS diagnosis?,"We don't use biopsy to confirm or to diagnose HS. In exceptional circumstances, we may perform a biopsy to rule out another condition, but typically HS is really made just with the powers of observation.",95.0,"The transcript directly answers the question by stating that a biopsy is not typically used to diagnose HS, and that diagnosis is usually made through observation. It also provides additional context by mentioning that a biopsy may be used in exceptional circumstances to rule out other conditions, which is relevant and informative. The answer is clear and directly addresses the question, with a minor deduction for not explicitly stating 'no' at the beginning.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.85,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",85.0,"The transcript effectively answers the question by stating that there is no blood test or tissue test, such as a biopsy, to confirm the diagnosis of Hidradenitis Suppurativa (HS). It emphasizes that diagnosis relies on clinical observation by experienced professionals, particularly dermatologists. While it doesn't explicitly say 'a biopsy is not needed,' it implies that a biopsy is not part of the standard diagnostic process for HS, which addresses the core of the question.",5011.0,CON6-Q15-Can blood tests confirm HS-Garg.mp4,0.8,Can blood tests confirm HS?,To date we don't have a blood test or even a tissue test that can diagnose HS.,80.0,"The transcript effectively answers the question by indicating that there is no specific test, including a biopsy, that can diagnose HS (Hidradenitis Suppurativa). This implies that a biopsy is not necessary for diagnosis, which addresses the question. However, the transcript could be improved by explicitly stating that a biopsy is not required, rather than leaving it implied.",4345.0,Surgical Lung Cancer Tests,0.783082426,4496.0,Specialized Testing For Your Cancer,0.779795825,4726.0,Overview,0.774190903
Can HS spread to other parts of my body?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs spread to other parts of my body?,Can HS spread to other parts of my body?,Can HS spread to other parts of my body?,No,,,searchable,exact-match,,,"[{""id"":1966},{""id"":1927},{""id"":1960},{""id"":1964}]",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.85,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",85.0,"The transcript provides a good explanation of how HS (Hidradenitis Suppurativa) can develop in different parts of the body due to the presence of hair follicles and friction, which indirectly answers the question about spreading. However, it does not explicitly state that HS can 'spread' in the traditional sense, as it is not contagious or infectious. The transcript clarifies that HS can appear in different areas where conditions are favorable, which aligns with the concept of 'spreading' within the same individual, but it could be clearer in directly addressing the question.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.4,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",40.0,"The transcript primarily addresses the contagiousness of HS (Hidradenitis Suppurativa), emphasizing that it is not an infection and cannot be spread to others. However, the question specifically asks whether HS can spread to other parts of the individual's own body, which is not directly addressed in the transcript. The transcript focuses on interpersonal transmission rather than the progression of the condition within the same individual. Therefore, it only partially answers the question, leading to a low rating.",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.3,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",30.0,"The transcript does not directly answer the question of whether HS (Hidradenitis Suppurativa) can spread to other parts of the body. Instead, it discusses the association of HS with other inflammatory diseases and systemic health issues like joint pain, diabetes, and heart disease. While it mentions inflammation affecting the body, it does not clarify if HS lesions themselves can spread to other areas. The response focuses more on comorbidities and systemic effects rather than the spread of HS itself.",125.0,Multiple Sclerosis | Yale Medicine Explains,0.763734639,4533.0,What Will My Treatment Be Like?,0.762766,1101.0,HSS Minute | Whole Lupus Patient,0.75792557
What are tunnels in hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what are tunnels in hidradenitis suppurativa?,What are tunnels in hidradenitis suppurativa?,What are tunnels in Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1910},{""id"":1958},{""id"":1851},{""id"":1908}]",4947.0,CON3-CH3-Q6-What are tunnels-Daveluy.mp4,0.95,What are tunnels?,"Tunnels are one of the problems that we see in HS. Once the disease has been going on for a while, it starts to form tunnels under the skin. So you start off with spots that come and go and either return to kind of looking normal in between flares, or maybe leaves scars, but with time some of those spots will start to form a little pocket under the skin - that's a tunnel. And the reason the tunnels don't heal is because they're actually lined with a layer of what we call epithelium, which is sort of like your skin surface or the inside of your mouth. It's a layer of sort of skin or mucus membrane and that epithelium sort of keeps the tunnel going. That's also where the drainage and the discharge comes from. And sometimes with surgery we aim to remove the lining of those tunnels or remove the tunnels altogether. We used to use different terms for tunnels. Sometimes you might hear them called sinus tracts or fistulas, but to simplify things we now call them tunnels because that applies to all of them, and it's a little bit simpler.",95.0,"The transcript provides a comprehensive explanation of what tunnels are in Hidradenitis Suppurativa (HS). It describes how they form under the skin as the disease progresses, explains why they don't heal due to the epithelial lining, and mentions the associated symptoms like drainage and discharge. It also touches on treatment approaches such as surgical removal and clarifies terminology by comparing tunnels to sinus tracts and fistulas. The answer is detailed and directly addresses the question, making it highly informative and relevant.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.9,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",90.0,"The transcript provides a clear and concise explanation of what tunnels are in the context of Hidradenitis Suppurativa (HS). It describes tunnels as hollow structures within the skin that may leak or drain pus or fluid, which directly answers the question. The transcript also mentions associated symptoms like pain and leakage, adding useful context. However, it could be slightly improved by explaining why these tunnels form or their role in the progression of HS.",4885.0,CON2-CH1-Q5-What are tunnels-Okoye.mp4,0.85,What are tunnels?,"The tunnels of HS are a really important part of this disease. So when you develop a bump associated with HS, if a bump occurs next to it, they end up connecting under the skin and forming what we call tunnels. These tunnels really contribute to the disease because they stay open all the time. So sometimes we can get the bumps to improve, but the tunnels remain under the skin.",85.0,"The transcript provides a clear explanation of what tunnels are in Hidradenitis Suppurativa (HS). It describes how bumps associated with HS can connect under the skin to form tunnels, and explains their significance in the disease process. However, it could be improved by including more details on the implications of these tunnels, such as potential complications or treatment challenges, to provide a more comprehensive understanding.",3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.75440073,586.0,Surgical Approaches,0.751060843,405.0,Understanding Minimally Invasive Surgery,0.749369442
What are draining sinuses in HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what are draining sinuses in hs?,What are draining sinuses in HS?,What are draining sinuses in HS?,No,,,searchable,exact-match,,,"[{""id"":1958},{""id"":1859},{""id"":1862},{""id"":1942}]",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.85,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",85.0,"The transcript provides a clear explanation of draining sinuses in HS by describing them as tunnels within the skin that may leak or drain pus or fluid. It also mentions associated symptoms like pain and leakage, which are relevant to understanding the condition. However, it could be improved by explicitly defining 'HS' as Hidradenitis Suppurativa and directly linking the term 'draining sinuses' to the description of tunnels.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.3,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",30.0,"The transcript does not directly answer the question about what draining sinuses in HS (Hidradenitis Suppurativa) are. Instead, it discusses the importance of addressing draining lesions in HS, treatment options, and the need to consult a doctor. It touches on the concept of drainage being a sign of active disease and mentions surgical and medical treatments to stop drainage. However, it does not define or explain what draining sinuses specifically are in the context of HS. A more direct answer would describe draining sinuses as tunnels or tracts under the skin that can form in HS, often leading to chronic drainage.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.3,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",30.0,"The transcript discusses the management of drainage in HS (Hidradenitis Suppurativa) but does not directly address what draining sinuses are in HS. Draining sinuses in HS refer to the tunnels or tracts that form under the skin, which can lead to chronic drainage. The transcript focuses on the practical aspects of handling drainage, such as using dressings and absorbent materials, but does not explain the medical condition or the nature of draining sinuses themselves.",3774.0,Surgical Intervention for Severe CVI | The SAVVE Trial at Yale,0.760350525,3635.0,Drain Care,0.752231359,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.749794245
Why does HS affect areas where skin rubs together?,searchable,Patient_Forums,Hidradenitis Suppurativa,why does hs affect areas where skin rubs together?,Why does HS affect areas where skin rubs together?,Why does HS affect areas where skin rubs together?,No,,,searchable,exact-match,,,"[{""id"":1854},{""id"":1833},{""id"":1966},{""id"":1964}]",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.85,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",85.0,"The transcript provides a clear explanation that HS (Hidradenitis Suppurativa) tends to occur in areas where there is friction, which is often where skin rubs against skin, such as underarms and the groin. It also mentions other sources of friction, like clothing, which can contribute to HS lesions. This directly answers the question about why HS affects areas where skin rubs together, but could be improved by briefly mentioning the role of inflammation or blocked hair follicles in HS development.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.85,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",85.0,"The transcript provides a plausible explanation for why HS affects areas where skin rubs together by discussing the role of frictional forces in combination with genetic predisposition. It mentions that higher weight can lead to more friction in areas like the underarms and groin, which are common sites for HS. However, the explanation is somewhat indirect and lacks a definitive answer, as it acknowledges that the exact mechanisms are not fully understood. The response is comprehensive but could be more direct in linking friction specifically to the pathophysiology of HS.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.85,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",85.0,"The transcript provides a relevant explanation by stating that HS is an inflammatory disease affecting hair follicles, and it mentions that friction in areas with hair follicles can lead to HS lesions. This directly addresses why HS affects areas where skin rubs together. However, the transcript could be improved by explicitly connecting the inflammation and friction to the typical locations of HS, such as underarms and groin, for a more comprehensive answer.",2321.0,Health Conditions Impacted by the Microbiome,0.750222206,3494.0,Inflammation | Dr. Jim Januzzi,0.749047875,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.742290199
Can children get hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can children get hidradenitis suppurativa?,Can children get hidradenitis suppurativa?,Can children get Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1969},{""id"":1950},{""id"":1953},{""id"":1952}]",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.2,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",20.0,"The transcript does not directly answer the question of whether children can get Hidradenitis Suppurativa (HS). It provides information about genetic predisposition and family history, but it does not address the age at which HS can develop or whether it can occur in children. The response lacks specific information about the occurrence of HS in children, which is the focus of the question.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not directly answer the question of whether children can get Hidradenitis Suppurativa. It discusses the general lack of awareness and potential for misdiagnosis of the condition, but it does not address the age group affected by the disease. Therefore, it provides very little relevant information to answer the specific question about children.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.1,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",10.0,"The transcript does not directly address the question of whether children can get Hidradenitis Suppurativa (HS). It discusses the relationship between acne and HS, particularly in the age group of 20 to 40, but does not provide any information about the occurrence of HS in children. Therefore, it is not a relevant or helpful answer to the question posed.",1039.0,"Parents of Children with Diabetes | E3 
School & Activities",0.752773941,1037.0,"Parents of Children with Diabetes | E1 
Diagnosis Stories",0.752074659,1040.0,"Parents of Children with Diabetes | E4 
Stress & Emotions",0.746286213
At what age does HS usually start?,searchable,Expert_Clinical,Hidradenitis Suppurativa,at what age does hs usually start?,At what age does HS usually start?,At what age does HS usually start?,No,,,searchable,no-match,,,"[{""id"":1953},{""id"":1965},{""id"":1969},{""id"":1962}]",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.2,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",20.0,The transcript does not directly answer the question about the typical age of onset for HS (Hidradenitis Suppurativa). It mentions the age range of 20 to 40 as common for HS occurrence but does not specify the age at which HS usually starts. The focus is more on the coexistence of acne and HS rather than the onset age of HS.,5013.0,CON6-Q28-When should I start treatment for HS-Garg.mp4,0.1,When should I start treatment for HS?,"So with HS, early is always better. We really feel like when we can catch this disease in its earlier stages, we have a much better chance at controlling the symptoms that you have today and slow or even altogether prevent it from getting worse over time.",10.0,The transcript does not directly answer the question about the typical age of onset for HS (Hidradenitis Suppurativa). It discusses the importance of early detection and management but does not provide any information regarding the age at which HS usually starts.,5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.05,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",5.0,"The transcript does not directly address the question about the typical age of onset for HS (Hidradenitis Suppurativa). Instead, it provides information about the genetic predisposition and family history related to the disease. The answer is not relevant to the specific question asked, which is about the age of onset.",933.0,HSS Minute | Early Life Low Bone Density,0.741501153,2325.0,Heart Health | Starting an Exercise Program,0.74054575,380.0,Millennial Health,0.729450047
Can HS go into remission?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs go into remission?,Can HS go into remission?,Can HS go into remission?,No,,,searchable,exact-match,,,"[{""id"":1814},{""id"":1846},{""id"":1849},{""id"":1844}]",4824.0,CON1-CH1-Q4-Can HS go into remission-Garg.mp4,1.0,Can HS go into remission?,"We come across patients who have had the disease for a number of years with a fair amount of activity and then over time it just becomes less and less active to the point where some people just have some residual scarring but no active boils or even tunnels. And so yes, we do believe that this condition can go into remission - how and when it happens, we're just not sure yet.",95.0,"The transcript directly answers the question by confirming that HS can go into remission. It provides additional context by describing the progression of the disease and the uncertainty around the timing and mechanism of remission, which enriches the answer. The only minor gap is the lack of specific details on remission rates or factors influencing remission, but the core question is clearly addressed.",4872.0,CON1-CH6-Q3-Will there ever be a cure-Garg.mp4,0.7,Will there ever be a cure?,"Even just five years ago, if you had asked me, is there ever going to be a cure for HS, I'm not sure I could look you in the eye and say yes. But we've got treatments that I thought were never even possible. The progress is slow and steady, but we're getting there. And I think that there will be a near term in which we can at least think about a cure, at least discuss remission of symptoms.",70.0,"The transcript partially answers the question by suggesting that remission of symptoms is a possibility in the near term. However, it does not directly address whether HS can currently go into remission, focusing instead on future possibilities and treatments. The response could be improved by explicitly stating the current understanding of HS remission.",4876.0,CON2-CH1-Q3-I have no visible lumps does that mean I no longer have HS-Okoye.mp4,0.4,I have no visible lumps - does that mean I no longer have HS?,"If you have no visible lumps at this time, that's great. It means that your HS is under pretty good control at the moment. Unfortunately, we don't have a cure for HS. So it's possible that even though you don't have any bumps today, you may develop one in the future.",40.0,"The transcript partially addresses the question by implying that HS can be under control, which might suggest a form of remission. However, it does not explicitly state that HS can go into remission. Instead, it focuses on the lack of a cure and the possibility of future flare-ups, which does not directly answer whether remission is possible.",4533.0,What Will My Treatment Be Like?,0.782830715,4732.0,Is There a Cure?,0.773866594,1101.0,HSS Minute | Whole Lupus Patient,0.770370066
What does an HS flare feel like?,searchable,Patient_Forums,Hidradenitis Suppurativa,what does an hs flare feel like?,What does an HS flare feel like?,What does an HS flare feel like?,No,,,searchable,exact-match,symptoms,,"[{""id"":1958},{""id"":1877},{""id"":1968},{""id"":1838}]",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.85,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",85.0,"The transcript provides a detailed description of the physical manifestations and symptoms associated with an HS flare, including nodules, abscesses, tunnels, pain, and drainage. While it effectively conveys the physical sensations and symptoms experienced during a flare, it could be improved by including more subjective descriptions of the sensations, such as burning or itching, to fully capture the experience of an HS flare.",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.3,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",30.0,"The transcript primarily discusses the frequency and treatment of HS flares rather than describing what an HS flare feels like. It mentions strategies for managing flares, such as medication, but does not provide information on the physical sensations or symptoms experienced during a flare. Therefore, it does not directly answer the question about the feeling of an HS flare.",5021.0,CON6-Q24-How do I find the right doctor-Gelfand.mp4,0.1,How do I find the right doctor?,"Finding the right care provider is critical for success when living with HS. I think the most important things you could ask a clinician is, one is do they take care of patients with HS? Do they have a lot of patients they manage with this condition? Two is, are they comfortable doing procedures, minor procedures in the office in order to help relieve acute flares of HS and help patients feel better when they're in pain? Are they up to date on the most recent medical advances in managing HS? And probably most importantly, are they going to be there for you when you need them? HS can be so unpredictable, so you need to know that when you're having a flare, you'll be able to get into the office and see that doctor on short notice.",10.0,"The transcript does not directly answer the question about what an HS flare feels like. Instead, it focuses on the importance of finding a care provider for managing HS and the procedures they might perform during a flare. There is no description of the physical sensations or symptoms experienced during an HS flare.",1020.0,Herniated Disc | Treating Flare-ups,0.772999823,915.0,Pinched Nerves and Herniated Discs,0.754209459,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.746450782
How long do HS flares last?,searchable,Patient_Forums,Hidradenitis Suppurativa,how long do hs flares last?,How long do HS flares last?,How long do HS flares last?,No,,,searchable,loose-match,,,"[{""id"":1880},{""id"":1877},{""id"":1848},{""id"":1881}]",4914.0,CON2-CH5-Q5-How do steroids work in my body to treat HS-Garg.mp4,0.3,How do steroids work in my body to treat HS?,"During a flare, the level of inflammation in the body and the level of inflammation in your lesions is abruptly increased. And so steroids are very helpful in that circumstance because they are powerful anti-inflammatories that bring down that level of inflammation really quickly and really reliably. And so we can use steroids as a strategy during these acute flares for a brief period of time, maybe just a week, maybe up to three weeks, to bring down and reset that level of inflammation.",30.0,"The transcript does not directly answer the question about the duration of HS flares. It discusses the use of steroids to manage inflammation during flares and mentions a treatment duration of one to three weeks, but it does not specify how long the flares themselves typically last. The information provided is relevant to managing flares but does not directly address the question asked.",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.3,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",30.0,"The transcript provides information about the frequency of HS flares and treatment options but does not directly address the duration of the flares, which is the main focus of the question. The response discusses how often flares might occur and potential treatments but lacks specific information on how long a flare typically lasts.",4881.0,CON2-CH1-Q2-How do I know if a lump is a pimple or HS-Okoye.mp4,0.3,How do I know if a lump is a pimple or HS?,"So pimples, regular pimples like we get with acne, usually go away within two or three days. But with HS, these bumps tend to last a little bit longer. They tend to get much bigger than a regular pimple would. So for example, I see patients who have HS bumps that are the size of golf balls or the size of tennis balls. Now you're not dealing with a pimple, you're dealing with HS. So the size, how long it lasts, and how painful the bumps are, these are clues that you might be looking at HS.",30.0,"The transcript provides some context about HS (Hidradenitis Suppurativa) by comparing it to regular acne, mentioning that HS bumps last longer and can be larger and more painful. However, it does not directly answer the question of how long HS flares last. It lacks specific information about the duration of HS flares, which is the main focus of the question.",1020.0,Herniated Disc | Treating Flare-ups,0.739248514,719.0,"Jim Cosper 
S3 | E3",0.719192326,2337.0,Heart Health | Effects of Chronic Stress,0.704367876
Why do I get lumps in my armpits that won't go away?,searchable,Patient_Forums,Hidradenitis Suppurativa,why do i get lumps in my armpits that won't go away?,Why do I get lumps in my armpits that won't go away?,Why do I get lumps in my armpits that won't go away?,No,,,contact_doctor,,"symptoms,diagnosis",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
What causes the painful bumps in my groin area?,searchable,Patient_Forums,Hidradenitis Suppurativa,what causes the painful bumps in my groin area?,What causes the painful bumps in my groin area?,What causes the painful bumps in my groin area?,No,,,contact_doctor,,"symptoms,diagnosis",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Can HS affect my buttocks?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs affect my buttocks?,Can HS affect my buttocks?,Can HS affect my buttocks?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1964},{""id"":1904},{""id"":1850}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.9,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",90.0,"The transcript effectively answers the question by confirming that HS (Hidradenitis Suppurativa) can affect the buttocks. It provides practical advice on how to manage HS symptoms related to sitting, which implies that the buttocks can indeed be affected. However, the transcript could be improved by explicitly stating that HS can affect the buttocks, rather than implying it through management strategies.",5015.0,CON6-Q27-Does HS increase my risk of cancer-Daveluy.mp4,0.7,Does HS increase my risk of cancer?,"I'm glad you asked. We actually have some research that helps answer that question. I don't want to alarm you, but technically your HS does slightly increase your risk of getting skin cancer in the areas where you have HS. Any kind of chronic inflammation in the skin has that risk. So HS is included as it has that chronic inflammation. Why this is important is because the skin cancer most commonly develops in the buttocks or genital region in longstanding severe HS. So if you have bad HS for a long time, that's uncontrolled, that's when it can show up. It's important that it shows up in those areas because sometimes it's easier to just show your armpits or your chest at your visit and not show your dermatologist all the areas that your HS involves. But it's really important that you're having your dermatologist check all the areas at least once a year to make sure that there's nothing that looks like it could be skin cancer developing in those spots. It's really tricky because here's how skin cancer looks, an area of the skin that bleeds and won't heal well. And that's just how HS looks, so it can be really hard to distinguish them, and that's why it's important that you're allowing your dermatologist to examine those areas at least once a year, if not every visit, so we can make sure we're not missing that skin cancer. And like I said, don't freak out. It's not a huge elevated risk, but the risk is there, and it's important that you have those areas examined.",70.0,"The transcript addresses the question indirectly by discussing the risk of skin cancer in the buttocks due to HS, implying that HS can indeed affect the buttocks. However, it does not explicitly state that HS can manifest in the buttocks, which is the core of the question. The focus is more on the potential complications (skin cancer) rather than directly confirming the presence of HS in the buttocks. Therefore, while informative, the response could be clearer in directly answering the question.",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.2,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",20.0,"The transcript primarily discusses the risks associated with HS surgery, including infection, scarring, and contracture, but does not directly address whether HS can affect the buttocks. It mentions surgery in areas like the buttocks, implying HS can affect these areas, but does not explicitly answer the question about HS affecting the buttocks outside of surgical context.",2321.0,Health Conditions Impacted by the Microbiome,0.750105321,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.747721,1020.0,Herniated Disc | Treating Flare-ups,0.742754221
Can HS occur under the breasts?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs occur under the breasts?,Can HS occur under the breasts?,Can HS occur under the breasts?,No,,,searchable,exact-match,,,"[{""id"":1959},{""id"":1951},{""id"":1854},{""id"":1958}]",5010.0,CON6-Q19-How do I know if a lump is a pimple or HS-Garg.mp4,0.95,How do I know if a lump is a pimple or HS?,"It's a good question. When we refer to pimples, we typically are talking about acne, so pimples are small nodules that may appear on the face or the trunk. Whereas in HS, usually we're referring to boils, abscesses, or nodules, and they're usually happening in different areas of the body, such as under the arms, under the breasts, in the groin, or in the buttocks. So really pimples refer to different lesions altogether. Acne is different from HS.",95.0,"The transcript answers the question very well by explicitly stating that HS (Hidradenitis Suppurativa) can occur under the breasts. It provides additional context by explaining the nature of HS lesions and differentiating them from acne, which enhances the understanding of the condition. The only minor issue is that the answer could be more direct, but it still clearly addresses the question.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.95,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",95.0,"The transcript directly answers the question by listing 'under the breasts' as one of the common areas where HS can occur. It also provides additional context about the symptoms and diagnosis process for HS, which is relevant and informative. The only minor issue is that it doesn't explicitly confirm that HS can occur under the breasts, but it strongly implies it by including it in the list of common areas.",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.7,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",70.0,"The transcript provides relevant information about HS occurring in areas of friction, which includes under the breasts due to skin-on-skin contact or bra straps. However, it does not explicitly mention the breasts, leaving some ambiguity. A more direct answer would improve clarity.",830.0,Diagnosing Breast Cancer | Yale Medicine Explains,0.777177155,1092.0,Breast Cancer | Understanding Your Disease,0.775316417,933.0,HSS Minute | Early Life Low Bone Density,0.774505138
What is a nodule in HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is a nodule in hs?,What is a nodule in HS?,What is a nodule in HS?,No,,,searchable,exact-match,,,"[{""id"":1958},{""id"":1959},{""id"":1951},{""id"":1848}]",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.7,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",70.0,"The transcript provides a partial answer to the question by describing nodules in the context of HS (Hidradenitis Suppurativa) as lesions that patients note, along with abscesses and tunnels. It mentions symptoms like pain and leakage, which are associated with these nodules. However, it does not specifically define what a nodule is in HS, nor does it differentiate nodules from other types of lesions in HS, such as abscesses or tunnels. A more complete answer would include a specific definition of nodules in HS and how they differ from other lesions.",5010.0,CON6-Q19-How do I know if a lump is a pimple or HS-Garg.mp4,0.6,How do I know if a lump is a pimple or HS?,"It's a good question. When we refer to pimples, we typically are talking about acne, so pimples are small nodules that may appear on the face or the trunk. Whereas in HS, usually we're referring to boils, abscesses, or nodules, and they're usually happening in different areas of the body, such as under the arms, under the breasts, in the groin, or in the buttocks. So really pimples refer to different lesions altogether. Acne is different from HS.",60.0,"The transcript provides a partial answer by distinguishing nodules in HS from acne-related nodules, mentioning typical locations for HS nodules. However, it lacks a detailed explanation of what a nodule specifically is in the context of HS, such as its characteristics or how it differs from other lesions like boils or abscesses.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.3,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",30.0,"The transcript does not directly answer the question 'What is a nodule in HS?' Instead, it provides general information about diagnosing HS (Hidradenitis Suppurativa) and mentions nodules as one of the symptoms, along with boils, abscesses, and tunnels. However, it does not define what a nodule specifically is in the context of HS. A more direct answer would describe a nodule as a type of lesion or lump that forms under the skin, often painful, and is characteristic of HS.",4732.0,Is There a Cure?,0.753265,1101.0,HSS Minute | Whole Lupus Patient,0.748655498,933.0,HSS Minute | Early Life Low Bone Density,0.748497784
What is an abscess in hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is an abscess in hidradenitis suppurativa?,What is an abscess in hidradenitis suppurativa?,What is an abscess in Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1852},{""id"":1958},{""id"":1950},{""id"":1959}]",4880.0,CON2-CH1-Q6-What causes the oozing-Okoye.mp4,0.85,What causes the oozing?,"The oozing in HS is a big deal. It really impacts people's quality of life because it messes up people's clothing, and the patients have to use dressings and have to change their dressings multiple times a day to manage this symptom. So it's a really important question. But basically in HS, when you develop these little bumps under the skin, it's essentially a pocket of puss, and over time as that pocket gets larger, that pus needs to come out somewhere and so it starts to leak out through the skin.",85.0,"The transcript provides a good explanation of what an abscess is in the context of Hidradenitis Suppurativa (HS). It describes the formation of 'little bumps under the skin' as 'a pocket of pus,' which aligns with the definition of an abscess. It also explains the progression of these pockets and how they eventually leak, which is characteristic of abscesses in HS. However, the transcript could be improved by explicitly using the term 'abscess' to directly connect the description to the question.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.75,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",75.0,"The transcript provides a partial answer by describing abscesses as nodules and boils that are associated with Hidradenitis Suppurativa (HS). It mentions symptoms like pain and drainage, which are relevant to abscesses. However, it does not explicitly define what an abscess is in the context of HS, nor does it differentiate abscesses from other lesions like nodules or tunnels. A more complete answer would include a definition of an abscess and its specific characteristics in HS.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.3,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",30.0,"The transcript provides some context about Hidradenitis Suppurativa (HS) and mentions that its lesions can mimic abscesses, but it does not directly answer the question about what an abscess in HS is. It focuses more on the challenges of diagnosing HS and the lack of awareness about the condition rather than explaining the nature of abscesses within HS.",3494.0,Inflammation | Dr. Jim Januzzi,0.7648018,586.0,Surgical Approaches,0.746561885,405.0,Understanding Minimally Invasive Surgery,0.744849503
How do I tell the difference between a cyst and an HS lesion?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i tell the difference between a cyst and an hs lesion?,How do I tell the difference between a cyst and an HS lesion?,How do I tell the difference between a cyst and an HS lesion?,No,,,searchable,exact-match,,,"[{""id"":1951},{""id"":1958},{""id"":1848},{""id"":1959}]",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.7,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",70.0,"The transcript provides useful information on identifying HS lesions by describing their typical locations and characteristics, such as boils, abscesses, nodules, and tunnels that drain. It suggests seeing a dermatologist for a definitive diagnosis. However, it does not directly compare these features to those of a cyst, which would be necessary for a complete answer to the question. The response is helpful but lacks specific details on differentiating between a cyst and an HS lesion.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.7,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",70.0,"The transcript provides some characteristics of HS lesions, such as nodules, abscesses, tunnels, pain, and drainage, which can help differentiate them from cysts. However, it does not explicitly describe the features of cysts or directly compare them to HS lesions, which would be necessary for a complete answer to the question.",4881.0,CON2-CH1-Q2-How do I know if a lump is a pimple or HS-Okoye.mp4,0.6,How do I know if a lump is a pimple or HS?,"So pimples, regular pimples like we get with acne, usually go away within two or three days. But with HS, these bumps tend to last a little bit longer. They tend to get much bigger than a regular pimple would. So for example, I see patients who have HS bumps that are the size of golf balls or the size of tennis balls. Now you're not dealing with a pimple, you're dealing with HS. So the size, how long it lasts, and how painful the bumps are, these are clues that you might be looking at HS.",60.0,"The transcript provides some useful information for distinguishing HS lesions from regular pimples, focusing on size, duration, and pain. However, it does not directly address the difference between a cyst and an HS lesion, which is the specific question asked. More detailed information on the characteristics of cysts compared to HS lesions would be needed for a complete answer.",830.0,Diagnosing Breast Cancer | Yale Medicine Explains,0.760442495,4496.0,Specialized Testing For Your Cancer,0.754561841,4493.0,All About Biopsies,0.754422486
Can HS cause scarring?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs cause scarring?,Can HS cause scarring?,Can HS cause scarring?,No,,,searchable,exact-match,,,"[{""id"":1821},{""id"":1814},{""id"":1904},{""id"":1966}]",4834.0,CON1-CH1-Q11-How can I prevent scarring-Daveluy.mp4,0.85,How do I prevent scarring?,"The best way to prevent scarring in HS is to turn the disease off. We are talking a lot about the window of opportunity, which is we need to try to get people's HS under control as soon as possible before it starts causing scars and tunnels to form. We've got a lot of work to do and a lot of room to improve in this area because we need to recognize HS better, get to diagnosis sooner, and get on treatment sooner. But that is our goal with treatment, is to turn the disease off so it stops causing scars and it stops causing tunnels. So a really important thing is if you're seeing scar formation, it means you probably need to step up your therapy, add onto your regimen, talk to your doctor, let them know that you're having scars and tunnels forming, and that we want to prevent that from happening by getting on effective therapies that get the disease activity to a minimum or completely stopped.",85.0,"The transcript effectively answers the question by confirming that HS can cause scarring. It emphasizes the importance of early intervention and treatment to prevent scarring and tunnel formation, which are complications of HS. The response provides a clear explanation of the relationship between HS and scarring, and suggests steps to mitigate this issue, such as improving diagnosis and treatment. However, it could be more direct in initially stating 'Yes, HS can cause scarring' before elaborating on prevention strategies.",4824.0,CON1-CH1-Q4-Can HS go into remission-Garg.mp4,0.85,Can HS go into remission?,"We come across patients who have had the disease for a number of years with a fair amount of activity and then over time it just becomes less and less active to the point where some people just have some residual scarring but no active boils or even tunnels. And so yes, we do believe that this condition can go into remission - how and when it happens, we're just not sure yet.",85.0,"The transcript effectively answers the question by indicating that HS (Hidradenitis Suppurativa) can indeed cause scarring. It mentions that over time, patients may be left with residual scarring even when the disease becomes less active or goes into remission. However, the transcript could be more direct in addressing the question by explicitly stating that HS can cause scarring, rather than implying it through the context of disease progression.",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.8,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",80.0,"The transcript does address the question of whether HS (Hidradenitis Suppurativa) can cause scarring. It mentions that HS itself can cause scarring and contractures, which are forms of scarring where the skin heals tighter than it should. However, the transcript primarily focuses on the risks associated with HS surgery, including scarring, rather than directly addressing scarring caused by HS itself. The information is relevant but not directly focused on the question, which is why the rating is not higher.",1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.753528357,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.753181636,907.0,HSS Overview,0.747164428
What kind of scars does hidradenitis suppurativa leave?,searchable,Patient_Forums,Hidradenitis Suppurativa,what kind of scars does hidradenitis suppurativa leave?,What kind of scars does hidradenitis suppurativa leave?,What kind of scars does Hidradenitis Suppurativa leave?,No,,,searchable,loose-match,,,"[{""id"":1821},{""id"":1904},{""id"":1958},{""id"":1950}]",4834.0,CON1-CH1-Q11-How can I prevent scarring-Daveluy.mp4,0.4,How do I prevent scarring?,"The best way to prevent scarring in HS is to turn the disease off. We are talking a lot about the window of opportunity, which is we need to try to get people's HS under control as soon as possible before it starts causing scars and tunnels to form. We've got a lot of work to do and a lot of room to improve in this area because we need to recognize HS better, get to diagnosis sooner, and get on treatment sooner. But that is our goal with treatment, is to turn the disease off so it stops causing scars and it stops causing tunnels. So a really important thing is if you're seeing scar formation, it means you probably need to step up your therapy, add onto your regimen, talk to your doctor, let them know that you're having scars and tunnels forming, and that we want to prevent that from happening by getting on effective therapies that get the disease activity to a minimum or completely stopped.",40.0,"The transcript discusses the prevention of scarring in Hidradenitis Suppurativa (HS) and emphasizes the importance of early treatment to prevent scars and tunnels. However, it does not directly answer the question about the specific types of scars HS leaves. The focus is more on management and prevention rather than describing the nature of the scars themselves.",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.3,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",30.0,"The transcript does not directly address the question about the specific types of scars left by Hidradenitis Suppurativa (HS). Instead, it focuses on the risks associated with HS surgery, including infection and scarring, and briefly mentions contractures as a type of scarring that can occur post-surgery. However, it does not describe the typical scars caused by HS itself, such as keloids or hypertrophic scars, which would be more relevant to the question. The transcript provides some context about scarring in general but lacks specific information about the scars directly resulting from HS.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.3,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",30.0,"The transcript describes the symptoms and lesions associated with Hidradenitis Suppurativa (HS), such as nodules, abscesses, and tunnels, but it does not directly address the specific question about the types of scars HS leaves. The question is about the scarring, while the transcript focuses on the active lesions and their symptoms. Therefore, the answer is only partially relevant to the question.",833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.749857724,2878.0,Surgical Site Care After Surgery,0.744442403,586.0,Surgical Approaches,0.742802262
Can HS scars be treated or removed?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs scars be treated or removed?,Can HS scars be treated or removed?,Can his scars be treated or removed?,No,,,searchable,loose-match,treatments,,"[{""id"":1821},{""id"":1911},{""id"":1908},{""id"":1912}]",4834.0,CON1-CH1-Q11-How can I prevent scarring-Daveluy.mp4,0.4,How do I prevent scarring?,"The best way to prevent scarring in HS is to turn the disease off. We are talking a lot about the window of opportunity, which is we need to try to get people's HS under control as soon as possible before it starts causing scars and tunnels to form. We've got a lot of work to do and a lot of room to improve in this area because we need to recognize HS better, get to diagnosis sooner, and get on treatment sooner. But that is our goal with treatment, is to turn the disease off so it stops causing scars and it stops causing tunnels. So a really important thing is if you're seeing scar formation, it means you probably need to step up your therapy, add onto your regimen, talk to your doctor, let them know that you're having scars and tunnels forming, and that we want to prevent that from happening by getting on effective therapies that get the disease activity to a minimum or completely stopped.",40.0,"The transcript primarily focuses on preventing further scarring by controlling the underlying disease (HS) rather than directly addressing the treatment or removal of existing scars. It emphasizes early intervention and disease management to prevent new scars but does not provide specific information on treating or removing existing scars. Therefore, it partially addresses the question by implying that controlling the disease might prevent further scarring, but it does not directly answer whether existing scars can be treated or removed.",4948.0,CON3-CH3-Q7-Will I keep needing surgery-Daveluy.mp4,0.4,Will I keep needing surgery?,"There's a lot of elements that go into answering that question, which again, just talks to how complicated HS can be. Some patients need only one surgery just to get rid of one spot and then they don't need it again. Other patients need a series of surgeries to treat different areas of the body where they have tunnels or lesions that require surgery. And then the other aspect of that is the disease activity. So we always aim to get your disease under control with medications and then do surgery for the spots that are left. But if you don't keep the disease under control, it may flare up again, cause new tunnels, and then you may need surgery again in that area. So, it's a little unpredictable, but we do our best to treat with both medications and surgeries to give the best care and the best chance that you won't need any surgery in the future.
",40.0,"The transcript discusses the treatment of HS (Hidradenitis Suppurativa) through surgery and medication, focusing on disease control and the unpredictability of needing further surgery. However, it does not directly address the question of whether scars can be treated or removed. The response is more about managing the disease and preventing future lesions rather than specifically addressing scar treatment or removal.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.3,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",30.0,"The transcript primarily discusses surgical options for treating hidradenitis suppurativa (HS), focusing on procedures like laser hair removal, deroofing, excision, and incision and drainage. However, it does not directly address the question of whether scars can be treated or removed. While it mentions that deroofing results in a scar that doesn't cause pain, and excision is used for areas with a lot of scars, it doesn't explicitly discuss treatments specifically aimed at scar removal or improvement. The focus is more on managing HS lesions and tunnels rather than treating existing scars. Therefore, the transcript only partially addresses the question.",919.0,Can a Herniated Disc Heal on its Own?,0.776616395,4492.0,Is My Treatment Working?,0.775298953,556.0,"An Eventual ""Cure""",0.774671137
What medications are used to treat HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what medications are used to treat hs?,What medications are used to treat HS?,What medications are used to treat HS?,No,,,searchable,exact-match,treatments,,"[{""id"":1888},{""id"":1918},{""id"":1855},{""id"":1925}]",4930.0,CON3-CH1-Q4-What are the best oral antibiotics to treat HS-Daveluy.mp4,0.9,What are the best oral antibiotics to treat HS?,"I'm glad you asked because there's often a misconception that HS is an infection and it's not. And so you can't just reach for any antibiotic. Some have studies that show that they work, others don't. And you may be getting some that work and some that don't based on if your doctor knows that they're treating HS. The ones that have the most studies to support their use are doxycycline and minocycline, which are cousins of each other. They're in the same family of antibiotics, and they both have studies that show they can help to stop new spots from coming, get rid of the nodules, which are the sort of red swollen lumps, and the abscesses, which are the fluid-filled pockets. They don't tend to work as well for the tunnels, but that's true of a lot of treatments. Another antibiotic that's been very well studied is called clindamycin. And when we use antibiotics on HS, it's a little different than infections. We often use them for weeks at a time because we actually want to control the disease activity and calm the inflammation down versus when you're treating an infection, you just do a short course just enough to kill the bacteria. Another antibiotic that might be used for your HS is actually an IV medication that has to be given through an IV in your vein. It's called ertapenem. It works incredibly well for HS, but only while you're on it, so it's sort of a temporary treatment while we figure out what else we're going to do to get your HS under control. There are a few other antibiotics that your doctor may talk to you about, like metronidazole, moxifloxacin, and rifampin. And so it's a good thing to have a conversation with your doctor about which antibiotics have evidence for HS, and have proven benefits, and then figure out based on your personal health and your history which one's the best for you.",90.0,"The transcript provides a comprehensive answer to the question about medications used to treat HS (Hidradenitis Suppurativa). It lists several antibiotics that are supported by studies, such as doxycycline, minocycline, clindamycin, and ertapenem, and explains their roles in managing HS. It also mentions other antibiotics like metronidazole, moxifloxacin, and rifampin. The transcript clarifies the purpose of using antibiotics in HS treatment, which is to control disease activity and inflammation rather than treating an infection. However, it could be improved by mentioning non-antibiotic treatments for HS, such as biologics or hormonal therapies, to provide a more complete overview of treatment options.",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.5,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",50.0,"The transcript provides partial information about medications used to treat HS (Hidradenitis Suppurativa). It mentions spironolactone as a treatment option, particularly for women, and notes its use in combination with other medications like biologics. However, it does not provide a comprehensive list of medications commonly used for HS, such as antibiotics, retinoids, or other biologics like adalimumab. Therefore, while it offers some relevant information, it lacks completeness in addressing the question fully.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.2,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",20.0,"The transcript provides minimal information relevant to the question. It mentions that some medications used for HS also treat acne, but it does not specify any particular medications used to treat HS. The response lacks detail and specificity, which are necessary to adequately answer the question about medications for HS.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.782747388,101.0,"Medication
S1 | E2",0.780644834,1090.0,Managing Diabetes with Medication,0.780175
What antibiotics work for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what antibiotics work for hidradenitis suppurativa?,What antibiotics work for hidradenitis suppurativa?,What antibiotics work for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1888},{""id"":1885},{""id"":1890},{""id"":1887}]",4930.0,CON3-CH1-Q4-What are the best oral antibiotics to treat HS-Daveluy.mp4,0.95,What are the best oral antibiotics to treat HS?,"I'm glad you asked because there's often a misconception that HS is an infection and it's not. And so you can't just reach for any antibiotic. Some have studies that show that they work, others don't. And you may be getting some that work and some that don't based on if your doctor knows that they're treating HS. The ones that have the most studies to support their use are doxycycline and minocycline, which are cousins of each other. They're in the same family of antibiotics, and they both have studies that show they can help to stop new spots from coming, get rid of the nodules, which are the sort of red swollen lumps, and the abscesses, which are the fluid-filled pockets. They don't tend to work as well for the tunnels, but that's true of a lot of treatments. Another antibiotic that's been very well studied is called clindamycin. And when we use antibiotics on HS, it's a little different than infections. We often use them for weeks at a time because we actually want to control the disease activity and calm the inflammation down versus when you're treating an infection, you just do a short course just enough to kill the bacteria. Another antibiotic that might be used for your HS is actually an IV medication that has to be given through an IV in your vein. It's called ertapenem. It works incredibly well for HS, but only while you're on it, so it's sort of a temporary treatment while we figure out what else we're going to do to get your HS under control. There are a few other antibiotics that your doctor may talk to you about, like metronidazole, moxifloxacin, and rifampin. And so it's a good thing to have a conversation with your doctor about which antibiotics have evidence for HS, and have proven benefits, and then figure out based on your personal health and your history which one's the best for you.",95.0,"The transcript provides a comprehensive answer to the question by listing specific antibiotics that are effective for Hidradenitis Suppurativa (HS), such as doxycycline, minocycline, clindamycin, and ertapenem. It explains the rationale behind using antibiotics for HS, emphasizing their role in controlling disease activity and inflammation rather than treating an infection. The transcript also mentions other antibiotics like metronidazole, moxifloxacin, and rifampin, and advises consulting with a doctor to choose the best treatment based on individual health needs. The only minor gap is the lack of detail on the mechanism of action of these antibiotics, but overall, the answer is thorough and informative.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.85,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",85.0,"The transcript provides a detailed explanation about the use of antibiotics in treating Hidradenitis Suppurativa (HS), clarifying that HS is not an infection but involves inflammation. It mentions doxycycline, a tetracycline antibiotic, as commonly used to address inflammation in HS. While the transcript does not list multiple antibiotics, it effectively explains the rationale behind using antibiotics like doxycycline for HS, which aligns well with the question's focus on antibiotics for HS.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.7,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",70.0,"The transcript provides a partial answer to the question by mentioning topical clindamycin as a commonly used antibiotic for Hidradenitis Suppurativa (HS). It also discusses the use of oral antibiotics during flare-ups or active disease stages. However, it does not provide a comprehensive list of antibiotics that can be used for HS, nor does it mention other commonly used antibiotics like tetracyclines or rifampin. The focus is more on the application and rationale for using antibiotics rather than a detailed list, which limits the completeness of the answer.",2302.0,Antibiotics and the Microbiome,0.755390942,1109.0,Antibiotic Resistance | E5,0.732996285,3489.0,Solutions | Dr. Lou Aronne,0.730860054
How long do I need to take antibiotics for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,how long do i need to take antibiotics for hs?,How long do I need to take antibiotics for HS?,How long do I need to take antibiotics for HS?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
What are biologics for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what are biologics for hs?,What are biologics for HS?,What are biologics for HS?,No,,,searchable,exact-match,,,"[{""id"":1896},{""id"":1947},{""id"":1897},{""id"":1899}]",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.85,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",85.0,"The transcript provides a good answer to the question by listing the biologics approved for HS: Humira, Cosentyx, and Bimzelx. It also gives context about their history and usage in other diseases, which adds depth to the answer. However, it could be improved by briefly explaining what biologics are or how they work in the context of HS, which would make the answer more comprehensive.",5014.0,CON6-Q3-What are biologics-Garg.mp4,0.85,What are biologics?,"A biologic is type of medication that is developed or has its origins from another living being - another human, sometimes an animal, even a plant. But the way it's engineered ultimately results in addressing a very specific target of inflammation that is involved in HS. So it's a very narrow and precise target of inflammation, which we think helps to improve its safety profile while specifically addressing a pathway of inflammation we know is important.",85.0,"The transcript provides a clear explanation of what biologics are, emphasizing their origin from living organisms and their targeted action on inflammation, which is relevant to HS (Hidradenitis Suppurativa). However, it does not mention specific examples of biologics used for HS, which would have made the answer more complete. Overall, it effectively explains the concept and purpose of biologics in the context of HS.",4937.0,CON3-CH2-Q6-Will my insurance cover biologics-Okoye.mp4,0.4,Will my insurance cover biologics?,"The FDA-approved biologics for HS are usually covered by most insurance companies. The first biologic that was approved, which is Humira, is often the best covered by insurance. It's been around longer. It even has some generic equivalents now, and so they're a little bit more affordable. And so insurance companies tend to prefer Humira and its generics. But don't worry about that part. Let your care team worry about that. We write letters to the insurance companies, we get on the phone with them and argue your case. We send them research showing that this medicine is going to change your life and often we'll get it for you.",40.0,"The transcript mentions Humira as a biologic for HS, which partially answers the question by identifying one specific biologic. However, it does not provide a comprehensive list or explanation of what biologics are used for HS, nor does it explain their mechanism of action or benefits. The focus is more on insurance coverage and advocacy rather than the biologics themselves.",4223.0,Is Regenerative Medicine Right for Me?,0.801567852,4227.0,"Regenerative Medicine for Muscle, Bone and Joint Health",0.791305184,4541.0,What Are My Medical Treatment Options?,0.75977
Is Humira approved for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is humira approved for hidradenitis suppurativa?,Is Humira approved for hidradenitis suppurativa?,Is Humira approved for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1896},{""id"":1897},{""id"":1934},{""id"":1950}]",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.95,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",95.0,"The transcript answers the question directly by stating that Humira was the first biologic FDA-approved for Hidradenitis Suppurativa (HS). It provides additional context by mentioning its long history of use in other diseases and the existence of other biologics approved for HS. This comprehensive information supports the answer well, making it highly relevant and complete.",4937.0,CON3-CH2-Q6-Will my insurance cover biologics-Okoye.mp4,0.85,Will my insurance cover biologics?,"The FDA-approved biologics for HS are usually covered by most insurance companies. The first biologic that was approved, which is Humira, is often the best covered by insurance. It's been around longer. It even has some generic equivalents now, and so they're a little bit more affordable. And so insurance companies tend to prefer Humira and its generics. But don't worry about that part. Let your care team worry about that. We write letters to the insurance companies, we get on the phone with them and argue your case. We send them research showing that this medicine is going to change your life and often we'll get it for you.",85.0,"The transcript effectively answers the question by stating that Humira is the first biologic approved for Hidradenitis Suppurativa (HS), which implies that it is indeed approved for this condition. However, the transcript could be clearer by explicitly stating that Humira is approved for HS, rather than implying it through context. The additional information about insurance coverage and advocacy by the care team, while useful, is not directly related to the approval status of Humira for HS.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.2,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",20.0,"The transcript does not directly answer the question about whether Humira is approved for Hidradenitis Suppurativa (HS). It mentions Humira in the context of its safety during pregnancy and its historical use, but it does not address its approval status for HS. The transcript also discusses another biologic, Cimzia, which is not FDA-approved for HS, but this information is not relevant to the question about Humira's approval status.",1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.748711467,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.738396347,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.736743212
How does Humira work for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,how does humira work for hs?,How does Humira work for HS?,How does Humira work for HS?,No,,,searchable,no-match,,,"[{""id"":1896},{""id"":1844},{""id"":1897},{""id"":1934}]",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.2,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",20.0,"The transcript provides background information on Humira, mentioning its FDA approval for HS and its use in other diseases like psoriasis and rheumatoid arthritis. However, it does not explain how Humira works specifically for HS. The mechanism of action or the specific effects of Humira on HS are not discussed, which is crucial to answering the question effectively.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.2,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",20.0,"The transcript does not directly answer the question about how Humira works for HS (Hidradenitis Suppurativa). Instead, it provides general information about research and treatment development for HS. It mentions the study of different molecules and the hope for new treatments but does not specifically address the mechanism of action of Humira in treating HS. A more relevant answer would include details about how Humira, as a TNF-alpha inhibitor, reduces inflammation in HS.",4937.0,CON3-CH2-Q6-Will my insurance cover biologics-Okoye.mp4,0.2,Will my insurance cover biologics?,"The FDA-approved biologics for HS are usually covered by most insurance companies. The first biologic that was approved, which is Humira, is often the best covered by insurance. It's been around longer. It even has some generic equivalents now, and so they're a little bit more affordable. And so insurance companies tend to prefer Humira and its generics. But don't worry about that part. Let your care team worry about that. We write letters to the insurance companies, we get on the phone with them and argue your case. We send them research showing that this medicine is going to change your life and often we'll get it for you.",20.0,"The transcript primarily discusses insurance coverage and affordability of Humira, rather than explaining its mechanism of action for treating Hidradenitis Suppurativa (HS). The question specifically asks how Humira works for HS, which involves its biological effects and therapeutic action, such as its role as a TNF inhibitor reducing inflammation. The transcript does not address these aspects, resulting in a low score for relevance to the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.771570206,907.0,HSS Overview,0.761192799,1101.0,HSS Minute | Whole Lupus Patient,0.756275594
What is adalimumab and how does it help HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is adalimumab and how does it help hs?,What is adalimumab and how does it help HS?,What is Adalimumab and how does it help HS?,No,,,searchable,loose-match,treatments,,"[{""id"":1896},{""id"":1948},{""id"":1844},{""id"":1894}]",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.3,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",30.0,"The transcript mentions Adalimumab (Humira) as a biologic approved for HS and provides some historical context about its use in other diseases. However, it does not explain what Adalimumab is or how it specifically helps HS. The answer lacks details on the mechanism of action, benefits, or effects of Adalimumab in treating HS, which are crucial to fully addressing the question.",5000.0,CON6-Q4-What are the most effective treatments-Garg.mp4,0.2,What are the most effective treatments?,"This is the million dollar question for everybody with this condition. And what I would say in general, the most effective treatment strategy is the one that works for you. But you have to work with your doctor in figuring out what that is. There are your traditional and basic treatments, which in general we feel like don't truly modify disease activity. Those sometimes are pretty good at controlling the symptoms that you have, to the most advanced treatments that we have today, which are these targeted treatments, which really isolate and target a specific inflammatory pathway that we know is involved in HS. And in general, the data suggests that those are probably the most effective treatments we have today.",20.0,"The transcript does not directly address the question about Adalimumab or its role in treating HS (Hidradenitis Suppurativa). It vaguely mentions advanced treatments targeting specific inflammatory pathways, which could imply biologics like Adalimumab, but it does not explicitly name or describe Adalimumab or explain how it helps HS. The response is too general and lacks specific information about the drug in question.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.1,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",10.0,"The transcript does not directly address the question about Adalimumab or its role in treating HS (Hidradenitis Suppurativa). Instead, it provides a general overview of research and clinical trials related to HS. There is no mention of Adalimumab specifically, nor is there an explanation of how it helps with HS. Therefore, the transcript is largely irrelevant to the question asked.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.770169,1101.0,HSS Minute | Whole Lupus Patient,0.766512632,3772.0,Understanding Type 1 and Type 2 Diabetes,0.762085795
Is Cosentyx approved for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is cosentyx approved for hs?,Is Cosentyx approved for HS?,Is Cosentyx approved for HS?,No,,,searchable,exact-match,,,"[{""id"":1896},{""id"":1844},{""id"":1855},{""id"":1845}]",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.95,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",95.0,"The transcript answers the question directly by stating that Cosentyx is the second FDA-approved biologic for HS. This provides a clear and direct answer to the question about its approval status. The additional context about other biologics and their history of use in HS and other conditions further supports the information provided, making the response comprehensive and informative.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.1,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",10.0,"The transcript does not directly answer the question about whether Cosentyx is approved for HS. It discusses ongoing research and potential future treatments for HS but does not mention Cosentyx specifically or its approval status. Therefore, it provides very little relevant information to answer the question.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.1,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",10.0,"The transcript does not directly address whether Cosentyx is approved for HS. It discusses the treatment of HS and acne, but does not mention Cosentyx or its approval status. Therefore, it provides very little relevant information to answer the specific question asked.",1101.0,HSS Minute | Whole Lupus Patient,0.758055449,1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.749217153,907.0,HSS Overview,0.749060333
What is secukinumab for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is secukinumab for hidradenitis suppurativa?,What is secukinumab for hidradenitis suppurativa?,What is Secukinumab for Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1885},{""id"":1950},{""id"":1890},{""id"":1919}]",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.1,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",10.0,"The transcript does not address the question about Secukinumab for Hidradenitis Suppurativa at all. Instead, it discusses the misconception of HS as an infection, the role of the microbiome, and the use of antibiotics like doxycycline for inflammation in HS. There is no mention of Secukinumab or its role in treating Hidradenitis Suppurativa, making the transcript largely irrelevant to the question.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.05,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",5.0,"The transcript does not address the question about Secukinumab for Hidradenitis Suppurativa at all. Instead, it discusses the general lack of awareness and misdiagnosis issues related to Hidradenitis Suppurativa. There is no mention of Secukinumab or its use in treating the condition, making the transcript irrelevant to the question.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.05,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",5.0,"The transcript does not address the question about Secukinumab for Hidradenitis Suppurativa at all. Instead, it discusses the use of topical and oral antibiotics for managing the condition, without mentioning Secukinumab or its role in treatment. Therefore, the transcript is not relevant to the question asked.",1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.753633559,1101.0,HSS Minute | Whole Lupus Patient,0.741390705,556.0,"An Eventual ""Cure""",0.741110086
How effective are biologics for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,how effective are biologics for hs?,How effective are biologics for HS?,How effective are biologics for HS?,No,,,searchable,exact-match,,,"[{""id"":1902},{""id"":1896},{""id"":1899},{""id"":1894}]",4942.0,CON3-CH2-Q11-Can you become immune to biologics-Garg.mp4,0.75,Can you become immune to biologics?,"So for HS, we see that biologics tend to have a durable response, meaning if you're going to have a response to a biologic, and most patients do, there's a good chance you're going to keep that response out to a year, two years, and even data shows that maybe even three years.",75.0,"The transcript provides a partial answer to the question by indicating that biologics have a durable response for HS, suggesting effectiveness over a long period (up to three years). However, it lacks specific details on the overall effectiveness rate, comparison with other treatments, or any statistical data that would provide a more comprehensive understanding of how effective biologics are for HS.",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.4,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",40.0,"The transcript provides information about the history and approval of biologics for HS, mentioning specific drugs like Humira, Cosentyx, and Bimzelx. However, it does not directly address the effectiveness of these biologics for HS. It focuses more on their approval timeline and usage in other diseases, rather than providing data or insights into their efficacy in treating HS specifically.",4936.0,CON3-CH2-Q8-What is the purpose of a biologic-Okoye.mp4,0.4,What is the purpose of a biologic?,"The goal of being treated with a biologic is to get better control of the inflammation of your HS. Inflammation in your body is a bad thing. And so we want to quell that inflammation as soon as we can. The inflammation isn't just in your skin. It affects potentially your heart, it can affect your brain, it can affect your gut. And so we want to be aggressive in treating the inflammation of HS.",40.0,"The transcript provides a general explanation of the purpose of biologics in treating HS, focusing on controlling inflammation. However, it does not directly address the effectiveness of biologics for HS. It lacks specific information on how well biologics work, such as success rates, comparison with other treatments, or patient outcomes. Therefore, while it touches on the role of biologics, it does not adequately answer the question about their effectiveness.",4223.0,Is Regenerative Medicine Right for Me?,0.791038,4227.0,"Regenerative Medicine for Muscle, Bone and Joint Health",0.778807223,302.0,Should I Get The COVID-19 Vaccine? Yale Medicine Experts Answer Your Questions,0.760117412
What are the side effects of Humira for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what are the side effects of humira for hs?,What are the side effects of Humira for HS?,What are the side effects of Humira for HS?,No,,,searchable,no-match,,,"[{""id"":1934},{""id"":1896},{""id"":1960},{""id"":1958}]",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.1,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",10.0,"The transcript does not address the question about the side effects of Humira for HS. Instead, it discusses the safety of Humira during pregnancy and mentions other treatment options. There is no information provided about the specific side effects of Humira when used for HS.",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.1,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",10.0,"The transcript does not address the question about the side effects of Humira for HS at all. Instead, it provides a historical overview of biologics used for HS, including Humira, but does not mention any side effects. Therefore, it does not answer the question posed.",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.05,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",5.0,"The transcript does not address the question about the side effects of Humira for HS at all. Instead, it discusses the association of HS with other inflammatory diseases and metabolic health issues. There is no mention of Humira or its side effects, making the response irrelevant to the question.",565.0,Managing Side Effects,0.774824798,1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.765104353,4533.0,What Will My Treatment Be Like?,0.764123738
How long does it take for biologics to work for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how long does it take for biologics to work for hs?,How long does it take for biologics to work for HS?,How long does it take for biologics to work for HS?,No,,,searchable,no-match,treatments,,"[{""id"":1902},{""id"":1896},{""id"":1894},{""id"":1971}]",4942.0,CON3-CH2-Q11-Can you become immune to biologics-Garg.mp4,0.2,Can you become immune to biologics?,"So for HS, we see that biologics tend to have a durable response, meaning if you're going to have a response to a biologic, and most patients do, there's a good chance you're going to keep that response out to a year, two years, and even data shows that maybe even three years.",20.0,"The transcript discusses the durability of the response to biologics for HS, mentioning that the response can last for years. However, it does not address the initial time frame required for biologics to start working, which is the focus of the question. The answer lacks information on how long it takes for biologics to begin showing effects after treatment initiation.",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.2,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",20.0,"The transcript provides information about the history and approval of biologics for HS, mentioning specific drugs like Humira, Cosentyx, and Bimzelx. However, it does not address the specific question of how long it takes for biologics to work for HS. The response lacks any information on the onset of action or expected time frame for these treatments to show effectiveness in HS patients.",4941.0,CON3-CH2-Q3-How long will I be on biologics-Okoye.mp4,0.2,How long will I be on antibiotics?,"Unfortunately, we don't yet have a cure for HS. And so if you are on a biologic and it's working for you, then I would recommend that you stay on it for as many years as you need to take it.",20.0,"The transcript does not directly answer the question about how long it takes for biologics to work for HS. Instead, it discusses the lack of a cure for HS and suggests staying on a biologic if it is effective, without providing any information on the onset of action or time frame for biologics to show effects.",4223.0,Is Regenerative Medicine Right for Me?,0.767266035,4227.0,"Regenerative Medicine for Muscle, Bone and Joint Health",0.752929688,4182.0,My Eye-Opening DBS Off Challenge: How a Pill Changes Everything,0.747254
Can I take over-the-counter pain medication for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i take over-the-counter pain medication for hs?,Can I take over-the-counter pain medication for HS?,Can I take over-the-counter pain medication for HS?,No,,,searchable,exact-match,,,"[{""id"":1870},{""id"":1874},{""id"":1869},{""id"":1925}]",4903.0,CON2-CH4-Q3-Do over-the-counter pain meds help-Garg.mp4,0.95,Do over-the-counter pain meds help?,"Over-the-counter analgesics or anti-inflammatories are also really helpful when things are really inflamed. Something like ibuprofen can be very helpful. Acetaminophen can be very helpful. But you just have to remember those are medications too, even though they're over the counter, so you can't overload on either one. Each of those over-the-counter medications actually has guidance on how much to take, how often to take them, and you should try to stick to those.",95.0,"The transcript provides a clear and direct answer to the question about taking over-the-counter pain medication for HS (Hidradenitis Suppurativa). It mentions that over-the-counter analgesics or anti-inflammatories, such as ibuprofen and acetaminophen, can be helpful when inflammation is present. It also advises caution regarding dosage, emphasizing the importance of following the guidance on how much and how often to take these medications. This directly addresses the question and provides additional useful information about safe usage, making it a comprehensive response.",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.75,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",75.0,"The transcript provides a partial answer to the question by acknowledging that over-the-counter medications can be part of the pain management strategy for HS. However, it emphasizes that the primary approach should be controlling inflammation with HS-directed medication. The transcript does not specify which over-the-counter medications might be appropriate, leaving some ambiguity. Therefore, while it addresses the question, it lacks specific details about the types of over-the-counter pain medications that might be suitable.",4924.0,CON2-CH4-Q2-Can you prescribe me narcotics-Garg.mp4,0.3,Can you prescribe me narcotics?,"This is a really important question to address for anybody that has a chronic sort of condition that results in pain all the time. When you feel like the home remedy basic things aren't working, when you feel like the over the counter stuff just isn't getting you the relief that you need, that's the time to start to think about potentially working with a pain specialist and thinking about medications that might give you enough symptom control as it relates to the pain. A lot of patients ask about even narcotics for example. Our thinking on this is that, listen, when you have a chronic condition that's based in inflammation, narcotics are probably not the most helpful medications, nor the most safe. Now having said that, there are prescription approaches to addressing pain, and I think the best thing to do is to work with an expert in this area, typically a pain management specialist who can really customize a plan that is going to be effective for you, but most importantly safe for you for the long term.",30.0,"The transcript does not directly answer the question about whether over-the-counter pain medication can be taken for HS (Hidradenitis Suppurativa). Instead, it discusses the general approach to managing chronic pain, the limitations of over-the-counter medications, and the potential need for a pain specialist. While it touches on the inadequacy of over-the-counter options for some patients, it does not specifically address their use in HS or provide guidance on which over-the-counter medications might be appropriate. The response is more focused on the broader management of chronic pain rather than the specific question asked.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.778387129,938.0,Osteoarthritis Treatment,0.767870963,1317.0,Opioid Treatment Medication | Yale Medicine Explains,0.757469893
What is the best pain reliever for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what is the best pain reliever for hidradenitis suppurativa?,What is the best pain reliever for hidradenitis suppurativa?,What is the best pain reliever for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1874},{""id"":1885},{""id"":1890},{""id"":1950}]",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.6,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",60.0,"The transcript provides a general approach to managing pain in Hidradenitis Suppurativa (HS) by focusing on controlling inflammation, which is a key aspect of pain management in HS. However, it does not specify a particular pain reliever or medication as the 'best' option, which is what the question asks for. The transcript mentions the use of HS-directed medication, over-the-counter options, home remedies, and narcotics post-surgery, but lacks specific recommendations or names of medications. Therefore, while it addresses the strategy for pain management, it does not directly answer the question about the best pain reliever.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.3,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",30.0,"The transcript does not directly answer the question about the best pain reliever for Hidradenitis Suppurativa (HS). Instead, it discusses the misconception of HS as an infection and the role of antibiotics like doxycycline in treating inflammation associated with HS. While doxycycline may help with inflammation, which can indirectly reduce pain, the transcript does not specifically address pain relief or recommend a specific pain reliever for HS. Therefore, the answer is not well aligned with the question.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.2,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",20.0,"The transcript primarily discusses the use of topical and oral antibiotics for managing Hidradenitis Suppurativa (HS), focusing on controlling disease activity and flare-ups. However, it does not address pain relief specifically, which is the main focus of the question. Pain management in HS often involves analgesics like NSAIDs or other pain relievers, which are not mentioned in the transcript. Therefore, the transcript does not effectively answer the question about the best pain reliever for HS.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.765944541,938.0,Osteoarthritis Treatment,0.753111899,3647.0,Pain Management,0.745154858
Are there any new treatments for HS in 2025?,searchable,Expert_Clinical,Hidradenitis Suppurativa,are there any new treatments for hs in 2025?,Are there any new treatments for HS in 2025?,Are there any new treatments for HS in 2025?,No,,,searchable,exact-match,,,"[{""id"":1844},{""id"":1845},{""id"":1846},{""id"":1946}]",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.75,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",75.0,"The transcript provides a general overview of ongoing research and the potential for new treatments for HS, mentioning that there are over 20 molecules being studied and the hope for new approved treatments in the next year or two. However, it does not specify any particular new treatments available in 2025, which is the specific focus of the question. The answer is informative about the research landscape but lacks precise details about treatments available in 2025.",4871.0,CON1-CH6-Q2-Are there any clinical trials for HS-Garg.mp4,0.3,Are there clinical trials for HS?,"So when you have a chronic condition and the currently available treatments aren't effectively addressing your disease, that's really the time to think about participation in a clinical trial because that’s where you get the access to the most innovative therapies that we have. And finding a clinical trial can be easy. The main resource that I look to is clinicaltrials.gov. If you go to the website, punch in your disease, it will tell you all the trials that are happening for HS and where you can find them.",30.0,"The transcript does not directly answer the question about new treatments for HS in 2025. Instead, it provides general advice on participating in clinical trials to access innovative therapies and suggests using clinicaltrials.gov to find trials. While this information is somewhat relevant, as clinical trials could potentially include new treatments, it does not specifically address the existence or details of new treatments for HS in 2025.",4872.0,CON1-CH6-Q3-Will there ever be a cure-Garg.mp4,0.2,Will there ever be a cure?,"Even just five years ago, if you had asked me, is there ever going to be a cure for HS, I'm not sure I could look you in the eye and say yes. But we've got treatments that I thought were never even possible. The progress is slow and steady, but we're getting there. And I think that there will be a near term in which we can at least think about a cure, at least discuss remission of symptoms.",20.0,"The transcript does not directly address the question about new treatments for HS in 2025. It discusses the progress in treatments for HS and the possibility of remission or a cure in the future, but it lacks specific information about new treatments available in 2025. The response is vague and does not provide a clear answer to the question asked.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.782422066,936.0,HSS Minute | Advancements in Ankle Replacement Surgery,0.778308153,556.0,"An Eventual ""Cure""",0.776070952
What clinical trials are available for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what clinical trials are available for hidradenitis suppurativa?,What clinical trials are available for hidradenitis suppurativa?,What clinical trials are available for Hidradenitis Suppurativa?,No,,,searchable,exact-match,clinical trials,,"[{""id"":1845},{""id"":1844},{""id"":1950},{""id"":1888}]",4871.0,CON1-CH6-Q2-Are there any clinical trials for HS-Garg.mp4,0.75,Are there clinical trials for HS?,"So when you have a chronic condition and the currently available treatments aren't effectively addressing your disease, that's really the time to think about participation in a clinical trial because that’s where you get the access to the most innovative therapies that we have. And finding a clinical trial can be easy. The main resource that I look to is clinicaltrials.gov. If you go to the website, punch in your disease, it will tell you all the trials that are happening for HS and where you can find them.",75.0,"The transcript provides a general approach to finding clinical trials for Hidradenitis Suppurativa by suggesting the use of clinicaltrials.gov, which is a comprehensive resource for locating trials. However, it does not list specific clinical trials or provide detailed information about them, which would have been a more direct answer to the question. The response is helpful in guiding the user on how to find the information but does not directly answer the question with specific trials.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.3,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",30.0,"The transcript provides general information about the ongoing research and the number of molecules being studied for Hidradenitis Suppurativa (HS), but it does not directly answer the question about specific clinical trials available for HS. It lacks details such as the names of the trials, their phases, locations, or how to find or enroll in them. Therefore, it only partially addresses the question by indicating that research is active, but it does not provide the specific information requested.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about clinical trials for Hidradenitis Suppurativa at all. It discusses the lack of awareness and common misdiagnosis of the condition, but does not provide any information about available clinical trials.",4543.0,Why Should I Consider Being In A Clinical Trial?,0.769665599,4288.0,How to Find and Participate in Clinical Trials,0.766993165,21.0,Clinical trials,0.761508286
Can birth control help with HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can birth control help with hs?,Can birth control help with HS?,Can birth control help with HS?,No,,,searchable,loose-match,"womens health,treatments",,"[{""id"":1918},{""id"":1934},{""id"":1933},{""id"":1932}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.4,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",40.0,"The transcript does not directly address the question about birth control helping with HS (Hidradenitis Suppurativa). Instead, it discusses the role of hormones in HS and mentions spironolactone as a treatment option for women, particularly those experiencing flares with menstruation. While this implies a hormonal connection, it does not specifically mention birth control or its effects on HS. Therefore, the transcript only partially addresses the question by discussing hormonal treatments in general, but not the specific role of birth control.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.1,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",10.0,"The transcript does not address the question about whether birth control can help with hidradenitis suppurativa (HS). Instead, it discusses medication options that are safe during pregnancy for managing HS, including antibiotics and biologics like Cimzia and Humira. There is no mention of birth control or its effects on HS, making the transcript largely irrelevant to the question asked.",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.1,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",10.0,"The transcript does not directly address the question of whether birth control can help with HS (Hidradenitis Suppurativa). Instead, it discusses the relationship between HS, PCOS, and fertility, which is not relevant to the question asked. The response lacks any information about the potential effects of birth control on HS symptoms or management.",933.0,HSS Minute | Early Life Low Bone Density,0.752459347,832.0,A Couple's Journey From Infertility to Parenthood,0.748667538,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.739701033
Do hormonal treatments work for hidradenitis suppurativa?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,do hormonal treatments work for hidradenitis suppurativa?,Do hormonal treatments work for hidradenitis suppurativa?,Do hormonal treatments work for Hidradenitis Suppurativa?,No,,,searchable,exact-match,treatments,,"[{""id"":1918},{""id"":1885},{""id"":1949},{""id"":1950}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.85,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",85.0,"The transcript provides a clear answer to the question by discussing the use of hormonal treatments, specifically spironolactone, for Hidradenitis Suppurativa (HS). It explains that while the exact influence of hormones on HS is not fully understood, medications that affect hormone levels can be helpful, particularly in women. The transcript also notes that spironolactone is not the main treatment but can be used in combination with other therapies. This directly addresses the question about the effectiveness of hormonal treatments for HS, though it could be improved by mentioning other hormonal treatments or providing more detail on their efficacy.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.2,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",20.0,"The transcript does not directly address the question about hormonal treatments for Hidradenitis Suppurativa (HS). Instead, it focuses on the misconception of HS as an infection and discusses the use of antibiotics, particularly doxycycline, for its anti-inflammatory properties. There is no mention of hormonal treatments or their effectiveness in managing HS, which is the core of the question. Therefore, the transcript provides very little relevant information regarding the inquiry about hormonal treatments.",4999.0,CON6-Q5-What if common treatments don’t work-Garg.mp4,0.2,What if common treatments don't work?,"It's not uncommon that topical treatments and even common treatments such as spironolactone or doxycycline, even when used in combination, just aren't providing the amount of relief of the symptoms that are necessary. Or they may be providing adequate relief, but then you're developing new areas of disease. In either of those circumstances, we try to escalate to treatments that we think are effective and safe, appropriate for the disease stage that you have. And usually the next step is what's called a biologic medication.",20.0,"The transcript does not directly address the question about hormonal treatments for Hidradenitis Suppurativa. It mentions topical treatments, spironolactone, doxycycline, and biologic medications, but does not specifically discuss hormonal treatments or their efficacy for the condition. The mention of spironolactone, which can have hormonal effects, is indirect and not clearly linked to the question asked.",3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.756597936,4492.0,Is My Treatment Working?,0.752575576,3611.0,How do the new weight loss medications work?,0.748673141
Can spironolactone help with HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can spironolactone help with hs?,Can spironolactone help with HS?,Can Spironolactone help with HS?,No,,,searchable,exact-match,,,"[{""id"":1918},{""id"":1855},{""id"":1823},{""id"":1925}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.85,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",85.0,"The transcript provides a clear and relevant answer to the question about whether spironolactone can help with HS (Hidradenitis Suppurativa). It explains that spironolactone is used primarily in women with HS and can be helpful in controlling symptoms, especially those related to hormonal changes like menstruation. The transcript also notes that while spironolactone is not the main treatment, it is used sometimes alone or in combination with other treatments. This directly addresses the question, though it could be improved by briefly explaining what HS is for context.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.6,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",60.0,"The transcript partially addresses the question by implying that Spironolactone, which is used for acne, might also be used for HS (Hidradenitis Suppurativa) since some medications treat both conditions. However, it does not explicitly mention Spironolactone or provide specific information about its effectiveness for HS. The answer could be improved by directly addressing the role of Spironolactone in treating HS.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address whether Spironolactone can help with HS (Hidradenitis Suppurativa). It discusses sweating as a trigger for HS and suggests that treatments to reduce sweating might be helpful, but it does not mention Spironolactone or its effects on HS. Therefore, the transcript provides very limited information relevant to the question.",292.0,Sports Cardiology | Is HIIT (High Intensity Interval Training) OK for Heart Patients?,0.737442732,933.0,HSS Minute | Early Life Low Bone Density,0.732336462,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.730613828
What is the role of retinoids in treating HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is the role of retinoids in treating hs?,What is the role of retinoids in treating HS?,What is the role of retinoids in treating HS?,No,,,searchable,exact-match,treatments,,"[{""id"":1919},{""id"":1844},{""id"":1855},{""id"":1885}]",4965.0,CON3-CH5-Q3-What are retinoids-Garg.mp4,0.75,What are retinoids?,"We get asked about this class of medication called retinoids all the time. Retinoids work by helping the skin to differentiate or mature or grow properly, and maybe that has some role in influencing the stickiness of a hair follicle. We think that HS in some ways results from hair follicles being plugged and then a cascade of inflammation that results from that plugging. So the idea is that if you can help hair follicles become less sticky because of the way the skin grows, that that might help ameliorate the symptoms of HS. In reality, ultimately the symptoms from HS originate from that really intense inflammation, and retinoids, we know just don't have really much, if any, anti-inflammatory activity. So for us, they're really not the ideal approach to managing HS, at least over the long haul. What's more important is using medicines that can really target inflammation, which is really the basis of the symptoms in HS.",75.0,"The transcript provides a detailed explanation of the potential role of retinoids in treating HS by discussing their mechanism of action on skin differentiation and hair follicle stickiness. It connects this to the pathophysiology of HS, which involves follicular plugging and inflammation. However, it also clearly states that retinoids lack significant anti-inflammatory properties, making them less ideal for long-term management of HS, which is primarily driven by inflammation. While the transcript effectively addresses the question, it could be improved by explicitly summarizing the role of retinoids in HS treatment, emphasizing their limited efficacy due to the lack of anti-inflammatory action.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.1,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",10.0,"The transcript does not address the role of retinoids in treating HS at all. It discusses general research activity and clinical trials related to HS but does not mention retinoids or their specific role in treatment. Therefore, it does not answer the question posed.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.1,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",10.0,"The transcript does not directly address the role of retinoids in treating HS (Hidradenitis Suppurativa). It mentions that some medications used for HS can also treat acne, but it does not specify whether retinoids are among these medications or explain their role in HS treatment. The response is vague and lacks specific information about retinoids, which is the focus of the question.",552.0,Damage Reversal,0.757607698,908.0,Osteoarthritis | Diet and Nutrition,0.751266956,2309.0,What is Metabolic Syndrome?,0.750925779
Can metformin help with hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can metformin help with hidradenitis suppurativa?,Can metformin help with hidradenitis suppurativa?,Can metformin help with hidradenitis suppurativa?,No,,,searchable,no-match,,,"[{""id"":1950},{""id"":1888},{""id"":1885},{""id"":1890}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether metformin can help with hidradenitis suppurativa. Instead, it discusses the general lack of awareness and challenges in diagnosing hidradenitis suppurativa, without mentioning metformin or its effects on the condition. Therefore, it does not provide any relevant information to answer the question.",4930.0,CON3-CH1-Q4-What are the best oral antibiotics to treat HS-Daveluy.mp4,0.1,What are the best oral antibiotics to treat HS?,"I'm glad you asked because there's often a misconception that HS is an infection and it's not. And so you can't just reach for any antibiotic. Some have studies that show that they work, others don't. And you may be getting some that work and some that don't based on if your doctor knows that they're treating HS. The ones that have the most studies to support their use are doxycycline and minocycline, which are cousins of each other. They're in the same family of antibiotics, and they both have studies that show they can help to stop new spots from coming, get rid of the nodules, which are the sort of red swollen lumps, and the abscesses, which are the fluid-filled pockets. They don't tend to work as well for the tunnels, but that's true of a lot of treatments. Another antibiotic that's been very well studied is called clindamycin. And when we use antibiotics on HS, it's a little different than infections. We often use them for weeks at a time because we actually want to control the disease activity and calm the inflammation down versus when you're treating an infection, you just do a short course just enough to kill the bacteria. Another antibiotic that might be used for your HS is actually an IV medication that has to be given through an IV in your vein. It's called ertapenem. It works incredibly well for HS, but only while you're on it, so it's sort of a temporary treatment while we figure out what else we're going to do to get your HS under control. There are a few other antibiotics that your doctor may talk to you about, like metronidazole, moxifloxacin, and rifampin. And so it's a good thing to have a conversation with your doctor about which antibiotics have evidence for HS, and have proven benefits, and then figure out based on your personal health and your history which one's the best for you.",10.0,"The transcript does not address the question about metformin and its potential effects on hidradenitis suppurativa (HS) at all. Instead, it focuses on antibiotics and their role in treating HS, which is unrelated to the question about metformin, a medication primarily used for diabetes management. There is no mention of metformin or any discussion about its use or effectiveness in treating HS, leading to a very low score.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.1,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",10.0,"The transcript does not address the question about metformin's role in treating hidradenitis suppurativa (HS). Instead, it discusses the misconception of HS as an infection, the role of the microbiome, and the use of antibiotics like doxycycline for inflammation. There is no mention of metformin or its potential effects on HS, making the transcript largely irrelevant to the question.",2321.0,Health Conditions Impacted by the Microbiome,0.75159955,1070.0,"Fit Formula | E1 
Squats, Push-Ups, Lunges, Ice Skaters & Plank",0.742889702,1223.0,Anti-Obesity Medications for Diabetes,0.740319192
Are there any topical treatments for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,are there any topical treatments for hs?,Are there any topical treatments for HS?,Are there any topical treatments for HS?,No,,,searchable,loose-match,treatments,,"[{""id"":1855},{""id"":1925},{""id"":1844},{""id"":1845}]",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.3,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",30.0,"The transcript does not directly address the question about topical treatments for HS (Hidradenitis Suppurativa). It mentions that some medications used for HS can also treat acne, but it does not specify whether these are topical treatments or provide any details about specific topical options for HS. The response is vague and lacks the necessary information to fully answer the question.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.3,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",30.0,"The transcript does not directly address the question about topical treatments for HS (Hidradenitis Suppurativa). Instead, it discusses the general idea of patients searching for natural solutions and the importance of discussing these with a healthcare provider. It lacks specific information about topical treatments, whether natural or medical, that are available for HS. Therefore, it only partially addresses the question by suggesting a general approach to trying remedies, but it does not provide a direct or comprehensive answer.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.2,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",20.0,The transcript does not directly address the question about topical treatments for HS. It discusses ongoing research and potential future treatments but does not mention any current topical treatments or provide specific information relevant to the question. The answer lacks focus on the topical aspect and does not provide any actionable information regarding existing topical treatments for HS.,938.0,Osteoarthritis Treatment,0.784349859,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.776004314,942.0,HSS Minute | Patient-Specific Spine Treatment,0.774650753
Can corticosteroid injections help HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can corticosteroid injections help hs?,Can corticosteroid injections help HS?,Can corticosteroid injections help HS?,No,,,searchable,exact-match,treatments,,"[{""id"":1880},{""id"":1883},{""id"":1926},{""id"":1918}]",4914.0,CON2-CH5-Q5-How do steroids work in my body to treat HS-Garg.mp4,0.85,How do steroids work in my body to treat HS?,"During a flare, the level of inflammation in the body and the level of inflammation in your lesions is abruptly increased. And so steroids are very helpful in that circumstance because they are powerful anti-inflammatories that bring down that level of inflammation really quickly and really reliably. And so we can use steroids as a strategy during these acute flares for a brief period of time, maybe just a week, maybe up to three weeks, to bring down and reset that level of inflammation.",85.0,"The transcript effectively addresses the question by explaining that corticosteroids, which are powerful anti-inflammatories, can be used to manage acute flares of inflammation. This implies that corticosteroid injections could be beneficial for managing HS (Hidradenitis Suppurativa) during such flares. However, the transcript does not explicitly mention HS or corticosteroid injections, which slightly reduces the clarity and specificity of the answer.",4919.0,CON2-CH5-Q8-Will I have to keep taking steroids as my HS gets worse-Garg.mp4,0.2,Will I have to keep taking steroids as my HS gets worse?,"Because of those long-term side effects related to steroid use, we really try to avoid use of prednisone, for example, as a chronic management strategy or ongoing management strategy. The idea is to use medications that can control inflammation without the use of steroid, everything from topical treatments to your basic internal treatments, all the way to our most sophisticated and effective treatments such as the biologics.",20.0,"The transcript does not directly address the question of whether corticosteroid injections can help with HS (Hidradenitis Suppurativa). It discusses the general avoidance of long-term steroid use, particularly prednisone, and mentions alternative treatments for controlling inflammation, but it does not specifically mention corticosteroid injections or their efficacy in treating HS. Therefore, the transcript provides very limited information relevant to the question.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.1,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",10.0,"The transcript does not address the question about corticosteroid injections directly. Instead, it discusses stress management and its impact on HS, which is unrelated to the specific inquiry about the effectiveness of corticosteroid injections for HS. The response lacks any mention of corticosteroids or their role in treating HS, resulting in a very low score for relevance.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.77425766,1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.771670222,938.0,Osteoarthritis Treatment,0.766927302
What immunosuppressants are used for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what immunosuppressants are used for hs?,What immunosuppressants are used for HS?,What immunosuppressants are used for HS?,No,,,searchable,exact-match,,,"[{""id"":1896},{""id"":1883},{""id"":1934},{""id"":1885}]",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.7,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",70.0,"The transcript provides information on biologics used for HS, specifically mentioning Humira, Cosentyx, and Bimzelx. These are indeed immunosuppressants, but the transcript does not explicitly categorize them as such or provide a broader list of immunosuppressants used for HS. The answer is somewhat indirect and focuses on FDA-approved biologics rather than a comprehensive list of all immunosuppressants.",4919.0,CON2-CH5-Q8-Will I have to keep taking steroids as my HS gets worse-Garg.mp4,0.2,Will I have to keep taking steroids as my HS gets worse?,"Because of those long-term side effects related to steroid use, we really try to avoid use of prednisone, for example, as a chronic management strategy or ongoing management strategy. The idea is to use medications that can control inflammation without the use of steroid, everything from topical treatments to your basic internal treatments, all the way to our most sophisticated and effective treatments such as the biologics.",20.0,"The transcript does not directly answer the question about specific immunosuppressants used for HS (Hidradenitis Suppurativa). It mentions avoiding steroids like prednisone and suggests using other treatments, including biologics, but does not specify which immunosuppressants are used. The answer lacks detail and specificity regarding immunosuppressant options for HS.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.2,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",20.0,"The transcript does not directly address the question about immunosuppressants used for HS (Hidradenitis Suppurativa). Instead, it discusses treatment options during pregnancy, mentioning antibiotics and biologics like Cimzia and Humira, but does not specifically categorize them as immunosuppressants or provide a comprehensive list of immunosuppressants used for HS. The focus is more on the safety of these medications during pregnancy rather than their use as immunosuppressants for HS.",4541.0,What Are My Medical Treatment Options?,0.768428624,4533.0,What Will My Treatment Be Like?,0.765602827,4383.0,What to Expect from Chemotherapy/Immunotherapy,0.760952115
Can I use steroid creams on HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i use steroid creams on hs lesions?,Can I use steroid creams on HS lesions?,Can I use steroid creams on HS lesions?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
What is surgical treatment for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is surgical treatment for hidradenitis suppurativa?,What is surgical treatment for hidradenitis suppurativa?,What is surgical treatment for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1909},{""id"":1908},{""id"":1975},{""id"":1912}]",4954.0,CON3-CH3-Q5-What are the major types of surgery used in treating HS-Daveluy.mp4,0.95,What are the major types of surgery used in treating HS?,"So the two main surgeries that you've probably heard about for HS are deroofing and excision, sometimes also called wide local excision. Let's dive into those a little more so you understand what each is and which one might be best for you. We'll start with deroofing. Deroofing is the idea that you have a tunnel or a pocket under your skin and we're going to take the roof off of it and then scrape out that lining because the lining of the tunnels is what keeps them a tunnel and stops them from healing up and scarring shut. So with deroofing, it's a little less invasive and less intense compared to excision because we don't to go as deep, we just have to take the roof off of the tunnel and then scrape out the lining and let it heal in. We usually don't sew it up. These are often done in the office. So dermatologists are the number one doctor who does deroofing, but it could also be a surgeon. Usually you don't have to go to the operating room. We just numb it up with some injections of something like lidocaine, almost like you get numb at the dentist. So we numb the area up. We usually put a probe inside to feel where the tunnel is and then take the roof off the tunnel. If it has any connections, we chase them down too because we want to try to get all of it out - the full extent of the tunnels. So sometimes you can't predict exactly how big the wound is going to be because you can't feel all of the tunnels, which is an important thing to remember that the wound may end up being a little bigger than you expected. Excision is similar to deroofing because it aims to cure the spots that we're treating, but with excision we remove the whole tunnel. So if there's the pocket in your skin, the excision takes a little bit of the normal skin around it to take the whole thing out with the tunnel inside of it. So with excisions, we usually go a little bit deeper. There's a little layer of fat that's under our skin, under our dermis layer of our skin, so we usually go to the fat with excision, which means it takes a little bit longer to heal. Excisions can be small, we can excise one tunnel, or they can be very large. We might take out basically all the skin of your armpit to get all of the HS out if it's extensively involved, and so they can take a lot longer to heal. Maybe a few weeks or more. They might be done in the office or they might be done in the operating room depending on your surgeon and the amount of surgery that you need to have done. You might also talk to your surgeon about what areas are going to be treated. So you may start with one area, like one armpit, or you may do all of it at once to get it over with. And if you do all of it at once, it's often done in the operating room and you may even have to stay in the hospital. If you do more focused areas, you might be able to do it in the office or the operating room, but get home sooner.
",95.0,"The transcript provides a comprehensive answer to the question about surgical treatments for Hidradenitis Suppurativa (HS). It details the two main surgical options: deroofing and excision. The explanation includes the procedures involved, the differences between them, the settings in which they are performed, and considerations for healing and extent of surgery. This thorough explanation directly addresses the question, making it a highly relevant and informative response. The only minor improvement could be a brief mention of other less common surgical options, if applicable, but the main treatments are well covered.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.9,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",90.0,"The transcript provides a comprehensive overview of the surgical treatments available for Hidradenitis Suppurativa (HS). It covers a range of surgical options from less invasive procedures like laser hair removal and deroofing to more invasive ones like excision. It also explains the purpose and outcomes of each procedure, such as deroofing and excision, and mentions incision and drainage as a non-curative option. The transcript effectively answers the question by detailing the surgical treatments and their implications, although it could be slightly improved by summarizing the key points more succinctly.",5038.0,CON5-Q12-Have you had successful surgery-Brooks-V.mp4,0.9,Have you had successful surgery?,"So another great option for HS treatment management is the addition of surgical procedures or deroofing procedures. They run the gamut. There's a multitude of different procedure options that can be undertaken. One of the most common procedures right now is called the deroofing. And it is absolutely amazing, especially for abscesses that keep coming back in the same spot over and over and over. Your repeat offenders, we call them. So a de-roofing procedure is an amazing procedure for that because it's pinpoint. The dermatologist goes in, removes that specific abscess, cleans out the biofilm that causes those abscesses to keep coming, and then will leave it open to heal from the inside out. And that procedure is, it's easy to do, it can be done in the office. They can also be done staged if you have a larger area that needs to be done, but can't really take time off of work. It's a great option. We also have wide excision surgeries that involve taking more skin. They do involve time off of work. It's something you would definitely want to think through. Make sure you have someone to help you with your wound care because it is a more intense and involved surgery. But for me, it was absolutely life changing. I could not do what I do now and advocate for the people that I love and care for so much in this community without having made the choice that I made – it was worth the risk and taking that risk to have that surgery. And like I said, it worked so well for me that I went back to have multiple additional surgeries. So it's amazing to think about all of the different things that are now options for us in the way that we treat our HS. So please keep that in mind that it doesn't all have to be just strictly medicine, it's the combination of using medicine and using surgical options that will get you to the best outcome.",90.0,"The transcript provides a comprehensive answer to the question about surgical treatment for Hidradenitis Suppurativa (HS). It mentions specific surgical options such as deroofing and wide excision surgeries, explaining their purposes, benefits, and considerations. The transcript also highlights the importance of combining surgical options with medical treatments for optimal outcomes. However, it could be slightly improved by mentioning other surgical options like laser therapy or skin grafting, which are also used in HS treatment. Overall, the answer is detailed and informative, addressing the question effectively.",586.0,Surgical Approaches,0.800765038,405.0,Understanding Minimally Invasive Surgery,0.782271147,564.0,When to Consider Surgery,0.778019428
When is surgery needed for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,when is surgery needed for hs?,When is surgery needed for HS?,When is surgery needed for HS?,No,,,searchable,exact-match,,,"[{""id"":1911},{""id"":1912},{""id"":1908},{""id"":1965}]",4948.0,CON3-CH3-Q7-Will I keep needing surgery-Daveluy.mp4,0.85,Will I keep needing surgery?,"There's a lot of elements that go into answering that question, which again, just talks to how complicated HS can be. Some patients need only one surgery just to get rid of one spot and then they don't need it again. Other patients need a series of surgeries to treat different areas of the body where they have tunnels or lesions that require surgery. And then the other aspect of that is the disease activity. So we always aim to get your disease under control with medications and then do surgery for the spots that are left. But if you don't keep the disease under control, it may flare up again, cause new tunnels, and then you may need surgery again in that area. So, it's a little unpredictable, but we do our best to treat with both medications and surgeries to give the best care and the best chance that you won't need any surgery in the future.
",85.0,"The transcript provides a comprehensive answer to the question about when surgery is needed for Hidradenitis Suppurativa (HS). It explains that the need for surgery depends on individual patient circumstances, such as the presence of lesions or tunnels, and the overall disease activity. It also highlights the importance of controlling the disease with medication to potentially reduce the need for surgery. However, it could be improved by explicitly stating that surgery is typically considered when medical management is insufficient or when there are persistent or severe lesions. Overall, the response is detailed and informative, addressing the complexity of the decision-making process for surgery in HS.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.6,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",60.0,"The transcript provides some relevant information about surgery for HS (Hidradenitis Suppurativa), such as the role of surgery in treating specific spots and the importance of combining surgery with medication. However, it does not directly answer the question of 'when' surgery is needed. The transcript focuses more on the outcomes and considerations of surgery rather than the specific indications or criteria for when surgery should be considered. Therefore, while it offers useful context, it does not fully address the question.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.6,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",60.0,"The transcript provides a detailed overview of various surgical options for HS (Hidradenitis Suppurativa), including laser hair removal, deroofing, excision, and incision and drainage. However, it does not directly address the specific question of 'when' surgery is needed. The transcript focuses more on the types of surgeries available and their purposes rather than the indications or criteria for deciding when surgery is necessary. Therefore, while informative about surgical options, it lacks a direct answer to the timing or conditions under which surgery should be considered for HS.",564.0,When to Consider Surgery,0.804591358,937.0,HSS Minute | Advancements in Knee Replacement Surgery,0.782175481,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.773754
What is incision and drainage for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is incision and drainage for hs?,What is incision and drainage for HS?,What is incision and drainage for HS?,No,,,searchable,exact-match,treatments,,"[{""id"":1908},{""id"":1859},{""id"":1862},{""id"":1942}]",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.85,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",85.0,"The transcript provides a detailed explanation of incision and drainage (IND) for HS, describing it as a procedure that offers temporary relief by draining pus from painful pockets. It clarifies that IND is not a curative surgery, as the spots typically return because the lining is left intact. While the transcript does not delve into the technical specifics of the procedure itself, it effectively communicates the purpose and limitations of IND in the context of HS treatment, which aligns well with the question asked.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.4,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",40.0,"The transcript provides a general discussion about the treatment of HS (Hidradenitis Suppurativa), mentioning surgery as a potential option for managing drainage, but it does not specifically explain what 'incision and drainage' entails. Incision and drainage is a specific surgical procedure where an incision is made to drain pus or fluid from an abscess or lesion, which is not clearly described in the transcript. The transcript focuses more on the importance of stopping disease activity and mentions surgery and medication as treatment options without detailing the specific procedure of incision and drainage.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.2,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",20.0,"The transcript does not directly address the question about 'incision and drainage' for HS (Hidradenitis Suppurativa). Instead, it discusses general management of drainage associated with HS, focusing on absorbent dressings and personal care products to manage fluid. It lacks specific information about the surgical procedure of incision and drainage, which involves making an incision to release pus or fluid from HS lesions. Therefore, the transcript provides very limited relevant information regarding the actual procedure of incision and drainage.",3635.0,Drain Care,0.783534467,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.783327103,2878.0,Surgical Site Care After Surgery,0.779109895
What is wide excision surgery for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is wide excision surgery for hidradenitis suppurativa?,What is wide excision surgery for hidradenitis suppurativa?,What is wide excision surgery for hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1909},{""id"":1908},{""id"":1975},{""id"":1912}]",4954.0,CON3-CH3-Q5-What are the major types of surgery used in treating HS-Daveluy.mp4,0.7,What are the major types of surgery used in treating HS?,"So the two main surgeries that you've probably heard about for HS are deroofing and excision, sometimes also called wide local excision. Let's dive into those a little more so you understand what each is and which one might be best for you. We'll start with deroofing. Deroofing is the idea that you have a tunnel or a pocket under your skin and we're going to take the roof off of it and then scrape out that lining because the lining of the tunnels is what keeps them a tunnel and stops them from healing up and scarring shut. So with deroofing, it's a little less invasive and less intense compared to excision because we don't to go as deep, we just have to take the roof off of the tunnel and then scrape out the lining and let it heal in. We usually don't sew it up. These are often done in the office. So dermatologists are the number one doctor who does deroofing, but it could also be a surgeon. Usually you don't have to go to the operating room. We just numb it up with some injections of something like lidocaine, almost like you get numb at the dentist. So we numb the area up. We usually put a probe inside to feel where the tunnel is and then take the roof off the tunnel. If it has any connections, we chase them down too because we want to try to get all of it out - the full extent of the tunnels. So sometimes you can't predict exactly how big the wound is going to be because you can't feel all of the tunnels, which is an important thing to remember that the wound may end up being a little bigger than you expected. Excision is similar to deroofing because it aims to cure the spots that we're treating, but with excision we remove the whole tunnel. So if there's the pocket in your skin, the excision takes a little bit of the normal skin around it to take the whole thing out with the tunnel inside of it. So with excisions, we usually go a little bit deeper. There's a little layer of fat that's under our skin, under our dermis layer of our skin, so we usually go to the fat with excision, which means it takes a little bit longer to heal. Excisions can be small, we can excise one tunnel, or they can be very large. We might take out basically all the skin of your armpit to get all of the HS out if it's extensively involved, and so they can take a lot longer to heal. Maybe a few weeks or more. They might be done in the office or they might be done in the operating room depending on your surgeon and the amount of surgery that you need to have done. You might also talk to your surgeon about what areas are going to be treated. So you may start with one area, like one armpit, or you may do all of it at once to get it over with. And if you do all of it at once, it's often done in the operating room and you may even have to stay in the hospital. If you do more focused areas, you might be able to do it in the office or the operating room, but get home sooner.
",70.0,"The transcript provides a detailed explanation of excision surgery, including wide local excision, in the context of treating hidradenitis suppurativa (HS). It explains the difference between deroofing and excision, the process involved in excision, and the potential extent of the surgery. However, it does not specifically define 'wide excision surgery' as a distinct procedure, nor does it focus solely on wide excision for HS. The explanation is comprehensive but could be more directly aligned with the specific question about wide excision surgery.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.7,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",70.0,"The transcript provides a general overview of surgical options for hidradenitis suppurativa (HS), including wide excision surgery. It explains that excision involves removing the tunnel and surrounding skin, which aligns with the concept of wide excision. However, the transcript does not specifically define 'wide excision surgery' in detail or differentiate it from other types of excision surgeries. It also includes a lot of additional information about other surgical and non-surgical treatments for HS, which, while informative, dilutes the focus on the specific question about wide excision surgery. Therefore, while the transcript addresses the question to some extent, it lacks specificity and focus on the exact procedure of wide excision surgery.",5038.0,CON5-Q12-Have you had successful surgery-Brooks-V.mp4,0.6,Have you had successful surgery?,"So another great option for HS treatment management is the addition of surgical procedures or deroofing procedures. They run the gamut. There's a multitude of different procedure options that can be undertaken. One of the most common procedures right now is called the deroofing. And it is absolutely amazing, especially for abscesses that keep coming back in the same spot over and over and over. Your repeat offenders, we call them. So a de-roofing procedure is an amazing procedure for that because it's pinpoint. The dermatologist goes in, removes that specific abscess, cleans out the biofilm that causes those abscesses to keep coming, and then will leave it open to heal from the inside out. And that procedure is, it's easy to do, it can be done in the office. They can also be done staged if you have a larger area that needs to be done, but can't really take time off of work. It's a great option. We also have wide excision surgeries that involve taking more skin. They do involve time off of work. It's something you would definitely want to think through. Make sure you have someone to help you with your wound care because it is a more intense and involved surgery. But for me, it was absolutely life changing. I could not do what I do now and advocate for the people that I love and care for so much in this community without having made the choice that I made – it was worth the risk and taking that risk to have that surgery. And like I said, it worked so well for me that I went back to have multiple additional surgeries. So it's amazing to think about all of the different things that are now options for us in the way that we treat our HS. So please keep that in mind that it doesn't all have to be just strictly medicine, it's the combination of using medicine and using surgical options that will get you to the best outcome.",60.0,"The transcript provides a general overview of wide excision surgery for hidradenitis suppurativa (HS) but lacks specific details. It mentions that wide excision involves taking more skin and requires time off work, indicating it is a more intense and involved surgery. However, it does not explain what the procedure specifically entails, such as the surgical technique, the extent of tissue removal, or the typical outcomes and risks associated with it. The personal anecdote adds a positive perspective but does not provide comprehensive information about the procedure itself. Therefore, while the transcript touches on the topic, it does not fully answer the question with detailed information about wide excision surgery for HS.",833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.769864261,586.0,Surgical Approaches,0.769613147,842.0,Bariatric Surgery | Yale Medicine Explains,0.769466758
Can laser therapy help with HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can laser therapy help with hs?,Can laser therapy help with HS?,Can laser therapy help with HS?,No,,,searchable,exact-match,,,"[{""id"":1908},{""id"":1855},{""id"":1926},{""id"":1826}]",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.7,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",70.0,"The transcript does address the question about laser therapy for HS (Hidradenitis Suppurativa) by mentioning laser hair removal as a beneficial treatment, especially in the early stages of the disease. It explains that laser hair removal helps by eliminating hair follicles, which can calm the condition and prevent flare-ups. However, the transcript then shifts focus to other surgical options for HS, such as deroofing, excision, and incision and drainage, without further elaborating on laser therapy. While it provides useful context about surgical treatments for HS, it could have been more focused on laser therapy specifically to fully address the question.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.2,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",20.0,"The transcript does not directly address the question about laser therapy for HS (Hidradenitis Suppurativa). Instead, it discusses the treatment of HS and acne with medications, without mentioning laser therapy. Therefore, it only indirectly relates to the question by discussing treatment options for HS, but it does not provide any information about the effectiveness or use of laser therapy specifically for HS.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.1,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",10.0,"The transcript does not address the question about laser therapy for HS (Hidradenitis Suppurativa) at all. Instead, it discusses stress management and its impact on HS, mentioning exercise, yoga, acupuncture, and talk therapy as potential stress-relief methods. There is no mention of laser therapy, making the response largely irrelevant to the question asked.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.769014835,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.753036797,938.0,Osteoarthritis Treatment,0.752732098
What is CO2 laser treatment for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is co2 laser treatment for hidradenitis suppurativa?,What is CO2 laser treatment for hidradenitis suppurativa?,What is CO2 laser treatment for Hidradenitis Suppurativa?,No,,,searchable,no-match,treatments,,"[{""id"":1920},{""id"":1908},{""id"":1975},{""id"":1950}]",4966.0,CON3-CH5-Q4-What is laser treatment-Garg.mp4,0.2,What is laser treatment?,"A laser is a device that uses a light source to target a specific structure in the skin. And so there are lasers which target hair follicles, and with use of that laser, we can remove the hair from the hair follicle, And we think that that could be helpful in some cases for patients with earlier disease where removing the hair from the hair follicles might improve the symptoms or even might prevent the condition from worsening over time.",20.0,"The transcript provides a general explanation of how lasers work, specifically mentioning lasers that target hair follicles, which might be relevant to Hidradenitis Suppurativa treatment. However, it does not specifically address CO2 laser treatment or its application for Hidradenitis Suppurativa. The answer lacks direct information about CO2 lasers, their mechanism, benefits, or usage in treating this condition, making it largely uninformative for the specific question asked.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.1,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",10.0,"The transcript does not address the specific question about CO2 laser treatment for Hidradenitis Suppurativa. Instead, it discusses various surgical and non-surgical treatments for HS, such as laser hair removal, injections, deroofing, excision, and incision and drainage. However, it does not mention CO2 laser treatment at all, which is the focus of the question. Therefore, the transcript is largely irrelevant to the question asked.",5038.0,CON5-Q12-Have you had successful surgery-Brooks-V.mp4,0.1,Have you had successful surgery?,"So another great option for HS treatment management is the addition of surgical procedures or deroofing procedures. They run the gamut. There's a multitude of different procedure options that can be undertaken. One of the most common procedures right now is called the deroofing. And it is absolutely amazing, especially for abscesses that keep coming back in the same spot over and over and over. Your repeat offenders, we call them. So a de-roofing procedure is an amazing procedure for that because it's pinpoint. The dermatologist goes in, removes that specific abscess, cleans out the biofilm that causes those abscesses to keep coming, and then will leave it open to heal from the inside out. And that procedure is, it's easy to do, it can be done in the office. They can also be done staged if you have a larger area that needs to be done, but can't really take time off of work. It's a great option. We also have wide excision surgeries that involve taking more skin. They do involve time off of work. It's something you would definitely want to think through. Make sure you have someone to help you with your wound care because it is a more intense and involved surgery. But for me, it was absolutely life changing. I could not do what I do now and advocate for the people that I love and care for so much in this community without having made the choice that I made – it was worth the risk and taking that risk to have that surgery. And like I said, it worked so well for me that I went back to have multiple additional surgeries. So it's amazing to think about all of the different things that are now options for us in the way that we treat our HS. So please keep that in mind that it doesn't all have to be just strictly medicine, it's the combination of using medicine and using surgical options that will get you to the best outcome.",10.0,"The transcript does not address CO2 laser treatment for Hidradenitis Suppurativa at all. It discusses surgical procedures like deroofing and wide excision surgeries, but there is no mention of CO2 laser treatment or its role in managing Hidradenitis Suppurativa. Therefore, the transcript does not answer the question posed.",586.0,Surgical Approaches,0.751648068,4058.0,Treatments,0.747636557,4047.0,Treatments,0.747636557
How effective is laser hair removal for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how effective is laser hair removal for hs?,How effective is laser hair removal for HS?,How effective is laser hair removal for HS?,No,,,searchable,exact-match,,,"[{""id"":1820},{""id"":1920},{""id"":1908},{""id"":1907}]",4829.0,CON1-CH1-Q10-Should I use hair remover instead of shaving-Daveluy.mp4,0.85,Should I use hair remover instead of shaving?,"When it comes to removing your hair in places like your armpit or your groin, it's a little variable and everyone responds a little differently. I have a lot of patients who ask this question, especially if they notice that shaving tends to make them flare up. What else can I do to get rid of the hair in the area? The best option is actually laser hair removal. We have great studies that show laser hair removal, by getting rid of the hairs, can help the HS. It can be a little challenging because depending where you live and what insurance you have, it may or may not be covered by your health insurance, so you may have to pay out of pocket and it may not be an option for everyone. But it's an important conversation to have was your dermatologist to see if that's an option for you. Other ways such as shaving or using what we call depilatory creams, which are the creams that you can use to remove hairs, are variable. Some patients can shave, have no problem, and actually find it helpful for their HS. For others, it triggers flare-ups. Some people use the depilatory cream and notice that it gets rid of the hair and it's helpful for the HS. For others, it can trigger flare-ups. So it's a little bit of trial and error in figuring out what's going to work well for you, which is sort of the rule of thumb when it comes to lifestyle changes in HS. You've got to try things out and see what works best for you, talk to other patients because they may also have some advice for something that worked to them, but remember that it may not work for you. So don't get your hopes up, well always keep your hopes up, but don't hang your hat on something working for you.",85.0,"The transcript provides a comprehensive answer to the question about the effectiveness of laser hair removal for HS (Hidradenitis Suppurativa). It explains that laser hair removal is considered the best option for reducing hair and potentially helping with HS symptoms, supported by studies. However, it also mentions variability in individual responses and the potential financial barrier due to insurance coverage. The transcript could improve by directly stating the effectiveness percentage or comparison to other methods, but overall, it addresses the question well.",4966.0,CON3-CH5-Q4-What is laser treatment-Garg.mp4,0.75,What is laser treatment?,"A laser is a device that uses a light source to target a specific structure in the skin. And so there are lasers which target hair follicles, and with use of that laser, we can remove the hair from the hair follicle, And we think that that could be helpful in some cases for patients with earlier disease where removing the hair from the hair follicles might improve the symptoms or even might prevent the condition from worsening over time.",75.0,"The transcript provides a general explanation of how laser hair removal works and suggests that it could be helpful for patients with early-stage HS by potentially improving symptoms or preventing worsening of the condition. However, it does not provide specific evidence or data on the effectiveness of laser hair removal for HS, nor does it address how effective it is compared to other treatments. The answer is somewhat informative but lacks detailed information on effectiveness.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.7,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",70.0,"The transcript provides a partial answer to the question about the effectiveness of laser hair removal for HS (Hidradenitis Suppurativa). It mentions that laser hair removal can be beneficial, especially in the early stages of the disease, by removing hair follicles and helping to calm the condition and prevent flare-ups. However, the transcript does not provide specific details on the overall effectiveness, such as success rates, comparison with other treatments, or long-term outcomes. The rest of the transcript focuses on other surgical options for HS, which are not directly related to the question about laser hair removal.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.75055933,940.0,HSS Minute | Minimally Invasive Lumbar Surgery,0.746439099,907.0,HSS Overview,0.739911139
What is deroofing surgery for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is deroofing surgery for hs?,What is deroofing surgery for HS?,What is deroofing surgery for HS?,No,,,searchable,exact-match,,,"[{""id"":1909},{""id"":1908},{""id"":1975},{""id"":1906}]",4954.0,CON3-CH3-Q5-What are the major types of surgery used in treating HS-Daveluy.mp4,0.95,What are the major types of surgery used in treating HS?,"So the two main surgeries that you've probably heard about for HS are deroofing and excision, sometimes also called wide local excision. Let's dive into those a little more so you understand what each is and which one might be best for you. We'll start with deroofing. Deroofing is the idea that you have a tunnel or a pocket under your skin and we're going to take the roof off of it and then scrape out that lining because the lining of the tunnels is what keeps them a tunnel and stops them from healing up and scarring shut. So with deroofing, it's a little less invasive and less intense compared to excision because we don't to go as deep, we just have to take the roof off of the tunnel and then scrape out the lining and let it heal in. We usually don't sew it up. These are often done in the office. So dermatologists are the number one doctor who does deroofing, but it could also be a surgeon. Usually you don't have to go to the operating room. We just numb it up with some injections of something like lidocaine, almost like you get numb at the dentist. So we numb the area up. We usually put a probe inside to feel where the tunnel is and then take the roof off the tunnel. If it has any connections, we chase them down too because we want to try to get all of it out - the full extent of the tunnels. So sometimes you can't predict exactly how big the wound is going to be because you can't feel all of the tunnels, which is an important thing to remember that the wound may end up being a little bigger than you expected. Excision is similar to deroofing because it aims to cure the spots that we're treating, but with excision we remove the whole tunnel. So if there's the pocket in your skin, the excision takes a little bit of the normal skin around it to take the whole thing out with the tunnel inside of it. So with excisions, we usually go a little bit deeper. There's a little layer of fat that's under our skin, under our dermis layer of our skin, so we usually go to the fat with excision, which means it takes a little bit longer to heal. Excisions can be small, we can excise one tunnel, or they can be very large. We might take out basically all the skin of your armpit to get all of the HS out if it's extensively involved, and so they can take a lot longer to heal. Maybe a few weeks or more. They might be done in the office or they might be done in the operating room depending on your surgeon and the amount of surgery that you need to have done. You might also talk to your surgeon about what areas are going to be treated. So you may start with one area, like one armpit, or you may do all of it at once to get it over with. And if you do all of it at once, it's often done in the operating room and you may even have to stay in the hospital. If you do more focused areas, you might be able to do it in the office or the operating room, but get home sooner.
",95.0,"The transcript provides a comprehensive explanation of deroofing surgery for HS (Hidradenitis Suppurativa). It clearly describes the procedure, including the concept of removing the 'roof' of the tunnel and scraping out the lining to promote healing. It also compares deroofing to excision, highlighting the differences in invasiveness and healing time. The transcript mentions the typical setting for the procedure, the type of anesthesia used, and the potential variability in wound size. This detailed information directly answers the question about what deroofing surgery for HS entails. The only minor point missing is a brief mention of HS as Hidradenitis Suppurativa, which could help clarify the context for someone unfamiliar with the abbreviation.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.9,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",90.0,"The transcript provides a detailed explanation of deroofing surgery for HS (Hidradenitis Suppurativa). It describes the procedure as removing the 'roof' of the tunnel under the skin, scraping out the lining, and allowing it to heal from the bottom up, resulting in a scar that doesn't cause pain or drainage. This directly answers the question about what deroofing surgery is. The transcript also places deroofing in the context of other surgical options for HS, which adds valuable context but might slightly dilute the focus on deroofing itself. However, the core question is well addressed.",5038.0,CON5-Q12-Have you had successful surgery-Brooks-V.mp4,0.85,Have you had successful surgery?,"So another great option for HS treatment management is the addition of surgical procedures or deroofing procedures. They run the gamut. There's a multitude of different procedure options that can be undertaken. One of the most common procedures right now is called the deroofing. And it is absolutely amazing, especially for abscesses that keep coming back in the same spot over and over and over. Your repeat offenders, we call them. So a de-roofing procedure is an amazing procedure for that because it's pinpoint. The dermatologist goes in, removes that specific abscess, cleans out the biofilm that causes those abscesses to keep coming, and then will leave it open to heal from the inside out. And that procedure is, it's easy to do, it can be done in the office. They can also be done staged if you have a larger area that needs to be done, but can't really take time off of work. It's a great option. We also have wide excision surgeries that involve taking more skin. They do involve time off of work. It's something you would definitely want to think through. Make sure you have someone to help you with your wound care because it is a more intense and involved surgery. But for me, it was absolutely life changing. I could not do what I do now and advocate for the people that I love and care for so much in this community without having made the choice that I made – it was worth the risk and taking that risk to have that surgery. And like I said, it worked so well for me that I went back to have multiple additional surgeries. So it's amazing to think about all of the different things that are now options for us in the way that we treat our HS. So please keep that in mind that it doesn't all have to be just strictly medicine, it's the combination of using medicine and using surgical options that will get you to the best outcome.",85.0,"The transcript provides a detailed explanation of deroofing surgery for HS (Hidradenitis Suppurativa). It describes the procedure as a targeted surgical option for recurrent abscesses, explaining that it involves removing the abscess and cleaning out the biofilm, allowing the area to heal from the inside out. The transcript also contrasts deroofing with other surgical options like wide excision, providing context for its use. However, it could be improved by explicitly defining HS at the beginning for clarity and focusing more on the specifics of the deroofing technique itself.",842.0,Bariatric Surgery | Yale Medicine Explains,0.76878649,841.0,Treating Obesity as a Disease with Bariatric Surgery,0.766280413,937.0,HSS Minute | Advancements in Knee Replacement Surgery,0.756203473
How long is recovery after HS surgery?,searchable,Patient_Forums,Hidradenitis Suppurativa,how long is recovery after hs surgery?,How long is recovery after HS surgery?,How long is recovery after HS surgery?,No,,,searchable,exact-match,,,"[{""id"":1906},{""id"":1911},{""id"":1912},{""id"":1904}]",4957.0,CON3-CH3-Q2-2-How long does it take to recover from HS surgery-Daveluy.mp4,0.85,How long does it take to recover from HS surgery?,"The recovery time for the surgeries varies based on what surgery you have. For example, if we count intralesional injections, or injecting into one or near one of the spots as a surgery, there's not really any recovery time. You start feeling better within 24 to 48 hours. If you have a surgery that removes part of the HS, like a deroofing or an excision where we either take the roof off the tunnel and scrape the lining out for deroofing, or an excision where we take the whole tunnel out with some skin around it, that has a little bit more healing time. We often let them heal by secondary intention, which is our fancy medical word for just letting the skin heal itself without sewing it up. In those cases, you're going to be washing it daily and then covering it with petroleum jelly or whatever your doctor recommends as a wound care dressing and then some gauze or some kind of bandage while it heals. And depending on the size and the depth that they have to go in your skin, it can take anywhere from four to eight to maybe even 12 weeks. So it's a really important conversation to have with your surgeon so you know what to expect before you have the surgery. Often I'll even talk to my patients about surgery so they know what wound care supplies they should go ahead and pick up to have ready, so when they get home, they don't have to go to the pharmacy and try to find these things. They're already ready to go because we scheduled the surgery and we planned for it.",85.0,"The transcript provides a detailed answer to the question about recovery time after HS surgery. It explains that recovery time varies depending on the type of surgery, ranging from no recovery time for intralesional injections to 4-12 weeks for more invasive procedures like deroofing or excision. The transcript also discusses wound care and preparation, which are relevant to understanding the recovery process. However, it could be improved by summarizing the key points more concisely and directly addressing the question at the beginning.",4948.0,CON3-CH3-Q7-Will I keep needing surgery-Daveluy.mp4,0.3,Will I keep needing surgery?,"There's a lot of elements that go into answering that question, which again, just talks to how complicated HS can be. Some patients need only one surgery just to get rid of one spot and then they don't need it again. Other patients need a series of surgeries to treat different areas of the body where they have tunnels or lesions that require surgery. And then the other aspect of that is the disease activity. So we always aim to get your disease under control with medications and then do surgery for the spots that are left. But if you don't keep the disease under control, it may flare up again, cause new tunnels, and then you may need surgery again in that area. So, it's a little unpredictable, but we do our best to treat with both medications and surgeries to give the best care and the best chance that you won't need any surgery in the future.
",30.0,"The transcript does not directly answer the question about the duration of recovery after HS surgery. Instead, it discusses the variability in the need for surgery and the importance of controlling the disease with medication. While it provides context about the complexity of HS treatment, it fails to address the specific aspect of recovery time post-surgery, which was the focus of the question.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.2,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",20.0,"The transcript does not directly address the question about the recovery time after HS surgery. Instead, it discusses the complexity of measuring surgical success, the recurrence of the disease, and the importance of combining surgery with medication. While these are relevant topics for someone considering HS surgery, they do not provide any information about the duration or process of recovery post-surgery. Therefore, the transcript is not effective in answering the specific question asked.",2880.0,Pain Management After Surgery,0.798343778,2878.0,Surgical Site Care After Surgery,0.788546562,922.0,Herniated Disc | Surgical Recovery,0.787620604
Will HS come back after surgery?,searchable,Patient_Forums,Hidradenitis Suppurativa,will hs come back after surgery?,Will HS come back after surgery?,Will he come back after surgery?,No,,,searchable,exact-match,,,"[{""id"":1911},{""id"":1912},{""id"":1906},{""id"":1904}]",4948.0,CON3-CH3-Q7-Will I keep needing surgery-Daveluy.mp4,0.7,Will I keep needing surgery?,"There's a lot of elements that go into answering that question, which again, just talks to how complicated HS can be. Some patients need only one surgery just to get rid of one spot and then they don't need it again. Other patients need a series of surgeries to treat different areas of the body where they have tunnels or lesions that require surgery. And then the other aspect of that is the disease activity. So we always aim to get your disease under control with medications and then do surgery for the spots that are left. But if you don't keep the disease under control, it may flare up again, cause new tunnels, and then you may need surgery again in that area. So, it's a little unpredictable, but we do our best to treat with both medications and surgeries to give the best care and the best chance that you won't need any surgery in the future.
",70.0,"The transcript provides a detailed explanation of factors influencing the need for surgery in HS patients, such as disease activity and treatment approach. However, it does not directly answer whether 'he' will come back after surgery, as it focuses more on general outcomes and variability in treatment needs rather than a specific individual's post-surgery return.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.4,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",40.0,"The transcript does not directly answer the question 'Will he come back after surgery?' Instead, it discusses the complexity of measuring surgical success in treating HS (Hidradenitis Suppurativa), the potential for recurrence, and the importance of combining surgery with medication. The response is more focused on the general outcomes and considerations of surgery rather than directly addressing whether a specific individual will return after surgery. The transcript provides useful information about surgical outcomes and disease management, but it does not clearly answer the question about the patient's return post-surgery.",4957.0,CON3-CH3-Q2-2-How long does it take to recover from HS surgery-Daveluy.mp4,0.3,How long does it take to recover from HS surgery?,"The recovery time for the surgeries varies based on what surgery you have. For example, if we count intralesional injections, or injecting into one or near one of the spots as a surgery, there's not really any recovery time. You start feeling better within 24 to 48 hours. If you have a surgery that removes part of the HS, like a deroofing or an excision where we either take the roof off the tunnel and scrape the lining out for deroofing, or an excision where we take the whole tunnel out with some skin around it, that has a little bit more healing time. We often let them heal by secondary intention, which is our fancy medical word for just letting the skin heal itself without sewing it up. In those cases, you're going to be washing it daily and then covering it with petroleum jelly or whatever your doctor recommends as a wound care dressing and then some gauze or some kind of bandage while it heals. And depending on the size and the depth that they have to go in your skin, it can take anywhere from four to eight to maybe even 12 weeks. So it's a really important conversation to have with your surgeon so you know what to expect before you have the surgery. Often I'll even talk to my patients about surgery so they know what wound care supplies they should go ahead and pick up to have ready, so when they get home, they don't have to go to the pharmacy and try to find these things. They're already ready to go because we scheduled the surgery and we planned for it.",30.0,"The transcript provides detailed information about recovery times and wound care after surgery, but it does not directly address whether 'he' will come back after surgery. The question seems to be asking about the likelihood of a person returning to their normal activities or state after surgery, which is not explicitly answered in the transcript. The transcript focuses more on the physical recovery process and preparation rather than the overall outcome or return of the individual.",4733.0,Treatment Options: The Lung Surgeon's Perspective,0.800241292,467.0,"After Weight Loss Surgery, Bruce is Living a Happier and Healthier Life",0.798661649,290.0,Sports Cardiology | Restarting Your Exercise Program After Heart Surgery,0.78558445
What are the risks of HS surgery?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what are the risks of hs surgery?,What are the risks of HS surgery?,What are the risks of HS surgery?,No,,,searchable,exact-match,,,"[{""id"":1904},{""id"":1912},{""id"":1908},{""id"":1911}]",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.95,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",95.0,"The transcript provides a comprehensive answer to the question about the risks of HS surgery. It details specific risks such as infection, scarring, and contracture, and explains each risk in the context of HS surgery. The transcript also offers reassurance about the low infection rates and discusses the importance of post-surgical care, such as physical therapy, to mitigate risks like contracture. The answer is thorough and addresses the question directly, covering both general surgical risks and those specific to HS surgery.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.4,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",40.0,"The transcript provides some context about HS surgery, discussing the challenges in measuring surgical success and the importance of combining surgery with medication. However, it does not directly address the specific risks associated with HS surgery, such as infection, scarring, or recurrence. The focus is more on the strategy and philosophy behind surgical treatment rather than the potential risks involved.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.3,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",30.0,"The transcript provides a detailed overview of various surgical options for HS, including laser hair removal, deroofing, excision, and incision and drainage. However, it does not directly address the risks associated with these surgeries. While it mentions recovery times and the nature of some procedures, it lacks specific information on potential complications, side effects, or risks that patients might face during or after surgery. Therefore, the transcript does not adequately answer the question about the risks of HS surgery.",932.0,HSS Minute | Total Hip Replacement Surgery,0.790456176,937.0,HSS Minute | Advancements in Knee Replacement Surgery,0.783968747,4375.0,What to Expect from Lung Cancer Surgery,0.779958427
Can wound care help prevent HS infections?,searchable,Patient_Forums,Hidradenitis Suppurativa,can wound care help prevent hs infections?,Can wound care help prevent HS infections?,Can wound care help prevent HS infections?,No,,,searchable,exact-match,,,"[{""id"":1864},{""id"":1885},{""id"":1887},{""id"":1927}]",4894.0,CON2-CH3-Q7-How should I clean HS wounds-Okoye.mp4,0.75,How should I clean my HS wounds?,"HS wounds can be cleaned with simple soap and water in the shower. That would be the most affordable option. However, sometimes we'll recommend that you use an antiseptic wash and there are a few on the market, some are based on bleach. CLN cleanser is an option. Hibaclens is another option. And something called Vashe. These are three washes that are antiseptic and very gentle on the skin that you can use to cleanse the wounds.",75.0,"The transcript provides information on cleaning HS wounds with antiseptic washes, which can help prevent infections. However, it does not explicitly state that wound care can prevent HS infections, nor does it explain the mechanism by which wound care might prevent infections. The connection between wound care and infection prevention is implied but not directly addressed.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.6,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",60.0,"The transcript provides relevant information about Hidradenitis Suppurativa (HS) and its treatment, but it does not directly address the question of whether wound care can help prevent HS infections. The speaker clarifies that HS is not an infection and discusses the role of antibiotics in treating inflammation rather than infection. However, the transcript does not specifically mention wound care or its potential role in preventing infections associated with HS. Therefore, while the transcript offers useful context about HS and its treatment, it does not fully answer the question posed.",4927.0,CON3-CH1-Q3-If it is not an infection why are antibiotics used-Daveluy.mp4,0.4,"If it is not an infection, why are antibiotics used?","I think every patient with HS wonders that at some point, once you figure out that it's not an infection, why are we using antibiotics? And the simple answer is that bacteria still play a role in HS. We've done studies where we look at the bacteria on the skin, inside the actual HS lesions or tunnels or bumps, and on other areas of the body, and we found that the bacteria are different. And so what we think happens is these different bacteria grow on, in, and around HS lesions and your immune system doesn't like those bacteria so it tries to fight them and that causes the inflammation and the changes that you see - the redness, the swelling, the discharge - and that's why it looks like an infection, because your body is sort of trying to fight these bacteria and getting rid of those bacteria can be helpful. So we can use antibiotics. The other part is that antibiotics can sometimes have two effects. So they not only help to kill bacteria, but they can also calm the immune system down. And most of the antibiotics we use in HS have that second effect of reducing inflammation, which is a second benefit for them. For that reason, sometimes I even use antibiotics at a lower dose where they don't affect bacteria and we only see those anti-inflammatory properties, so I'm not even really using them like an antibiotic in that sense.",40.0,"The transcript does not directly address the question of whether wound care can help prevent HS infections. Instead, it focuses on the role of bacteria in HS and the use of antibiotics to manage the condition. While it provides some context about the bacterial involvement in HS and the dual role of antibiotics, it does not discuss wound care practices or their potential impact on preventing infections in HS. Therefore, the answer is only tangentially related to the question.",3645.0,Signs of Infection,0.787528455,2878.0,Surgical Site Care After Surgery,0.784738958,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.764675558
How do I clean HS wounds at home?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i clean hs wounds at home?,How do I clean HS wounds at home?,How do I clean his wounds at home?,No,,,searchable,exact-match,"caregiving,condition management",,"[{""id"":1864},{""id"":1866},{""id"":1906},{""id"":1867}]",4894.0,CON2-CH3-Q7-How should I clean HS wounds-Okoye.mp4,0.95,How should I clean my HS wounds?,"HS wounds can be cleaned with simple soap and water in the shower. That would be the most affordable option. However, sometimes we'll recommend that you use an antiseptic wash and there are a few on the market, some are based on bleach. CLN cleanser is an option. Hibaclens is another option. And something called Vashe. These are three washes that are antiseptic and very gentle on the skin that you can use to cleanse the wounds.",95.0,"The transcript provides a comprehensive answer to the question about cleaning wounds at home. It suggests using simple soap and water, which is a basic and accessible method. Additionally, it offers alternatives by recommending specific antiseptic washes like CLN cleanser, Hibaclens, and Vashe, which are gentle on the skin. This variety of options allows for flexibility based on availability and preference, making the response very thorough. The only slight improvement could be mentioning the importance of ensuring the wound is dried properly after cleaning, but overall, the answer is highly relevant and informative.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.4,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",40.0,"The transcript provides some useful information about dressing wounds, particularly in the context of hidradenitis suppurativa (HS), but it does not directly address the question of how to clean wounds at home. The focus is on managing drainage and selecting appropriate dressings, rather than the cleaning process itself. Key steps in wound cleaning, such as washing with saline or antiseptic solutions, drying the wound, and ensuring cleanliness before applying dressings, are not covered. Therefore, the response is only partially relevant to the question asked.",4957.0,CON3-CH3-Q2-2-How long does it take to recover from HS surgery-Daveluy.mp4,0.3,How long does it take to recover from HS surgery?,"The recovery time for the surgeries varies based on what surgery you have. For example, if we count intralesional injections, or injecting into one or near one of the spots as a surgery, there's not really any recovery time. You start feeling better within 24 to 48 hours. If you have a surgery that removes part of the HS, like a deroofing or an excision where we either take the roof off the tunnel and scrape the lining out for deroofing, or an excision where we take the whole tunnel out with some skin around it, that has a little bit more healing time. We often let them heal by secondary intention, which is our fancy medical word for just letting the skin heal itself without sewing it up. In those cases, you're going to be washing it daily and then covering it with petroleum jelly or whatever your doctor recommends as a wound care dressing and then some gauze or some kind of bandage while it heals. And depending on the size and the depth that they have to go in your skin, it can take anywhere from four to eight to maybe even 12 weeks. So it's a really important conversation to have with your surgeon so you know what to expect before you have the surgery. Often I'll even talk to my patients about surgery so they know what wound care supplies they should go ahead and pick up to have ready, so when they get home, they don't have to go to the pharmacy and try to find these things. They're already ready to go because we scheduled the surgery and we planned for it.",30.0,"The transcript provides some information related to wound care, such as washing the wound daily, using petroleum jelly or a recommended dressing, and covering it with gauze. However, it does not directly address the question of how to clean wounds at home in a clear and focused manner. The transcript is more focused on the context of post-surgical care and preparation rather than providing a step-by-step guide or specific instructions for cleaning wounds at home. The information is somewhat relevant but not directly answering the question.",2878.0,Surgical Site Care After Surgery,0.759726,3635.0,Drain Care,0.759631395,3645.0,Signs of Infection,0.741358757
What bandages work best for draining HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,what bandages work best for draining hs lesions?,What bandages work best for draining HS lesions?,What bandages work best for draining HS lesions?,No,,,searchable,exact-match,,,"[{""id"":1866},{""id"":1942},{""id"":1862},{""id"":1941}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.85,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",85.0,"The transcript provides a comprehensive answer to the question by discussing various types of dressings suitable for draining HS lesions, including both over-the-counter options like non-stick gauze (Telfa) and more absorbent solutions like sanitary napkins and diapers for severe cases. It also mentions the role of wound care professionals for severe cases and the importance of insurance coverage for certain dressings. However, it could be improved by specifying which dressings are considered 'best' in terms of effectiveness or comfort, as the question specifically asks for the 'best' options.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.85,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",85.0,"The transcript provides a detailed answer to the question about which bandages work best for draining HS lesions. It specifically recommends avoiding band-aids and suggests using a 'cloud bandage' from Smith + Nephew, which is a silicone bordered foam bandage. This type of bandage is highlighted for its ability to hold a lot of exudate and reduce friction. The transcript also mentions gauze with tape as a cheaper option but warns about potential issues with tape. Additionally, it discusses the importance of keeping drainage away from the skin and offers practical advice on managing bandaging to avoid skin irritation. The response is comprehensive and practical, addressing the question well, but it could be improved by providing more specific product names or additional options.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.85,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",85.0,"The transcript provides a practical answer to the question by suggesting specific types of bandages and materials that can be used to manage drainage from HS lesions. It mentions gauze and paper tape, as well as more absorbent options like sanitary napkins, adult diapers, or baby diapers. However, it does not specify any particular brand or type of medical bandage that might be specifically designed for HS lesions, which could have provided a more comprehensive answer. Overall, the response is quite helpful and addresses the main concern of managing drainage effectively.",3635.0,Drain Care,0.754493833,3774.0,Surgical Intervention for Severe CVI | The SAVVE Trial at Yale,0.752576828,1020.0,Herniated Disc | Treating Flare-ups,0.746792912
Can I use antiseptic wash on HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i use antiseptic wash on hs lesions?,Can I use antiseptic wash on HS lesions?,Can I use antiseptic wash on HS lesions?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
What is the best way to manage HS pain?,searchable,Patient_Forums,Hidradenitis Suppurativa,what is the best way to manage hs pain?,What is the best way to manage HS pain?,What is the best way to manage HS pain?,No,,,searchable,exact-match,,,"[{""id"":1874},{""id"":1948},{""id"":1926},{""id"":1967}]",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.85,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",85.0,"The transcript provides a comprehensive answer to the question by explaining that managing HS pain involves controlling inflammation with the right HS-directed medication. It also mentions the use of home remedies, over-the-counter medications, and narcotics in specific situations, which covers a range of pain management strategies. However, it could be improved by specifying examples of HS-directed medications or home remedies, which would make the answer more actionable.",5000.0,CON6-Q4-What are the most effective treatments-Garg.mp4,0.75,What are the most effective treatments?,"This is the million dollar question for everybody with this condition. And what I would say in general, the most effective treatment strategy is the one that works for you. But you have to work with your doctor in figuring out what that is. There are your traditional and basic treatments, which in general we feel like don't truly modify disease activity. Those sometimes are pretty good at controlling the symptoms that you have, to the most advanced treatments that we have today, which are these targeted treatments, which really isolate and target a specific inflammatory pathway that we know is involved in HS. And in general, the data suggests that those are probably the most effective treatments we have today.",75.0,"The transcript provides a general overview of managing HS pain, emphasizing the importance of personalized treatment plans and collaboration with a doctor. It mentions traditional treatments for symptom control and advanced targeted treatments for disease modification, suggesting these are the most effective. However, it lacks specific examples or detailed strategies for pain management, which would make the answer more comprehensive.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.6,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",60.0,"The transcript partially addresses the question by suggesting stress management techniques such as exercise, yoga, acupuncture, and talk therapy as ways to help manage HS pain. However, it does not directly address pain management strategies specifically tailored to HS, such as medication options, topical treatments, or specific pain relief methods. The response focuses more on stress management, which is related but not directly answering the question about managing pain.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.826737523,938.0,Osteoarthritis Treatment,0.792865694,2880.0,Pain Management After Surgery,0.789167643
Can heat or ice help with HS pain?,searchable,Patient_Forums,Hidradenitis Suppurativa,can heat or ice help with hs pain?,Can heat or ice help with HS pain?,Can heat or ice help with HS pain?,No,,,searchable,exact-match,"treatments,alternative therapies",,"[{""id"":1872},{""id"":1874},{""id"":1823},{""id"":1926}]",4906.0,CON2-CH4-Q5-What can I do at home for pain-Garg.mp4,0.85,What can I do at home for the pain?,"So let's start with the basics. Compresses are often very helpful in relieving pain, especially when you get those acute hotspots. Some people like hot compresses, some people like cold compresses. Whatever works for you is okay to try. It's just important to keep in mind that you don't want to do anything too extreme or too prolonged so that it irritates your skin even further because that's just going to get the whole area a little bit more angry than it already is.",85.0,"The transcript provides a clear and relevant answer to the question by confirming that both heat (hot compresses) and cold (cold compresses) can help with HS pain. It advises that individuals can choose whichever works best for them, which directly addresses the question. Additionally, it offers a caution about not using extreme temperatures or prolonged application to avoid further skin irritation, which is useful advice. However, the transcript could be improved by briefly explaining why heat or cold might be beneficial for HS pain, which would provide a more comprehensive answer.",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.2,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",20.0,"The transcript does not directly address the question about using heat or ice for HS pain. Instead, it focuses on the general strategy of controlling pain through managing inflammation with medication. While it mentions home remedies as a possible strategy, it does not specify whether heat or ice is effective for HS pain. Therefore, the transcript provides very limited information relevant to the specific question asked.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not directly address the question about whether heat or ice can help with HS pain. Instead, it focuses on sweating as a trigger for HS and suggests ways to avoid sweating, such as staying in air-conditioned environments. There is no mention of using heat or ice as a treatment for HS pain, which is the core of the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.80519861,938.0,Osteoarthritis Treatment,0.777426243,919.0,Can a Herniated Disc Heal on its Own?,0.759190738
How do I know if my HS lesion is infected?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i know if my hs lesion is infected?,How do I know if my HS lesion is infected?,How do I know if my HS lesion is infected?,No,,,searchable,exact-match,"symptoms,testing",,"[{""id"":1958},{""id"":1848},{""id"":1950},{""id"":1876}]",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.6,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",60.0,"The transcript provides some context about HS lesions, mentioning nodules, abscesses, and tunnels that may leak or drain pus or fluid, which are relevant to identifying infection. However, it does not explicitly address how to determine if an HS lesion is infected. Key indicators of infection, such as increased redness, warmth, swelling, or fever, are not mentioned. Therefore, while the transcript is somewhat relevant, it lacks specific guidance on identifying infection in HS lesions.",4881.0,CON2-CH1-Q2-How do I know if a lump is a pimple or HS-Okoye.mp4,0.2,How do I know if a lump is a pimple or HS?,"So pimples, regular pimples like we get with acne, usually go away within two or three days. But with HS, these bumps tend to last a little bit longer. They tend to get much bigger than a regular pimple would. So for example, I see patients who have HS bumps that are the size of golf balls or the size of tennis balls. Now you're not dealing with a pimple, you're dealing with HS. So the size, how long it lasts, and how painful the bumps are, these are clues that you might be looking at HS.",20.0,"The transcript does not directly address the question of how to identify if an HS lesion is infected. It provides information on how HS lesions differ from regular pimples in terms of size, duration, and pain, but does not mention signs of infection such as redness, warmth, pus, or increased pain. Therefore, it only partially relates to the question by discussing HS lesions generally, without focusing on infection indicators.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly answer the question about identifying infection in HS lesions. It discusses the general lack of awareness and potential for misdiagnosis of HS, but does not provide specific signs or symptoms of infection in HS lesions. The information is relevant to understanding HS but not to determining infection.",3645.0,Signs of Infection,0.764102638,4496.0,Specialized Testing For Your Cancer,0.745344281,4492.0,Is My Treatment Working?,0.745303929
What are signs of infection in hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what are signs of infection in hidradenitis suppurativa?,What are signs of infection in hidradenitis suppurativa?,What are signs of infection in Hidradenitis Suppurativa?,No,,,searchable,exact-match,symptoms,,"[{""id"":1958},{""id"":1852},{""id"":1957},{""id"":1951}]",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.75,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",75.0,"The transcript provides a partial answer to the question by describing some symptoms associated with Hidradenitis Suppurativa (HS), such as nodules, abscesses, tunnels, pain, and drainage of pus or fluid. These symptoms can indeed be indicative of infection. However, the transcript does not explicitly mention 'signs of infection' or differentiate between general symptoms of HS and those specifically indicative of infection, such as redness, warmth, increased pain, or fever. Therefore, while it covers relevant symptoms, it lacks specificity regarding infection signs.",4880.0,CON2-CH1-Q6-What causes the oozing-Okoye.mp4,0.4,What causes the oozing?,"The oozing in HS is a big deal. It really impacts people's quality of life because it messes up people's clothing, and the patients have to use dressings and have to change their dressings multiple times a day to manage this symptom. So it's a really important question. But basically in HS, when you develop these little bumps under the skin, it's essentially a pocket of puss, and over time as that pocket gets larger, that pus needs to come out somewhere and so it starts to leak out through the skin.",40.0,"The transcript partially addresses the question by describing the oozing of pus as a symptom of Hidradenitis Suppurativa (HS), which can be indicative of infection. However, it does not explicitly list or discuss other signs of infection such as redness, warmth, swelling, or fever. The focus is more on the impact of oozing on quality of life rather than a comprehensive overview of infection signs in HS.",5020.0,CON6-Q17-What can testing of fluid and puss tell us-Garg.mp4,0.2,What can testing of fluid and puss tell me?,"In some cases, your doctor may want to test your fluid and pus for bacteria, and without doubt, there're going to be bacteria present. It doesn't mean that there is a true infection that's driving the disease. Remember, we think about HS really as an inflammatory disease. We know there's a microbiome associated with the disease, and so it wouldn't be surprising to find bacteria there.",20.0,"The transcript does not directly address the question about the signs of infection in Hidradenitis Suppurativa (HS). Instead, it discusses the presence of bacteria in HS lesions and emphasizes that HS is primarily an inflammatory disease rather than an infectious one. While it mentions testing for bacteria, it does not list or describe any specific signs of infection, which is what the question is asking for. Therefore, the transcript provides very limited relevant information to answer the question.",3645.0,Signs of Infection,0.792521954,592.0,Advanced Symptoms,0.755600095,3494.0,Inflammation | Dr. Jim Januzzi,0.75506407
Should I go to the ER for an HS flare?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i go to the er for an hs flare?,Should I go to the ER for an HS flare?,Should I go to the ER for an HS flare?,No,,,searchable,loose-match,,,"[{""id"":1877},{""id"":1968},{""id"":1838},{""id"":1967}]",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.4,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",40.0,"The transcript provides general information about managing HS flares, including potential treatments like injections, antibiotics, and steroids. However, it does not directly address whether or not one should go to the ER for an HS flare. The transcript lacks specific guidance on when an ER visit is necessary, such as in cases of severe pain, infection, or other complications. Therefore, it only partially answers the question by discussing treatment options without addressing the urgency or severity that might necessitate an ER visit.",5021.0,CON6-Q24-How do I find the right doctor-Gelfand.mp4,0.3,How do I find the right doctor?,"Finding the right care provider is critical for success when living with HS. I think the most important things you could ask a clinician is, one is do they take care of patients with HS? Do they have a lot of patients they manage with this condition? Two is, are they comfortable doing procedures, minor procedures in the office in order to help relieve acute flares of HS and help patients feel better when they're in pain? Are they up to date on the most recent medical advances in managing HS? And probably most importantly, are they going to be there for you when you need them? HS can be so unpredictable, so you need to know that when you're having a flare, you'll be able to get into the office and see that doctor on short notice.",30.0,"The transcript does not directly answer the question of whether one should go to the ER for an HS flare. Instead, it focuses on the importance of finding a care provider who is experienced with HS and can manage flares, including performing minor procedures in the office. While it implies that having a reliable doctor who can see you on short notice is important, it does not address the specific circumstances under which an ER visit might be necessary. Therefore, the transcript provides some relevant information but does not directly answer the question.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript does not directly address whether one should go to the ER for an HS flare. Instead, it discusses the relationship between stress and HS (Hidradenitis Suppurativa) flares, emphasizing the importance of managing both stress and HS to reduce flare frequency. However, it does not provide guidance on when it is appropriate to seek emergency care for an HS flare, which is the core of the question.",1020.0,Herniated Disc | Treating Flare-ups,0.781644225,1670.0,Migraine | Emergency,0.763644218,915.0,Pinched Nerves and Herniated Discs,0.747110188
What should I do if my HS lesion ruptures?,searchable,Patient_Forums,Hidradenitis Suppurativa,what should i do if my hs lesion ruptures?,What should I do if my HS lesion ruptures?,What should I do if my HS lesion ruptures?,No,,,searchable,exact-match,,,"[{""id"":1859},{""id"":1866},{""id"":1958},{""id"":1876}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.6,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",60.0,"The transcript provides some relevant information about managing HS lesions, such as the importance of consulting a doctor and potential treatments like surgery or medication. However, it does not directly address immediate actions to take when a lesion ruptures, such as wound care or infection prevention, which are critical aspects of the question. The response is more focused on long-term management rather than immediate steps.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.4,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",40.0,"The transcript provides information on how to manage drainage from HS lesions using various dressings and absorbent materials, which is somewhat relevant to the aftermath of a lesion rupture. However, it does not directly address the immediate steps to take when an HS lesion ruptures, such as cleaning the area, applying antiseptic, or seeking medical advice if necessary. The response lacks specific guidance on initial care post-rupture, which is crucial for answering the question effectively.",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.2,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",20.0,"The transcript provides a general description of HS (Hidradenitis Suppurativa) lesions, including nodules, abscesses, and tunnels, and mentions symptoms like pain and drainage. However, it does not directly answer the question of what to do if an HS lesion ruptures. The response lacks specific guidance or steps to take in the event of a rupture, such as cleaning the area, applying a dressing, or seeking medical advice. Therefore, it only partially addresses the context of the question without providing actionable advice.",1020.0,Herniated Disc | Treating Flare-ups,0.760527432,919.0,Can a Herniated Disc Heal on its Own?,0.748308778,921.0,Herniated Disc | Surgical Treatments,0.744561553
Can I drain an HS abscess at home?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i drain an hs abscess at home?,Can I drain an HS abscess at home?,Can I drain an HS abscess at home?,No,,,searchable,loose-match,,,"[{""id"":1859},{""id"":1942},{""id"":1862},{""id"":1958}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.4,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",40.0,"The transcript does not directly answer the question of whether one can drain an HS abscess at home. Instead, it focuses on the importance of consulting a doctor for treatment options, including surgery and medication, to manage HS. While it emphasizes the need for professional medical advice, it does not provide a clear answer about the safety or advisability of home drainage. The transcript's information is relevant to the broader management of HS but does not specifically address the question asked.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.2,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",20.0,"The transcript does not directly answer the question of whether one can drain an HS abscess at home. It discusses the relief that comes from an abscess draining and provides advice on managing drainage with bandages, but it does not address the safety or advisability of performing the drainage oneself. The focus is on managing drainage after it occurs, not on the act of draining the abscess. Therefore, the transcript is largely irrelevant to the specific question asked.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.2,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",20.0,"The transcript does not directly answer the question of whether one can drain an HS abscess at home. Instead, it discusses how to manage drainage from HS (Hidradenitis Suppurativa) lesions, focusing on absorbing the drainage with dressings and other absorbent materials. It does not address the safety, risks, or advisability of attempting to drain an abscess at home, which is the core of the original question.",3635.0,Drain Care,0.77406764,919.0,Can a Herniated Disc Heal on its Own?,0.768419743,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.742602587
Is it safe to squeeze or pop HS bumps?,searchable,Patient_Forums,Hidradenitis Suppurativa,is it safe to squeeze or pop hs bumps?,Is it safe to squeeze or pop HS bumps?,Is it safe to squeeze or pop HS bumps?,No,,,searchable,loose-match,,,"[{""id"":1959},{""id"":1848},{""id"":1850},{""id"":1927}]",5010.0,CON6-Q19-How do I know if a lump is a pimple or HS-Garg.mp4,0.3,How do I know if a lump is a pimple or HS?,"It's a good question. When we refer to pimples, we typically are talking about acne, so pimples are small nodules that may appear on the face or the trunk. Whereas in HS, usually we're referring to boils, abscesses, or nodules, and they're usually happening in different areas of the body, such as under the arms, under the breasts, in the groin, or in the buttocks. So really pimples refer to different lesions altogether. Acne is different from HS.",30.0,"The transcript does not directly answer the question about the safety of squeezing or popping HS bumps. Instead, it provides a distinction between acne pimples and HS lesions, such as boils and abscesses, and their typical locations on the body. While this information is relevant to understanding the nature of HS bumps, it does not address the safety concerns of squeezing or popping them. A more direct answer would discuss the potential risks or recommendations regarding manipulating HS lesions.",4881.0,CON2-CH1-Q2-How do I know if a lump is a pimple or HS-Okoye.mp4,0.2,How do I know if a lump is a pimple or HS?,"So pimples, regular pimples like we get with acne, usually go away within two or three days. But with HS, these bumps tend to last a little bit longer. They tend to get much bigger than a regular pimple would. So for example, I see patients who have HS bumps that are the size of golf balls or the size of tennis balls. Now you're not dealing with a pimple, you're dealing with HS. So the size, how long it lasts, and how painful the bumps are, these are clues that you might be looking at HS.",20.0,"The transcript does not directly answer the question about the safety of squeezing or popping HS bumps. It provides information about the nature of HS bumps, such as their size, duration, and pain level, but it does not address whether it is safe to squeeze or pop them. The response lacks guidance on the specific action inquired about, which is crucial for answering the question effectively.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.2,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",20.0,"The transcript does not directly address the safety of squeezing or popping HS bumps. It only mentions that HS is a painful disease and that non-painful bumps are likely not HS. There is no information provided about the risks or safety concerns associated with manipulating HS bumps, which is the core of the question.",919.0,Can a Herniated Disc Heal on its Own?,0.751746774,915.0,Pinched Nerves and Herniated Discs,0.747380674,1020.0,Herniated Disc | Treating Flare-ups,0.742025197
How do I manage odor from draining HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage odor from draining hs lesions?,How do I manage odor from draining HS lesions?,How do I manage odor from draining HS lesions?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1857},{""id"":1930},{""id"":1862},{""id"":1866}]",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.95,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",95.0,"The transcript provides a comprehensive answer to the question about managing odor from draining HS lesions. It discusses various treatment options, including antibacterial washes like benzoyl peroxide and chlorhexidine, diluted bleach baths, and zinc-based shampoos. It also mentions the use of topical antibiotics like clindamycin and suggests practical solutions like charcoal-infused clothing to manage odor. The response is detailed and offers multiple strategies, making it highly relevant and useful for someone seeking to manage odor from HS lesions.",4976.0,CON4-CH1-Q5-How do I get rid of the smell-Daveluy.mp4,0.85,How do I get rid of the smell?,"There’s so much you can do to help reduce the smell in HS because we know that can cause embarrassment and shame. You want to get intimate with someone and the last thing you want them to do is have an unpleasant odor be part of that experience. Some of the things you can do involve treating the HS. So using antibacterial washes can sometimes help reduce the smell, making sure you're working with your doctor to try to reduce the drainage and get things under control, which might involve medications or sometimes even surgery. But there are other ways you can navigate the smell even if you can't quite yet get it under control with treatments. Sometimes you can overpower the smell. Light some incense that you like when it's time to be intimate so that there's a more pleasant odor in the room. Be careful with perfumes and fragrances, but if they don't cause you skin irritation, that can be another option. And then sometimes you can even use strategic bandages or clothing to cover up some of the areas that might be triggering and causing more of the smells while you're being intimate. So an example might include if you have certain clothing that you can wear that covers the area but still allows you to expose the parts that you need to be intimate.",85.0,"The transcript provides a comprehensive answer to the question about managing odor from draining HS lesions. It suggests practical solutions such as using antibacterial washes, working with a doctor for medical treatments, and using incense or fragrances to mask odors. It also mentions using strategic bandages or clothing to manage the smell. However, it could be improved by including more specific medical treatments or products that are effective in managing odor, which is why it doesn't receive a perfect score.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.7,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",70.0,"The transcript provides practical advice on managing drainage from HS lesions, which indirectly addresses odor management by suggesting absorbent materials like gauze, sanitary napkins, and diapers. However, it does not specifically address odor control methods such as using odor-neutralizing products or maintaining hygiene to reduce odor. Therefore, while it partially answers the question by focusing on drainage management, it lacks direct strategies for managing odor itself.",3635.0,Drain Care,0.768081725,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.740713656,919.0,Can a Herniated Disc Heal on its Own?,0.731552482
What causes the smell from HS wounds?,searchable,Patient_Forums,Hidradenitis Suppurativa,what causes the smell from hs wounds?,What causes the smell from HS wounds?,What causes the smell from HS wounds?,No,,,searchable,exact-match,,,"[{""id"":1856},{""id"":1853},{""id"":1858},{""id"":1857}]",4889.0,CON2-CH2-Q1-What is the smell related to HS-Daveluy.mp4,0.9,What is the smell related to HS?,"The odor in HS is actually related to bacteria, but I want to be very clear that it is not an infection. That's one of the common misconceptions we hear with HS. And unfortunately it's often healthcare providers who are making the mistake and calling it an infection. But bacteria release odors when they break down oils and discharge from your body. That's why our armpits get odor as well. That's from bacteria. So it's very similar in that sense. But with HS, you have different bacteria that are part of the HS and inside the tunnels and in the drainage releasing this odor and causing the odor to come off of your body as part of the disease itself.",90.0,"The transcript provides a clear explanation that the smell from HS wounds is caused by bacteria breaking down oils and discharge, similar to how odor is produced in armpits. It clarifies that the odor is not due to an infection, addressing a common misconception. The explanation is detailed and directly answers the question about the cause of the smell. However, it could be slightly improved by specifying which types of bacteria are involved, but overall, it effectively answers the question.",4877.0,CON2-CH1-Q7-Why does HS smell-Okoye.mp4,0.9,Why does HS smell?,"Some patients really struggle with the smell of HS. And just to be clear, this has nothing to do with hygiene or cleanliness. What this has to do with is bacteria. So there are bacteria that live on your skin, they're supposed to be there, but when they get trapped in that pocket of the HS bump, they just overgrow and they produce these bad smells.",90.0,"The transcript provides a clear and direct answer to the question by explaining that the smell from HS (Hidradenitis Suppurativa) wounds is caused by bacteria that overgrow in the trapped pockets of the HS bumps. It also clarifies that the smell is not related to hygiene, which is relevant context. However, it could be slightly improved by mentioning specific types of bacteria or additional factors that might contribute to the smell, hence not a perfect score.",4890.0,CON2-CH2-Q3-Why does my HS still smell when I bathe all the time-Okoye.mp4,0.9,Why does my HS still smell when I bathe all the time?,"Some patients really struggle with the smell of HS. And just to be clear, this has nothing to do with hygiene or cleanliness. What this has to do with is bacteria. So there are bacteria that live on your skin, they're supposed to be there, but when they get trapped in that pocket of the HS bump, they just overgrow and they produce these bad smells.",90.0,"The transcript provides a clear and direct answer to the question by explaining that the smell from HS (Hidradenitis Suppurativa) wounds is caused by bacteria that overgrow in the trapped pockets of the HS bumps. It also clarifies that the smell is not related to hygiene, which adds valuable context. However, it could be slightly improved by mentioning specific types of bacteria or additional factors that might contribute to the smell.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.75236845,3645.0,Signs of Infection,0.746305645,907.0,HSS Overview,0.738861918
What triggers HS flares?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what triggers hs flares?,What triggers HS flares?,What triggers HS flares?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1838},{""id"":1822},{""id"":1877}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.75,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",75.0,"The transcript provides a detailed explanation of how exercise can trigger HS flares due to friction in certain areas of the body. It also mentions other potential triggers like heat and sweating, particularly in the context of hot yoga. However, the transcript primarily focuses on exercise and does not cover other common triggers of HS flares such as hormonal changes, stress, or dietary factors. Therefore, while it answers the question to a significant extent, it does not provide a comprehensive overview of all possible triggers.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.5,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",50.0,"The transcript partially answers the question by identifying stress as a trigger for HS (Hidradenitis Suppurativa) flares. However, it does not provide a comprehensive list of other potential triggers, such as hormonal changes, heat, sweating, certain foods, or mechanical irritation, which are also known to contribute to HS flares. The response focuses more on the relationship between stress and HS rather than providing a full overview of all possible triggers.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.4,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",40.0,"The transcript provides a specific trigger for HS flares related to sitting, particularly on hard surfaces, and suggests solutions to mitigate this trigger. However, it does not comprehensively address the question of what triggers HS flares in general, as there are multiple known triggers such as heat, sweat, hormonal changes, and certain foods. The answer is limited to one specific scenario and lacks broader context.",1020.0,Herniated Disc | Treating Flare-ups,0.781764567,915.0,Pinched Nerves and Herniated Discs,0.748379469,125.0,Multiple Sclerosis | Yale Medicine Explains,0.748161674
Can stress cause HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,can stress cause hs flares?,Can stress cause HS flares?,Can stress cause HS flares?,No,,,searchable,exact-match,mental and emotional health,,"[{""id"":1838},{""id"":1837},{""id"":1926},{""id"":1819}]",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.95,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",95.0,"The transcript directly answers the question by confirming that stress can indeed cause HS (Hidradenitis Suppurativa) flares. It explains the bidirectional relationship between stress and HS, emphasizing the importance of managing both to reduce flares. The response is comprehensive and directly addresses the question, making it highly relevant and informative.",4852.0,CON1-CH3-Q5-What role does stress play in HS-Garg-.mp4,0.85,What role does stress play in HS?,"Life is stressful today in general, and certainly having a chronic inflammatory condition like HS adds to that stress. It's not really clear what kind of role stress plays in skin disease in general, but certainly I hear from a lot of patients that stress at least maybe makes their condition worse. And listen, I think we've appreciated over time that there is a connection between the mind, the body, and the soul. So it never surprises me when a patient talks to me about how stress really influences their activity of HS. What I would say is that it's important to manage stress, find ways to cope with stress, for life in general, and especially when you have a chronic condition like HS. I think managing your stress can potentially influence how you perceive the disease, how you cope with the disease, and maybe even how active the condition can get. For example, how often you might flare. So I encourage all of my patients, anything you can do to cope with stress better, to find ways to be more resilient when you have a chronic condition like HS, can only help.",85.0,"The transcript addresses the question by acknowledging that while the exact role of stress in causing HS flares is not clear, many patients report that stress worsens their condition. The speaker emphasizes the importance of stress management in potentially influencing the frequency of flares, suggesting a connection between stress and HS activity. However, the response could be improved by providing more specific evidence or studies linking stress to HS flares, which would strengthen the answer.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.85,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",85.0,"The transcript effectively answers the question by explaining that stress contributes to the inflammation of HS, implying that stress can indeed cause HS flares. It also provides practical advice on managing stress to help manage HS symptoms. However, it could be more direct in explicitly stating that stress can cause flares, rather than implying it through the relationship between stress and inflammation.",2312.0,Heart Health | Effects of Acute Stress,0.781206846,2337.0,Heart Health | Effects of Chronic Stress,0.776263,2332.0,Types of Stressors,0.775938809
Does diet affect hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,does diet affect hidradenitis suppurativa?,Does diet affect hidradenitis suppurativa?,Does diet affect Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1818},{""id"":1834},{""id"":1950},{""id"":1885}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.85,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",85.0,"The transcript provides a nuanced answer to the question by acknowledging that diet can affect Hidradenitis Suppurativa (HS) for some individuals but not for others. It advises exploring dietary triggers and making healthy dietary changes, while also cautioning that diet may not be a significant factor for everyone with HS. This response effectively addresses the question by highlighting the variability in dietary impact on HS, but it could be improved by mentioning specific dietary changes or triggers that have been reported to affect HS.",4853.0,CON1-CH3-Q2-If I lose weight will my HS go away-Garg.mp4,0.4,If I lose weight will my HS go away?,"The question around weight is also one of the more common questions I get. So I'm glad you're asking about it, and there's kind of a lot to think about here. But again, I just want you to understand most importantly, there are many factors involved in addition to higher weight in developing HS. So weight alone is not a reason, or the only reason, one person has this condition. Our studies show that people with higher weight are more likely to have the condition. Our studies also show, however, that losing weight doesn't necessarily mean your HS is simply going to melt away or even get better. Having said that, we also know that patients with HS have lots of other medical conditions that can be worsened or exacerbated by higher weight. So what I try to explain to my HS patients is that having a better, or even ideal body weight, is important for your overall health. It potentially influences how your HS goes. And so it's important in general to consider weight management, but it doesn't necessarily mean that your HS will go away or that you will get it to be cured simply by losing weight.",40.0,"The transcript primarily discusses the relationship between weight and Hidradenitis Suppurativa (HS), rather than diet specifically. While it touches on the importance of weight management and its potential influence on HS, it does not directly address how diet itself affects the condition. The response could be improved by discussing specific dietary factors or changes that might impact HS, rather than focusing solely on weight.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether diet affects Hidradenitis Suppurativa. Instead, it discusses the lack of awareness and common misdiagnosis of the condition. There is no mention of diet or its impact on the disease, making the response largely irrelevant to the question asked.",2321.0,Health Conditions Impacted by the Microbiome,0.769117,2317.0,Microbiome and Diet,0.76811105,3631.0,Prostate Cancer and Diet,0.764348447
Can weather trigger HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,can weather trigger hs flares?,Can weather trigger HS flares?,Can weather trigger HS flares?,No,,,searchable,exact-match,,,"[{""id"":1823},{""id"":1865},{""id"":1838},{""id"":1877}]",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.75,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",75.0,"The transcript addresses the question indirectly by discussing sweat as a trigger for HS flares, which can be related to weather conditions, particularly hot weather. It suggests that sweating, often caused by heat, can trigger HS flares and offers strategies to manage sweating. However, it does not explicitly confirm or deny whether weather itself, beyond causing sweat, directly triggers HS flares. The response is relevant but lacks direct confirmation or a broader discussion on other weather conditions like humidity or cold.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.7,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",70.0,"The transcript indirectly addresses the question by discussing how sweating, which can be influenced by weather conditions, may trigger HS flares. However, it does not explicitly state that weather itself is a direct trigger for HS flares. The advice on clothing to manage sweat is useful but does not fully answer whether weather can trigger flares.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.1,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",10.0,"The transcript does not address the question about whether weather can trigger HS flares. Instead, it focuses on the relationship between stress and HS flares, which is unrelated to the inquiry about weather. Therefore, the transcript provides no relevant information to answer the question.",1020.0,Herniated Disc | Treating Flare-ups,0.742626,719.0,"Jim Cosper 
S3 | E3",0.737181962,4299.0,Anxious Fluctuators,0.723019898
Does heat make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,does heat make hs worse?,Does heat make HS worse?,Does heat make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1823},{""id"":1837},{""id"":1979},{""id"":1838}]",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.85,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",85.0,"The transcript effectively addresses the question by discussing how sweating, often caused by heat, can be a trigger for HS (Hidradenitis Suppurativa). It suggests that heat, by causing sweating, can indeed worsen HS for some patients. The transcript also provides practical advice on how to manage sweating and mentions treatments that can help reduce sweating and potentially improve HS symptoms. However, it does not explicitly state that heat itself makes HS worse, focusing more on the indirect effect through sweating, which slightly reduces the directness of the answer.",4852.0,CON1-CH3-Q5-What role does stress play in HS-Garg-.mp4,0.2,What role does stress play in HS?,"Life is stressful today in general, and certainly having a chronic inflammatory condition like HS adds to that stress. It's not really clear what kind of role stress plays in skin disease in general, but certainly I hear from a lot of patients that stress at least maybe makes their condition worse. And listen, I think we've appreciated over time that there is a connection between the mind, the body, and the soul. So it never surprises me when a patient talks to me about how stress really influences their activity of HS. What I would say is that it's important to manage stress, find ways to cope with stress, for life in general, and especially when you have a chronic condition like HS. I think managing your stress can potentially influence how you perceive the disease, how you cope with the disease, and maybe even how active the condition can get. For example, how often you might flare. So I encourage all of my patients, anything you can do to cope with stress better, to find ways to be more resilient when you have a chronic condition like HS, can only help.",20.0,"The transcript primarily discusses the impact of stress on HS, emphasizing the importance of stress management. However, it does not address the specific question about the effect of heat on HS. The connection between heat and HS is not mentioned, making the response largely irrelevant to the question asked.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.2,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",20.0,"The transcript does not directly address the question about whether heat makes HS worse. It focuses on dispelling myths related to the causes of HS, such as hygiene, weight, and smoking, and emphasizes the importance of accurate information and diagnosis. While it mentions that weight can make HS worse, it does not discuss the impact of heat on HS, which is the specific inquiry of the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.744709909,2309.0,What is Metabolic Syndrome?,0.739458323,2312.0,Heart Health | Effects of Acute Stress,0.738705397
Can humidity trigger hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can humidity trigger hidradenitis suppurativa?,Can humidity trigger hidradenitis suppurativa?,Can humidity trigger hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1823},{""id"":1833},{""id"":1817},{""id"":1950}]",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.6,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",60.0,"The transcript partially addresses the question by discussing sweat as a trigger for hidradenitis suppurativa (HS), which is related to humidity. However, it does not explicitly mention humidity itself as a trigger. The focus is more on sweating and its management, which can be influenced by humidity, but the connection is not directly made. Therefore, the answer is somewhat relevant but not fully comprehensive in addressing the specific question about humidity.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.4,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",40.0,"The transcript provides a general explanation of how environmental factors, in combination with genetic predisposition, might trigger diseases like hidradenitis suppurativa (HS). However, it does not specifically address whether humidity is a trigger for HS. The transcript mentions factors like tobacco smoking, higher weight, and frictional forces but does not mention humidity at all. Therefore, while it gives some context about environmental triggers, it does not directly answer the question about humidity.",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.2,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",20.0,"The transcript primarily discusses the impact of antiperspirants and deodorants on hidradenitis suppurativa (HS) flares, including trial and error with different products and ingredients. However, it does not address the specific question about humidity as a trigger for HS. The focus is on personal care products rather than environmental factors like humidity, making the response largely irrelevant to the question asked.",2321.0,Health Conditions Impacted by the Microbiome,0.749940515,3494.0,Inflammation | Dr. Jim Januzzi,0.740689874,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.727461
Does friction cause HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,does friction cause hs flares?,Does friction cause HS flares?,Does friction cause HS flares?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1854},{""id"":1873},{""id"":1861}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript effectively addresses the question by explaining that friction can indeed be a trigger for HS flares, particularly in areas prone to friction during exercise, such as the armpits and between the thighs. It also provides practical advice on how to manage exercise to minimize HS flares, suggesting low-impact activities like walking, swimming, and yoga. However, the transcript could be more direct in explicitly stating that friction itself is a cause of HS flares, rather than implying it through the context of exercise. This slight lack of directness prevents a perfect score.",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.85,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",85.0,"The transcript provides a good explanation of how friction is related to the development of HS (Hidradenitis Suppurativa) lesions, indicating that HS tends to occur in areas where there is friction, such as skin-on-skin contact or from clothing. However, it does not explicitly state that friction causes HS flares, but rather implies a correlation by describing common locations for HS lesions. The answer could be improved by directly addressing whether friction is a causative factor for flares, rather than just a common location for lesions.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.8,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",80.0,"The transcript addresses the question by suggesting that friction can exacerbate HS (Hidradenitis Suppurativa) lesions, implying that friction is a contributing factor to HS flares. It mentions that looser clothing can help reduce friction and occlusion, which are factors that can worsen HS. However, the transcript does not explicitly state that friction directly causes HS flares, but rather that it can make existing lesions worse. Therefore, while the transcript provides relevant information, it does not fully answer the question about causation.",1020.0,Herniated Disc | Treating Flare-ups,0.760430932,915.0,Pinched Nerves and Herniated Discs,0.736130416,2309.0,What is Metabolic Syndrome?,0.72855103
Can tight clothing make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can tight clothing make hs worse?,Can tight clothing make HS worse?,Can tight clothing make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1873},{""id"":1816},{""id"":1865},{""id"":1823}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.95,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",95.0,"The transcript effectively answers the question by explaining that looser fitting clothing can help reduce friction and occlusion, which are factors that can exacerbate HS (Hidradenitis Suppurativa) lesions. This implies that tight clothing, which would increase friction and occlusion, could indeed make HS worse. The explanation is clear and directly related to the question, though it could be slightly improved by explicitly stating that tight clothing can worsen HS.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.85,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",85.0,"The transcript provides a nuanced answer to the question by explaining that the effect of tight clothing on HS (Hidradenitis Suppurativa) can vary among individuals. It mentions that for some people, tight clothing can worsen HS due to friction, while for others, it might help by preventing skin-on-skin contact. The response emphasizes the importance of trial and error and suggests consulting patient support groups for personalized advice. However, it does not provide a definitive answer, which is appropriate given the variability among patients, but might leave some readers seeking a more direct response. Overall, the transcript effectively addresses the question by acknowledging the complexity and individual differences in HS management.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.7,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",70.0,"The transcript indirectly addresses the question by suggesting that sweat staying close to the skin can trigger more flares in HS, implying that tight clothing, which may trap sweat, could potentially worsen the condition. However, it does not explicitly state that tight clothing makes HS worse. Instead, it focuses on recommending stay-dry or sweat-wicking clothing to reduce flares, which suggests that avoiding tight clothing might be beneficial. The connection is implied but not directly stated, hence the rating of 70.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.73988992,933.0,HSS Minute | Early Life Low Bone Density,0.736567318,2310.0,Heart Health | Exercise Guidelines,0.733308375
What kind of specialist treats hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what kind of specialist treats hidradenitis suppurativa?,What kind of specialist treats hidradenitis suppurativa?,What kind of specialist treats Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1826},{""id"":1828},{""id"":1825},{""id"":1827}]",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.95,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",95.0,"The transcript effectively answers the question by identifying dermatologists as the specialists who treat Hidradenitis Suppurativa (HS). It also provides additional context about HS specialists and suggests starting with a board-certified dermatologist, which is relevant and helpful information for someone seeking treatment for HS.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.85,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",85.0,"The transcript provides a clear answer to the question by identifying dermatologists as the specialists who treat Hidradenitis Suppurativa (HS). It further advises on how to find a suitable dermatologist, suggesting board-certified dermatologists and those affiliated with big universities as potentially more experienced with HS. The transcript also offers practical tips on evaluating a dermatologist's expertise based on their practice focus. However, it could be improved by explicitly stating that dermatologists are the specialists who treat HS at the beginning of the response for clarity.",4846.0,CON1-CH2-Q2-What doctors would you recommend for a well-rounded care team-Okoye.mp4,0.85,What doctors would you recommend for a well-rounded care team?,"A well-rounded care team for the average patient with HS includes a dermatologist, a surgeon if needed. If you have joint pain, a rheumatologist would be a great addition. Even a nutritionist could be helpful. And certainly if you have any gut symptoms at all, like diarrhea, blood in the stool, you're going to need a gastroenterologist. And probably most importantly, the two last specialists I would think about is a primary care doctor. Many of our patients with HS have hypertension, diabetes, and we need that primary care doctor to sometimes be a quarterback in terms of managing all of these referrals. And then a mental health provider, even if you don't have symptoms of depression or anxiety, it's still helpful to have someone on deck should you develop any of those symptoms.",85.0,"The transcript provides a comprehensive answer by identifying a dermatologist as the primary specialist for treating Hidradenitis Suppurativa (HS). It also mentions other specialists who might be involved in the care team depending on the patient's symptoms, such as a surgeon, rheumatologist, gastroenterologist, primary care doctor, and mental health provider. While the focus is on a multidisciplinary approach, the transcript clearly answers the question by highlighting the dermatologist as the key specialist for HS.",586.0,Surgical Approaches,0.772181332,3499.0,What kind of doctor should I see if I have obesity?,0.771491826,2327.0,When to See a Dietitian for Your Microbiome,0.770069242
Should I see a dermatologist for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i see a dermatologist for hs?,Should I see a dermatologist for HS?,Should I see a dermatologist for HS?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Do I need a surgeon for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,do i need a surgeon for hidradenitis suppurativa?,Do I need a surgeon for hidradenitis suppurativa?,Do I need a surgeon for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1911},{""id"":1908},{""id"":1912},{""id"":1826}]",4948.0,CON3-CH3-Q7-Will I keep needing surgery-Daveluy.mp4,0.85,Will I keep needing surgery?,"There's a lot of elements that go into answering that question, which again, just talks to how complicated HS can be. Some patients need only one surgery just to get rid of one spot and then they don't need it again. Other patients need a series of surgeries to treat different areas of the body where they have tunnels or lesions that require surgery. And then the other aspect of that is the disease activity. So we always aim to get your disease under control with medications and then do surgery for the spots that are left. But if you don't keep the disease under control, it may flare up again, cause new tunnels, and then you may need surgery again in that area. So, it's a little unpredictable, but we do our best to treat with both medications and surgeries to give the best care and the best chance that you won't need any surgery in the future.
",85.0,"The transcript provides a comprehensive answer to the question by explaining the circumstances under which surgery might be necessary for Hidradenitis Suppurativa (HS). It discusses the variability in surgical needs among patients, the role of disease activity, and the importance of medication in controlling the disease to potentially avoid surgery. However, it does not explicitly state whether a surgeon is needed, although it implies that surgical intervention is sometimes required, which would involve a surgeon.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.85,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",85.0,"The transcript provides a comprehensive overview of surgical options for Hidradenitis Suppurativa (HS), including laser hair removal, deroofing, excision, and incision and drainage. It explains the purpose and outcomes of each procedure, emphasizing the importance of discussing surgical options with a doctor. While it doesn't explicitly answer whether a surgeon is needed, it implies that surgical intervention is a significant part of HS management, suggesting that consulting a surgeon is advisable. The detailed explanation of procedures and their effects on HS provides a strong answer to the question.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.75,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",75.0,"The transcript provides a detailed discussion on the role of surgery in treating Hidradenitis Suppurativa (HS), indicating that surgery can be a beneficial option for many patients. It explains the complexities involved in measuring surgical success and emphasizes the importance of combining surgery with medication. However, it does not directly answer whether a surgeon is needed, leaving some ambiguity about whether surgery is necessary for all HS cases or only specific situations. The transcript suggests consulting with a doctor, which implies that a surgeon may be needed, but it does not explicitly state this.",564.0,When to Consider Surgery,0.781022787,3597.0,Do I have to see an obesity specialist?,0.780815482,586.0,Surgical Approaches,0.771316707
Can my primary care doctor treat HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can my primary care doctor treat hs?,Can my primary care doctor treat HS?,Can my primary care doctor treat HS?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
How do I find an HS specialist?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i find an hs specialist?,How do I find an HS specialist?,How do I find an HS specialist?,No,,,searchable,exact-match,,,"[{""id"":1827},{""id"":1826},{""id"":1828},{""id"":1968}]",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.9,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",90.0,"The transcript provides a comprehensive answer to the question by acknowledging the difficulty in finding an HS specialist and offering practical resources to locate one. It mentions specific websites like the HS Foundation and HSconnect.org that have clinic finders, and also suggests patient support groups as a resource. This directly addresses the question and offers actionable steps, making it a highly effective response. However, it could be slightly improved by providing more detailed guidance on how to use these resources, which is why it doesn't receive a perfect score.",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.85,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",85.0,"The transcript provides a practical approach to finding an HS specialist by suggesting starting with a board-certified dermatologist, as all dermatologists are trained to treat HS. It acknowledges the scarcity of HS specialists and offers a pathway to potentially getting a referral to one if necessary. However, it could be improved by providing more specific guidance on how to locate a dermatologist or HS specialist, such as using online directories or contacting local medical associations.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.85,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",85.0,"The transcript provides a practical approach to finding an HS specialist by suggesting starting with a board-certified dermatologist and considering those affiliated with large universities, as they may have more experience with HS. It also advises checking the dermatologist's website to see if they focus on medical skin conditions, which could indicate experience with HS. However, it does not provide specific resources or directories that might directly list HS specialists, which could have made the answer more comprehensive.",907.0,HSS Overview,0.781726599,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.769084811,3597.0,Do I have to see an obesity specialist?,0.766154
Why do doctors misdiagnose hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,why do doctors misdiagnose hidradenitis suppurativa?,Why do doctors misdiagnose hidradenitis suppurativa?,Why do doctors misdiagnose Hidradenitis Suppurativa?,No,,,searchable,exact-match,diagnosis,,"[{""id"":1950},{""id"":1951},{""id"":1953},{""id"":1887}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.85,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",85.0,"The transcript provides a clear explanation of why Hidradenitis Suppurativa (HS) is often misdiagnosed. It highlights the lack of awareness among both doctors and patients, and explains how HS lesions can mimic other common conditions, leading to misdiagnosis. The transcript also mentions the typical delay in diagnosis, which further supports the reasons for misdiagnosis. However, it could be improved by discussing more specific factors such as the rarity of the condition or the need for specialized knowledge to diagnose it accurately.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.75,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",75.0,"The transcript provides a partial answer to the question by explaining the challenges in diagnosing Hidradenitis Suppurativa (HS), such as the lack of specific tests and the reliance on clinical observation. It suggests that seeing a dermatologist is the best way to confirm a diagnosis, which implies that misdiagnosis can occur due to lack of experience or awareness among general practitioners. However, it does not directly address other potential reasons for misdiagnosis, such as symptom overlap with other conditions or variability in presentation, which would provide a more comprehensive answer.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.2,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",20.0,"The transcript does not directly address the reasons why doctors might misdiagnose Hidradenitis Suppurativa (HS). It discusses the coexistence of acne and HS, suggesting that having both conditions does not imply misdiagnosis, but it does not explore specific factors that lead to misdiagnosis, such as symptom overlap, lack of awareness, or diagnostic challenges. Therefore, it only tangentially relates to the question and does not provide a comprehensive answer.",3596.0,Why did it take so long for obesity to be recognized as a disease?,0.777838111,1099.0,Breast Cancer | Diagnosis,0.769730628,564.0,When to Consider Surgery,0.767501771
How long does it take to get diagnosed with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how long does it take to get diagnosed with hs?,How long does it take to get diagnosed with HS?,How long does it take to get diagnosed with HS?,No,,,searchable,exact-match,diagnosis,,"[{""id"":1950},{""id"":1951},{""id"":1965},{""id"":1970}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.85,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",85.0,"The transcript provides a clear answer to the question by stating that it is not uncommon for people with HS to be diagnosed seven to 10 years after their symptoms start. This directly addresses the question about the time it takes to get diagnosed with HS. However, the transcript could be improved by explicitly stating that the diagnosis time can vary and providing more context on factors that might influence this timeframe. Nonetheless, the core information needed to answer the question is present.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.4,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",40.0,"The transcript provides information on how HS is diagnosed, emphasizing the importance of observation and seeing a dermatologist, but it does not directly address the question of how long it takes to get diagnosed. It suggests that diagnosis relies on recognizing symptoms and consulting a doctor, which implies variability in diagnosis time, but does not give a specific timeframe or factors that might influence the duration of the diagnostic process.",5013.0,CON6-Q28-When should I start treatment for HS-Garg.mp4,0.2,When should I start treatment for HS?,"So with HS, early is always better. We really feel like when we can catch this disease in its earlier stages, we have a much better chance at controlling the symptoms that you have today and slow or even altogether prevent it from getting worse over time.",20.0,"The transcript does not directly answer the question about the time it takes to get diagnosed with HS (Hidradenitis Suppurativa). Instead, it discusses the importance of early detection and management of the disease. There is no information provided about the diagnostic process or timeline, which is what the question specifically asks for.",3596.0,Why did it take so long for obesity to be recognized as a disease?,0.770543396,3772.0,Understanding Type 1 and Type 2 Diabetes,0.765316069,933.0,HSS Minute | Early Life Low Bone Density,0.762768388
My doctor said I just have boils - could it be HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,my doctor said i just have boils - could it be hs?,My doctor said I just have boils - could it be HS?,My doctor said I just have boils. Could it be HS?,No,,,contact_doctor,,"condition overview,diagnosis",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
How much does HS treatment cost?,searchable,Patient_Forums,Hidradenitis Suppurativa,how much does hs treatment cost?,How much does HS treatment cost?,How much does HS treatment cost?,No,,,searchable,no-match,,,"[{""id"":1971},{""id"":1967},{""id"":1962},{""id"":1965}]",5032.0,CON5-Q2-I was just diagnosed with HS-what should I expect to happen now-Brooksks.mp4,0.2,"I was just diagnosed with HS, what can I expect to happen now?","If you've just been diagnosed with HS, what most commonly happens is that most insurance requires step therapy. So you may be started on therapy such as antibiotics because those are part of the treatment guidelines that have been created by experts. So usually, regardless of what stage you enter in at, you will have to go through some sort of step therapy, which means you'll have to start with a treatment option and try and fail that before you can move on to the next option. So I know there's a lot of talk in the community about biologics, especially since we've just had two new biologics approved within the last year or so for HS, but in order to get on those therapies, a lot of times you have to go through that step therapy. It can be a really, really frustrating process, but I encourage you to stick with it because you are worth getting to that point. So you'll go through that step. /Yeah, so you'll typically with step therapyYou'll have to start with the antibiotics and then try and fail those. It's typically a three-month period of time that you have to go through each of these pieces of the step therapy. And then you would move on to some other kinds of medications that are available for HS as well until you can get to the point of biologics. We are, as a patient advocacy group, working on trying to shorten the step-therapy piece and even eradicate some of that because we know how detrimental that can be for patients with HS, and how it elongates the process to get to the medications that are really truly helpful for us. So please know that there's work being done on that. I know how frustrating that is to go through the step-therapy process. I've been through it myself multiple times. Just do the time that you have to do, and please make sure that you're keeping track of all of this information on your own, too. Because in a lot of cases, if you don't have the proof that you've been on a prior medication, if you change insurance or something like that, you may have to start over. So, it's really important to keep track of all of this so that you don't lose the progress you've made already in step therapy if you have to change insurance. So please keep all of that in mind. They're all pearls of wisdom from having done it, the wrong way or not, you know, not keeping track of stuff in the past myself and having to go through that painful process over and over.",20.0,"The transcript does not directly address the cost of HS treatment. It focuses on the process of step therapy and the challenges associated with insurance requirements, but does not provide any specific information about the financial aspect or cost of treatments for HS. The mention of insurance and step therapy implies there may be costs involved, but these are not detailed or quantified in the transcript.",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.1,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",10.0,"The transcript does not address the question about the cost of HS treatment at all. Instead, it discusses the importance of finding a knowledgeable clinician for managing the condition. There is no mention of costs or any financial aspects related to HS treatment, which is the core of the question.",5004.0,CON6-Q22-What does the stage of my HS mean for my treatment-Okoye.mp4,0.05,What does the stage of my HS mean for my treatment?,"The stages in HS don't really affect our treatment choices that much. Honestly, what affects our treatment choices is how the HS is affecting you, what are your specific symptoms, and how much it's bothering you and affecting your life. So for example, if someone has stage two disease, but it's really affecting their ability to function, then I'm going to treat them with aggressive treatment. I'm not going to wait for them to have stage three disease to get aggressive treatment.",5.0,"The transcript does not address the cost of HS treatment at all. It discusses treatment choices based on the impact of HS on the patient's life and symptoms, but does not provide any information related to the financial aspect or cost of treatment.",942.0,HSS Minute | Patient-Specific Spine Treatment,0.761600554,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.761186898,907.0,HSS Overview,0.756851733
Does insurance cover Humira for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,does insurance cover humira for hs?,Does insurance cover Humira for HS?,Does insurance cover Humira for HS?,No,,,searchable,exact-match,,,"[{""id"":1897},{""id"":1971},{""id"":1896},{""id"":1934}]",4937.0,CON3-CH2-Q6-Will my insurance cover biologics-Okoye.mp4,0.85,Will my insurance cover biologics?,"The FDA-approved biologics for HS are usually covered by most insurance companies. The first biologic that was approved, which is Humira, is often the best covered by insurance. It's been around longer. It even has some generic equivalents now, and so they're a little bit more affordable. And so insurance companies tend to prefer Humira and its generics. But don't worry about that part. Let your care team worry about that. We write letters to the insurance companies, we get on the phone with them and argue your case. We send them research showing that this medicine is going to change your life and often we'll get it for you.",85.0,"The transcript provides a strong answer to the question by indicating that Humira, a biologic approved for HS, is usually covered by most insurance companies. It explains that Humira is often preferred by insurers due to its longer presence in the market and availability of generic equivalents, which makes it more affordable. The transcript also reassures the patient that their care team will assist in securing coverage by advocating with insurance companies. However, it does not explicitly confirm coverage for all insurance plans, which leaves some room for uncertainty.",5032.0,CON5-Q2-I was just diagnosed with HS-what should I expect to happen now-Brooksks.mp4,0.4,"I was just diagnosed with HS, what can I expect to happen now?","If you've just been diagnosed with HS, what most commonly happens is that most insurance requires step therapy. So you may be started on therapy such as antibiotics because those are part of the treatment guidelines that have been created by experts. So usually, regardless of what stage you enter in at, you will have to go through some sort of step therapy, which means you'll have to start with a treatment option and try and fail that before you can move on to the next option. So I know there's a lot of talk in the community about biologics, especially since we've just had two new biologics approved within the last year or so for HS, but in order to get on those therapies, a lot of times you have to go through that step therapy. It can be a really, really frustrating process, but I encourage you to stick with it because you are worth getting to that point. So you'll go through that step. /Yeah, so you'll typically with step therapyYou'll have to start with the antibiotics and then try and fail those. It's typically a three-month period of time that you have to go through each of these pieces of the step therapy. And then you would move on to some other kinds of medications that are available for HS as well until you can get to the point of biologics. We are, as a patient advocacy group, working on trying to shorten the step-therapy piece and even eradicate some of that because we know how detrimental that can be for patients with HS, and how it elongates the process to get to the medications that are really truly helpful for us. So please know that there's work being done on that. I know how frustrating that is to go through the step-therapy process. I've been through it myself multiple times. Just do the time that you have to do, and please make sure that you're keeping track of all of this information on your own, too. Because in a lot of cases, if you don't have the proof that you've been on a prior medication, if you change insurance or something like that, you may have to start over. So, it's really important to keep track of all of this so that you don't lose the progress you've made already in step therapy if you have to change insurance. So please keep all of that in mind. They're all pearls of wisdom from having done it, the wrong way or not, you know, not keeping track of stuff in the past myself and having to go through that painful process over and over.",40.0,"The transcript discusses the concept of step therapy, which is often required by insurance before covering more advanced treatments like biologics, including Humira, for HS. However, it does not directly answer whether insurance covers Humira specifically for HS. It implies that insurance may cover Humira after step therapy, but does not provide a clear or direct answer to the question about coverage.",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.2,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",20.0,"The transcript provides information about the history and approval of Humira and other biologics for HS, but it does not address the question of whether insurance covers Humira for HS. There is no mention of insurance coverage, policies, or factors affecting coverage in the transcript.",907.0,HSS Overview,0.756108642,3772.0,Understanding Type 1 and Type 2 Diabetes,0.754327774,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.753874958
Are biologics for HS expensive?,searchable,Patient_Forums,Hidradenitis Suppurativa,are biologics for hs expensive?,Are biologics for HS expensive?,Are biologics for HS expensive?,No,,,searchable,exact-match,,,"[{""id"":1897},{""id"":1971},{""id"":1896},{""id"":1902}]",4937.0,CON3-CH2-Q6-Will my insurance cover biologics-Okoye.mp4,0.7,Will my insurance cover biologics?,"The FDA-approved biologics for HS are usually covered by most insurance companies. The first biologic that was approved, which is Humira, is often the best covered by insurance. It's been around longer. It even has some generic equivalents now, and so they're a little bit more affordable. And so insurance companies tend to prefer Humira and its generics. But don't worry about that part. Let your care team worry about that. We write letters to the insurance companies, we get on the phone with them and argue your case. We send them research showing that this medicine is going to change your life and often we'll get it for you.",70.0,"The transcript partially addresses the question about the expense of biologics for HS by discussing insurance coverage, which implies that the cost may be mitigated by insurance. It mentions that Humira, a biologic for HS, is often well-covered by insurance and has generic equivalents that are more affordable. However, the transcript does not directly address the out-of-pocket cost for patients without insurance or the actual price of the biologics, which are important aspects of the question about expense. Therefore, while it provides some relevant information, it does not fully answer the question.",5032.0,CON5-Q2-I was just diagnosed with HS-what should I expect to happen now-Brooksks.mp4,0.3,"I was just diagnosed with HS, what can I expect to happen now?","If you've just been diagnosed with HS, what most commonly happens is that most insurance requires step therapy. So you may be started on therapy such as antibiotics because those are part of the treatment guidelines that have been created by experts. So usually, regardless of what stage you enter in at, you will have to go through some sort of step therapy, which means you'll have to start with a treatment option and try and fail that before you can move on to the next option. So I know there's a lot of talk in the community about biologics, especially since we've just had two new biologics approved within the last year or so for HS, but in order to get on those therapies, a lot of times you have to go through that step therapy. It can be a really, really frustrating process, but I encourage you to stick with it because you are worth getting to that point. So you'll go through that step. /Yeah, so you'll typically with step therapyYou'll have to start with the antibiotics and then try and fail those. It's typically a three-month period of time that you have to go through each of these pieces of the step therapy. And then you would move on to some other kinds of medications that are available for HS as well until you can get to the point of biologics. We are, as a patient advocacy group, working on trying to shorten the step-therapy piece and even eradicate some of that because we know how detrimental that can be for patients with HS, and how it elongates the process to get to the medications that are really truly helpful for us. So please know that there's work being done on that. I know how frustrating that is to go through the step-therapy process. I've been through it myself multiple times. Just do the time that you have to do, and please make sure that you're keeping track of all of this information on your own, too. Because in a lot of cases, if you don't have the proof that you've been on a prior medication, if you change insurance or something like that, you may have to start over. So, it's really important to keep track of all of this so that you don't lose the progress you've made already in step therapy if you have to change insurance. So please keep all of that in mind. They're all pearls of wisdom from having done it, the wrong way or not, you know, not keeping track of stuff in the past myself and having to go through that painful process over and over.",30.0,"The transcript does not directly address the cost of biologics for HS. Instead, it focuses on the step therapy process required by insurance before accessing biologics, which implies that biologics are not immediately accessible but does not explicitly discuss their expense. The mention of insurance and step therapy suggests that biologics might be costly, as they are not the first line of treatment, but this is not clearly stated. Therefore, the transcript provides some context but does not adequately answer the question about the expense of biologics for HS.",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.2,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",20.0,"The transcript provides information about the history and approval of biologics for HS, mentioning specific drugs like Humira, Cosentyx, and Bimzelx. However, it does not address the cost or expense of these biologics, which is the main focus of the question. Therefore, the transcript does not effectively answer the question about the expense of biologics for HS.",4223.0,Is Regenerative Medicine Right for Me?,0.761437476,4227.0,"Regenerative Medicine for Muscle, Bone and Joint Health",0.745894074,3621.0,I can’t afford these new weight loss medications. What do I do?,0.737573445
Can I get financial assistance for HS medications?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i get financial assistance for hs medications?,Can I get financial assistance for HS medications?,Can I get financial assistance for HS medications?,No,,,searchable,no-match,,,"[{""id"":1971},{""id"":1970},{""id"":1842},{""id"":1969}]",5032.0,CON5-Q2-I was just diagnosed with HS-what should I expect to happen now-Brooksks.mp4,0.2,"I was just diagnosed with HS, what can I expect to happen now?","If you've just been diagnosed with HS, what most commonly happens is that most insurance requires step therapy. So you may be started on therapy such as antibiotics because those are part of the treatment guidelines that have been created by experts. So usually, regardless of what stage you enter in at, you will have to go through some sort of step therapy, which means you'll have to start with a treatment option and try and fail that before you can move on to the next option. So I know there's a lot of talk in the community about biologics, especially since we've just had two new biologics approved within the last year or so for HS, but in order to get on those therapies, a lot of times you have to go through that step therapy. It can be a really, really frustrating process, but I encourage you to stick with it because you are worth getting to that point. So you'll go through that step. /Yeah, so you'll typically with step therapyYou'll have to start with the antibiotics and then try and fail those. It's typically a three-month period of time that you have to go through each of these pieces of the step therapy. And then you would move on to some other kinds of medications that are available for HS as well until you can get to the point of biologics. We are, as a patient advocacy group, working on trying to shorten the step-therapy piece and even eradicate some of that because we know how detrimental that can be for patients with HS, and how it elongates the process to get to the medications that are really truly helpful for us. So please know that there's work being done on that. I know how frustrating that is to go through the step-therapy process. I've been through it myself multiple times. Just do the time that you have to do, and please make sure that you're keeping track of all of this information on your own, too. Because in a lot of cases, if you don't have the proof that you've been on a prior medication, if you change insurance or something like that, you may have to start over. So, it's really important to keep track of all of this so that you don't lose the progress you've made already in step therapy if you have to change insurance. So please keep all of that in mind. They're all pearls of wisdom from having done it, the wrong way or not, you know, not keeping track of stuff in the past myself and having to go through that painful process over and over.",20.0,"The transcript primarily discusses the step therapy process for HS medications and the challenges associated with it, but it does not address the question of financial assistance for HS medications. There is no mention of programs, insurance coverage, or any financial aid options that might be available to help with the cost of HS medications. The response is focused on the treatment pathway rather than financial support.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.1,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",10.0,"The transcript does not address the question about financial assistance for HS medications at all. It focuses on emotional support and community engagement for individuals with HS, but does not provide any information related to financial assistance or resources for medications.",4855.0,CON1-CH4-Q5-Will depression medications affect my HS treatment-Okoye.mp4,0.05,Will depression medications affect my HS?,Medications for depression and anxiety don't affect HS treatments. And actually many of my patients are on medications to help their mental health as well.,5.0,"The transcript does not address the question about financial assistance for HS medications at all. Instead, it discusses the compatibility of mental health medications with HS treatments, which is unrelated to the financial aspect of obtaining medications for HS. Therefore, the response is almost entirely irrelevant to the question asked.",3621.0,I can’t afford these new weight loss medications. What do I do?,0.782957792,3567.0,What if I can't afford these new weight loss medication?,0.776887298,1613.0,Pharmacies & DME Companies,0.761235952
What are patient assistance programs for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what are patient assistance programs for hs?,What are patient assistance programs for HS?,What are patient assistance programs for HS?,No,,,searchable,loose-match,,,"[{""id"":1978},{""id"":1813},{""id"":1841},{""id"":1845}]",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.4,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",40.0,"The transcript provides information about HS Connect, a resource hub for individuals with Hidradenitis Suppurativa (HS), but it does not specifically address patient assistance programs for HS. It mentions various resources and community support, but lacks direct information on financial assistance or specific programs designed to help patients afford treatment or manage costs associated with HS.",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.2,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",20.0,"The transcript primarily discusses support groups for HS (Hidradenitis Suppurativa) and their benefits, which is not directly related to patient assistance programs. Patient assistance programs typically refer to services that help patients access medications or treatments, often through financial aid or insurance support. The transcript does not address these aspects, hence it does not adequately answer the question about patient assistance programs for HS.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.1,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",10.0,"The transcript does not address the question about patient assistance programs for HS (Hidradenitis Suppurativa). Instead, it discusses support groups and the importance of having a trusted care team, which are related to emotional and social support rather than financial or medical assistance programs.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.789469779,907.0,HSS Overview,0.773656607,866.0,A Hub of Resources at Your Fingertips,0.773132801
Is hidradenitis suppurativa considered a disability?,searchable,Patient_Forums,Hidradenitis Suppurativa,is hidradenitis suppurativa considered a disability?,Is hidradenitis suppurativa considered a disability?,Is Hidradenitis Suppurativa considered a disability?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1950},{""id"":1850},{""id"":1822}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.6,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",60.0,"The transcript provides relevant information about how Hidradenitis Suppurativa (HS) can impact work and the need for accommodations, suggesting it can be considered a disability in the context of employment. However, it does not directly address whether HS is officially recognized as a disability by legal or medical standards, which is the core of the question. The response focuses more on practical implications and advice for managing work-related issues rather than a definitive answer about its status as a disability.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address whether Hidradenitis Suppurativa is considered a disability. It discusses the lack of awareness and common misdiagnosis of the condition, but does not provide information on its classification as a disability. The answer lacks relevance to the specific question asked.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.2,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",20.0,"The transcript does not directly address whether Hidradenitis Suppurativa (HS) is considered a disability. It only describes the painful nature of the disease, which is relevant but insufficient to answer the question about its classification as a disability. A more complete answer would discuss how HS might be recognized in terms of disability benefits or legal definitions.",1020.0,Herniated Disc | Treating Flare-ups,0.756162643,450.0,I Have Endometriosis,0.755542,1113.0,Alopecia Areata | E9,0.754511714
Can I get disability benefits for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i get disability benefits for hs?,Can I get disability benefits for HS?,Can I get disability benefits for HS?,No,,,searchable,loose-match,,,"[{""id"":1843},{""id"":1969},{""id"":1970},{""id"":1839}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.4,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",40.0,"The transcript discusses the impact of Hidradenitis Suppurativa (HS) on work and the importance of communicating with employers for accommodations, but it does not directly address the question of whether one can receive disability benefits for HS. While it provides useful information on managing work-related issues due to HS, it lacks specific guidance on the process or eligibility for disability benefits, which is the core of the question.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not address the question about disability benefits for HS (Hidradenitis Suppurativa). It provides information about the genetic predisposition and familial aspects of HS, but does not mention disability benefits or criteria for eligibility. Therefore, it is not relevant to the question asked.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.1,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",10.0,"The transcript does not address the question about disability benefits for HS (Hidradenitis Suppurativa) at all. It focuses on providing emotional support and community encouragement for those diagnosed with HS, but does not mention disability benefits or eligibility criteria. Therefore, it does not answer the question posed.",1589.0,Accommodations for T1D at School,0.754137456,4290.0,Understanding & Advocating for Your Rights to Rehab Services with Lewy,0.749290228,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.745359123
Is HS linked to diabetes?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is hs linked to diabetes?,Is HS linked to diabetes?,Is HS linked to diabetes?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1935},{""id"":1834},{""id"":1818}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.9,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",90.0,"The transcript effectively answers the question by stating that HS (Hidradenitis Suppurativa) is linked to diabetes. It explains that patients with HS are more likely to develop diabetes, along with other metabolic health issues like high blood pressure and heart disease. The connection is attributed to the inflammation associated with HS, and the transcript suggests that treating this inflammation can reduce the risk of developing these conditions. The answer is clear and directly addresses the question, although it could be slightly improved by explicitly stating the link at the beginning of the response.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.5,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",50.0,"The transcript mentions that diabetes is more common in people with HS, which suggests a potential link between HS and diabetes. However, it does not directly address whether HS is causally linked to diabetes or explain the nature of the relationship. The focus of the transcript is more on pregnancy risks associated with HS rather than the specific link to diabetes, leaving the question partially answered.",4853.0,CON1-CH3-Q2-If I lose weight will my HS go away-Garg.mp4,0.2,If I lose weight will my HS go away?,"The question around weight is also one of the more common questions I get. So I'm glad you're asking about it, and there's kind of a lot to think about here. But again, I just want you to understand most importantly, there are many factors involved in addition to higher weight in developing HS. So weight alone is not a reason, or the only reason, one person has this condition. Our studies show that people with higher weight are more likely to have the condition. Our studies also show, however, that losing weight doesn't necessarily mean your HS is simply going to melt away or even get better. Having said that, we also know that patients with HS have lots of other medical conditions that can be worsened or exacerbated by higher weight. So what I try to explain to my HS patients is that having a better, or even ideal body weight, is important for your overall health. It potentially influences how your HS goes. And so it's important in general to consider weight management, but it doesn't necessarily mean that your HS will go away or that you will get it to be cured simply by losing weight.",20.0,"The transcript primarily discusses the relationship between weight and Hidradenitis Suppurativa (HS), emphasizing that weight is a factor but not the sole cause of HS. It mentions that HS patients often have other medical conditions that can be exacerbated by higher weight, but it does not directly address the link between HS and diabetes. The transcript lacks specific information about any direct association between HS and diabetes, which is the focus of the question. Therefore, it does not adequately answer the question posed.",2324.0,HSS Minute | Connection between Type 2 Diabetes and Bone Density,0.823875904,1089.0,Monitoring Your Diabetes,0.809449315,3772.0,Understanding Type 1 and Type 2 Diabetes,0.803241372
Can HS occur with Crohn's disease?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can hs occur with crohn's disease?,Can HS occur with Crohn's disease?,Can HS occur with Crohn's disease?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1969},{""id"":1814},{""id"":1850}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.85,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",85.0,"The transcript answers the question by confirming that Crohn's Disease is more common in patients with HS, implying an association between HS and Crohn's Disease. However, the transcript does not explicitly state that HS can occur with Crohn's Disease, nor does it delve into the mechanisms or prevalence of this association. The answer is mostly complete but lacks specific details that could provide a more comprehensive understanding of the relationship between HS and Crohn's Disease.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) can occur with Crohn's disease. It provides general information about the genetic predisposition of HS but does not mention Crohn's disease or any potential association between the two conditions. Therefore, it is not a relevant or complete answer to the question asked.",4824.0,CON1-CH1-Q4-Can HS go into remission-Garg.mp4,0.1,Can HS go into remission?,"We come across patients who have had the disease for a number of years with a fair amount of activity and then over time it just becomes less and less active to the point where some people just have some residual scarring but no active boils or even tunnels. And so yes, we do believe that this condition can go into remission - how and when it happens, we're just not sure yet.",10.0,"The transcript does not directly address the question of whether Hidradenitis Suppurativa (HS) can occur with Crohn's disease. Instead, it discusses the progression and remission of a condition, likely HS, but does not mention Crohn's disease or the relationship between the two conditions. Therefore, it does not provide a relevant answer to the question asked.",2321.0,Health Conditions Impacted by the Microbiome,0.766257286,1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.749732256,1101.0,HSS Minute | Whole Lupus Patient,0.749242246
Is there a connection between HS and inflammatory bowel disease?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is there a connection between hs and inflammatory bowel disease?,Is there a connection between HS and inflammatory bowel disease?,Is there a connection between HS and inflammatory bowel disease?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1966},{""id"":1844},{""id"":1837}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.85,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",85.0,"The transcript effectively addresses the question by confirming that there is a connection between HS (Hidradenitis Suppurativa) and inflammatory bowel disease, specifically mentioning Crohn's Disease as more common in patients with HS. This directly answers the question about the connection between HS and inflammatory bowel disease. However, the transcript could be improved by providing more detailed information on the nature of the connection or any underlying mechanisms, which would provide a more comprehensive answer.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.2,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",20.0,"The transcript does not directly address the connection between hidradenitis suppurativa (HS) and inflammatory bowel disease (IBD). It provides information about HS being an inflammatory disease related to hair follicles, but does not mention IBD or any potential link between the two conditions. Therefore, it does not adequately answer the question posed.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.1,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",10.0,"The transcript does not address the question about the connection between HS (Hidradenitis Suppurativa) and inflammatory bowel disease. Instead, it discusses ongoing research and potential treatments for HS without mentioning any link to inflammatory bowel disease. Therefore, it does not provide an answer to the question posed.",2321.0,Health Conditions Impacted by the Microbiome,0.801386297,3494.0,Inflammation | Dr. Jim Januzzi,0.777653933,2317.0,Microbiome and Diet,0.766021
Can HS cause depression?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can hs cause depression?,Can HS cause depression?,Can HS cause depression?,No,,,searchable,exact-match,mental and emotional health,,"[{""id"":1940},{""id"":1832},{""id"":1839},{""id"":1838}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.85,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",85.0,"The transcript effectively addresses the question by acknowledging that HS (Hidradenitis Suppurativa) can lead to depression and anxiety, indicating a higher rate of these conditions among those with HS. It emphasizes the importance of community support and offers resources for managing these feelings, which implies a connection between HS and depression. However, it does not delve into specific mechanisms or studies that explain why HS might cause depression, which would provide a more comprehensive answer.",4839.0,CON1-CH2-Q9-Why does my doctor want me to see a mental health professional-Okoye.mp4,0.85,Why does my doctor want me to see a mental health professional?,"I'll often recommend that my patients with HS see a mental health professional. Sometimes it's because I notice signs or symptoms of depression or anxiety even when my patient doesn't recognize them. But another reason is because depression and anxiety are extremely common in HS. And it's understandable why this disease is really difficult to deal with and it can be really overwhelming. And so I think having a mental health provider just to help with the overwhelm, with the stress, and certainly if you have true depression and anxiety, it's really important.",85.0,"The transcript effectively addresses the question by confirming that depression is common in individuals with HS (Hidradenitis Suppurativa). It explains the rationale behind recommending mental health support for patients with HS, highlighting the emotional challenges associated with the condition. However, it does not explicitly state that HS can cause depression, but strongly implies a correlation between HS and depression.",4859.0,CON1-CH4-Q2-Is depression a normal part of HS-Okoye.mp4,0.85,Is depression a normal part of HS?,"People with HS struggle with a lot of mental health concerns. Depression is one of them. Some people deal with anxiety and for some patients it doesn't get to the level of a diagnosis of depression or anxiety, but they feel a lot of stress and a lot of strain from the disease, from its unpredictability, and from how it tends to affect different aspects of their lives. So yes, what you're feeling is normal.",85.0,"The transcript effectively answers the question by confirming that HS can cause depression, along with other mental health concerns like anxiety and stress. It explains the impact of HS on mental health, emphasizing the unpredictability and strain it causes, which can lead to depression. However, it could be improved by providing more specific information on the prevalence or mechanisms by which HS leads to depression.",119.0,How Depression Affects The Brain | Yale Medicine Explains,0.784501433,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.775293231,103.0,"Depression & Anxiety
S2 | E1",0.772242069
Is anxiety common with hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is anxiety common with hidradenitis suppurativa?,Is anxiety common with hidradenitis suppurativa?,Is anxiety common with Hidradenitis Suppurativa?,No,,,searchable,exact-match,mental and emotional health,,"[{""id"":1940},{""id"":1850},{""id"":1950},{""id"":1953}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.9,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",90.0,"The transcript effectively addresses the question by confirming that anxiety is common among individuals with Hidradenitis Suppurativa (HS). It discusses the higher rate of depression and anxiety associated with HS, providing reassurance that these feelings are shared by many others with the condition. The transcript also offers supportive advice and resources, emphasizing community and therapeutic options, which further validates the prevalence of anxiety in HS. However, it could be slightly improved by providing specific data or studies to support the claim, which would make the answer more comprehensive.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.2,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",20.0,"The transcript does not directly address the question about the commonality of anxiety in individuals with Hidradenitis Suppurativa (HS). It only mentions the pain associated with HS and suggests that pain is a significant aspect of the disease. While pain can be related to anxiety, the transcript does not explicitly connect HS with anxiety or discuss its prevalence, leaving the question largely unanswered.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address the question of whether anxiety is common with Hidradenitis Suppurativa. Instead, it discusses the lack of awareness and common misdiagnosis of the condition. While these factors could indirectly contribute to anxiety, the transcript does not explicitly mention anxiety or its prevalence among those with HS. Therefore, it only minimally relates to the question.",418.0,Anxiety | E7,0.764741957,2313.0,Common Stress and Anxiety Symptoms,0.764700472,4645.0,Is What I'm Feeling Normal?,0.762769401
Can HS lead to other autoimmune diseases?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can hs lead to other autoimmune diseases?,Can HS lead to other autoimmune diseases?,Can HS lead to other autoimmune diseases?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1833},{""id"":1966},{""id"":1969}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.6,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",60.0,"The transcript addresses the association of HS with other inflammatory diseases, such as Crohn's Disease, and mentions joint pains, which could imply autoimmune involvement. However, it does not directly answer whether HS can lead to other autoimmune diseases. The focus is more on metabolic health issues like diabetes and heart disease, which are not autoimmune diseases. The connection to autoimmune diseases is implied but not explicitly stated, leaving the question partially answered.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.2,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",20.0,"The transcript does not directly address whether HS can lead to other autoimmune diseases. It discusses the two-hit hypothesis related to genetic predisposition and environmental factors in triggering HS, but does not mention the relationship between HS and other autoimmune diseases. The answer lacks specificity and relevance to the question asked.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.2,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",20.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) can lead to other autoimmune diseases. It provides information about the nature of HS, emphasizing that it is an inflammatory disease and not contagious, but it does not discuss any potential links between HS and other autoimmune conditions. Therefore, the transcript only partially relates to the question by describing HS as an immune-related condition, but it fails to answer the specific inquiry about its connection to other autoimmune diseases.",125.0,Multiple Sclerosis | Yale Medicine Explains,0.799936891,1101.0,HSS Minute | Whole Lupus Patient,0.788792312,2321.0,Health Conditions Impacted by the Microbiome,0.774135411
Is hidradenitis suppurativa related to PCOS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is hidradenitis suppurativa related to pcos?,Is hidradenitis suppurativa related to PCOS?,Is hidradenitis suppurativa related to PCOS?,No,,,searchable,exact-match,,,"[{""id"":1933},{""id"":1953},{""id"":1950},{""id"":1919}]",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.85,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",85.0,"The transcript effectively addresses the question by indicating that hidradenitis suppurativa (HS) can sometimes accompany polycystic ovarian syndrome (PCOS), suggesting a potential association between the two conditions. However, it does not explicitly state whether there is a direct relationship or common underlying cause between HS and PCOS, which could provide a more comprehensive answer. The focus on fertility issues related to PCOS rather than the relationship between HS and PCOS slightly detracts from the directness of the response to the question.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.2,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",20.0,"The transcript does not directly address the relationship between hidradenitis suppurativa (HS) and polycystic ovary syndrome (PCOS). It discusses the occurrence of acne in patients with HS but does not mention PCOS or any connection between HS and PCOS. Therefore, it provides very little relevant information to answer the question.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the relationship between hidradenitis suppurativa and PCOS at all. It discusses the lack of awareness and common misdiagnoses of hidradenitis suppurativa but does not provide any information on whether it is related to PCOS. Therefore, it does not answer the question posed.",450.0,I Have Endometriosis,0.748354256,2321.0,Health Conditions Impacted by the Microbiome,0.739658654,3494.0,Inflammation | Dr. Jim Januzzi,0.739525437
Can metabolic syndrome make HS worse?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can metabolic syndrome make hs worse?,Can metabolic syndrome make HS worse?,Can metabolic syndrome make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1834},{""id"":1979},{""id"":1818}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.6,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",60.0,"The transcript discusses the association of HS (Hidradenitis Suppurativa) with other inflammatory diseases and metabolic health issues like diabetes, high blood pressure, and heart disease. It implies that inflammation is a common factor and that treating inflammation can reduce the risk of these conditions. However, it does not directly address whether metabolic syndrome specifically makes HS worse. The connection is somewhat implied through the discussion of inflammation and metabolic health, but the transcript lacks a direct answer to the question about metabolic syndrome's impact on HS.",4853.0,CON1-CH3-Q2-If I lose weight will my HS go away-Garg.mp4,0.4,If I lose weight will my HS go away?,"The question around weight is also one of the more common questions I get. So I'm glad you're asking about it, and there's kind of a lot to think about here. But again, I just want you to understand most importantly, there are many factors involved in addition to higher weight in developing HS. So weight alone is not a reason, or the only reason, one person has this condition. Our studies show that people with higher weight are more likely to have the condition. Our studies also show, however, that losing weight doesn't necessarily mean your HS is simply going to melt away or even get better. Having said that, we also know that patients with HS have lots of other medical conditions that can be worsened or exacerbated by higher weight. So what I try to explain to my HS patients is that having a better, or even ideal body weight, is important for your overall health. It potentially influences how your HS goes. And so it's important in general to consider weight management, but it doesn't necessarily mean that your HS will go away or that you will get it to be cured simply by losing weight.",40.0,"The transcript does not directly address the question of whether metabolic syndrome can make HS (Hidradenitis Suppurativa) worse. It discusses the relationship between weight and HS, suggesting that higher weight can be associated with HS and that weight management is important for overall health. However, it does not specifically mention metabolic syndrome or its impact on HS. The response is somewhat relevant as it touches on weight, which is a component of metabolic syndrome, but it lacks a direct answer to the question posed.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.2,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",20.0,"The transcript primarily addresses myths surrounding HS, such as misconceptions about hygiene, weight, smoking, and demographic factors. It briefly mentions that weight can make HS worse but does not directly address metabolic syndrome or its impact on HS. The question specifically asks about the relationship between metabolic syndrome and HS, which is not covered in the transcript. Therefore, the transcript does not effectively answer the question.",2309.0,What is Metabolic Syndrome?,0.832254648,3494.0,Inflammation | Dr. Jim Januzzi,0.769795716,840.0,Weight Loss Medicine | Yale Medicine Explains,0.767079055
Is there a link between HS and heart disease?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is there a link between hs and heart disease?,Is there a link between HS and heart disease?,Is there a link between HS and heart disease?,No,,,searchable,exact-match,"heart disease,risk factors",,"[{""id"":1960},{""id"":1833},{""id"":1969},{""id"":1835}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.85,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",85.0,"The transcript provides a clear link between HS (Hidradenitis Suppurativa) and heart disease, explaining that HS is associated with metabolic health issues such as diabetes and high blood pressure, which can lead to heart disease over time. The explanation focuses on the role of inflammation in HS and its impact on overall health, including heart disease. However, the transcript could be improved by directly stating the connection between HS and heart disease at the beginning for clarity.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.2,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",20.0,"The transcript does not directly address the question about the link between HS (Hidradenitis Suppurativa) and heart disease. It discusses the concept of a two-hit hypothesis related to genetic predisposition and environmental factors that might trigger HS, but it does not mention heart disease or any connection between the two conditions. The response lacks specific information or studies that would clarify whether there is a link between HS and heart disease.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not address the question about the link between HS (Hidradenitis Suppurativa) and heart disease. It only discusses the genetic predisposition and familial aspects of HS, which is unrelated to the inquiry about heart disease. Therefore, it provides minimal relevant information to answer the question.",1198.0,Six Conditions Associated with Heart Disease,0.818864,2315.0,Heart Health | Behavioral and Biological Relationships to Stress,0.815435708,2312.0,Heart Health | Effects of Acute Stress,0.812529683
Can HS cause anemia?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can hs cause anemia?,Can HS cause anemia?,Can HS cause anemia?,No,,,searchable,no-match,,,"[{""id"":1960},{""id"":1969},{""id"":1979},{""id"":1955}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.2,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",20.0,"The transcript does not directly address whether HS (Hidradenitis Suppurativa) can cause anemia. It discusses the association of HS with other inflammatory diseases and metabolic health issues like diabetes and heart disease, but it does not mention anemia or its potential link to HS. Therefore, the transcript provides very little relevant information to answer the specific question about anemia.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) can cause anemia. It only provides information about the genetic predisposition and familial aspects of HS, which is unrelated to the potential for HS to cause anemia. Therefore, the transcript is largely irrelevant to the question asked.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.05,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",5.0,"The transcript does not address the question of whether HS (Hidradenitis Suppurativa) can cause anemia. Instead, it focuses on dispelling myths about the causes and demographics affected by HS. There is no mention of anemia or any related symptoms in the transcript, making it irrelevant to the question asked.",933.0,HSS Minute | Early Life Low Bone Density,0.772556961,2324.0,HSS Minute | Connection between Type 2 Diabetes and Bone Density,0.755553961,2309.0,What is Metabolic Syndrome?,0.753107727
Is hidradenitis suppurativa an autoimmune disease?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is hidradenitis suppurativa an autoimmune disease?,Is hidradenitis suppurativa an autoimmune disease?,Is Hidradenitis Suppurativa an autoimmune disease?,No,,,searchable,exact-match,,,"[{""id"":1966},{""id"":1887},{""id"":1951},{""id"":1950}]",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.7,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",70.0,"The transcript provides relevant information about Hidradenitis Suppurativa (HS) by describing it as an inflammatory disease involving an overreaction of the immune system. This suggests an immune component, which is relevant to the question about it being an autoimmune disease. However, the transcript does not explicitly state whether HS is classified as an autoimmune disease, which is the specific focus of the question. Therefore, while the transcript is informative, it does not fully answer the question.",4927.0,CON3-CH1-Q3-If it is not an infection why are antibiotics used-Daveluy.mp4,0.2,"If it is not an infection, why are antibiotics used?","I think every patient with HS wonders that at some point, once you figure out that it's not an infection, why are we using antibiotics? And the simple answer is that bacteria still play a role in HS. We've done studies where we look at the bacteria on the skin, inside the actual HS lesions or tunnels or bumps, and on other areas of the body, and we found that the bacteria are different. And so what we think happens is these different bacteria grow on, in, and around HS lesions and your immune system doesn't like those bacteria so it tries to fight them and that causes the inflammation and the changes that you see - the redness, the swelling, the discharge - and that's why it looks like an infection, because your body is sort of trying to fight these bacteria and getting rid of those bacteria can be helpful. So we can use antibiotics. The other part is that antibiotics can sometimes have two effects. So they not only help to kill bacteria, but they can also calm the immune system down. And most of the antibiotics we use in HS have that second effect of reducing inflammation, which is a second benefit for them. For that reason, sometimes I even use antibiotics at a lower dose where they don't affect bacteria and we only see those anti-inflammatory properties, so I'm not even really using them like an antibiotic in that sense.",20.0,"The transcript does not directly address whether Hidradenitis Suppurativa (HS) is an autoimmune disease. Instead, it discusses the role of bacteria in HS and the use of antibiotics, focusing on the inflammatory response and treatment strategies. While it touches on the immune system's involvement, it does not clarify whether HS is classified as an autoimmune condition. Therefore, the transcript provides limited relevant information to answer the specific question.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.2,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",20.0,"The transcript does not directly address whether Hidradenitis Suppurativa (HS) is an autoimmune disease. It focuses on the diagnosis process and symptoms of HS, but does not provide any information about its classification as an autoimmune condition. Therefore, it does not adequately answer the question posed.",1113.0,Alopecia Areata | E9,0.788829505,1101.0,HSS Minute | Whole Lupus Patient,0.766656,125.0,Multiple Sclerosis | Yale Medicine Explains,0.765711725
What other conditions are associated with HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what other conditions are associated with hs?,What other conditions are associated with HS?,What other conditions are associated with HS?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1935},{""id"":1833},{""id"":1969}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.9,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",90.0,"The transcript provides a comprehensive answer to the question by listing several conditions associated with HS, including Crohn's Disease, joint pains, diabetes, high blood pressure, and heart disease. It explains the link between inflammation and these conditions, which is relevant to understanding the associations. However, it could be slightly improved by mentioning other known associations such as polycystic ovary syndrome or depression, which are also commonly linked with HS.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.6,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",60.0,"The transcript partially answers the question by mentioning that people with HS (Hidradenitis Suppurativa) may have other conditions like high blood pressure or diabetes, which are more common in individuals with HS. However, it does not provide a comprehensive list of conditions associated with HS, nor does it focus on the broader spectrum of comorbidities that can be associated with HS. The response is more focused on the implications of HS in the context of pregnancy rather than directly addressing the question about associated conditions.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.2,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",20.0,"The transcript does not directly answer the question about what other conditions are associated with HS (Hidradenitis Suppurativa). Instead, it discusses the two-hit hypothesis related to genetic predisposition and environmental factors like smoking and higher weight that might trigger HS. The transcript lacks specific information about other medical conditions that are commonly associated with HS, such as metabolic syndrome, inflammatory bowel disease, or arthritis, which would be relevant to the question.",1198.0,Six Conditions Associated with Heart Disease,0.7891922,2309.0,What is Metabolic Syndrome?,0.781942666,933.0,HSS Minute | Early Life Low Bone Density,0.780588746
Can obesity make HS worse?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can obesity make hs worse?,Can obesity make HS worse?,Can obesity make HS worse?,No,,,searchable,exact-match,"obesity and weight,complex comorbidities",,"[{""id"":1979},{""id"":1834},{""id"":1833},{""id"":1960}]",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.9,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",90.0,"The transcript effectively addresses the question by stating that while obesity does not cause Hidradenitis Suppurativa (HS), it can make the condition worse. This directly answers the question about whether obesity can exacerbate HS. The transcript also provides additional context about common myths related to HS, which, while informative, is not directly related to the question. However, the key point about obesity worsening HS is clearly communicated, making the response highly relevant to the question.",4853.0,CON1-CH3-Q2-If I lose weight will my HS go away-Garg.mp4,0.85,If I lose weight will my HS go away?,"The question around weight is also one of the more common questions I get. So I'm glad you're asking about it, and there's kind of a lot to think about here. But again, I just want you to understand most importantly, there are many factors involved in addition to higher weight in developing HS. So weight alone is not a reason, or the only reason, one person has this condition. Our studies show that people with higher weight are more likely to have the condition. Our studies also show, however, that losing weight doesn't necessarily mean your HS is simply going to melt away or even get better. Having said that, we also know that patients with HS have lots of other medical conditions that can be worsened or exacerbated by higher weight. So what I try to explain to my HS patients is that having a better, or even ideal body weight, is important for your overall health. It potentially influences how your HS goes. And so it's important in general to consider weight management, but it doesn't necessarily mean that your HS will go away or that you will get it to be cured simply by losing weight.",85.0,"The transcript provides a comprehensive answer to the question by explaining that while obesity is not the sole cause of HS, it can influence the condition. It clarifies that higher weight is associated with a higher likelihood of having HS and that weight management is important for overall health and potentially influences HS. However, it also notes that losing weight does not guarantee improvement or cure of HS. This nuanced explanation addresses the question well, but could be slightly improved by directly stating that obesity can exacerbate HS symptoms, which is implied but not explicitly stated.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.85,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",85.0,"The transcript provides a comprehensive explanation of how obesity might worsen HS (Hidradenitis Suppurativa) by discussing the two-hit hypothesis, which involves genetic predisposition and environmental factors. It specifically mentions that higher weight can contribute to HS due to increased frictional forces in certain areas of the body, which could trigger the condition in genetically predisposed individuals. However, the transcript also notes that the exact mechanisms are not fully understood, which slightly limits the completeness of the answer. Overall, the transcript effectively addresses the question by linking obesity to potential worsening of HS.",3574.0,How does obesity affect your mental health?,0.796749115,3609.0,How does obesity affect your mental health?,0.795093358,3606.0,What other health issues can come from obesity?,0.79496634
Will losing weight help my hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,will losing weight help my hidradenitis suppurativa?,Will losing weight help my hidradenitis suppurativa?,Will losing weight help my Hidradenitis Suppurativa?,No,,,searchable,exact-match,"obesity and weight,condition management",,"[{""id"":1834},{""id"":1873},{""id"":1823},{""id"":1912}]",4853.0,CON1-CH3-Q2-If I lose weight will my HS go away-Garg.mp4,0.85,If I lose weight will my HS go away?,"The question around weight is also one of the more common questions I get. So I'm glad you're asking about it, and there's kind of a lot to think about here. But again, I just want you to understand most importantly, there are many factors involved in addition to higher weight in developing HS. So weight alone is not a reason, or the only reason, one person has this condition. Our studies show that people with higher weight are more likely to have the condition. Our studies also show, however, that losing weight doesn't necessarily mean your HS is simply going to melt away or even get better. Having said that, we also know that patients with HS have lots of other medical conditions that can be worsened or exacerbated by higher weight. So what I try to explain to my HS patients is that having a better, or even ideal body weight, is important for your overall health. It potentially influences how your HS goes. And so it's important in general to consider weight management, but it doesn't necessarily mean that your HS will go away or that you will get it to be cured simply by losing weight.",85.0,"The transcript provides a comprehensive answer to the question about the impact of weight loss on Hidradenitis Suppurativa (HS). It acknowledges that while higher weight is associated with HS, losing weight does not guarantee improvement or resolution of the condition. The response also highlights the importance of weight management for overall health and its potential influence on HS, but clarifies that weight loss alone is not a cure. This nuanced explanation addresses the question well, though it could be slightly improved by providing more specific data or studies to support the claims.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.2,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",20.0,"The transcript does not directly address the question about whether losing weight will help with Hidradenitis Suppurativa (HS). Instead, it discusses the benefits of wearing looser fitting clothing to reduce friction and occlusion, which can exacerbate HS. While weight loss might indirectly relate to reducing friction, the transcript does not make this connection clear or mention weight loss at all. Therefore, it only partially addresses the broader context of managing HS without directly answering the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question about whether losing weight will help with Hidradenitis Suppurativa (HS). Instead, it focuses on sweating as a trigger for HS and suggests ways to manage sweating. While weight loss can potentially reduce sweating, the transcript does not make this connection or discuss weight loss in relation to HS at all. Therefore, it only indirectly touches on a related aspect (sweating) without answering the question about weight loss.",3562.0,Are there weight loss programs should I avoid?,0.775502145,3560.0,Are weight loss programs something I should consider?,0.775364101,3490.0,Support | Dr. Tiffany Lowe Clayton,0.774251759
How much weight do I need to lose to see HS improvement?,searchable,Patient_Forums,Hidradenitis Suppurativa,how much weight do i need to lose to see hs improvement?,How much weight do I need to lose to see HS improvement?,How much weight do I need to lose to see HS improvement?,No,,,searchable,exact-match,"obesity and weight,lifestyle changes,outcomes",,"[{""id"":1834},{""id"":1979},{""id"":1818},{""id"":1981}]",4853.0,CON1-CH3-Q2-If I lose weight will my HS go away-Garg.mp4,0.7,If I lose weight will my HS go away?,"The question around weight is also one of the more common questions I get. So I'm glad you're asking about it, and there's kind of a lot to think about here. But again, I just want you to understand most importantly, there are many factors involved in addition to higher weight in developing HS. So weight alone is not a reason, or the only reason, one person has this condition. Our studies show that people with higher weight are more likely to have the condition. Our studies also show, however, that losing weight doesn't necessarily mean your HS is simply going to melt away or even get better. Having said that, we also know that patients with HS have lots of other medical conditions that can be worsened or exacerbated by higher weight. So what I try to explain to my HS patients is that having a better, or even ideal body weight, is important for your overall health. It potentially influences how your HS goes. And so it's important in general to consider weight management, but it doesn't necessarily mean that your HS will go away or that you will get it to be cured simply by losing weight.",70.0,"The transcript provides a comprehensive answer to the question by explaining that while weight can be a factor in HS, it is not the sole determinant of the condition. It emphasizes that losing weight does not guarantee improvement in HS, but maintaining a healthy weight is beneficial for overall health and may influence HS. However, it does not provide a specific amount of weight loss needed for HS improvement, which is what the question directly asks. Therefore, while informative, it lacks a direct answer to the specific query about the amount of weight loss needed.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.4,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",40.0,"The transcript addresses the misconception that weight causes HS, clarifying that while weight can exacerbate HS, it is not the cause. However, it does not directly answer the question of how much weight loss is needed to see improvement in HS symptoms. The response provides context about myths surrounding HS but lacks specific guidance on weight loss and its impact on HS improvement.",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.2,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",20.0,"The transcript does not directly answer the question about how much weight needs to be lost to see improvement in HS (Hidradenitis Suppurativa). Instead, it discusses the role of diet in managing HS, emphasizing that dietary changes may not be effective for everyone and that diet is not the sole solution. While it touches on the broader topic of lifestyle changes and their potential impact on HS, it fails to provide specific guidance on weight loss and its direct correlation with HS improvement.",3625.0,How can I talk to my child about losing weight?,0.780392468,3519.0,How can I talk to my child about losing weight?,0.77959609,3560.0,Are weight loss programs something I should consider?,0.777288
Can squamous cell carcinoma develop from HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can squamous cell carcinoma develop from hs?,Can squamous cell carcinoma develop from HS?,Can squamous cell carcinoma develop from HS?,No,,,searchable,exact-match,,,"[{""id"":1964},{""id"":1814},{""id"":1969},{""id"":1821}]",5015.0,CON6-Q27-Does HS increase my risk of cancer-Daveluy.mp4,0.85,Does HS increase my risk of cancer?,"I'm glad you asked. We actually have some research that helps answer that question. I don't want to alarm you, but technically your HS does slightly increase your risk of getting skin cancer in the areas where you have HS. Any kind of chronic inflammation in the skin has that risk. So HS is included as it has that chronic inflammation. Why this is important is because the skin cancer most commonly develops in the buttocks or genital region in longstanding severe HS. So if you have bad HS for a long time, that's uncontrolled, that's when it can show up. It's important that it shows up in those areas because sometimes it's easier to just show your armpits or your chest at your visit and not show your dermatologist all the areas that your HS involves. But it's really important that you're having your dermatologist check all the areas at least once a year to make sure that there's nothing that looks like it could be skin cancer developing in those spots. It's really tricky because here's how skin cancer looks, an area of the skin that bleeds and won't heal well. And that's just how HS looks, so it can be really hard to distinguish them, and that's why it's important that you're allowing your dermatologist to examine those areas at least once a year, if not every visit, so we can make sure we're not missing that skin cancer. And like I said, don't freak out. It's not a huge elevated risk, but the risk is there, and it's important that you have those areas examined.",85.0,"The transcript provides a comprehensive answer to the question by explaining that hidradenitis suppurativa (HS) can increase the risk of skin cancer, including squamous cell carcinoma, due to chronic inflammation. It specifies that the risk is higher in areas with severe, longstanding HS, such as the buttocks or genital region. The transcript also emphasizes the importance of regular dermatological examinations to monitor for potential skin cancer. However, it does not explicitly mention 'squamous cell carcinoma' by name, which slightly reduces the specificity of the answer.",4824.0,CON1-CH1-Q4-Can HS go into remission-Garg.mp4,0.1,Can HS go into remission?,"We come across patients who have had the disease for a number of years with a fair amount of activity and then over time it just becomes less and less active to the point where some people just have some residual scarring but no active boils or even tunnels. And so yes, we do believe that this condition can go into remission - how and when it happens, we're just not sure yet.",10.0,"The transcript does not directly address the question about whether squamous cell carcinoma can develop from HS (Hidradenitis Suppurativa). Instead, it discusses the potential for HS to go into remission, which is unrelated to the development of squamous cell carcinoma. Therefore, the transcript provides little relevant information to answer the question.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not address the question about the potential for squamous cell carcinoma to develop from HS (Hidradenitis Suppurativa). Instead, it provides information about the genetic predisposition and familial aspects of HS, which is unrelated to the question asked. Therefore, the transcript is largely irrelevant to the question, resulting in a low score.",4592.0,What Is Non-Small Cell Lung Cancer?,0.768015862,4503.0,Tips From The Pathologist,0.763802588,4732.0,Is There a Cure?,0.760472536
What is the cancer risk with long-term HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what is the cancer risk with long-term hs?,What is the cancer risk with long-term HS?,What is the cancer risk with long-term HS?,No,,,searchable,exact-match,,,"[{""id"":1964},{""id"":1969},{""id"":1960},{""id"":1904}]",5015.0,CON6-Q27-Does HS increase my risk of cancer-Daveluy.mp4,0.9,Does HS increase my risk of cancer?,"I'm glad you asked. We actually have some research that helps answer that question. I don't want to alarm you, but technically your HS does slightly increase your risk of getting skin cancer in the areas where you have HS. Any kind of chronic inflammation in the skin has that risk. So HS is included as it has that chronic inflammation. Why this is important is because the skin cancer most commonly develops in the buttocks or genital region in longstanding severe HS. So if you have bad HS for a long time, that's uncontrolled, that's when it can show up. It's important that it shows up in those areas because sometimes it's easier to just show your armpits or your chest at your visit and not show your dermatologist all the areas that your HS involves. But it's really important that you're having your dermatologist check all the areas at least once a year to make sure that there's nothing that looks like it could be skin cancer developing in those spots. It's really tricky because here's how skin cancer looks, an area of the skin that bleeds and won't heal well. And that's just how HS looks, so it can be really hard to distinguish them, and that's why it's important that you're allowing your dermatologist to examine those areas at least once a year, if not every visit, so we can make sure we're not missing that skin cancer. And like I said, don't freak out. It's not a huge elevated risk, but the risk is there, and it's important that you have those areas examined.",90.0,"The transcript provides a comprehensive answer to the question about the cancer risk associated with long-term HS (Hidradenitis Suppurativa). It explains that there is a slight increase in the risk of skin cancer in areas affected by HS due to chronic inflammation. The transcript also specifies that the risk is more pronounced in severe, longstanding cases, particularly in the buttocks or genital region. It emphasizes the importance of regular dermatological examinations to monitor for potential skin cancer, given the difficulty in distinguishing between HS lesions and skin cancer. The response is detailed and informative, addressing the question directly and providing practical advice. However, it could be slightly improved by specifying the type of skin cancer most commonly associated with HS, such as squamous cell carcinoma, for a more complete answer.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not address the question about the cancer risk associated with long-term HS (Hidradenitis Suppurativa). Instead, it provides information about the genetic predisposition and familial aspects of HS, which is unrelated to the cancer risk inquiry. Therefore, the transcript is largely irrelevant to the question asked.",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.1,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",10.0,"The transcript does not address the specific question about the cancer risk associated with long-term HS (Hidradenitis Suppurativa). Instead, it discusses the association of HS with other inflammatory diseases, joint pain, and metabolic health issues like diabetes and heart disease. There is no mention of cancer risk, which is the focus of the question.",4533.0,What Will My Treatment Be Like?,0.784664452,933.0,HSS Minute | Early Life Low Bone Density,0.775658607,934.0,HSS Minute | Osteoporosis Risk Factors,0.775407255
Can HS cause lymphedema?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can hs cause lymphedema?,Can HS cause lymphedema?,Can HS cause lymphedema?,No,,,searchable,no-match,,,"[{""id"":1958},{""id"":1904},{""id"":1833},{""id"":1951}]",5017.0,CON6-Q18-What are the main signs and symptoms of HS-Garg.mp4,0.2,What are the main signs and symptoms of HS?,"Typically in HS, patients will note nodules and abscesses, which some people refer to as boils, along with tunnels, which are these hollow structures embedded within the skin that may leak or drain pus or fluid. Symptoms that those lesions cause typically are pain and leakage or drainage.",20.0,"The transcript describes the symptoms of Hidradenitis Suppurativa (HS), such as nodules, abscesses, and tunnels, but it does not address whether HS can cause lymphedema. The answer lacks any direct information about the relationship between HS and lymphedema, making it largely unhelpful in answering the question.",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.1,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",10.0,"The transcript does not address the question of whether HS can cause lymphedema. It focuses on the risks associated with HS surgery, such as infection, scarring, and contractures, but does not mention lymphedema or its relation to HS. Therefore, it does not provide an answer to the question posed.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.1,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",10.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) can cause lymphedema. It discusses the two-hit hypothesis related to genetic predisposition and environmental factors in triggering HS, but does not mention lymphedema or its relationship to HS. Therefore, it does not provide a relevant answer to the question posed.",3774.0,Surgical Intervention for Severe CVI | The SAVVE Trial at Yale,0.747750878,1093.0,Breast Cancer | Feeling Empowered,0.741529047,4533.0,What Will My Treatment Be Like?,0.740395725
Is sepsis a risk with hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is sepsis a risk with hidradenitis suppurativa?,Is sepsis a risk with hidradenitis suppurativa?,Is sepsis a risk with Hidradenitis Suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1957},{""id"":1950},{""id"":1904},{""id"":1887}]",5020.0,CON6-Q17-What can testing of fluid and puss tell us-Garg.mp4,0.3,What can testing of fluid and puss tell me?,"In some cases, your doctor may want to test your fluid and pus for bacteria, and without doubt, there're going to be bacteria present. It doesn't mean that there is a true infection that's driving the disease. Remember, we think about HS really as an inflammatory disease. We know there's a microbiome associated with the disease, and so it wouldn't be surprising to find bacteria there.",30.0,"The transcript does not directly address the question of whether sepsis is a risk with Hidradenitis Suppurativa (HS). It discusses the presence of bacteria in HS lesions and emphasizes that HS is primarily an inflammatory disease, but it does not mention sepsis or the risk of systemic infection. The information provided is relevant to understanding the nature of HS but does not answer the specific question about sepsis risk.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address the question of whether sepsis is a risk associated with Hidradenitis Suppurativa. It discusses the lack of awareness and potential for misdiagnosis of HS, but does not mention sepsis or any risks related to HS. Therefore, it provides very little relevant information to answer the specific question posed.",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.2,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",20.0,"The transcript does not directly address the question of whether sepsis is a risk with Hidradenitis Suppurativa (HS). It discusses general surgical risks associated with HS surgery, such as infection, scarring, and contracture, but does not mention sepsis specifically. The focus is more on post-surgical infections and complications rather than systemic infections like sepsis. Therefore, the transcript provides very limited information relevant to the question asked.",3645.0,Signs of Infection,0.759449899,2321.0,Health Conditions Impacted by the Microbiome,0.756886482,3494.0,Inflammation | Dr. Jim Januzzi,0.751464903
Can HS cause joint pain?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs cause joint pain?,Can HS cause joint pain?,Can HS cause joint pain?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1874},{""id"":1850},{""id"":1926}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.85,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",85.0,"The transcript provides a direct answer to the question by confirming that HS (Hidradenitis Suppurativa) can cause joint pain due to systemic inflammation. It explains that while joint pain in HS patients doesn't necessarily mean arthritis, the inflammation associated with HS can affect the joints. The transcript also discusses the broader implications of inflammation in HS, such as metabolic health issues, which adds context but is not directly related to the question about joint pain. Overall, the answer is clear and relevant, but the additional information slightly dilutes the focus on joint pain specifically.",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.7,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",70.0,"The transcript addresses the question indirectly by discussing pain management in HS, emphasizing the role of inflammation in causing pain. However, it does not explicitly confirm that HS can cause joint pain, nor does it specifically mention joint pain as a symptom of HS. The focus is more on general pain management strategies rather than directly answering whether HS can cause joint pain.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.2,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",20.0,"The transcript discusses the painful nature of HS (Hidradenitis Suppurativa) but does not specifically address whether HS can cause joint pain. It focuses on the general pain associated with the skin condition, which is relevant but not directly answering the question about joint pain. Therefore, the response is not very informative regarding the specific inquiry about joint pain.",938.0,Osteoarthritis Treatment,0.788225293,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.785152078,909.0,Osteoarthritis | When to See Your Doctor,0.78408
Is arthritis related to hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is arthritis related to hidradenitis suppurativa?,Is arthritis related to hidradenitis suppurativa?,Is arthritis related to hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1960},{""id"":1950},{""id"":1953},{""id"":1850}]",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.6,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",60.0,"The transcript provides some relevant information by discussing the association of hidradenitis suppurativa (HS) with inflammatory diseases and joint pain, suggesting a possible link to arthritis-like symptoms. However, it does not directly address whether arthritis itself is related to HS. The focus is more on general inflammation and metabolic health rather than a specific connection to arthritis.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address the relationship between arthritis and hidradenitis suppurativa. It discusses the general lack of awareness and misdiagnosis issues related to hidradenitis suppurativa but does not provide any information on whether there is a connection between arthritis and hidradenitis suppurativa. Therefore, it does not effectively answer the question posed.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.2,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",20.0,"The transcript discusses the relationship between acne and hidradenitis suppurativa (HS), but it does not address arthritis or its relation to HS. The question specifically asks about the connection between arthritis and HS, which is not covered in the provided transcript. Therefore, the transcript does not effectively answer the question.",908.0,Osteoarthritis | Diet and Nutrition,0.76405,909.0,Osteoarthritis | When to See Your Doctor,0.763021469,938.0,Osteoarthritis Treatment,0.759112597
What should I avoid eating with HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what should i avoid eating with hs?,What should I avoid eating with HS?,What should I avoid eating with HS?,No,,,searchable,loose-match,,,"[{""id"":1818},{""id"":1823},{""id"":1819},{""id"":1861}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.3,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",30.0,"The transcript provides a general perspective on the role of diet in managing HS (Hidradenitis Suppurativa), emphasizing that dietary triggers can vary among individuals and may not be significant for everyone. However, it does not directly answer the question of what specific foods should be avoided with HS. The response lacks specific guidance or examples of foods that might be problematic for individuals with HS, such as dairy, high glycemic index foods, or nightshades, which are commonly discussed in relation to HS dietary management.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about dietary restrictions or foods to avoid with HS (Hidradenitis Suppurativa). Instead, it focuses on sweating as a trigger for HS and provides advice on managing sweat, which is unrelated to dietary considerations.",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.05,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",5.0,"The transcript does not address the question about dietary restrictions for HS at all. It focuses entirely on exercise and its impact on HS, without mentioning any foods or dietary considerations that should be avoided. Therefore, it does not answer the question about what to avoid eating with HS.",3612.0,What foods should I eat or avoid?,0.772141576,3565.0,What foods should I eat or avoid?,0.771051586,1117.0,Six Ways to Improve Your Diabetes Control,0.759837568
Can dairy make hidradenitis suppurativa worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can dairy make hidradenitis suppurativa worse?,Can dairy make hidradenitis suppurativa worse?,Can dairy make hidradenitis suppurativa worse?,No,,,searchable,no-match,,,"[{""id"":1860},{""id"":1950},{""id"":1861},{""id"":1823}]",4899.0,CON2-CH3-Q2-Will makeup used to cover the sores make them worse-Daveluy.mp4,0.2,Will makeup used to cover my sores make them worse?,"Some of my patients do report that they use makeup to cover up their scars and their sores of their HS, particularly if they're going to a special event like a wedding where they want to wear a sleeveless dress. We don't have any evidence that shows makeup makes it better or worse. So, it's a little bit of a case-by-case scenario. What I usually recommend to my patients is try the makeup out ahead of time. So, if you're going to a wedding and wearing a special dress, don't let that day be the first time you try it. Maybe a couple of weeks ahead of time, test it out and see how your body reacts, see if it bothers your HS or if it doesn't bother it. And as long as it doesn't cause it to flare up and you don't notice it making it worse, then it should be perfectly safe to use it. But there's a lot of things in HS where they're unpredictable. We don't know which medications are going to work great or not really work so well. We don't know which things are going to be perfect for someone or not. Same thing with diet, with medication. So, a lot of things in HS you have to sort of figure out and get to know your HS and what's going to be good for it, and what might flare it up. So, like I said, my idea is to just prepare ahead of time.",20.0,"The transcript does not directly address the question about dairy and hidradenitis suppurativa (HS). It discusses makeup and general unpredictability in HS triggers, including diet, but does not specifically mention dairy or its effects on HS. The response is tangentially related in that it acknowledges diet can be a factor, but it lacks specific information or evidence regarding dairy's impact on HS.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether dairy can make hidradenitis suppurativa worse. Instead, it discusses the general lack of awareness and misdiagnosis issues related to hidradenitis suppurativa. There is no mention of dietary factors or dairy specifically in relation to the condition.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.1,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",10.0,"The transcript does not address the question about dairy and hidradenitis suppurativa (HS) at all. Instead, it discusses skincare products and deodorants, which are unrelated to the dietary concern raised in the question. Therefore, the transcript provides no relevant information to answer the question about the impact of dairy on HS.",3494.0,Inflammation | Dr. Jim Januzzi,0.740671694,2321.0,Health Conditions Impacted by the Microbiome,0.737930596,833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.731048942
Does sugar trigger HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,does sugar trigger hs flares?,Does sugar trigger HS flares?,Does sugar trigger HS flares?,No,,,searchable,loose-match,,,"[{""id"":1818},{""id"":1877},{""id"":1838},{""id"":1861}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.4,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",40.0,"The transcript provides a general discussion about the role of diet in managing HS (Hidradenitis Suppurativa) but does not specifically address whether sugar triggers HS flares. It emphasizes that dietary triggers can vary among individuals and that diet may not be a significant factor for everyone with HS. However, it does not directly answer the question about sugar's role in triggering HS flares, which limits its relevance to the specific inquiry.",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.2,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",20.0,"The transcript does not directly address whether sugar triggers HS flares. It discusses the general occurrence and management of HS flares, including treatment options, but does not mention dietary factors or sugar specifically. Therefore, it provides little relevant information to answer the question about sugar's role in triggering HS flares.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.1,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",10.0,"The transcript does not address the question about whether sugar triggers HS flares. Instead, it discusses the relationship between stress and HS, which is unrelated to the specific inquiry about sugar. Therefore, the transcript provides no relevant information to answer the question.",1080.0,"Glucose & Glue Sticks | The Diabetes Craft Show | E2 
Diabetes Supply Box",0.760513306,1077.0,"Healthy Habits | E2 
Reducing Low Blood Sugar",0.757640243,2309.0,What is Metabolic Syndrome?,0.754997373
Should I avoid gluten if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i avoid gluten if i have hs?,Should I avoid gluten if I have HS?,Should I avoid gluten if I have HS?,No,,,searchable,exact-match,,,"[{""id"":1818},{""id"":1960},{""id"":1969},{""id"":1926}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.6,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",60.0,"The transcript provides a general perspective on the role of diet in managing HS (Hidradenitis Suppurativa), suggesting that dietary changes can be beneficial for some individuals but not necessarily for everyone. However, it does not specifically address whether gluten should be avoided, which is the direct question asked. The response encourages exploring dietary triggers but lacks specific guidance on gluten, resulting in a moderate score.",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.2,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",20.0,"The transcript does not directly address whether someone with HS (Hidradenitis Suppurativa) should avoid gluten. It discusses the association of HS with other inflammatory diseases and metabolic health issues, but it does not mention gluten or dietary recommendations. Therefore, it provides very little relevant information to answer the specific question about gluten avoidance.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not address the question about whether gluten should be avoided in the context of HS (Hidradenitis Suppurativa). It only provides general information about the genetic predisposition of HS, which is unrelated to dietary considerations or gluten specifically.",2321.0,Health Conditions Impacted by the Microbiome,0.74879849,1077.0,"Healthy Habits | E2 
Reducing Low Blood Sugar",0.745789766,933.0,HSS Minute | Early Life Low Bone Density,0.745726585
Can nightshade vegetables make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can nightshade vegetables make hs worse?,Can nightshade vegetables make HS worse?,Can nightshade vegetables make HS worse?,No,,,searchable,loose-match,,,"[{""id"":1818},{""id"":1925},{""id"":1860},{""id"":1861}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.4,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",40.0,"The transcript provides a general discussion about the role of diet in managing HS (Hidradenitis Suppurativa), emphasizing that dietary triggers can vary from person to person. However, it does not specifically address whether nightshade vegetables can make HS worse. The response lacks direct information about nightshade vegetables and their potential impact on HS, which is the focus of the question. Therefore, while it touches on the broader topic of diet and HS, it does not adequately answer the specific question posed.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.2,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",20.0,"The transcript does not directly address the question about nightshade vegetables and their impact on HS (Hidradenitis Suppurativa). It discusses the general idea of patients searching for natural remedies and suggests discussing these with a care provider, but it does not specifically mention nightshade vegetables or provide any information on whether they can make HS worse. The response is too general and lacks specificity related to the question.",4899.0,CON2-CH3-Q2-Will makeup used to cover the sores make them worse-Daveluy.mp4,0.05,Will makeup used to cover my sores make them worse?,"Some of my patients do report that they use makeup to cover up their scars and their sores of their HS, particularly if they're going to a special event like a wedding where they want to wear a sleeveless dress. We don't have any evidence that shows makeup makes it better or worse. So, it's a little bit of a case-by-case scenario. What I usually recommend to my patients is try the makeup out ahead of time. So, if you're going to a wedding and wearing a special dress, don't let that day be the first time you try it. Maybe a couple of weeks ahead of time, test it out and see how your body reacts, see if it bothers your HS or if it doesn't bother it. And as long as it doesn't cause it to flare up and you don't notice it making it worse, then it should be perfectly safe to use it. But there's a lot of things in HS where they're unpredictable. We don't know which medications are going to work great or not really work so well. We don't know which things are going to be perfect for someone or not. Same thing with diet, with medication. So, a lot of things in HS you have to sort of figure out and get to know your HS and what's going to be good for it, and what might flare it up. So, like I said, my idea is to just prepare ahead of time.",5.0,"The transcript does not address the question about nightshade vegetables and their impact on HS (Hidradenitis Suppurativa) at all. Instead, it discusses the use of makeup in relation to HS, which is unrelated to the dietary aspect of the question. Therefore, the transcript does not provide any relevant information or answer to the question posed.",1117.0,Six Ways to Improve Your Diabetes Control,0.740209401,1996.0,What to Eat and What Not to Eat,0.734201,908.0,Osteoarthritis | Diet and Nutrition,0.731827
Does alcohol affect hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,does alcohol affect hidradenitis suppurativa?,Does alcohol affect hidradenitis suppurativa?,Does alcohol affect Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1950},{""id"":1885},{""id"":1861},{""id"":1919}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether alcohol affects Hidradenitis Suppurativa. Instead, it discusses the general lack of awareness and common misdiagnoses associated with the condition. There is no mention of alcohol or its effects on Hidradenitis Suppurativa in the transcript.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.1,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",10.0,"The transcript does not address the question about the effect of alcohol on Hidradenitis Suppurativa (HS) at all. Instead, it discusses misconceptions about HS being an infection, the role of the microbiome, and the use of antibiotics like doxycycline to treat inflammation in HS. There is no mention of alcohol or its potential effects on HS, making the transcript largely irrelevant to the question posed.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.05,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",5.0,"The transcript does not address the question about the effect of alcohol on Hidradenitis Suppurativa (HS) at all. Instead, it discusses the potential impact of skincare products like deodorants on HS, which is unrelated to the inquiry about alcohol. Therefore, the response is almost entirely irrelevant to the question posed.",2301.0,Alcohol and the Microbiome,0.777748108,2321.0,Health Conditions Impacted by the Microbiome,0.744536102,351.0,Alcohol & Drug Addiction: Part 2,0.737995327
Should I cut out brewer's yeast if I have HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,should i cut out brewer's yeast if i have hs?,Should I cut out brewer's yeast if I have HS?,Should I cut out brewer's yeast if I have HS?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Can caffeine trigger HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,can caffeine trigger hs flares?,Can caffeine trigger HS flares?,Can caffeine trigger HS flares?,No,,,searchable,no-match,,,"[{""id"":1838},{""id"":1823},{""id"":1861},{""id"":1817}]",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.1,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",10.0,"The transcript does not address the question about caffeine triggering HS flares. It focuses on the relationship between stress and HS flares, which is unrelated to the specific inquiry about caffeine. Therefore, it does not provide any relevant information or answer to the question posed.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about caffeine triggering HS flares at all. Instead, it focuses on sweating as a trigger for HS and discusses strategies to manage sweating. There is no mention of caffeine or its potential effects on HS, making the transcript largely irrelevant to the question asked.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.05,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",5.0,"The transcript does not address the question about caffeine and its potential to trigger HS (Hidradenitis Suppurativa) flares. Instead, it discusses skincare products, specifically deodorants and antiperspirants, and their possible association with HS flares. There is no mention of caffeine or its effects, making the transcript largely irrelevant to the question asked.",1020.0,Herniated Disc | Treating Flare-ups,0.746299,1672.0,Migraine | Neurology,0.730528176,4299.0,Anxious Fluctuators,0.729048848
What is the HS elimination diet?,searchable,Patient_Forums,Hidradenitis Suppurativa,what is the hs elimination diet?,What is the HS elimination diet?,What is the HS elimination diet?,No,,,searchable,no-match,,,"[{""id"":1818},{""id"":1948},{""id"":1844},{""id"":1944}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.2,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",20.0,"The transcript does not directly answer the question about what the HS elimination diet is. Instead, it provides general advice on the role of diet in managing HS (Hidradenitis Suppurativa), emphasizing that dietary triggers can vary among individuals and that diet may not be a significant factor for everyone. The transcript lacks specific information about what the HS elimination diet entails, such as which foods are typically eliminated or the purpose of the diet. Therefore, it only partially addresses the broader context of diet in HS management without answering the specific question.",5000.0,CON6-Q4-What are the most effective treatments-Garg.mp4,0.1,What are the most effective treatments?,"This is the million dollar question for everybody with this condition. And what I would say in general, the most effective treatment strategy is the one that works for you. But you have to work with your doctor in figuring out what that is. There are your traditional and basic treatments, which in general we feel like don't truly modify disease activity. Those sometimes are pretty good at controlling the symptoms that you have, to the most advanced treatments that we have today, which are these targeted treatments, which really isolate and target a specific inflammatory pathway that we know is involved in HS. And in general, the data suggests that those are probably the most effective treatments we have today.",10.0,"The transcript does not address the question about the HS elimination diet at all. Instead, it discusses general treatment strategies for a condition, likely Hidradenitis Suppurativa (HS), but does not mention dietary approaches or elimination diets specifically. Therefore, it does not provide any relevant information to answer the question.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.05,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",5.0,"The transcript does not address the question about the HS elimination diet at all. It discusses research and treatment development for HS, but does not mention dietary approaches or elimination diets. Therefore, it is not relevant to the question asked.",2309.0,What is Metabolic Syndrome?,0.755088925,1996.0,What to Eat and What Not to Eat,0.750923157,1077.0,"Healthy Habits | E2 
Reducing Low Blood Sugar",0.750075161
Should I try an anti-inflammatory diet for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,should i try an anti-inflammatory diet for hs?,Should I try an anti-inflammatory diet for HS?,Should I try an anti-inflammatory diet for HS?,No,,,searchable,exact-match,,,"[{""id"":1818},{""id"":1960},{""id"":1948},{""id"":1844}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.75,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",75.0,"The transcript provides a balanced view on the role of diet in managing HS (Hidradenitis Suppurativa). It acknowledges that diet can be a factor for some individuals but not for others, which is a realistic perspective. It advises exploring dietary triggers and making healthy dietary changes, but also cautions against relying solely on diet as a solution. This directly addresses the question of whether one should try an anti-inflammatory diet by suggesting exploration but not over-reliance. However, it does not specifically mention 'anti-inflammatory diet,' which could have provided a more direct answer to the question.",5009.0,CON6-Q20-Is HS linked to other medical conditions-Okoye.mp4,0.4,Is HS linked to other medical conditions?,"HS is definitely associated with other types of inflammatory diseases. So for example, Crohn's Disease is more common in patients with HS than in patients without HS. Some patients with HS will have joint pains. It doesn't mean you have arthritis per se, but the inflammation that's all over your body can be affecting the joints as well. And if you treat the inflammation of the HS, the joints can get better. But more importantly, we are most concerned about our patients, what's called metabolic health. So when patients have HS, they're much more likely to develop diabetes, high blood pressure, and eventually heart disease over time. And so it still comes back to the inflammation. If you treat the inflammation, we're actually going to decrease the chances of those other conditions happening.",40.0,"The transcript provides background information on the inflammatory nature of HS and its association with other inflammatory diseases and metabolic health issues. However, it does not directly address whether an anti-inflammatory diet should be tried for HS. The transcript lacks specific guidance or recommendations regarding dietary interventions, which is the core of the question. Therefore, while it provides relevant context, it does not adequately answer the question about trying an anti-inflammatory diet for HS.",5000.0,CON6-Q4-What are the most effective treatments-Garg.mp4,0.3,What are the most effective treatments?,"This is the million dollar question for everybody with this condition. And what I would say in general, the most effective treatment strategy is the one that works for you. But you have to work with your doctor in figuring out what that is. There are your traditional and basic treatments, which in general we feel like don't truly modify disease activity. Those sometimes are pretty good at controlling the symptoms that you have, to the most advanced treatments that we have today, which are these targeted treatments, which really isolate and target a specific inflammatory pathway that we know is involved in HS. And in general, the data suggests that those are probably the most effective treatments we have today.",30.0,"The transcript does not directly address the question about trying an anti-inflammatory diet for HS (Hidradenitis Suppurativa). Instead, it discusses general treatment strategies, emphasizing the importance of working with a doctor to find an effective treatment. It mentions traditional treatments and advanced targeted treatments but does not mention dietary interventions or provide guidance on whether an anti-inflammatory diet might be beneficial. Therefore, the response is not very helpful in answering the specific question about diet.",908.0,Osteoarthritis | Diet and Nutrition,0.809176445,938.0,Osteoarthritis Treatment,0.767997146,1996.0,What to Eat and What Not to Eat,0.763047099
Can the Mediterranean diet help hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can the mediterranean diet help hidradenitis suppurativa?,Can the Mediterranean diet help hidradenitis suppurativa?,Can the Mediterranean diet help hidradenitis suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1818},{""id"":1885},{""id"":1950},{""id"":1919}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.4,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",40.0,"The transcript provides a general discussion about the role of diet in managing hidradenitis suppurativa (HS), emphasizing that dietary triggers can vary among individuals and that diet may not be a significant factor for everyone. However, it does not specifically address the Mediterranean diet or its potential impact on HS. The response is relevant in the context of diet and HS but lacks specific information about the Mediterranean diet, which was the focus of the question. Therefore, the answer is only partially relevant and does not directly address the question asked.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.2,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",20.0,"The transcript does not directly address the question about the Mediterranean diet's impact on hidradenitis suppurativa (HS). Instead, it focuses on the misconception of HS as an infection, the role of the microbiome, and the use of antibiotics like doxycycline to manage inflammation. There is no mention of dietary interventions or the Mediterranean diet specifically, which makes the transcript largely irrelevant to the question posed.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether the Mediterranean diet can help with hidradenitis suppurativa. Instead, it discusses the general lack of awareness and challenges in diagnosing the condition. There is no mention of dietary interventions or the Mediterranean diet specifically.",908.0,Osteoarthritis | Diet and Nutrition,0.758392513,3631.0,Prostate Cancer and Diet,0.757546186,842.0,Bariatric Surgery | Yale Medicine Explains,0.756127834
Should I take vitamin D for HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,should i take vitamin d for hs?,Should I take vitamin D for HS?,Should I take vitamin D for HS?,No,,,searchable,exact-match,,,"[{""id"":1923},{""id"":1925},{""id"":1924},{""id"":1818}]",4970.0,CON3-CH6-Q2-Can vitamin D help my HS-Okoye.mp4,0.85,Can vitamin D help my HS?,"We're not sure why vitamin D might help patients with HS, but what we do know from research is that when we test patients with HS for their vitamin D levels, they tend to be low. And so please ask your care providers to check your vitamin D level. If it's low, you should be on a vitamin D supplement. The recommended dose is about 2000 units per day, and you can get that over the counter.",85.0,"The transcript provides a well-rounded answer to the question about taking vitamin D for HS (Hidradenitis Suppurativa). It explains that patients with HS often have low vitamin D levels and suggests checking these levels with a healthcare provider. If levels are low, it recommends taking a vitamin D supplement, specifying a dose of 2000 units per day. However, it does not explicitly state whether vitamin D is directly beneficial for HS symptoms, which slightly limits the completeness of the answer.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.3,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",30.0,"The transcript does not directly address whether vitamin D should be taken for HS (Hidradenitis Suppurativa). It provides general advice on considering natural remedies and discussing them with a healthcare provider, but it does not specifically mention vitamin D or its effects on HS. Therefore, the answer is not directly relevant to the question asked.",4972.0,CON3-CH6-Q3-Can zinc help my HS-Okoye.mp4,0.1,Can zinc help my HS?,"Zinc is a really interesting nutrient. It's not actually in a lot of foods and your body doesn't store it well, but we know that zinc is really important for repair of the skin and perhaps that's one of the reasons it's helpful in HS. We don't really know for sure, but zinc gluconate was the specific type of zinc that was studied in patients with HS, and it seemed to help some patients. Some of my patients will use zinc in addition to other HS treatments. I don't think it works very well on its own, but I think it can be helpful as an add-on to your other medications.",10.0,"The transcript does not address the question about taking vitamin D for HS (Hidradenitis Suppurativa) at all. Instead, it discusses the potential benefits of zinc, specifically zinc gluconate, for HS. There is no mention of vitamin D or its effects on HS, making the transcript largely irrelevant to the question posed.",3563.0,Are multivitamins something I should consider?,0.769755363,933.0,HSS Minute | Early Life Low Bone Density,0.761395276,3546.0,Are multivitamins something I should consider?,0.755107045
Can zinc supplements help with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can zinc supplements help with hidradenitis suppurativa?,Can zinc supplements help with hidradenitis suppurativa?,Can zinc supplements help with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1924},{""id"":1885},{""id"":1857},{""id"":1950}]",4972.0,CON3-CH6-Q3-Can zinc help my HS-Okoye.mp4,0.85,Can zinc help my HS?,"Zinc is a really interesting nutrient. It's not actually in a lot of foods and your body doesn't store it well, but we know that zinc is really important for repair of the skin and perhaps that's one of the reasons it's helpful in HS. We don't really know for sure, but zinc gluconate was the specific type of zinc that was studied in patients with HS, and it seemed to help some patients. Some of my patients will use zinc in addition to other HS treatments. I don't think it works very well on its own, but I think it can be helpful as an add-on to your other medications.",85.0,"The transcript provides a relevant and informative answer to the question about zinc supplements and Hidradenitis Suppurativa (HS). It explains the role of zinc in skin repair and mentions that zinc gluconate has been studied in HS patients, showing some benefit. It also advises that zinc may be helpful as an adjunct to other treatments, although not very effective on its own. The answer is well-rounded but lacks specific study details or statistical outcomes, which could enhance the response further.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.2,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",20.0,"The transcript does not directly address the question about zinc supplements and their potential effect on Hidradenitis Suppurativa (HS). Instead, it discusses the nature of HS, its relation to microbiome, and the use of antibiotics like doxycycline to manage inflammation. There is no mention of zinc or its role in treating HS, making the transcript largely irrelevant to the question posed.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.2,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",20.0,"The transcript does not directly address the question about zinc supplements helping with Hidradenitis Suppurativa (HS). It mentions zinc in the context of zinc ion in dandruff shampoos as an antibacterial and anti-inflammatory wash, but it does not discuss zinc supplements or their potential benefits for HS. The focus of the transcript is primarily on managing odor associated with HS using various washes and treatments, not on the role of zinc supplements in treating the condition.",2321.0,Health Conditions Impacted by the Microbiome,0.738149881,3490.0,Support | Dr. Tiffany Lowe Clayton,0.737551808,3563.0,Are multivitamins something I should consider?,0.735900939
Do probiotics help with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,do probiotics help with hs?,Do probiotics help with HS?,Do probiotics help with HS?,No,,,searchable,exact-match,,,"[{""id"":1921},{""id"":1885},{""id"":1818},{""id"":1887}]",4968.0,CON3-CH5-Q5-Do probiotics help with HS-Daveluy.mp4,1.0,Do probiotics help with HS?,"So far we don't have any studies of probiotics in HS. I think it's an interesting topic and a lot of patients now are interested in probiotics. Antibiotics fight bacteria, but they can throw off your gut bacteria because they're going through your GI system versus probiotics can help to balance things out. The tricky thing with probiotics is that you're basically introducing healthy bacteria into your system, and there's a lot of different bacteria, so you might notice all these different confusing needs on probiotics and that's the actual strains of bacteria that they contain. And when it comes to seeing if a probiotic is helpful for a disease, it varies based on what strains are in there. So often we find there's certain bacteria that are good for certain diseases and we have some of that evidence for some of our disease - acne or maybe psoriasis or eczema. We aren't there quite yet with HS, but I'm hopeful in the future maybe we will discover certain probiotics and certain strains of bacteria that are really helpful for HS. ",70.0,"The transcript provides a detailed explanation about the current state of research on probiotics in relation to HS (Hidradenitis Suppurativa). It clearly states that there are no studies yet on probiotics specifically for HS, which directly answers the question. Additionally, it explains the general role of probiotics and mentions that while there is evidence for their use in other conditions, such as acne or psoriasis, this evidence does not yet extend to HS. The transcript also expresses hope for future discoveries, which adds context but does not provide a definitive answer. The response is informative and relevant, but the lack of direct evidence or studies on HS limits the completeness of the answer.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.3,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",30.0,"The transcript does not directly address whether probiotics help with HS (Hidradenitis Suppurativa). It focuses on explaining that HS is not an infection and discusses the role of antibiotics, particularly doxycycline, in treating inflammation associated with HS. While it mentions the microbiome, it does not provide any information on the role of probiotics or their effectiveness in managing HS. Therefore, the transcript only indirectly relates to the question by discussing the microbiome, but it does not answer the question about probiotics.",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.2,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",20.0,"The transcript does not directly address the question about probiotics and their effect on HS (Hidradenitis Suppurativa). Instead, it discusses the general role of diet in managing HS, emphasizing that dietary triggers can vary among individuals and that diet may not be a significant factor for everyone. There is no mention of probiotics specifically, so the transcript provides little relevant information to answer the question.",2318.0,Difference Between Prebiotics and Probiotics,0.795087934,2321.0,Health Conditions Impacted by the Microbiome,0.78783071,2327.0,When to See a Dietitian for Your Microbiome,0.785780609
Can turmeric supplements reduce HS inflammation?,searchable,Patient_Forums,Hidradenitis Suppurativa,can turmeric supplements reduce hs inflammation?,Can turmeric supplements reduce HS inflammation?,Can turmeric supplements reduce HS inflammation?,No,,,searchable,exact-match,alternative therapies,,"[{""id"":1922},{""id"":1948},{""id"":1926},{""id"":1844}]",4974.0,CON3-CH6-Q1-Can tumeric help my HS-Okoye.mp4,0.6,Can turmeric help my HS?,"Turmeric is a wonderful spice that you can actually cook with, and honestly, we believe that you will get most of the benefit from turmeric if you use the whole root. It actually looks like ginger. It's a root that people dig up from the ground. It's bright orange and you can cut it up and put it in your meals, and your meals will be really colorful and bright and beautiful, and you get all of the benefits of the turmeric that way. Turmeric is believed to be very anti-inflammatory and it's used all over the world for this purpose. So it's pretty safe, especially when you use it in food. Now, if you can't find turmeric, or you don't like cooking with turmeric, you can find turmeric supplements. And the supplements are usually called curcumin. Curcumin is what we think is one of the main active ingredients in turmeric. So you can look for curcumin supplements, and they usually come with black pepper in them because turmeric is absorbed better when you use black pepper. So either cook with it and put some black pepper in your recipe, or you can take curcumin plus black pepper supplements. One important safety note here though is that in some people, high doses of turmeric can actually cause liver failure. We don't know how to predict who those people will be. So again, discuss it with your care provider. Let them know you're taking turmeric and how much you're taking. But you can get around this safety issue by just cooking with the roots. You'll never be able to overdose if you use it in food.",60.0,"The transcript provides general information about turmeric and its anti-inflammatory properties, mentioning its use worldwide for inflammation. It also discusses turmeric supplements, specifically curcumin, and their absorption with black pepper. However, it does not specifically address HS (Hidradenitis Suppurativa) inflammation, which is the focus of the question. The transcript lacks direct evidence or studies related to turmeric's effectiveness in reducing HS inflammation, making the answer somewhat relevant but incomplete.",5000.0,CON6-Q4-What are the most effective treatments-Garg.mp4,0.2,What are the most effective treatments?,"This is the million dollar question for everybody with this condition. And what I would say in general, the most effective treatment strategy is the one that works for you. But you have to work with your doctor in figuring out what that is. There are your traditional and basic treatments, which in general we feel like don't truly modify disease activity. Those sometimes are pretty good at controlling the symptoms that you have, to the most advanced treatments that we have today, which are these targeted treatments, which really isolate and target a specific inflammatory pathway that we know is involved in HS. And in general, the data suggests that those are probably the most effective treatments we have today.",20.0,"The transcript does not directly address the question about turmeric supplements and their effect on HS inflammation. It discusses general treatment strategies for HS, including traditional and advanced treatments, but does not mention turmeric or any specific supplements. The response lacks information on the efficacy of turmeric in reducing HS inflammation, making it largely irrelevant to the question asked.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.1,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",10.0,"The transcript does not address the specific question about turmeric supplements and their effect on HS inflammation. Instead, it discusses general stress management techniques and their potential impact on HS inflammation, without mentioning turmeric or supplements at all.",1582.0,Turmeric | Foods to Support Gut Health,0.780804515,908.0,Osteoarthritis | Diet and Nutrition,0.764965832,938.0,Osteoarthritis Treatment,0.761805654
Should I take omega-3 for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,should i take omega-3 for hidradenitis suppurativa?,Should I take omega-3 for hidradenitis suppurativa?,Should I take omega-3 for hidradenitis suppurativa?,No,,,searchable,no-match,,,"[{""id"":1885},{""id"":1950},{""id"":1888},{""id"":1890}]",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.2,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",20.0,"The transcript does not directly address the question about taking omega-3 for hidradenitis suppurativa (HS). Instead, it discusses the nature of HS, its relation to microbiome and inflammation, and the use of antibiotics like doxycycline to manage inflammation. There is no mention of omega-3 or its potential benefits or drawbacks for HS, making the transcript largely irrelevant to the specific question asked.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,The transcript does not address the question about taking omega-3 for hidradenitis suppurativa at all. It discusses the general lack of awareness and challenges in diagnosing hidradenitis suppurativa but does not provide any information or guidance on the use of omega-3 supplements for this condition.,4930.0,CON3-CH1-Q4-What are the best oral antibiotics to treat HS-Daveluy.mp4,0.1,What are the best oral antibiotics to treat HS?,"I'm glad you asked because there's often a misconception that HS is an infection and it's not. And so you can't just reach for any antibiotic. Some have studies that show that they work, others don't. And you may be getting some that work and some that don't based on if your doctor knows that they're treating HS. The ones that have the most studies to support their use are doxycycline and minocycline, which are cousins of each other. They're in the same family of antibiotics, and they both have studies that show they can help to stop new spots from coming, get rid of the nodules, which are the sort of red swollen lumps, and the abscesses, which are the fluid-filled pockets. They don't tend to work as well for the tunnels, but that's true of a lot of treatments. Another antibiotic that's been very well studied is called clindamycin. And when we use antibiotics on HS, it's a little different than infections. We often use them for weeks at a time because we actually want to control the disease activity and calm the inflammation down versus when you're treating an infection, you just do a short course just enough to kill the bacteria. Another antibiotic that might be used for your HS is actually an IV medication that has to be given through an IV in your vein. It's called ertapenem. It works incredibly well for HS, but only while you're on it, so it's sort of a temporary treatment while we figure out what else we're going to do to get your HS under control. There are a few other antibiotics that your doctor may talk to you about, like metronidazole, moxifloxacin, and rifampin. And so it's a good thing to have a conversation with your doctor about which antibiotics have evidence for HS, and have proven benefits, and then figure out based on your personal health and your history which one's the best for you.",10.0,"The transcript does not address the question about taking omega-3 for hidradenitis suppurativa at all. Instead, it focuses entirely on the use of antibiotics for treating HS, discussing various antibiotics and their effectiveness. There is no mention of omega-3 or any dietary supplements, making the transcript irrelevant to the question asked.",3546.0,Are multivitamins something I should consider?,0.756872952,3563.0,Are multivitamins something I should consider?,0.755745113,3544.0,Are there supplements I should consider or avoid?,0.749258
What foods are good for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what foods are good for hs?,What foods are good for HS?,What foods are good for HS?,No,,,searchable,loose-match,,,"[{""id"":1818},{""id"":1924},{""id"":1923},{""id"":1926}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.3,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",30.0,"The transcript does not directly answer the question about specific foods that are good for HS (Hidradenitis Suppurativa). Instead, it provides general advice on the role of diet in managing HS, emphasizing that dietary changes may not be effective for everyone and that individuals should explore their own dietary triggers. While this information is useful, it does not provide specific examples of foods that might be beneficial for someone with HS, which is what the question asks for.",4972.0,CON3-CH6-Q3-Can zinc help my HS-Okoye.mp4,0.3,Can zinc help my HS?,"Zinc is a really interesting nutrient. It's not actually in a lot of foods and your body doesn't store it well, but we know that zinc is really important for repair of the skin and perhaps that's one of the reasons it's helpful in HS. We don't really know for sure, but zinc gluconate was the specific type of zinc that was studied in patients with HS, and it seemed to help some patients. Some of my patients will use zinc in addition to other HS treatments. I don't think it works very well on its own, but I think it can be helpful as an add-on to your other medications.",30.0,"The transcript does not directly answer the question about which foods are good for HS (Hidradenitis Suppurativa). Instead, it focuses on zinc as a nutrient, mentioning its potential benefits for HS and its use as a supplement. However, it does not provide information on specific foods that are beneficial for HS, which was the main focus of the question. Therefore, the response is only partially relevant and does not adequately address the question.",4970.0,CON3-CH6-Q2-Can vitamin D help my HS-Okoye.mp4,0.1,Can vitamin D help my HS?,"We're not sure why vitamin D might help patients with HS, but what we do know from research is that when we test patients with HS for their vitamin D levels, they tend to be low. And so please ask your care providers to check your vitamin D level. If it's low, you should be on a vitamin D supplement. The recommended dose is about 2000 units per day, and you can get that over the counter.",10.0,"The transcript does not directly address the question about foods that are good for HS (Hidradenitis Suppurativa). Instead, it discusses vitamin D levels and supplementation, which is related to a nutrient rather than specific foods. The information provided is useful but does not answer the question about dietary choices or foods beneficial for HS.",908.0,Osteoarthritis | Diet and Nutrition,0.778179705,1117.0,Six Ways to Improve Your Diabetes Control,0.771322131,2328.0,Foods that Help You Heal Faster,0.76626426
Can eating more vegetables help with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can eating more vegetables help with hs?,Can eating more vegetables help with HS?,Can eating more vegetables help with HS?,No,,,searchable,exact-match,,,"[{""id"":1818},{""id"":1925},{""id"":1924},{""id"":1834}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.6,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",60.0,"The transcript addresses the question indirectly by discussing the role of diet in managing HS, emphasizing that dietary changes, including eating more vegetables, may help some individuals but not everyone. It advises exploring dietary triggers and healthy changes but cautions against relying solely on diet as a solution. However, it does not specifically confirm or deny the effectiveness of eating more vegetables for HS, leaving the question partially answered.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.2,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",20.0,"The transcript does not directly address the question about whether eating more vegetables can help with HS (Hidradenitis Suppurativa). It discusses the general idea of patients searching for natural remedies and suggests discussing these with a care provider, but it does not specifically mention vegetables or their impact on HS. Therefore, the answer is not directly relevant to the question asked.",4972.0,CON3-CH6-Q3-Can zinc help my HS-Okoye.mp4,0.1,Can zinc help my HS?,"Zinc is a really interesting nutrient. It's not actually in a lot of foods and your body doesn't store it well, but we know that zinc is really important for repair of the skin and perhaps that's one of the reasons it's helpful in HS. We don't really know for sure, but zinc gluconate was the specific type of zinc that was studied in patients with HS, and it seemed to help some patients. Some of my patients will use zinc in addition to other HS treatments. I don't think it works very well on its own, but I think it can be helpful as an add-on to your other medications.",10.0,"The transcript does not address the question about eating more vegetables and its impact on HS. Instead, it discusses zinc and its potential benefits for HS, which is unrelated to the dietary aspect of vegetable consumption.",908.0,Osteoarthritis | Diet and Nutrition,0.779454708,1117.0,Six Ways to Improve Your Diabetes Control,0.778411448,2328.0,Foods that Help You Heal Faster,0.774567842
Should I drink more water if I have hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i drink more water if i have hidradenitis suppurativa?,Should I drink more water if I have hidradenitis suppurativa?,Should I drink more water if I have hidradenitis suppurativa?,No,,,searchable,no-match,,,"[{""id"":1823},{""id"":1950},{""id"":1859},{""id"":1873}]",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question of whether drinking more water is beneficial for hidradenitis suppurativa (HS). Instead, it focuses on sweating as a trigger for HS and suggests ways to manage sweating, such as staying cool and discussing treatment options with a doctor. While hydration can influence sweating, the transcript does not make this connection or provide guidance on water intake specifically.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether drinking more water is beneficial for hidradenitis suppurativa. It focuses on the awareness and diagnosis challenges of the condition, without providing any information related to hydration or its effects on HS.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.1,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",10.0,"The transcript does not address the question about whether drinking more water is beneficial for someone with hidradenitis suppurativa (HS). Instead, it focuses on general treatment options for HS, such as surgery and medication, and discusses the importance of consulting a doctor for personalized treatment. There is no mention of hydration or water intake in relation to HS, making the transcript largely irrelevant to the specific question asked.",2327.0,When to See a Dietitian for Your Microbiome,0.741851091,2321.0,Health Conditions Impacted by the Microbiome,0.736069262,1117.0,Six Ways to Improve Your Diabetes Control,0.733441651
Can keeping a food diary help identify HS triggers?,searchable,Patient_Forums,Hidradenitis Suppurativa,can keeping a food diary help identify hs triggers?,Can keeping a food diary help identify HS triggers?,Can keeping a food diary help identify HS triggers?,No,,,searchable,exact-match,,,"[{""id"":1818},{""id"":1833},{""id"":1823},{""id"":1838}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.6,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",60.0,"The transcript addresses the general idea of diet being a potential factor in managing HS (Hidradenitis Suppurativa) and suggests exploring dietary triggers, which indirectly supports the idea of keeping a food diary. However, it does not explicitly mention keeping a food diary as a method to identify triggers. The response is somewhat relevant but lacks direct guidance on the specific question about using a food diary.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.2,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",20.0,"The transcript does not directly address the question about whether keeping a food diary can help identify HS triggers. It discusses the two-hit hypothesis and environmental factors like smoking and weight that might influence HS, but it does not mention food or the use of a food diary as a tool for identifying triggers. Therefore, it only indirectly relates to the question by discussing potential environmental triggers without specifically addressing the role of a food diary.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about whether keeping a food diary can help identify HS triggers. Instead, it focuses on sweating as a trigger for HS and discusses strategies to manage sweating. There is no mention of food, diet, or the use of a food diary in identifying HS triggers, making the response largely irrelevant to the question asked.",1996.0,What to Eat and What Not to Eat,0.776637375,1117.0,Six Ways to Improve Your Diabetes Control,0.775679946,908.0,Osteoarthritis | Diet and Nutrition,0.771054924
How do I know which foods trigger my HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i know which foods trigger my hs?,How do I know which foods trigger my HS?,How do I know which foods trigger my HS?,No,,,searchable,loose-match,,,"[{""id"":1818},{""id"":1833},{""id"":1823},{""id"":1979}]",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.4,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",40.0,"The transcript provides a general discussion about the role of diet in managing HS (Hidradenitis Suppurativa) but does not directly answer the question of how to identify specific food triggers. It emphasizes that diet may not be a factor for everyone and advises not to rely solely on dietary changes. However, it lacks specific guidance on methods to identify food triggers, such as keeping a food diary, elimination diets, or consulting with a healthcare professional. Therefore, while it offers some context, it does not adequately address the question.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.2,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",20.0,"The transcript does not directly address the question about identifying specific food triggers for HS (Hidradenitis Suppurativa). Instead, it discusses the general concept of genetic predisposition and environmental factors, such as tobacco smoking and weight, that might influence the development of HS. There is no mention of dietary factors or methods to identify food triggers, which is the focus of the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about identifying food triggers for HS (Hidradenitis Suppurativa) at all. Instead, it focuses on sweating as a trigger and how to manage it. There is no mention of dietary factors or how to identify which foods might trigger HS, making the response largely irrelevant to the question asked.",1996.0,What to Eat and What Not to Eat,0.764728308,2309.0,What is Metabolic Syndrome?,0.761169612,1117.0,Six Ways to Improve Your Diabetes Control,0.759978294
Can smoking make HS worse?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can smoking make hs worse?,Can smoking make HS worse?,Can smoking make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1833},{""id"":1979},{""id"":1823},{""id"":1838}]",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.85,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",85.0,"The transcript provides a well-rounded explanation of how environmental factors, including smoking, might influence the development or exacerbation of HS (Hidradenitis Suppurativa). It introduces the concept of a 'two-hit hypothesis' where genetic predisposition and environmental factors like smoking can contribute to the disease. While it doesn't definitively state that smoking makes HS worse, it strongly suggests that smoking is a potential environmental trigger. The explanation is thorough but lacks a direct, unequivocal answer, which slightly reduces the score.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.7,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",70.0,"The transcript addresses the question indirectly by discussing myths related to HS, including smoking. It clarifies that smoking does not cause HS, but it does not explicitly state whether smoking can make HS worse. The transcript mentions that weight can make HS worse, suggesting that lifestyle factors might influence the severity of HS, but it does not directly confirm or deny the impact of smoking on HS severity. Therefore, while it provides relevant context, it does not fully answer the specific question about smoking's impact on HS.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about whether smoking can make HS (Hidradenitis Suppurativa) worse. Instead, it focuses on sweating as a trigger for HS and discusses strategies to manage sweating. There is no mention of smoking or its effects on HS, making the transcript largely irrelevant to the question asked.",4487.0,Quit Smoking Now!,0.778707623,4636.0,I Can't Get Past The Shame and Guilt Over My Diagnosis,0.764570534,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.746426463
Will quitting smoking help my hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,will quitting smoking help my hidradenitis suppurativa?,Will quitting smoking help my hidradenitis suppurativa?,Will quitting smoking help my hidradenitis suppurativa?,No,,,searchable,no-match,,,"[{""id"":1859},{""id"":1950},{""id"":1912},{""id"":1823}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.2,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",20.0,"The transcript does not directly address the question about whether quitting smoking will help with hidradenitis suppurativa (HS). Instead, it focuses on general treatment options for HS, such as surgery and medication, and the importance of discussing these with a doctor. There is no mention of smoking or its impact on HS, which is the specific focus of the question. Therefore, the transcript provides little relevant information to answer the question.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about quitting smoking and its impact on hidradenitis suppurativa. It focuses on the awareness and diagnosis challenges of the condition, without mentioning smoking or its effects on HS.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.1,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",10.0,"The transcript does not address the question about quitting smoking and its impact on hidradenitis suppurativa (HS) at all. Instead, it focuses on surgical treatment options and the combination of medications and surgery for managing HS. There is no mention of lifestyle factors like smoking cessation and their potential effects on HS.",4487.0,Quit Smoking Now!,0.759264231,4492.0,Is My Treatment Working?,0.739618,4636.0,I Can't Get Past The Shame and Guilt Over My Diagnosis,0.739590824
How long after quitting smoking will my HS improve?,searchable,Patient_Forums,Hidradenitis Suppurativa,how long after quitting smoking will my hs improve?,How long after quitting smoking will my HS improve?,How long after quitting smoking will my HS improve?,No,,,searchable,no-match,"heart disease,lifestyle changes,outcomes",,"[{""id"":1979},{""id"":1965},{""id"":1846},{""id"":1834}]",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.1,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",10.0,"The transcript does not directly address the question about how long after quitting smoking HS (Hidradenitis Suppurativa) will improve. Instead, it focuses on debunking myths about HS, including the misconception that smoking causes HS. While it mentions that smoking is not a cause of HS, it does not provide any information on the timeline of improvement after quitting smoking. Therefore, the transcript is largely irrelevant to the specific question asked.",5013.0,CON6-Q28-When should I start treatment for HS-Garg.mp4,0.1,When should I start treatment for HS?,"So with HS, early is always better. We really feel like when we can catch this disease in its earlier stages, we have a much better chance at controlling the symptoms that you have today and slow or even altogether prevent it from getting worse over time.",10.0,The transcript does not directly address the question about how long after quitting smoking HS (Hidradenitis Suppurativa) will improve. It only discusses the general principle that early intervention in HS is beneficial for controlling symptoms and preventing progression. There is no mention of smoking cessation or its timeline effects on HS improvement.,4872.0,CON1-CH6-Q3-Will there ever be a cure-Garg.mp4,0.1,Will there ever be a cure?,"Even just five years ago, if you had asked me, is there ever going to be a cure for HS, I'm not sure I could look you in the eye and say yes. But we've got treatments that I thought were never even possible. The progress is slow and steady, but we're getting there. And I think that there will be a near term in which we can at least think about a cure, at least discuss remission of symptoms.",10.0,The transcript does not address the question about the timeline for improvement of HS symptoms after quitting smoking. It discusses the general progress in treatments for HS but does not provide any specific information related to smoking cessation and its impact on HS.,4487.0,Quit Smoking Now!,0.787129045,4636.0,I Can't Get Past The Shame and Guilt Over My Diagnosis,0.761898637,4397.0,Getting Your Life Back,0.760923445
Can vaping trigger HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,can vaping trigger hs flares?,Can vaping trigger HS flares?,Can vaping trigger HS flares?,No,,,searchable,no-match,,,"[{""id"":1838},{""id"":1877},{""id"":1817},{""id"":1865}]",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript discusses the relationship between stress and HS (Hidradenitis Suppurativa) flares, emphasizing the bidirectional nature of stress and HS. However, it does not address the specific question about vaping and its potential to trigger HS flares. The answer lacks any mention of vaping or its effects, making it largely irrelevant to the question posed.",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.1,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",10.0,"The transcript does not address the specific question about whether vaping can trigger HS flares. Instead, it provides general information about the nature of HS flares and treatment options, without mentioning vaping or any potential triggers. Therefore, it does not answer the question posed.",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.1,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",10.0,"The transcript does not address the question about vaping and its potential to trigger HS flares. Instead, it discusses the impact of antiperspirants and deodorants on HS, suggesting trial and error to determine individual reactions. There is no mention of vaping or its effects on HS, making the transcript largely irrelevant to the question posed.",1020.0,Herniated Disc | Treating Flare-ups,0.758675694,4533.0,What Will My Treatment Be Like?,0.737692356,1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.734683216
Does marijuana affect hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,does marijuana affect hidradenitis suppurativa?,Does marijuana affect hidradenitis suppurativa?,Does marijuana affect hidradenitis suppurativa?,No,,,searchable,no-match,,,"[{""id"":1833},{""id"":1950},{""id"":1919},{""id"":1861}]",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.2,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",20.0,"The transcript does not directly address the question about the effect of marijuana on hidradenitis suppurativa (HS). It discusses the two-hit hypothesis and environmental factors like tobacco smoking and higher weight that might influence HS, but it does not mention marijuana at all. Therefore, it provides very little relevant information to answer the specific question asked.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether marijuana affects hidradenitis suppurativa. Instead, it discusses the general lack of awareness and common misdiagnoses associated with hidradenitis suppurativa. There is no mention of marijuana or its effects on the condition, resulting in a very low relevance to the original question.",4965.0,CON3-CH5-Q3-What are retinoids-Garg.mp4,0.05,What are retinoids?,"We get asked about this class of medication called retinoids all the time. Retinoids work by helping the skin to differentiate or mature or grow properly, and maybe that has some role in influencing the stickiness of a hair follicle. We think that HS in some ways results from hair follicles being plugged and then a cascade of inflammation that results from that plugging. So the idea is that if you can help hair follicles become less sticky because of the way the skin grows, that that might help ameliorate the symptoms of HS. In reality, ultimately the symptoms from HS originate from that really intense inflammation, and retinoids, we know just don't have really much, if any, anti-inflammatory activity. So for us, they're really not the ideal approach to managing HS, at least over the long haul. What's more important is using medicines that can really target inflammation, which is really the basis of the symptoms in HS.",5.0,"The transcript does not address the question about the effects of marijuana on hidradenitis suppurativa (HS) at all. Instead, it discusses the use of retinoids in the treatment of HS, focusing on their mechanism of action and their limitations in managing inflammation associated with HS. There is no mention of marijuana or its potential effects on HS, making the transcript irrelevant to the question posed.",2321.0,Health Conditions Impacted by the Microbiome,0.744479299,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.73715204,4533.0,What Will My Treatment Be Like?,0.736940801
Can exercise help with HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can exercise help with hs?,Can exercise help with HS?,Can exercise help with HS?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1926},{""id"":1823},{""id"":1834}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript provides a comprehensive answer to the question of whether exercise can help with HS (Hidradenitis Suppurativa). It acknowledges the complexity of exercise as both a potential trigger and a beneficial activity for managing HS. The response explains how exercise can help maintain a healthy body weight, which is associated with less severe HS symptoms. It also offers practical advice on low-impact exercises that minimize friction, such as walking, swimming, and yoga, and suggests working with a personal trainer to tailor an exercise routine. However, the transcript could improve by explicitly stating that exercise can indeed help manage HS symptoms, rather than focusing primarily on the challenges and precautions.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.75,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",75.0,"The transcript addresses the question by suggesting that exercise can help manage HS (Hidradenitis Suppurativa) indirectly by reducing stress, which in turn can help manage inflammation associated with the condition. However, it does not directly state that exercise helps with HS, but rather implies it through stress management. The transcript also acknowledges the complications of exercising with HS due to lesions and pain, which is relevant information. Overall, the answer is informative but could be more direct in linking exercise specifically to HS improvement.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address whether exercise can help with HS (Hidradenitis Suppurativa). Instead, it focuses on sweating as a trigger for HS and suggests ways to manage sweating, such as staying in air-conditioned environments. While exercise can induce sweating, the transcript does not discuss the potential benefits or drawbacks of exercise itself in relation to HS. Therefore, it only indirectly touches on the topic by discussing sweating, which is a component of exercise, but does not answer the question about exercise's overall impact on HS.",2306.0,Heart Health | Benefits of Exercise,0.814757109,2310.0,Heart Health | Exercise Guidelines,0.812098086,2325.0,Heart Health | Starting an Exercise Program,0.802405655
What exercises are safe with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what exercises are safe with hidradenitis suppurativa?,What exercises are safe with hidradenitis suppurativa?,What exercises are safe with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1950},{""id"":1908},{""id"":1912}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.9,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",90.0,"The transcript provides a comprehensive answer to the question about safe exercises for individuals with Hidradenitis Suppurativa (HS). It acknowledges the challenges of exercising with HS due to friction in affected areas and suggests low-impact exercises such as walking, swimming, and yoga, which minimize friction and are generally safer. It also advises against hot yoga due to heat and sweating being potential triggers. Additionally, the transcript offers practical tips like using stairs and working with a personal trainer to tailor an exercise routine. However, it could be improved by explicitly listing more specific exercises or routines, which is why it doesn't receive a perfect score.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about safe exercises for individuals with Hidradenitis Suppurativa. Instead, it discusses the general lack of awareness and challenges in diagnosing the condition. There is no information provided about exercise recommendations or safety considerations for those with HS.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.05,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",5.0,"The transcript does not address the question about safe exercises for Hidradenitis Suppurativa (HS) at all. Instead, it focuses entirely on surgical and procedural interventions for managing HS, such as laser hair removal, injections, deroofing, excision, and incision and drainage. There is no mention of exercise or physical activity, which is the core of the original question. Therefore, the transcript is not relevant to the question asked.",3584.0,Is it safe to exercise if I have obesity and heart disease?,0.768032372,2310.0,Heart Health | Exercise Guidelines,0.756784797,911.0,Ask a Doc | Lupus and Exercise,0.754031301
Can working out make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can working out make hs worse?,Can working out make HS worse?,Can working out make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1823},{""id"":1926},{""id"":1834}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript provides a comprehensive answer to the question by explaining how exercise can potentially worsen HS due to friction in affected areas. It acknowledges the dilemma of exercise being beneficial for overall health but potentially triggering HS flares. The response offers practical advice on low-impact exercises and strategies to minimize HS triggers, such as avoiding hot yoga and working with a personal trainer. However, it could be improved by directly addressing the question at the beginning with a clear statement that exercise can indeed make HS worse for some individuals.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.7,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",70.0,"The transcript addresses the question indirectly by discussing sweating as a potential trigger for HS, which can be exacerbated by working out. It suggests that if sweating is a trigger, it could make HS worse, and offers some strategies to manage sweating. However, it does not directly answer whether working out itself can make HS worse, as it focuses more on sweating as a trigger rather than the act of working out. The response would be more complete if it explicitly connected working out to increased sweating and HS exacerbation.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.7,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",70.0,"The transcript partially addresses the question by discussing the relationship between stress, exercise, and HS (Hidradenitis Suppurativa). It suggests that exercise can be beneficial for managing stress, which in turn may help with HS. However, it does not directly address whether working out can make HS worse, particularly in terms of physical activity potentially aggravating lesions or causing pain. The response could be improved by explicitly discussing the potential negative impacts of exercise on HS symptoms.",3627.0,Working out is painful for me - what do I do?,0.759991169,2325.0,Heart Health | Starting an Exercise Program,0.756377459,3516.0,"Working out is painful for me, what do I do?",0.755582213
How do I exercise with active HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i exercise with active hs lesions?,How do I exercise with active HS lesions?,How do I exercise with active HS lesions?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1926},{""id"":1873},{""id"":1880}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.9,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",90.0,"The transcript provides a comprehensive answer to the question about exercising with active HS lesions. It acknowledges the challenges of exercising with HS due to friction and potential flares, and offers practical advice on low-impact exercises such as walking, swimming, and yoga. It also suggests modifications like taking the stairs and working with a personal trainer. The transcript effectively addresses the need to avoid triggers like heat and sweating, making it a well-rounded response. However, it could be slightly improved by directly addressing how to manage active lesions during exercise, which is why it doesn't receive a perfect score.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.4,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",40.0,"The transcript acknowledges the challenges of exercising with HS lesions and emphasizes the importance of stress management, which can indirectly help with HS. However, it does not provide specific guidance or strategies on how to exercise with active HS lesions, such as modifications or types of exercises that might be more suitable. The mention of yoga and stress management techniques is helpful but not directly answering the question about exercising with active lesions.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.4,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",40.0,"The transcript provides some relevant advice on clothing choices to reduce friction and occlusion, which can help manage HS lesions during exercise. However, it does not directly address how to exercise with active HS lesions, such as specific types of exercises that might be more suitable or additional precautions to take. The response is partially relevant but lacks comprehensive guidance on the exercise aspect.",911.0,Ask a Doc | Lupus and Exercise,0.799067497,2310.0,Heart Health | Exercise Guidelines,0.78935349,95.0,"Exercise
S1 | E1",0.778369606
Should I avoid the gym if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i avoid the gym if i have hs?,Should I avoid the gym if I have HS?,Should I avoid the gym if I have HS?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1823},{""id"":1926},{""id"":1834}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript provides a comprehensive answer to the question about whether to avoid the gym if you have HS (Hidradenitis Suppurativa). It acknowledges that exercise can be a trigger due to friction in affected areas but emphasizes the importance of exercise for overall health and weight management, which can help reduce HS severity. The response suggests low-impact exercises like walking, swimming, and yoga, and advises against high-friction activities. It also recommends working with a personal trainer to tailor a suitable exercise routine. However, it doesn't explicitly state 'avoid the gym' but rather focuses on modifying exercise types, which might leave some ambiguity for those specifically asking about gym workouts.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.6,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",60.0,"The transcript partially addresses the question by discussing the role of sweating as a potential trigger for HS and suggests that avoiding sweating might be beneficial. However, it does not directly answer whether one should avoid the gym specifically. The advice is more about managing sweating in general rather than providing a clear recommendation about gym activities. To fully answer the question, the transcript should have included specific guidance on gym activities and how they might impact someone with HS.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.6,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",60.0,"The transcript partially addresses the question by discussing the relationship between stress, exercise, and HS (Hidradenitis Suppurativa). It suggests that exercise can be beneficial for managing stress, which in turn may help with HS. However, it does not directly answer whether one should avoid the gym specifically. It acknowledges that exercise can be complicated due to lesions and pain but does not provide a clear recommendation regarding gym activities. Therefore, the response is somewhat informative but lacks a direct answer to the question posed.",3584.0,Is it safe to exercise if I have obesity and heart disease?,0.76571238,2310.0,Heart Health | Exercise Guidelines,0.757785618,3562.0,Are there weight loss programs should I avoid?,0.753508151
Can swimming help or hurt hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can swimming help or hurt hidradenitis suppurativa?,Can swimming help or hurt hidradenitis suppurativa?,Can swimming help or hurt hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1823},{""id"":1950},{""id"":1859}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript provides a comprehensive answer to the question by discussing the impact of exercise on hidradenitis suppurativa (HS) and specifically mentions swimming as a recommended low-impact activity. It explains that swimming is beneficial because it does not involve friction, which can trigger HS flares. However, the transcript does not explicitly address any potential negative effects of swimming, such as the impact of chlorinated water on HS, which could be relevant. Overall, the transcript effectively answers the question by highlighting swimming as a helpful exercise option for individuals with HS.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question about whether swimming can help or hurt hidradenitis suppurativa (HS). Instead, it focuses on sweating as a trigger for HS and suggests ways to manage sweating. While swimming might be related to sweating, the transcript does not explicitly discuss swimming or its effects on HS. Therefore, the answer is largely irrelevant to the specific question asked.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether swimming can help or hurt hidradenitis suppurativa. Instead, it discusses the general lack of awareness and misdiagnosis issues related to the condition. There is no information provided about the effects of swimming on hidradenitis suppurativa.",3774.0,Surgical Intervention for Severe CVI | The SAVVE Trial at Yale,0.748956,694.0,"Amy Lindberg 
S3 | E5",0.732003927,463.0,Weight Loss Surgery Helped Chef Eileen Stay on a Healthy Course,0.731930912
Is yoga safe with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,is yoga safe with hs?,Is yoga safe with HS?,Is yoga safe with HS?,No,,,searchable,exact-match,,,"[{""id"":1926},{""id"":1819},{""id"":1823},{""id"":1964}]",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.85,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",85.0,"The transcript addresses the question by suggesting that yoga, as a form of exercise and stress management, can be beneficial for individuals with HS (Hidradenitis Suppurativa). It acknowledges the challenges of exercise due to lesions and pain but implies that yoga, along with other stress-reducing activities, can help manage HS symptoms. However, it does not explicitly state 'yoga is safe,' which leaves a slight ambiguity regarding safety, hence the rating is not perfect.",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript provides a comprehensive answer to the question about the safety of yoga for individuals with HS (Hidradenitis Suppurativa). It explains the challenges of exercise with HS due to friction and potential triggers, and specifically mentions yoga as a recommended low-impact activity that avoids high, fast movements and friction. It cautions against hot yoga due to heat and sweating being potential triggers for HS. The response is detailed and offers practical advice, but it could be improved by directly addressing the safety of yoga in the context of HS at the beginning of the response for clarity.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.3,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",30.0,"The transcript discusses sweating as a trigger for HS and suggests ways to manage sweating, but it does not directly address whether yoga is safe for individuals with HS. Yoga can involve physical activity that may lead to sweating, but the transcript does not provide specific guidance on yoga or its safety in relation to HS. Therefore, the answer is not directly relevant to the question asked.",3584.0,Is it safe to exercise if I have obesity and heart disease?,0.762285233,2310.0,Heart Health | Exercise Guidelines,0.754167318,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.751359165
Can running irritate hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can running irritate hidradenitis suppurativa?,Can running irritate hidradenitis suppurativa?,Can running irritate hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1823},{""id"":1859},{""id"":1950}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript addresses the question by discussing how exercise, including running, can be a trigger for hidradenitis suppurativa (HS) due to friction in areas affected by the condition. It explains the challenges of exercising with HS and suggests low-impact alternatives to avoid irritation. While it doesn't explicitly mention running in detail, it implies that running, like other high-impact exercises, could potentially irritate HS due to friction. The transcript provides a comprehensive overview of exercise considerations for individuals with HS, making it a well-rounded response to the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.7,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",70.0,"The transcript indirectly addresses the question by discussing sweating as a trigger for hidradenitis suppurativa (HS), which can be related to running since running often causes sweating. However, it does not explicitly mention running or directly confirm whether running itself can irritate HS. The focus is more on managing sweating as a trigger, which is relevant but not a direct answer to the question about running.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.2,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",20.0,"The transcript does not directly address whether running can irritate hidradenitis suppurativa (HS). It focuses on general treatment options for HS, such as surgery and medication, and discusses the importance of stopping disease activity and drainage. While it provides useful information about managing HS, it does not answer the specific question about the impact of running on the condition.",3494.0,Inflammation | Dr. Jim Januzzi,0.750085652,2321.0,Health Conditions Impacted by the Microbiome,0.74652493,726.0,Research Is the Reason I Can Go the Distance,0.742772222
What should I do about chafing when exercising with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what should i do about chafing when exercising with hs?,What should I do about chafing when exercising with HS?,What should I do about chafing when exercising with HS?,No,,,searchable,exact-match,"lifestyle changes,condition management",,"[{""id"":1865},{""id"":1816},{""id"":1873},{""id"":1819}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.85,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",85.0,"The transcript provides a relevant and practical solution to the problem of chafing when exercising with HS (Hidradenitis Suppurativa) by recommending the use of stay-dry or sweat-wicking clothing. This advice addresses the underlying issue of sweat-induced flares, which can contribute to chafing. However, the transcript could be improved by directly mentioning chafing and offering additional strategies specifically for managing it, such as using anti-chafing balms or ensuring proper hygiene.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.85,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",85.0,"The transcript provides a comprehensive answer to the question about managing chafing when exercising with HS (Hidradenitis Suppurativa). It suggests practical solutions such as trying different types of clothing, including loose or tight garments, depending on individual needs and disease state. It also emphasizes the importance of trial and error and consulting patient support groups for personalized advice. However, it could be improved by directly addressing specific strategies for chafing, such as using anti-chafing creams or powders, which are common recommendations for this issue.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.7,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",70.0,"The transcript provides a partial answer to the question by suggesting looser fitting clothing to reduce friction and occlusion, which can exacerbate HS lesions. However, it does not directly address 'chafing' specifically or offer a comprehensive set of strategies for managing chafing during exercise with HS, such as using lubricants, moisture-wicking fabrics, or other preventive measures. Therefore, while it offers relevant advice, it does not fully answer the question.",2310.0,Heart Health | Exercise Guidelines,0.763900578,911.0,Ask a Doc | Lupus and Exercise,0.750211358,2325.0,Heart Health | Starting an Exercise Program,0.744249761
How do I prevent sweat from triggering HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i prevent sweat from triggering hs flares?,How do I prevent sweat from triggering HS flares?,How do I prevent sweat from triggering HS flares?,No,,,searchable,exact-match,,,"[{""id"":1865},{""id"":1823},{""id"":1817},{""id"":1819}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.9,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",90.0,"The transcript provides a clear and practical answer to the question by suggesting the use of stay-dry or sweat-wicking clothing to prevent sweat from triggering HS flares. This directly addresses the concern about sweat management. However, it could be improved by mentioning additional strategies such as using antiperspirants or maintaining a cool environment, which are also common recommendations for managing sweat in HS patients.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.85,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",85.0,"The transcript provides a good answer to the question by acknowledging that sweat can trigger HS flares and offering practical advice on how to minimize sweating, such as spending time in air-conditioned environments. It also suggests discussing the issue with a doctor to explore treatments that can reduce sweating and potentially help with HS. However, it could be improved by offering more specific strategies or treatments for managing sweat, such as antiperspirants or medications, and by addressing lifestyle changes that might help prevent sweating.",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.7,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",70.0,"The transcript provides some relevant information about managing HS flares related to sweat and deodorant use, suggesting trial and error with different products and using antibacterial washes as alternatives. However, it does not directly address how to prevent sweat itself from triggering HS flares, which was the main focus of the question. The response could be improved by discussing strategies specifically aimed at managing sweat, such as wearing breathable clothing or using specific antiperspirants designed for sensitive skin.",1020.0,Herniated Disc | Treating Flare-ups,0.757541656,911.0,Ask a Doc | Lupus and Exercise,0.739595354,2309.0,What is Metabolic Syndrome?,0.738566279
Should I shower immediately after exercising if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i shower immediately after exercising if i have hs?,Should I shower immediately after exercising if I have HS?,Should I shower immediately after exercising if I have HS?,No,,,searchable,exact-match,,,"[{""id"":1865},{""id"":1823},{""id"":1815},{""id"":1819}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.6,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",60.0,"The transcript provides relevant information about the relationship between sweating and HS (Hidradenitis Suppurativa), suggesting that keeping the skin dry can help reduce flares. However, it does not directly answer the question about whether one should shower immediately after exercising. The advice about using sweat-wicking clothing is useful, but the transcript lacks a direct recommendation regarding post-exercise showering, which is the focus of the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.3,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",30.0,"The transcript discusses the relationship between sweating and HS, suggesting that sweat can be a trigger for HS and that managing sweating might help. However, it does not directly address the specific question of whether one should shower immediately after exercising if they have HS. The transcript lacks a direct recommendation or guidance on post-exercise hygiene practices, such as showering, which is the focus of the question.",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.3,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",30.0,"The transcript does not directly address the question of whether one should shower immediately after exercising if they have HS (Hidradenitis Suppurativa). Instead, it discusses various soaps and cleansers that can be beneficial for managing HS, such as benzoyl peroxide, chlorhexidine, zinc-containing soaps, and diluted bleach. While this information is useful for someone with HS, it does not provide guidance on the timing of showering post-exercise, which is the core of the question. Therefore, the transcript only partially addresses the question by suggesting beneficial cleansing products but fails to answer the specific inquiry about shower timing.",2310.0,Heart Health | Exercise Guidelines,0.763271093,911.0,Ask a Doc | Lupus and Exercise,0.752590418,2306.0,Heart Health | Benefits of Exercise,0.751854479
Can poor sleep make hidradenitis suppurativa worse?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can poor sleep make hidradenitis suppurativa worse?,Can poor sleep make hidradenitis suppurativa worse?,Can poor sleep make Hidradenitis Suppurativa worse?,No,,,searchable,loose-match,,,"[{""id"":1837},{""id"":1950},{""id"":1823},{""id"":1873}]",4852.0,CON1-CH3-Q5-What role does stress play in HS-Garg-.mp4,0.4,What role does stress play in HS?,"Life is stressful today in general, and certainly having a chronic inflammatory condition like HS adds to that stress. It's not really clear what kind of role stress plays in skin disease in general, but certainly I hear from a lot of patients that stress at least maybe makes their condition worse. And listen, I think we've appreciated over time that there is a connection between the mind, the body, and the soul. So it never surprises me when a patient talks to me about how stress really influences their activity of HS. What I would say is that it's important to manage stress, find ways to cope with stress, for life in general, and especially when you have a chronic condition like HS. I think managing your stress can potentially influence how you perceive the disease, how you cope with the disease, and maybe even how active the condition can get. For example, how often you might flare. So I encourage all of my patients, anything you can do to cope with stress better, to find ways to be more resilient when you have a chronic condition like HS, can only help.",40.0,"The transcript primarily discusses the role of stress in Hidradenitis Suppurativa (HS) and suggests that managing stress can potentially influence the condition. However, it does not directly address the specific question about the impact of poor sleep on HS. While stress and sleep can be related, the transcript does not explicitly connect poor sleep to worsening HS, which is the focus of the question. Therefore, the answer is only partially relevant and does not fully address the question.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether poor sleep can worsen Hidradenitis Suppurativa. Instead, it discusses the general lack of awareness and common misdiagnosis of the condition. There is no mention of sleep or its impact on the disease, making the transcript largely irrelevant to the question posed.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about the impact of poor sleep on Hidradenitis Suppurativa (HS) at all. Instead, it focuses on sweating as a trigger for HS and discusses strategies to manage sweating. There is no mention of sleep or its effects on HS, making the transcript largely irrelevant to the question posed.",572.0,Sleep Issues,0.751198947,847.0,House Calls | Sleep & Wellness,0.74791348,4804.0,Counting Sheep with Lewy: Coping with Sleep Disturbances in LBD,0.744793296
Does stress management help with HS?,searchable,Expert_Clinical,Hidradenitis Suppurativa,does stress management help with hs?,Does stress management help with HS?,Does stress management help with HS?,No,,,searchable,exact-match,"mental and emotional health,condition management",,"[{""id"":1838},{""id"":1926},{""id"":1837},{""id"":1839}]",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.9,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",90.0,"The transcript effectively answers the question by explaining the bidirectional relationship between stress and HS (Hidradenitis Suppurativa). It clearly states that managing stress can help reduce HS flares, which directly addresses the question. The explanation is comprehensive, covering both the impact of stress on HS and vice versa. However, it could be slightly improved by providing specific stress management techniques or strategies, which would make the answer more actionable.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.9,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",90.0,"The transcript effectively answers the question by explaining that stress management can help with HS (Hidradenitis Suppurativa) because stress contributes to inflammation, which is a key component of HS. It provides examples of stress management techniques such as exercise, yoga, acupuncture, and talk therapy, which can be beneficial for managing HS. The answer is clear and directly addresses the relationship between stress management and HS, although it could be slightly improved by elaborating more on the mechanisms of how stress affects HS.",4852.0,CON1-CH3-Q5-What role does stress play in HS-Garg-.mp4,0.85,What role does stress play in HS?,"Life is stressful today in general, and certainly having a chronic inflammatory condition like HS adds to that stress. It's not really clear what kind of role stress plays in skin disease in general, but certainly I hear from a lot of patients that stress at least maybe makes their condition worse. And listen, I think we've appreciated over time that there is a connection between the mind, the body, and the soul. So it never surprises me when a patient talks to me about how stress really influences their activity of HS. What I would say is that it's important to manage stress, find ways to cope with stress, for life in general, and especially when you have a chronic condition like HS. I think managing your stress can potentially influence how you perceive the disease, how you cope with the disease, and maybe even how active the condition can get. For example, how often you might flare. So I encourage all of my patients, anything you can do to cope with stress better, to find ways to be more resilient when you have a chronic condition like HS, can only help.",85.0,"The transcript provides a comprehensive answer to the question by discussing the potential impact of stress on HS (Hidradenitis Suppurativa) and the importance of stress management. It acknowledges the connection between stress and skin conditions, suggests that stress may worsen HS, and emphasizes the benefits of managing stress for overall well-being and potentially reducing flare-ups. While it doesn't provide specific studies or data, it offers a logical and empathetic perspective that aligns with the question's focus on stress management.",3634.0,Stress Management,0.8089571,4647.0,Managing Your Mental Health,0.799409568,2326.0,How to Manage Overwhelming Stress Levels,0.798914969
What hygiene products are safe for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what hygiene products are safe for hs?,What hygiene products are safe for HS?,What hygiene products are safe for HS?,No,,,searchable,exact-match,,,"[{""id"":1815},{""id"":1864},{""id"":1857},{""id"":1944}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.95,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",95.0,"The transcript provides a comprehensive answer to the question about safe hygiene products for HS (Hidradenitis Suppurativa). It lists specific products such as benzoyl peroxide wash, chlorhexidine, zinc-containing soaps, and diluted bleach, explaining their antibacterial and anti-inflammatory properties. The response also offers practical advice on usage and availability, making it highly relevant and informative. The only minor improvement could be a brief mention of what HS is, for context, but overall, the answer is very well-aligned with the question.",4894.0,CON2-CH3-Q7-How should I clean HS wounds-Okoye.mp4,0.9,How should I clean my HS wounds?,"HS wounds can be cleaned with simple soap and water in the shower. That would be the most affordable option. However, sometimes we'll recommend that you use an antiseptic wash and there are a few on the market, some are based on bleach. CLN cleanser is an option. Hibaclens is another option. And something called Vashe. These are three washes that are antiseptic and very gentle on the skin that you can use to cleanse the wounds.",90.0,"The transcript provides a clear answer to the question by listing specific hygiene products that are safe for HS, including CLN cleanser, Hibaclens, and Vashe. It also mentions the use of simple soap and water, which is a basic and safe option. The answer is comprehensive and directly addresses the safety of these products for HS, but it could be improved by mentioning any potential side effects or considerations for sensitive skin, which would make it a perfect response.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.85,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",85.0,"The transcript provides a comprehensive answer to the question about safe hygiene products for HS (Hidradenitis Suppurativa). It discusses several antibacterial washes such as benzoyl peroxide, chlorhexidine, and zinc-based products, which are relevant to managing HS. It also mentions the use of diluted bleach baths and topical antibiotics like clindamycin, which are pertinent to the condition. However, the transcript focuses more on managing odor rather than explicitly listing 'safe' products, which might slightly deviate from the question's focus. Nonetheless, it effectively covers products that are generally considered safe and beneficial for HS, thus providing a well-rounded answer.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.732754111,907.0,HSS Overview,0.728453517,694.0,"Amy Lindberg 
S3 | E5",0.724623919
Can I use regular soap on HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i use regular soap on hs lesions?,Can I use regular soap on HS lesions?,Can I use regular soap on HS lesions?,No,,,searchable,exact-match,,,"[{""id"":1864},{""id"":1815},{""id"":1944},{""id"":1857}]",4894.0,CON2-CH3-Q7-How should I clean HS wounds-Okoye.mp4,0.85,How should I clean my HS wounds?,"HS wounds can be cleaned with simple soap and water in the shower. That would be the most affordable option. However, sometimes we'll recommend that you use an antiseptic wash and there are a few on the market, some are based on bleach. CLN cleanser is an option. Hibaclens is another option. And something called Vashe. These are three washes that are antiseptic and very gentle on the skin that you can use to cleanse the wounds.",85.0,"The transcript answers the question by confirming that regular soap and water can be used to clean HS lesions, which directly addresses the inquiry. It also provides additional information about antiseptic washes that might be recommended, offering a broader context for wound care. However, the transcript could be improved by explicitly stating whether regular soap is safe or advisable compared to antiseptic options, which would provide a more comprehensive answer.",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.4,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",40.0,"The transcript does not directly answer the question about using regular soap on HS lesions. Instead, it discusses various specialized soaps and cleansers that may be beneficial for HS, such as benzoyl peroxide wash, chlorhexidine, zinc-containing soaps, and diluted bleach. While it provides useful information on alternatives to regular soap, it does not explicitly address whether regular soap is safe or effective for HS lesions. The response could be improved by directly stating whether regular soap is recommended or not for HS.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.3,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",30.0,"The transcript does not directly answer the question about using regular soap on HS lesions. Instead, it discusses the use of specific body washes, such as CLN body wash and Hibiclens, for managing odor and flares associated with HS. While it suggests that CLN body wash is effective and gentle, it does not address whether regular soap is appropriate or safe for use on HS lesions. The information provided is relevant to managing HS but does not directly answer the question posed.",694.0,"Amy Lindberg 
S3 | E5",0.73416537,4533.0,What Will My Treatment Be Like?,0.732412219,1101.0,HSS Minute | Whole Lupus Patient,0.731060684
Should I use antibacterial wash for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i use antibacterial wash for hidradenitis suppurativa?,Should I use antibacterial wash for hidradenitis suppurativa?,Should I use antibacterial wash for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1857},{""id"":1815},{""id"":1885},{""id"":1887}]",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.9,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",90.0,"The transcript provides a comprehensive answer to the question about using antibacterial wash for Hidradenitis Suppurativa (HS). It explains that antibacterial washes, such as benzoyl peroxide and chlorhexidine, can help manage the odor associated with HS by killing bacteria on the skin. It also mentions other options like diluted bleach baths and zinc-based washes. The transcript further advises that there is no single best wash, suggesting trying different options to see what works best. Additionally, it touches on the use of topical antibiotics and other methods to manage odor. The response is detailed and informative, addressing the question effectively, though it could be slightly more concise.",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.9,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",90.0,"The transcript provides a comprehensive answer to the question about using antibacterial wash for Hidradenitis Suppurativa (HS). It specifically mentions benzoyl peroxide wash and chlorhexidine as antibacterial options that can be helpful for HS, which directly addresses the question. Additionally, it offers further information on other cleansing options like zinc soaps and diluted bleach, explaining their benefits and usage. The response is detailed and informative, covering various aspects of cleansing in HS management. However, it could be slightly improved by explicitly stating whether antibacterial washes are recommended or not, rather than implying it through examples.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.6,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",60.0,"The transcript provides relevant information about Hidradenitis Suppurativa (HS) and its treatment, emphasizing that HS is not an infection and that antibiotics are used to treat inflammation rather than infection. However, it does not directly address whether antibacterial wash should be used for HS. The transcript suggests that targeting inflammation is the primary strategy, which implies that antibacterial wash may not be necessary, but this is not explicitly stated. Therefore, while the transcript offers useful context, it does not directly answer the question about using antibacterial wash.",2302.0,Antibiotics and the Microbiome,0.756920874,2321.0,Health Conditions Impacted by the Microbiome,0.739641428,1109.0,Antibiotic Resistance | E5,0.738511622
What is the best body wash for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what is the best body wash for hs?,What is the best body wash for HS?,What is the best body wash for HS?,No,,,searchable,exact-match,,,"[{""id"":1944},{""id"":1815},{""id"":1938},{""id"":1864}]",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.9,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",90.0,"The transcript provides a specific recommendation for a body wash, CLN body wash, which is supported by survey data indicating its effectiveness in reducing flares, pain, and odor associated with HS. It also compares CLN body wash to another commonly recommended product, Hibiclens, highlighting the advantages of CLN in terms of gentleness and daily usability. The response is detailed and directly addresses the question, making it highly relevant and informative. However, it could be improved by mentioning other potential options or considerations for choosing a body wash for HS, which would provide a more comprehensive answer.",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.9,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",90.0,"The transcript provides a comprehensive answer to the question by listing several body washes that can be beneficial for HS, including benzoyl peroxide wash, chlorhexidine, zinc-containing soaps, and diluted bleach. It explains the antibacterial and anti-inflammatory properties of these options and suggests their use in managing HS. The answer is well-rounded, offering both over-the-counter and prescription options, and acknowledges that while these washes can be helpful, they are part of a broader management strategy for HS. The only minor limitation is that it doesn't specify which is 'best,' but it provides enough information for the user to make an informed choice.",4836.0,CON1-CH1-Q14-How do I deal with the odor caused by HS-Brooks.mp4,0.85,How do I deal with the odor caused by HS?,"The odor is a really, really difficult symptom to deal with. You're not alone in dealing with this. The odor is also not your fault. It's not caused by hygiene. It's just a part of the HS process. We have identified some body washes that work really, really well, like Clean Body Wash (CLN) works amazingly well for HS odor. It's purchased over the counter. There are a couple of other things that you can do that other patients in the community use to help with the odor as well. But just to reiterate, the odor is not your fault. It's not due to poor hygiene. And I would really, really encourage you to take a look at some of the options that we have that will potentially help. We've actually run a survey study and found that we had a reduction in odor with the use of the CLN body wash. So it's good to know that there are options out there that can help you with the odor because we know how uncomfortable that smell is, and you know that if you can smell it other people can, too. I have experienced so much of that in my journey and it's one of the hardest things to overcome and it makes you very, very self-conscious. So knowing that there are some things available out there that you can use to help mitigate that odor is amazing and I would highly encourage you to try some of those products and see if they help you too.",85.0,"The transcript provides a specific recommendation for a body wash, CLN Body Wash, which is stated to work well for HS odor. It also mentions a survey study supporting its effectiveness. While the transcript focuses on odor control, which is a significant concern for HS patients, it does not address other potential benefits or criteria for 'best body wash' such as skin sensitivity, moisturizing properties, or other symptoms of HS. However, it does provide a clear and supported answer regarding odor management, which is a key aspect for many individuals with HS.",907.0,HSS Overview,0.748050153,895.0,"Choose Better, Move Better",0.737626,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.734490454
Can Hibiclens help with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hibiclens help with hidradenitis suppurativa?,Can Hibiclens help with hidradenitis suppurativa?,Can Hibiclens help with hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1857},{""id"":1944},{""id"":1885},{""id"":1890}]",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.85,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",85.0,"The transcript provides a comprehensive answer to the question about using Hibiclens (chlorhexidine) for hidradenitis suppurativa (HS). It mentions chlorhexidine as an antibacterial wash that can help cleanse the skin of bacteria, which is relevant to managing HS. The transcript also discusses other antibacterial options like benzoyl peroxide and zinc, and suggests trying different washes to see which works best. While it doesn't specifically mention Hibiclens by name, it effectively covers the use of chlorhexidine, which is the active ingredient in Hibiclens. The answer is thorough and informative, addressing the broader context of managing HS odor, but could be slightly improved by explicitly naming Hibiclens.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.6,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",60.0,"The transcript partially addresses the question about Hibiclens and hidradenitis suppurativa (HS). It mentions that Hibiclens is often recommended as a cleanser for HS but notes that it can be very drying to the skin, which might create additional problems. However, the transcript does not directly address whether Hibiclens can help with HS beyond managing odor, nor does it provide detailed information on its effectiveness for HS specifically. Instead, it focuses more on recommending an alternative product, CLN body wash, which is suggested to be more effective and less drying. Therefore, while the transcript provides some relevant information, it does not fully answer the question about Hibiclens' efficacy for HS.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.3,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",30.0,"The transcript does not directly address whether Hibiclens can help with hidradenitis suppurativa (HS). It provides information about the nature of HS, emphasizing that it is not an infection and discussing the role of antibiotics in treating inflammation associated with HS. However, it does not mention Hibiclens, which is an antiseptic skin cleanser, nor does it discuss its potential benefits or drawbacks in the context of HS. Therefore, the transcript only indirectly relates to the question by discussing treatment strategies for HS, but it does not provide a clear answer regarding the use of Hibiclens.",833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.733120382,2321.0,Health Conditions Impacted by the Microbiome,0.732619524,3490.0,Support | Dr. Tiffany Lowe Clayton,0.730749249
Should I use benzoyl peroxide wash for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i use benzoyl peroxide wash for hs?,Should I use benzoyl peroxide wash for HS?,Should I use benzoyl peroxide wash for HS?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Can chlorhexidine prevent HS flares?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can chlorhexidine prevent hs flares?,Can chlorhexidine prevent HS flares?,Can chlorhexidine prevent HS flares?,No,,,searchable,exact-match,,,"[{""id"":1815},{""id"":1885},{""id"":1857},{""id"":1817}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.85,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",85.0,"The transcript provides a relevant answer to the question by mentioning chlorhexidine as a potential option for managing HS (Hidradenitis Suppurativa) flares. It explains that chlorhexidine is an antibacterial agent that can be used on affected areas, suggesting it may help control the condition. However, the transcript does not explicitly state that chlorhexidine prevents HS flares, but rather implies it could be beneficial as part of a broader management strategy. The answer is informative and relevant, but lacks direct evidence or studies specifically linking chlorhexidine to the prevention of HS flares, which slightly reduces the score.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.4,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",40.0,"The transcript does not directly address whether chlorhexidine can prevent HS flares. It provides information about the nature of HS, emphasizing that it is not an infection and discussing the role of antibiotics in treating inflammation rather than infection. However, it does not mention chlorhexidine or its potential effects on HS. The transcript's focus is on antibiotics like doxycycline, which are used for their anti-inflammatory properties, not on antiseptics like chlorhexidine. Therefore, the transcript only indirectly relates to the question by discussing the general approach to HS treatment, but it does not provide a clear answer regarding chlorhexidine's role.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.4,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",40.0,"The transcript primarily addresses the issue of odor management in HS (Hidradenitis Suppurativa) using antibacterial washes, including chlorhexidine. However, it does not directly answer the question of whether chlorhexidine can prevent HS flares. The focus is on odor control and bacterial management, with no specific mention of flare prevention. While there is some indirect implication that managing bacteria might help with HS symptoms, the transcript lacks a clear, direct answer to the question about flare prevention.",1020.0,Herniated Disc | Treating Flare-ups,0.746055961,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.741867781,2321.0,Health Conditions Impacted by the Microbiome,0.740357757
How often should I bathe if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how often should i bathe if i have hs?,How often should I bathe if I have HS?,How often should I bathe if I have HS?,No,,,searchable,loose-match,,,"[{""id"":1815},{""id"":1944},{""id"":1823},{""id"":1858}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.3,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",30.0,"The transcript provides information on various soaps and cleansers that can be beneficial for individuals with HS (Hidradenitis Suppurativa), such as benzoyl peroxide wash, chlorhexidine, zinc-containing soaps, and diluted bleach. However, it does not directly address the frequency of bathing, which is the main focus of the question. The response is informative about products that can be used during bathing but lacks specific guidance on how often one should bathe if they have HS. Therefore, while the information is relevant, it does not adequately answer the question posed.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.3,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",30.0,"The transcript does not directly answer the question about how often to bathe with HS. Instead, it focuses on recommending a specific body wash (CLN) for managing odor and mentions its benefits, such as reducing flare frequency and pain. While it suggests that CLN can be used every day, it does not explicitly address the frequency of bathing itself, which is the core of the question. The information provided is relevant to HS management but does not directly answer the question posed.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly answer the question about how often someone with HS should bathe. Instead, it discusses sweating as a trigger for HS and suggests ways to manage sweating, such as staying cool and discussing treatment options with a doctor. While managing sweat might indirectly relate to bathing frequency, the transcript fails to provide a clear recommendation or guideline on bathing frequency for someone with HS.",2310.0,Heart Health | Exercise Guidelines,0.733998179,4533.0,What Will My Treatment Be Like?,0.73365128,4647.0,Managing Your Mental Health,0.731127083
Is it better to shower or take baths with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,is it better to shower or take baths with hidradenitis suppurativa?,Is it better to shower or take baths with hidradenitis suppurativa?,Is it better to shower or take baths with Hidradenitis Suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1815},{""id"":1857},{""id"":1944},{""id"":1950}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.3,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",30.0,"The transcript does not directly address whether it is better to shower or take baths for individuals with Hidradenitis Suppurativa (HS). Instead, it focuses on the types of soaps and cleansers that can be beneficial for managing HS during washing. While it provides useful information about antibacterial and anti-inflammatory cleansers, it does not compare the benefits or drawbacks of showers versus baths for HS patients. Therefore, the transcript only partially addresses the question by discussing washing practices in general, but not the specific method of bathing.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.3,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",30.0,"The transcript does not directly address the question of whether it is better to shower or take baths with Hidradenitis Suppurativa (HS). Instead, it focuses on managing odor associated with HS through the use of antibacterial washes and other treatments. While it mentions the use of diluted bleach baths, it does not compare the benefits of showers versus baths for HS specifically. The information provided is relevant to HS care but does not answer the specific question asked.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.2,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",20.0,"The transcript does not directly address whether showering or taking baths is better for individuals with Hidradenitis Suppurativa. Instead, it focuses on recommending a specific body wash (CLN) for managing odor and flares associated with the condition. While it provides useful information about skin care products, it does not answer the question about the relative benefits of showers versus baths for HS patients.",2321.0,Health Conditions Impacted by the Microbiome,0.746171415,2327.0,When to See a Dietitian for Your Microbiome,0.743391395,1101.0,HSS Minute | Whole Lupus Patient,0.738331735
Can bleach baths help with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can bleach baths help with hs?,Can bleach baths help with HS?,Can bleach baths help with HS?,No,,,searchable,exact-match,,,"[{""id"":1815},{""id"":1857},{""id"":1864},{""id"":1944}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.85,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",85.0,"The transcript provides a comprehensive answer to the question about whether bleach baths can help with HS (Hidradenitis Suppurativa). It mentions that diluted bleach can be used on the skin, similar to swimming pool chlorine, and suggests it as a method to clean affected areas and potentially help control the disease. However, the transcript does not explicitly use the term 'bleach baths,' which might cause some confusion. Despite this, the explanation about using diluted bleach is relevant and informative, addressing the core of the question.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.85,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",85.0,"The transcript provides a comprehensive answer to the question about bleach baths helping with HS (Hidradenitis Suppurativa). It mentions that diluted bleach baths can have an antibacterial effect, which is relevant to managing HS symptoms, particularly odor. The transcript also discusses other antibacterial washes and treatments, providing a broader context for managing HS. However, it does not specifically address the efficacy of bleach baths in treating HS beyond odor control, which slightly limits the completeness of the answer.",4894.0,CON2-CH3-Q7-How should I clean HS wounds-Okoye.mp4,0.6,How should I clean my HS wounds?,"HS wounds can be cleaned with simple soap and water in the shower. That would be the most affordable option. However, sometimes we'll recommend that you use an antiseptic wash and there are a few on the market, some are based on bleach. CLN cleanser is an option. Hibaclens is another option. And something called Vashe. These are three washes that are antiseptic and very gentle on the skin that you can use to cleanse the wounds.",60.0,"The transcript partially addresses the question by mentioning antiseptic washes, some of which are based on bleach, as options for cleaning HS wounds. However, it does not directly address the concept of 'bleach baths' specifically, nor does it provide a clear recommendation or explanation of their effectiveness for HS. The response could be improved by explicitly discussing the use of bleach baths in the context of HS treatment.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.74074465,694.0,"Amy Lindberg 
S3 | E5",0.736552894,933.0,HSS Minute | Early Life Low Bone Density,0.726860881
Should I use deodorant if I have HS in my armpits?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i use deodorant if i have hs in my armpits?,Should I use deodorant if I have HS in my armpits?,Should I use deodorant if I have HS in my armpits?,No,,,searchable,exact-match,"condition management,lifestyle changes",,"[{""id"":1817},{""id"":1861},{""id"":1856},{""id"":1905}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.9,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",90.0,"The transcript provides a comprehensive answer to the question about using deodorant with HS (Hidradenitis Suppurativa) in the armpits. It explains that antiperspirants can trigger flares in some patients, while others may tolerate them well, emphasizing the need for trial and error. It suggests taking a break if flares occur and trying different brands or types. The transcript also offers alternative solutions, such as using antibacterial washes, which is helpful for those who cannot use deodorants. The only minor gap is that it doesn't explicitly state whether deodorant should be used or not, but it implies that it depends on individual tolerance.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.7,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",70.0,"The transcript provides a partial answer to the question by indicating that some patients with HS (Hidradenitis Suppurativa) experience flares when using deodorants, particularly antiperspirant deodorants. This suggests that using deodorant might not be advisable for some individuals with HS in their armpits. However, the transcript does not provide a definitive answer or guidance on whether the person asking the question should use deodorant, nor does it offer alternative solutions or considerations. Therefore, while it addresses the potential impact of deodorant on HS, it lacks comprehensive advice.",4889.0,CON2-CH2-Q1-What is the smell related to HS-Daveluy.mp4,0.4,What is the smell related to HS?,"The odor in HS is actually related to bacteria, but I want to be very clear that it is not an infection. That's one of the common misconceptions we hear with HS. And unfortunately it's often healthcare providers who are making the mistake and calling it an infection. But bacteria release odors when they break down oils and discharge from your body. That's why our armpits get odor as well. That's from bacteria. So it's very similar in that sense. But with HS, you have different bacteria that are part of the HS and inside the tunnels and in the drainage releasing this odor and causing the odor to come off of your body as part of the disease itself.",40.0,"The transcript provides some relevant information about the cause of odor in HS (Hidradenitis Suppurativa) and clarifies that it is not due to an infection, but rather bacteria breaking down oils and discharge. However, it does not directly address whether or not deodorant should be used by someone with HS in their armpits. The transcript lacks a direct answer to the question and does not discuss the potential benefits or risks of using deodorant in this context.",909.0,Osteoarthritis | When to See Your Doctor,0.717626512,77.0,Hyposmia,0.717172921,933.0,HSS Minute | Early Life Low Bone Density,0.717060268
Can deodorant make hidradenitis suppurativa worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can deodorant make hidradenitis suppurativa worse?,Can deodorant make hidradenitis suppurativa worse?,Can deodorant make Hidradenitis Suppurativa worse?,No,,,searchable,exact-match,,,"[{""id"":1817},{""id"":1861},{""id"":1823},{""id"":1873}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.9,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",90.0,"The transcript provides a comprehensive answer to the question by explaining that deodorants and antiperspirants can indeed trigger flares in some individuals with Hidradenitis Suppurativa (HS), while others may not experience any issues. It emphasizes the need for trial and error to determine individual reactions and suggests alternatives like antibacterial washes for those who cannot tolerate deodorants. The response is detailed and covers various aspects, including potential irritants in deodorants and alternative solutions, making it a well-rounded answer. However, it could be slightly improved by explicitly stating that deodorants can make HS worse for some people, which is implied but not directly stated.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.85,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",85.0,"The transcript provides a relevant answer to the question by indicating that while skincare products, including deodorants, are not typically associated with worsening Hidradenitis Suppurativa (HS), some patients have reported increased flare-ups when using deodorants, particularly antiperspirants. This suggests a potential link between deodorant use and worsening of HS symptoms, which directly addresses the question. However, the response could be improved by providing more detailed information or evidence regarding the relationship between deodorant use and HS.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.3,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",30.0,"The transcript does not directly address whether deodorant can make Hidradenitis Suppurativa (HS) worse. Instead, it focuses on sweating as a trigger for HS and suggests methods to manage sweating. While it mentions treatments to reduce sweating that might help with HS, it does not discuss the role of deodorant specifically. Therefore, the transcript only indirectly relates to the question by discussing sweating, which is not the same as addressing the impact of deodorant on HS.",689.0,"Rachel DePietro 
S3 | E2",0.713653743,2321.0,Health Conditions Impacted by the Microbiome,0.712827206,4533.0,What Will My Treatment Be Like?,0.712546468
What type of deodorant is safe for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what type of deodorant is safe for hs?,What type of deodorant is safe for HS?,What type of deodorant is safe for HS?,No,,,searchable,exact-match,,,"[{""id"":1817},{""id"":1857},{""id"":1944},{""id"":1861}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.7,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",70.0,"The transcript provides a general approach to selecting a deodorant for someone with HS (Hidradenitis Suppurativa), emphasizing trial and error to determine individual tolerance. It suggests avoiding products that cause flare-ups and trying different brands or types if issues arise. It also mentions alternative solutions like antibacterial washes. However, it does not specify particular deodorant brands or types that are universally considered safe for HS, which would have directly answered the question more effectively. The response is informative but lacks specific recommendations, hence the rating of 70.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.4,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",40.0,"The transcript does not directly answer the question about which type of deodorant is safe for HS (Hidradenitis Suppurativa). Instead, it discusses various antibacterial washes and treatments that can help manage odor associated with HS, such as benzoyl peroxide, chlorhexidine, and zinc-based products. While these treatments may help with odor, they are not deodorants. The transcript also mentions topical antibiotics and clothing with charcoal, but again, these are not deodorants. The response lacks a direct recommendation or discussion of deodorants specifically, which is what the question asked for.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.3,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",30.0,"The transcript does not directly answer the question about what type of deodorant is safe for HS (Hidradenitis Suppurativa). Instead, it discusses the use of CLN body wash as a method to manage odor associated with HS. While it provides information on managing odor, it does not address deodorants specifically, which is the focus of the question. The transcript also mentions Hibiclens and its drawbacks but does not relate this to deodorant use. Therefore, the response is not well-aligned with the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.730186701,694.0,"Amy Lindberg 
S3 | E5",0.722746193,895.0,"Choose Better, Move Better",0.720405936
Should I avoid aluminum-based deodorants with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i avoid aluminum-based deodorants with hs?,Should I avoid aluminum-based deodorants with HS?,Should I avoid aluminum-based deodorants with HS?,No,,,searchable,exact-match,,,"[{""id"":1817},{""id"":1861},{""id"":1823},{""id"":1944}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.85,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",85.0,"The transcript provides a comprehensive answer to the question about using aluminum-based deodorants with HS (Hidradenitis Suppurativa). It explains that antiperspirants can trigger flares in some patients, while others may tolerate them well, emphasizing the need for trial and error. It suggests taking a break if flares occur and trying different brands or types. The transcript also discusses the possibility of other ingredients causing irritation and offers alternatives like antibacterial washes. However, it does not specifically address aluminum-based deodorants, which slightly reduces the score.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.6,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",60.0,"The transcript partially addresses the question by suggesting that some patients with HS experience flares when using antiperspirant deodorants, which often contain aluminum. However, it does not explicitly advise whether to avoid aluminum-based deodorants. The response lacks a direct recommendation or a detailed explanation of the potential effects of aluminum on HS.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question about aluminum-based deodorants and their use in individuals with HS (Hidradenitis Suppurativa). Instead, it focuses on sweating as a trigger for HS and suggests ways to manage sweating, but it does not mention deodorants or the specific concern about aluminum-based products. Therefore, the transcript provides very little relevant information to answer the question posed.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.734888,933.0,HSS Minute | Early Life Low Bone Density,0.733904183,694.0,"Amy Lindberg 
S3 | E5",0.727769852
Can I use antiperspirant with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i use antiperspirant with hidradenitis suppurativa?,Can I use antiperspirant with hidradenitis suppurativa?,Can I use antiperspirant with hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1817},{""id"":1861},{""id"":1823},{""id"":1857}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.9,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",90.0,"The transcript provides a comprehensive answer to the question about using antiperspirant with hidradenitis suppurativa (HS). It acknowledges that antiperspirants can trigger flares in some patients while being fine for others, emphasizing the need for trial and error to determine individual tolerance. It also suggests alternatives like antibacterial washes for those who cannot use deodorants due to flare-ups. The response is detailed and covers various aspects, including potential irritants in antiperspirants and alternative solutions, making it a well-rounded answer. However, it could be slightly improved by explicitly stating that there is no universal contraindication for using antiperspirants with HS, which is implied but not directly stated.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.6,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",60.0,"The transcript partially addresses the question by mentioning that some patients with hidradenitis suppurativa (HS) experience flares when using antiperspirant deodorants. However, it does not provide a definitive answer or guidance on whether it is generally safe or recommended to use antiperspirants with HS. The response lacks a clear recommendation or alternative options, which would be helpful for someone seeking advice on this matter.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.4,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",40.0,"The transcript discusses the relationship between sweating and hidradenitis suppurativa (HS), mentioning that sweat can be a trigger for HS and suggesting ways to manage sweating. However, it does not directly address the question of whether antiperspirants can be used by someone with HS. The transcript suggests discussing sweating with a doctor to find appropriate treatments, but it lacks specific information about the safety or advisability of using antiperspirants in the context of HS. Therefore, while it provides some relevant context, it does not adequately answer the specific question posed.",694.0,"Amy Lindberg 
S3 | E5",0.721750379,4533.0,What Will My Treatment Be Like?,0.720954,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.717316151
What natural deodorants work with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what natural deodorants work with hs?,What natural deodorants work with HS?,What natural deodorants work with HS?,No,,,searchable,loose-match,,,"[{""id"":1817},{""id"":1944},{""id"":1938},{""id"":1925}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.4,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",40.0,"The transcript does not directly answer the question about which specific natural deodorants work with HS (Hidradenitis Suppurativa). Instead, it provides general advice on how to approach using deodorants or antiperspirants with HS, emphasizing trial and error to determine individual tolerance. It also suggests alternatives like antibacterial washes for managing body odor. However, it does not mention any specific natural deodorant brands or ingredients that might be suitable for individuals with HS, which is the core of the original question.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.4,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",40.0,"The transcript does not directly answer the question about natural deodorants for HS (Hidradenitis Suppurativa). Instead, it focuses on recommending CLN body wash, which is not specified as a natural deodorant. The transcript discusses the effectiveness of CLN body wash in reducing odor and other symptoms of HS, but it does not address natural deodorants specifically. Therefore, the response is not well-aligned with the question, which specifically asks about natural deodorants.",4836.0,CON1-CH1-Q14-How do I deal with the odor caused by HS-Brooks.mp4,0.3,How do I deal with the odor caused by HS?,"The odor is a really, really difficult symptom to deal with. You're not alone in dealing with this. The odor is also not your fault. It's not caused by hygiene. It's just a part of the HS process. We have identified some body washes that work really, really well, like Clean Body Wash (CLN) works amazingly well for HS odor. It's purchased over the counter. There are a couple of other things that you can do that other patients in the community use to help with the odor as well. But just to reiterate, the odor is not your fault. It's not due to poor hygiene. And I would really, really encourage you to take a look at some of the options that we have that will potentially help. We've actually run a survey study and found that we had a reduction in odor with the use of the CLN body wash. So it's good to know that there are options out there that can help you with the odor because we know how uncomfortable that smell is, and you know that if you can smell it other people can, too. I have experienced so much of that in my journey and it's one of the hardest things to overcome and it makes you very, very self-conscious. So knowing that there are some things available out there that you can use to help mitigate that odor is amazing and I would highly encourage you to try some of those products and see if they help you too.",30.0,"The transcript does not directly answer the question about which natural deodorants work with HS (Hidradenitis Suppurativa). Instead, it focuses on the challenges of dealing with odor associated with HS and mentions a specific body wash (CLN) that is effective for reducing odor. However, it does not address natural deodorants specifically, which was the main focus of the question. The response provides some useful information about managing odor but fails to directly address the query about natural deodorants.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.733862162,907.0,HSS Overview,0.7185148,908.0,Osteoarthritis | Diet and Nutrition,0.717745185
Can perfumes or fragrances trigger HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can perfumes or fragrances trigger hs?,Can perfumes or fragrances trigger HS?,Can perfumes or fragrances trigger HS?,No,,,searchable,exact-match,,,"[{""id"":1817},{""id"":1861},{""id"":1856},{""id"":1833}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.6,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",60.0,"The transcript does not directly address whether perfumes or fragrances can trigger HS (Hidradenitis Suppurativa). It focuses on antiperspirants and deodorants, mentioning that fragrances in these products might cause irritation, which indirectly suggests that perfumes could potentially trigger HS. However, the connection is not explicitly made, and the primary focus is on trial and error with deodorants and antiperspirants rather than perfumes or fragrances specifically. Therefore, while there is some relevant information, the answer is not directly aligned with the question.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.3,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",30.0,"The transcript does not directly address whether perfumes or fragrances can trigger HS (Hidradenitis Suppurativa). It mentions that some patients experience flares with deodorants and antiperspirants, which are not the same as perfumes or fragrances. The response is somewhat related as it discusses skincare products, but it does not specifically answer the question about perfumes or fragrances.",4889.0,CON2-CH2-Q1-What is the smell related to HS-Daveluy.mp4,0.2,What is the smell related to HS?,"The odor in HS is actually related to bacteria, but I want to be very clear that it is not an infection. That's one of the common misconceptions we hear with HS. And unfortunately it's often healthcare providers who are making the mistake and calling it an infection. But bacteria release odors when they break down oils and discharge from your body. That's why our armpits get odor as well. That's from bacteria. So it's very similar in that sense. But with HS, you have different bacteria that are part of the HS and inside the tunnels and in the drainage releasing this odor and causing the odor to come off of your body as part of the disease itself.",20.0,"The transcript does not directly address whether perfumes or fragrances can trigger HS (Hidradenitis Suppurativa). Instead, it focuses on explaining the source of odor in HS, which is related to bacteria, not infection. The transcript does not mention perfumes or fragrances at all, nor does it discuss potential triggers for HS. Therefore, it does not effectively answer the question posed.",1304.0,How COVID Affects Your Sense of Smell,0.737875462,77.0,Hyposmia,0.735421062,2218.0,TCE | An Invisible Cause of Parkinson's?,0.722037256
Should I avoid scented products if I have hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i avoid scented products if i have hidradenitis suppurativa?,Should I avoid scented products if I have hidradenitis suppurativa?,Should I avoid scented products if I have hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1817},{""id"":1861},{""id"":1944},{""id"":1857}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.75,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",75.0,"The transcript provides a relevant answer to the question by discussing the potential impact of antiperspirants and deodorants on hidradenitis suppurativa (HS) and suggests a trial-and-error approach to determine individual sensitivity. It mentions that fragrances or other ingredients might cause irritation, which indirectly addresses the question about scented products. However, it does not explicitly state whether all scented products should be avoided, focusing instead on deodorants and antiperspirants. The response could be improved by directly addressing the broader category of 'scented products' beyond deodorants and antiperspirants.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.6,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",60.0,"The transcript partially addresses the question by mentioning that some patients with hidradenitis suppurativa (HS) experience flares when using deodorants or antiperspirants. However, it does not directly address whether all scented products should be avoided, nor does it provide a comprehensive answer regarding the potential impact of other scented skincare products on HS. The response could be improved by explicitly discussing the role of scented products in general and providing more detailed guidance.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.3,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",30.0,"The transcript does not directly address whether scented products should be avoided for individuals with hidradenitis suppurativa (HS). Instead, it focuses on recommending a specific body wash (CLN) for managing odor associated with HS. While it mentions the effectiveness of this product in reducing odor and flares, it does not provide guidance on the use of scented products in general. The question is about avoiding scented products, but the transcript does not discuss the potential effects of scented products on HS, nor does it provide a clear answer to the question posed.",3562.0,Are there weight loss programs should I avoid?,0.727241457,4533.0,What Will My Treatment Be Like?,0.716760397,694.0,"Amy Lindberg 
S3 | E5",0.71596086
Can I shave if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i shave if i have hs?,Can I shave if I have HS?,Can I shave if I have HS?,No,,,searchable,exact-match,,,"[{""id"":1820},{""id"":1966},{""id"":1855},{""id"":1907}]",4829.0,CON1-CH1-Q10-Should I use hair remover instead of shaving-Daveluy.mp4,0.85,Should I use hair remover instead of shaving?,"When it comes to removing your hair in places like your armpit or your groin, it's a little variable and everyone responds a little differently. I have a lot of patients who ask this question, especially if they notice that shaving tends to make them flare up. What else can I do to get rid of the hair in the area? The best option is actually laser hair removal. We have great studies that show laser hair removal, by getting rid of the hairs, can help the HS. It can be a little challenging because depending where you live and what insurance you have, it may or may not be covered by your health insurance, so you may have to pay out of pocket and it may not be an option for everyone. But it's an important conversation to have was your dermatologist to see if that's an option for you. Other ways such as shaving or using what we call depilatory creams, which are the creams that you can use to remove hairs, are variable. Some patients can shave, have no problem, and actually find it helpful for their HS. For others, it triggers flare-ups. Some people use the depilatory cream and notice that it gets rid of the hair and it's helpful for the HS. For others, it can trigger flare-ups. So it's a little bit of trial and error in figuring out what's going to work well for you, which is sort of the rule of thumb when it comes to lifestyle changes in HS. You've got to try things out and see what works best for you, talk to other patients because they may also have some advice for something that worked to them, but remember that it may not work for you. So don't get your hopes up, well always keep your hopes up, but don't hang your hat on something working for you.",85.0,"The transcript provides a comprehensive answer to the question about shaving with HS (Hidradenitis Suppurativa). It acknowledges that shaving can be problematic for some individuals with HS, as it may trigger flare-ups, while others may not experience issues. It suggests alternatives like laser hair removal, which has been shown to help with HS, although it may not be accessible to everyone due to cost and insurance coverage. The transcript also mentions depilatory creams as another option, with similar variability in individual responses. Overall, the response is thorough and offers practical advice, but it could be improved by directly addressing the question at the beginning and providing a clearer summary of the main points.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.3,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",30.0,"The transcript does not directly answer the question about whether one can shave if they have HS (Hidradenitis Suppurativa). Instead, it provides information about the nature of HS, emphasizing that it is not contagious and is related to inflammation in hair follicles. While this background information might be useful, it does not address the specific concern about shaving. A more direct answer would discuss the potential risks or considerations of shaving with HS, such as avoiding irritation or infection of lesions.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.2,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",20.0,"The transcript does not directly address the question of whether a person with HS (Hidradenitis Suppurativa) can shave. Instead, it discusses the treatment of HS and acne, which is not relevant to the question about shaving. The response lacks any information about the safety or recommendations regarding shaving for individuals with HS.",933.0,HSS Minute | Early Life Low Bone Density,0.744695544,4533.0,What Will My Treatment Be Like?,0.741852403,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.733361065
Is it safe to wax with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,is it safe to wax with hidradenitis suppurativa?,Is it safe to wax with hidradenitis suppurativa?,Is it safe to wax with Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1964},{""id"":1907},{""id"":1950},{""id"":1861}]",5015.0,CON6-Q27-Does HS increase my risk of cancer-Daveluy.mp4,0.2,Does HS increase my risk of cancer?,"I'm glad you asked. We actually have some research that helps answer that question. I don't want to alarm you, but technically your HS does slightly increase your risk of getting skin cancer in the areas where you have HS. Any kind of chronic inflammation in the skin has that risk. So HS is included as it has that chronic inflammation. Why this is important is because the skin cancer most commonly develops in the buttocks or genital region in longstanding severe HS. So if you have bad HS for a long time, that's uncontrolled, that's when it can show up. It's important that it shows up in those areas because sometimes it's easier to just show your armpits or your chest at your visit and not show your dermatologist all the areas that your HS involves. But it's really important that you're having your dermatologist check all the areas at least once a year to make sure that there's nothing that looks like it could be skin cancer developing in those spots. It's really tricky because here's how skin cancer looks, an area of the skin that bleeds and won't heal well. And that's just how HS looks, so it can be really hard to distinguish them, and that's why it's important that you're allowing your dermatologist to examine those areas at least once a year, if not every visit, so we can make sure we're not missing that skin cancer. And like I said, don't freak out. It's not a huge elevated risk, but the risk is there, and it's important that you have those areas examined.",20.0,"The transcript does not directly address the question of whether it is safe to wax with Hidradenitis Suppurativa (HS). Instead, it focuses on the increased risk of skin cancer associated with chronic inflammation in HS and the importance of regular dermatological examinations. While this information is relevant to the general care of someone with HS, it does not provide any guidance or information about the safety or risks of waxing specifically for individuals with HS. Therefore, the transcript is largely unhelpful in answering the specific question posed.",4956.0,CON3-CH3-Q3-Is it hard to root out all the follicles during HS surgery-Daveluy.mp4,0.2,Is it hard to root out all the hair follicles during HS surgery?,"That's a great question and I'm very glad you used the word follicles. One of the myths about HS surgery is that we're removing the sweat glands. And this myth came about because we have special sweat glands in certain areas of our body, like our armpit and our groin and our buttocks and under our breasts, the areas where HS shows up. Those are the sweat glands that become active at puberty and give us our body odor. And so that's why people thought that HS was related to those sweat glands, but now we know it's actually more about the hair follicles in those areas. And so it can be tricky to get all of the HS when we're doing surgery. We can sometimes feel it on the surface when we're planning on what we're going to take out to get rid of it, and sometimes when we get inside we discover there's more under the surface that we couldn't feel. There's also been some really interesting studies with ultrasound that show there's usually more HS activity than we can tell with our eye, which makes sense if you look, ultrasound magnifies things so we can see these hair follicles that are involved. The tricky thing with surgery is even though HS is focused on the hair follicles, when we're doing the surgery, we're not actually looking at each follicle and removing it. We're looking more at the tunnels and the lesions and the damage that the HS has done and removing that. But laser hair removal does sort of aim to reduce the hair follicles and get rid of them to help prevent, and sometimes we even use it in combination with surgery.",20.0,"The transcript does not directly address the safety of waxing for individuals with Hidradenitis Suppurativa (HS). It discusses the nature of HS, its relation to hair follicles, and surgical approaches, but does not provide information on waxing or its safety. The mention of laser hair removal is somewhat related, but it does not answer the specific question about waxing. Therefore, the transcript is largely irrelevant to the question asked.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,The transcript does not address the safety of waxing for individuals with Hidradenitis Suppurativa. It discusses the lack of awareness and common misdiagnoses associated with the condition but does not provide any information related to waxing or its safety for those affected by HS.,3584.0,Is it safe to exercise if I have obesity and heart disease?,0.729987621,450.0,I Have Endometriosis,0.729473233,3494.0,Inflammation | Dr. Jim Januzzi,0.728656828
Can shaving make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can shaving make hs worse?,Can shaving make HS worse?,Can shaving make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1820},{""id"":1873},{""id"":1823},{""id"":1861}]",4829.0,CON1-CH1-Q10-Should I use hair remover instead of shaving-Daveluy.mp4,0.85,Should I use hair remover instead of shaving?,"When it comes to removing your hair in places like your armpit or your groin, it's a little variable and everyone responds a little differently. I have a lot of patients who ask this question, especially if they notice that shaving tends to make them flare up. What else can I do to get rid of the hair in the area? The best option is actually laser hair removal. We have great studies that show laser hair removal, by getting rid of the hairs, can help the HS. It can be a little challenging because depending where you live and what insurance you have, it may or may not be covered by your health insurance, so you may have to pay out of pocket and it may not be an option for everyone. But it's an important conversation to have was your dermatologist to see if that's an option for you. Other ways such as shaving or using what we call depilatory creams, which are the creams that you can use to remove hairs, are variable. Some patients can shave, have no problem, and actually find it helpful for their HS. For others, it triggers flare-ups. Some people use the depilatory cream and notice that it gets rid of the hair and it's helpful for the HS. For others, it can trigger flare-ups. So it's a little bit of trial and error in figuring out what's going to work well for you, which is sort of the rule of thumb when it comes to lifestyle changes in HS. You've got to try things out and see what works best for you, talk to other patients because they may also have some advice for something that worked to them, but remember that it may not work for you. So don't get your hopes up, well always keep your hopes up, but don't hang your hat on something working for you.",85.0,"The transcript provides a comprehensive answer to the question about whether shaving can make HS worse. It acknowledges that shaving can trigger flare-ups in some patients, while others may not experience any issues. It suggests laser hair removal as a potentially beneficial alternative and discusses the variability in individual responses to different hair removal methods. The answer emphasizes the importance of trial and error and consulting with a dermatologist, which is relevant and helpful. However, it could be slightly improved by directly stating that shaving can indeed make HS worse for some individuals, rather than implying it through examples.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.2,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",20.0,"The transcript does not directly address the question about shaving and its impact on HS (Hidradenitis Suppurativa). Instead, it discusses clothing and skin occlusion, which are related to friction and gland blockage, but does not mention shaving or its effects. Therefore, the answer is largely irrelevant to the specific question asked.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about shaving and its impact on HS (Hidradenitis Suppurativa) at all. Instead, it focuses entirely on sweating as a trigger for HS and ways to manage it. There is no mention of shaving or its effects, making the response largely irrelevant to the question asked.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.735886574,933.0,HSS Minute | Early Life Low Bone Density,0.729930699,907.0,HSS Overview,0.713984787
What is the safest hair removal method for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what is the safest hair removal method for hs?,What is the safest hair removal method for HS?,What is the safest hair removal method for HS?,No,,,searchable,exact-match,,,"[{""id"":1820},{""id"":1908},{""id"":1907},{""id"":1966}]",4829.0,CON1-CH1-Q10-Should I use hair remover instead of shaving-Daveluy.mp4,0.85,Should I use hair remover instead of shaving?,"When it comes to removing your hair in places like your armpit or your groin, it's a little variable and everyone responds a little differently. I have a lot of patients who ask this question, especially if they notice that shaving tends to make them flare up. What else can I do to get rid of the hair in the area? The best option is actually laser hair removal. We have great studies that show laser hair removal, by getting rid of the hairs, can help the HS. It can be a little challenging because depending where you live and what insurance you have, it may or may not be covered by your health insurance, so you may have to pay out of pocket and it may not be an option for everyone. But it's an important conversation to have was your dermatologist to see if that's an option for you. Other ways such as shaving or using what we call depilatory creams, which are the creams that you can use to remove hairs, are variable. Some patients can shave, have no problem, and actually find it helpful for their HS. For others, it triggers flare-ups. Some people use the depilatory cream and notice that it gets rid of the hair and it's helpful for the HS. For others, it can trigger flare-ups. So it's a little bit of trial and error in figuring out what's going to work well for you, which is sort of the rule of thumb when it comes to lifestyle changes in HS. You've got to try things out and see what works best for you, talk to other patients because they may also have some advice for something that worked to them, but remember that it may not work for you. So don't get your hopes up, well always keep your hopes up, but don't hang your hat on something working for you.",85.0,"The transcript provides a comprehensive answer to the question by identifying laser hair removal as the safest and most effective method for HS, supported by studies. It also discusses other methods like shaving and depilatory creams, noting their variable effectiveness and potential to cause flare-ups, emphasizing the need for individual trial and error. The transcript could be improved by directly addressing safety concerns and providing more specific guidance on how to approach laser hair removal, such as consulting with a dermatologist.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.6,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",60.0,"The transcript partially addresses the question by mentioning laser hair removal as a beneficial method for managing HS, especially in the early stages. However, it does not explicitly state that it is the 'safest' method, nor does it compare laser hair removal to other hair removal methods in terms of safety. The rest of the transcript focuses on surgical options for HS, which are not directly related to hair removal methods. Therefore, while it provides some relevant information, it does not fully answer the question about the safest hair removal method for HS.",4956.0,CON3-CH3-Q3-Is it hard to root out all the follicles during HS surgery-Daveluy.mp4,0.5,Is it hard to root out all the hair follicles during HS surgery?,"That's a great question and I'm very glad you used the word follicles. One of the myths about HS surgery is that we're removing the sweat glands. And this myth came about because we have special sweat glands in certain areas of our body, like our armpit and our groin and our buttocks and under our breasts, the areas where HS shows up. Those are the sweat glands that become active at puberty and give us our body odor. And so that's why people thought that HS was related to those sweat glands, but now we know it's actually more about the hair follicles in those areas. And so it can be tricky to get all of the HS when we're doing surgery. We can sometimes feel it on the surface when we're planning on what we're going to take out to get rid of it, and sometimes when we get inside we discover there's more under the surface that we couldn't feel. There's also been some really interesting studies with ultrasound that show there's usually more HS activity than we can tell with our eye, which makes sense if you look, ultrasound magnifies things so we can see these hair follicles that are involved. The tricky thing with surgery is even though HS is focused on the hair follicles, when we're doing the surgery, we're not actually looking at each follicle and removing it. We're looking more at the tunnels and the lesions and the damage that the HS has done and removing that. But laser hair removal does sort of aim to reduce the hair follicles and get rid of them to help prevent, and sometimes we even use it in combination with surgery.",50.0,"The transcript provides some relevant information about the role of hair follicles in HS and mentions laser hair removal as a method that targets hair follicles, which could be inferred as a safer method. However, it does not directly address the question of which hair removal method is the safest for HS. The discussion is more focused on the surgical aspects and the challenges of treating HS rather than evaluating or comparing the safety of different hair removal methods. Therefore, the answer is only partially relevant and lacks a direct response to the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.751062572,940.0,HSS Minute | Minimally Invasive Lumbar Surgery,0.744183779,932.0,HSS Minute | Total Hip Replacement Surgery,0.739914358
Can laser hair removal help prevent HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,can laser hair removal help prevent hs flares?,Can laser hair removal help prevent HS flares?,Can laser hair removal help prevent HS flares?,No,,,searchable,exact-match,,,"[{""id"":1820},{""id"":1908},{""id"":1907},{""id"":1919}]",4829.0,CON1-CH1-Q10-Should I use hair remover instead of shaving-Daveluy.mp4,0.9,Should I use hair remover instead of shaving?,"When it comes to removing your hair in places like your armpit or your groin, it's a little variable and everyone responds a little differently. I have a lot of patients who ask this question, especially if they notice that shaving tends to make them flare up. What else can I do to get rid of the hair in the area? The best option is actually laser hair removal. We have great studies that show laser hair removal, by getting rid of the hairs, can help the HS. It can be a little challenging because depending where you live and what insurance you have, it may or may not be covered by your health insurance, so you may have to pay out of pocket and it may not be an option for everyone. But it's an important conversation to have was your dermatologist to see if that's an option for you. Other ways such as shaving or using what we call depilatory creams, which are the creams that you can use to remove hairs, are variable. Some patients can shave, have no problem, and actually find it helpful for their HS. For others, it triggers flare-ups. Some people use the depilatory cream and notice that it gets rid of the hair and it's helpful for the HS. For others, it can trigger flare-ups. So it's a little bit of trial and error in figuring out what's going to work well for you, which is sort of the rule of thumb when it comes to lifestyle changes in HS. You've got to try things out and see what works best for you, talk to other patients because they may also have some advice for something that worked to them, but remember that it may not work for you. So don't get your hopes up, well always keep your hopes up, but don't hang your hat on something working for you.",90.0,"The transcript provides a comprehensive answer to the question about whether laser hair removal can help prevent HS (Hidradenitis Suppurativa) flares. It confirms that laser hair removal can be beneficial for HS by removing hair, which can help reduce flare-ups. The transcript also discusses the variability in individual responses to different hair removal methods, emphasizing the importance of personal trial and error and consultation with a dermatologist. It addresses potential insurance coverage issues, which is relevant for practical considerations. However, it could have been slightly more direct in explicitly stating that laser hair removal can help prevent HS flares, which is why it doesn't receive a perfect score.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.85,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",85.0,"The transcript provides a clear answer to the question by stating that laser hair removal can be beneficial for HS, especially earlier in the disease, by getting rid of hair follicles and helping to calm HS down and prevent flares. This directly addresses the question about whether laser hair removal can help prevent HS flares. However, the transcript includes a lot of additional information about other surgical options for HS, which, while informative, is not directly related to the question about laser hair removal. This extra information slightly detracts from the focus on the specific question asked.",4956.0,CON3-CH3-Q3-Is it hard to root out all the follicles during HS surgery-Daveluy.mp4,0.85,Is it hard to root out all the hair follicles during HS surgery?,"That's a great question and I'm very glad you used the word follicles. One of the myths about HS surgery is that we're removing the sweat glands. And this myth came about because we have special sweat glands in certain areas of our body, like our armpit and our groin and our buttocks and under our breasts, the areas where HS shows up. Those are the sweat glands that become active at puberty and give us our body odor. And so that's why people thought that HS was related to those sweat glands, but now we know it's actually more about the hair follicles in those areas. And so it can be tricky to get all of the HS when we're doing surgery. We can sometimes feel it on the surface when we're planning on what we're going to take out to get rid of it, and sometimes when we get inside we discover there's more under the surface that we couldn't feel. There's also been some really interesting studies with ultrasound that show there's usually more HS activity than we can tell with our eye, which makes sense if you look, ultrasound magnifies things so we can see these hair follicles that are involved. The tricky thing with surgery is even though HS is focused on the hair follicles, when we're doing the surgery, we're not actually looking at each follicle and removing it. We're looking more at the tunnels and the lesions and the damage that the HS has done and removing that. But laser hair removal does sort of aim to reduce the hair follicles and get rid of them to help prevent, and sometimes we even use it in combination with surgery.",85.0,"The transcript provides a relevant and informative answer to the question about laser hair removal and HS flares. It explains the relationship between hair follicles and HS, clarifying that HS is more related to hair follicles than sweat glands. It also mentions that laser hair removal aims to reduce hair follicles, which can help prevent HS flares, and notes that it is sometimes used in combination with surgery. However, the answer could be more direct and concise in addressing the specific question about prevention of HS flares.",1020.0,Herniated Disc | Treating Flare-ups,0.741048932,1113.0,Alopecia Areata | E9,0.731760144,4533.0,What Will My Treatment Be Like?,0.730636835
Should I stop shaving my armpits if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i stop shaving my armpits if i have hs?,Should I stop shaving my armpits if I have HS?,Should I stop shaving my armpits if I have HS?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Can electric razors be used with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can electric razors be used with hidradenitis suppurativa?,Can electric razors be used with hidradenitis suppurativa?,Can electric razors be used with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1820},{""id"":1950},{""id"":1885},{""id"":1861}]",4829.0,CON1-CH1-Q10-Should I use hair remover instead of shaving-Daveluy.mp4,0.6,Should I use hair remover instead of shaving?,"When it comes to removing your hair in places like your armpit or your groin, it's a little variable and everyone responds a little differently. I have a lot of patients who ask this question, especially if they notice that shaving tends to make them flare up. What else can I do to get rid of the hair in the area? The best option is actually laser hair removal. We have great studies that show laser hair removal, by getting rid of the hairs, can help the HS. It can be a little challenging because depending where you live and what insurance you have, it may or may not be covered by your health insurance, so you may have to pay out of pocket and it may not be an option for everyone. But it's an important conversation to have was your dermatologist to see if that's an option for you. Other ways such as shaving or using what we call depilatory creams, which are the creams that you can use to remove hairs, are variable. Some patients can shave, have no problem, and actually find it helpful for their HS. For others, it triggers flare-ups. Some people use the depilatory cream and notice that it gets rid of the hair and it's helpful for the HS. For others, it can trigger flare-ups. So it's a little bit of trial and error in figuring out what's going to work well for you, which is sort of the rule of thumb when it comes to lifestyle changes in HS. You've got to try things out and see what works best for you, talk to other patients because they may also have some advice for something that worked to them, but remember that it may not work for you. So don't get your hopes up, well always keep your hopes up, but don't hang your hat on something working for you.",60.0,"The transcript provides a general discussion about hair removal options for individuals with Hidradenitis Suppurativa (HS), including shaving and depilatory creams, but it does not specifically address the use of electric razors. It mentions that shaving can be variable in its effects on HS, suggesting that some methods may work for some people and not for others. However, the transcript lacks a direct answer to whether electric razors specifically can be used with HS, which is the focus of the question. The response is informative about hair removal in general for HS but does not directly answer the question about electric razors.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,The transcript does not address the question about the use of electric razors with Hidradenitis Suppurativa. It discusses the lack of awareness and common misdiagnoses associated with the condition but does not provide any information related to shaving or the suitability of electric razors for individuals with HS.,4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.1,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",10.0,"The transcript does not address the question about the use of electric razors with Hidradenitis Suppurativa (HS) at all. Instead, it discusses misconceptions about HS being an infection, the role of the microbiome, and the use of antibiotics like doxycycline to treat inflammation associated with HS. There is no mention of shaving, razors, or any related advice, making the transcript largely irrelevant to the question posed.",833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.719552696,586.0,Surgical Approaches,0.718061268,3773.0,How Prostate Cancer is Treated with Ablation - Yale Medicine Explains,0.716356039
Is it better to trim hair instead of shaving with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,is it better to trim hair instead of shaving with hs?,Is it better to trim hair instead of shaving with HS?,Is it better to trim hair instead of shaving with HS?,No,,,searchable,exact-match,,,"[{""id"":1820},{""id"":1907},{""id"":1905},{""id"":1908}]",4829.0,CON1-CH1-Q10-Should I use hair remover instead of shaving-Daveluy.mp4,0.7,Should I use hair remover instead of shaving?,"When it comes to removing your hair in places like your armpit or your groin, it's a little variable and everyone responds a little differently. I have a lot of patients who ask this question, especially if they notice that shaving tends to make them flare up. What else can I do to get rid of the hair in the area? The best option is actually laser hair removal. We have great studies that show laser hair removal, by getting rid of the hairs, can help the HS. It can be a little challenging because depending where you live and what insurance you have, it may or may not be covered by your health insurance, so you may have to pay out of pocket and it may not be an option for everyone. But it's an important conversation to have was your dermatologist to see if that's an option for you. Other ways such as shaving or using what we call depilatory creams, which are the creams that you can use to remove hairs, are variable. Some patients can shave, have no problem, and actually find it helpful for their HS. For others, it triggers flare-ups. Some people use the depilatory cream and notice that it gets rid of the hair and it's helpful for the HS. For others, it can trigger flare-ups. So it's a little bit of trial and error in figuring out what's going to work well for you, which is sort of the rule of thumb when it comes to lifestyle changes in HS. You've got to try things out and see what works best for you, talk to other patients because they may also have some advice for something that worked to them, but remember that it may not work for you. So don't get your hopes up, well always keep your hopes up, but don't hang your hat on something working for you.",70.0,"The transcript provides a comprehensive discussion on hair removal options for individuals with HS (Hidradenitis Suppurativa), including trimming, shaving, and other methods like laser hair removal and depilatory creams. However, it does not directly compare trimming to shaving, which is the specific focus of the question. The transcript emphasizes the variability in individual responses to different hair removal methods and suggests a trial-and-error approach, which is useful but does not directly address whether trimming is better than shaving. Therefore, while informative, the transcript only partially answers the question.",4956.0,CON3-CH3-Q3-Is it hard to root out all the follicles during HS surgery-Daveluy.mp4,0.2,Is it hard to root out all the hair follicles during HS surgery?,"That's a great question and I'm very glad you used the word follicles. One of the myths about HS surgery is that we're removing the sweat glands. And this myth came about because we have special sweat glands in certain areas of our body, like our armpit and our groin and our buttocks and under our breasts, the areas where HS shows up. Those are the sweat glands that become active at puberty and give us our body odor. And so that's why people thought that HS was related to those sweat glands, but now we know it's actually more about the hair follicles in those areas. And so it can be tricky to get all of the HS when we're doing surgery. We can sometimes feel it on the surface when we're planning on what we're going to take out to get rid of it, and sometimes when we get inside we discover there's more under the surface that we couldn't feel. There's also been some really interesting studies with ultrasound that show there's usually more HS activity than we can tell with our eye, which makes sense if you look, ultrasound magnifies things so we can see these hair follicles that are involved. The tricky thing with surgery is even though HS is focused on the hair follicles, when we're doing the surgery, we're not actually looking at each follicle and removing it. We're looking more at the tunnels and the lesions and the damage that the HS has done and removing that. But laser hair removal does sort of aim to reduce the hair follicles and get rid of them to help prevent, and sometimes we even use it in combination with surgery.",20.0,"The transcript does not directly address the question of whether it is better to trim hair instead of shaving with HS (Hidradenitis Suppurativa). The response focuses on the role of hair follicles in HS and discusses surgical and laser hair removal treatments, but it does not compare trimming versus shaving. The information provided is relevant to HS but does not answer the specific question asked.",4950.0,CON3-CH3-Q2-Do I have to have my sweat glands removed to get rid of HS-Daveluy.mp4,0.2,Do I have to get my sweat glands removed to get rid of HS?,"That is a great question and I hear it a lot from my patients. What's interesting is HS is not a disease of the sweat glands. It is more focused around the hair follicles. It shows up in areas of our body where we have special sweat glands that become active at puberty and give us body odor, like our armpits, and our groin, and our buttocks. And that's why people were confused before and thought it was probably a sweat gland disease, but now we know that it's not. Having said that, you may even have a surgeon who says, we're going to remove your sweat glands to help your HS. It's not totally false because the sweat glands are removed, but we're not going in there and picking out each little sweat gland to remove. We're actually removing the skin and the HS with it, so the sweat glands are in there, the hair follicles are in there, and it's not a disease of the sweat glands, and we're not really removing the sweat glands, we're doing an excision of the skin, or an excision of the tunnel, that has HS.",20.0,"The transcript does not directly address the question of whether it is better to trim hair instead of shaving for someone with HS (Hidradenitis Suppurativa). The response provides background information about HS, explaining that it is not a disease of the sweat glands but rather involves hair follicles. However, it does not offer any specific advice or comparison between trimming and shaving, which is the core of the question. The information given is somewhat relevant in understanding the condition, but it does not help in making a decision about hair removal methods.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.726750493,3560.0,Are weight loss programs something I should consider?,0.722362638,3619.0,Are weight loss programs something I should consider?,0.721716762
What clothing materials are best for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what clothing materials are best for hs?,What clothing materials are best for HS?,What clothing materials are best for HS?,No,,,searchable,exact-match,,,"[{""id"":1865},{""id"":1816},{""id"":1873},{""id"":1866}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.9,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",90.0,"The transcript effectively answers the question by recommending clothing materials that are 'stay-dry' or 'sweat-wicking,' which are typically athletic materials. These materials help keep the skin dry and reduce flares in patients with HS. The answer is clear and directly addresses the concern about clothing materials, but it could be slightly improved by mentioning specific types of fabrics, such as polyester or nylon, which are commonly used in sweat-wicking clothing.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.7,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",70.0,"The transcript provides a general answer to the question by discussing the importance of trial and error in finding suitable clothing materials for HS (Hidradenitis Suppurativa). It mentions the benefits of both loose and tight clothing, depending on individual needs and the state of the disease. However, it does not specify particular materials that are best for HS, such as cotton or moisture-wicking fabrics, which would have provided a more direct answer to the question. The reference to HS connect.org and patient support groups is helpful for further exploration but does not directly answer the question about specific materials.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.6,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",60.0,"The transcript provides a partial answer to the question by suggesting that looser fitting clothing is beneficial for HS as it reduces friction and allows the skin to breathe. However, it does not directly address specific clothing materials that are best for HS, which was the focus of the question. To fully answer the question, the response should include information on specific materials, such as cotton or moisture-wicking fabrics, that are recommended for individuals with HS.",907.0,HSS Overview,0.726775825,895.0,"Choose Better, Move Better",0.716684639,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.713666916
Should I wear cotton if I have hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i wear cotton if i have hidradenitis suppurativa?,Should I wear cotton if I have hidradenitis suppurativa?,Should I wear cotton if I have hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1873},{""id"":1865},{""id"":1816},{""id"":1862}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.75,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",75.0,"The transcript provides a partial answer to the question by suggesting that looser fitting clothing can help reduce friction and occlusion, which are factors that can exacerbate hidradenitis suppurativa (HS). This implies that breathable fabrics like cotton, which are typically looser and allow the skin to breathe, might be beneficial. However, the transcript does not explicitly mention cotton or directly answer whether cotton is specifically recommended for someone with HS. Therefore, while the advice is relevant, it lacks directness and specificity regarding the use of cotton.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.7,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",70.0,"The transcript provides a relevant answer by suggesting that wearing stay-dry or sweat-wicking clothing can help manage hidradenitis suppurativa (HS) by keeping the skin dry and reducing flares. However, it does not directly address whether cotton is a suitable material for someone with HS. Cotton is not mentioned, so the answer is incomplete in relation to the specific question about wearing cotton.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.6,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",60.0,"The transcript provides a general discussion about clothing choices for individuals with hidradenitis suppurativa, emphasizing the importance of trial and error and personal preference. It mentions the potential benefits of both loose and tight clothing, depending on the individual's condition and needs. However, it does not specifically address whether cotton is a recommended fabric choice, which was the focus of the question. The response is informative but lacks direct guidance on the use of cotton.",2327.0,When to See a Dietitian for Your Microbiome,0.719258845,833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.718484759,3494.0,Inflammation | Dr. Jim Januzzi,0.718058
Can synthetic fabrics make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can synthetic fabrics make hs worse?,Can synthetic fabrics make HS worse?,Can synthetic fabrics make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1865},{""id"":1873},{""id"":1816},{""id"":1823}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.85,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",85.0,"The transcript indirectly addresses the question by suggesting that clothing which keeps sweat away from the skin can help reduce HS flares. It implies that synthetic fabrics that are not sweat-wicking might exacerbate HS by allowing sweat to stay on the skin. However, it does not explicitly state that synthetic fabrics make HS worse, which leaves some room for interpretation. The focus is more on the benefits of sweat-wicking materials rather than the negative impact of non-wicking synthetic fabrics.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.6,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",60.0,"The transcript partially addresses the question by discussing how looser fitting clothing can help reduce friction and occlusion, which are factors that can worsen HS. However, it does not specifically address whether synthetic fabrics, as opposed to natural fabrics, have a particular impact on HS. The response would be more complete if it directly mentioned the effects of synthetic fabrics on HS.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.4,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",40.0,"The transcript does not directly address whether synthetic fabrics specifically make HS worse. Instead, it discusses the general impact of clothing tightness and friction on HS, suggesting that clothing choices are highly individual and may require trial and error. While it provides useful advice on how different types of clothing might affect HS, it does not specifically answer the question about synthetic fabrics. The mention of patient support groups and resources like HSconnect.org is helpful but does not directly address the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.722237587,3494.0,Inflammation | Dr. Jim Januzzi,0.718037724,694.0,"Amy Lindberg 
S3 | E5",0.713717
Should I avoid tight underwear with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i avoid tight underwear with hs?,Should I avoid tight underwear with HS?,Should I avoid tight underwear with HS?,No,,,searchable,exact-match,,,"[{""id"":1873},{""id"":1816},{""id"":1865},{""id"":1854}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.85,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",85.0,"The transcript effectively addresses the question by explaining that looser fitting clothing can help reduce friction and occlusion, which are factors that can exacerbate HS (Hidradenitis Suppurativa) lesions. This implies that tight underwear, which would increase friction and occlusion, should be avoided. However, the transcript does not explicitly mention 'tight underwear,' which slightly reduces the clarity of the response in directly answering the question.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.85,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",85.0,"The transcript provides a nuanced answer to the question about wearing tight underwear with HS (Hidradenitis Suppurativa). It explains that clothing choices can vary based on individual experiences and the state of the disease, suggesting that both loose and tight clothing have potential benefits depending on the situation. It emphasizes trial and error and refers to patient support groups for additional advice, which is helpful. However, it does not directly answer whether tight underwear should be avoided, leaving some ambiguity.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.7,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",70.0,"The transcript provides relevant information about managing HS (Hidradenitis Suppurativa) by suggesting the use of stay-dry or sweat-wicking clothing to reduce flares. However, it does not directly address the specific question about avoiding tight underwear. The advice implies that tight clothing might not be ideal due to its potential to trap sweat, but it does not explicitly state whether tight underwear should be avoided. Therefore, while the information is useful, it only partially answers the question.",933.0,HSS Minute | Early Life Low Bone Density,0.744757712,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.743874192,2310.0,Heart Health | Exercise Guidelines,0.736114621
What kind of bra should I wear with HS under my breasts?,searchable,Patient_Forums,Hidradenitis Suppurativa,what kind of bra should i wear with hs under my breasts?,What kind of bra should I wear with HS under my breasts?,What kind of bra should I wear with HS under my breasts?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1816},{""id"":1873},{""id"":1865},{""id"":1862}]",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.75,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",75.0,"The transcript provides a general approach to selecting clothing for individuals with HS, emphasizing trial and error and the importance of patient support groups. It suggests both loose and tight clothing options, depending on individual needs and disease state. However, it does not specifically address the type of bra to wear under the breasts, which is the focus of the question. The response is helpful but lacks direct guidance on bra selection.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.4,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",40.0,"The transcript provides a general recommendation for clothing to reduce friction and occlusion, which can exacerbate HS (Hidradenitis Suppurativa) lesions. However, it does not specifically address the type of bra that should be worn for someone with HS under the breasts. The advice is somewhat relevant in suggesting looser fitting clothing, but it lacks specific guidance on bra selection, such as material, fit, or style, which would be more directly applicable to the question.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.4,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",40.0,"The transcript provides a partial answer by suggesting the use of stay-dry or sweat-wicking materials, which can be relevant for managing HS under the breasts. However, it does not specifically address the type of bra that should be worn, such as style, fit, or specific brands that might be beneficial. The focus is more on the material rather than the type of bra, which limits the completeness of the answer.",1093.0,Breast Cancer | Feeling Empowered,0.732759953,1092.0,Breast Cancer | Understanding Your Disease,0.732334733,1096.0,Breast Cancer | Types of Tumors,0.726840138
Can wearing loose clothing help hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can wearing loose clothing help hidradenitis suppurativa?,Can wearing loose clothing help hidradenitis suppurativa?,Can wearing loose clothing help hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1873},{""id"":1816},{""id"":1865},{""id"":1823}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.9,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",90.0,"The transcript provides a clear and relevant answer to the question by explaining that wearing loose clothing can help reduce friction and occlusion, which are factors that can exacerbate hidradenitis suppurativa (HS). It effectively addresses the potential benefits of loose clothing in managing HS symptoms, aligning well with the question's focus. However, it could be slightly improved by explicitly stating that wearing loose clothing is beneficial for HS, rather than implying it through the explanation.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.85,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",85.0,"The transcript provides a nuanced answer to the question, explaining that loose clothing can help some individuals with hidradenitis suppurativa by reducing friction and flare-ups. It also acknowledges that tighter clothing might be beneficial for others, depending on their specific symptoms and needs. The response emphasizes the importance of trial and error and suggests consulting patient support groups for personalized advice. While the transcript does not give a definitive answer, it effectively addresses the complexity of the issue and offers practical guidance, making it a well-rounded response.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.7,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",70.0,"The transcript indirectly addresses the question by suggesting that sweat-wicking clothing can help reduce flares in hidradenitis suppurativa (HS) by keeping the skin dry. While it doesn't explicitly mention loose clothing, it implies that clothing choice is important for managing HS symptoms. However, it doesn't directly answer whether loose clothing specifically helps, hence the score is not higher.",3494.0,Inflammation | Dr. Jim Januzzi,0.740645885,833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.738056183,439.0,It's Time to Normalize Mom Bods,0.736423433
Should I go braless if I have HS under my breasts?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,should i go braless if i have hs under my breasts?,Should I go braless if I have HS under my breasts?,Should I go braless if I have HS under my breasts?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1873},{""id"":1816},{""id"":1854},{""id"":1823}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.85,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",85.0,"The transcript provides a relevant answer to the question by suggesting that looser fitting clothing, which could include going braless, may help reduce friction and occlusion, potentially improving HS symptoms. However, it does not explicitly mention going braless, which leaves some room for interpretation. The advice aligns with the general recommendation for managing HS, but a more direct answer would improve clarity.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.7,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",70.0,"The transcript provides a general approach to clothing choices for individuals with HS, emphasizing trial and error and the importance of patient support groups. It suggests that loose clothing might be beneficial to avoid friction, while tighter garments might help in other situations. However, it does not directly answer whether going braless is advisable for someone with HS under the breasts. The response is informative but lacks a specific recommendation regarding the question of going braless.",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.4,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",40.0,"The transcript provides relevant information about how friction can contribute to HS (Hidradenitis Suppurativa) lesions, mentioning that areas like underarms, groin, and places where bra straps or waistbands rub can be affected. However, it does not directly address whether going braless is advisable for someone with HS under the breasts. The connection between reducing friction by going braless and potentially alleviating HS symptoms is implied but not explicitly stated, leaving the question partially answered.",1093.0,Breast Cancer | Feeling Empowered,0.749610841,933.0,HSS Minute | Early Life Low Bone Density,0.748189688,1092.0,Breast Cancer | Understanding Your Disease,0.743672729
What underwear works best for groin HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what underwear works best for groin hs?,What underwear works best for groin HS?,What underwear works best for groin HS?,No,,,searchable,exact-match,,,"[{""id"":1816},{""id"":1873},{""id"":1865},{""id"":1866}]",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.75,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",75.0,"The transcript provides a general approach to selecting underwear for groin HS, emphasizing the importance of trial and error and personal preference. It suggests both loose and tight clothing options, depending on individual triggers and disease state, and highlights the utility of patient support groups for shared experiences. However, it does not specify particular types or brands of underwear, which would directly answer the question. The response is informative but lacks specific recommendations, which is why it does not score higher.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.7,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",70.0,"The transcript provides a general recommendation for clothing that could be beneficial for someone with groin HS, suggesting looser fitting clothing to reduce friction and occlusion, which can exacerbate HS. However, it does not specifically address the type of underwear that works best, which was the focus of the question. More specific guidance on underwear materials or styles would improve the answer.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.7,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",70.0,"The transcript provides a general recommendation for clothing that could be beneficial for someone with HS, specifically focusing on materials that are stay-dry or sweat-wicking. This advice is relevant because it addresses the issue of sweat management, which is important for reducing HS flares. However, the transcript does not specifically address the type of underwear that works best for groin HS, which was the focus of the question. A more direct answer would have included specific types or brands of underwear that incorporate these materials.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.737889707,895.0,"Choose Better, Move Better",0.728092611,907.0,HSS Overview,0.727903366
Can moisture-wicking clothing help with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can moisture-wicking clothing help with hs?,Can moisture-wicking clothing help with HS?,Can moisture-wicking clothing help with HS?,No,,,searchable,exact-match,,,"[{""id"":1865},{""id"":1816},{""id"":1873},{""id"":1823}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.95,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",95.0,"The transcript provides a clear and direct answer to the question by explaining that moisture-wicking clothing can help with HS (Hidradenitis Suppurativa) by keeping the skin dry and reducing sweat-induced flares. It suggests using clothing marketed as stay-dry or sweat-wicking, which are typically athletic materials. This directly addresses the question about the benefits of moisture-wicking clothing for HS, making the response highly relevant and informative. The only minor improvement could be a brief explanation of what HS is, for complete clarity.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.7,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",70.0,"The transcript provides a general discussion on clothing choices for HS, mentioning the benefits of loose and tight clothing, but does not specifically address moisture-wicking clothing. It suggests trial and error and consulting patient support groups, which is helpful but indirect in answering the specific question about moisture-wicking clothing.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.6,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",60.0,"The transcript partially addresses the question by discussing the benefits of looser fitting clothing in reducing friction and occlusion, which can exacerbate HS. However, it does not specifically address moisture-wicking clothing, which is the focus of the question. Moisture-wicking clothing could potentially help by keeping the skin dry and reducing irritation, but this aspect is not covered in the response.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.742780805,4647.0,Managing Your Mental Health,0.742715418,2306.0,Heart Health | Benefits of Exercise,0.741107106
Should I use anti-chafing products for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i use anti-chafing products for hs?,Should I use anti-chafing products for HS?,Should I use anti-chafing products for HS?,No,,,searchable,loose-match,,,"[{""id"":1865},{""id"":1817},{""id"":1873},{""id"":1816}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.4,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",40.0,"The transcript does not directly address the question about using anti-chafing products for HS (Hidradenitis Suppurativa). Instead, it focuses on the benefits of wearing stay-dry or sweat-wicking clothing to manage sweating and reduce flares. While this advice is related to managing HS, it does not specifically answer whether anti-chafing products should be used. The response could be improved by directly discussing the use of anti-chafing products in the context of HS.",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.3,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",30.0,"The transcript primarily discusses the use of antiperspirants and deodorants in relation to HS (Hidradenitis Suppurativa), focusing on their potential to trigger flares and the need for trial and error in determining individual tolerance. However, the question specifically asks about anti-chafing products, which are not addressed in the transcript. Anti-chafing products are typically different from antiperspirants and deodorants, as they are designed to reduce friction rather than control sweat or odor. Therefore, the transcript does not directly answer the question about anti-chafing products for HS, resulting in a low rating.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.3,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",30.0,"The transcript does not directly address the question about using anti-chafing products for HS (Hidradenitis Suppurativa). Instead, it discusses the benefits of wearing looser fitting clothing to reduce friction and occlusion, which can exacerbate HS. While this information is somewhat related, as it pertains to reducing friction, it does not specifically answer whether anti-chafing products should be used. A more direct answer would discuss the potential benefits or drawbacks of using such products in the context of HS.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.741152167,3652.0,Your Guide to Sunscreen,0.732474864,895.0,"Choose Better, Move Better",0.730436742
What anti-chafing creams are safe for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what anti-chafing creams are safe for hidradenitis suppurativa?,What anti-chafing creams are safe for hidradenitis suppurativa?,What anti-chafing creams are safe for Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1817},{""id"":1816},{""id"":1890},{""id"":1861}]",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.2,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",20.0,"The transcript does not directly address the question about anti-chafing creams safe for Hidradenitis Suppurativa (HS). Instead, it discusses the use of antiperspirants and deodorants in relation to HS, mentioning trial and error with these products and alternatives like antibacterial washes. There is no mention of anti-chafing creams or specific recommendations for safe products for HS, making the response largely irrelevant to the question asked.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.2,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",20.0,"The transcript does not directly address the question about anti-chafing creams safe for Hidradenitis Suppurativa. Instead, it discusses clothing options and the importance of trial and error in managing the condition, which is relevant but not directly answering the question about creams. The mention of patient support groups could indirectly lead to finding information about creams, but this is not explicitly stated.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.2,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",20.0,"The transcript primarily discusses the use of topical and oral antibiotics for managing Hidradenitis Suppurativa (HS), focusing on clindamycin and its application. However, it does not address the specific question about anti-chafing creams that are safe for HS. The information provided is relevant to HS treatment but does not directly answer the question about anti-chafing creams, which are typically used to prevent skin irritation and chafing rather than treating HS itself.",833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.732504427,3652.0,Your Guide to Sunscreen,0.731467545,694.0,"Amy Lindberg 
S3 | E5",0.730365694
Can body powder help prevent HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,can body powder help prevent hs flares?,Can body powder help prevent HS flares?,Can body powder help prevent HS flares?,No,,,searchable,loose-match,,,"[{""id"":1865},{""id"":1817},{""id"":1861},{""id"":1880}]",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.4,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",40.0,"The transcript does not directly address whether body powder can help prevent HS flares. Instead, it focuses on the role of sweat in triggering flares and suggests using stay-dry or sweat-wicking clothing as a preventive measure. While the advice is related to managing moisture, it does not specifically mention body powder or its effectiveness in preventing HS flares. Therefore, the answer is only partially relevant to the question.",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.3,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",30.0,"The transcript primarily discusses the impact of antiperspirants and deodorants on HS flares, mentioning trial and error in finding suitable products. It does not directly address the use of body powder for preventing HS flares. While it touches on related topics like skin irritation and alternative methods for managing body odor, it lacks specific information on body powder's effectiveness or role in HS management. Therefore, the answer is not directly relevant to the question asked.",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.2,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",20.0,"The transcript does not directly address whether body powder can help prevent HS flares. It only mentions that some patients experience flares with deodorants and antiperspirants, which is not directly related to the use of body powder. The response lacks information on the potential benefits or drawbacks of using body powder for HS, making it largely irrelevant to the question.",3494.0,Inflammation | Dr. Jim Januzzi,0.734904051,933.0,HSS Minute | Early Life Low Bone Density,0.728503883,1020.0,Herniated Disc | Treating Flare-ups,0.725924551
Is talcum powder safe to use with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,is talcum powder safe to use with hs?,Is talcum powder safe to use with HS?,Is talcum powder safe to use with HS?,No,,,searchable,no-match,,,"[{""id"":1861},{""id"":1817},{""id"":1925},{""id"":1964}]",4892.0,CON2-CH3-Q4-Are there skin products I should avoid-Okoye.mp4,0.2,Are there skin products I should avoid?,"Skincare products aren't usually associated with worsening HS. However, some of my patients have told me that when they use deodorant, antiperspirant deodorants, they tend to flare more in their underarms.",20.0,"The transcript does not directly address the safety of talcum powder in relation to HS (Hidradenitis Suppurativa). It only mentions that some patients experience flares with deodorants and antiperspirants, which is not directly related to talcum powder. The response lacks specific information about talcum powder and its effects on HS, making it largely unhelpful for answering the question.",4831.0,CON1-CH1-Q7-Should I avoid using antiperspirants-Daveluy.mp4,0.2,Should I avoid wearing antipersperants?,"For some patients antiperspirant can trigger flares of HS. For others it's perfectly fine. So just like I've probably said for a lot of things with HS, it takes a little trial and error to figure out how your HS is going to respond to your antiperspirant or your deodorant or both. If you find it is seeming to cause flares and triggers, then I say take a break. And then once the HS has improved, you can try a different brand or a different type of deodorant or antiperspirant and see if that leads to flares or if your body tolerates it a little better. Because one of the challenges is it may not be a direct impact on the HS, it might be the fragrances that are in it or another ingredient that's causing irritation. So it takes a little bit of trial and error and that can be hard in HS because sometimes it just flares because it wants to. So I say if you use a deodorant and you get a flare up afterward, it might not have been the deodorant. You might need to try it again a different time and see if it consistently causes flare-ups, then I would avoid it. In situations where you can't use deodorant, sometimes antibacterial washes can help to eliminate body odor because it's caused by bacteria. So using some of the washes that we use in HS, like benzoyl peroxide, chlorhexidine or zinc shampoo can help to reduce body odor for people who can't use deodorants because they cause triggers and flare-ups.",20.0,"The transcript does not directly address the question about the safety of talcum powder in relation to HS (Hidradenitis Suppurativa). Instead, it discusses the use of antiperspirants and deodorants, their potential to trigger HS flares, and alternatives like antibacterial washes. There is no mention of talcum powder, its effects, or its safety for individuals with HS, making the response largely irrelevant to the specific question asked.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.2,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",20.0,"The transcript does not directly address the safety of using talcum powder with HS (Hidradenitis Suppurativa). It provides general advice on considering natural remedies and discussing them with a healthcare provider, but it does not specifically mention talcum powder or its safety. Therefore, it only partially addresses the question by suggesting a general approach to trying new treatments.",694.0,"Amy Lindberg 
S3 | E5",0.733909905,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.723713458,2218.0,TCE | An Invisible Cause of Parkinson's?,0.723176301
Can cornstarch help with moisture control for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can cornstarch help with moisture control for hidradenitis suppurativa?,Can cornstarch help with moisture control for hidradenitis suppurativa?,Can cornstarch help with moisture control for hidradenitis suppurativa?,No,,,searchable,no-match,,,"[{""id"":1866},{""id"":1873},{""id"":1950},{""id"":1816}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.2,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",20.0,"The transcript does not directly address the question about using cornstarch for moisture control in hidradenitis suppurativa. Instead, it discusses various dressing options and absorbent materials for managing drainage from HS lesions. Cornstarch is not mentioned at all, and the focus is on other methods of moisture and drainage control, which makes the response largely irrelevant to the specific question asked.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.2,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",20.0,"The transcript does not directly address the question about whether cornstarch can help with moisture control for hidradenitis suppurativa (HS). Instead, it discusses general advice on clothing choices to reduce friction and occlusion, which are factors that can exacerbate HS. There is no mention of cornstarch or its potential benefits or drawbacks in managing moisture for HS. Therefore, the transcript provides very limited relevance to the specific question asked.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether cornstarch can help with moisture control for hidradenitis suppurativa. Instead, it discusses the general lack of awareness and misdiagnosis issues related to the condition. There is no mention of cornstarch or moisture control strategies in the transcript.",1117.0,Six Ways to Improve Your Diabetes Control,0.734546781,2321.0,Health Conditions Impacted by the Microbiome,0.734131157,3494.0,Inflammation | Dr. Jim Januzzi,0.733125031
How do I sleep comfortably with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i sleep comfortably with hs?,How do I sleep comfortably with HS?,How do I sleep comfortably with HS?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1873},{""id"":1823},{""id"":1822},{""id"":1970}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.6,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",60.0,"The transcript provides partial advice on how to sleep comfortably with HS by suggesting wearing looser fitting clothing to reduce friction and occlusion, which can exacerbate HS lesions. However, it does not directly address specific sleeping positions, bedding materials, or other strategies that might help improve comfort while sleeping with HS. Therefore, while the advice is relevant, it is not comprehensive in addressing the full scope of the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question of how to sleep comfortably with HS (Hidradenitis Suppurativa). Instead, it focuses on sweating as a trigger for HS and suggests general strategies to avoid sweating, such as staying in air-conditioned environments. While managing sweating might indirectly help with comfort, the transcript lacks specific advice on sleeping comfortably, such as bedding choices, sleeping positions, or nighttime skincare routines. Therefore, it only partially relates to the question and does not provide a comprehensive answer.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.2,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",20.0,"The transcript primarily addresses managing HS (Hidradenitis Suppurativa) symptoms related to sitting, particularly on hard surfaces, and suggests solutions like using a cushion or standing desks. However, it does not directly address how to sleep comfortably with HS, which was the focus of the question. The advice given is more applicable to sitting and working conditions rather than sleeping. Therefore, the transcript does not adequately answer the question about sleeping comfortably with HS.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.768413901,847.0,House Calls | Sleep & Wellness,0.766774237,572.0,Sleep Issues,0.750535
What sleeping position is best for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what sleeping position is best for hidradenitis suppurativa?,What sleeping position is best for hidradenitis suppurativa?,What sleeping position is best for Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1950},{""id"":1873},{""id"":1942},{""id"":1908}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about the best sleeping position for Hidradenitis Suppurativa at all. Instead, it discusses the general lack of awareness and common misdiagnoses associated with the condition. There is no information provided about sleeping positions or any advice related to managing the condition during sleep.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.1,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",10.0,"The transcript does not directly address the question about the best sleeping position for Hidradenitis Suppurativa. Instead, it discusses clothing choices and how they might affect the condition. While it hints at reducing friction, which could be related to sleeping positions, it does not provide a specific answer to the question asked.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.1,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",10.0,"The transcript does not address the question about the best sleeping position for Hidradenitis Suppurativa at all. Instead, it focuses on managing drainage from abscesses, bandaging techniques, and community support. There is no mention of sleeping positions or how they might affect someone with HS.",572.0,Sleep Issues,0.748576045,847.0,House Calls | Sleep & Wellness,0.746563852,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.746333063
Can certain pillows or bedding help with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can certain pillows or bedding help with hs?,Can certain pillows or bedding help with HS?,Can certain pillows or bedding help with HS?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1823},{""id"":1873},{""id"":1816}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.6,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",60.0,"The transcript addresses the use of pillows in the context of reducing flare-ups for HS, particularly when sitting is a trigger. However, it does not directly address the broader question of whether certain pillows or bedding can help with HS in general. The focus is more on sitting comfort rather than bedding or pillows used during sleep, which limits the completeness of the answer.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question about whether certain pillows or bedding can help with HS (Hidradenitis Suppurativa). Instead, it focuses on sweating as a trigger for HS and suggests general strategies to manage sweating, such as using air conditioning or discussing treatments with a doctor. There is no mention of specific types of pillows or bedding that might be beneficial for HS, which is the core of the question.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.2,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",20.0,"The transcript does not directly address the question about whether certain pillows or bedding can help with HS (Hidradenitis Suppurativa). Instead, it discusses the benefits of looser fitting clothing in reducing friction and occlusion, which can exacerbate HS. While the concept of reducing friction is relevant, the transcript fails to specifically mention pillows or bedding, which were the focus of the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.761169255,847.0,House Calls | Sleep & Wellness,0.751905262,4804.0,Counting Sheep with Lewy: Coping with Sleep Disturbances in LBD,0.750069678
How do I manage HS pain at night?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage hs pain at night?,How do I manage HS pain at night?,How do I manage HS pain at night?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1874},{""id"":1926},{""id"":1823},{""id"":1841}]",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.75,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",75.0,"The transcript provides a general approach to managing HS pain, emphasizing the importance of controlling inflammation with appropriate medication. It mentions the use of home remedies, over-the-counter medications, and narcotics when necessary. However, it does not specifically address nighttime pain management strategies, which could include sleep positioning, specific nighttime medications, or routines to minimize discomfort during sleep.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.2,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",20.0,"The transcript does not directly address the question of managing HS pain at night. It discusses general stress management techniques that might indirectly help with HS symptoms, but it does not provide specific strategies or advice for nighttime pain management. The response lacks focus on the specific context of nighttime pain, which is crucial for adequately answering the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript primarily discusses sweating as a trigger for HS and suggests ways to manage sweating, such as staying in air-conditioned environments. However, it does not directly address managing HS pain at night, which is the focus of the question. The advice given may indirectly help by reducing flare-ups, but it lacks specific strategies for nighttime pain management.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.803852499,2880.0,Pain Management After Surgery,0.768686712,3647.0,Pain Management,0.758610487
Should I use special sheets if I have draining HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i use special sheets if i have draining hs lesions?,Should I use special sheets if I have draining HS lesions?,Should I use special sheets if I have draining HS lesions?,No,,,searchable,exact-match,,,"[{""id"":1866},{""id"":1862},{""id"":1942},{""id"":1873}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.85,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",85.0,"The transcript provides a comprehensive answer to the question about using special sheets for draining HS lesions. It discusses various dressing options based on the severity and location of the lesions, including high-tech dressings, non-stick gauze, and absorbent materials like sanitary napkins and diapers. While it doesn't specifically mention 'sheets,' it covers a wide range of absorbent materials that can be used to manage drainage, which effectively addresses the underlying concern of the question. The answer could be improved by directly addressing the use of sheets or bedding materials, but overall, it offers practical solutions for managing drainage.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.7,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",70.0,"The transcript provides useful information about managing drainage from HS lesions, suggesting the use of absorbent materials like gauze, sanitary napkins, or diapers. However, it does not directly address the question about using special sheets. The focus is more on dressings and absorbent materials for the body rather than bedding solutions. To fully answer the question, the transcript should have included advice on whether special sheets or mattress protectors are recommended for individuals with draining HS lesions.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.4,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",40.0,"The transcript does not directly address the question about using special sheets for draining HS lesions. Instead, it focuses on managing drainage with bandages and provides advice on different types of bandages and techniques to protect the skin. While it offers useful information for managing drainage, it does not specifically discuss the use of special sheets or bedding, which is the main focus of the question.",3635.0,Drain Care,0.744109273,1020.0,Herniated Disc | Treating Flare-ups,0.734002054,1101.0,HSS Minute | Whole Lupus Patient,0.733966172
How do I protect my bedding from HS drainage?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i protect my bedding from hs drainage?,How do I protect my bedding from HS drainage?,How do I protect my bedding from HS drainage?,No,,,searchable,exact-match,,,"[{""id"":1866},{""id"":1862},{""id"":1942},{""id"":1859}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.85,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",85.0,"The transcript provides a comprehensive answer to the question about protecting bedding from HS drainage by discussing various dressing options that can absorb drainage effectively. It suggests using non-stick gauze, sanitary napkins, baby diapers, and adult diapers, which can prevent drainage from reaching bedding. However, the transcript focuses more on personal clothing protection and does not explicitly mention bedding, which slightly reduces the score.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.75,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",75.0,"The transcript provides practical advice on managing HS drainage, which indirectly helps protect bedding. It suggests using absorbent materials like gauze, sanitary napkins, or diapers to manage drainage, which can prevent it from reaching bedding. However, it does not explicitly mention bedding protection strategies, such as using waterproof mattress covers or protective sheets, which would directly address the question.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.6,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",60.0,"The transcript provides some useful information about managing HS drainage, particularly through the use of bandages to keep the drainage away from the skin. However, it does not directly address how to protect bedding from HS drainage, which is the specific focus of the question. The advice given is more about personal care and managing skin irritation rather than protecting bedding. The mention of community resources suggests that there might be more information available, but it is not directly provided in the transcript.",3635.0,Drain Care,0.74516511,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.722571194,3640.0,How to Protect Yourself from the Sun,0.71529752
Can sitting too long make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can sitting too long make hs worse?,Can sitting too long make HS worse?,Can sitting too long make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1926},{""id"":1823},{""id"":1838}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.9,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",90.0,"The transcript effectively addresses the question by explaining that sitting, particularly on hard surfaces, can indeed worsen HS (Hidradenitis Suppurativa) for some individuals, especially if it affects the buttocks. It provides practical solutions such as using a cushion, changing chairs, or using a standing desk to mitigate the issue. The response is comprehensive and directly related to the question, but it could be slightly improved by explicitly stating that sitting too long can exacerbate HS symptoms, rather than implying it through the need for adjustments.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.3,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",30.0,"The transcript does not directly address whether sitting too long can make HS worse. It focuses on the role of stress management in managing HS and suggests exercise and stress-relief activities as beneficial. However, it does not specifically mention the impact of prolonged sitting on HS, leaving the original question largely unanswered.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript primarily discusses sweating as a trigger for HS and suggests ways to manage sweating, such as staying in air-conditioned environments. However, it does not directly address the question of whether sitting too long can make HS worse. The focus is on sweating rather than the effects of prolonged sitting, which means the transcript does not adequately answer the question posed.",2337.0,Heart Health | Effects of Chronic Stress,0.753772259,909.0,Osteoarthritis | When to See Your Doctor,0.75257355,933.0,HSS Minute | Early Life Low Bone Density,0.751785159
How do I sit comfortably with buttocks HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i sit comfortably with buttocks hs?,How do I sit comfortably with buttocks HS?,How do I sit comfortably with buttocks HS?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1822},{""id"":1873},{""id"":1819},{""id"":1850}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.85,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",85.0,"The transcript provides a comprehensive answer to the question by suggesting practical solutions for sitting comfortably with buttocks HS. It mentions using a pad or pillow, considering different types of chairs, and the option of standing desks. It also advises discussing accommodations with an employer. However, it could be improved by including more specific ergonomic recommendations or medical advice tailored to HS, which would make the response more complete.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.3,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",30.0,"The transcript provides general advice on clothing choices to reduce friction and occlusion, which can help manage HS symptoms. However, it does not directly address the specific question of how to sit comfortably with buttocks HS. The response lacks specific guidance on sitting positions, cushions, or other strategies that might directly alleviate discomfort while sitting.",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.1,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",10.0,"The transcript does not address the specific question about sitting comfortably with buttocks HS. Instead, it focuses on exercise recommendations for individuals with HS, discussing low-impact activities and ways to avoid flares during exercise. There is no mention of sitting strategies or comfort measures for buttocks HS, which is the core of the question.",2304.0,How Fit Are You | Postural Alignment,0.770500243,2319.0,Fitness Self-Assessment | Posture,0.769816279,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.761289656
Can a special cushion help with HS on buttocks?,searchable,Patient_Forums,Hidradenitis Suppurativa,can a special cushion help with hs on buttocks?,Can a special cushion help with HS on buttocks?,Can a special cushion help with HS on buttocks?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1866},{""id"":1873},{""id"":1850}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.85,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",85.0,"The transcript addresses the question by suggesting that sitting on a pad or pillow can help reduce flare-ups of HS on the buttocks, which implies that a special cushion could be beneficial. It also discusses alternative solutions like using a standing desk, which provides a broader context for managing HS symptoms related to sitting. However, it does not specifically mention 'special cushions' designed for HS, which slightly limits the directness of the answer.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.3,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",30.0,"The transcript primarily discusses dressings and absorbent materials for managing drainage from HS lesions, rather than addressing the specific question about whether a special cushion can help with HS on the buttocks. While it mentions adult diapers for managing drainage in the buttocks area, it does not directly address the use of cushions for comfort or pressure relief, which is likely the intent of the question. Therefore, the transcript only partially addresses the question and lacks a direct answer regarding the use of cushions.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.2,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",20.0,"The transcript does not directly address the question about whether a special cushion can help with HS on the buttocks. It discusses the benefits of looser fitting clothing in reducing friction and occlusion, which are factors that can exacerbate HS. However, it does not mention cushions or seating solutions specifically, which is the focus of the question. Therefore, the response is not very relevant to the question asked.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.766652107,919.0,Can a Herniated Disc Heal on its Own?,0.759946346,1020.0,Herniated Disc | Treating Flare-ups,0.75206393
How do I walk when I have groin HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i walk when i have groin hs?,How do I walk when I have groin HS?,How do I walk when I have groin HS?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1819},{""id"":1854},{""id"":1967},{""id"":1823}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.6,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",60.0,"The transcript provides general advice on exercising with HS, emphasizing low-impact activities to avoid friction, which is relevant to walking with groin HS. However, it does not specifically address walking techniques or modifications for groin HS, which would directly answer the question. The advice is useful but lacks specificity to the question asked.",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.1,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",10.0,The transcript does not directly address the question of how to walk with groin HS (Hidradenitis Suppurativa). It provides general information about where HS lesions can occur due to friction but does not offer any advice or strategies for walking or managing movement with groin HS. The response lacks specific guidance or recommendations related to the question asked.,5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.1,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",10.0,"The transcript does not directly address the question of how to walk with groin HS (Hidradenitis Suppurativa). Instead, it provides general advice on finding a knowledgeable clinician for treatment. The response lacks specific guidance or strategies for walking with this condition, which is the core of the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.746223,895.0,"Choose Better, Move Better",0.744716287,909.0,Osteoarthritis | When to See Your Doctor,0.743914664
Can I drive with active HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i drive with active hs lesions?,Can I drive with active HS lesions?,Can I drive with active HS lesions?,No,,,searchable,no-match,,,"[{""id"":1911},{""id"":1966},{""id"":1814},{""id"":1964}]",4948.0,CON3-CH3-Q7-Will I keep needing surgery-Daveluy.mp4,0.2,Will I keep needing surgery?,"There's a lot of elements that go into answering that question, which again, just talks to how complicated HS can be. Some patients need only one surgery just to get rid of one spot and then they don't need it again. Other patients need a series of surgeries to treat different areas of the body where they have tunnels or lesions that require surgery. And then the other aspect of that is the disease activity. So we always aim to get your disease under control with medications and then do surgery for the spots that are left. But if you don't keep the disease under control, it may flare up again, cause new tunnels, and then you may need surgery again in that area. So, it's a little unpredictable, but we do our best to treat with both medications and surgeries to give the best care and the best chance that you won't need any surgery in the future.
",20.0,"The transcript does not directly address the question of whether one can drive with active HS lesions. Instead, it discusses the complexity of treating HS, including the need for surgeries and medication management. While it provides some context about the disease's unpredictability and treatment approaches, it fails to provide specific guidance or considerations related to driving with active lesions. Therefore, the response is largely irrelevant to the question asked.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.2,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",20.0,"The transcript does not directly address the question of whether one can drive with active HS lesions. It provides information about the nature of HS, emphasizing that it is not contagious and is related to inflammation and hair follicles, but it does not discuss the impact of HS lesions on driving ability or safety. The answer lacks relevance to the specific concern about driving with HS lesions.",4824.0,CON1-CH1-Q4-Can HS go into remission-Garg.mp4,0.1,Can HS go into remission?,"We come across patients who have had the disease for a number of years with a fair amount of activity and then over time it just becomes less and less active to the point where some people just have some residual scarring but no active boils or even tunnels. And so yes, we do believe that this condition can go into remission - how and when it happens, we're just not sure yet.",10.0,The transcript does not directly address the question about driving with active HS lesions. It discusses the progression and remission of HS but does not provide any information related to driving or the impact of active lesions on driving ability.,4533.0,What Will My Treatment Be Like?,0.752010942,919.0,Can a Herniated Disc Heal on its Own?,0.737437308,1101.0,HSS Minute | Whole Lupus Patient,0.734992385
How do I manage HS pain while traveling?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage hs pain while traveling?,How do I manage HS pain while traveling?,How do I manage HS pain while traveling?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1874},{""id"":1926},{""id"":1822},{""id"":1813}]",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.7,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",70.0,"The transcript provides a general approach to managing HS pain, emphasizing the importance of controlling inflammation with appropriate medication. It also mentions the use of home remedies, over-the-counter medications, and, in some cases, narcotics for short-term relief. However, it lacks specific travel-related advice, such as tips for managing pain during travel, which would make the answer more directly relevant to the question.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.3,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",30.0,"The transcript provides general advice on managing stress and inflammation related to HS, mentioning exercise, yoga, acupuncture, and talk therapy. However, it does not specifically address pain management strategies while traveling, which is the focus of the question. The response lacks direct travel-related tips or considerations for managing HS pain in that context.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.3,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",30.0,"The transcript provides some general advice on managing HS (Hidradenitis Suppurativa) pain related to sitting, which could be relevant to traveling if sitting is a trigger. However, it does not directly address the specific context of managing HS pain while traveling. It focuses more on workplace adjustments rather than travel-specific strategies, such as managing pain during long flights, car rides, or while carrying luggage. Therefore, the answer is only partially relevant to the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.793992281,348.0,Strategies for Traveling When You Have Diabetes,0.762305677,2880.0,Pain Management After Surgery,0.761336625
What should I pack for traveling with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what should i pack for traveling with hidradenitis suppurativa?,What should I pack for traveling with hidradenitis suppurativa?,What should I pack for traveling with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1867},{""id"":1941},{""id"":1816},{""id"":1862}]",4893.0,CON2-CH3-Q10-What should be in my HS care kit-Okoye.mp4,0.85,What should be in my HS care kit?,"An HS care kit that I recommend for patients, especially if they're leaving the house, they're going to work or school, is a small plastic bag that contains your gauze, some paper tape, and maybe a sanitary napkin just in case you have a larger wound that starts to weep during the day. The plastic bag is actually pretty important because depending on where you are, you can then put your used dressing in that plastic bag, seal it, and then there won't be any odor. And then you can discreetly put that back in your bag if you don’t want to leave it in the trash can where someone else can see it. One of the things that's really important is to think about is how you are going to secure your dressing. I've heard horror stories from patients about their dressings falling off and that situation being very embarrassing. So do think about it, and carry some kind of tape to secure your dressing to your body.",85.0,"The transcript provides a practical and detailed answer to the question about what to pack when traveling with Hidradenitis Suppurativa. It suggests packing a small plastic bag with gauze, paper tape, and a sanitary napkin, which are essential items for managing HS wounds. It also emphasizes the importance of securing dressings and offers a solution for discreet disposal of used dressings. However, the transcript could be improved by including additional items that might be useful, such as antiseptic wipes, pain relief medication, or extra clothing, which would provide a more comprehensive answer.",4867.0,CON1-CH5-Q3-What should I take with me to work-Brooks-V.mp4,0.85,What should I take with me when I go out or travel?,"So many people ask what they should bring in a flare care kit is what we've called it. As we know, HS drainage happens at the most inopportune times. So it's great to have things on hand that you can use to manage that, whenever that occurs. So a lot of people take a second pair of clothing with them or just leave it in the trunk of their car in case they have drainage that happens so they don't have to go home. That's happened to me at work multiple times. I had to make the decision as to whether I wanted to let my arms show by taking off my cardigan, because you know most people with HS won't show their armpits, and I have owned more cardigans than any human being should ever own. So when I was draining in my groin I was like do I take off my cardigan and wrap it around my waist and let my arms potentially show? So it's always good to have an extra pair of clothes in your vehicle or wherever you're going to be. The other thing that we would highly recommend packing, or that I carry in my flare care kit is I always have gauze, some tape that's already cut, I also have Vaseline in there, I have a pair of gloves, rubber gloves, because it's also, you know, if you have to change bandaging, can on your way out of the bathroom stall, for instance, you could just tuck all your garbage in your glove. And it's nice to have that sterilization when you're in a restroom stall. And Lidocaine if I have it,  if I'm dealing with a lot of pain. I have extra bandages in there. Anything that I need that I can go and take care of something myself, it makes me feel empowered because I'm not leaving everything to chance. I have to carry a bigger bag because of it, which I love purses, so it's okay to have to shop for a new purse to fit all your flare care. But it's definitely feels good to know that you're ready to handle any situation because there is so much uncertainty with when and what is going on, and when something may drain that it's a really nice thing to feel self-assured that you've got everything you need to take care of any situation.",85.0,"The transcript provides a comprehensive answer to the question about what to pack when traveling with Hidradenitis Suppurativa. It suggests practical items such as an extra pair of clothing, gauze, pre-cut tape, Vaseline, rubber gloves, Lidocaine, and extra bandages, which are all relevant for managing HS flares. The response also includes personal anecdotes and tips for managing unexpected drainage, which adds value. However, the transcript could be improved by offering a more structured list format for clarity and possibly including additional items like antiseptic wipes or specific clothing recommendations for comfort.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.7,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",70.0,"The transcript provides useful information about clothing choices for traveling with Hidradenitis Suppurativa, emphasizing the importance of trial and error and suggesting resources like HSconnect.org and patient support groups. However, it does not directly address other potential packing needs such as medical supplies, skincare products, or specific travel tips related to managing the condition. Therefore, while it offers valuable advice on clothing, it only partially answers the broader question of what to pack.",348.0,Strategies for Traveling When You Have Diabetes,0.746601701,1593.0,Diabetes Equipment & Supplies,0.742870629,4372.0,Tips For Navigating Your Cancer Care,0.728473067
Can flying make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can flying make hs worse?,Can flying make HS worse?,Can flying make HS worse?,No,,,searchable,loose-match,,,"[{""id"":1823},{""id"":1838},{""id"":1822},{""id"":1979}]",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.4,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",40.0,"The transcript discusses sweating as a trigger for HS and suggests ways to manage it, but it does not directly address the question of whether flying can make HS worse. Flying could potentially lead to sweating due to stress or temperature changes, but this connection is not explicitly made in the transcript. Therefore, while the transcript provides relevant information about sweating and HS, it does not specifically answer the question about flying.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript discusses the relationship between stress and HS (Hidradenitis Suppurativa), explaining that stress can exacerbate HS flares and vice versa. However, it does not directly address the specific question of whether flying can make HS worse. While flying can be stressful for some individuals, the transcript does not explicitly connect flying to HS flares, leaving the question largely unanswered.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.2,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",20.0,"The transcript discusses how sitting can be a trigger for HS flare-ups, particularly when sitting on hard surfaces, and suggests solutions like using a pad or standing desks. However, it does not directly address the question of whether flying can make HS worse. While flying often involves prolonged sitting, the transcript does not explicitly connect flying to HS exacerbation, nor does it discuss other potential factors related to flying, such as cabin pressure or stress, that might affect HS. Therefore, the transcript only indirectly relates to the question and does not provide a comprehensive answer.",1082.0,How-To | Flying with Diabetes,0.755205929,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.737397134,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.731188238
How do I handle HS flares while on vacation?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i handle hs flares while on vacation?,How do I handle HS flares while on vacation?,How do I handle HS flares while on vacation?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1941},{""id"":1877},{""id"":1880},{""id"":1838}]",4867.0,CON1-CH5-Q3-What should I take with me to work-Brooks-V.mp4,0.85,What should I take with me when I go out or travel?,"So many people ask what they should bring in a flare care kit is what we've called it. As we know, HS drainage happens at the most inopportune times. So it's great to have things on hand that you can use to manage that, whenever that occurs. So a lot of people take a second pair of clothing with them or just leave it in the trunk of their car in case they have drainage that happens so they don't have to go home. That's happened to me at work multiple times. I had to make the decision as to whether I wanted to let my arms show by taking off my cardigan, because you know most people with HS won't show their armpits, and I have owned more cardigans than any human being should ever own. So when I was draining in my groin I was like do I take off my cardigan and wrap it around my waist and let my arms potentially show? So it's always good to have an extra pair of clothes in your vehicle or wherever you're going to be. The other thing that we would highly recommend packing, or that I carry in my flare care kit is I always have gauze, some tape that's already cut, I also have Vaseline in there, I have a pair of gloves, rubber gloves, because it's also, you know, if you have to change bandaging, can on your way out of the bathroom stall, for instance, you could just tuck all your garbage in your glove. And it's nice to have that sterilization when you're in a restroom stall. And Lidocaine if I have it,  if I'm dealing with a lot of pain. I have extra bandages in there. Anything that I need that I can go and take care of something myself, it makes me feel empowered because I'm not leaving everything to chance. I have to carry a bigger bag because of it, which I love purses, so it's okay to have to shop for a new purse to fit all your flare care. But it's definitely feels good to know that you're ready to handle any situation because there is so much uncertainty with when and what is going on, and when something may drain that it's a really nice thing to feel self-assured that you've got everything you need to take care of any situation.",85.0,"The transcript provides a comprehensive answer to the question about handling HS flares while on vacation by suggesting the preparation of a 'flare care kit'. It includes practical advice on what items to pack, such as extra clothing, gauze, tape, Vaseline, gloves, and Lidocaine, which are useful for managing unexpected drainage and pain. The response emphasizes the importance of being prepared and self-sufficient, which directly addresses the concern of managing flares while away from home. However, the transcript could be improved by explicitly mentioning that these tips are applicable while on vacation, as it focuses more on general preparedness rather than vacation-specific scenarios.",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.7,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",70.0,"The transcript provides a general overview of how to handle HS flares, mentioning potential treatments like injections, antibiotics, and steroids. However, it lacks specific advice tailored to managing flares while on vacation, such as tips for travel preparation, managing flares in unfamiliar settings, or ensuring access to necessary medications. The response is informative but not directly focused on the context of being on vacation.",4914.0,CON2-CH5-Q5-How do steroids work in my body to treat HS-Garg.mp4,0.6,How do steroids work in my body to treat HS?,"During a flare, the level of inflammation in the body and the level of inflammation in your lesions is abruptly increased. And so steroids are very helpful in that circumstance because they are powerful anti-inflammatories that bring down that level of inflammation really quickly and really reliably. And so we can use steroids as a strategy during these acute flares for a brief period of time, maybe just a week, maybe up to three weeks, to bring down and reset that level of inflammation.",60.0,"The transcript provides a partial answer by suggesting the use of steroids to manage inflammation during HS flares, which could be applicable while on vacation. However, it lacks specific advice tailored to handling flares in the context of being on vacation, such as practical tips for travel, medication management, or lifestyle adjustments.",1082.0,How-To | Flying with Diabetes,0.746726,1020.0,Herniated Disc | Treating Flare-ups,0.745481074,348.0,Strategies for Traveling When You Have Diabetes,0.735596836
Can I go to the beach with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i go to the beach with hidradenitis suppurativa?,Can I go to the beach with hidradenitis suppurativa?,Can I go to the beach with hidradenitis suppurativa?,No,,,searchable,loose-match,"condition management,living with",,"[{""id"":1859},{""id"":1873},{""id"":1950},{""id"":1890}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.3,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",30.0,"The transcript does not directly answer the question about whether a person with hidradenitis suppurativa (HS) can go to the beach. Instead, it focuses on the treatment options for HS, such as surgery and medication, and the importance of discussing symptoms with a doctor. It also touches on public awareness and the non-contagious nature of HS. While these points are relevant to managing HS, they do not address the specific concern about beach-going. The transcript lacks a direct response regarding any precautions or considerations for going to the beach with HS, such as sun exposure, water contact, or infection risk.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.3,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",30.0,"The transcript does not directly answer the question about whether one can go to the beach with hidradenitis suppurativa. It provides general advice on clothing choices to reduce friction and occlusion, which might be indirectly related to activities like going to the beach. However, it does not address specific concerns about beach activities, such as exposure to sun, water, or sand, which are relevant to the question.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address the question of whether a person with hidradenitis suppurativa can go to the beach. Instead, it provides general information about the disease, its lack of awareness, and issues with misdiagnosis. There is no mention of any considerations or advice related to beach activities for individuals with this condition.",1083.0,How-To | Beach Day with Diabetes,0.764847159,719.0,"Jim Cosper 
S3 | E3",0.739581,2321.0,Health Conditions Impacted by the Microbiome,0.737943053
Should I avoid swimming pools if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i avoid swimming pools if i have hs?,Should I avoid swimming pools if I have HS?,Should I avoid swimming pools if I have HS?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1823},{""id"":1926},{""id"":1969}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.7,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",70.0,"The transcript provides a partial answer to the question about swimming pools and HS (Hidradenitis Suppurativa). It suggests that swimming is a recommended low-impact exercise for people with HS because it does not involve friction, which can trigger HS flares. However, the transcript does not directly address whether swimming pools specifically should be avoided, nor does it discuss potential concerns related to swimming pools, such as chlorine or infection risks. Therefore, while it offers useful information about swimming as an exercise, it does not fully answer the question about avoiding swimming pools.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question about whether swimming pools should be avoided if one has HS (Hidradenitis Suppurativa). Instead, it focuses on sweating as a trigger for HS and suggests ways to manage sweating. While swimming might involve sweating, the transcript does not discuss the specific context of swimming pools, water exposure, or any potential benefits or risks associated with swimming for someone with HS. Therefore, the transcript is largely irrelevant to the question asked.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.2,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",20.0,"The transcript does not directly address the question of whether someone with HS (Hidradenitis Suppurativa) should avoid swimming pools. Instead, it discusses the general management of stress and exercise in relation to HS. While managing stress is relevant to HS, the transcript fails to provide specific guidance on swimming or swimming pools, which is the focus of the question. Therefore, the answer is largely unhelpful in addressing the specific concern about swimming pools.",3584.0,Is it safe to exercise if I have obesity and heart disease?,0.743573844,302.0,Should I Get The COVID-19 Vaccine? Yale Medicine Experts Answer Your Questions,0.740254283,3562.0,Are there weight loss programs should I avoid?,0.73656857
What should I do about visible HS scars at the pool or beach?,searchable,Patient_Forums,Hidradenitis Suppurativa,what should i do about visible hs scars at the pool or beach?,What should I do about visible HS scars at the pool or beach?,What should I do about visible HS scars at the pool or beach?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1860},{""id"":1821},{""id"":1828},{""id"":1864}]",4899.0,CON2-CH3-Q2-Will makeup used to cover the sores make them worse-Daveluy.mp4,0.75,Will makeup used to cover my sores make them worse?,"Some of my patients do report that they use makeup to cover up their scars and their sores of their HS, particularly if they're going to a special event like a wedding where they want to wear a sleeveless dress. We don't have any evidence that shows makeup makes it better or worse. So, it's a little bit of a case-by-case scenario. What I usually recommend to my patients is try the makeup out ahead of time. So, if you're going to a wedding and wearing a special dress, don't let that day be the first time you try it. Maybe a couple of weeks ahead of time, test it out and see how your body reacts, see if it bothers your HS or if it doesn't bother it. And as long as it doesn't cause it to flare up and you don't notice it making it worse, then it should be perfectly safe to use it. But there's a lot of things in HS where they're unpredictable. We don't know which medications are going to work great or not really work so well. We don't know which things are going to be perfect for someone or not. Same thing with diet, with medication. So, a lot of things in HS you have to sort of figure out and get to know your HS and what's going to be good for it, and what might flare it up. So, like I said, my idea is to just prepare ahead of time.",75.0,"The transcript provides a practical suggestion for dealing with visible HS scars, specifically using makeup to cover them up, which is relevant to the context of going to a pool or beach. It advises testing makeup ahead of time to ensure it doesn't irritate the skin or worsen HS, which is a thoughtful approach. However, the transcript does not address other potential solutions or considerations specific to pool or beach environments, such as waterproof makeup or sun protection, which could be relevant. Therefore, while the advice is useful, it is somewhat limited in scope.",4834.0,CON1-CH1-Q11-How can I prevent scarring-Daveluy.mp4,0.4,How do I prevent scarring?,"The best way to prevent scarring in HS is to turn the disease off. We are talking a lot about the window of opportunity, which is we need to try to get people's HS under control as soon as possible before it starts causing scars and tunnels to form. We've got a lot of work to do and a lot of room to improve in this area because we need to recognize HS better, get to diagnosis sooner, and get on treatment sooner. But that is our goal with treatment, is to turn the disease off so it stops causing scars and it stops causing tunnels. So a really important thing is if you're seeing scar formation, it means you probably need to step up your therapy, add onto your regimen, talk to your doctor, let them know that you're having scars and tunnels forming, and that we want to prevent that from happening by getting on effective therapies that get the disease activity to a minimum or completely stopped.",40.0,"The transcript primarily focuses on preventing further scarring by controlling the disease activity of HS (Hidradenitis Suppurativa) and emphasizes the importance of early treatment and diagnosis. However, it does not directly address the question about what to do about existing visible HS scars at the pool or beach. The response lacks specific advice on managing or concealing scars in social settings, such as using clothing, makeup, or other cosmetic solutions. Therefore, while it provides valuable information on disease management, it does not adequately answer the question about dealing with visible scars in public settings.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.3,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",30.0,"The transcript provides general advice on finding a dermatologist with experience in HS, but it does not directly address the question about managing visible HS scars at the pool or beach. The response lacks specific recommendations or strategies for dealing with scars in these social settings, such as using concealing products, clothing choices, or discussing emotional coping mechanisms. The advice is more focused on finding a healthcare provider rather than immediate actions for the situation described in the question.",3640.0,How to Protect Yourself from the Sun,0.752735734,1083.0,How-To | Beach Day with Diabetes,0.742058754,3651.0,How to Check Your Skin,0.740693808
Can chlorine help or hurt hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can chlorine help or hurt hidradenitis suppurativa?,Can chlorine help or hurt hidradenitis suppurativa?,Can chlorine help or hurt hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1815},{""id"":1857},{""id"":1944},{""id"":1885}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.7,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",70.0,"The transcript provides relevant information about the use of diluted bleach, which is similar to swimming pool chlorine, as a potential treatment for hidradenitis suppurativa (HS). It suggests that diluted bleach can be helpful in cleaning affected areas and may aid in controlling the disease. However, the transcript does not directly address the specific effects of chlorine itself, nor does it discuss any potential negative impacts of chlorine on HS. Therefore, while it partially answers the question by suggesting a beneficial use of a chlorine-related product, it lacks a comprehensive discussion on both the potential benefits and harms of chlorine in the context of HS.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.6,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",60.0,"The transcript provides some relevant information regarding the use of chlorine in the form of diluted bleach baths for managing hidradenitis suppurativa (HS). It mentions that a diluted bleach bath, which contains chlorine, can have an antibacterial effect similar to a swimming pool. However, the transcript does not directly address whether chlorine specifically helps or hurts HS overall. It focuses more on managing odor and bacterial presence rather than the broader impact of chlorine on HS. Therefore, while it partially answers the question, it lacks a comprehensive discussion on the potential benefits or harms of chlorine for HS.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.2,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",20.0,"The transcript does not directly address the question about whether chlorine can help or hurt hidradenitis suppurativa. Instead, it discusses the use of CLN body wash and its benefits for managing symptoms of HS, such as reducing odor and flares. There is no mention of chlorine or its effects on HS, making the transcript largely irrelevant to the specific question asked.",694.0,"Amy Lindberg 
S3 | E5",0.74240756,3490.0,Support | Dr. Tiffany Lowe Clayton,0.732042313,2321.0,Health Conditions Impacted by the Microbiome,0.730282
Is ocean water good for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,is ocean water good for hs?,Is ocean water good for HS?,Is ocean water good for HS?,No,,,searchable,no-match,,,"[{""id"":1815},{""id"":1864},{""id"":1925},{""id"":1823}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.2,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",20.0,"The transcript does not directly address the question about ocean water's effects on HS (Hidradenitis Suppurativa). Instead, it discusses various soaps and cleansers that may help manage HS, such as benzoyl peroxide, chlorhexidine, zinc soaps, and diluted bleach. There is no mention of ocean water or its potential benefits or drawbacks for HS, making the transcript largely irrelevant to the specific question asked.",4894.0,CON2-CH3-Q7-How should I clean HS wounds-Okoye.mp4,0.2,How should I clean my HS wounds?,"HS wounds can be cleaned with simple soap and water in the shower. That would be the most affordable option. However, sometimes we'll recommend that you use an antiseptic wash and there are a few on the market, some are based on bleach. CLN cleanser is an option. Hibaclens is another option. And something called Vashe. These are three washes that are antiseptic and very gentle on the skin that you can use to cleanse the wounds.",20.0,"The transcript does not directly address whether ocean water is good for HS (Hidradenitis Suppurativa). It discusses general wound cleaning options for HS, such as using soap and water or antiseptic washes, but does not mention ocean water specifically. Therefore, it only indirectly relates to the question by discussing wound cleaning, but it does not provide a clear answer regarding the use of ocean water.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.2,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",20.0,"The transcript does not directly address whether ocean water is beneficial for HS (Hidradenitis Suppurativa). It provides general advice on considering natural remedies and discussing them with a healthcare provider, but it does not specifically mention ocean water or its effects on HS. Therefore, it only partially addresses the question by suggesting a process for evaluating natural remedies, but it lacks specific information about ocean water.",907.0,HSS Overview,0.737847,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.733734131,2306.0,Heart Health | Benefits of Exercise,0.729232371
How do I manage odor from HS throughout the day?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage odor from hs throughout the day?,How do I manage odor from HS throughout the day?,How do I manage odor from HS throughout the day?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1857},{""id"":1944},{""id"":1930},{""id"":1938}]",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.95,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",95.0,"The transcript provides a comprehensive answer to the question about managing odor from HS throughout the day. It discusses various antibacterial washes like benzoyl peroxide, chlorhexidine, and zinc, which can help reduce odor by targeting bacteria. It also mentions the use of diluted bleach baths and topical antibiotics like clindamycin. Additionally, it suggests practical solutions like charcoal-infused clothing to absorb odors. The response is detailed, covers multiple strategies, and offers practical advice, making it highly relevant and useful for someone seeking to manage HS odor.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.85,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",85.0,"The transcript provides a specific recommendation for managing odor from HS, which is the use of CLN body wash. It supports this recommendation with evidence from a survey study, highlighting its effectiveness in reducing odor, flares, and pain. The transcript also compares CLN body wash to another product, Hibiclens, noting that while Hibiclens is commonly recommended, it can be drying to the skin, thus presenting CLN as a preferable option. This directly addresses the question by offering a practical solution and explaining why it is beneficial. However, the transcript could be improved by offering additional strategies or tips for managing odor throughout the day, such as lifestyle or dietary changes, which would provide a more comprehensive answer.",4976.0,CON4-CH1-Q5-How do I get rid of the smell-Daveluy.mp4,0.85,How do I get rid of the smell?,"There’s so much you can do to help reduce the smell in HS because we know that can cause embarrassment and shame. You want to get intimate with someone and the last thing you want them to do is have an unpleasant odor be part of that experience. Some of the things you can do involve treating the HS. So using antibacterial washes can sometimes help reduce the smell, making sure you're working with your doctor to try to reduce the drainage and get things under control, which might involve medications or sometimes even surgery. But there are other ways you can navigate the smell even if you can't quite yet get it under control with treatments. Sometimes you can overpower the smell. Light some incense that you like when it's time to be intimate so that there's a more pleasant odor in the room. Be careful with perfumes and fragrances, but if they don't cause you skin irritation, that can be another option. And then sometimes you can even use strategic bandages or clothing to cover up some of the areas that might be triggering and causing more of the smells while you're being intimate. So an example might include if you have certain clothing that you can wear that covers the area but still allows you to expose the parts that you need to be intimate.",85.0,"The transcript provides a comprehensive answer to the question about managing odor from HS (Hidradenitis Suppurativa) throughout the day. It suggests practical solutions such as using antibacterial washes, working with a doctor for medical treatments, and using incense or fragrances to mask odors. It also mentions using strategic clothing or bandages to manage odor during intimate moments. However, the response could be improved by including more specific daily management strategies, such as hygiene routines or dietary changes, which are commonly recommended for managing HS odor. Overall, the answer is quite thorough but could benefit from additional detail on daily management techniques.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.738586247,77.0,Hyposmia,0.734430254,1304.0,How COVID Affects Your Sense of Smell,0.729878843
What products help control HS drainage smell?,searchable,Patient_Forums,Hidradenitis Suppurativa,what products help control hs drainage smell?,What products help control HS drainage smell?,What products help control HS drainage smell?,No,,,searchable,exact-match,,,"[{""id"":1857},{""id"":1944},{""id"":1938},{""id"":1862}]",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.95,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",95.0,"The transcript provides a comprehensive answer to the question about products that help control HS drainage smell. It mentions several specific products and methods, including antibacterial washes like benzoyl peroxide and chlorhexidine, diluted bleach baths, zinc-containing dandruff shampoos, and topical antibiotics like clindamycin. It also discusses the use of charcoal-infused clothing to absorb odors. The response is detailed and offers practical advice, making it highly relevant and informative for the question asked. The only minor drawback is the lack of specific product names, but the types of products and their active ingredients are clearly described.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.9,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",90.0,"The transcript provides a specific product recommendation, CLN body wash, for controlling the odor associated with HS drainage. It supports this recommendation with evidence from a survey study, highlighting significant reductions in odor, frequency, and duration of flares, as well as pain. The transcript also compares CLN body wash to another product, Hibiclens, noting that while Hibiclens is commonly recommended, it can be very drying, which is a drawback. This comparison further strengthens the recommendation of CLN body wash. The response is comprehensive and directly addresses the question, making it highly relevant and informative. However, it could be improved by mentioning any other potential products or methods for controlling odor, which is why it does not receive a perfect score.",4836.0,CON1-CH1-Q14-How do I deal with the odor caused by HS-Brooks.mp4,0.8,How do I deal with the odor caused by HS?,"The odor is a really, really difficult symptom to deal with. You're not alone in dealing with this. The odor is also not your fault. It's not caused by hygiene. It's just a part of the HS process. We have identified some body washes that work really, really well, like Clean Body Wash (CLN) works amazingly well for HS odor. It's purchased over the counter. There are a couple of other things that you can do that other patients in the community use to help with the odor as well. But just to reiterate, the odor is not your fault. It's not due to poor hygiene. And I would really, really encourage you to take a look at some of the options that we have that will potentially help. We've actually run a survey study and found that we had a reduction in odor with the use of the CLN body wash. So it's good to know that there are options out there that can help you with the odor because we know how uncomfortable that smell is, and you know that if you can smell it other people can, too. I have experienced so much of that in my journey and it's one of the hardest things to overcome and it makes you very, very self-conscious. So knowing that there are some things available out there that you can use to help mitigate that odor is amazing and I would highly encourage you to try some of those products and see if they help you too.",80.0,"The transcript provides a specific product recommendation, CLN Body Wash, which is noted to work well for controlling HS odor. It also mentions that this product is available over the counter and references a survey study that supports its effectiveness. However, the transcript could be improved by listing additional specific products or methods that help control HS drainage smell, as it only mentions 'a couple of other things' without specifying them. Overall, the response is helpful but could be more comprehensive.",3635.0,Drain Care,0.737293243,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.726354897,77.0,Hyposmia,0.719168
Can changing bandages more often help with HS odor?,searchable,Patient_Forums,Hidradenitis Suppurativa,can changing bandages more often help with hs odor?,Can changing bandages more often help with HS odor?,Can changing bandages more often help with HS odor?,No,,,searchable,loose-match,"condition management,lifestyle changes",,"[{""id"":1930},{""id"":1856},{""id"":1857},{""id"":1858}]",4976.0,CON4-CH1-Q5-How do I get rid of the smell-Daveluy.mp4,0.4,How do I get rid of the smell?,"There’s so much you can do to help reduce the smell in HS because we know that can cause embarrassment and shame. You want to get intimate with someone and the last thing you want them to do is have an unpleasant odor be part of that experience. Some of the things you can do involve treating the HS. So using antibacterial washes can sometimes help reduce the smell, making sure you're working with your doctor to try to reduce the drainage and get things under control, which might involve medications or sometimes even surgery. But there are other ways you can navigate the smell even if you can't quite yet get it under control with treatments. Sometimes you can overpower the smell. Light some incense that you like when it's time to be intimate so that there's a more pleasant odor in the room. Be careful with perfumes and fragrances, but if they don't cause you skin irritation, that can be another option. And then sometimes you can even use strategic bandages or clothing to cover up some of the areas that might be triggering and causing more of the smells while you're being intimate. So an example might include if you have certain clothing that you can wear that covers the area but still allows you to expose the parts that you need to be intimate.",40.0,"The transcript provides general advice on managing odor associated with HS, including using antibacterial washes, working with a doctor, and using incense or fragrances. However, it does not directly address the specific question about whether changing bandages more often can help with HS odor. The response lacks a focused answer on the role of bandage changing in odor management.",4889.0,CON2-CH2-Q1-What is the smell related to HS-Daveluy.mp4,0.4,What is the smell related to HS?,"The odor in HS is actually related to bacteria, but I want to be very clear that it is not an infection. That's one of the common misconceptions we hear with HS. And unfortunately it's often healthcare providers who are making the mistake and calling it an infection. But bacteria release odors when they break down oils and discharge from your body. That's why our armpits get odor as well. That's from bacteria. So it's very similar in that sense. But with HS, you have different bacteria that are part of the HS and inside the tunnels and in the drainage releasing this odor and causing the odor to come off of your body as part of the disease itself.",40.0,"The transcript provides some relevant information about the cause of odor in HS, explaining that it is due to bacteria breaking down oils and discharge, but it does not directly address whether changing bandages more often can help with the odor. The response lacks a direct answer to the question and does not discuss the potential impact of bandage changes on managing the odor associated with HS.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.3,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",30.0,"The transcript does not directly address the question about whether changing bandages more often can help with HS odor. Instead, it focuses on various antibacterial washes and treatments to manage odor, without mentioning bandage changes. The response lacks a direct connection to the question asked, which is specifically about the impact of bandage frequency on odor control.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.73429966,895.0,"Choose Better, Move Better",0.725652635,3645.0,Signs of Infection,0.721737921
What type of bandages work best for draining HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what type of bandages work best for draining hs?,What type of bandages work best for draining HS?,What type of bandages work best for draining HS?,No,,,searchable,exact-match,,,"[{""id"":1942},{""id"":1866},{""id"":1862},{""id"":1867}]",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.85,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",85.0,"The transcript provides a comprehensive answer to the question about the best type of bandages for draining HS. It specifically recommends avoiding band-aids and suggests using a 'cloud bandage' from Smith + Nephew, which is a silicone bordered foam bandage. It also mentions gauze with tape as a cheaper option, while cautioning about potential issues with tape. The response emphasizes the importance of keeping drainage away from the skin and suggests that the choice of bandage depends on the amount of drainage. Additionally, it highlights the value of community input for finding suitable bandaging solutions. However, the answer could be improved by providing more specific product names or types of bandages beyond the 'cloud bandage' and gauze, which would make the response more directly actionable.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.85,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",85.0,"The transcript provides a comprehensive answer to the question about bandages for draining HS (Hidradenitis Suppurativa). It discusses various options based on the severity and location of the lesions, including high-tech dressings, non-stick gauze like Telfa, and absorbent materials like sanitary napkins and diapers. It also offers practical advice on securing dressings with tape. However, it could be improved by explicitly stating which type of bandage is 'best' for different scenarios, as the question specifically asks for the 'best' type.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.85,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",85.0,"The transcript provides a practical answer to the question by suggesting specific types of bandages and materials that can be used to manage drainage from HS. It mentions gauze and paper tape, as well as alternative absorbent materials like sanitary napkins, adult diapers, or baby diapers. However, it does not specify any particular brand or type of medical bandage that might be specifically designed for HS, which could have provided a more comprehensive answer. Overall, the response is quite helpful and addresses the main concern of managing drainage effectively.",3635.0,Drain Care,0.763890445,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.752298057,3774.0,Surgical Intervention for Severe CVI | The SAVVE Trial at Yale,0.744260311
Can adhesive bandages irritate HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can adhesive bandages irritate hs lesions?,Can adhesive bandages irritate HS lesions?,Can adhesive bandages irritate HS lesions?,No,,,searchable,exact-match,,,"[{""id"":1942},{""id"":1873},{""id"":1854},{""id"":1816}]",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.85,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",85.0,"The transcript provides a detailed discussion on the use of bandages for HS lesions, specifically advising against the use of adhesive bandages like band-aids due to their tendency to keep drainage close to the skin, which can cause irritation. It suggests alternative bandages and methods to avoid skin irritation, addressing the core concern of the question. However, it does not explicitly state that adhesive bandages can irritate HS lesions, but implies it through the discussion of drainage and skin irritation.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.2,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",20.0,"The transcript does not directly address the question about adhesive bandages and their potential to irritate HS lesions. Instead, it discusses the benefits of looser fitting clothing in reducing friction and occlusion, which can worsen HS lesions. While the concept of reducing friction is relevant, the transcript fails to specifically mention adhesive bandages or their effects on HS lesions. Therefore, it only partially relates to the question and does not provide a clear answer.",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.2,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",20.0,"The transcript discusses the development of HS lesions in areas of friction, such as underarms, groin, and areas affected by clothing like bra straps or waistbands. However, it does not directly address whether adhesive bandages can irritate HS lesions. The connection between friction and HS lesions is mentioned, but the specific role of adhesive bandages is not covered, making the answer largely irrelevant to the question.",919.0,Can a Herniated Disc Heal on its Own?,0.744851053,1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.744612,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.741470277
Should I use gauze pads for hidradenitis suppurativa wounds?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i use gauze pads for hidradenitis suppurativa wounds?,Should I use gauze pads for hidradenitis suppurativa wounds?,Should I use gauze pads for Hidradenitis Suppurativa wounds?,No,,,searchable,exact-match,,,"[{""id"":1866},{""id"":1862},{""id"":1942},{""id"":1941}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.85,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",85.0,"The transcript provides a comprehensive answer to the question about using gauze pads for Hidradenitis Suppurativa (HS) wounds. It explains that the choice of dressing depends on the severity and location of the wounds, and suggests using non-stick gauze like Telfa for comfort. It also discusses other dressing options for different levels of drainage, such as sanitary napkins, baby diapers, and adult diapers. While the transcript does not explicitly say whether gauze pads should be used, it implies that they are a suitable option, especially non-stick types, for less severe cases. The answer is detailed and covers various scenarios, but could be slightly improved by directly addressing the use of regular gauze pads.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.85,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",85.0,"The transcript provides a relevant and practical answer to the question about using gauze pads for Hidradenitis Suppurativa (HS) wounds. It acknowledges the importance of managing drainage, which is a key concern in HS, and suggests using gauze and paper tape as a simple solution. Additionally, it offers alternative options like sanitary napkins or diapers for heavy drainage, which shows a comprehensive approach to wound management. However, the transcript could be improved by explicitly stating the benefits or limitations of gauze pads specifically for HS, which would provide a more direct answer to the question.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.75,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",75.0,"The transcript provides a detailed discussion on managing drainage from Hidradenitis Suppurativa (HS) wounds, mentioning gauze as a cheap option for bandaging. It highlights the importance of keeping drainage away from the skin and suggests gauze with tape as a potential solution, while also cautioning about issues with tape. However, it does not directly answer whether gauze pads should be used specifically for HS wounds, focusing more on general bandaging strategies and alternatives. The response is informative but lacks a direct recommendation regarding gauze pads.",2878.0,Surgical Site Care After Surgery,0.740837276,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.733243048,450.0,I Have Endometriosis,0.729463041
What medical tape is best for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what medical tape is best for hs?,What medical tape is best for HS?,What medical tape is best for HS?,No,,,searchable,exact-match,,,"[{""id"":1866},{""id"":1862},{""id"":1942},{""id"":1867}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.6,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",60.0,"The transcript provides some relevant information about dressing options for HS (Hidradenitis Suppurativa) and mentions the use of paper tape as a gentle option for securing dressings. However, it does not directly address which specific medical tape is 'best' for HS, as the question asks. The response focuses more on dressing types and general advice for managing drainage rather than a detailed comparison or recommendation of medical tapes. Therefore, while it offers some useful context, it does not fully answer the specific question about the best medical tape for HS.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.6,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",60.0,"The transcript addresses the management of drainage in HS (Hidradenitis Suppurativa) and suggests using gauze and paper tape, which partially answers the question about the best medical tape for HS. However, it does not specifically evaluate or compare different types of medical tape, nor does it provide a comprehensive recommendation on which medical tape is best. The focus is more on managing drainage rather than specifically on the tape itself, which limits the completeness of the answer.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.4,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",40.0,"The transcript does not directly answer the question about the best medical tape for HS (Hidradenitis Suppurativa). It provides general advice on managing drainage from abscesses, mentions bandages, and briefly touches on the use of tape with gauze. However, it does not specify any particular type or brand of medical tape that is best for HS. The focus is more on bandages and managing drainage rather than on medical tape specifically. The mention of 'tape origami' suggests some use of tape, but it lacks specific recommendations or details about the best tape options.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.787805855,907.0,HSS Overview,0.787551463,895.0,"Choose Better, Move Better",0.775367439
Can I use hydrocolloid bandages on HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i use hydrocolloid bandages on hs lesions?,Can I use hydrocolloid bandages on HS lesions?,Can I use hydrocolloid bandages on HS lesions?,No,,,searchable,loose-match,,,"[{""id"":1866},{""id"":1942},{""id"":1854},{""id"":1873}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.3,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",30.0,"The transcript provides general information about dressings for HS lesions, focusing on options for managing drainage and comfort. However, it does not specifically address the use of hydrocolloid bandages, which is the main focus of the question. The response lacks direct guidance on whether hydrocolloid bandages are suitable for HS lesions, making it only partially relevant to the question asked.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.3,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",30.0,"The transcript does not directly address the question about using hydrocolloid bandages on HS lesions. It discusses general bandaging strategies for managing drainage from HS abscesses, mentions the importance of keeping drainage away from the skin, and suggests some specific types of bandages like silicone bordered foam bandages. However, it does not specifically mention hydrocolloid bandages or provide guidance on their use for HS lesions. The response lacks a direct answer to the question, which significantly reduces its relevance.",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.1,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",10.0,"The transcript does not address the question about using hydrocolloid bandages on HS lesions. It only discusses where HS lesions tend to develop due to friction, without mentioning treatment options or the use of bandages.",919.0,Can a Herniated Disc Heal on its Own?,0.755435,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.738188863,1020.0,Herniated Disc | Treating Flare-ups,0.737088144
Are there special wound dressings for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,are there special wound dressings for hidradenitis suppurativa?,Are there special wound dressings for hidradenitis suppurativa?,Are there special wound dressings for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1866},{""id"":1942},{""id"":1862},{""id"":1867}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.85,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",85.0,"The transcript provides a comprehensive answer to the question about special wound dressings for Hidradenitis Suppurativa (HS). It discusses various dressing options based on the severity and location of the lesions, including high-tech dressings available through wound care professionals and over-the-counter options like non-stick gauze (Telfa). It also suggests practical solutions for managing drainage, such as using sanitary napkins, baby diapers, or adult diapers. The answer is detailed and covers different scenarios, but it could be improved by mentioning specific brands or types of high-tech dressings for severe cases.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.85,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",85.0,"The transcript provides a detailed answer to the question about special wound dressings for Hidradenitis Suppurativa (HS). It mentions specific types of bandages, such as the 'cloud bandage' from Smith + Nephew, which is a silicone bordered foam bandage, and discusses the importance of keeping drainage away from the skin. It also suggests gauze with tape as a cheaper option and highlights the need to adapt bandaging techniques to avoid skin irritation. The response is comprehensive and offers practical advice, but it could be improved by directly addressing the question at the beginning and summarizing key points more clearly.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.6,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",60.0,"The transcript partially addresses the question by discussing the importance of managing drainage in Hidradenitis Suppurativa (HS) and suggests using gauze, paper tape, sanitary napkins, adult diapers, or baby diapers to absorb fluid. However, it does not specifically mention any specialized wound dressings designed for HS, which is the core of the question. The response provides practical advice but lacks information on specialized products that may be available for this condition.",586.0,Surgical Approaches,0.753917336,2878.0,Surgical Site Care After Surgery,0.753418744,556.0,"An Eventual ""Cure""",0.744217694
How often should I change HS wound dressings?,searchable,Patient_Forums,Hidradenitis Suppurativa,how often should i change hs wound dressings?,How often should I change HS wound dressings?,How often should I change his wound dressings?,No,,,searchable,exact-match,caregiving,,"[{""id"":1863},{""id"":1866},{""id"":1906},{""id"":1862}]",4891.0,CON2-CH3-Q6-How often should I change my dressings-Okoye.mp4,0.85,How often should I change my dressings?,"How often you change the dressing really depends on how much drainage you have. And so some patients get away with just changing their dressing once or twice a day. But I have patients who have to change their dressing every couple of hours depending on how quickly they're soaking through the dressing. So just check every couple of hours, go to the bathroom, take a look and be ready to change it whenever the dressing gets full.",85.0,"The transcript provides a clear and practical answer to the question by explaining that the frequency of changing wound dressings depends on the amount of drainage. It suggests checking the dressing every couple of hours and changing it when it becomes soaked. This advice is useful and directly addresses the question, but it could be improved by mentioning any specific signs of infection or other factors that might influence the frequency of dressing changes.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.3,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",30.0,"The transcript provides a lot of information about different types of wound dressings and considerations for choosing them based on the severity and location of the wounds. However, it does not directly answer the question of how often the wound dressings should be changed. The focus is more on the type of dressings and their application rather than the frequency of changing them.",4957.0,CON3-CH3-Q2-2-How long does it take to recover from HS surgery-Daveluy.mp4,0.3,How long does it take to recover from HS surgery?,"The recovery time for the surgeries varies based on what surgery you have. For example, if we count intralesional injections, or injecting into one or near one of the spots as a surgery, there's not really any recovery time. You start feeling better within 24 to 48 hours. If you have a surgery that removes part of the HS, like a deroofing or an excision where we either take the roof off the tunnel and scrape the lining out for deroofing, or an excision where we take the whole tunnel out with some skin around it, that has a little bit more healing time. We often let them heal by secondary intention, which is our fancy medical word for just letting the skin heal itself without sewing it up. In those cases, you're going to be washing it daily and then covering it with petroleum jelly or whatever your doctor recommends as a wound care dressing and then some gauze or some kind of bandage while it heals. And depending on the size and the depth that they have to go in your skin, it can take anywhere from four to eight to maybe even 12 weeks. So it's a really important conversation to have with your surgeon so you know what to expect before you have the surgery. Often I'll even talk to my patients about surgery so they know what wound care supplies they should go ahead and pick up to have ready, so when they get home, they don't have to go to the pharmacy and try to find these things. They're already ready to go because we scheduled the surgery and we planned for it.",30.0,"The transcript does not directly answer the question about how often to change wound dressings. It provides general information about recovery times and wound care post-surgery, mentioning daily washing and covering with petroleum jelly and gauze, but it does not specify the frequency of changing the dressings. The focus is more on preparation and general care rather than specific instructions on dressing changes.",2878.0,Surgical Site Care After Surgery,0.755068183,3635.0,Drain Care,0.75298351,4447.0,I'm Done With Radiation - Now What?,0.745409131
Can I leave HS lesions uncovered?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i leave hs lesions uncovered?,Can I leave HS lesions uncovered?,Can I leave HS lesions uncovered?,No,,,searchable,exact-match,,,"[{""id"":1873},{""id"":1966},{""id"":1860},{""id"":1911}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.6,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",60.0,"The transcript indirectly addresses the question by suggesting that allowing the skin to breathe and reducing friction can be beneficial for HS lesions. However, it does not explicitly state whether leaving HS lesions uncovered is advisable or not. The response implies that less occlusion is better, which could suggest that leaving lesions uncovered might be beneficial, but it lacks a direct answer to the question.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.3,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",30.0,"The transcript provides information about HS (Hidradenitis Suppurativa) being non-infectious and non-contagious, which indirectly suggests that leaving lesions uncovered does not pose a risk of spreading the condition to others. However, it does not directly address whether it is advisable or safe to leave HS lesions uncovered in terms of healing, protection, or comfort. The answer lacks specific guidance on the management of HS lesions, such as whether covering them might help prevent irritation or infection.",4899.0,CON2-CH3-Q2-Will makeup used to cover the sores make them worse-Daveluy.mp4,0.2,Will makeup used to cover my sores make them worse?,"Some of my patients do report that they use makeup to cover up their scars and their sores of their HS, particularly if they're going to a special event like a wedding where they want to wear a sleeveless dress. We don't have any evidence that shows makeup makes it better or worse. So, it's a little bit of a case-by-case scenario. What I usually recommend to my patients is try the makeup out ahead of time. So, if you're going to a wedding and wearing a special dress, don't let that day be the first time you try it. Maybe a couple of weeks ahead of time, test it out and see how your body reacts, see if it bothers your HS or if it doesn't bother it. And as long as it doesn't cause it to flare up and you don't notice it making it worse, then it should be perfectly safe to use it. But there's a lot of things in HS where they're unpredictable. We don't know which medications are going to work great or not really work so well. We don't know which things are going to be perfect for someone or not. Same thing with diet, with medication. So, a lot of things in HS you have to sort of figure out and get to know your HS and what's going to be good for it, and what might flare it up. So, like I said, my idea is to just prepare ahead of time.",20.0,"The transcript does not directly address the question of whether HS lesions can be left uncovered. Instead, it discusses the use of makeup to cover HS scars and sores, which is related but not the same as leaving lesions uncovered. The advice given is about testing makeup to see if it affects HS, rather than providing guidance on the safety or advisability of leaving lesions uncovered. Therefore, the transcript only tangentially relates to the question and does not provide a clear answer.",3640.0,How to Protect Yourself from the Sun,0.742002308,919.0,Can a Herniated Disc Heal on its Own?,0.73827821,3651.0,How to Check Your Skin,0.735895336
How do I prevent bandages from sticking to HS wounds?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i prevent bandages from sticking to hs wounds?,How do I prevent bandages from sticking to HS wounds?,How do I prevent bandages from sticking to his wounds?,No,,,searchable,exact-match,,,"[{""id"":1866},{""id"":1942},{""id"":1867},{""id"":1816}]",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.85,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",85.0,"The transcript provides a detailed answer to the question about preventing bandages from sticking to wounds. It suggests using non-stick gauze, specifically mentioning Telfa, which has a slippery side to prevent sticking. The response also includes practical advice on securing dressings with tape and offers additional options for managing drainage, which is relevant to wound care. However, the transcript could be more focused on the specific question by emphasizing the non-stick properties of dressings more prominently.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.3,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",30.0,"The transcript does not directly address the question of how to prevent bandages from sticking to wounds. It discusses bandages in the context of managing drainage from abscesses, particularly in the context of Hidradenitis Suppurativa (HS), and mentions different types of bandages and tapes. However, it does not provide specific advice or techniques on preventing bandages from sticking to wounds, such as using non-stick pads or applying a barrier ointment. The information is tangentially related but does not directly answer the question.",4893.0,CON2-CH3-Q10-What should be in my HS care kit-Okoye.mp4,0.1,What should be in my HS care kit?,"An HS care kit that I recommend for patients, especially if they're leaving the house, they're going to work or school, is a small plastic bag that contains your gauze, some paper tape, and maybe a sanitary napkin just in case you have a larger wound that starts to weep during the day. The plastic bag is actually pretty important because depending on where you are, you can then put your used dressing in that plastic bag, seal it, and then there won't be any odor. And then you can discreetly put that back in your bag if you don’t want to leave it in the trash can where someone else can see it. One of the things that's really important is to think about is how you are going to secure your dressing. I've heard horror stories from patients about their dressings falling off and that situation being very embarrassing. So do think about it, and carry some kind of tape to secure your dressing to your body.",10.0,"The transcript does not directly address the question of how to prevent bandages from sticking to wounds. Instead, it discusses the contents of a care kit for managing dressings, including gauze, tape, and sanitary napkins, and emphasizes the importance of securing dressings. However, it does not provide any specific advice or techniques for preventing bandages from sticking to wounds, which is the main focus of the question.",2878.0,Surgical Site Care After Surgery,0.757654369,1080.0,"Glucose & Glue Sticks | The Diabetes Craft Show | E2 
Diabetes Supply Box",0.735837,3635.0,Drain Care,0.734753966
Can petroleum jelly help HS wounds heal?,searchable,Patient_Forums,Hidradenitis Suppurativa,can petroleum jelly help hs wounds heal?,Can petroleum jelly help HS wounds heal?,Can petroleum jelly help HS wounds heal?,No,,,searchable,loose-match,,,"[{""id"":1906},{""id"":1866},{""id"":1864},{""id"":1860}]",4957.0,CON3-CH3-Q2-2-How long does it take to recover from HS surgery-Daveluy.mp4,0.3,How long does it take to recover from HS surgery?,"The recovery time for the surgeries varies based on what surgery you have. For example, if we count intralesional injections, or injecting into one or near one of the spots as a surgery, there's not really any recovery time. You start feeling better within 24 to 48 hours. If you have a surgery that removes part of the HS, like a deroofing or an excision where we either take the roof off the tunnel and scrape the lining out for deroofing, or an excision where we take the whole tunnel out with some skin around it, that has a little bit more healing time. We often let them heal by secondary intention, which is our fancy medical word for just letting the skin heal itself without sewing it up. In those cases, you're going to be washing it daily and then covering it with petroleum jelly or whatever your doctor recommends as a wound care dressing and then some gauze or some kind of bandage while it heals. And depending on the size and the depth that they have to go in your skin, it can take anywhere from four to eight to maybe even 12 weeks. So it's a really important conversation to have with your surgeon so you know what to expect before you have the surgery. Often I'll even talk to my patients about surgery so they know what wound care supplies they should go ahead and pick up to have ready, so when they get home, they don't have to go to the pharmacy and try to find these things. They're already ready to go because we scheduled the surgery and we planned for it.",30.0,"The transcript does not directly address whether petroleum jelly helps HS wounds heal. It mentions using petroleum jelly as part of wound care after certain surgeries for HS, but it does not specifically discuss its effectiveness in healing HS wounds. The focus is more on the general post-surgical care process rather than the specific benefits of petroleum jelly for HS wounds. Therefore, the transcript only partially answers the question by implying its use in wound care without evaluating its healing properties.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.2,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",20.0,"The transcript does not directly address the question about petroleum jelly and its role in healing HS wounds. Instead, it focuses on various dressing options for managing drainage from HS lesions. While it provides useful information on wound care, it does not mention petroleum jelly or its potential benefits or drawbacks in the context of HS wound healing.",4894.0,CON2-CH3-Q7-How should I clean HS wounds-Okoye.mp4,0.1,How should I clean my HS wounds?,"HS wounds can be cleaned with simple soap and water in the shower. That would be the most affordable option. However, sometimes we'll recommend that you use an antiseptic wash and there are a few on the market, some are based on bleach. CLN cleanser is an option. Hibaclens is another option. And something called Vashe. These are three washes that are antiseptic and very gentle on the skin that you can use to cleanse the wounds.",10.0,"The transcript does not address the question about whether petroleum jelly can help HS wounds heal. Instead, it discusses cleaning HS wounds with soap, water, and antiseptic washes, without mentioning petroleum jelly at all. Therefore, it does not provide any relevant information to answer the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.764461219,2328.0,Foods that Help You Heal Faster,0.758814,919.0,Can a Herniated Disc Heal on its Own?,0.751134217
Should I use antibiotic ointment on HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i use antibiotic ointment on hs lesions?,Should I use antibiotic ointment on HS lesions?,Should I use antibiotic ointment on HS lesions?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
What over-the-counter creams help with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what over-the-counter creams help with hs?,What over-the-counter creams help with HS?,What over-the-counter creams help with HS?,No,,,searchable,exact-match,,,"[{""id"":1815},{""id"":1924},{""id"":1925},{""id"":1861}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.7,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",70.0,"The transcript provides a detailed discussion on over-the-counter washes and cleansers that can help with HS, such as benzoyl peroxide wash, chlorhexidine, zinc-containing soaps, and diluted bleach. However, it does not specifically mention 'creams,' which was the focus of the question. While the information is relevant and useful for managing HS, it does not directly address the question about over-the-counter creams, thus not fully answering the question.",4972.0,CON3-CH6-Q3-Can zinc help my HS-Okoye.mp4,0.3,Can zinc help my HS?,"Zinc is a really interesting nutrient. It's not actually in a lot of foods and your body doesn't store it well, but we know that zinc is really important for repair of the skin and perhaps that's one of the reasons it's helpful in HS. We don't really know for sure, but zinc gluconate was the specific type of zinc that was studied in patients with HS, and it seemed to help some patients. Some of my patients will use zinc in addition to other HS treatments. I don't think it works very well on its own, but I think it can be helpful as an add-on to your other medications.",30.0,"The transcript mentions zinc gluconate, which is related to HS treatment, but it does not directly address over-the-counter creams specifically. It discusses zinc as a nutrient and its potential benefits for HS, but does not provide a clear answer regarding specific creams available over-the-counter for HS. The information is somewhat relevant but does not directly answer the question about creams.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.2,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",20.0,"The transcript does not directly answer the question about specific over-the-counter creams for HS (Hidradenitis Suppurativa). Instead, it provides general advice on considering natural remedies and discussing them with a healthcare provider. There is no mention of any specific creams or over-the-counter treatments, which is what the question specifically asks for. Therefore, the response is largely unhelpful in addressing the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.762412906,938.0,Osteoarthritis Treatment,0.756321907,908.0,Osteoarthritis | Diet and Nutrition,0.752465606
Can tea tree oil help with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can tea tree oil help with hidradenitis suppurativa?,Can tea tree oil help with hidradenitis suppurativa?,Can tea tree oil help with Hidradenitis Suppurativa?,No,,,searchable,no-match,alternative therapies,,"[{""id"":1885},{""id"":1950},{""id"":1890},{""id"":1857}]",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.2,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",20.0,"The transcript does not directly address the question about tea tree oil and its potential effects on Hidradenitis Suppurativa (HS). Instead, it focuses on the nature of HS, emphasizing that it is not an infection and discussing the use of antibiotics like doxycycline for inflammation. Tea tree oil is not mentioned, nor is there any discussion about its properties or potential benefits for HS. Therefore, the transcript provides little relevant information regarding the specific inquiry about tea tree oil.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether tea tree oil can help with Hidradenitis Suppurativa. Instead, it discusses the general lack of awareness and misdiagnosis issues related to the condition. There is no mention of tea tree oil or any treatment options, making the response largely irrelevant to the question asked.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.1,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",10.0,"The transcript does not address the question about tea tree oil and its potential effects on Hidradenitis Suppurativa (HS) at all. Instead, it discusses the use of topical and oral antibiotics for managing HS, specifically mentioning clindamycin and general antibiotic strategies. There is no mention of tea tree oil or any alternative treatments, making the transcript irrelevant to the question asked.",2321.0,Health Conditions Impacted by the Microbiome,0.733815193,1583.0,Peppermint Oil | Foods to Support Gut Health,0.729689419,3494.0,Inflammation | Dr. Jim Januzzi,0.729677916
Should I try natural remedies for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i try natural remedies for hs?,Should I try natural remedies for HS?,Should I try natural remedies for HS?,No,,,searchable,exact-match,alternative therapies,,"[{""id"":1925},{""id"":1926},{""id"":1818},{""id"":1826}]",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.85,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",85.0,"The transcript provides a balanced view on trying natural remedies for HS. It acknowledges that some natural remedies may work and suggests discussing them with a healthcare provider, which is a responsible approach. It also emphasizes the importance of informing healthcare providers about any remedies being used. However, it could be improved by mentioning potential risks or the lack of scientific evidence for some natural remedies, which would provide a more comprehensive answer.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.4,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",40.0,"The transcript partially addresses the question by suggesting stress management techniques like yoga, acupuncture, and talk therapy, which can be considered natural remedies. However, it does not directly answer whether one should try natural remedies specifically for HS, nor does it provide a comprehensive discussion on the effectiveness or safety of natural remedies for HS. The focus is more on stress management rather than directly addressing the use of natural remedies for HS.",4827.0,CON1-CH1-Q8-Are there dietary changes I can make to help with the severity of my HS-Daveluy.mp4,0.3,Are there dietary changes I can make to help with the severity of my HS?,"When you are thinking about HS and diet, one of the important things to remember is that diet can be a factor for some people and not for others. So you may not find any dietary triggers and it's not the answer for everyone. So explore things, see if you have dietary triggers or if certain healthy dietary changes can be beneficial, but understand that it may not be an element of your HS necessarily. So don't put all of your eggs in one basket and think diet is the answer for everything. Sometimes you may even see people sharing online how much diet was helpful for them, so don't get discouraged if for your HS, diet isn't as big of a factor.",30.0,"The transcript primarily discusses the role of diet in managing HS (Hidradenitis Suppurativa) and suggests that dietary changes may help some individuals but not others. However, it does not directly address the question about trying natural remedies for HS. While diet can be considered a natural remedy, the transcript does not explicitly mention other natural remedies or provide a comprehensive answer to the question. Therefore, the response is only partially relevant and does not fully answer the question posed.",938.0,Osteoarthritis Treatment,0.761851668,908.0,Osteoarthritis | Diet and Nutrition,0.754036248,3544.0,Are there supplements I should consider or avoid?,0.753831685
Can apple cider vinegar help hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can apple cider vinegar help hidradenitis suppurativa?,Can apple cider vinegar help hidradenitis suppurativa?,Can apple cider vinegar help hidradenitis suppurativa?,No,,,searchable,no-match,,,"[{""id"":1950},{""id"":1890},{""id"":1857},{""id"":1888}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about apple cider vinegar and its potential effects on hidradenitis suppurativa. Instead, it discusses the general lack of awareness and challenges in diagnosing the condition. There is no mention of apple cider vinegar or any treatment options, making the transcript largely irrelevant to the question posed.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.1,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",10.0,"The transcript does not address the question about apple cider vinegar and its potential effects on hidradenitis suppurativa (HS). Instead, it discusses the use of topical and oral antibiotics for managing HS, without any mention of apple cider vinegar or alternative treatments. Therefore, the transcript is not relevant to the question asked.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.1,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",10.0,"The transcript does not address the question about apple cider vinegar and its potential effects on hidradenitis suppurativa (HS). Instead, it focuses on various treatments for managing odor associated with HS, such as antibacterial washes and topical antibiotics. There is no mention of apple cider vinegar or its efficacy in treating HS, which makes the response largely irrelevant to the question asked.",556.0,"An Eventual ""Cure""",0.733317554,694.0,"Amy Lindberg 
S3 | E5",0.729033232,2321.0,Health Conditions Impacted by the Microbiome,0.725154936
Does zinc oxide cream work for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,does zinc oxide cream work for hs?,Does zinc oxide cream work for HS?,Does zinc oxide cream work for HS?,No,,,searchable,exact-match,,,"[{""id"":1924},{""id"":1815},{""id"":1925},{""id"":1861}]",4972.0,CON3-CH6-Q3-Can zinc help my HS-Okoye.mp4,0.6,Can zinc help my HS?,"Zinc is a really interesting nutrient. It's not actually in a lot of foods and your body doesn't store it well, but we know that zinc is really important for repair of the skin and perhaps that's one of the reasons it's helpful in HS. We don't really know for sure, but zinc gluconate was the specific type of zinc that was studied in patients with HS, and it seemed to help some patients. Some of my patients will use zinc in addition to other HS treatments. I don't think it works very well on its own, but I think it can be helpful as an add-on to your other medications.",60.0,"The transcript provides some relevant information about zinc and its potential benefits for HS (Hidradenitis Suppurativa), mentioning that zinc gluconate has been studied and may help some patients. However, it does not specifically address zinc oxide cream, which is the focus of the question. The response suggests zinc can be helpful as an add-on treatment but lacks direct information about the efficacy of zinc oxide cream for HS.",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.6,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",60.0,"The transcript does not directly address the question about zinc oxide cream specifically for HS (Hidradenitis Suppurativa). Instead, it discusses various topical treatments, including zinc in soaps, which have antibacterial and anti-inflammatory properties that may help with HS. However, it does not mention zinc oxide cream, which is a different formulation. The information provided is somewhat relevant as it touches on zinc's potential benefits, but it does not directly answer the question about zinc oxide cream's efficacy for HS.",4973.0,CON3-CH6-Q4-There are a lot of other natural remedies that I’ve heard about-do they work-Okoye.mp4,0.2,"There are a lot of natural remedies I've heard about, do they work?","There's a lot of stuff out there. Patients who are dealing with HS really are searching for natural solutions all over the internet. And frankly, some of them work. I think it makes sense if a friend, a family member, or another patient with HS suggests a natural remedy to you, write it down, discuss it with your care provider, and decide if you're willing to try it. And honestly, if you're trying it on your own and it's helping you, great. Just make sure your providers know exactly what you're taking. ",20.0,"The transcript does not directly address whether zinc oxide cream works for HS. It discusses the general idea of patients with HS seeking natural remedies and suggests discussing these with a care provider, but it does not specifically mention zinc oxide cream or provide any information on its effectiveness for HS.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.745105088,1102.0,HSS Minute | Scleroderma and COVID-19 Vaccine Study,0.742633,907.0,HSS Overview,0.732365966
Can aloe vera soothe HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can aloe vera soothe hs lesions?,Can aloe vera soothe HS lesions?,Can aloe vera soothe HS lesions?,No,,,searchable,no-match,alternative therapies,,"[{""id"":1873},{""id"":1926},{""id"":1880},{""id"":1876}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.1,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",10.0,"The transcript does not address the question about aloe vera's effect on HS lesions. Instead, it discusses how looser fitting clothing can help reduce friction and occlusion, which may worsen HS lesions. There is no mention of aloe vera or its soothing properties in relation to HS lesions, making the response largely irrelevant to the question.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.1,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",10.0,"The transcript does not directly address the question about whether aloe vera can soothe HS lesions. Instead, it discusses the role of stress management in managing HS and suggests activities like exercise, yoga, acupuncture, and talk therapy as beneficial for stress reduction. There is no mention of aloe vera or its effects on HS lesions, making the response largely irrelevant to the specific question asked.",4914.0,CON2-CH5-Q5-How do steroids work in my body to treat HS-Garg.mp4,0.1,How do steroids work in my body to treat HS?,"During a flare, the level of inflammation in the body and the level of inflammation in your lesions is abruptly increased. And so steroids are very helpful in that circumstance because they are powerful anti-inflammatories that bring down that level of inflammation really quickly and really reliably. And so we can use steroids as a strategy during these acute flares for a brief period of time, maybe just a week, maybe up to three weeks, to bring down and reset that level of inflammation.",10.0,"The transcript does not address the question about aloe vera's effectiveness in soothing HS lesions. Instead, it discusses the use of steroids for managing inflammation during acute flares of HS. There is no mention of aloe vera or its potential benefits or drawbacks, making the transcript largely irrelevant to the question asked.",1101.0,HSS Minute | Whole Lupus Patient,0.755313218,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.754293084,919.0,Can a Herniated Disc Heal on its Own?,0.747900486
Will hidradenitis suppurativa ruin my life?,searchable,Patient_Forums,Hidradenitis Suppurativa,will hidradenitis suppurativa ruin my life?,Will hidradenitis suppurativa ruin my life?,Will hidradenitis suppurativa ruin my life?,No,,,searchable,loose-match,"condition overview,mental and emotional health,living with",,"[{""id"":1927},{""id"":1860},{""id"":1912},{""id"":1964}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.4,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",40.0,"The transcript provides some relevant information about hidradenitis suppurativa (HS), such as it not being contagious and not an infection, which can alleviate some concerns about social interactions and intimacy. However, it does not directly address the core of the question, which is whether HS will 'ruin' the person's life. The transcript lacks a discussion on the overall impact of HS on quality of life, management strategies, or long-term prognosis, which are crucial to fully answering the question. Therefore, while it offers some reassurance, it does not comprehensively address the potential life impact of HS.",4899.0,CON2-CH3-Q2-Will makeup used to cover the sores make them worse-Daveluy.mp4,0.3,Will makeup used to cover my sores make them worse?,"Some of my patients do report that they use makeup to cover up their scars and their sores of their HS, particularly if they're going to a special event like a wedding where they want to wear a sleeveless dress. We don't have any evidence that shows makeup makes it better or worse. So, it's a little bit of a case-by-case scenario. What I usually recommend to my patients is try the makeup out ahead of time. So, if you're going to a wedding and wearing a special dress, don't let that day be the first time you try it. Maybe a couple of weeks ahead of time, test it out and see how your body reacts, see if it bothers your HS or if it doesn't bother it. And as long as it doesn't cause it to flare up and you don't notice it making it worse, then it should be perfectly safe to use it. But there's a lot of things in HS where they're unpredictable. We don't know which medications are going to work great or not really work so well. We don't know which things are going to be perfect for someone or not. Same thing with diet, with medication. So, a lot of things in HS you have to sort of figure out and get to know your HS and what's going to be good for it, and what might flare it up. So, like I said, my idea is to just prepare ahead of time.",30.0,"The transcript does not directly address the question of whether hidradenitis suppurativa will ruin one's life. Instead, it focuses on practical advice regarding the use of makeup to cover scars and sores, and the unpredictability of the condition in terms of treatment and triggers. While it touches on the challenges of managing HS, it does not provide a comprehensive answer about the overall impact of HS on a person's life, which is the core of the question.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.3,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",30.0,"The transcript does not directly address the question of whether hidradenitis suppurativa (HS) will ruin the patient's life. Instead, it focuses on surgical treatment options and the complexities of measuring surgical success. It discusses the combination of surgery and medication in managing HS but does not provide an overall perspective on the impact of HS on a patient's life. The transcript lacks a direct response to the emotional and quality of life concerns implied by the question.",4533.0,What Will My Treatment Be Like?,0.74906677,3572.0,My doctor is shaming me for my weight,0.734479308,2321.0,Health Conditions Impacted by the Microbiome,0.734001935
How do I cope with having HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i cope with having hs?,How do I cope with having HS?,How do I cope with having HS?,No,,,searchable,exact-match,"condition management,living with,mental and emotional health",,"[{""id"":1813},{""id"":1841},{""id"":1940},{""id"":1970}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.85,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",85.0,"The transcript provides a comprehensive answer to the question by emphasizing the importance of support groups for coping with HS (Hidradenitis Suppurativa). It explains how support groups can help patients feel less isolated, share experiences, and gain practical advice from others who have the condition. The response also offers specific resources like Hope For HS and HSconnect.org, which are valuable for someone seeking ways to cope. However, the answer could be improved by including additional coping strategies beyond support groups, such as medical treatments, lifestyle changes, or psychological support, to provide a more holistic approach.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.85,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",85.0,"The transcript provides a good answer to the question by suggesting ways to cope with HS, such as joining support groups and having a trusted care team. These suggestions address the emotional and social aspects of coping with the condition, which are important. However, the response could be improved by including additional coping strategies, such as lifestyle changes, stress management techniques, or medical treatments, to provide a more comprehensive answer.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.75,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",75.0,"The transcript addresses the emotional and psychological aspects of coping with Hidradenitis Suppurativa (HS), emphasizing the importance of community support, therapy, and open communication about feelings of depression and anxiety. It provides practical advice on finding support through community and therapy, which are relevant to coping strategies. However, it lacks specific information on managing the physical symptoms of HS, such as medical treatments, lifestyle changes, or self-care practices, which are also important aspects of coping with the condition. Therefore, while it covers the emotional coping mechanisms well, it does not fully address all aspects of coping with HS.",4647.0,Managing Your Mental Health,0.789934754,3634.0,Stress Management,0.772783637,2326.0,How to Manage Overwhelming Stress Levels,0.770380855
Is it normal to feel depressed about hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,is it normal to feel depressed about hidradenitis suppurativa?,Is it normal to feel depressed about hidradenitis suppurativa?,Is it normal to feel depressed about Hidradenitis Suppurativa?,No,,,searchable,exact-match,"mental and emotional health,condition overview,living with",,"[{""id"":1839},{""id"":1940},{""id"":1850},{""id"":1950}]",4859.0,CON1-CH4-Q2-Is depression a normal part of HS-Okoye.mp4,0.95,Is depression a normal part of HS?,"People with HS struggle with a lot of mental health concerns. Depression is one of them. Some people deal with anxiety and for some patients it doesn't get to the level of a diagnosis of depression or anxiety, but they feel a lot of stress and a lot of strain from the disease, from its unpredictability, and from how it tends to affect different aspects of their lives. So yes, what you're feeling is normal.",95.0,"The transcript effectively addresses the question by confirming that it is normal to feel depressed about Hidradenitis Suppurativa (HS). It explains that people with HS often experience mental health concerns, including depression, anxiety, stress, and strain due to the disease's impact on their lives. This directly answers the question and provides context for why these feelings are common among those with HS. The only minor improvement could be a more explicit mention of the term 'normal' in relation to depression, but the current explanation is comprehensive and clear.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.95,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",95.0,"The transcript effectively addresses the question by acknowledging that it is common to feel depressed about Hidradenitis Suppurativa (HS). It explains that there is a higher rate of depression and anxiety associated with HS, thereby normalizing these feelings. The response also offers support by suggesting community engagement and therapy options, reinforcing that the feelings are valid and shared by others. The only minor gap is that it doesn't explicitly use the word 'normal,' but the context strongly implies it.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.2,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",20.0,"The transcript does not directly address the question about whether it is normal to feel depressed about Hidradenitis Suppurativa (HS). It mentions the pain associated with HS and the importance of recognizing painful symptoms, but it does not discuss the emotional or psychological impact of the disease, such as feelings of depression. Therefore, it only indirectly relates to the question by acknowledging the severity of the condition, which might imply emotional distress, but it does not explicitly answer the question about depression.",4645.0,Is What I'm Feeling Normal?,0.806113243,1093.0,Breast Cancer | Feeling Empowered,0.764962196,3490.0,Support | Dr. Tiffany Lowe Clayton,0.761425614
Can HS cause anxiety?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs cause anxiety?,Can HS cause anxiety?,Can HS cause anxiety?,No,,,searchable,exact-match,mental and emotional health,,"[{""id"":1832},{""id"":1940},{""id"":1838},{""id"":1839}]",4839.0,CON1-CH2-Q9-Why does my doctor want me to see a mental health professional-Okoye.mp4,0.9,Why does my doctor want me to see a mental health professional?,"I'll often recommend that my patients with HS see a mental health professional. Sometimes it's because I notice signs or symptoms of depression or anxiety even when my patient doesn't recognize them. But another reason is because depression and anxiety are extremely common in HS. And it's understandable why this disease is really difficult to deal with and it can be really overwhelming. And so I think having a mental health provider just to help with the overwhelm, with the stress, and certainly if you have true depression and anxiety, it's really important.",90.0,"The transcript effectively answers the question by confirming that anxiety is extremely common in individuals with HS (Hidradenitis Suppurativa). It explains that the disease can be overwhelming and difficult to deal with, which can lead to anxiety. The recommendation for patients to see a mental health professional further supports the connection between HS and anxiety. However, the transcript could be slightly improved by explicitly stating that HS can cause anxiety, rather than implying it through the discussion of commonality and mental health support.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.85,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",85.0,"The transcript effectively addresses the question by acknowledging that HS (Hidradenitis Suppurativa) is associated with higher rates of depression and anxiety, implying a causal relationship. It emphasizes that these feelings are common among those with HS and encourages seeking community support and therapy. However, it does not explicitly state that HS causes anxiety, which slightly reduces the score.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.85,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",85.0,"The transcript effectively addresses the question by explaining the bidirectional relationship between HS (Hidradenitis Suppurativa) and stress, which includes anxiety. It implies that HS can contribute to anxiety due to stress from flare-ups, and managing stress and anxiety can help reduce HS flares. However, it does not explicitly state 'HS can cause anxiety,' which slightly reduces the clarity of the answer.",418.0,Anxiety | E7,0.791025937,2313.0,Common Stress and Anxiety Symptoms,0.781587839,1310.0,Developing the Confidence to Overcome Anxiety,0.779598951
How do I deal with the emotional impact of HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i deal with the emotional impact of hs?,How do I deal with the emotional impact of HS?,How do I deal with the emotional impact of HS?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1940},{""id"":1841},{""id"":1931},{""id"":1970}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.85,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",85.0,"The transcript addresses the emotional impact of HS by acknowledging the common feelings of depression and anxiety associated with the condition. It offers practical advice on dealing with these emotions, such as finding community support, engaging in various therapy modalities, and talking about one's feelings. The response is empathetic and provides resources like the Healing Space on HS Connect, which can help manage emotional challenges. However, it could be improved by offering more specific strategies or professional resources for emotional support, such as counseling or therapy options, which would make the answer more comprehensive.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.85,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",85.0,"The transcript provides a good answer to the question by suggesting practical ways to deal with the emotional impact of HS, such as joining support groups and having a supportive care team. These suggestions address the emotional isolation and need for community, which are common emotional challenges faced by individuals with HS. However, the response could be improved by including additional strategies such as counseling, stress management techniques, or discussing the role of mental health professionals.",4980.0,CON4-CH1-Q6-My relationship is deteriorating because of my HS-what can I do-Daveluy.mp4,0.7,"My relationship is deteriorating because of my HS, what can I do?","That's a tough question. I think there are a few elements there that can help any relationship with HS or without. One is open, clear communication. So talk to your partner about the struggles that you're having and what is interfering with the relationship. We have a tendency to want to bottle things up and not put our problems on other people, but I'm sure your partner will actually be grateful to know what's going on because they're probably feeling that the relationship isn't going super great as well, and they want to stay with you and make it work. And so having that open conversation about how your HS is impacting you, and why it is impacting your intimacy, can be a great way to open that door for your partner to also talk about how things are going in the relationship and what maybe you could modify to help things. It can be great to reach out to a mental health professional. I know there's a lot of stigma around getting help from a professional. It doesn't mean you're crazy, it just means you need a little bit of help. I think everybody should have a therapist. It's like a coach who's just helping you navigate life and deal with your issues and gives you that outside perspective. That can be really helpful, especially for relationship counseling, to have that outsider say, here's my viewpoint and here's what may be helpful.",70.0,"The transcript addresses the emotional impact of HS (Hidradenitis Suppurativa) by suggesting open communication with a partner and seeking help from a mental health professional. These are relevant strategies for dealing with emotional challenges. However, the response is somewhat focused on relationship dynamics rather than the broader emotional impact of HS itself. It could be improved by discussing more specific emotional coping strategies or support systems directly related to managing HS.",4647.0,Managing Your Mental Health,0.772770643,4645.0,Is What I'm Feeling Normal?,0.77145344,3634.0,Stress Management,0.769212186
Should I see a therapist for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i see a therapist for hidradenitis suppurativa?,Should I see a therapist for hidradenitis suppurativa?,Should I see a therapist for Hidradenitis Suppurativa?,No,,,searchable,loose-match,"mental and emotional health,condition management",,"[{""id"":1826},{""id"":1950},{""id"":1951},{""id"":1828}]",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.3,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",30.0,"The transcript primarily addresses the medical management of Hidradenitis Suppurativa (HS) by recommending a dermatologist or HS specialist. It does not directly answer the question about seeing a therapist for HS, which may be relevant for psychological support or coping strategies. The response lacks information on the potential benefits of therapy for mental health aspects related to living with a chronic condition like HS.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address whether one should see a therapist for Hidradenitis Suppurativa. It provides information about the disease's lack of awareness and common misdiagnoses, but does not discuss the role of therapy or mental health support in managing the condition. The answer lacks relevance to the question about seeing a therapist.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.2,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",20.0,"The transcript does not directly address whether one should see a therapist for Hidradenitis Suppurativa (HS). Instead, it focuses on the diagnosis process and suggests seeing a dermatologist for confirmation of HS. While it provides useful information about the symptoms and diagnosis of HS, it does not discuss the role of a therapist or mental health support in managing the condition. Therefore, it only partially addresses the question by implying the importance of medical consultation, but not specifically about therapy.",2327.0,When to See a Dietitian for Your Microbiome,0.770502269,3597.0,Do I have to see an obesity specialist?,0.770236373,3490.0,Support | Dr. Tiffany Lowe Clayton,0.757294953
Can counseling help with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can counseling help with hs?,Can counseling help with HS?,Can counseling help with HS?,No,,,searchable,exact-match,"mental and emotional health,treatments",,"[{""id"":1832},{""id"":1940},{""id"":1931},{""id"":1841}]",4839.0,CON1-CH2-Q9-Why does my doctor want me to see a mental health professional-Okoye.mp4,0.85,Why does my doctor want me to see a mental health professional?,"I'll often recommend that my patients with HS see a mental health professional. Sometimes it's because I notice signs or symptoms of depression or anxiety even when my patient doesn't recognize them. But another reason is because depression and anxiety are extremely common in HS. And it's understandable why this disease is really difficult to deal with and it can be really overwhelming. And so I think having a mental health provider just to help with the overwhelm, with the stress, and certainly if you have true depression and anxiety, it's really important.",85.0,"The transcript effectively addresses the question by explaining the benefits of counseling for patients with HS, particularly in managing depression, anxiety, and stress associated with the condition. It highlights the importance of mental health support, which aligns with the inquiry about counseling. However, it could be improved by explicitly stating that counseling can help with HS, rather than focusing solely on mental health professionals.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.7,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",70.0,"The transcript indirectly addresses the question by discussing the emotional and psychological challenges associated with HS (Hidradenitis Suppurativa) and the importance of community and therapy. It mentions various therapy modalities available through a platform called Healing Space, which implies that counseling and other therapeutic interventions can be beneficial. However, it does not explicitly state that counseling can help with HS, nor does it provide specific details about how counseling might be beneficial. The focus is more on community support and general therapeutic activities rather than counseling specifically.",4980.0,CON4-CH1-Q6-My relationship is deteriorating because of my HS-what can I do-Daveluy.mp4,0.7,"My relationship is deteriorating because of my HS, what can I do?","That's a tough question. I think there are a few elements there that can help any relationship with HS or without. One is open, clear communication. So talk to your partner about the struggles that you're having and what is interfering with the relationship. We have a tendency to want to bottle things up and not put our problems on other people, but I'm sure your partner will actually be grateful to know what's going on because they're probably feeling that the relationship isn't going super great as well, and they want to stay with you and make it work. And so having that open conversation about how your HS is impacting you, and why it is impacting your intimacy, can be a great way to open that door for your partner to also talk about how things are going in the relationship and what maybe you could modify to help things. It can be great to reach out to a mental health professional. I know there's a lot of stigma around getting help from a professional. It doesn't mean you're crazy, it just means you need a little bit of help. I think everybody should have a therapist. It's like a coach who's just helping you navigate life and deal with your issues and gives you that outside perspective. That can be really helpful, especially for relationship counseling, to have that outsider say, here's my viewpoint and here's what may be helpful.",70.0,"The transcript addresses the question by suggesting that counseling can be beneficial, particularly in the context of relationships affected by HS (Hidradenitis Suppurativa). It emphasizes the importance of open communication and suggests that a mental health professional can provide valuable support. However, the transcript does not directly address how counseling specifically helps with HS itself, focusing more on relationship dynamics and general mental health support. Therefore, while it partially answers the question, it lacks specificity regarding the direct impact of counseling on managing HS symptoms.",3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.772034466,4647.0,Managing Your Mental Health,0.771588326,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.765037239
Are there support groups for people with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,are there support groups for people with hidradenitis suppurativa?,Are there support groups for people with hidradenitis suppurativa?,Are there support groups for people with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1813},{""id"":1841},{""id"":1827},{""id"":1939}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.95,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",95.0,"The transcript provides a comprehensive answer to the question about the existence of support groups for people with Hidradenitis Suppurativa (HS). It not only confirms that such groups exist but also emphasizes their importance and benefits for patients. The response includes specific examples of support groups like Hope For HS and HSconnect.org, and mentions both live and virtual meeting options, which adds practical value to the answer. The only minor improvement could be a brief mention of how to find these groups, but overall, the response is highly informative and supportive.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.9,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",90.0,"The transcript effectively answers the question by confirming the existence of support groups for people with Hidradenitis Suppurativa (HS). It mentions that patients have organized support groups, both online and in person, which directly addresses the inquiry about support groups. Additionally, it provides extra information about the importance of having a supportive care team, which, while not directly related to the question, adds value to the response. The only minor shortcoming is the lack of specific examples or names of these support groups, which would have made the answer more comprehensive.",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.8,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",80.0,"The transcript does address the question by mentioning that patient support groups are a resource for people with Hidradenitis Suppurativa (HS). However, it does not provide specific details about these support groups, such as where to find them or how to join. The focus of the transcript is more on finding medical experts and resources for treatment, with only a brief mention of support groups. Therefore, while it answers the question, it lacks depth and specificity regarding support groups.",866.0,A Hub of Resources at Your Fingertips,0.769796669,3490.0,Support | Dr. Tiffany Lowe Clayton,0.769239545,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.764950752
Where can I find other people with HS to talk to?,searchable,Patient_Forums,Hidradenitis Suppurativa,where can i find other people with hs to talk to?,Where can I find other people with HS to talk to?,Where can I find other people with HS to talk to?,No,,,searchable,exact-match,,,"[{""id"":1813},{""id"":1841},{""id"":1970},{""id"":1978}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.95,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",95.0,"The transcript provides a comprehensive answer to the question by not only affirming the existence of support groups for people with HS but also emphasizing their importance. It mentions specific resources such as 'Hope For HS' and 'HSconnect.org' where individuals can connect with others. The response also elaborates on the benefits of joining these groups, such as sharing experiences and reducing feelings of isolation. The only minor improvement could be providing more specific details on how to access these groups, but overall, the answer is highly relevant and informative.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.75,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",75.0,"The transcript provides a general answer to the question by suggesting that there are support groups for people with HS, both online and in person. This implies that these groups are places where one can find others with HS to talk to. However, the response lacks specific details such as names of organizations, websites, or platforms where these support groups can be found, which would have made the answer more complete and actionable.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.7,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",70.0,"The transcript partially answers the question by suggesting joining an HS community to find others with the same condition. However, it lacks specific details on where or how to find these communities, such as online forums, support groups, or social media platforms. Providing more concrete guidance would improve the response.",866.0,A Hub of Resources at Your Fingertips,0.772380888,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.761926472,1044.0,"Men with Diabetes | E1 
Diabetes Friends & Community",0.759343326
Can antidepressants help with HS-related depression?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can antidepressants help with hs-related depression?,Can antidepressants help with HS-related depression?,Can antidepressants help with HS-related depression?,No,,,searchable,loose-match,"mental and emotional health,treatments",,"[{""id"":1842},{""id"":1832},{""id"":1940},{""id"":1838}]",4855.0,CON1-CH4-Q5-Will depression medications affect my HS treatment-Okoye.mp4,0.5,Will depression medications affect my HS?,Medications for depression and anxiety don't affect HS treatments. And actually many of my patients are on medications to help their mental health as well.,50.0,"The transcript partially addresses the question by acknowledging that many patients with HS are on medications for mental health, implying that antidepressants can be used for HS-related depression. However, it does not explicitly confirm that antidepressants help with HS-related depression, nor does it provide any details on their effectiveness or how they might be used in this context. The response lacks specificity and directness in answering the question.",4839.0,CON1-CH2-Q9-Why does my doctor want me to see a mental health professional-Okoye.mp4,0.4,Why does my doctor want me to see a mental health professional?,"I'll often recommend that my patients with HS see a mental health professional. Sometimes it's because I notice signs or symptoms of depression or anxiety even when my patient doesn't recognize them. But another reason is because depression and anxiety are extremely common in HS. And it's understandable why this disease is really difficult to deal with and it can be really overwhelming. And so I think having a mental health provider just to help with the overwhelm, with the stress, and certainly if you have true depression and anxiety, it's really important.",40.0,"The transcript acknowledges the prevalence of depression and anxiety in patients with HS and suggests seeing a mental health professional, which implies that treatment, possibly including antidepressants, could be beneficial. However, it does not directly address whether antidepressants specifically help with HS-related depression. The response lacks a direct answer to the question about the role of antidepressants, focusing instead on the general importance of mental health support.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.3,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",30.0,"The transcript acknowledges the prevalence of depression and anxiety among individuals with HS and emphasizes the importance of community support and various therapy modalities. However, it does not directly address whether antidepressants can help with HS-related depression. The response focuses more on emotional support and alternative therapies rather than pharmacological treatment options, which is the core of the question.",119.0,How Depression Affects The Brain | Yale Medicine Explains,0.790192425,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.781955,364.0,Managing Depression: Overcoming Barriers and Getting Help,0.780909956
Should I take anxiety medication for HS stress?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i take anxiety medication for hs stress?,Should I take anxiety medication for HS stress?,Should I take anxiety medication for HS stress?,No,,,contact_doctor,,"mental and emotional health,treatments",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
How do I stay positive with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i stay positive with hidradenitis suppurativa?,How do I stay positive with hidradenitis suppurativa?,How do I stay positive with Hidradenitis Suppurativa?,No,,,searchable,loose-match,"mental and emotional health,living with",,"[{""id"":1859},{""id"":1942},{""id"":1857},{""id"":1950}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.3,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",30.0,"The transcript primarily focuses on the medical management of Hidradenitis Suppurativa (HS), discussing treatment options like surgery and medication to control disease activity and drainage. However, it does not directly address the question of how to stay positive while living with HS. The transcript briefly touches on public awareness and the social aspect of explaining the condition to others, but it lacks specific advice or strategies for maintaining a positive mindset. Therefore, the response is not well-aligned with the question, which is about emotional and psychological coping mechanisms rather than medical treatment.",4868.0,CON1-CH5-Q4-How do I deal with drainage when I'm at work-Brooks.mp4,0.2,What do I do about the drainage and discharge?,"Another lovely piece of HS is the drainage from our abscesses. Again, you did nothing to cause this. And I know how incredibly relieving it can be when abscesses start to drain. It's the weirdest phenomenon to go from like a 10 out of 10 pain when you have an abscess that is just so inflamed and so full, to a one out of 10 the second that that thing starts draining. Everyone who has HS knows that sigh of relief. Again, you have another problem now because you've got to deal with the drainage, but the weight that becomes lifted off of you as soon as something starts to drain like that is, it's not like anyone can understand what that feels like unless you've dealt with it yourself. There are some really, really great bandages. We do not recommend band-aids because they just keep that drainage too close to your skin, which then also causes other issues. We have a list of bandages on our product suggestion page. My favorite personally is what we call cloud bandage. It's a Smith + Nephew bandage that's a silicone bordered foam. And it's almost like memory foam in the middle, which is heaven. And it really helps with any of the friction that happens and it can hold a lot of exudate or drainage in the bandage. So the most important thing is to keep that drainage away from your skin. So you kind of have to figure out how much drainage you're having and what kind of bandage may be the best for you. A cheap option is gauze with tape. You can create other issues with the tape, so you also want to be careful with that too.  It seems like for every solve, there's also something that could be created based on that, which is why we get to be MacGyver's when it comes to our HS. I know in the past for some of my experiences I've taken, I call it tape origami. So I'll fold my bandage differently every day, so I'm not taping over that same skin. Because we all know what that feels like if you've dealt with pulling the tape off of the same skin day after day and how that skin just gets so sensitive and red and irritated. But you don't have a choice other than to keep bandaging over it. So trying to find other ways to MacGyver the heck out of some of this is really, we become very, very good at figuring out alternative methods, but there are a lot of different options out and available -  different tapes, a lot of different bandages, a lot of different things that you can use. And that is again, where a community is great for getting resources and suggestions from other people on what they've used. There are so many things we haven't even tapped into yet. So getting that information and working within a community is also a really great way to find some alternatives for that. ",20.0,"The transcript primarily discusses the physical management of Hidradenitis Suppurativa (HS), focusing on dealing with abscess drainage and bandaging techniques. It does not address the psychological aspect of staying positive with HS, which is the core of the question. While it mentions the relief from pain when abscesses drain, it lacks any direct advice or strategies for maintaining a positive mindset or emotional well-being. Therefore, it only tangentially relates to the question and does not provide a comprehensive answer.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.2,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",20.0,"The transcript does not address the question of how to stay positive with Hidradenitis Suppurativa. Instead, it focuses on managing the odor associated with the condition through various antibacterial washes and treatments. While managing symptoms can contribute to a more positive outlook, the transcript does not directly discuss strategies for maintaining a positive mindset, such as psychological support, lifestyle changes, or coping mechanisms. Therefore, it only indirectly relates to the question and does not provide a comprehensive answer.",4647.0,Managing Your Mental Health,0.758826435,4645.0,Is What I'm Feeling Normal?,0.757328033,4397.0,Getting Your Life Back,0.756191611
Can meditation help with HS stress?,searchable,Patient_Forums,Hidradenitis Suppurativa,can meditation help with hs stress?,Can meditation help with HS stress?,Can meditation help with high stress?,No,,,searchable,loose-match,"mental and emotional health,alternative therapies",,"[{""id"":1926},{""id"":1837},{""id"":1840},{""id"":1838}]",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.5,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",50.0,"The transcript indirectly addresses the question by suggesting that managing stress can help with conditions exacerbated by stress, such as HS (Hidradenitis Suppurativa). It mentions yoga and talk therapy as stress management techniques, which implies that meditation, a common stress management practice, could also be beneficial. However, the transcript does not explicitly mention meditation or directly answer whether meditation can help with high stress. Therefore, the connection is implied rather than directly stated, resulting in a moderate score.",4852.0,CON1-CH3-Q5-What role does stress play in HS-Garg-.mp4,0.4,What role does stress play in HS?,"Life is stressful today in general, and certainly having a chronic inflammatory condition like HS adds to that stress. It's not really clear what kind of role stress plays in skin disease in general, but certainly I hear from a lot of patients that stress at least maybe makes their condition worse. And listen, I think we've appreciated over time that there is a connection between the mind, the body, and the soul. So it never surprises me when a patient talks to me about how stress really influences their activity of HS. What I would say is that it's important to manage stress, find ways to cope with stress, for life in general, and especially when you have a chronic condition like HS. I think managing your stress can potentially influence how you perceive the disease, how you cope with the disease, and maybe even how active the condition can get. For example, how often you might flare. So I encourage all of my patients, anything you can do to cope with stress better, to find ways to be more resilient when you have a chronic condition like HS, can only help.",40.0,"The transcript discusses the importance of managing stress, especially in relation to chronic conditions like HS (Hidradenitis Suppurativa), and suggests that managing stress can influence disease perception and activity. However, it does not directly address whether meditation specifically can help with high stress. The response is more focused on general stress management rather than the specific role of meditation.",4862.0,CON1-CH4-Q3-What can I do about my anxiety-Okoye.mp4,0.3,What can I do about my anxiety?,"If you are feeling symptoms of anxiety, you should absolutely talk to your care providers about what you're dealing with because there are many approaches we can take to help with anxiety symptoms - ranging from wellness activities like yoga, walks, to talk therapy, to medications. So it really depends. It depends on how severe your symptoms are and how much they're affecting your life.",30.0,"The transcript does not directly address the question of whether meditation can help with high stress. It mentions wellness activities like yoga and walks, but does not specifically mention meditation. The focus is more on general approaches to anxiety, including therapy and medication, rather than directly answering the question about meditation's effectiveness for stress. Therefore, the response is not well-aligned with the question.",2329.0,Restore and Relax Mindfulness Practice,0.801379561,3643.0,Relaxation,0.797032356,1370.0,Benefits of Meditation,0.796516955
Should I try therapy for chronic pain from HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i try therapy for chronic pain from hs?,Should I try therapy for chronic pain from HS?,Should I try therapy for chronic pain from HS?,No,,,searchable,exact-match,"treatments,alternative therapies,condition management",,"[{""id"":1926},{""id"":1940},{""id"":1874},{""id"":1845}]",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.75,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",75.0,"The transcript addresses the question indirectly by suggesting that talk therapy, as a form of stress management, can be beneficial for managing HS (Hidradenitis Suppurativa) because stress contributes to inflammation. However, it does not explicitly state that therapy should be tried specifically for chronic pain, nor does it delve into how therapy might directly address chronic pain symptoms. The response could be improved by directly linking therapy to chronic pain management and providing more detailed information on how therapy can help with chronic pain specifically.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.6,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",60.0,"The transcript addresses the emotional and psychological aspects associated with HS, such as depression and anxiety, and suggests therapy modalities like breathing exercises, movement therapy, and art therapy. However, it does not directly answer whether therapy should be tried specifically for chronic pain from HS. The focus is more on mental health support rather than pain management, which is the core of the question.",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.4,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",40.0,"The transcript discusses strategies for managing pain associated with HS, focusing on controlling inflammation through medication. However, it does not directly address the question of whether therapy, such as psychological or physical therapy, should be considered for chronic pain management. The response is more focused on medical and pharmacological approaches rather than therapeutic interventions, which leaves the original question about trying therapy unanswered.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.795169652,938.0,Osteoarthritis Treatment,0.774059713,486.0,Pain | Dr. Phil Schauer,0.773678184
Can cognitive behavioral therapy help with hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can cognitive behavioral therapy help with hidradenitis suppurativa?,Can cognitive behavioral therapy help with hidradenitis suppurativa?,Can cognitive behavioral therapy help with hidradenitis suppurativa?,No,,,searchable,no-match,"treatments,mental and emotional health",,"[{""id"":1950},{""id"":1885},{""id"":1890},{""id"":1823}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about cognitive behavioral therapy (CBT) and its potential benefits for hidradenitis suppurativa (HS). Instead, it discusses the lack of awareness and common misdiagnosis of HS, which is unrelated to the inquiry about CBT as a treatment option.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.1,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",10.0,"The transcript does not address the question about cognitive behavioral therapy (CBT) and its potential role in treating hidradenitis suppurativa (HS). Instead, it focuses on the misconception of HS as an infection, the role of the microbiome, and the use of antibiotics like doxycycline to manage inflammation. There is no mention of CBT or any psychological interventions, which are the focus of the question.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.1,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",10.0,"The transcript does not address the question about cognitive behavioral therapy (CBT) and its potential role in managing hidradenitis suppurativa (HS). Instead, it focuses on the use of topical and oral antibiotics for treating HS. There is no mention of CBT or any psychological interventions, which are the main focus of the question. Therefore, the transcript is largely irrelevant to the question asked.",1310.0,Developing the Confidence to Overcome Anxiety,0.760835588,3490.0,Support | Dr. Tiffany Lowe Clayton,0.7547611,1308.0,A Life-Changing Therapy For Children With Autism At The Child Study Center,0.754260659
How do I stop feeling ashamed of my HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i stop feeling ashamed of my hs?,How do I stop feeling ashamed of my HS?,How do I stop feeling ashamed of my HS?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1970},{""id"":1980},{""id"":1943},{""id"":1972}]",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.85,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",85.0,"The transcript effectively addresses the emotional aspect of feeling ashamed about having HS by emphasizing that it is not the patient's fault and that they are not alone. It suggests joining a community for support, which can help alleviate feelings of shame. However, it could be improved by providing more specific strategies or psychological techniques to directly combat feelings of shame.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.85,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",85.0,"The transcript addresses the question by focusing on the emotional aspect of HS (Hidradenitis Suppurativa) and the importance of understanding that the condition is not the patient's fault. It emphasizes the need to relieve oneself of guilt and shame, which directly relates to the question about stopping feelings of shame. The speaker suggests seeking community support and professional reassurance as ways to combat these feelings, which are practical steps towards addressing the issue. However, the transcript could be improved by offering more specific strategies or psychological techniques to manage feelings of shame.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.75,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",75.0,"The transcript addresses the question by discussing the emotional burden of keeping HS (Hidradenitis Suppurativa) a secret and the potential relief and benefits of sharing one's experience with others. It emphasizes that sharing is a personal choice and highlights the empathy and support that can come from being open about HS. However, it doesn't directly address strategies for overcoming feelings of shame specifically, such as cognitive-behavioral techniques or seeking professional help, which could have provided a more comprehensive answer to the question about stopping feelings of shame.",3590.0,I am feeling shameful about my weight,0.783798635,3571.0,I am feeling shameful about my weight,0.783798635,4636.0,I Can't Get Past The Shame and Guilt Over My Diagnosis,0.767531395
Why do I feel so alone with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,why do i feel so alone with hidradenitis suppurativa?,Why do I feel so alone with hidradenitis suppurativa?,Why do I feel so alone with Hidradenitis Suppurativa?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1841},{""id"":1950},{""id"":1850},{""id"":1951}]",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.85,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",85.0,"The transcript addresses the question by acknowledging that Hidradenitis Suppurativa (HS) can be an isolating condition, which directly relates to the feeling of loneliness mentioned in the question. It provides reassurance that the individual is not alone by highlighting the existence of a large community of HS patients and organized support groups. Additionally, it suggests practical solutions to combat isolation, such as connecting with support groups and having a trustworthy care team. However, the transcript could be improved by exploring more deeply the emotional aspects of feeling alone and providing more specific examples or resources for support.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.6,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",60.0,"The transcript addresses the question indirectly by highlighting the lack of awareness and understanding of Hidradenitis Suppurativa (HS) among both doctors and patients. It explains that HS is often misdiagnosed, which can contribute to feelings of isolation due to delayed diagnosis and treatment. However, it does not directly address the emotional aspect of feeling alone or provide specific support or resources for coping with these feelings, which limits the completeness of the answer.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.2,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",20.0,"The transcript does not directly address the question of why someone might feel alone with Hidradenitis Suppurativa (HS). It mentions the pain associated with HS and the importance of recognizing painful symptoms, but it does not explore the emotional or social aspects that could contribute to feelings of loneliness. The response lacks any discussion on the psychological impact, social stigma, or support systems related to HS, which are crucial to understanding why a person might feel isolated.",4645.0,Is What I'm Feeling Normal?,0.766822636,450.0,I Have Endometriosis,0.76000613,1093.0,Breast Cancer | Feeling Empowered,0.755689
Can HS affect my self-esteem?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs affect my self-esteem?,Can HS affect my self-esteem?,Can HS affect my self-esteem?,No,,,searchable,exact-match,mental and emotional health,,"[{""id"":1839},{""id"":1972},{""id"":1841},{""id"":1979}]",4859.0,CON1-CH4-Q2-Is depression a normal part of HS-Okoye.mp4,0.85,Is depression a normal part of HS?,"People with HS struggle with a lot of mental health concerns. Depression is one of them. Some people deal with anxiety and for some patients it doesn't get to the level of a diagnosis of depression or anxiety, but they feel a lot of stress and a lot of strain from the disease, from its unpredictability, and from how it tends to affect different aspects of their lives. So yes, what you're feeling is normal.",85.0,"The transcript effectively addresses the question by discussing the mental health concerns associated with HS, such as depression, anxiety, stress, and strain, which can all impact self-esteem. It acknowledges the emotional burden and the normalcy of these feelings, implying that self-esteem can indeed be affected. However, it does not explicitly mention 'self-esteem,' which slightly reduces the directness of the answer.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.75,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",75.0,"The transcript addresses the question indirectly by discussing the impact of HS on relationships and self-perception, which are closely related to self-esteem. It emphasizes the importance of vulnerability and communication about HS in relationships, suggesting that HS can affect one's feelings of worthiness and attractiveness. However, it does not explicitly mention 'self-esteem' or directly answer the question about how HS affects self-esteem, which is why the rating is not higher.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.6,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",60.0,"The transcript indirectly addresses the question by discussing the isolating nature of HS and the importance of support groups and a trusted care team. However, it does not explicitly mention self-esteem or how HS might directly impact it. The response suggests ways to mitigate feelings of isolation, which can be related to self-esteem, but it lacks a direct connection to the concept of self-esteem itself.",1230.0,How Does Weight Stigma Affect Mental & Physical Health?,0.766312778,4645.0,Is What I'm Feeling Normal?,0.750993371,3555.0,How does obesity affect your mental health?,0.750292897
How do I accept my body with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i accept my body with hidradenitis suppurativa?,How do I accept my body with hidradenitis suppurativa?,How do I accept my body with Hidradenitis Suppurativa?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1973},{""id"":1859},{""id"":1950},{""id"":1951}]",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.75,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",75.0,"The transcript addresses the emotional and relational aspects of accepting one's body with Hidradenitis Suppurativa (HS) by focusing on intimacy and communication with partners. It emphasizes the importance of vulnerability, open communication, and redefining intimacy beyond physical appearance, which are crucial for self-acceptance. However, it does not directly address personal self-acceptance strategies outside of relationships, such as self-care, mental health support, or community engagement, which could provide a more comprehensive answer to the question.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.3,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",30.0,"The transcript primarily focuses on the medical management of Hidradenitis Suppurativa (HS), discussing treatment options like surgery and medication to control the disease's symptoms. However, the question specifically asks about accepting one's body with HS, which is more about psychological and emotional acceptance rather than medical treatment. The transcript briefly touches on public awareness and educating others about HS, which could indirectly relate to acceptance, but it does not directly address strategies or advice for personal acceptance of one's body with the condition. Therefore, the transcript does not adequately answer the question posed.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question of how to accept one's body with Hidradenitis Suppurativa. Instead, it discusses the lack of awareness and common misdiagnosis of the condition. There is no mention of body acceptance strategies, psychological support, or coping mechanisms, which are relevant to the question asked.",3490.0,Support | Dr. Tiffany Lowe Clayton,0.754161119,3568.0,How do I handle the stigma and weight bias?,0.754112124,3572.0,My doctor is shaming me for my weight,0.752545655
Will I ever feel normal again with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,will i ever feel normal again with hs?,Will I ever feel normal again with HS?,Will I ever feel normal again with HS?,No,,,searchable,exact-match,"condition management,living with,mental and emotional health",,"[{""id"":1940},{""id"":1970},{""id"":1841},{""id"":1839}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.6,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",60.0,"The transcript addresses the emotional and psychological impact of HS, emphasizing the commonality of depression and anxiety among those with the condition. It offers support resources and encourages community engagement, which can help improve mental health. However, it does not directly answer whether the individual will 'feel normal again,' as it focuses more on coping strategies and community support rather than a definitive answer about returning to a sense of normalcy.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.4,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",40.0,"The transcript provides emotional support and reassurance to the patient, emphasizing that HS is not their fault and encouraging them to join a community for support. However, it does not directly address the question of whether the patient will feel 'normal' again. It suggests there is 'light at the end of the tunnel,' implying improvement is possible, but lacks specific information about treatment outcomes or the potential for returning to a sense of normalcy.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.4,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",40.0,"The transcript addresses the emotional and social aspects of living with HS, suggesting ways to connect with others and find support, which can help improve one's sense of normalcy. However, it does not directly answer whether the individual will feel 'normal' again, as it lacks information on treatment outcomes, disease management, or personal experiences of regaining normalcy. The response is supportive but not specific to the question's focus on feeling normal.",4645.0,Is What I'm Feeling Normal?,0.797933519,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.765962124,4533.0,What Will My Treatment Be Like?,0.763363183
How do I deal with feeling embarrassed about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i deal with feeling embarrassed about hs?,How do I deal with feeling embarrassed about HS?,How do I deal with feeling embarrassed about HS?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1943},{""id"":1980},{""id"":1841},{""id"":1970}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.85,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",85.0,"The transcript provides a comprehensive answer to the question about dealing with embarrassment related to HS (Hidradenitis Suppurativa). It addresses the emotional burden of keeping HS a secret and the potential relief and benefits of sharing one's experience. It acknowledges the fear of judgment but emphasizes the empathy and support that can come from others. The response also highlights the importance of personal choice in deciding whether to share one's condition and the potential positive impact on others who may be suffering in silence. While it doesn't offer specific strategies for managing embarrassment, it provides a thoughtful perspective on the emotional aspects and social dynamics involved, which is highly relevant to the question.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.85,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",85.0,"The transcript addresses the emotional aspect of dealing with embarrassment related to HS by emphasizing that the condition is not the patient's fault, which can help alleviate feelings of shame and stigma. It highlights the importance of reassurance from healthcare providers and community support, which are crucial in managing the emotional burden of HS. However, it does not provide specific strategies or actions for dealing with embarrassment, such as coping mechanisms or support groups, which would have made the response more comprehensive.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.75,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",75.0,"The transcript provides a supportive response to the question about dealing with embarrassment related to HS (Hidradenitis Suppurativa). It suggests connecting with support groups and having a trusted care team as ways to cope with feelings of isolation and embarrassment. However, it does not directly address the emotional aspect of embarrassment or provide specific strategies for managing those feelings, such as cognitive-behavioral techniques or counseling. Therefore, while the response is helpful, it could be more comprehensive in addressing the emotional aspect of embarrassment.",3590.0,I am feeling shameful about my weight,0.773738086,3571.0,I am feeling shameful about my weight,0.773738086,4645.0,Is What I'm Feeling Normal?,0.756423235
Can hidradenitis suppurativa make me suicidal?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hidradenitis suppurativa make me suicidal?,Can hidradenitis suppurativa make me suicidal?,Can hidradenitis suppurativa make me suicidal?,No,,,searchable,no-match,"mental and emotional health,condition overview",,"[{""id"":1950},{""id"":1823},{""id"":1908},{""id"":1912}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address the question about whether hidradenitis suppurativa (HS) can lead to suicidal thoughts. Instead, it focuses on the lack of awareness and the common misdiagnosis of HS. While these factors can contribute to the psychological burden of the disease, the transcript does not explicitly discuss the mental health impact or the potential for suicidal ideation, which is the core of the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about whether hidradenitis suppurativa (HS) can lead to suicidal thoughts or feelings. Instead, it focuses on sweating as a trigger for HS and offers advice on managing sweating. There is no mention of the psychological impact of HS or any discussion related to mental health or suicidal ideation. Therefore, the transcript is largely irrelevant to the question asked.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.05,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",5.0,"The transcript does not address the question about whether hidradenitis suppurativa (HS) can lead to suicidal thoughts or feelings. Instead, it focuses on various surgical treatments for HS, such as laser hair removal, deroofing, and excision. The question is about the psychological impact of HS, while the transcript is entirely about physical treatment options, making it irrelevant to the question asked.",4533.0,What Will My Treatment Be Like?,0.739635825,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.731134415,3490.0,Support | Dr. Tiffany Lowe Clayton,0.729726136
What do I do when I feel hopeless about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what do i do when i feel hopeless about hs?,What do I do when I feel hopeless about HS?,What do I do when I feel hopeless about HS?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1940},{""id"":1841},{""id"":1970},{""id"":1931}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.85,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",85.0,"The transcript provides a comprehensive response to the question about feeling hopeless due to HS (Hidradenitis Suppurativa). It acknowledges the commonality of depression and anxiety among those with HS, offers reassurance that the individual is not alone, and suggests practical steps such as finding a community and engaging in various therapeutic activities. It also provides hope by mentioning ongoing advancements in treatment. However, it could be improved by offering more specific immediate actions or resources, such as contacting a mental health professional or support groups, which would make the response more actionable.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.85,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",85.0,"The transcript provides a supportive and practical response to the question about feeling hopeless due to HS (Hidradenitis Suppurativa). It suggests connecting with support groups and emphasizes the importance of having a trustworthy care team, which are both effective strategies for dealing with feelings of hopelessness. However, it could be improved by directly addressing emotional coping strategies or professional mental health support, which are also important aspects of managing hopelessness.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.7,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",70.0,"The transcript provides emotional support and reassurance to someone feeling hopeless about HS (Hidradenitis Suppurativa). It emphasizes that the condition is not the patient's fault and suggests joining a community for support, which can be helpful in alleviating feelings of hopelessness. However, it does not offer specific strategies or actions to directly address feelings of hopelessness, such as seeking professional mental health support, exploring treatment options, or engaging in self-care practices. Therefore, while it addresses the emotional aspect, it lacks practical advice, which limits its effectiveness in fully answering the question.",4645.0,Is What I'm Feeling Normal?,0.752979159,3634.0,Stress Management,0.748311758,4639.0,I'm Completely Overwhelmed. What Do I Do?,0.745563626
How do I manage living with chronic pain from hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage living with chronic pain from hidradenitis suppurativa?,How do I manage living with chronic pain from hidradenitis suppurativa?,How do I manage living with chronic pain from Hidradenitis Suppurativa?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1874},{""id"":1859},{""id"":1908},{""id"":1928}]",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.85,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",85.0,"The transcript provides a comprehensive answer to the question by explaining that managing chronic pain from Hidradenitis Suppurativa (HS) involves controlling inflammation, which is the root cause of the pain. It suggests using HS-directed medications to manage inflammation and pain, and also mentions the use of home remedies, over-the-counter medications, and narcotics in specific situations. However, it could be improved by providing more specific examples of medications or home remedies, and by discussing lifestyle changes or other non-pharmacological strategies that could help manage chronic pain.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.6,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",60.0,"The transcript partially addresses the question about managing chronic pain from Hidradenitis Suppurativa (HS) by discussing treatment options aimed at stopping disease activity, such as surgery and medications. However, it focuses more on managing drainage and lesions rather than directly addressing chronic pain management. It also touches on public awareness and educating others about HS, which is not directly related to managing chronic pain. Therefore, while it provides some relevant information, it does not comprehensively answer the question about managing chronic pain specifically.",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.4,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",40.0,"The transcript primarily focuses on surgical options for managing Hidradenitis Suppurativa (HS), such as laser hair removal, deroofing, excision, and incision and drainage. While these surgical interventions can be part of managing chronic pain associated with HS, the transcript does not address other important aspects of chronic pain management, such as lifestyle modifications, pain medication, psychological support, or non-surgical treatments. Therefore, it only partially answers the question about managing chronic pain from HS, focusing heavily on surgical options without a comprehensive approach to pain management.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.781234264,3647.0,Pain Management,0.777376,2880.0,Pain Management After Surgery,0.777187347
Can chronic HS pain lead to depression?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can chronic hs pain lead to depression?,Can chronic HS pain lead to depression?,Can chronic HS pain lead to depression?,No,,,searchable,exact-match,"mental and emotional health,condition management",,"[{""id"":1832},{""id"":1839},{""id"":1838},{""id"":1940}]",4839.0,CON1-CH2-Q9-Why does my doctor want me to see a mental health professional-Okoye.mp4,0.85,Why does my doctor want me to see a mental health professional?,"I'll often recommend that my patients with HS see a mental health professional. Sometimes it's because I notice signs or symptoms of depression or anxiety even when my patient doesn't recognize them. But another reason is because depression and anxiety are extremely common in HS. And it's understandable why this disease is really difficult to deal with and it can be really overwhelming. And so I think having a mental health provider just to help with the overwhelm, with the stress, and certainly if you have true depression and anxiety, it's really important.",85.0,"The transcript effectively addresses the question by acknowledging the common occurrence of depression and anxiety in patients with HS, suggesting a link between chronic HS pain and depression. It emphasizes the importance of mental health support for managing the emotional impact of HS, which implies that chronic pain can contribute to depression. However, it does not explicitly state that chronic HS pain leads to depression, which slightly limits the directness of the answer.",4859.0,CON1-CH4-Q2-Is depression a normal part of HS-Okoye.mp4,0.85,Is depression a normal part of HS?,"People with HS struggle with a lot of mental health concerns. Depression is one of them. Some people deal with anxiety and for some patients it doesn't get to the level of a diagnosis of depression or anxiety, but they feel a lot of stress and a lot of strain from the disease, from its unpredictability, and from how it tends to affect different aspects of their lives. So yes, what you're feeling is normal.",85.0,"The transcript effectively addresses the question by confirming that people with HS (Hidradenitis Suppurativa) often face mental health challenges, including depression. It explains that the unpredictability and impact of the disease can lead to stress and strain, which are related to mental health issues. However, it could be more direct in linking chronic pain specifically to depression, rather than discussing mental health concerns in general. This slight lack of specificity prevents a perfect score.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.75,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",75.0,"The transcript addresses the relationship between HS (Hidradenitis Suppurativa) and stress, anxiety, and depression, suggesting that managing these mental health issues can reduce HS flares. While it implies that chronic HS pain can contribute to depression, it does not explicitly state that chronic HS pain leads to depression. The connection is made indirectly through the discussion of stress and mental health management.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.792857528,103.0,"Depression & Anxiety
S2 | E1",0.781636834,3647.0,Pain Management,0.777887762
How do I stay motivated to manage HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i stay motivated to manage hs?,How do I stay motivated to manage HS?,How do I stay motivated to manage HS?,No,,,searchable,exact-match,"condition management,living with,mental and emotional health",,"[{""id"":1841},{""id"":1970},{""id"":1838},{""id"":1967}]",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.75,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",75.0,"The transcript provides a partial answer to the question by suggesting ways to stay motivated through community support and a trustworthy care team. However, it does not directly address personal motivation strategies or psychological techniques that might help an individual manage HS. The focus is more on external support rather than internal motivation.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.6,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",60.0,"The transcript partially addresses the question of staying motivated to manage HS by emphasizing that the condition is not the patient's fault and suggesting joining a community for support. This can indirectly help with motivation by reducing feelings of isolation and providing a support network. However, the transcript does not directly address specific strategies or techniques for maintaining motivation, such as setting goals, tracking progress, or finding personal incentives, which would provide a more comprehensive answer to the question.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.3,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",30.0,"The transcript does not directly address the question of how to stay motivated to manage HS. Instead, it discusses the relationship between stress and HS, emphasizing the importance of managing both to reduce flares. While this information is relevant to managing HS, it does not provide specific strategies or motivational tips for staying committed to managing the condition. Therefore, the response only partially relates to the question and lacks direct guidance on motivation.",4647.0,Managing Your Mental Health,0.772382677,2326.0,How to Manage Overwhelming Stress Levels,0.760968626,3634.0,Stress Management,0.758512378
What helps when I feel overwhelmed by hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what helps when i feel overwhelmed by hidradenitis suppurativa?,What helps when I feel overwhelmed by hidradenitis suppurativa?,What helps when I feel overwhelmed by Hidradenitis Suppurativa?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1823},{""id"":1873},{""id"":1890},{""id"":1857}]",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.6,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",60.0,"The transcript addresses a specific aspect of managing Hidradenitis Suppurativa (HS) by discussing the role of sweating as a trigger and suggesting ways to mitigate it, such as using air conditioning or discussing treatment options with a doctor. However, it does not comprehensively address the broader question of feeling overwhelmed by HS, which may involve emotional support, lifestyle changes, or other coping strategies beyond managing physical symptoms.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.6,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",60.0,"The transcript provides a partial answer to the question by suggesting that wearing looser fitting clothing can help reduce friction and occlusion, which may alleviate some symptoms of Hidradenitis Suppurativa (HS). However, it does not fully address the broader aspect of feeling overwhelmed by the condition, such as emotional or psychological support, lifestyle changes, or medical treatments that could also be beneficial. Therefore, while it offers a practical tip, it lacks a comprehensive approach to managing the feeling of being overwhelmed by HS.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.4,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",40.0,"The transcript primarily discusses the use of topical and oral antibiotics for managing Hidradenitis Suppurativa (HS), focusing on medical treatment options. While it provides information on how these treatments can help manage the disease, it does not directly address the emotional aspect of feeling overwhelmed by HS. The question seems to be seeking advice on coping mechanisms or strategies for dealing with the emotional impact of HS, rather than just medical treatments. Therefore, the transcript only partially answers the question by suggesting treatments that might indirectly alleviate some stress by controlling the disease.",2326.0,How to Manage Overwhelming Stress Levels,0.770532727,4647.0,Managing Your Mental Health,0.766913652,3634.0,Stress Management,0.766599596
Can I live a normal life with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i live a normal life with hs?,Can I live a normal life with HS?,Can I live a normal life with HS?,No,,,searchable,loose-match,"condition management,living with",,"[{""id"":1972},{""id"":1970},{""id"":1839},{""id"":1841}]",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.3,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",30.0,"The transcript primarily focuses on the topic of dating and relationships for individuals with HS (Hidradenitis Suppurativa), emphasizing the importance of communication and vulnerability in relationships. While it touches on aspects of living with HS, such as the need for understanding and empathy from partners, it does not directly address the broader question of whether one can live a 'normal life' with HS. The response lacks information on other aspects of life with HS, such as daily activities, work, or general quality of life, which are crucial to fully answering the question about living a normal life with the condition.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.3,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",30.0,"The transcript provides emotional support and reassurance to individuals with HS, emphasizing that the condition is not their fault and encouraging them to join a community for support. However, it does not directly address the question of whether one can live a normal life with HS. It lacks specific information about managing the condition, potential treatments, or lifestyle adaptations that might allow someone to live a normal life despite having HS.",4859.0,CON1-CH4-Q2-Is depression a normal part of HS-Okoye.mp4,0.3,Is depression a normal part of HS?,"People with HS struggle with a lot of mental health concerns. Depression is one of them. Some people deal with anxiety and for some patients it doesn't get to the level of a diagnosis of depression or anxiety, but they feel a lot of stress and a lot of strain from the disease, from its unpredictability, and from how it tends to affect different aspects of their lives. So yes, what you're feeling is normal.",30.0,"The transcript does not directly address the question of whether one can live a normal life with HS (Hidradenitis Suppurativa). Instead, it focuses on the mental health challenges associated with the condition, such as depression, anxiety, and stress. While these aspects are relevant to the overall quality of life, the response does not provide a clear answer about the possibility of living a 'normal life' with HS, nor does it discuss any coping strategies, treatments, or lifestyle adjustments that might enable someone to manage the condition effectively. Therefore, the transcript only partially addresses the question.",547.0,Living a Normal Life with Parkinson's,0.778439403,4397.0,Getting Your Life Back,0.772368789,4533.0,What Will My Treatment Be Like?,0.771375477
How do I set realistic goals with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i set realistic goals with hidradenitis suppurativa?,How do I set realistic goals with hidradenitis suppurativa?,How do I set realistic goals with Hidradenitis Suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1963},{""id"":1912},{""id"":1950},{""id"":1928}]",5008.0,CON6-Q26-What are your tips for a great doctor visit-Daveluy.mp4,0.4,What are your tips for a great doctor visit?,"I have several tips to share about having a successful visit with your doctor that hopefully will make things go better for you. I think one of the important things is to share your goals with your doctor. So if your goal is a particular thing like horseback riding or riding a bicycle or just being able to do exercises you like again or spend more time with your kids, let them know that that's why you want to get your HS under control. Because sometimes it helps us to adjust our treatments and target the things that are really getting in the way at that moment. Also, it’s really important to bring up your mental health. I'll be honest, a lot of us doctors don't love asking about it because it's a difficult conversation, but we do need to know how your HS is impacting your mental health to make sure that we are providing resources and helping to stop it from interfering with the things that you want to do. It can be helpful to come prepared to your visit. So know what medications you've been on, if possible, keep a list, know what things have worked well for you, bring up things that you've heard online. Sometimes patients are sort of embarrassed or shy about sharing with me things that they've looked up online. So I'll ask, what have you learned about HS? What questions do you have? Because you may have read something online and you're not really sure if it's information you should trust or something that's going to help you. So it's a good idea to just have that conversation with your doctor and they may not know. They may say, I don't know either. I'll have to do a little more research and look into that. But at least then if there is something that's dangerous that someone said online, we'll be able to tell you, no, don't do that, that's not a good idea to do because unfortunately, a lot of people are sharing information online trying to help others, and they don't always realize that some things may not be safe.",40.0,"The transcript provides some general advice on how to communicate with a doctor about personal goals and mental health, which can be indirectly related to setting realistic goals for managing Hidradenitis Suppurativa (HS). However, it does not directly address how to set realistic goals specifically for HS. The focus is more on preparing for a doctor's visit and discussing personal aspirations and mental health impacts, rather than providing a structured approach to goal-setting for HS management. Therefore, while the information is somewhat relevant, it does not fully answer the question.",4951.0,CON3-CH3-Q8-Will surgery work-Daveluy.mp4,0.2,Will surgery work?,"For many patients, surgery is a great option for their HS. It gets a little tricky,  even when we're doing studies, we have a hard time of measuring the success of surgery. If I remove a tunnel in your left armpit and you get a new spot a couple inches away, does that have anything to do with the surgery? Should I say that that is a recurrence or the disease coming back, or is it not? I'm of the school of thought that if I do surgery on a spot, it usually cures that spot, and I only consider it a failure if that exact spot comes back, which very rarely happens with the surgeries we have, but it's not impossible. Nothing's one hundred percent. It's a good conversation to have with your doctor when you're planning the surgery because some surgeries we focus on one spot of the HS, others we try to treat the whole area. So we might be removing the HS and some of the normal skin around it in an attempt to get all of it out of one armpit or the groin or a buttock. And so the way you think about surgery depends on what surgery is happening and then are you just treating one spot and trying to cure that one spot or are you trying to cure it in the whole area? The other thing that's really important is we usually combine medications and surgeries. So I start my patients on medications and try to get the disease activity as low as possible, or hopefully completely gone, and then we do surgery for the spots that don't respond to treatment. So sometimes patients will have surgery and then say, okay, I can stop my medications now, right? And I say, no, they're still controlling the disease. Maybe we will start slowly backing off of some of the medications to see, but make sure that you don't stop all of your medications after surgery thinking, okay, I had my surgery and I'm cured now, because your disease may try to come back if it's not being controlled.",20.0,"The transcript does not directly address the question of setting realistic goals for managing Hidradenitis Suppurativa (HS). Instead, it focuses on surgical options and the complexities of measuring surgical success, as well as the importance of combining surgery with medication. While it provides useful information about treatment strategies, it does not offer guidance on how to set realistic goals for living with HS, such as managing expectations, lifestyle adjustments, or long-term disease management strategies. Therefore, it only tangentially relates to the question and does not provide a comprehensive answer.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question of setting realistic goals for managing Hidradenitis Suppurativa. Instead, it discusses the lack of awareness and common misdiagnoses associated with the condition. There is no information provided on goal-setting strategies or management plans for patients with HS.",3490.0,Support | Dr. Tiffany Lowe Clayton,0.761932075,3519.0,How can I talk to my child about losing weight?,0.758051574,3625.0,How can I talk to my child about losing weight?,0.756941438
What are small victories I can celebrate with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what are small victories i can celebrate with hs?,What are small victories I can celebrate with HS?,What are small victories I can celebrate with HS?,No,,,searchable,loose-match,"mental and emotional health,living with",,"[{""id"":1813},{""id"":1819},{""id"":1940},{""id"":1841}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.3,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",30.0,"The transcript does not directly address the question about small victories to celebrate with HS (Hidradenitis Suppurativa). Instead, it focuses on the importance of support groups for individuals with HS, emphasizing the benefits of connecting with others who have the condition. While support groups can indeed be a source of small victories, such as finding community and shared understanding, the transcript does not explicitly mention specific small victories or ways to celebrate them. Therefore, the response is only tangentially related to the question.",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.3,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",30.0,"The transcript primarily focuses on exercise recommendations for individuals with HS (Hidradenitis Suppurativa), discussing how to manage exercise-related triggers and suggesting low-impact activities. However, it does not directly address the question of 'small victories' that can be celebrated with HS. While the advice on exercise could indirectly lead to small victories, such as achieving a daily step goal or successfully incorporating a new activity like swimming or yoga, these are not explicitly framed as 'victories' in the transcript. The response lacks a direct connection to the concept of celebrating small achievements in the context of living with HS.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.2,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",20.0,"The transcript does not directly address the question about small victories to celebrate with HS (Hidradenitis Suppurativa). Instead, it focuses on the emotional and mental health challenges associated with HS, such as depression and anxiety, and encourages finding community support and therapy. While these are important aspects of managing HS, they do not provide specific examples of small victories that can be celebrated. The response lacks direct relevance to the question asked.",4647.0,Managing Your Mental Health,0.74476105,1334.0,LSVT BIG | Improve Your Fine Motor Skills,0.736843765,4184.0,American Cancer Society | 110 years of wins against cancer,0.73381108
How do I maintain hope with chronic HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i maintain hope with chronic hs?,How do I maintain hope with chronic HS?,How do I maintain hope with chronic HS?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1841},{""id"":1813},{""id"":1940},{""id"":1970}]",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.85,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",85.0,"The transcript provides a meaningful response to the question about maintaining hope with chronic HS by suggesting ways to combat isolation, such as joining support groups and connecting with a trusted care team. These suggestions can help foster a sense of community and support, which are crucial for maintaining hope. However, the response could be improved by including additional strategies, such as focusing on personal goals, engaging in hobbies, or seeking professional mental health support, to provide a more comprehensive answer.",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.85,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",85.0,"The transcript provides a strong answer to the question about maintaining hope with chronic HS by emphasizing the importance of support groups. It highlights the benefits of connecting with others who have similar experiences, which can alleviate feelings of isolation and provide practical advice and emotional support. The mention of specific support groups like Hope For HS and HSconnect.org offers actionable steps for the individual seeking hope. However, the response could be improved by directly addressing the emotional aspect of maintaining hope, such as discussing mindset or coping strategies beyond support groups.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.75,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",75.0,"The transcript addresses the emotional challenges associated with chronic HS, such as depression and anxiety, and emphasizes the importance of community support and therapy. It provides practical advice on finding support through community and therapy, which can help maintain hope. However, it doesn't directly address 'maintaining hope' in a structured way, such as setting goals or finding personal meaning, which could have provided a more comprehensive answer to the question.",4647.0,Managing Your Mental Health,0.776972115,3634.0,Stress Management,0.763820529,1077.0,"Healthy Habits | E2 
Reducing Low Blood Sugar",0.762863874
Can mindfulness help with hidradenitis suppurativa pain?,searchable,Patient_Forums,Hidradenitis Suppurativa,can mindfulness help with hidradenitis suppurativa pain?,Can mindfulness help with hidradenitis suppurativa pain?,Can mindfulness help with Hidradenitis Suppurativa pain?,No,,,searchable,exact-match,"alternative therapies,mental and emotional health",,"[{""id"":1926},{""id"":1874},{""id"":1950},{""id"":1885}]",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.7,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",70.0,"The transcript indirectly addresses the question by discussing stress management in Hidradenitis Suppurativa (HS) and implies that mindfulness, as a stress-reducing technique, could be beneficial. However, it does not explicitly mention mindfulness or directly link it to pain management in HS, which leaves some ambiguity in the answer.",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.2,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",20.0,"The transcript primarily discusses the management of pain in Hidradenitis Suppurativa (HS) through controlling inflammation with medication. It mentions various strategies like home remedies, over-the-counter medications, and narcotics for specific situations, but it does not address mindfulness or its potential role in managing HS pain. Therefore, the transcript does not answer the question about whether mindfulness can help with HS pain.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about whether mindfulness can help with Hidradenitis Suppurativa pain. Instead, it discusses the lack of awareness and common misdiagnosis of the condition, which is unrelated to the potential benefits of mindfulness for pain management.",2329.0,Restore and Relax Mindfulness Practice,0.772707283,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.767728388,3643.0,Relaxation,0.766795456
Should I practice self-compassion with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i practice self-compassion with hs?,Should I practice self-compassion with HS?,Should I practice self-compassion with HS?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1940},{""id"":1926},{""id"":1832},{""id"":1841}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.6,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",60.0,"The transcript addresses the emotional challenges associated with HS, such as depression and anxiety, and emphasizes the importance of community support and therapy. While it suggests finding community and engaging in therapeutic activities, it does not directly address the concept of self-compassion or explicitly recommend practicing self-compassion as a coping strategy for HS. The response is supportive and relevant to emotional well-being but lacks a direct answer to the question about self-compassion.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.4,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",40.0,"The transcript does not directly address the question of whether one should practice self-compassion with HS (Hidradenitis Suppurativa). Instead, it focuses on stress management techniques like exercise, yoga, acupuncture, and talk therapy, which can help manage the inflammation associated with HS. While these activities might indirectly relate to self-compassion by promoting self-care, the transcript does not explicitly mention or discuss the concept of self-compassion itself. Therefore, the connection to the original question is weak.",4839.0,CON1-CH2-Q9-Why does my doctor want me to see a mental health professional-Okoye.mp4,0.3,Why does my doctor want me to see a mental health professional?,"I'll often recommend that my patients with HS see a mental health professional. Sometimes it's because I notice signs or symptoms of depression or anxiety even when my patient doesn't recognize them. But another reason is because depression and anxiety are extremely common in HS. And it's understandable why this disease is really difficult to deal with and it can be really overwhelming. And so I think having a mental health provider just to help with the overwhelm, with the stress, and certainly if you have true depression and anxiety, it's really important.",30.0,"The transcript does not directly address the question of whether one should practice self-compassion with HS (Hidradenitis Suppurativa). Instead, it focuses on the importance of seeing a mental health professional to manage depression and anxiety, which are common in HS. While seeking mental health support can be a component of self-compassion, the transcript does not explicitly mention or discuss self-compassion as a practice or its benefits for individuals with HS. Therefore, the connection to the original question is weak.",4647.0,Managing Your Mental Health,0.774494588,3634.0,Stress Management,0.76846087,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.759323418
How do I stop comparing myself to others without hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i stop comparing myself to others without hidradenitis suppurativa?,How do I stop comparing myself to others without hidradenitis suppurativa?,How do I stop comparing myself to others without hidradenitis suppurativa?,No,,,searchable,loose-match,"mental and emotional health,living with",,"[{""id"":1841},{""id"":1973},{""id"":1859},{""id"":1980}]",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.3,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",30.0,"The transcript does not directly address the question of how to stop comparing oneself to others without hidradenitis suppurativa (HS). Instead, it focuses on the importance of community support and having a trusted care team to combat isolation associated with HS. While these suggestions may indirectly help with feelings of comparison by providing support and understanding, they do not specifically address strategies for stopping the act of comparison itself. The response lacks direct advice or techniques for managing self-comparison.",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.2,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",20.0,"The transcript primarily discusses intimacy and self-worth issues related to living with hidradenitis suppurativa (HS), focusing on communication with a partner and redefining intimacy. However, it does not directly address the question of how to stop comparing oneself to others without HS. The response lacks specific strategies or advice on overcoming comparison, which is the core of the question. Therefore, while it touches on related themes of self-worth, it does not adequately answer the question.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.1,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",10.0,"The transcript does not address the question about stopping self-comparison to others without hidradenitis suppurativa. Instead, it focuses on the treatment and management of hidradenitis suppurativa itself, discussing surgical and medical options to control the disease. There is no mention of psychological strategies or advice on how to stop comparing oneself to others, which is the core of the question.",471.0,"#StopWeightBias
Meet Patty",0.778030038,466.0,"#StopWeightBias 
Meet Nikki",0.766621,477.0,"#StopWeightBias
Meet Ted",0.766110539
Can journaling help me process my feelings about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can journaling help me process my feelings about hs?,Can journaling help me process my feelings about HS?,Can journaling help me process my feelings about high school?,No,,,searchable,no-match,mental and emotional health,,"[{""id"":1940},{""id"":1974},{""id"":1943},{""id"":1839}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.2,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",20.0,"The transcript does not directly address the question about journaling as a method for processing feelings related to high school. Instead, it focuses on depression and anxiety associated with HS (likely Hidradenitis Suppurativa), suggesting community support and various therapy modalities. While it touches on processing feelings, it does not mention journaling specifically, which is the core of the question.",5045.0,CON5-Q10-How do I know which friends I should tell about my HS-Brooksoks-V.mp4,0.1,How do I know what friends I should tell about my HS?,"Dealing with friends can be really, really challenging. You have to decide ultimately if these people are worthy of knowing the vulnerabilities that you face or not. And I think that it's an important decision and distinction to make because this is where it can become, sometimes your HS can be weaponized against you in relationships, even outside of friendships.  Your journey is sacred and your HS is sacred. And if you decide not to talk to people about it because you don't feel like they will understand, that's completely fair. But you do leave them to fill in their own gaps and their own blanks in the story if you do not give them the opportunity to talk to them about what's going on with you. The other thing is if you are constantly canceling plans, your friends may feel some type of way about that because you're not giving them an explanation, and they know that it’s not necessarily genuine. So they're like, well, does she just not like hanging out with us anymore? What's going on? So you also have to understand from their perspective, maybe they're coming from a place of care and concern, but it doesn't necessarily feel like that. So you get to be the judge of that character and what you want to do, and how much you want to open up to that person. But again, I do think that it's worth having those conversations with them, and letting them know what you've been dealing with because we become so good at hiding it. I wish I could give an Oscar and Emmy to every single person who deals with HS and works on hiding this, and coming up with little white lies about covering our entire lives. So please do think long and hard about whether that person is worthy of the inside and the vulnerable piece of you, but also make sure you know that you're not filling in those gaps and telling them the story, then they're going to make up their own story. And that's just a natural people thing. It doesn't have anything to do with your HS. You could insert anything else in there and people would do the same thing.",10.0,"The transcript does not directly address the question about whether journaling can help process feelings about high school. Instead, it focuses on interpersonal relationships and the challenges of sharing personal vulnerabilities with friends. While it touches on the importance of communication and understanding others' perspectives, it does not mention journaling or its potential benefits for emotional processing. Therefore, the transcript is largely irrelevant to the question asked.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.1,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",10.0,"The transcript does not address the question about journaling or processing feelings about high school. Instead, it discusses the topic of sharing personal experiences with HS (likely Hidradenitis Suppurativa) and the emotional impact of doing so. There is no mention of journaling or how it might help in processing feelings, making the transcript largely irrelevant to the question asked.",4372.0,Tips For Navigating Your Cancer Care,0.779125035,4645.0,Is What I'm Feeling Normal?,0.766342402,4647.0,Managing Your Mental Health,0.766231477
How do I talk to my family about hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i talk to my family about hidradenitis suppurativa?,How do I talk to my family about hidradenitis suppurativa?,How do I talk to my family about Hidradenitis Suppurativa?,No,,,searchable,exact-match,"condition management,living with,caregiving",,"[{""id"":1937},{""id"":1859},{""id"":1980},{""id"":1929}]",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.85,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",85.0,"The transcript provides a comprehensive answer to the question by discussing strategies for talking to family and friends about Hidradenitis Suppurativa (HS). It emphasizes the importance of considering the closeness of the relationship and the reasons for sharing, such as the impact on social activities and the need for support. It also shares a positive anecdote about how disclosure can strengthen relationships, which is relevant and encouraging. However, it could be improved by offering specific language or steps for initiating the conversation, which would make the guidance more actionable.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.75,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",75.0,"The transcript provides some guidance on how to talk to family about Hidradenitis Suppurativa (HS) by suggesting that one can explain HS as an inflammatory skin condition that is not contagious. It also acknowledges the discomfort some might feel in educating others about their condition, offering reassurance that it's okay not to educate others if one is not comfortable. However, the transcript primarily focuses on treatment options and disease management rather than communication strategies with family, which limits its direct relevance to the question. Therefore, while it touches on the topic, it does not fully address how to approach the conversation with family in detail.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.4,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",40.0,"The transcript primarily addresses the emotional aspects of dealing with Hidradenitis Suppurativa (HS), focusing on the importance of understanding that HS is not the patient's fault and the stigma associated with the condition. While this information is valuable and can be part of a conversation with family, it does not directly answer the question of how to talk to family about HS. The transcript lacks specific guidance or strategies for initiating or navigating such a conversation, which is the core of the original question.",3624.0,How can I talk to a loved one about losing weight?,0.793027103,3518.0,How can I talk to a loved one about losing weight?,0.792714894,3519.0,How can I talk to my child about losing weight?,0.792146683
What should I tell my partner about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what should i tell my partner about hs?,What should I tell my partner about HS?,What should I tell my partner about HS?,No,,,searchable,exact-match,,,"[{""id"":1937},{""id"":1972},{""id"":1931},{""id"":1929}]",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.85,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",85.0,"The transcript provides a comprehensive answer to the question about what to tell a partner about HS (Hidradenitis Suppurativa). It emphasizes the importance of tailoring the information based on the closeness of the relationship and the potential impact on the relationship. It suggests explaining the condition as a chronic health issue and highlights the benefits of sharing more details with close friends and family for support. The transcript also provides a practical example of how sharing information can improve understanding and strengthen relationships. However, it could be improved by specifically addressing what to tell a romantic partner, as the question implies, rather than focusing broadly on friends and family.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript provides a comprehensive answer to the question about what to tell a partner about HS (Hidradenitis Suppurativa). It emphasizes the importance of being open and vulnerable about the condition, discussing how it affects one's life, and the necessity of having honest conversations with a partner. It also addresses the emotional aspects, such as feelings of worthiness and beauty, and the importance of mutual understanding and support in a relationship. However, it could be improved by including more specific details about HS itself, such as symptoms or management strategies, to give a fuller picture to the partner.",4980.0,CON4-CH1-Q6-My relationship is deteriorating because of my HS-what can I do-Daveluy.mp4,0.75,"My relationship is deteriorating because of my HS, what can I do?","That's a tough question. I think there are a few elements there that can help any relationship with HS or without. One is open, clear communication. So talk to your partner about the struggles that you're having and what is interfering with the relationship. We have a tendency to want to bottle things up and not put our problems on other people, but I'm sure your partner will actually be grateful to know what's going on because they're probably feeling that the relationship isn't going super great as well, and they want to stay with you and make it work. And so having that open conversation about how your HS is impacting you, and why it is impacting your intimacy, can be a great way to open that door for your partner to also talk about how things are going in the relationship and what maybe you could modify to help things. It can be great to reach out to a mental health professional. I know there's a lot of stigma around getting help from a professional. It doesn't mean you're crazy, it just means you need a little bit of help. I think everybody should have a therapist. It's like a coach who's just helping you navigate life and deal with your issues and gives you that outside perspective. That can be really helpful, especially for relationship counseling, to have that outsider say, here's my viewpoint and here's what may be helpful.",75.0,"The transcript provides a good general approach to discussing HS (Hidradenitis Suppurativa) with a partner by emphasizing open communication and discussing the impact of HS on the relationship. It suggests talking about personal struggles and how HS affects intimacy, which is relevant to the question. However, it lacks specific details about HS itself that might be important for the partner to understand, such as what HS is, its symptoms, and how it specifically affects the individual. The suggestion to seek help from a mental health professional is useful but not directly related to what to tell the partner about HS. Overall, the response is helpful but could be more focused on providing specific information about HS.",4632.0,Talking About Your Diagnosis,0.756292701,4642.0,Coping With Cancer,0.747999728,4372.0,Tips For Navigating Your Cancer Care,0.745625198
How do I explain hidradenitis suppurativa to my boyfriend or girlfriend?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,how do i explain hidradenitis suppurativa to my boyfriend or girlfriend?,How do I explain hidradenitis suppurativa to my boyfriend or girlfriend?,How do I explain Hidradenitis Suppurativa to my boyfriend or girlfriend?,No,,,searchable,exact-match,,,"[{""id"":1927},{""id"":1937},{""id"":1859},{""id"":1929}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.9,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",90.0,"The transcript provides a comprehensive explanation of Hidradenitis Suppurativa (HS) suitable for explaining to a partner. It emphasizes key points such as HS not being contagious or an infection, which are crucial for alleviating concerns about transmission. It also addresses the emotional aspect of discussing HS with a partner and suggests a positive approach to maintaining intimacy despite the condition. The transcript could be improved by including more details about the condition's impact on daily life or treatment options, but overall, it effectively answers the question.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.75,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",75.0,"The transcript provides a general approach to explaining Hidradenitis Suppurativa (HS) to a partner, emphasizing the importance of considering the relationship's closeness and the impact of HS on shared activities. It suggests sharing more details with closer individuals and highlights the benefits of having supportive people who understand the condition. However, it lacks specific guidance on how to explain the medical aspects of HS, such as its symptoms, causes, or treatment, which might be important for a partner to understand. Including these details would make the explanation more comprehensive.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.75,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",75.0,"The transcript provides a partial answer to the question by suggesting a way to explain Hidradenitis Suppurativa (HS) to a partner. It mentions that HS is an inflammatory skin condition where the immune system attacks the skin, causing symptoms that resemble an infection but are not contagious. This explanation can be useful for someone trying to explain HS to a partner. However, the transcript primarily focuses on treatment options and the importance of consulting a doctor, which is not directly relevant to the question of how to explain the condition to a partner. Therefore, while it offers some useful information, it does not fully address the question.",1092.0,Breast Cancer | Understanding Your Disease,0.760553896,3624.0,How can I talk to a loved one about losing weight?,0.760270655,450.0,I Have Endometriosis,0.758067548
When should I tell someone I'm dating about my HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,when should i tell someone i'm dating about my hs?,When should I tell someone I'm dating about my HS?,When should I tell someone I'm dating about my HS?,No,,,searchable,exact-match,"womens health,mental and emotional health,living with",,"[{""id"":1929},{""id"":1943},{""id"":1972},{""id"":1937}]",4982.0,CON4-CH1-Q4-How do I date with HS-Daveluy.mp4,0.85,How do I date with HS?,"Disclosing a chronic health condition like HS can be really stressful when you're thinking about entering a relationship. When do you tell the person? How do you tell them? Do you do it right before intimacy? Do you do it when you're moving toward intimacy? Are you sending them a signal that you want to be intimate by having the conversation? So there's a lot that goes into it. And I think one of the best things that I've encountered is patients going to support groups that talk about these issues. It can be super helpful to know how other people have navigated it - when they disclose, when they didn't - because you're going to have to find what works for you. There's no one size fits all answer of when to talk to your partner about HS. You've got to think about your personality. Are you out there educating the world about HS and passionate about everyone knowing about it and you can't wait to tell a partner? Or, are you a little more private, keeping things to yourself and only disclosing when the time comes and you need to? And hearing perspectives from other patients going through it can be really helpful to find something that works for you.",85.0,"The transcript provides a thoughtful and comprehensive response to the question about when to disclose having HS (Hidradenitis Suppurativa) to someone you're dating. It acknowledges the complexity and personal nature of the decision, suggesting that there is no one-size-fits-all answer. It emphasizes the importance of personal comfort and personality in making the decision, and it suggests seeking support from others who have faced similar situations. However, it does not provide a specific timeline or concrete advice, which might be what the questioner was seeking. This lack of specificity is why the rating is not higher, but the response is still very relevant and helpful.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.75,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",75.0,"The transcript provides a thoughtful and empathetic response to the question about when to tell someone you're dating about HS (Hidradenitis Suppurativa). It emphasizes personal choice and the potential benefits of sharing, such as lifting a burden and finding empathy and support. However, it does not provide specific guidance on timing or circumstances that might influence the decision, which could be helpful for someone seeking more concrete advice. The response is supportive and comprehensive in discussing the emotional aspects but lacks specific situational advice, which is why it doesn't score higher.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.7,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",70.0,"The transcript provides a thoughtful discussion on the topic of dating with HS (Hidradenitis Suppurativa), emphasizing the importance of vulnerability and communication in relationships. It suggests that discussing HS with a partner is a personal choice and highlights the benefits of being open about the condition. However, it does not directly answer the specific question of 'when' to tell someone about HS. The response is more focused on the 'why' and 'how' rather than the 'when,' which is the core of the original question.",1065.0,"Dating with Diabetes | E1 
Revealing Your Diabetes",0.746260583,4632.0,Talking About Your Diagnosis,0.742232323,1066.0,"Dating with Diabetes | E2 
Sharing and Understanding Diabetes",0.737035871
Can I have sex with active HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i have sex with active hs lesions?,Can I have sex with active HS lesions?,Can I have sex with active HS lesions?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1927},{""id"":1966},{""id"":1928},{""id"":1814}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.85,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",85.0,"The transcript provides a comprehensive answer to the question by clarifying that HS (Hidradenitis Suppurativa) is not contagious and cannot be spread to a partner during sexual activity. It addresses the concern about transmission and provides reassurance about intimacy. However, it does not explicitly state whether having sex with active lesions is advisable from a comfort or medical perspective, which could be important for a complete answer.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.85,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",85.0,"The transcript provides a clear answer to the question by explaining that HS (Hidradenitis Suppurativa) is not infectious or contagious, which implies that having sex with active HS lesions does not pose a risk of transmission to a partner. However, it does not directly address potential discomfort or other considerations related to having sex with active lesions, which could be relevant to the question.",4981.0,CON4-CH1-Q3-How can I even think about intimacy when I’m feeling pain and inflammation--Daveluy.mp4,0.6,How can I even think about intimacy when I'm feeling pain and inflammation?,"It's really important to remember that there are a lot of different ways to engage in intimacy. Sex is not the only way. And so in our minds we think a lot about what we can't do. Our brains focus on the negative. My HS is flared in my groin, so I can't have sex. But that doesn't mean you can't have sex. You just need to focus on what you can do. So have a conversation with your partner about things you like, areas of your body that are your erotic zones. Maybe it's your ear lobes, maybe other parts of the body that the HS doesn't affect are sensitive in a really good way, that you and your partner can engage in other ways of being intimate that aren't just the traditional sex because your HS might be flaring up in a way that doesn't allow you to have traditional sex right now. Exploring those other options can open up a lot of new doorways for you to be intimate. So I always say, don't focus on what you can't do. Start talking about what you still can do during this flare.",60.0,"The transcript addresses the question indirectly by suggesting alternative forms of intimacy when HS lesions are active, rather than directly answering whether sex is possible with active lesions. It emphasizes communication with a partner and exploring other intimate activities, which is helpful but does not provide a clear answer to the specific question about the safety or advisability of having sex with active HS lesions.",181.0,Is it Safe to Resume Sex After a Heart Attack?,0.750056267,4533.0,What Will My Treatment Be Like?,0.73778969,1101.0,HSS Minute | Whole Lupus Patient,0.732511878
How do I manage intimacy with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage intimacy with hidradenitis suppurativa?,How do I manage intimacy with hidradenitis suppurativa?,How do I manage intimacy with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1973},{""id"":1928},{""id"":1930},{""id"":1890}]",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.85,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",85.0,"The transcript provides a comprehensive answer to the question about managing intimacy with Hidradenitis Suppurativa (HS). It addresses the emotional and psychological challenges associated with HS, such as self-esteem issues and the fear of not being loved due to physical symptoms. The speaker emphasizes the importance of open communication with a partner, redefining intimacy beyond physical acts, and being vulnerable about one's condition. These insights are practical and empathetic, offering a well-rounded approach to managing intimacy with HS. However, the transcript could be improved by including more specific strategies or examples of how to initiate these conversations or manage physical symptoms during intimate moments.",4981.0,CON4-CH1-Q3-How can I even think about intimacy when I’m feeling pain and inflammation--Daveluy.mp4,0.85,How can I even think about intimacy when I'm feeling pain and inflammation?,"It's really important to remember that there are a lot of different ways to engage in intimacy. Sex is not the only way. And so in our minds we think a lot about what we can't do. Our brains focus on the negative. My HS is flared in my groin, so I can't have sex. But that doesn't mean you can't have sex. You just need to focus on what you can do. So have a conversation with your partner about things you like, areas of your body that are your erotic zones. Maybe it's your ear lobes, maybe other parts of the body that the HS doesn't affect are sensitive in a really good way, that you and your partner can engage in other ways of being intimate that aren't just the traditional sex because your HS might be flaring up in a way that doesn't allow you to have traditional sex right now. Exploring those other options can open up a lot of new doorways for you to be intimate. So I always say, don't focus on what you can't do. Start talking about what you still can do during this flare.",85.0,"The transcript provides a thoughtful and practical approach to managing intimacy with Hidradenitis Suppurativa (HS). It emphasizes the importance of communication with a partner and exploring alternative forms of intimacy beyond traditional sex, which is crucial when dealing with HS flares. The advice to focus on what can be done rather than what cannot is empowering and relevant. However, the transcript could be improved by including more specific strategies or examples, such as positions or activities that might be more comfortable during a flare, or discussing the use of protective barriers or pain management techniques. Overall, it addresses the question well but lacks some detailed guidance.",4976.0,CON4-CH1-Q5-How do I get rid of the smell-Daveluy.mp4,0.75,How do I get rid of the smell?,"There’s so much you can do to help reduce the smell in HS because we know that can cause embarrassment and shame. You want to get intimate with someone and the last thing you want them to do is have an unpleasant odor be part of that experience. Some of the things you can do involve treating the HS. So using antibacterial washes can sometimes help reduce the smell, making sure you're working with your doctor to try to reduce the drainage and get things under control, which might involve medications or sometimes even surgery. But there are other ways you can navigate the smell even if you can't quite yet get it under control with treatments. Sometimes you can overpower the smell. Light some incense that you like when it's time to be intimate so that there's a more pleasant odor in the room. Be careful with perfumes and fragrances, but if they don't cause you skin irritation, that can be another option. And then sometimes you can even use strategic bandages or clothing to cover up some of the areas that might be triggering and causing more of the smells while you're being intimate. So an example might include if you have certain clothing that you can wear that covers the area but still allows you to expose the parts that you need to be intimate.",75.0,"The transcript addresses the management of intimacy with Hidradenitis Suppurativa (HS) by focusing on reducing odor, which is a significant concern for individuals with HS during intimate moments. It suggests practical solutions such as using antibacterial washes, working with a doctor for treatment, using incense, perfumes, and strategic clothing to manage odor and discomfort. However, the response could be improved by discussing emotional aspects, communication with partners, and other intimacy challenges related to HS beyond odor management.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.752847254,450.0,I Have Endometriosis,0.752638042,565.0,Managing Side Effects,0.750687957
Can HS in the groin area affect my sex life?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs in the groin area affect my sex life?,Can HS in the groin area affect my sex life?,Can HS in the groin area affect my sex life?,No,,,searchable,exact-match,"womens health,condition management,living with",,"[{""id"":1927},{""id"":1928},{""id"":1904},{""id"":1964}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.85,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",85.0,"The transcript addresses the question by explaining that HS (Hidradenitis Suppurativa) is not contagious and does not pose a risk of spreading to a partner, which is a common concern related to sexual activity. It also acknowledges the potential impact on intimacy due to the presence of painful bumps and pus drainage, suggesting that educating a partner about HS can help manage these concerns. However, it does not directly address how HS might affect sexual activity itself, such as discomfort during sex or psychological impacts, which could be relevant to the question.",4981.0,CON4-CH1-Q3-How can I even think about intimacy when I’m feeling pain and inflammation--Daveluy.mp4,0.75,How can I even think about intimacy when I'm feeling pain and inflammation?,"It's really important to remember that there are a lot of different ways to engage in intimacy. Sex is not the only way. And so in our minds we think a lot about what we can't do. Our brains focus on the negative. My HS is flared in my groin, so I can't have sex. But that doesn't mean you can't have sex. You just need to focus on what you can do. So have a conversation with your partner about things you like, areas of your body that are your erotic zones. Maybe it's your ear lobes, maybe other parts of the body that the HS doesn't affect are sensitive in a really good way, that you and your partner can engage in other ways of being intimate that aren't just the traditional sex because your HS might be flaring up in a way that doesn't allow you to have traditional sex right now. Exploring those other options can open up a lot of new doorways for you to be intimate. So I always say, don't focus on what you can't do. Start talking about what you still can do during this flare.",75.0,"The transcript addresses the question by acknowledging that HS in the groin area can impact traditional sexual activities, but emphasizes alternative forms of intimacy. It suggests focusing on what can be done rather than what can't, and encourages communication with a partner about other erogenous zones and intimate activities. While it doesn't directly answer how HS affects sex life, it provides practical advice on maintaining intimacy despite HS flares.",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.2,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",20.0,"The transcript primarily discusses the risks associated with HS surgery, such as infection, scarring, and contracture, but does not directly address how HS in the groin area might affect one's sex life. While it mentions surgery in the groin area, it focuses on surgical outcomes rather than the impact of HS itself on sexual activity. Therefore, the transcript does not adequately answer the question about the effects of HS on sex life.",3605.0,How does obesity affect sex?,0.770013452,3554.0,How does obesity affect sex?,0.768844306,3575.0,How does obesity affect sex?,0.763391852
How do I feel confident being intimate with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i feel confident being intimate with hs?,How do I feel confident being intimate with HS?,How do I feel confident being intimate with HS?,No,,,searchable,exact-match,"mental and emotional health,womens health,living with",,"[{""id"":1973},{""id"":1928},{""id"":1972},{""id"":1931}]",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.85,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",85.0,"The transcript provides a comprehensive answer to the question about feeling confident being intimate with HS (Hidradenitis Suppurativa). It addresses the emotional and physical challenges associated with HS, such as scars, abscesses, and pain, and emphasizes the importance of open communication with a partner. The speaker discusses redefining intimacy beyond just physical acts, suggesting alternatives like cuddling and deep conversations. The advice to find a partner who understands and accepts these challenges is also pertinent. However, the transcript could be improved by offering more specific strategies or examples for building confidence, which is why it doesn't receive a perfect score.",4981.0,CON4-CH1-Q3-How can I even think about intimacy when I’m feeling pain and inflammation--Daveluy.mp4,0.85,How can I even think about intimacy when I'm feeling pain and inflammation?,"It's really important to remember that there are a lot of different ways to engage in intimacy. Sex is not the only way. And so in our minds we think a lot about what we can't do. Our brains focus on the negative. My HS is flared in my groin, so I can't have sex. But that doesn't mean you can't have sex. You just need to focus on what you can do. So have a conversation with your partner about things you like, areas of your body that are your erotic zones. Maybe it's your ear lobes, maybe other parts of the body that the HS doesn't affect are sensitive in a really good way, that you and your partner can engage in other ways of being intimate that aren't just the traditional sex because your HS might be flaring up in a way that doesn't allow you to have traditional sex right now. Exploring those other options can open up a lot of new doorways for you to be intimate. So I always say, don't focus on what you can't do. Start talking about what you still can do during this flare.",85.0,"The transcript provides a thoughtful and practical response to the question about feeling confident being intimate with HS (Hidradenitis Suppurativa). It emphasizes the importance of focusing on what is possible rather than what is not, suggesting open communication with a partner about alternative forms of intimacy that do not involve traditional sex. This directly addresses the concern of confidence by encouraging exploration of other intimate activities and maintaining a positive mindset. However, it could be improved by directly addressing emotional aspects of confidence and providing more specific strategies for building self-esteem in intimate situations.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript addresses the question by discussing the importance of vulnerability and communication in relationships for individuals with HS. It emphasizes that having HS does not make one less deserving of love and intimacy, and suggests that being open about the condition can help build confidence in intimate relationships. The speaker provides personal insights and encourages having conversations about HS with partners, which directly relates to feeling confident in intimacy. However, the transcript could be more focused on specific strategies for building confidence, rather than general relationship advice, which is why it doesn't receive a perfect score.",1069.0,"Dating with Diabetes | E5 
Intimacy and Body Confidence",0.769910455,4645.0,Is What I'm Feeling Normal?,0.754391491,1310.0,Developing the Confidence to Overcome Anxiety,0.751631379
Will my partner be disgusted by my hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,will my partner be disgusted by my hidradenitis suppurativa?,Will my partner be disgusted by my hidradenitis suppurativa?,Will my partner be disgusted by my hidradenitis suppurativa?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1973},{""id"":1927},{""id"":1972},{""id"":1930}]",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.85,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",85.0,"The transcript addresses the question by emphasizing that a partner can indeed love and find someone with hidradenitis suppurativa (HS) attractive, despite the condition's physical manifestations. It highlights the importance of finding the right partner who can see beyond the condition and stresses the significance of open communication and vulnerability in a relationship. The response reassures the questioner that they are worthy of intimacy and that HS should not prevent them from experiencing it. However, the transcript does not directly address whether a partner will be 'disgusted,' but rather focuses on the potential for positive relationships, which may leave some ambiguity for the questioner.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.85,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",85.0,"The transcript provides a comprehensive answer to the question by addressing the non-contagious nature of hidradenitis suppurativa (HS) and suggesting how to communicate about it with a partner. It reassures the individual that HS is not an infection and cannot be spread, which directly addresses potential concerns about disgust. Additionally, it offers practical advice on discussing HS with a partner to alleviate misunderstandings. However, it does not directly address the emotional aspect of whether a partner might be disgusted, focusing instead on education and communication, which is why it doesn't receive a perfect score.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.75,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",75.0,"The transcript addresses the question indirectly by discussing the challenges and considerations of dating with hidradenitis suppurativa (HS). It emphasizes that having HS does not make someone less deserving of love and that there are people who will love someone with HS. It suggests that being open and vulnerable about the condition with a partner is important, which can help in understanding and acceptance. However, it does not directly answer whether a specific partner will be disgusted, as this is subjective and varies from person to person. The response is supportive and provides a positive perspective, but it lacks a direct answer to the question's concern about a partner's potential reaction.",3572.0,My doctor is shaming me for my weight,0.745905638,450.0,I Have Endometriosis,0.743584394,1065.0,"Dating with Diabetes | E1 
Revealing Your Diabetes",0.741811574
How do I deal with rejection because of HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i deal with rejection because of hs?,How do I deal with rejection because of HS?,How do I deal with rejection because of HS?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1972},{""id"":1841},{""id"":1974},{""id"":1931}]",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript addresses the emotional aspect of dealing with rejection due to HS (Hidradenitis Suppurativa) by emphasizing the importance of self-worth, vulnerability, and open communication in relationships. It provides a positive perspective on how HS can help in selecting a partner who is understanding and empathetic. While it doesn't offer specific coping strategies for rejection, it encourages discussions about HS with potential partners, which can mitigate feelings of rejection. The response is comprehensive in addressing the emotional and relational aspects, but could be improved with more direct advice on handling rejection itself.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.75,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",75.0,"The transcript addresses the emotional aspect of dealing with HS by suggesting ways to overcome isolation, such as joining support groups and having a trusted care team. However, it doesn't directly address how to deal with rejection specifically, which is the core of the question. The advice given is relevant and helpful but could be more focused on coping strategies for rejection.",5045.0,CON5-Q10-How do I know which friends I should tell about my HS-Brooksoks-V.mp4,0.75,How do I know what friends I should tell about my HS?,"Dealing with friends can be really, really challenging. You have to decide ultimately if these people are worthy of knowing the vulnerabilities that you face or not. And I think that it's an important decision and distinction to make because this is where it can become, sometimes your HS can be weaponized against you in relationships, even outside of friendships.  Your journey is sacred and your HS is sacred. And if you decide not to talk to people about it because you don't feel like they will understand, that's completely fair. But you do leave them to fill in their own gaps and their own blanks in the story if you do not give them the opportunity to talk to them about what's going on with you. The other thing is if you are constantly canceling plans, your friends may feel some type of way about that because you're not giving them an explanation, and they know that it’s not necessarily genuine. So they're like, well, does she just not like hanging out with us anymore? What's going on? So you also have to understand from their perspective, maybe they're coming from a place of care and concern, but it doesn't necessarily feel like that. So you get to be the judge of that character and what you want to do, and how much you want to open up to that person. But again, I do think that it's worth having those conversations with them, and letting them know what you've been dealing with because we become so good at hiding it. I wish I could give an Oscar and Emmy to every single person who deals with HS and works on hiding this, and coming up with little white lies about covering our entire lives. So please do think long and hard about whether that person is worthy of the inside and the vulnerable piece of you, but also make sure you know that you're not filling in those gaps and telling them the story, then they're going to make up their own story. And that's just a natural people thing. It doesn't have anything to do with your HS. You could insert anything else in there and people would do the same thing.",75.0,"The transcript addresses the emotional aspect of dealing with rejection due to HS (Hidradenitis Suppurativa) by discussing the importance of deciding who to share personal vulnerabilities with and the potential consequences of not communicating openly. It suggests considering whether friends are worthy of knowing about HS and highlights the importance of having conversations to prevent misunderstandings. However, it doesn't provide specific strategies or coping mechanisms for dealing with rejection itself, which limits the completeness of the answer.",3568.0,How do I handle the stigma and weight bias?,0.738264,3630.0,I’m facing racism when I go to the doctor. How do I handle this?,0.735380888,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.732754171
Can hidradenitis suppurativa affect my ability to date?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hidradenitis suppurativa affect my ability to date?,Can hidradenitis suppurativa affect my ability to date?,Can hidradenitis suppurativa affect my ability to date?,No,,,searchable,exact-match,,,"[{""id"":1973},{""id"":1972},{""id"":1927},{""id"":1928}]",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.85,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",85.0,"The transcript addresses the question by discussing the challenges hidradenitis suppurativa (HS) can pose to dating and intimacy, such as self-esteem issues, physical discomfort, and the need for open communication with a partner. It emphasizes that while HS can affect one's dating life, it is possible to have a fulfilling relationship by finding a supportive partner and redefining intimacy. The response is comprehensive and empathetic, but it could be more direct in explicitly stating that HS can affect dating, which is implied but not directly stated.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript addresses the question by discussing the impact of hidradenitis suppurativa (HS) on dating and relationships. It emphasizes that having HS does not make someone less deserving of love and that many people with HS have successful relationships. The speaker shares personal experiences and suggests that HS can help in being more selective about partners. The transcript also highlights the importance of communication and vulnerability in relationships, especially regarding the challenges posed by HS. However, it does not explicitly address specific ways HS might affect dating, such as physical symptoms or social stigma, which could have provided a more comprehensive answer.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.85,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",85.0,"The transcript addresses the question by explaining that hidradenitis suppurativa (HS) is not contagious and cannot be spread to others, which directly relates to concerns about dating. It also acknowledges the potential stress of discussing HS with a partner and suggests educating them about the condition. This advice is relevant to dating and intimacy, as it reassures the individual that HS should not prevent them from having a fulfilling romantic life. However, the transcript could be improved by explicitly discussing potential emotional or psychological impacts of HS on dating, which would provide a more comprehensive answer.",1069.0,"Dating with Diabetes | E5 
Intimacy and Body Confidence",0.751749575,1068.0,"Dating with Diabetes | E4 
Exposing Diabetes Vulnerability",0.745387614,1066.0,"Dating with Diabetes | E2 
Sharing and Understanding Diabetes",0.744314909
Should I disclose HS on dating apps?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i disclose hs on dating apps?,Should I disclose HS on dating apps?,Should I disclose HS on dating apps?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1943},{""id"":1972},{""id"":1929},{""id"":1937}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.85,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",85.0,"The transcript provides a comprehensive answer to the question of whether one should disclose HS on dating apps. It emphasizes that the decision is personal and that there is no right or wrong answer, which directly addresses the question. It discusses the potential benefits of disclosure, such as lifting a burden and finding empathy, as well as the risks, like fear of judgment. The transcript also highlights the importance of educating others and the potential positive impact of sharing one's experience. However, it could be more specific about the context of dating apps, as the advice given is more general about disclosure rather than specifically tailored to dating apps.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript provides a comprehensive discussion on the topic of disclosing HS (Hidradenitis Suppurativa) in the context of dating. It addresses the emotional aspects, the importance of vulnerability, and the potential benefits and drawbacks of disclosure. The speaker emphasizes that the decision is personal and highlights the importance of open communication in relationships. However, the transcript does not provide a direct answer or specific guidance on whether to disclose HS on dating apps specifically, which slightly reduces its relevance to the exact question asked.",4982.0,CON4-CH1-Q4-How do I date with HS-Daveluy.mp4,0.75,How do I date with HS?,"Disclosing a chronic health condition like HS can be really stressful when you're thinking about entering a relationship. When do you tell the person? How do you tell them? Do you do it right before intimacy? Do you do it when you're moving toward intimacy? Are you sending them a signal that you want to be intimate by having the conversation? So there's a lot that goes into it. And I think one of the best things that I've encountered is patients going to support groups that talk about these issues. It can be super helpful to know how other people have navigated it - when they disclose, when they didn't - because you're going to have to find what works for you. There's no one size fits all answer of when to talk to your partner about HS. You've got to think about your personality. Are you out there educating the world about HS and passionate about everyone knowing about it and you can't wait to tell a partner? Or, are you a little more private, keeping things to yourself and only disclosing when the time comes and you need to? And hearing perspectives from other patients going through it can be really helpful to find something that works for you.",75.0,"The transcript provides a thoughtful discussion on the complexities of disclosing a chronic health condition like HS in the context of dating. It acknowledges the stress involved and offers considerations for timing and personal comfort. However, it does not provide a direct answer to whether one should disclose HS on dating apps specifically, focusing instead on general relationship dynamics and personal choice. The suggestion to seek support groups for shared experiences is valuable, but the transcript lacks a clear recommendation or guideline specific to dating apps.",1065.0,"Dating with Diabetes | E1 
Revealing Your Diabetes",0.745231748,1068.0,"Dating with Diabetes | E4 
Exposing Diabetes Vulnerability",0.740945816,1066.0,"Dating with Diabetes | E2 
Sharing and Understanding Diabetes",0.734092057
How do I build intimacy when I'm self-conscious about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i build intimacy when i'm self-conscious about hs?,How do I build intimacy when I'm self-conscious about HS?,How do I build intimacy when I'm self-conscious about HS?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1931},{""id"":1972},{""id"":1973},{""id"":1928}]",4980.0,CON4-CH1-Q6-My relationship is deteriorating because of my HS-what can I do-Daveluy.mp4,0.85,"My relationship is deteriorating because of my HS, what can I do?","That's a tough question. I think there are a few elements there that can help any relationship with HS or without. One is open, clear communication. So talk to your partner about the struggles that you're having and what is interfering with the relationship. We have a tendency to want to bottle things up and not put our problems on other people, but I'm sure your partner will actually be grateful to know what's going on because they're probably feeling that the relationship isn't going super great as well, and they want to stay with you and make it work. And so having that open conversation about how your HS is impacting you, and why it is impacting your intimacy, can be a great way to open that door for your partner to also talk about how things are going in the relationship and what maybe you could modify to help things. It can be great to reach out to a mental health professional. I know there's a lot of stigma around getting help from a professional. It doesn't mean you're crazy, it just means you need a little bit of help. I think everybody should have a therapist. It's like a coach who's just helping you navigate life and deal with your issues and gives you that outside perspective. That can be really helpful, especially for relationship counseling, to have that outsider say, here's my viewpoint and here's what may be helpful.",85.0,"The transcript provides a comprehensive answer to the question by addressing the importance of open communication with a partner about HS and its impact on intimacy. It suggests discussing personal struggles and how they affect the relationship, which is crucial for building intimacy. Additionally, it recommends seeking help from a mental health professional, which can offer valuable support and perspective. While the response is thorough, it could be improved by offering more specific strategies or examples for building intimacy beyond communication and professional help.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript addresses the question by focusing on the importance of vulnerability and communication in building intimacy while dealing with self-consciousness about HS (Hidradenitis Suppurativa). It emphasizes that having open conversations about HS with a partner is crucial for mutual understanding and support. The speaker also reassures that having HS does not make one less deserving of love and that it can help in being selective about partners. However, the transcript could be improved by providing more specific strategies or steps for building intimacy beyond communication, such as activities or exercises that might help in overcoming self-consciousness.",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.85,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",85.0,"The transcript provides a comprehensive answer to the question by addressing the emotional and psychological challenges of building intimacy while dealing with HS (Hidradenitis Suppurativa). It emphasizes the importance of communication and vulnerability with a partner, redefining intimacy beyond physical aspects, and overcoming self-consciousness. While it doesn't offer specific step-by-step strategies, it effectively covers the key elements needed to build intimacy despite self-consciousness related to HS.",1069.0,"Dating with Diabetes | E5 
Intimacy and Body Confidence",0.776515186,1061.0,"Women with Diabetes | E1 
Building Confidence",0.762666285,1310.0,Developing the Confidence to Overcome Anxiety,0.753566
Can my partner catch hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can my partner catch hidradenitis suppurativa?,Can my partner catch hidradenitis suppurativa?,Can my partner catch Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1927},{""id"":1966},{""id"":1950},{""id"":1973}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.95,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",95.0,"The transcript provides a clear and comprehensive answer to the question. It explicitly states that Hidradenitis Suppurativa (HS) is not contagious and cannot be spread to others, addressing the core concern of the question. Additionally, it offers context about HS being related to genetics and the immune system, and suggests ways to communicate about the condition in a relationship, which adds depth to the response. The only minor improvement could be a brief mention of what HS is, but overall, the answer is highly relevant and informative.",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.95,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",95.0,"The transcript provides a clear and direct answer to the question by stating that Hidradenitis Suppurativa (HS) is not infectious or contagious, which directly addresses the concern about whether a partner can catch it. It also offers additional context by explaining that HS is an inflammatory disease related to the immune system and hair follicles, which helps in understanding why it cannot be transmitted to others. The only minor improvement could be a more explicit statement like 'No, your partner cannot catch HS from you,' but the current explanation is comprehensive and accurate.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not directly address the question of whether Hidradenitis Suppurativa (HS) is contagious or if a partner can catch it. Instead, it discusses the lack of awareness and common misdiagnosis of HS. There is no information provided about the transmission or contagiousness of the condition, which is crucial to answering the question.",450.0,I Have Endometriosis,0.756467462,719.0,"Jim Cosper 
S3 | E3",0.751133859,2321.0,Health Conditions Impacted by the Microbiome,0.749355853
Is HS contagious?,searchable,Patient_Forums,Hidradenitis Suppurativa,is hs contagious?,Is HS contagious?,Is HS contagious?,No,,,searchable,exact-match,,,"[{""id"":1966},{""id"":1927},{""id"":1835},{""id"":1969}]",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.95,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",95.0,"The transcript answers the question directly and clearly by stating that HS (Hidradenitis Suppurativa) is not contagious. It provides additional context by explaining that HS is an inflammatory disease related to the immune system's reaction to hair follicles, which helps clarify why it is not infectious. The only minor improvement could be a brief explanation of what HS stands for, but overall, the response is comprehensive and directly addresses the question.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.95,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",95.0,"The transcript answers the question very well by clearly stating that HS (Hidradenitis Suppurativa) is not contagious. It explains that HS is related to genetics and the immune system, not an infection, and reassures that it cannot be spread to others. The transcript also provides additional context about the condition, which is helpful for understanding, but the core question about contagion is directly and accurately addressed.",4850.0,CON1-CH3-Q3-Is there a hereditary factor to HS-Garg-.mp4,0.3,Is there a hereditary factor to HS?,"That's also a really great question. When I meet patients with HS, I often hear them tell me that, oh yeah, my mother has this condition or my brother has this condition. And a common question of course is can I pass it on to my children? I think we're still really trying to understand how HS runs in families, and to do that, we just need a better understanding of what genes are involved and that's ongoing research. We're still trying to understand how HS is passed within families. What I can say is at this point, there probably is some kind of genetic link, but how exactly that works, we still aren't sure yet.",30.0,"The transcript does not directly answer the question of whether HS (Hidradenitis Suppurativa) is contagious. Instead, it discusses the genetic aspect and familial occurrence of HS, suggesting a possible hereditary link. Contagiousness refers to the ability of a disease to be transmitted from one person to another through direct or indirect contact, which is not addressed in the transcript. Therefore, the response is not aligned with the question about contagiousness, leading to a low rating.",1112.0,Vaccine Hesitancy | E8,0.756682158,3645.0,Signs of Infection,0.756326079,125.0,Multiple Sclerosis | Yale Medicine Explains,0.748778403
How do I ask my partner for support with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i ask my partner for support with hs?,How do I ask my partner for support with HS?,How do I ask my partner for support with HS?,No,,,searchable,exact-match,"mental and emotional health,caregiving,living with",,"[{""id"":1931},{""id"":1972},{""id"":1929},{""id"":1813}]",4980.0,CON4-CH1-Q6-My relationship is deteriorating because of my HS-what can I do-Daveluy.mp4,0.85,"My relationship is deteriorating because of my HS, what can I do?","That's a tough question. I think there are a few elements there that can help any relationship with HS or without. One is open, clear communication. So talk to your partner about the struggles that you're having and what is interfering with the relationship. We have a tendency to want to bottle things up and not put our problems on other people, but I'm sure your partner will actually be grateful to know what's going on because they're probably feeling that the relationship isn't going super great as well, and they want to stay with you and make it work. And so having that open conversation about how your HS is impacting you, and why it is impacting your intimacy, can be a great way to open that door for your partner to also talk about how things are going in the relationship and what maybe you could modify to help things. It can be great to reach out to a mental health professional. I know there's a lot of stigma around getting help from a professional. It doesn't mean you're crazy, it just means you need a little bit of help. I think everybody should have a therapist. It's like a coach who's just helping you navigate life and deal with your issues and gives you that outside perspective. That can be really helpful, especially for relationship counseling, to have that outsider say, here's my viewpoint and here's what may be helpful.",85.0,"The transcript provides a comprehensive answer to the question by emphasizing the importance of open and clear communication with the partner about the struggles related to HS. It suggests discussing how HS impacts the individual and the relationship, which directly addresses the question of asking for support. Additionally, it recommends seeking help from a mental health professional, which can be beneficial for relationship counseling. However, the transcript could be improved by offering more specific examples or phrases to use when initiating the conversation, which would make the guidance more actionable.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.7,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",70.0,"The transcript provides a general approach to discussing HS with a partner, emphasizing the importance of vulnerability, open communication, and mutual understanding. It encourages sharing the impact of HS on one's life and relationship, which indirectly addresses how to ask for support. However, it lacks specific strategies or phrases for initiating the conversation or directly asking for support, which would have made the answer more complete and directly aligned with the question.",4982.0,CON4-CH1-Q4-How do I date with HS-Daveluy.mp4,0.6,How do I date with HS?,"Disclosing a chronic health condition like HS can be really stressful when you're thinking about entering a relationship. When do you tell the person? How do you tell them? Do you do it right before intimacy? Do you do it when you're moving toward intimacy? Are you sending them a signal that you want to be intimate by having the conversation? So there's a lot that goes into it. And I think one of the best things that I've encountered is patients going to support groups that talk about these issues. It can be super helpful to know how other people have navigated it - when they disclose, when they didn't - because you're going to have to find what works for you. There's no one size fits all answer of when to talk to your partner about HS. You've got to think about your personality. Are you out there educating the world about HS and passionate about everyone knowing about it and you can't wait to tell a partner? Or, are you a little more private, keeping things to yourself and only disclosing when the time comes and you need to? And hearing perspectives from other patients going through it can be really helpful to find something that works for you.",60.0,"The transcript provides some relevant information about disclosing a chronic health condition like HS to a partner, which is related to asking for support. It discusses the timing and approach to disclosure, suggesting support groups as a resource for learning from others' experiences. However, it does not directly address how to specifically ask for support from a partner once the condition is disclosed. The focus is more on the disclosure process itself rather than on strategies for seeking support, which is the core of the original question.",3518.0,How can I talk to a loved one about losing weight?,0.764556944,4642.0,Coping With Cancer,0.76039505,3624.0,How can I talk to a loved one about losing weight?,0.760309219
What if my partner doesn't understand hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what if my partner doesn't understand hidradenitis suppurativa?,What if my partner doesn't understand hidradenitis suppurativa?,What if my partner doesn't understand hidradenitis suppurativa?,No,,,searchable,exact-match,"condition management,living with,caregiving",,"[{""id"":1927},{""id"":1972},{""id"":1973},{""id"":1937}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.85,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",85.0,"The transcript provides a comprehensive answer to the question by explaining that hidradenitis suppurativa (HS) is not contagious and is related to genetics and the immune system. It acknowledges the potential stress in conversations about HS and suggests educating the partner about the condition, emphasizing that it is a chronic skin condition with flare-ups. The transcript also reassures that intimacy and romance can still be fulfilling despite HS. However, it could improve by offering more specific advice on how to communicate effectively with a partner who doesn't understand HS.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.75,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",75.0,"The transcript addresses the question by discussing the importance of communication and vulnerability in relationships when one partner has hidradenitis suppurativa (HS). It emphasizes the need to have open conversations about the condition, its impact, and the emotional aspects involved. However, it doesn't provide specific strategies or advice on what to do if a partner doesn't understand HS, which would have made the response more directly aligned with the question. The focus is more on the general approach to relationships with HS rather than addressing misunderstanding specifically.",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.75,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",75.0,"The transcript addresses the question by emphasizing the importance of communication and openness with a partner who may not understand hidradenitis suppurativa (HS). It suggests discussing personal experiences and feelings related to HS, which can help the partner understand the condition better. However, the transcript focuses more on intimacy and self-worth rather than directly addressing strategies for educating a partner about HS. It provides valuable advice on maintaining a healthy relationship despite HS, but could be more specific about how to help a partner understand the medical aspects of the condition.",4642.0,Coping With Cancer,0.753422379,1092.0,Breast Cancer | Understanding Your Disease,0.749256849,450.0,I Have Endometriosis,0.745422125
Can HS put strain on my relationship?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs put strain on my relationship?,Can HS put strain on my relationship?,Can HS put strain on my relationship?,No,,,searchable,exact-match,"mental and emotional health,living with,condition management",,"[{""id"":1972},{""id"":1931},{""id"":1839},{""id"":1929}]",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript addresses the question by discussing how HS can impact relationships, emphasizing the importance of communication and vulnerability. It acknowledges the challenges and uncertainties HS can bring to a relationship, suggesting that it requires a special person to understand and support someone with HS. The speaker encourages open discussions about HS with partners, which can help manage the strain it might put on a relationship. While the transcript doesn't explicitly state that HS can put strain on a relationship, it implies it through the need for understanding and communication, thus providing a comprehensive answer to the question.",4980.0,CON4-CH1-Q6-My relationship is deteriorating because of my HS-what can I do-Daveluy.mp4,0.85,"My relationship is deteriorating because of my HS, what can I do?","That's a tough question. I think there are a few elements there that can help any relationship with HS or without. One is open, clear communication. So talk to your partner about the struggles that you're having and what is interfering with the relationship. We have a tendency to want to bottle things up and not put our problems on other people, but I'm sure your partner will actually be grateful to know what's going on because they're probably feeling that the relationship isn't going super great as well, and they want to stay with you and make it work. And so having that open conversation about how your HS is impacting you, and why it is impacting your intimacy, can be a great way to open that door for your partner to also talk about how things are going in the relationship and what maybe you could modify to help things. It can be great to reach out to a mental health professional. I know there's a lot of stigma around getting help from a professional. It doesn't mean you're crazy, it just means you need a little bit of help. I think everybody should have a therapist. It's like a coach who's just helping you navigate life and deal with your issues and gives you that outside perspective. That can be really helpful, especially for relationship counseling, to have that outsider say, here's my viewpoint and here's what may be helpful.",85.0,"The transcript addresses the question by acknowledging that HS can impact relationships and suggests open communication as a key strategy to mitigate strain. It also recommends seeking professional help, which is relevant advice for managing relationship challenges. However, it doesn't explicitly state that HS can put strain on relationships, which slightly reduces the directness of the answer.",4859.0,CON1-CH4-Q2-Is depression a normal part of HS-Okoye.mp4,0.85,Is depression a normal part of HS?,"People with HS struggle with a lot of mental health concerns. Depression is one of them. Some people deal with anxiety and for some patients it doesn't get to the level of a diagnosis of depression or anxiety, but they feel a lot of stress and a lot of strain from the disease, from its unpredictability, and from how it tends to affect different aspects of their lives. So yes, what you're feeling is normal.",85.0,"The transcript effectively addresses the question by acknowledging that people with HS (Hidradenitis Suppurativa) often experience mental health challenges such as depression, anxiety, and stress due to the disease's impact on their lives. This implies that HS can indeed put a strain on relationships, as these mental health issues and the unpredictability of the disease can affect various aspects of life, including personal relationships. However, the transcript could be more explicit in directly linking these mental health challenges to relationship strain to fully address the question.",2315.0,Heart Health | Behavioral and Biological Relationships to Stress,0.768694758,4642.0,Coping With Cancer,0.758657038,2337.0,Heart Health | Effects of Chronic Stress,0.756825805
How do I maintain romance with chronic hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i maintain romance with chronic hidradenitis suppurativa?,How do I maintain romance with chronic hidradenitis suppurativa?,How do I maintain romance with chronic hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1973},{""id"":1928},{""id"":1927},{""id"":1930}]",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.85,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",85.0,"The transcript addresses the question by focusing on maintaining romance and intimacy despite the challenges posed by hidradenitis suppurativa (HS). It emphasizes the importance of communication and vulnerability with a partner, redefining intimacy beyond physical aspects, and finding a supportive partner who understands the condition. While it doesn't provide specific romantic activities or strategies, it offers valuable insights into emotional and relational aspects, which are crucial for maintaining romance in the context of HS.",4981.0,CON4-CH1-Q3-How can I even think about intimacy when I’m feeling pain and inflammation--Daveluy.mp4,0.85,How can I even think about intimacy when I'm feeling pain and inflammation?,"It's really important to remember that there are a lot of different ways to engage in intimacy. Sex is not the only way. And so in our minds we think a lot about what we can't do. Our brains focus on the negative. My HS is flared in my groin, so I can't have sex. But that doesn't mean you can't have sex. You just need to focus on what you can do. So have a conversation with your partner about things you like, areas of your body that are your erotic zones. Maybe it's your ear lobes, maybe other parts of the body that the HS doesn't affect are sensitive in a really good way, that you and your partner can engage in other ways of being intimate that aren't just the traditional sex because your HS might be flaring up in a way that doesn't allow you to have traditional sex right now. Exploring those other options can open up a lot of new doorways for you to be intimate. So I always say, don't focus on what you can't do. Start talking about what you still can do during this flare.",85.0,"The transcript provides a thoughtful and relevant answer to the question by emphasizing the importance of exploring different forms of intimacy beyond traditional sex, which is particularly pertinent for someone dealing with chronic hidradenitis suppurativa (HS). It suggests having open conversations with a partner about alternative ways to be intimate, focusing on unaffected areas of the body, and maintaining a positive outlook by concentrating on what is possible rather than what is not. This advice is practical and directly addresses the challenge of maintaining romance while managing HS. However, the transcript could be improved by offering more specific examples or strategies for maintaining romance, such as planning romantic activities that do not involve physical intimacy, which would provide a more comprehensive answer.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.75,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",75.0,"The transcript addresses the question by reassuring the individual that HS is not contagious and cannot be spread to a partner, which is a common concern that might affect romance. It suggests educating the partner about HS to alleviate misunderstandings and stresses the possibility of maintaining a fulfilling romantic and intimate life despite the condition. However, it lacks specific strategies or tips on how to maintain romance, such as communication techniques, emotional support, or practical advice on managing flare-ups in a romantic context.",4642.0,Coping With Cancer,0.750068247,3635.0,Drain Care,0.74757719,1069.0,"Dating with Diabetes | E5 
Intimacy and Body Confidence",0.743427038
Should I tell my friends about my HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i tell my friends about my hs?,Should I tell my friends about my HS?,Should I tell my friends about my HS?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1937},{""id"":1974},{""id"":1943},{""id"":1929}]",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.9,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",90.0,"The transcript provides a comprehensive answer to the question about whether to tell friends about HS (Hidradenitis Suppurativa). It acknowledges the complexity of the decision and offers practical advice on how to approach the conversation based on the closeness of the relationship. It emphasizes the benefits of sharing with close friends and family for support and understanding, and provides a real-life example of how disclosure can improve relationships. The response is empathetic and informative, addressing both emotional and practical aspects of the decision. However, it could be slightly improved by explicitly stating that the decision is personal and should be based on individual comfort levels.",5045.0,CON5-Q10-How do I know which friends I should tell about my HS-Brooksoks-V.mp4,0.85,How do I know what friends I should tell about my HS?,"Dealing with friends can be really, really challenging. You have to decide ultimately if these people are worthy of knowing the vulnerabilities that you face or not. And I think that it's an important decision and distinction to make because this is where it can become, sometimes your HS can be weaponized against you in relationships, even outside of friendships.  Your journey is sacred and your HS is sacred. And if you decide not to talk to people about it because you don't feel like they will understand, that's completely fair. But you do leave them to fill in their own gaps and their own blanks in the story if you do not give them the opportunity to talk to them about what's going on with you. The other thing is if you are constantly canceling plans, your friends may feel some type of way about that because you're not giving them an explanation, and they know that it’s not necessarily genuine. So they're like, well, does she just not like hanging out with us anymore? What's going on? So you also have to understand from their perspective, maybe they're coming from a place of care and concern, but it doesn't necessarily feel like that. So you get to be the judge of that character and what you want to do, and how much you want to open up to that person. But again, I do think that it's worth having those conversations with them, and letting them know what you've been dealing with because we become so good at hiding it. I wish I could give an Oscar and Emmy to every single person who deals with HS and works on hiding this, and coming up with little white lies about covering our entire lives. So please do think long and hard about whether that person is worthy of the inside and the vulnerable piece of you, but also make sure you know that you're not filling in those gaps and telling them the story, then they're going to make up their own story. And that's just a natural people thing. It doesn't have anything to do with your HS. You could insert anything else in there and people would do the same thing.",85.0,"The transcript provides a comprehensive answer to the question of whether to tell friends about HS (Hidradenitis Suppurativa). It addresses the complexity of the decision, emphasizing the importance of evaluating the trustworthiness and understanding of friends. It also highlights the potential consequences of not sharing, such as friends misunderstanding the situation or feeling neglected. The response encourages thoughtful consideration and suggests that sharing can prevent misunderstandings. However, it does not provide a definitive answer, as it ultimately leaves the decision to the individual's judgment, which is appropriate given the personal nature of the question.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.85,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",85.0,"The transcript provides a comprehensive answer to the question of whether one should tell their friends about HS (Hidradenitis Suppurativa). It acknowledges the personal nature of the decision, emphasizing that it is ultimately up to the individual and that there is no right or wrong answer. The response discusses the potential benefits of sharing, such as lifting a burden and receiving empathy, as well as the risks, like fear of judgment. It also highlights the broader impact of raising awareness and supporting others with similar experiences. However, it could be improved by briefly explaining what HS is for those unfamiliar with the condition, which would make the response more complete for all audiences.",4632.0,Talking About Your Diagnosis,0.753697217,4372.0,Tips For Navigating Your Cancer Care,0.740190268,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.729160726
How do I explain HS to people who ask about my scars?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i explain hs to people who ask about my scars?,How do I explain HS to people who ask about my scars?,How do I explain HS to people who ask about my scars?,No,,,searchable,exact-match,"condition overview,living with",,"[{""id"":1937},{""id"":1943},{""id"":1974},{""id"":1972}]",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.85,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",85.0,"The transcript provides a comprehensive approach to explaining HS (Hidradenitis Suppurativa) to others, focusing on the importance of tailoring the explanation based on the closeness of the relationship. It suggests a simple explanation for acquaintances and a more detailed one for close friends and family, emphasizing the value of support and understanding. It also provides practical examples of how sharing information can improve relationships and offers a real-life anecdote to illustrate the benefits of disclosure. However, it could be improved by including specific language or phrases to use when explaining HS to others.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.7,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",70.0,"The transcript provides a thoughtful and empathetic discussion about the personal choice involved in explaining HS (Hidradenitis Suppurativa) to others. It emphasizes the importance of personal agency and the potential benefits of sharing one's experience, such as lifting a burden and educating others. However, it does not provide specific language or strategies for explaining HS to others, which the question seems to be seeking. The response is supportive and addresses the emotional aspects of disclosure, but lacks concrete guidance on how to articulate the explanation of HS and its visible effects, such as scars.",5045.0,CON5-Q10-How do I know which friends I should tell about my HS-Brooksoks-V.mp4,0.4,How do I know what friends I should tell about my HS?,"Dealing with friends can be really, really challenging. You have to decide ultimately if these people are worthy of knowing the vulnerabilities that you face or not. And I think that it's an important decision and distinction to make because this is where it can become, sometimes your HS can be weaponized against you in relationships, even outside of friendships.  Your journey is sacred and your HS is sacred. And if you decide not to talk to people about it because you don't feel like they will understand, that's completely fair. But you do leave them to fill in their own gaps and their own blanks in the story if you do not give them the opportunity to talk to them about what's going on with you. The other thing is if you are constantly canceling plans, your friends may feel some type of way about that because you're not giving them an explanation, and they know that it’s not necessarily genuine. So they're like, well, does she just not like hanging out with us anymore? What's going on? So you also have to understand from their perspective, maybe they're coming from a place of care and concern, but it doesn't necessarily feel like that. So you get to be the judge of that character and what you want to do, and how much you want to open up to that person. But again, I do think that it's worth having those conversations with them, and letting them know what you've been dealing with because we become so good at hiding it. I wish I could give an Oscar and Emmy to every single person who deals with HS and works on hiding this, and coming up with little white lies about covering our entire lives. So please do think long and hard about whether that person is worthy of the inside and the vulnerable piece of you, but also make sure you know that you're not filling in those gaps and telling them the story, then they're going to make up their own story. And that's just a natural people thing. It doesn't have anything to do with your HS. You could insert anything else in there and people would do the same thing.",40.0,"The transcript provides a general discussion about the challenges of explaining personal vulnerabilities, such as HS, to friends. It emphasizes the importance of deciding whether to share personal information and the potential consequences of not doing so. However, it does not directly address how to explain HS specifically or offer any specific language or strategies for discussing scars caused by HS. The response is more about the emotional and relational aspects of sharing personal health information rather than providing a clear answer to the question of how to explain HS scars to others.",4632.0,Talking About Your Diagnosis,0.76738435,3624.0,How can I talk to a loved one about losing weight?,0.752766192,1092.0,Breast Cancer | Understanding Your Disease,0.751090109
What do I say when people ask about visible HS lesions?,searchable,Patient_Forums,Hidradenitis Suppurativa,what do i say when people ask about visible hs lesions?,What do I say when people ask about visible HS lesions?,What do I say when people ask about visible HS lesions?,No,,,searchable,exact-match,"mental and emotional health,condition management,living with",,"[{""id"":1937},{""id"":1980},{""id"":1929},{""id"":1854}]",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.85,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",85.0,"The transcript provides a comprehensive answer to the question by suggesting different levels of disclosure based on the relationship with the person asking about the HS lesions. It advises on how to explain the condition to acquaintances versus close friends and family, emphasizing the importance of support and understanding. The transcript also includes a real-life example of how sharing information about HS can improve relationships. However, it could be more concise and directly address specific phrases or sentences to use when asked about visible lesions, which would make the response even more practical.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.3,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",30.0,"The transcript does not directly answer the question about what to say when people ask about visible HS lesions. Instead, it focuses on the emotional impact of being diagnosed with HS, emphasizing that the condition is not the patient's fault and addressing the stigma and shame associated with it. While this information might be indirectly useful in framing a response to questions about visible lesions, it does not provide specific guidance or phrases to use in such situations. Therefore, the transcript only partially addresses the question.",4982.0,CON4-CH1-Q4-How do I date with HS-Daveluy.mp4,0.3,How do I date with HS?,"Disclosing a chronic health condition like HS can be really stressful when you're thinking about entering a relationship. When do you tell the person? How do you tell them? Do you do it right before intimacy? Do you do it when you're moving toward intimacy? Are you sending them a signal that you want to be intimate by having the conversation? So there's a lot that goes into it. And I think one of the best things that I've encountered is patients going to support groups that talk about these issues. It can be super helpful to know how other people have navigated it - when they disclose, when they didn't - because you're going to have to find what works for you. There's no one size fits all answer of when to talk to your partner about HS. You've got to think about your personality. Are you out there educating the world about HS and passionate about everyone knowing about it and you can't wait to tell a partner? Or, are you a little more private, keeping things to yourself and only disclosing when the time comes and you need to? And hearing perspectives from other patients going through it can be really helpful to find something that works for you.",30.0,"The transcript does not directly answer the question about what to say when people ask about visible HS lesions. Instead, it discusses the broader topic of disclosing a chronic health condition like HS in the context of relationships and intimacy. It suggests attending support groups to learn from others' experiences, but it does not provide specific guidance or phrases to use when asked about visible lesions. The response is more about the timing and context of disclosure rather than the content of what to say.",4632.0,Talking About Your Diagnosis,0.785028338,4503.0,Tips From The Pathologist,0.7661134,4533.0,What Will My Treatment Be Like?,0.763258815
How do I handle insensitive comments about hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i handle insensitive comments about hidradenitis suppurativa?,How do I handle insensitive comments about hidradenitis suppurativa?,How do I handle insensitive comments about Hidradenitis Suppurativa?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1981},{""id"":1937},{""id"":1859},{""id"":1973}]",5039.0,CON5-Q19-How do you respond to unkind things people say-Brooks.mp4,0.7,How do you respond to unkind things people say?,"This is a tricky one because we do hear a lot of information and a lot of times it's coming from a doctor at a doctor's appointment, in all honesty, where the first thing that you'll be told when you're diagnosed with HS is that you need to lose weight and quit smoking.  And that's even said to non-smokers. So it just feels like a rhetoric that's been said for a really long time. And I think the retort to that is, you can handle that in a multiple, multitude of ways. You can have the discussion about, okay, so talk to me as if I was thin. And kind of put them back in that place of we're not talking about my weight. I'm here for medical management. What can you offer me? And really putting that back on them. We're encouraging physicians not to have these discussions about weight or smoking until you've built a rapport with your patient, and have resources to offer them. Because just telling g someone to lose weight and quit smoking is so unhelpful without any resources attached to that. So, you know, it's fair to ask them the question, to put that back on them, to say, I'm here for medical management. What can you offer me? What are the next steps? Or to ask, do you have resources for that? Because if it was just that easy, I wouldn't be overweight.  So I think it's fair to ask, it's fair to push back. I think it's also fair to go in with the knowledge and say, I know that my weight may be contributing to my HS, but it's not the cause of my HS. And we do know that there are a lot of doctors who need additional education on HS. HS Connect is working on filling that gap as well. But I think it's a hard thing to do because we've really been trained to see physicians, especially, in a different light.  So, pushing back on them is very unnatural, but I think that it's the way that the world is starting to work. We are deserving of care just like everybody else. So when we come in with a problem, we deserve medical management just like everybody else.",70.0,"The transcript provides a thoughtful approach to handling insensitive comments about Hidradenitis Suppurativa (HS), particularly in a medical setting. It suggests strategies for addressing comments about weight and smoking, which are common but often unhelpful remarks made by healthcare providers. The advice includes redirecting the conversation to focus on medical management and asking for resources or next steps. However, the transcript primarily focuses on interactions with healthcare professionals rather than general insensitive comments from others, which may limit its applicability to the broader context of the question. Additionally, it does not address emotional coping strategies or responses to comments from non-medical individuals, which could be relevant to the question. Overall, the response is relevant but somewhat narrow in scope.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.6,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",60.0,"The transcript provides a general approach to handling conversations about Hidradenitis Suppurativa (HS) by suggesting how to disclose the condition to others based on the closeness of the relationship. It emphasizes the importance of sharing information with close friends and family to gain support and understanding. However, it does not directly address how to handle insensitive comments specifically. The advice is more about proactive disclosure and building understanding rather than responding to insensitivity. Therefore, while it offers useful context and strategies for communication, it only partially answers the question about handling insensitive comments.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.6,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",60.0,"The transcript partially addresses the question about handling insensitive comments regarding Hidradenitis Suppurativa (HS). It provides some guidance on how to explain the condition to others, emphasizing that it's not contagious and offering a brief explanation of what HS is. However, it doesn't directly address strategies for emotionally handling or responding to insensitive comments, which seems to be the core of the question. The focus of the transcript is more on medical management and public awareness rather than interpersonal communication strategies.",3570.0,My family and friends are making insensitive comments about my weight,0.786727548,3630.0,I’m facing racism when I go to the doctor. How do I handle this?,0.779014468,3568.0,How do I handle the stigma and weight bias?,0.777088165
Can I go to social events with active HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i go to social events with active hs?,Can I go to social events with active HS?,Can I go to social events with active HS?,No,,,searchable,loose-match,"condition management,living with",,"[{""id"":1974},{""id"":1937},{""id"":1813},{""id"":1841}]",5045.0,CON5-Q10-How do I know which friends I should tell about my HS-Brooksoks-V.mp4,0.4,How do I know what friends I should tell about my HS?,"Dealing with friends can be really, really challenging. You have to decide ultimately if these people are worthy of knowing the vulnerabilities that you face or not. And I think that it's an important decision and distinction to make because this is where it can become, sometimes your HS can be weaponized against you in relationships, even outside of friendships.  Your journey is sacred and your HS is sacred. And if you decide not to talk to people about it because you don't feel like they will understand, that's completely fair. But you do leave them to fill in their own gaps and their own blanks in the story if you do not give them the opportunity to talk to them about what's going on with you. The other thing is if you are constantly canceling plans, your friends may feel some type of way about that because you're not giving them an explanation, and they know that it’s not necessarily genuine. So they're like, well, does she just not like hanging out with us anymore? What's going on? So you also have to understand from their perspective, maybe they're coming from a place of care and concern, but it doesn't necessarily feel like that. So you get to be the judge of that character and what you want to do, and how much you want to open up to that person. But again, I do think that it's worth having those conversations with them, and letting them know what you've been dealing with because we become so good at hiding it. I wish I could give an Oscar and Emmy to every single person who deals with HS and works on hiding this, and coming up with little white lies about covering our entire lives. So please do think long and hard about whether that person is worthy of the inside and the vulnerable piece of you, but also make sure you know that you're not filling in those gaps and telling them the story, then they're going to make up their own story. And that's just a natural people thing. It doesn't have anything to do with your HS. You could insert anything else in there and people would do the same thing.",40.0,"The transcript does not directly answer the question of whether one can attend social events with active HS (Hidradenitis Suppurativa). Instead, it focuses on the social dynamics and personal decisions regarding sharing one's condition with friends. While it touches on the challenges of social interactions and the importance of communication, it does not provide a clear answer or guidance on attending social events specifically. The response could be improved by addressing practical considerations for attending events with HS, such as managing symptoms or choosing appropriate clothing.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.4,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",40.0,"The transcript provides a detailed discussion on the social aspects of living with HS, focusing on disclosure and support from friends and family. However, it does not directly answer the question of whether one can attend social events with active HS. It implies that social interactions are possible with proper communication and understanding, but lacks a direct answer regarding the feasibility or considerations of attending events during active HS flares.",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.3,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",30.0,"The transcript does not directly answer the question about attending social events with active HS. Instead, it focuses on the importance of support groups for individuals with HS, emphasizing the value of connecting with others who have similar experiences. While this information is beneficial for emotional support and understanding, it does not address the practical considerations or advice related to attending social events while having active HS symptoms.",551.0,Staying Active,0.743634582,4647.0,Managing Your Mental Health,0.742521882,1039.0,"Parents of Children with Diabetes | E3 
School & Activities",0.737894595
How do I deal with feeling isolated because of hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i deal with feeling isolated because of hidradenitis suppurativa?,How do I deal with feeling isolated because of hidradenitis suppurativa?,How do I deal with feeling isolated because of Hidradenitis Suppurativa?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1940},{""id"":1841},{""id"":1973},{""id"":1928}]",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.85,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",85.0,"The transcript addresses the question by acknowledging the feelings of isolation associated with Hidradenitis Suppurativa (HS) and emphasizes the importance of finding community support. It suggests joining a community like Healing Space on HS Connect, which offers various therapeutic modalities to help manage depression and anxiety. The response reassures the individual that they are not alone and encourages open communication about their feelings. However, it could be improved by providing more specific strategies or examples of how to connect with others or manage isolation beyond joining a community.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.85,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",85.0,"The transcript provides a solid answer to the question by acknowledging the isolating nature of Hidradenitis Suppurativa and suggesting practical solutions. It mentions the existence of a large community of HS patients and the availability of support groups, both online and in person, which can help alleviate feelings of isolation. Additionally, it emphasizes the importance of having a supportive care team. However, the response could be improved by offering more specific examples of online platforms or organizations and additional coping strategies, such as mental health support or lifestyle adjustments.",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.4,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",40.0,"The transcript primarily addresses issues related to intimacy and self-worth in the context of Hidradenitis Suppurativa (HS), focusing on communication with a partner and redefining intimacy. While these are important aspects of dealing with HS, the question specifically asks about feeling isolated due to the condition. The transcript does not directly address strategies for coping with isolation, such as seeking support groups, engaging in social activities, or finding mental health resources. Therefore, it only partially answers the question by touching on related emotional aspects but misses the core issue of isolation.",4642.0,Coping With Cancer,0.771084368,4645.0,Is What I'm Feeling Normal?,0.770354271,1093.0,Breast Cancer | Feeling Empowered,0.760612547
Should I educate my family about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i educate my family about hs?,Should I educate my family about HS?,Should I educate my family about HS?,No,,,searchable,exact-match,,,"[{""id"":1943},{""id"":1977},{""id"":1974},{""id"":1929}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.85,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",85.0,"The transcript provides a comprehensive answer to the question of whether one should educate their family about HS (Hidradenitis Suppurativa). It acknowledges the personal nature of the decision, emphasizing that it is ultimately the individual's choice and that there is no right or wrong answer. The transcript discusses the potential benefits of sharing, such as lifting a burden and receiving empathy, as well as the risks, like fear of judgment. It also highlights the importance of educating others and the potential positive impact on others who may be suffering in silence. However, it could be improved by directly addressing the family aspect more explicitly, as the focus is more on general sharing rather than specifically educating family members.",5040.0,CON5-Q14-Do you have advice for parenting a child with HS_Brooks_V.mp4,0.7,Do you have advice for parenting a child with HS?,"Being a parent of a child with HS is a completely different journey.  I sometimes say that it's a blessing and a curse because I can help my kids on their journey based on the journey that I've had. But their journey is also completely different than mine. And they don't feel the same way I do about certain things. So it's a really hard thing to navigate, but it's also, I know that whatever my kids need, I am the best person to supply that for them. I didn't have someone to walk me through my journey. And I get to do that and be present for them and help them walk through their journey and help them take shortcuts and not have to feel some of the same things I felt on my journey. I think it's a wonderfully empowering thing. A lot of parents say that they don't know if they're doing what their kids need. And by engaging with your child about their HS, you're doing what they need. It's also very important to respect their desires and wishes. A lot of us try to bury our HS because we don't want it to be the focus of every day. So if you're asking your kid every single day or constantly, how are your flares? How are your flares? People start to lose their identity to their disease. And we really want to make sure that that is managed and to have open communication with your child. Maybe just ask them. Hey, I'm going stop asking you because it seems to be really bothersome for you. How about you come to me if you need me and you know that I'll be here for you. So giving them a little bit of autonomy in their disease is really important, too, to help them manage and walk through this journey.",70.0,"The transcript provides a nuanced perspective on educating family members about HS, particularly focusing on the parent-child dynamic. It emphasizes the importance of being supportive and respecting the child's autonomy, which indirectly suggests that educating family members can be beneficial. However, it does not directly address whether one should educate their family about HS in a broader sense, such as involving other family members beyond the parent-child relationship. The answer is somewhat relevant but lacks direct guidance on the broader question of family education.",5045.0,CON5-Q10-How do I know which friends I should tell about my HS-Brooksoks-V.mp4,0.6,How do I know what friends I should tell about my HS?,"Dealing with friends can be really, really challenging. You have to decide ultimately if these people are worthy of knowing the vulnerabilities that you face or not. And I think that it's an important decision and distinction to make because this is where it can become, sometimes your HS can be weaponized against you in relationships, even outside of friendships.  Your journey is sacred and your HS is sacred. And if you decide not to talk to people about it because you don't feel like they will understand, that's completely fair. But you do leave them to fill in their own gaps and their own blanks in the story if you do not give them the opportunity to talk to them about what's going on with you. The other thing is if you are constantly canceling plans, your friends may feel some type of way about that because you're not giving them an explanation, and they know that it’s not necessarily genuine. So they're like, well, does she just not like hanging out with us anymore? What's going on? So you also have to understand from their perspective, maybe they're coming from a place of care and concern, but it doesn't necessarily feel like that. So you get to be the judge of that character and what you want to do, and how much you want to open up to that person. But again, I do think that it's worth having those conversations with them, and letting them know what you've been dealing with because we become so good at hiding it. I wish I could give an Oscar and Emmy to every single person who deals with HS and works on hiding this, and coming up with little white lies about covering our entire lives. So please do think long and hard about whether that person is worthy of the inside and the vulnerable piece of you, but also make sure you know that you're not filling in those gaps and telling them the story, then they're going to make up their own story. And that's just a natural people thing. It doesn't have anything to do with your HS. You could insert anything else in there and people would do the same thing.",60.0,"The transcript addresses the broader topic of whether to share personal information about HS (Hidradenitis Suppurativa) with others, including family, but it focuses more on friends and general social relationships. It discusses the potential risks and benefits of sharing, such as vulnerability and misunderstanding, but does not specifically address educating family members. The advice given is applicable to family, but the transcript lacks direct guidance on how or why to educate family specifically, which is the core of the question.",4632.0,Talking About Your Diagnosis,0.748376131,1039.0,"Parents of Children with Diabetes | E3 
School & Activities",0.743306398,907.0,HSS Overview,0.74076438
How do I get my family to take hidradenitis suppurativa seriously?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i get my family to take hidradenitis suppurativa seriously?,How do I get my family to take hidradenitis suppurativa seriously?,How do I get my family to take Hidradenitis Suppurativa seriously?,No,,,searchable,exact-match,,,"[{""id"":1937},{""id"":1859},{""id"":1950},{""id"":1980}]",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.85,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",85.0,"The transcript provides a comprehensive approach to addressing the question by suggesting strategies for communicating the seriousness of Hidradenitis Suppurativa (HS) to family and friends. It emphasizes the importance of tailoring the conversation based on the closeness of the relationship and provides practical examples of how sharing information can improve understanding and support. However, it could be improved by offering more specific advice on overcoming skepticism or disbelief, which is often a challenge in getting others to take a condition seriously.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.7,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",70.0,"The transcript provides some useful information that could help in convincing family members to take Hidradenitis Suppurativa (HS) seriously. It explains the nature of HS as an inflammatory skin condition, clarifies that it is not contagious, and suggests raising public awareness. However, it does not directly address strategies for communicating the seriousness of the condition to family members. The focus is more on treatment options and general awareness rather than specific advice on family communication.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.3,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",30.0,"The transcript provides context about the lack of awareness and common misdiagnosis of Hidradenitis Suppurativa, which indirectly highlights why family members might not take the condition seriously. However, it does not directly address how to get family members to take the condition seriously or offer any strategies or advice for doing so. The response lacks actionable information or guidance specific to the question asked.",3519.0,How can I talk to my child about losing weight?,0.762204885,3624.0,How can I talk to a loved one about losing weight?,0.760526061,3572.0,My doctor is shaming me for my weight,0.760114789
What if people think I'm exaggerating about HS pain?,searchable,Patient_Forums,Hidradenitis Suppurativa,what if people think i'm exaggerating about hs pain?,What if people think I'm exaggerating about HS pain?,What if people think I'm exaggerating about HS pain?,No,,,searchable,exact-match,"mental and emotional health,living with,condition management",,"[{""id"":1943},{""id"":1850},{""id"":1843},{""id"":1980}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.7,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",70.0,"The transcript addresses the emotional and social aspects of sharing one's experience with HS pain, emphasizing personal choice and the potential benefits of openness. However, it doesn't directly address the concern of being perceived as exaggerating, which is the core of the question. The response could be improved by acknowledging the specific fear of disbelief and offering strategies to communicate the severity of HS pain effectively.",4874.0,CON2-CH1-Q4-Is it common to be in so much pain-Okoye.mp4,0.6,Is it common to be in so much pain?,"HS is an extremely painful disease and I think this is the part of HS that perhaps we don't discuss enough. It is such an important part of the disease that if you have pimples or bumps that aren't painful, it's probably not HS.",60.0,"The transcript addresses the question indirectly by emphasizing the severe pain associated with HS (Hidradenitis Suppurativa), which could validate the person's experience of pain. However, it does not directly address the concern about others thinking the person is exaggerating. It lacks guidance on how to communicate the pain to others or how to handle skepticism, which would be more directly relevant to the question.",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.4,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",40.0,"The transcript addresses the impact of HS pain on work and the importance of communicating with employers, but it does not directly address the concern of others thinking the patient is exaggerating about their pain. It provides practical advice on work accommodations but lacks guidance on how to handle perceptions of exaggeration from others, which is the core of the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.766723573,4645.0,Is What I'm Feeling Normal?,0.75891763,486.0,Pain | Dr. Phil Schauer,0.758213639
How do I deal with people who say HS is just acne?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i deal with people who say hs is just acne?,How do I deal with people who say HS is just acne?,How do I deal with people who say HS is just acne?,No,,,searchable,loose-match,"mental and emotional health,condition management,living with",,"[{""id"":1953},{""id"":1855},{""id"":1980},{""id"":1952}]",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.3,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",30.0,"The transcript provides some context about the coexistence of acne and HS (Hidradenitis Suppurativa), but it does not directly address how to deal with people who mistakenly equate HS with acne. It explains that having both conditions is possible but does not offer guidance on handling misconceptions or educating others about the differences between HS and acne.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.3,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",30.0,"The transcript does not directly address the question of how to deal with people who say HS is just acne. Instead, it provides information about the co-occurrence of HS and acne and mentions treatment options that can address both conditions. The response lacks guidance on how to handle misconceptions or discussions with others about HS being more than just acne.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.3,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",30.0,"The transcript primarily addresses the emotional impact and stigma associated with HS (Hidradenitis Suppurativa), emphasizing that the condition is not the patient's fault. However, it does not directly address how to deal with people who mistakenly believe HS is just acne. The response lacks specific strategies or explanations to counteract misconceptions about HS being similar to acne, which is the core of the question.",3630.0,I’m facing racism when I go to the doctor. How do I handle this?,0.752902448,3490.0,Support | Dr. Tiffany Lowe Clayton,0.747498,3568.0,How do I handle the stigma and weight bias?,0.745569408
Can I participate in sports with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i participate in sports with hidradenitis suppurativa?,Can I participate in sports with hidradenitis suppurativa?,Can I participate in sports with hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1819},{""id"":1816},{""id"":1950},{""id"":1912}]",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.85,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",85.0,"The transcript provides a comprehensive answer to the question about participating in sports with hidradenitis suppurativa (HS). It acknowledges the challenges of exercise due to friction in affected areas and suggests low-impact activities like walking, swimming, and yoga, which are less likely to trigger HS flares. It also offers practical advice on gradually increasing activity levels and working with a personal trainer. However, it could be improved by directly addressing 'sports' participation, as the focus is more on general exercise rather than competitive or team sports.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.4,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",40.0,"The transcript does not directly answer the question of whether one can participate in sports with hidradenitis suppurativa. Instead, it focuses on clothing choices and managing flare-ups, which are relevant considerations for someone with the condition. However, it lacks a clear statement about the feasibility or advisability of participating in sports, which is the core of the question. The information provided is useful for managing the condition during physical activity, but it does not address the question directly.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not directly address the question of whether a person with hidradenitis suppurativa can participate in sports. Instead, it focuses on the lack of awareness and common misdiagnoses associated with the condition. There is no information provided about the impact of sports on the condition or any recommendations regarding sports participation.",292.0,Sports Cardiology | Is HIIT (High Intensity Interval Training) OK for Heart Patients?,0.75365907,911.0,Ask a Doc | Lupus and Exercise,0.748614967,450.0,I Have Endometriosis,0.742987275
How do I handle changing rooms with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i handle changing rooms with hs?,How do I handle changing rooms with HS?,How do I handle changing rooms with HS?,No,,,searchable,exact-match,,,"[{""id"":1867},{""id"":1862},{""id"":1865},{""id"":1823}]",4893.0,CON2-CH3-Q10-What should be in my HS care kit-Okoye.mp4,0.75,What should be in my HS care kit?,"An HS care kit that I recommend for patients, especially if they're leaving the house, they're going to work or school, is a small plastic bag that contains your gauze, some paper tape, and maybe a sanitary napkin just in case you have a larger wound that starts to weep during the day. The plastic bag is actually pretty important because depending on where you are, you can then put your used dressing in that plastic bag, seal it, and then there won't be any odor. And then you can discreetly put that back in your bag if you don’t want to leave it in the trash can where someone else can see it. One of the things that's really important is to think about is how you are going to secure your dressing. I've heard horror stories from patients about their dressings falling off and that situation being very embarrassing. So do think about it, and carry some kind of tape to secure your dressing to your body.",75.0,"The transcript provides practical advice on managing dressings for HS, which is relevant to changing rooms. It suggests carrying a care kit with gauze, tape, and a sanitary napkin, and offers tips on discreet disposal of used dressings. However, it doesn't directly address the social or logistical aspects of changing rooms, such as privacy concerns or specific strategies for changing clothes in public spaces, which could be important for someone with HS.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.4,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",40.0,"The transcript addresses the issue of managing drainage associated with Hidradenitis Suppurativa (HS), which is relevant to the broader context of changing rooms, as drainage can affect clothing. However, it does not directly answer the question about handling the specific situation of changing rooms with HS. The response focuses on managing drainage through dressings and absorbent materials, which is useful information but does not provide specific strategies or advice for the act of changing rooms itself, such as privacy concerns, timing, or specific techniques to minimize discomfort or embarrassment. Therefore, while the information is somewhat related, it does not fully address the question.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.4,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",40.0,"The transcript provides advice on managing HS (Hidradenitis Suppurativa) by recommending clothing that helps keep the skin dry to prevent flares. However, it does not directly address the specific question about handling changing rooms with HS. The response focuses on general clothing advice rather than the social or practical aspects of changing rooms, which might include privacy concerns, skin exposure, or hygiene practices. Therefore, while the information is somewhat relevant, it does not fully answer the question posed.",3568.0,How do I handle the stigma and weight bias?,0.744095504,1589.0,Accommodations for T1D at School,0.743166,3629.0,How do I handle stigma and weight bias?,0.740085065
Should I tell my roommate about my hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i tell my roommate about my hidradenitis suppurativa?,Should I tell my roommate about my hidradenitis suppurativa?,Should I tell my roommate about my hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1943},{""id"":1937},{""id"":1927},{""id"":1929}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.85,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",85.0,"The transcript provides a comprehensive and empathetic response to the question of whether to tell a roommate about hidradenitis suppurativa (HS). It emphasizes that the decision is personal and that there is no obligation to disclose the condition. The response highlights both the potential benefits of sharing, such as lifting a burden and receiving empathy, and the risks, such as fear of judgment. It also discusses the broader impact of sharing, like educating others and finding solidarity with those who have similar experiences. However, it could be improved by addressing specific considerations related to living with a roommate, such as how HS might affect shared living spaces or daily routines, which would make the advice more directly applicable to the roommate context.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.85,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",85.0,"The transcript provides a comprehensive answer to the question by discussing the considerations involved in deciding whether to disclose hidradenitis suppurativa (HS) to others, including a roommate. It emphasizes the importance of the relationship and the potential benefits of sharing, such as gaining support and understanding. The transcript also provides examples of how sharing can positively impact relationships and offers practical advice on how to approach the conversation. However, it does not directly address the specific context of a roommate, which could have been more explicitly discussed to fully tailor the response to the question.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.6,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",60.0,"The transcript provides relevant information about hidradenitis suppurativa (HS), emphasizing that it is not contagious and cannot be spread to others, which indirectly addresses the concern about informing a roommate. However, the transcript primarily focuses on discussing HS in the context of intimate relationships rather than roommate situations. It suggests educating others about HS when relationships reach a certain level of intimacy, but does not directly answer whether one should inform a roommate specifically. The answer could be improved by directly addressing the roommate scenario and providing guidance on whether disclosure is necessary or beneficial in that context.",4632.0,Talking About Your Diagnosis,0.745507479,450.0,I Have Endometriosis,0.736082,1615.0,Bladder Cancer Awareness Month,0.730041862
How do I manage HS odor around other people?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage hs odor around other people?,How do I manage HS odor around other people?,How do I manage HS odor around other people?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1857},{""id"":1938},{""id"":1930},{""id"":1856}]",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.95,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",95.0,"The transcript provides a comprehensive answer to the question about managing HS odor around other people. It discusses various treatment options, including antibacterial washes like benzoyl peroxide and chlorhexidine, the use of diluted bleach baths, and zinc-based shampoos. It also mentions the potential use of topical antibiotics like clindamycin and suggests working with a dermatologist. Additionally, it offers practical advice on using charcoal-infused clothing to absorb odors. The response is detailed and covers multiple strategies, making it highly relevant and useful for someone seeking to manage HS odor.",4836.0,CON1-CH1-Q14-How do I deal with the odor caused by HS-Brooks.mp4,0.85,How do I deal with the odor caused by HS?,"The odor is a really, really difficult symptom to deal with. You're not alone in dealing with this. The odor is also not your fault. It's not caused by hygiene. It's just a part of the HS process. We have identified some body washes that work really, really well, like Clean Body Wash (CLN) works amazingly well for HS odor. It's purchased over the counter. There are a couple of other things that you can do that other patients in the community use to help with the odor as well. But just to reiterate, the odor is not your fault. It's not due to poor hygiene. And I would really, really encourage you to take a look at some of the options that we have that will potentially help. We've actually run a survey study and found that we had a reduction in odor with the use of the CLN body wash. So it's good to know that there are options out there that can help you with the odor because we know how uncomfortable that smell is, and you know that if you can smell it other people can, too. I have experienced so much of that in my journey and it's one of the hardest things to overcome and it makes you very, very self-conscious. So knowing that there are some things available out there that you can use to help mitigate that odor is amazing and I would highly encourage you to try some of those products and see if they help you too.",85.0,"The transcript provides a comprehensive answer to the question about managing HS odor around other people. It acknowledges the difficulty of dealing with the odor and reassures the individual that it is not due to poor hygiene. It suggests practical solutions, such as using specific body washes like CLN, which have been shown to reduce odor. The response also empathizes with the emotional impact of the odor, which is relevant to the context of being around other people. However, the transcript could be improved by offering additional specific strategies or products and addressing social or psychological strategies for managing self-consciousness in social situations.",4976.0,CON4-CH1-Q5-How do I get rid of the smell-Daveluy.mp4,0.85,How do I get rid of the smell?,"There’s so much you can do to help reduce the smell in HS because we know that can cause embarrassment and shame. You want to get intimate with someone and the last thing you want them to do is have an unpleasant odor be part of that experience. Some of the things you can do involve treating the HS. So using antibacterial washes can sometimes help reduce the smell, making sure you're working with your doctor to try to reduce the drainage and get things under control, which might involve medications or sometimes even surgery. But there are other ways you can navigate the smell even if you can't quite yet get it under control with treatments. Sometimes you can overpower the smell. Light some incense that you like when it's time to be intimate so that there's a more pleasant odor in the room. Be careful with perfumes and fragrances, but if they don't cause you skin irritation, that can be another option. And then sometimes you can even use strategic bandages or clothing to cover up some of the areas that might be triggering and causing more of the smells while you're being intimate. So an example might include if you have certain clothing that you can wear that covers the area but still allows you to expose the parts that you need to be intimate.",85.0,"The transcript provides a comprehensive answer to the question about managing HS odor around other people. It suggests practical strategies such as using antibacterial washes, working with a doctor for medical treatments, and using incense or fragrances to mask odors. It also discusses the use of strategic clothing or bandages to manage odor during intimate situations. However, the response could be improved by including more specific examples of antibacterial products or medical treatments, and by addressing general social situations beyond intimate encounters. Overall, the answer is detailed and relevant, but could be slightly more comprehensive in scope.",1304.0,How COVID Affects Your Sense of Smell,0.738796532,3568.0,How do I handle the stigma and weight bias?,0.737778187,77.0,Hyposmia,0.735346794
Can I go to parties with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i go to parties with hidradenitis suppurativa?,Can I go to parties with hidradenitis suppurativa?,Can I go to parties with Hidradenitis Suppurativa?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1927},{""id"":1860},{""id"":1885},{""id"":1855}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.6,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",60.0,"The transcript provides relevant information about Hidradenitis Suppurativa (HS) being non-contagious and not an infection, which indirectly suggests that attending parties is not restricted due to concerns of spreading the condition. However, it does not directly address the social or psychological aspects of attending parties with HS, such as managing flare-ups or dealing with potential stigma. Therefore, while it partially answers the question by alleviating concerns about contagion, it lacks a comprehensive discussion on the broader implications of attending social events with HS.",4899.0,CON2-CH3-Q2-Will makeup used to cover the sores make them worse-Daveluy.mp4,0.3,Will makeup used to cover my sores make them worse?,"Some of my patients do report that they use makeup to cover up their scars and their sores of their HS, particularly if they're going to a special event like a wedding where they want to wear a sleeveless dress. We don't have any evidence that shows makeup makes it better or worse. So, it's a little bit of a case-by-case scenario. What I usually recommend to my patients is try the makeup out ahead of time. So, if you're going to a wedding and wearing a special dress, don't let that day be the first time you try it. Maybe a couple of weeks ahead of time, test it out and see how your body reacts, see if it bothers your HS or if it doesn't bother it. And as long as it doesn't cause it to flare up and you don't notice it making it worse, then it should be perfectly safe to use it. But there's a lot of things in HS where they're unpredictable. We don't know which medications are going to work great or not really work so well. We don't know which things are going to be perfect for someone or not. Same thing with diet, with medication. So, a lot of things in HS you have to sort of figure out and get to know your HS and what's going to be good for it, and what might flare it up. So, like I said, my idea is to just prepare ahead of time.",30.0,"The transcript does not directly address the question of whether someone with Hidradenitis Suppurativa (HS) can attend parties. Instead, it focuses on the use of makeup to cover scars and sores for special events, suggesting that individuals should test makeup in advance to see if it affects their HS. While this information might be indirectly related to attending social events, it does not provide a clear answer to the question about attending parties. The transcript lacks a direct discussion on the social or physical implications of attending parties with HS, such as potential discomfort, social stigma, or the impact of environmental factors at parties on HS.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.2,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",20.0,"The transcript does not directly address the question of whether a person with Hidradenitis Suppurativa (HS) can attend parties. Instead, it provides information about the nature of HS, its microbiome, and treatment strategies focusing on inflammation rather than infection. While this information might be useful for understanding HS, it does not answer the social or lifestyle aspect of the question regarding attending parties. The transcript lacks any discussion on social activities, potential impacts of HS on such activities, or advice on managing HS in social settings.",2321.0,Health Conditions Impacted by the Microbiome,0.750000715,2327.0,When to See a Dietitian for Your Microbiome,0.734742701,719.0,"Jim Cosper 
S3 | E3",0.734607935
How do I deal with feeling different because of HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i deal with feeling different because of hs?,How do I deal with feeling different because of HS?,How do I deal with feeling different because of HS?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1841},{""id"":1940},{""id"":1972},{""id"":1970}]",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.85,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",85.0,"The transcript provides a thoughtful response to the question by addressing the emotional aspect of feeling different due to HS (Hidradenitis Suppurativa). It suggests practical solutions such as joining support groups and connecting with a care team, which can help alleviate feelings of isolation. However, it could be improved by offering more specific strategies for coping with these feelings on a personal level, such as mindfulness or therapy, to provide a more comprehensive answer.",4856.0,CON1-CH4-Q7-How do I deal with my anxiety and depression-Brooks.mp4,0.75,How do I deal with my anxiety and depression?,"If you're struggling with depression and anxiety, you're not alone. With HS, there's a higher rate of depression and anxiety that comes with this condition naturally. I just want you to know that you're not alone in dealing with this. Those are not feelings that you should hide from other people. Please find community and talk about those things because there are so many people suffering with those feelings just like you are. We created a special place called Healing Space on HS Connect, that has different kinds of therapy modalities, breathing exercises, movement therapy, art therapy, different kinds of things that you can do to help on that journey of working through the depression and anxiety. Know that there are better days coming. There's a lot of light at the end of the tunnel when it comes to HS. We're at the very, very beginning of what's to come treatment-wise, we're on a great trajectory.  But I know that that doesn't make it better right now and better today. So I would strongly encourage you to find your HS community and talk with people about those feelings so that you're not sitting on them, that you can process those better when you have conversations about the way that your HS is impacting you, and the way that it maybe impacts you showing up for other people as well. So please know you're not alone in feeling depression, anxiety. Whatever you're feeling is completely valid and I can assure you that there are many other people going through that same exact thing, looking for other people just like you to talk to.",75.0,"The transcript addresses the emotional impact of having HS (Hidradenitis Suppurativa) and provides advice on dealing with feelings of depression and anxiety, which are common among those with HS. It emphasizes the importance of community support and therapy, which are relevant to feeling different due to HS. However, it does not directly address the specific feeling of 'being different' or provide strategies specifically tailored to coping with that aspect. The focus is more on managing associated mental health issues rather than the social or identity aspects of feeling different.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.75,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",75.0,"The transcript addresses the question by focusing on the emotional and relational aspects of living with HS, particularly in the context of dating and relationships. It emphasizes the importance of vulnerability, open communication, and self-worth, which are relevant to dealing with feelings of being different due to HS. However, the response is somewhat limited to romantic relationships and does not fully explore other aspects of feeling different, such as social interactions outside of dating or personal self-acceptance. A more comprehensive answer would include strategies for dealing with feelings of difference in various social contexts and personal coping mechanisms.",4645.0,Is What I'm Feeling Normal?,0.784218252,4647.0,Managing Your Mental Health,0.767037928,4642.0,Coping With Cancer,0.761202276
Should I tell my employer about hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i tell my employer about hidradenitis suppurativa?,Should I tell my employer about hidradenitis suppurativa?,Should I tell my employer about Hidradenitis Suppurativa?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1843},{""id"":1943},{""id"":1937},{""id"":1927}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.9,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",90.0,"The transcript provides a comprehensive answer to the question about whether to inform an employer about Hidradenitis Suppurativa (HS). It discusses the potential need for work accommodations due to HS, the impact of HS on work attendance and performance, and the benefits of informing an employer to facilitate understanding and support. It also suggests practical steps, such as talking to HR and obtaining a doctor's letter, which are relevant to the decision-making process. However, it could be improved by addressing potential concerns about privacy or discrimination, which might be factors in the decision to disclose a medical condition.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.75,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",75.0,"The transcript provides a comprehensive discussion on the topic of disclosing Hidradenitis Suppurativa (HS) to an employer, emphasizing that it is a personal choice and highlighting both the potential benefits and risks of sharing this information. It addresses the emotional relief and support that can come from being open about HS, as well as the importance of educating others. However, it does not specifically address workplace-related considerations, such as legal rights, potential impacts on job performance, or accommodations, which could be relevant to the decision of whether to inform an employer. Therefore, while the transcript offers valuable insights, it lacks specific guidance related to the workplace context, which is crucial for fully answering the question.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.4,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",40.0,"The transcript provides general advice on disclosing Hidradenitis Suppurativa (HS) to others, focusing on personal relationships and the benefits of sharing with close friends and family. However, it does not specifically address the question of whether one should tell their employer about HS. The discussion lacks direct guidance on workplace disclosure, considerations for professional settings, or potential implications for employment. Therefore, while it offers some relevant insights on disclosure in general, it does not adequately answer the specific question about informing an employer.",4632.0,Talking About Your Diagnosis,0.741047561,719.0,"Jim Cosper 
S3 | E3",0.740986526,450.0,I Have Endometriosis,0.740049422
Can I get accommodations at work for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i get accommodations at work for hs?,Can I get accommodations at work for HS?,Can I get accommodations at work for HS?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1843},{""id"":1822},{""id"":1943},{""id"":1967}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.9,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",90.0,"The transcript provides a comprehensive answer to the question about obtaining work accommodations for HS (Hidradenitis Suppurativa). It explains that accommodations are possible and discusses the impact of HS on work, such as missed days and mobility issues. The speaker mentions writing letters to employers to facilitate understanding and accommodations, such as working from home during flare-ups. It also advises discussing the condition with employers or HR to ensure they understand the need for accommodations. The only minor gap is that it doesn't explicitly mention legal rights or specific laws (like the ADA) that might support such accommodations, which could be relevant for a complete answer.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.85,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",85.0,"The transcript provides a relevant and practical answer to the question about workplace accommodations for HS (Hidradenitis Suppurativa). It suggests specific accommodations such as using a pad or pillow, getting a different type of chair, or using a standing desk to help manage symptoms. It also advises discussing these needs with an employer, which is a key step in obtaining accommodations. However, the transcript could be improved by explicitly mentioning the legal rights or processes involved in requesting accommodations, such as the Americans with Disabilities Act (ADA), which would provide a more comprehensive answer.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.2,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",20.0,"The transcript does not directly address the question of whether one can get accommodations at work for HS (Hidradenitis Suppurativa). Instead, it focuses on the personal decision of disclosing one's condition to others and the emotional benefits of sharing one's experience. While it touches on the importance of talking about HS, it does not provide any information about workplace accommodations, legal rights, or processes involved in obtaining such accommodations. Therefore, it does not effectively answer the question posed.",1589.0,Accommodations for T1D at School,0.795088291,4647.0,Managing Your Mental Health,0.730667353,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.730360746
What workplace accommodations can I request for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,what workplace accommodations can i request for hidradenitis suppurativa?,What workplace accommodations can I request for hidradenitis suppurativa?,What workplace accommodations can I request for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1843},{""id"":1816},{""id"":1873}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.85,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",85.0,"The transcript provides a good answer to the question by suggesting specific workplace accommodations for individuals with Hidradenitis Suppurativa (HS). It mentions using a pad or pillow for hard chairs, obtaining a different type of chair, using a standing desk, or standing more at work as potential accommodations. Additionally, it advises discussing these needs with an employer to make necessary adjustments. However, the response could be improved by mentioning other possible accommodations, such as flexible work hours or remote work options, which might also benefit individuals with HS.",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.6,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",60.0,"The transcript provides a general discussion about the need for workplace accommodations for individuals with Hidradenitis Suppurativa (HS) and the importance of communicating with employers. It mentions the possibility of working from home during flare-ups and the role of HR in facilitating accommodations. However, it lacks specific examples of accommodations that can be requested, such as flexible work hours, modified duties, or ergonomic adjustments. The response is helpful in understanding the process and importance of communication but does not directly list specific accommodations that can be requested, which would have provided a more complete answer to the question.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.3,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",30.0,"The transcript does not directly address the question about workplace accommodations for Hidradenitis Suppurativa. Instead, it focuses on clothing choices and personal management strategies for the condition, which are more related to personal comfort and symptom management rather than workplace accommodations. Workplace accommodations might include flexible work hours, the ability to work from home, or ergonomic adjustments, none of which are mentioned in the transcript. Therefore, the response is not well-aligned with the question.",1589.0,Accommodations for T1D at School,0.768978357,4722.0,Mental Health Provider,0.741366565,4647.0,Managing Your Mental Health,0.74133575
How do I ask for a better chair for my HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i ask for a better chair for my hs?,How do I ask for a better chair for my HS?,How do I ask for a better chair for my HS?,No,,,unknown,,"living with,caregiving",,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,
Can I take breaks at work for HS pain?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i take breaks at work for hs pain?,Can I take breaks at work for HS pain?,Can I take breaks at work for HS pain?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1822},{""id"":1874},{""id"":1926}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.85,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",85.0,"The transcript addresses the question by discussing the need for work accommodations for individuals with HS (Hidradenitis Suppurativa) and the importance of communicating with employers about the condition. It suggests that taking breaks or working from home during flare-ups can be part of these accommodations. However, it does not explicitly state that taking breaks specifically for HS pain is permissible, which slightly reduces the score.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.7,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",70.0,"The transcript provides relevant information about managing HS pain at work, particularly related to sitting, which can be a trigger for flare-ups. It suggests practical solutions like using a cushion, getting a different chair, or using a standing desk. However, it does not directly address the specific question of whether one can take breaks at work for HS pain. The advice to talk to an employer about making adjustments could imply taking breaks, but this is not explicitly stated. Therefore, while the transcript is helpful, it does not fully answer the question about taking breaks.",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.3,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",30.0,"The transcript discusses strategies for controlling pain related to HS, focusing on medication and inflammation control. However, it does not directly address the question of whether breaks at work can be taken for HS pain. The response lacks specific information about workplace accommodations or the feasibility of taking breaks for pain management.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.767140687,4647.0,Managing Your Mental Health,0.749266803,919.0,Can a Herniated Disc Heal on its Own?,0.741263568
Is hidradenitis suppurativa covered by ADA?,searchable,Patient_Forums,Hidradenitis Suppurativa,is hidradenitis suppurativa covered by ada?,Is hidradenitis suppurativa covered by ADA?,Is Hidradenitis Suppurativa covered by ADA?,No,,,searchable,no-match,,,"[{""id"":1950},{""id"":1888},{""id"":1890},{""id"":1855}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address whether Hidradenitis Suppurativa is covered by the ADA (Americans with Disabilities Act). Instead, it discusses the lack of awareness and common misdiagnosis of the condition. There is no mention of legal coverage or disability rights, which is the focus of the question.",4930.0,CON3-CH1-Q4-What are the best oral antibiotics to treat HS-Daveluy.mp4,0.1,What are the best oral antibiotics to treat HS?,"I'm glad you asked because there's often a misconception that HS is an infection and it's not. And so you can't just reach for any antibiotic. Some have studies that show that they work, others don't. And you may be getting some that work and some that don't based on if your doctor knows that they're treating HS. The ones that have the most studies to support their use are doxycycline and minocycline, which are cousins of each other. They're in the same family of antibiotics, and they both have studies that show they can help to stop new spots from coming, get rid of the nodules, which are the sort of red swollen lumps, and the abscesses, which are the fluid-filled pockets. They don't tend to work as well for the tunnels, but that's true of a lot of treatments. Another antibiotic that's been very well studied is called clindamycin. And when we use antibiotics on HS, it's a little different than infections. We often use them for weeks at a time because we actually want to control the disease activity and calm the inflammation down versus when you're treating an infection, you just do a short course just enough to kill the bacteria. Another antibiotic that might be used for your HS is actually an IV medication that has to be given through an IV in your vein. It's called ertapenem. It works incredibly well for HS, but only while you're on it, so it's sort of a temporary treatment while we figure out what else we're going to do to get your HS under control. There are a few other antibiotics that your doctor may talk to you about, like metronidazole, moxifloxacin, and rifampin. And so it's a good thing to have a conversation with your doctor about which antibiotics have evidence for HS, and have proven benefits, and then figure out based on your personal health and your history which one's the best for you.",10.0,"The transcript does not address the question about whether Hidradenitis Suppurativa (HS) is covered by the Americans with Disabilities Act (ADA). Instead, it focuses on the misconception of HS as an infection and discusses various antibiotics used in its treatment. There is no mention of ADA coverage or any related legal or disability considerations.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.05,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",5.0,"The transcript does not address the question about whether Hidradenitis Suppurativa (HS) is covered by the Americans with Disabilities Act (ADA). Instead, it discusses treatment options for HS, such as topical and oral antibiotics. There is no mention of legal or disability coverage aspects related to the ADA in the transcript.",464.0,"#StopWeightBias 
Meet Amber",0.754855931,1113.0,Alopecia Areata | E9,0.751079142,1589.0,Accommodations for T1D at School,0.745578468
What are my rights at work with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what are my rights at work with hs?,What are my rights at work with HS?,What are my rights at work with HS?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1822},{""id"":1943},{""id"":1978}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.75,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",75.0,"The transcript provides a general overview of how HS can affect work and suggests practical steps for addressing work-related issues, such as discussing accommodations with employers and HR. However, it lacks specific details about legal rights or protections, such as those under the ADA or other employment laws, which would be crucial for a comprehensive answer to the question about rights at work with HS.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.3,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",30.0,"The transcript provides some practical advice for managing HS symptoms at work, such as using a cushion or standing desk, and suggests discussing accommodations with an employer. However, it does not directly address the specific legal rights of an employee with HS, such as those related to disability accommodations under laws like the Americans with Disabilities Act (ADA). Therefore, it only partially answers the question about rights at work.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.2,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",20.0,"The transcript does not directly address the question about workplace rights for someone with HS (Hidradenitis Suppurativa). Instead, it focuses on the personal decision of whether to disclose the condition to others and the emotional benefits of sharing one's experience. It lacks specific information about legal rights, accommodations, or protections that might be available to an employee with HS. Therefore, it does not adequately answer the question about workplace rights.",1589.0,Accommodations for T1D at School,0.742873788,4722.0,Mental Health Provider,0.740040779,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.737478852
Can I work from home because of hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i work from home because of hidradenitis suppurativa?,Can I work from home because of hidradenitis suppurativa?,Can I work from home because of hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1822},{""id"":1859},{""id"":1950}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.9,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",90.0,"The transcript provides a comprehensive answer to the question about working from home due to hidradenitis suppurativa (HS). It acknowledges the impact of HS on work, such as missing days due to flare-ups and mobility issues, and suggests practical steps like discussing accommodations with employers and HR. It also mentions the possibility of working from home during flare-ups, supported by a letter from a healthcare provider. The response is thorough and addresses both the need for accommodations and the process to obtain them, making it highly relevant to the question.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.4,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",40.0,"The transcript provides general advice on managing hidradenitis suppurativa (HS) symptoms at work, particularly related to sitting, but it does not directly address the question of whether one can work from home due to HS. It suggests discussing adjustments with an employer, which could imply the possibility of working from home, but this is not explicitly stated. The response lacks a direct answer to the feasibility or appropriateness of working from home specifically due to HS.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.2,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",20.0,"The transcript does not directly address the question of whether one can work from home due to hidradenitis suppurativa (HS). Instead, it focuses on the treatment options for HS, such as surgery and medication, and the importance of discussing these with a doctor. It also touches on public awareness and the non-contagious nature of the condition. However, it does not provide any information or guidance on the feasibility or advisability of working from home due to HS, which is the core of the question.",4533.0,What Will My Treatment Be Like?,0.745504439,2321.0,Health Conditions Impacted by the Microbiome,0.741542578,719.0,"Jim Cosper 
S3 | E3",0.73958075
How do I manage HS pain during the work day?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage hs pain during the work day?,How do I manage HS pain during the work day?,How do I manage HS pain during the workday?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1874},{""id"":1926},{""id"":1843}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.85,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",85.0,"The transcript provides practical advice on managing HS pain during the workday, specifically focusing on the issue of sitting, which can be a common trigger for those with HS on the buttocks. It suggests using a pad or pillow, considering a different type of chair, or using a standing desk. It also advises discussing these needs with an employer to make necessary adjustments. However, the response could be improved by including additional pain management strategies, such as medication, topical treatments, or other ergonomic adjustments, to provide a more comprehensive answer.",4908.0,CON2-CH4-Q7-What is the likelihood of long-term chronic pain-Garg.mp4,0.7,What is the likelihood of long-term chronic pain?,"You're likely to have pain on some level on an ongoing basis, and then you're going to have these episodes of flares where your pain all of a sudden abruptly increases. The real strategy around controlling pain is actually controlling the inflammation. So we need to figure out the right approach with the right type of medication that's directed for your HS to adequately control the pain symptoms. Yes, there are going to be times when we need to pull in other types of strategies, including some of the home remedies or the over-the-counter medications, and sometimes when needed in specific circumstances like after surgery, even a narcotic prescription for a very brief period of time. But otherwise addressing the pain really involves addressing the inflammation. And so it's about finding the right HS-directed medication that can adequately control the inflammation and ultimately then control your pain.",70.0,"The transcript provides a general approach to managing HS pain by focusing on controlling inflammation, which is a key aspect of managing pain. It suggests using HS-directed medication and mentions the use of home remedies, over-the-counter medications, and, in specific cases, narcotics. However, it lacks specific strategies or tips tailored to managing pain specifically during the workday, such as ergonomic adjustments, breaks, or specific types of medications that might be more suitable for daytime use. Therefore, while it addresses pain management broadly, it doesn't fully answer the question about managing pain specifically during the workday.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.4,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",40.0,"The transcript provides general advice on managing stress and inflammation related to HS, which can indirectly help with pain management. However, it does not directly address specific strategies or methods for managing HS pain during the workday, such as medication, topical treatments, or ergonomic adjustments. The response lacks direct and practical solutions for pain management in a work setting.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.795738041,4647.0,Managing Your Mental Health,0.773245275,3647.0,Pain Management,0.764490664
Can I take sick leave for HS flares?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i take sick leave for hs flares?,Can I take sick leave for HS flares?,Can I take sick leave for HS flares?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1838},{""id"":1877},{""id"":1822}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.85,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",85.0,"The transcript provides a comprehensive answer to the question about taking sick leave for HS flares. It explains that HS can impact work ability, leading to missed days due to painful flare-ups or mobility issues. The speaker discusses the importance of communicating with employers and HR to arrange work accommodations, such as working from home during flare-ups. While the transcript does not explicitly state 'yes, you can take sick leave,' it strongly implies that sick leave is a reasonable and necessary option for managing HS flares, supported by the need for employer understanding and accommodation. The answer is thorough but could be more direct in confirming the ability to take sick leave.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript discusses the relationship between stress and HS (Hidradenitis Suppurativa) flares, emphasizing the importance of managing both to reduce flare frequency. However, it does not address the specific question of whether one can take sick leave for HS flares. The response lacks any mention of workplace policies, sick leave eligibility, or advice on how to approach sick leave for medical conditions like HS.",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.2,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",20.0,"The transcript does not directly address the question of whether one can take sick leave for HS flares. It provides information about the nature of HS flares and potential treatments, but it does not discuss workplace policies or the appropriateness of taking sick leave for such medical issues. The response lacks any mention of employment, sick leave policies, or advice on managing work during flares, which are crucial to answering the question.",1020.0,Herniated Disc | Treating Flare-ups,0.759213626,1600.0,Managing Sick Days for Children with T1D,0.757808089,719.0,"Jim Cosper 
S3 | E3",0.741306484
How do I explain absences from work due to hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i explain absences from work due to hidradenitis suppurativa?,How do I explain absences from work due to hidradenitis suppurativa?,How do I explain absences from work due to Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1859},{""id"":1937},{""id"":1950}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.85,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",85.0,"The transcript provides a comprehensive answer to the question by discussing the impact of Hidradenitis Suppurativa (HS) on work attendance and performance. It suggests practical steps such as obtaining a doctor's letter to explain the condition to employers, seeking work accommodations, and communicating with HR. However, it could be improved by offering more specific language or examples for explaining absences directly to an employer, which would make the guidance more actionable.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.6,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",60.0,"The transcript partially addresses the question by providing a way to explain Hidradenitis Suppurativa (HS) to others, emphasizing that it is not contagious and describing it as an inflammatory skin condition. However, it does not directly address how to explain absences from work specifically. The focus is more on general public awareness and treatment options rather than providing a strategy for discussing work absences due to HS.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.4,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",40.0,"The transcript provides general advice on how to disclose Hidradenitis Suppurativa (HS) to others, focusing on personal relationships and the benefits of sharing with friends and family. However, it does not specifically address how to explain absences from work due to HS. The advice is more applicable to personal relationships rather than professional ones, and it lacks guidance on how to communicate with employers or colleagues about work absences. Therefore, while it offers some relevant insights into discussing HS, it does not directly answer the question about explaining work absences.",719.0,"Jim Cosper 
S3 | E3",0.755313635,450.0,I Have Endometriosis,0.754471123,1101.0,HSS Minute | Whole Lupus Patient,0.75314635
What if I miss too much work because of HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what if i miss too much work because of hs?,What if I miss too much work because of HS?,What if I miss too much work because of HS?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1843},{""id"":1822},{""id"":1943},{""id"":1838}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.85,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",85.0,"The transcript provides a comprehensive answer to the question about missing work due to HS (Hidradenitis Suppurativa). It acknowledges the commonality of the issue, explains the impact of HS on work attendance and performance, and offers practical solutions such as discussing accommodations with employers and HR. It also emphasizes the importance of communication to prevent misunderstandings about work performance. However, it could be improved by addressing potential legal protections or rights under employment law, which are not mentioned.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.3,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",30.0,"The transcript provides some advice on managing HS symptoms at work, such as using a cushion or standing desk, which could indirectly help reduce absenteeism. However, it does not directly address the question of what to do if someone misses too much work due to HS. The response lacks guidance on handling employment issues related to excessive absences, such as discussing accommodations with an employer, understanding legal rights, or exploring medical leave options. Therefore, the transcript only partially addresses the question.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.3,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",30.0,"The transcript primarily addresses the emotional and social aspects of disclosing one's condition of Hidradenitis Suppurativa (HS) to others, focusing on the personal choice and potential benefits of sharing one's experience. However, it does not directly address the practical implications of missing work due to HS, such as how to manage employment issues, potential accommodations, or legal rights. The response lacks specific advice or strategies for dealing with the consequences of missing work, which is the core concern of the question.",4533.0,What Will My Treatment Be Like?,0.730756223,1820.0,"House Calls | Healthy Brain, Fuller Life",0.729455531,4647.0,Managing Your Mental Health,0.72527492
Can hidradenitis suppurativa affect my career?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hidradenitis suppurativa affect my career?,Can hidradenitis suppurativa affect my career?,Can Hidradenitis Suppurativa affect my career?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1822},{""id"":1837},{""id"":1950}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.95,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",95.0,"The transcript provides a comprehensive answer to the question about how Hidradenitis Suppurativa (HS) can affect one's career. It discusses the impact of HS on work attendance and performance, such as missing work due to flare-ups and mobility issues. It also offers practical advice on communicating with employers and HR departments to seek accommodations, which directly addresses potential career impacts. The only minor aspect not covered is the long-term career implications, but overall, the response is highly relevant and informative.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.85,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",85.0,"The transcript addresses the question by discussing how Hidradenitis Suppurativa (HS) can impact one's ability to work, particularly if the condition involves the buttocks and is triggered by sitting. It provides practical solutions such as using a cushion, getting a different chair, or using a standing desk, and emphasizes the importance of communicating with an employer to make necessary adjustments. This directly relates to how HS can affect a career by potentially requiring workplace accommodations. However, the transcript could be improved by discussing broader career impacts, such as potential absences due to flare-ups or the psychological impact of the condition, which would provide a more comprehensive answer.",4852.0,CON1-CH3-Q5-What role does stress play in HS-Garg-.mp4,0.4,What role does stress play in HS?,"Life is stressful today in general, and certainly having a chronic inflammatory condition like HS adds to that stress. It's not really clear what kind of role stress plays in skin disease in general, but certainly I hear from a lot of patients that stress at least maybe makes their condition worse. And listen, I think we've appreciated over time that there is a connection between the mind, the body, and the soul. So it never surprises me when a patient talks to me about how stress really influences their activity of HS. What I would say is that it's important to manage stress, find ways to cope with stress, for life in general, and especially when you have a chronic condition like HS. I think managing your stress can potentially influence how you perceive the disease, how you cope with the disease, and maybe even how active the condition can get. For example, how often you might flare. So I encourage all of my patients, anything you can do to cope with stress better, to find ways to be more resilient when you have a chronic condition like HS, can only help.",40.0,"The transcript discusses the impact of stress on Hidradenitis Suppurativa (HS) and suggests that managing stress can help cope with the disease. However, it does not directly address how HS might affect one's career. While stress management is relevant, the transcript lacks specific information on career implications such as work performance, job choice, or workplace accommodations related to HS.",4533.0,What Will My Treatment Be Like?,0.75102067,2321.0,Health Conditions Impacted by the Microbiome,0.750499249,719.0,"Jim Cosper 
S3 | E3",0.748588681
Should I avoid certain jobs if I have HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i avoid certain jobs if i have hs?,Should I avoid certain jobs if I have HS?,Should I avoid certain jobs if I have HS?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1822},{""id"":1823},{""id"":1819}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.7,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",70.0,"The transcript provides a partial answer to the question by discussing the impact of HS (Hidradenitis Suppurativa) on work and the importance of communicating with employers for accommodations. However, it does not directly address whether certain jobs should be avoided due to HS. The focus is more on managing work with HS rather than identifying specific job types that might be unsuitable. Therefore, while it offers useful advice on handling work situations, it doesn't fully answer the question about avoiding certain jobs.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.7,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",70.0,"The transcript provides relevant information about managing HS (Hidradenitis Suppurativa) in the workplace, particularly for those whose condition is triggered by sitting. It suggests practical solutions like using a cushion, getting a different chair, or using a standing desk. However, it does not directly address whether certain jobs should be avoided entirely due to HS. The focus is more on managing the condition within a job rather than advising on job selection, which is the core of the original question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.4,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",40.0,"The transcript partially addresses the question by discussing sweating as a trigger for HS and suggesting ways to manage it, which could indirectly relate to job choices. However, it does not directly answer whether certain jobs should be avoided due to HS. The focus is more on managing symptoms rather than providing guidance on job selection.",1112.0,Vaccine Hesitancy | E8,0.72766,4647.0,Managing Your Mental Health,0.726017535,4533.0,What Will My Treatment Be Like?,0.724604666
Can I have a physical job with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i have a physical job with hidradenitis suppurativa?,Can I have a physical job with hidradenitis suppurativa?,Can I have a physical job with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1819},{""id"":1950},{""id"":1951}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.6,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",60.0,"The transcript partially addresses the question by discussing how to manage Hidradenitis Suppurativa (HS) in a work environment, particularly focusing on sitting and potential adjustments like using a pad or standing desk. However, it does not directly address whether a person with HS can have a physical job, which may involve more strenuous activities than sitting or standing. The response lacks information on how HS might affect physical labor, potential limitations, or considerations for more physically demanding roles.",4826.0,CON1-CH1-Q9-Can I exercise with HS-Daveluy.mp4,0.4,Can I exercise with HS?,"A lot of my patients ask me about exercise, and it makes sense because exercise can be a trigger for a lot of people's HS. It's in areas that get a lot of friction when we're trying to work out like our armpits in between our thighs, and that friction can be a trigger for people. So exercise is a tough space to navigate with HS. The hard part is exercise is great for you, it's good for your health, it helps you maintain a healthy body weight, because we know increasing body weight is associated with more severe HS and more flares. But you kind of get stuck in this cycle of if exercise flares your HS, then you can't exercise, then you gain weight, which then flares your HS, and you're sort of stuck in this loop. So I recommend patients look for ways to exercise that are low impact. Just going for a walk can be helpful, and a lot of patients now have watches or apps or ways to track their steps and make sure they're hitting their targets for the day. You can make little changes in your daily life like taking the stairs when you can at work and if you haven't taken the stairs in a while, you can start by taking the stairs down and then eventually once you build up some more stamina and strength, you can start taking the stairs up as well, which is even tougher and more exercise. Other low-impact activities that I recommend are swimming, because there's not friction when you're swimming, so it can be a great activity. Or yoga because yoga does not have high, fast movements and friction. Just be careful with hot yoga because heat and sweating is often a trigger for HS. So I recommend not doing the hot yoga but doing other forms of yoga and exercise. And try to find something that you enjoy for exercise. That always makes it easier. I'll say I don't like running, but if I put on a good song and I have my playlist rocking, I can run a lot further than if not. And take it easy with exercise. Like I said, start with lower impact things and work your way up. It might even be helpful to work with a personal trainer and to share with them about your HS, what you can and can't do, what may cause flares or triggers, and they may be able to help you with a modified routine for exercise.",40.0,"The transcript primarily discusses exercise and its impact on Hidradenitis Suppurativa (HS), focusing on how exercise can trigger HS flares due to friction and suggesting low-impact exercises. However, the original question is about having a physical job with HS, which is not directly addressed. While the transcript provides relevant information about managing physical activity with HS, it does not specifically answer whether one can have a physical job with the condition. The advice on low-impact activities could be indirectly applicable, but the transcript lacks a direct response to the question about employment.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,The transcript does not directly address the question about whether a person can have a physical job with Hidradenitis Suppurativa. It discusses the lack of awareness and common misdiagnosis of the condition but does not provide any information related to employment or physical activity considerations for individuals with HS.,719.0,"Jim Cosper 
S3 | E3",0.75218457,3494.0,Inflammation | Dr. Jim Januzzi,0.749230862,4533.0,What Will My Treatment Be Like?,0.748114467
How do I maintain my career goals with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i maintain my career goals with hs?,How do I maintain my career goals with HS?,How do I maintain my career goals with HS?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1943},{""id"":1841},{""id"":1967}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.7,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",70.0,"The transcript addresses the question by discussing the impact of HS (Hidradenitis Suppurativa) on work and career goals, emphasizing the importance of communication with employers and HR for accommodations. It provides practical advice on managing work-related challenges due to HS, such as working from home during flare-ups and informing employers to prevent misunderstandings. However, it doesn't directly address broader career goals or strategies beyond immediate work accommodations, which limits its comprehensiveness in fully answering the question about maintaining career goals with HS.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.4,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",40.0,"The transcript primarily focuses on the emotional and social aspects of living with HS, particularly the decision to disclose the condition to others. While it touches on the potential benefits of sharing one's experience, such as receiving empathy and support, it does not directly address how to maintain career goals while managing HS. The advice given is more about personal disclosure and its impact rather than specific strategies for career management. Therefore, the response only indirectly relates to the question about maintaining career goals.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.3,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",30.0,"The transcript provides general advice on coping with HS, such as connecting with support groups and having a trusted care team, which can indirectly support career goals by reducing isolation and improving mental health. However, it does not directly address how to maintain career goals specifically, such as strategies for managing work-life balance, accommodations at work, or career planning while dealing with HS.",4647.0,Managing Your Mental Health,0.757163525,4372.0,Tips For Navigating Your Cancer Care,0.751318753,2310.0,Heart Health | Exercise Guidelines,0.745861769
Can I succeed professionally with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i succeed professionally with hidradenitis suppurativa?,Can I succeed professionally with hidradenitis suppurativa?,Can I succeed professionally with hidradenitis suppurativa?,No,,,searchable,no-match,"condition management,living with",,"[{""id"":1826},{""id"":1814},{""id"":1950},{""id"":1912}]",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.2,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",20.0,"The transcript does not directly address the question of professional success with hidradenitis suppurativa. It focuses on the importance of seeing a specialist for managing the condition, which is relevant to treatment but does not discuss how the condition might impact professional success or provide any guidance or encouragement related to career achievements despite having HS.",4824.0,CON1-CH1-Q4-Can HS go into remission-Garg.mp4,0.2,Can HS go into remission?,"We come across patients who have had the disease for a number of years with a fair amount of activity and then over time it just becomes less and less active to the point where some people just have some residual scarring but no active boils or even tunnels. And so yes, we do believe that this condition can go into remission - how and when it happens, we're just not sure yet.",20.0,"The transcript discusses the potential for hidradenitis suppurativa to go into remission, which is somewhat related to the question of professional success. However, it does not directly address the ability to succeed professionally while managing the condition. The answer lacks information on how the condition might impact professional life, coping strategies, or examples of individuals who have succeeded professionally despite having hidradenitis suppurativa.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question of whether one can succeed professionally with hidradenitis suppurativa. Instead, it focuses on the lack of awareness and common misdiagnosis of the condition. There is no discussion of professional success or how the condition might impact one's career.",3490.0,Support | Dr. Tiffany Lowe Clayton,0.753791034,3583.0,Am I good candidate for weight loss surgery?,0.752627373,450.0,I Have Endometriosis,0.752314746
How do I handle job interviews with visible HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i handle job interviews with visible hs?,How do I handle job interviews with visible HS?,How do I handle job interviews with visible HS?,No,,,searchable,exact-match,,,"[{""id"":1943},{""id"":1843},{""id"":1822},{""id"":1974}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.6,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",60.0,"The transcript provides a philosophical and emotional perspective on whether to disclose HS during job interviews, emphasizing personal choice and the potential benefits of sharing one's experience. However, it lacks practical advice specific to handling job interviews, such as strategies for managing visible symptoms, addressing potential concerns from employers, or preparing responses to questions about HS. While it touches on the emotional aspects of disclosure, it does not directly address the logistical or strategic elements of job interviews with visible HS.",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.4,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",40.0,"The transcript primarily addresses how to handle work accommodations and communication with employers regarding HS, rather than specifically focusing on job interviews. While it provides useful information on managing HS in a work environment, it does not directly answer the question about handling job interviews with visible HS. The advice given is more applicable to existing employment situations rather than the interview process itself.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.2,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",20.0,"The transcript primarily discusses managing HS symptoms at work, focusing on sitting and potential accommodations like using a pad or standing desk. However, it does not address job interviews specifically, which is the focus of the question. The advice given is more applicable to ongoing work situations rather than the unique context of a job interview where first impressions and visibility of HS might be more critical.",3568.0,How do I handle the stigma and weight bias?,0.757005572,3629.0,How do I handle stigma and weight bias?,0.755215704,4647.0,Managing Your Mental Health,0.746645033
Should I disclose hidradenitis suppurativa in a job interview?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i disclose hidradenitis suppurativa in a job interview?,Should I disclose hidradenitis suppurativa in a job interview?,Should I disclose hidradenitis suppurativa in a job interview?,No,,,searchable,exact-match,,,"[{""id"":1943},{""id"":1843},{""id"":1937},{""id"":1950}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.7,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",70.0,"The transcript provides a thoughtful discussion on the topic of disclosing hidradenitis suppurativa (HS) during a job interview, emphasizing personal choice and the potential benefits and risks of disclosure. It highlights the emotional relief and potential support that can come from sharing one's condition, as well as the importance of educating others. However, it does not directly address the specific context of a job interview, such as legal considerations, potential impact on employment, or professional advice on disclosure in a workplace setting. Therefore, while it offers valuable insights, it lacks specific guidance related to job interviews, which is crucial for fully answering the question.",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.6,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",60.0,"The transcript provides a partial answer to the question by discussing the potential benefits of disclosing hidradenitis suppurativa (HS) to an employer, particularly in the context of needing work accommodations. It highlights the importance of communication with employers and HR departments to ensure understanding and support for managing the condition at work. However, it does not directly address whether disclosure should occur during a job interview specifically, which is the focus of the question. The advice is more applicable to current employment situations rather than the interview process, where considerations might differ.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.3,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",30.0,"The transcript does not directly address the question of whether one should disclose hidradenitis suppurativa (HS) in a job interview. Instead, it focuses on the general considerations of disclosing HS to friends and family, emphasizing the importance of understanding the relationship and the potential impact of the condition on that relationship. While it provides useful insights into the broader topic of disclosure, it lacks specific guidance or considerations relevant to a job interview context, such as legal implications, potential discrimination, or how it might affect job performance or accommodations.",564.0,When to Consider Surgery,0.74155426,4632.0,Talking About Your Diagnosis,0.740819693,586.0,Surgical Approaches,0.738586724
Can I travel for work with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i travel for work with hs?,Can I travel for work with HS?,Can I travel for work with HS?,No,,,searchable,exact-match,,,"[{""id"":1843},{""id"":1822},{""id"":1813},{""id"":1943}]",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.6,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",60.0,"The transcript addresses the challenges of working with HS (Hidradenitis Suppurativa) and the importance of communicating with employers about the condition. It discusses the potential need for work accommodations, such as working from home during flare-ups, and the importance of informing employers to avoid misunderstandings. However, it does not directly answer the question about traveling for work with HS. The response could be improved by specifically addressing travel considerations, such as managing flare-ups while traveling, potential impacts on mobility, and any necessary preparations or accommodations for travel.",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.4,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",40.0,"The transcript provides some useful information about managing HS (Hidradenitis Suppurativa) in a work environment, particularly regarding sitting and potential adjustments like using a cushion or standing desk. However, it does not directly address the question of whether one can travel for work with HS. The focus is on managing HS symptoms at a stationary work environment rather than the challenges or considerations specific to traveling for work. Therefore, while the information is somewhat relevant, it does not fully answer the question posed.",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.2,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",20.0,"The transcript does not directly address the question of whether one can travel for work with HS (Hidradenitis Suppurativa). Instead, it focuses on the benefits of support groups for individuals with HS, mentioning how these groups can provide advice on traveling, such as packing for a flight. However, it does not provide a clear answer or guidance on the feasibility or considerations of traveling for work specifically with HS. The response lacks direct relevance to the question asked.",348.0,Strategies for Traveling When You Have Diabetes,0.725902,1589.0,Accommodations for T1D at School,0.724255562,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.721664488
How do I manage business travel with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage business travel with hidradenitis suppurativa?,How do I manage business travel with hidradenitis suppurativa?,How do I manage business travel with Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1941},{""id"":1862},{""id"":1857},{""id"":1859}]",4867.0,CON1-CH5-Q3-What should I take with me to work-Brooks-V.mp4,0.75,What should I take with me when I go out or travel?,"So many people ask what they should bring in a flare care kit is what we've called it. As we know, HS drainage happens at the most inopportune times. So it's great to have things on hand that you can use to manage that, whenever that occurs. So a lot of people take a second pair of clothing with them or just leave it in the trunk of their car in case they have drainage that happens so they don't have to go home. That's happened to me at work multiple times. I had to make the decision as to whether I wanted to let my arms show by taking off my cardigan, because you know most people with HS won't show their armpits, and I have owned more cardigans than any human being should ever own. So when I was draining in my groin I was like do I take off my cardigan and wrap it around my waist and let my arms potentially show? So it's always good to have an extra pair of clothes in your vehicle or wherever you're going to be. The other thing that we would highly recommend packing, or that I carry in my flare care kit is I always have gauze, some tape that's already cut, I also have Vaseline in there, I have a pair of gloves, rubber gloves, because it's also, you know, if you have to change bandaging, can on your way out of the bathroom stall, for instance, you could just tuck all your garbage in your glove. And it's nice to have that sterilization when you're in a restroom stall. And Lidocaine if I have it,  if I'm dealing with a lot of pain. I have extra bandages in there. Anything that I need that I can go and take care of something myself, it makes me feel empowered because I'm not leaving everything to chance. I have to carry a bigger bag because of it, which I love purses, so it's okay to have to shop for a new purse to fit all your flare care. But it's definitely feels good to know that you're ready to handle any situation because there is so much uncertainty with when and what is going on, and when something may drain that it's a really nice thing to feel self-assured that you've got everything you need to take care of any situation.",75.0,"The transcript provides practical advice on managing Hidradenitis Suppurativa (HS) during travel by suggesting the preparation of a 'flare care kit'. It includes specific items to pack, such as extra clothing, gauze, tape, Vaseline, gloves, and Lidocaine, which are useful for managing unexpected drainage and pain. This advice is relevant to business travel as it addresses the need to be prepared for HS flares while away from home. However, the transcript does not specifically address business travel logistics, such as managing HS during meetings, flights, or long travel days, which would have made the response more comprehensive.",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.4,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",40.0,"The transcript partially addresses the question by discussing how to manage drainage associated with Hidradenitis Suppurativa (HS), which is relevant to managing the condition during travel. However, it does not specifically address the broader aspects of managing business travel with HS, such as planning for travel, managing flare-ups, or ensuring access to medical care while traveling. The response is focused on one aspect of HS management, which is important but not comprehensive in the context of business travel.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.3,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",30.0,"The transcript primarily focuses on managing the odor associated with Hidradenitis Suppurativa (HS) through various antibacterial washes and topical treatments. However, it does not address the specific challenges of managing business travel with HS, such as how to handle flare-ups while traveling, packing necessary medical supplies, or maintaining hygiene on the go. The response lacks practical advice on travel logistics and considerations specific to business travel for someone with HS.",348.0,Strategies for Traveling When You Have Diabetes,0.763248742,2321.0,Health Conditions Impacted by the Microbiome,0.743806183,1082.0,How-To | Flying with Diabetes,0.74376893
Can sitting in meetings all day make HS worse?,searchable,Patient_Forums,Hidradenitis Suppurativa,can sitting in meetings all day make hs worse?,Can sitting in meetings all day make HS worse?,Can sitting in meetings all day make HS worse?,No,,,searchable,exact-match,,,"[{""id"":1822},{""id"":1838},{""id"":1823},{""id"":1837}]",4825.0,CON1-CH1-Q12-Will sitting at work make my HS worse-Daveluy.mp4,0.9,Will sitting at work make my HS worse?,"For people who have HS that involves the buttocks, sitting can be a trigger, especially sitting on hard surfaces. So for some people, it's enough to make sure that they're sitting on a pad or a pillow if they have a hard chair at work and that can help to reduce flareups. For other people, they may need a different type of chair or they may need to spend more time at work standing. So that might mean getting a standing desk if you have a desk job, or just standing at work if that's an option. So if you do notice that sitting is one of your triggers, it can be important to talk to your employer about that so that they can help you make adjustments to your work that are going to help you to be able to continue to work and thrive at work while not triggering your HS.",90.0,"The transcript effectively addresses the question by explaining that sitting, particularly on hard surfaces, can indeed exacerbate HS (Hidradenitis Suppurativa) for individuals with involvement in the buttocks area. It provides practical solutions such as using a cushion, changing chairs, or using a standing desk to mitigate the issue. The response is comprehensive and directly related to the question, but it could be slightly improved by explicitly stating that prolonged sitting in meetings could worsen HS for those affected, rather than implying it through the discussion of sitting in general.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.6,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",60.0,"The transcript partially addresses the question by discussing the relationship between stress and HS (Hidradenitis Suppurativa), suggesting that stress can exacerbate HS. However, it does not directly address whether sitting in meetings all day specifically can make HS worse. The connection between prolonged sitting in meetings and stress is implied but not explicitly stated. Therefore, while the transcript provides relevant information about stress and HS, it does not fully answer the specific question about meetings.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.4,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",40.0,"The transcript partially addresses the question by discussing sweating as a potential trigger for HS, which could be relevant to sitting in meetings if the environment is hot and causes sweating. However, it does not directly address the act of sitting in meetings itself or other factors related to meetings that might affect HS, such as stress or prolonged sitting. The response focuses more on managing sweating rather than the specific context of meetings, making the connection to the question indirect and incomplete.",4647.0,Managing Your Mental Health,0.753607869,1820.0,"House Calls | Healthy Brain, Fuller Life",0.749029517,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.743595481
How do I deal with uniform requirements at work with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i deal with uniform requirements at work with hs?,How do I deal with uniform requirements at work with HS?,How do I deal with uniform requirements at work with HS?,No,,,searchable,exact-match,,,"[{""id"":1862},{""id"":1865},{""id"":1843},{""id"":1943}]",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.75,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",75.0,"The transcript provides practical advice on managing drainage from HS, which is relevant to dealing with uniform requirements at work. It suggests using dressings like gauze, paper tape, sanitary napkins, adult diapers, or baby diapers to absorb fluid, which can help prevent staining and odor on clothing. However, it does not directly address specific strategies for complying with uniform requirements or any workplace accommodations that might be available, which would make the answer more complete.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.75,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",75.0,"The transcript provides a practical suggestion for dealing with uniform requirements at work for someone with HS by recommending stay-dry or sweat-wicking clothing to reduce flares. However, it does not address other potential aspects of uniform requirements, such as style, color, or specific workplace policies, which might also be relevant to the question.",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.7,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",70.0,"The transcript addresses the question by discussing the importance of communicating with employers about HS (Hidradenitis Suppurativa) and the potential need for work accommodations. It suggests practical steps such as talking to HR and obtaining a doctor's letter to explain the condition and its impact on work. However, it does not specifically address uniform requirements, which was the main focus of the question. The response could be improved by directly discussing how to handle uniform requirements, such as suggesting alternative clothing options or discussing specific accommodations related to uniforms with employers.",1589.0,Accommodations for T1D at School,0.740188181,1612.0,T1D Supplies at School,0.730502069,3568.0,How do I handle the stigma and weight bias?,0.722458184
Can I wear scrubs comfortably with hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i wear scrubs comfortably with hidradenitis suppurativa?,Can I wear scrubs comfortably with hidradenitis suppurativa?,Can I wear scrubs comfortably with hidradenitis suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1873},{""id"":1816},{""id"":1865},{""id"":1862}]",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.75,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",75.0,"The transcript provides a partial answer to the question by suggesting that looser fitting clothing, which could include scrubs, may help reduce friction and occlusion, potentially alleviating symptoms of hidradenitis suppurativa. However, it does not directly address whether scrubs specifically can be worn comfortably, nor does it discuss the material or fit of scrubs in detail. A more complete answer would directly relate these points to wearing scrubs.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.7,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",70.0,"The transcript provides a general approach to choosing clothing for individuals with hidradenitis suppurativa, emphasizing the importance of trial and error and the potential benefits of both loose and tight clothing depending on the individual's condition. However, it does not specifically address wearing scrubs, which is the focus of the question. The advice given is useful and relevant, but the lack of direct reference to scrubs limits the completeness of the answer.",4897.0,CON2-CH3-Q8-What clothing is best to wear-Okoye.mp4,0.6,What clothing is best to wear?,"For patients with HS, sweating, and that sweat staying close to the skin, seems to trigger more flares. So I would recommend getting clothing that is marketed as stay-dry or sweat wicking. They're usually athletic materials that really keep the skin dry. So if you sweat, it dries very quickly and that tends to decrease flares.",60.0,"The transcript provides partial guidance relevant to the question by suggesting the use of stay-dry or sweat-wicking clothing to manage symptoms of hidradenitis suppurativa (HS). However, it does not directly address whether scrubs, specifically, can be worn comfortably by someone with HS. The advice is more general about clothing materials rather than specific to scrubs, which may leave the question partially unanswered.",4533.0,What Will My Treatment Be Like?,0.735349238,3635.0,Drain Care,0.734664559,586.0,Surgical Approaches,0.72796762
Does my period make HS worse?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,does my period make hs worse?,Does my period make HS worse?,Does my period make HS worse?,No,,,searchable,no-match,womens health,,"[{""id"":1838},{""id"":1837},{""id"":1823},{""id"":1979}]",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript does not directly address the question about whether menstruation affects HS (Hidradenitis Suppurativa). Instead, it discusses the relationship between stress and HS, which is not relevant to the specific inquiry about periods. The answer lacks any mention of hormonal changes or menstruation, which are necessary to adequately address the question.",4852.0,CON1-CH3-Q5-What role does stress play in HS-Garg-.mp4,0.2,What role does stress play in HS?,"Life is stressful today in general, and certainly having a chronic inflammatory condition like HS adds to that stress. It's not really clear what kind of role stress plays in skin disease in general, but certainly I hear from a lot of patients that stress at least maybe makes their condition worse. And listen, I think we've appreciated over time that there is a connection between the mind, the body, and the soul. So it never surprises me when a patient talks to me about how stress really influences their activity of HS. What I would say is that it's important to manage stress, find ways to cope with stress, for life in general, and especially when you have a chronic condition like HS. I think managing your stress can potentially influence how you perceive the disease, how you cope with the disease, and maybe even how active the condition can get. For example, how often you might flare. So I encourage all of my patients, anything you can do to cope with stress better, to find ways to be more resilient when you have a chronic condition like HS, can only help.",20.0,"The transcript does not directly address the question of whether menstruation (period) affects Hidradenitis Suppurativa (HS). Instead, it focuses on the role of stress in exacerbating HS and the importance of stress management. While stress can be a factor in many chronic conditions, the transcript does not mention hormonal changes or menstruation, which are the specific concerns of the question. Therefore, the answer is largely irrelevant to the question asked.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about whether menstruation (period) affects Hidradenitis Suppurativa (HS). Instead, it focuses on sweating as a trigger for HS and provides advice on managing sweating. There is no mention of menstruation or its potential impact on HS, making the response largely irrelevant to the question asked.",933.0,HSS Minute | Early Life Low Bone Density,0.733806491,450.0,I Have Endometriosis,0.710875213,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.70987606
Why do I get HS flares before my period?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,why do i get hs flares before my period?,Why do I get HS flares before my period?,Why do I get HS flares before my period?,No,,,searchable,loose-match,"womens health,symptoms",,"[{""id"":1877},{""id"":1838},{""id"":1880},{""id"":1817}]",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.3,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",30.0,"The transcript provides general information about HS flares and treatment options but does not specifically address why HS flares occur before menstruation. The question is about the timing of flares in relation to the menstrual cycle, which is not covered in the transcript. Hormonal changes are a common reason for HS flares before periods, but this is not mentioned in the response.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript discusses the relationship between stress and HS (Hidradenitis Suppurativa) flares, suggesting that stress can exacerbate HS. However, it does not directly address the specific question about why HS flares occur before menstruation. The answer lacks information on hormonal changes or other physiological factors related to the menstrual cycle that could contribute to HS flares, which would be more relevant to the question asked.",4914.0,CON2-CH5-Q5-How do steroids work in my body to treat HS-Garg.mp4,0.1,How do steroids work in my body to treat HS?,"During a flare, the level of inflammation in the body and the level of inflammation in your lesions is abruptly increased. And so steroids are very helpful in that circumstance because they are powerful anti-inflammatories that bring down that level of inflammation really quickly and really reliably. And so we can use steroids as a strategy during these acute flares for a brief period of time, maybe just a week, maybe up to three weeks, to bring down and reset that level of inflammation.",10.0,"The transcript does not address the specific question of why HS flares occur before a period. Instead, it discusses the use of steroids to manage inflammation during flares, which is unrelated to the hormonal or physiological reasons that might cause premenstrual HS flares. The answer lacks any mention of hormonal changes, menstrual cycles, or any direct connection to the timing of flares in relation to the menstrual period.",933.0,HSS Minute | Early Life Low Bone Density,0.741150081,2309.0,What is Metabolic Syndrome?,0.729140401,450.0,I Have Endometriosis,0.724775434
Can birth control help with menstrual HS flares?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can birth control help with menstrual hs flares?,Can birth control help with menstrual HS flares?,Can birth control help with menstrual HS flares?,No,,,searchable,exact-match,"womens health,treatments",,"[{""id"":1918},{""id"":1933},{""id"":1880},{""id"":1877}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.6,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",60.0,"The transcript does not directly address the question about birth control's effect on menstrual HS flares. Instead, it discusses the use of spironolactone, a medication that can help with HS symptoms related to menstruation. While spironolactone is sometimes used in conjunction with birth control for hormonal management, the transcript does not explicitly mention birth control or its potential benefits for menstrual HS flares. Therefore, the answer is somewhat relevant but does not directly answer the question posed.",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.1,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",10.0,"The transcript does not address the question about whether birth control can help with menstrual HS flares. Instead, it discusses the relationship between HS, PCOS, and fertility, which is unrelated to the question asked. There is no mention of birth control or its effects on HS flares in the transcript.",4914.0,CON2-CH5-Q5-How do steroids work in my body to treat HS-Garg.mp4,0.1,How do steroids work in my body to treat HS?,"During a flare, the level of inflammation in the body and the level of inflammation in your lesions is abruptly increased. And so steroids are very helpful in that circumstance because they are powerful anti-inflammatories that bring down that level of inflammation really quickly and really reliably. And so we can use steroids as a strategy during these acute flares for a brief period of time, maybe just a week, maybe up to three weeks, to bring down and reset that level of inflammation.",10.0,"The transcript discusses the use of steroids to manage inflammation during HS flares, but it does not address the specific question about whether birth control can help with menstrual HS flares. There is no mention of birth control or its effects on HS in the transcript, making it largely irrelevant to the question asked.",1020.0,Herniated Disc | Treating Flare-ups,0.737642646,450.0,I Have Endometriosis,0.736419,1666.0,Migraine | Pregnancy,0.731620729
What type of birth control is best for hidradenitis suppurativa?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,what type of birth control is best for hidradenitis suppurativa?,What type of birth control is best for hidradenitis suppurativa?,What type of birth control is best for Hidradenitis Suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1918},{""id"":1888},{""id"":1950},{""id"":1949}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.4,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",40.0,"The transcript does not directly answer the question about the best type of birth control for Hidradenitis Suppurativa (HS). Instead, it discusses the use of spironolactone, a medication that can influence hormone levels and is sometimes used in women with HS. While this information is somewhat relevant, as it touches on hormonal treatment, it does not specifically address birth control options. The transcript lacks a direct recommendation or discussion of birth control methods, which is the focus of the question.",4930.0,CON3-CH1-Q4-What are the best oral antibiotics to treat HS-Daveluy.mp4,0.1,What are the best oral antibiotics to treat HS?,"I'm glad you asked because there's often a misconception that HS is an infection and it's not. And so you can't just reach for any antibiotic. Some have studies that show that they work, others don't. And you may be getting some that work and some that don't based on if your doctor knows that they're treating HS. The ones that have the most studies to support their use are doxycycline and minocycline, which are cousins of each other. They're in the same family of antibiotics, and they both have studies that show they can help to stop new spots from coming, get rid of the nodules, which are the sort of red swollen lumps, and the abscesses, which are the fluid-filled pockets. They don't tend to work as well for the tunnels, but that's true of a lot of treatments. Another antibiotic that's been very well studied is called clindamycin. And when we use antibiotics on HS, it's a little different than infections. We often use them for weeks at a time because we actually want to control the disease activity and calm the inflammation down versus when you're treating an infection, you just do a short course just enough to kill the bacteria. Another antibiotic that might be used for your HS is actually an IV medication that has to be given through an IV in your vein. It's called ertapenem. It works incredibly well for HS, but only while you're on it, so it's sort of a temporary treatment while we figure out what else we're going to do to get your HS under control. There are a few other antibiotics that your doctor may talk to you about, like metronidazole, moxifloxacin, and rifampin. And so it's a good thing to have a conversation with your doctor about which antibiotics have evidence for HS, and have proven benefits, and then figure out based on your personal health and your history which one's the best for you.",10.0,"The transcript does not address the question about the best type of birth control for Hidradenitis Suppurativa (HS) at all. Instead, it focuses entirely on the use of antibiotics for managing HS, which is unrelated to the topic of birth control. There is no mention of birth control methods or their suitability for individuals with HS in the transcript.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about the best type of birth control for Hidradenitis Suppurativa at all. Instead, it discusses the general lack of awareness and misdiagnosis issues related to Hidradenitis Suppurativa. There is no mention of birth control or its relevance to the condition, making the transcript largely irrelevant to the question asked.",450.0,I Have Endometriosis,0.735560119,833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.730626822,3489.0,Solutions | Dr. Lou Aronne,0.729730725
Can the IUD help or hurt HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can the iud help or hurt hs?,Can the IUD help or hurt HS?,Can the IUD help or hurt HS?,No,,,searchable,no-match,,,"[{""id"":1933},{""id"":1823},{""id"":1926},{""id"":1927}]",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.1,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",10.0,"The transcript does not address the question about whether an IUD can help or hurt HS (Hidradenitis Suppurativa). Instead, it discusses the relationship between HS, PCOS, and fertility, which is unrelated to the question about the impact of an IUD on HS. Therefore, the transcript provides almost no relevant information to answer the question.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about the impact of an IUD on HS (Hidradenitis Suppurativa). Instead, it discusses sweating as a trigger for HS and strategies to manage sweating. There is no mention of IUDs or their effects on HS, making the response largely irrelevant to the question asked.",4969.0,CON3-CH6-Q5-Will wellness treatments like acupuncture and yoga help my HS-Okoye.mp4,0.1,Will wellness treatments like acupuncture and yoga help my HS?,"Patients with HS have to manage this really overwhelming disease and it causes a lot of stress. And so anything that helps manage stress also helps manage the inflammation of HS because stress contributes to that. So exercise can be complicated in patients with HS because of where the lesions are and the pain and so on. But any type of exercise you can do, yoga, acupuncture, talk therapy, anything that helps you deal with stress will help your HS.",10.0,"The transcript does not address the question about the impact of an IUD on HS (Hidradenitis Suppurativa). Instead, it discusses general stress management strategies for HS, such as exercise, yoga, acupuncture, and talk therapy. There is no mention of an IUD or its potential effects on HS, making the response largely irrelevant to the question posed.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.761961,302.0,Should I Get The COVID-19 Vaccine? Yale Medicine Experts Answer Your Questions,0.74503696,832.0,A Couple's Journey From Infertility to Parenthood,0.744592726
Should I take the pill if I have hidradenitis suppurativa?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,should i take the pill if i have hidradenitis suppurativa?,Should I take the pill if I have hidradenitis suppurativa?,Should I take the pill if I have hidradenitis suppurativa?,No,,,contact_doctor,,"womens health,treatments,condition management",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Can hormonal birth control make HS worse?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can hormonal birth control make hs worse?,Can hormonal birth control make HS worse?,Can hormonal birth control make HS worse?,No,,,searchable,loose-match,womens health,,"[{""id"":1918},{""id"":1823},{""id"":1933},{""id"":1838}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.4,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",40.0,"The transcript does not directly answer the question about whether hormonal birth control can make HS worse. It discusses the role of hormones in HS and mentions spironolactone as a treatment option, but does not address the specific impact of hormonal birth control on HS. The information provided is somewhat related, as it touches on hormonal influences, but it lacks a direct connection to the question asked.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.1,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",10.0,"The transcript does not address the question about hormonal birth control and its effects on HS (Hidradenitis Suppurativa). Instead, it focuses on sweating as a trigger for HS and strategies to manage sweating. There is no mention of hormonal birth control or its potential impact on HS, making the transcript largely irrelevant to the question asked.",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.1,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",10.0,"The transcript does not address the question about whether hormonal birth control can make Hidradenitis Suppurativa (HS) worse. Instead, it discusses the relationship between HS, fertility, and PCOS, which is unrelated to the question asked. Therefore, the transcript provides little to no relevant information regarding the impact of hormonal birth control on HS.",933.0,HSS Minute | Early Life Low Bone Density,0.734574318,832.0,A Couple's Journey From Infertility to Parenthood,0.726566076,302.0,Should I Get The COVID-19 Vaccine? Yale Medicine Experts Answer Your Questions,0.72557348
Does the menstrual cup irritate groin HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,does the menstrual cup irritate groin hs?,Does the menstrual cup irritate groin HS?,Does the menstrual cup irritate groin HS?,No,,,searchable,no-match,womens health,,"[{""id"":1854},{""id"":1823},{""id"":1816},{""id"":1862}]",4882.0,CON2-CH1-Q8-Does HS only show up where skin rubs together-Okoye.mp4,0.2,Does HS only show up where skin rubs together?,"It tends to show up in places where there's friction. So the easiest way to get friction on the skin is when skin rubs on skin, places like the underarms or the groin. But it can also develop in areas where there's friction caused by other things like your bra strap or your waistband of your pants. If your waistband is rubbing in the same location every day, you might get an HS lesion there.",20.0,"The transcript discusses the general causes of friction-related HS lesions, mentioning areas like the groin, but does not specifically address whether a menstrual cup irritates groin HS. It lacks direct information about the interaction between menstrual cups and HS in the groin area, making the answer largely irrelevant to the specific question asked.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript primarily discusses sweating as a trigger for HS (Hidradenitis Suppurativa) and methods to manage sweating. It does not directly address the question about whether a menstrual cup irritates groin HS. The information provided is tangentially related, as it discusses triggers for HS, but it does not specifically answer the question about the menstrual cup's impact on HS.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.2,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",20.0,"The transcript does not directly address the question about whether a menstrual cup irritates groin HS (Hidradenitis Suppurativa). Instead, it discusses clothing choices and their impact on HS symptoms, suggesting trial and error with clothing types. While it touches on the concept of friction and irritation, it does not specifically mention menstrual cups or their effects on HS. Therefore, the answer is largely irrelevant to the specific question asked.",450.0,I Have Endometriosis,0.750418782,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.73045969,933.0,HSS Minute | Early Life Low Bone Density,0.725622773
Can I use tampons with groin hidradenitis suppurativa?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can i use tampons with groin hidradenitis suppurativa?,Can I use tampons with groin hidradenitis suppurativa?,Can I use tampons with groin hidradenitis suppurativa?,No,,,searchable,loose-match,"womens health,condition management",,"[{""id"":1862},{""id"":1866},{""id"":1816},{""id"":1942}]",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.3,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",30.0,"The transcript does not directly address the question about using tampons with groin hidradenitis suppurativa (HS). Instead, it discusses managing drainage associated with HS using dressings like gauze, paper tape, sanitary napkins, adult diapers, or baby diapers. While it provides useful information on managing drainage, it does not specifically mention tampons or their suitability for someone with HS. Therefore, the response is not directly relevant to the question asked.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.2,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",20.0,"The transcript does not directly address the question about using tampons with groin hidradenitis suppurativa. Instead, it discusses various dressing options for managing drainage from HS lesions, including gauze, telfa, sanitary napkins, baby diapers, and adult diapers. While it provides useful information on managing HS, it does not specifically mention tampons or their suitability for use with groin HS, leaving the original question unanswered.",4833.0,CON1-CH1-Q6-Are there materials in clothing I should avoid-Daveluy.mp4,0.2,Are there materials in clothing that I should avoid?,"I love referring patients to HS connect.org for this question because they have some great articles that cover different types of clothing that you may want to try out. Again, this is one of those areas where it takes a little trial and error. For some people, loose clothing is a lot better because tightness and friction triggers flare-ups. For other people tighter garments like sports bras or compression clothing can help because it provides a nice layer of fabric over, say thighs,  that then prevents skin on skin rubbing and friction. And then it may vary based on how your disease is doing. So for some of my patients, they wear certain undergarments when the disease is calm, but then when it flares up they may use tighter clothing that can help hold bandages to catch drainage in place. So it's a little bit of trial and error. And again, patient support groups are great resources for finding out from other patients what things worked well, what didn't work well, so then you can sort of try things out and see what works for you.",20.0,"The transcript does not directly address the question about using tampons with groin hidradenitis suppurativa. Instead, it discusses clothing choices and how they might affect the condition, focusing on trial and error with different types of garments. While it provides some general advice on managing friction and flare-ups, it does not specifically mention tampons or provide guidance on their use in the context of hidradenitis suppurativa. Therefore, the transcript is largely irrelevant to the specific question asked.",450.0,I Have Endometriosis,0.762817144,586.0,Surgical Approaches,0.724833369,833.0,Innovative Breast Reconstruction | Making Lauren Whole Again,0.724238813
Should I use pads instead of tampons if I have HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,should i use pads instead of tampons if i have hs?,Should I use pads instead of tampons if I have HS?,Should I use pads instead of tampons if I have HS?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1862},{""id"":1866},{""id"":1873},{""id"":1867}]",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.7,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",70.0,"The transcript addresses the management of drainage associated with HS, suggesting the use of sanitary napkins, adult diapers, or baby diapers to absorb fluid. While it doesn't directly compare pads and tampons, it implies that pads (sanitary napkins) might be more suitable for managing drainage, which indirectly answers the question. However, it lacks a direct comparison or explanation regarding the use of tampons, which would provide a more complete answer.",4900.0,CON2-CH3-Q9-What dressings should I use-Okoye.mp4,0.3,What dressings should I use?,"The dressings for HS really depend quite a bit on how much drainage you have and where the lesions are. So there are high tech fancy dressings that you can get if you see a wound care professional. That's another member of the care team that some patients really need if they have large wounds that drain quite a bit because there are dressings that your insurance will pay for based on how severe your HS is. But for patients who don't have large wounds or really severe HS, there are a lot of options over the counter. You can buy gauze, or my preference is that you buy a non-stick gauze. And one option is called telfa. Telfa is a type of gauze that has a kind of slippery side and you apply the slippery side to your skin so it doesn't stick on the wounds. And I find that to be much more comfortable for patients. Now, you often need to keep the dressings attached to your body, and so you'll need tape - paper tape I think is the easiest tape on the skin. Other types of tape might be more secure, but when you're taking them off, you can really damage the skin every day when you're changing the dressings. And then there's some more involved options for people who have more drainage. For example, you can use sanitary napkins in the underarm to collect the drainage. Those are very absorbent. You can use baby diapers depending on where the lesions are. Again, something that's really, really absorbent. And some of my patients even wear adult diapers if they have a lot of lesions in the buttocks or in the groin, and it really gives them more confidence during the day because they know that that adult diaper will absorb the drainage and it won't get onto their clothing. ",30.0,"The transcript does not directly address the question of whether to use pads instead of tampons for someone with HS (Hidradenitis Suppurativa). Instead, it discusses various dressing options for managing drainage from HS lesions, including the use of sanitary napkins and diapers for absorption. While it mentions sanitary napkins, it does not compare them to tampons or provide guidance specific to menstrual hygiene management in the context of HS. Therefore, the transcript only partially relates to the question and does not provide a clear answer.",4905.0,CON2-CH4-Q6-What can I wear to help with the discomfort-Garg.mp4,0.3,What can I wear to help with the discomfort?,"In general, looser fitting clothing we think helps take away some of the frictional forces, some of the occlusion, these are things that can make HS lesions worse. So in general, letting your skin breathe a little bit more can reduce the friction, can reduce the blocking of the glands that we think potentially can make HS worse.",30.0,"The transcript does not directly address the question of whether to use pads instead of tampons for someone with HS (Hidradenitis Suppurativa). It discusses the benefits of looser fitting clothing and reducing friction, which are relevant to managing HS, but it does not specifically relate these points to the choice between pads and tampons. The answer could be improved by explicitly discussing how pads might reduce friction or occlusion compared to tampons, if applicable.",450.0,I Have Endometriosis,0.735446632,933.0,HSS Minute | Early Life Low Bone Density,0.730875254,1612.0,T1D Supplies at School,0.715274155
How do I manage HS during my period?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,how do i manage hs during my period?,How do I manage HS during my period?,How do I manage HS during my period?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1862},{""id"":1838},{""id"":1967},{""id"":1823}]",4898.0,CON2-CH3-Q5-How do I handle drainage-Okoye.mp4,0.75,How do I handle the drainage?,"The drainage associated with HS is really impactful because it can drain onto your clothing and stain your clothing. Sometimes the drainage has an odor and so it's really important to manage that. I think that's a really important question. So with drainage, you need to find a dressing that will soak up as much of the drainage as it can and a dressing that's not going to damage your skin at the same time. So I think a simple way to deal with drainage is with gauze and paper tape. And if you have a lot of drainage, think about using sanitary napkins, adult diapers, or baby diapers that will absorb a lot of the fluid.",75.0,"The transcript provides practical advice on managing drainage associated with HS, which can be exacerbated during menstruation. It suggests using absorbent materials like gauze, sanitary napkins, adult diapers, or baby diapers to manage fluid. However, it does not specifically address hormonal changes or other aspects of HS management during menstruation, such as pain management or medication adjustments, which could be relevant to the question.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript does not directly address the question about managing HS during menstruation. It discusses the relationship between stress and HS, suggesting that managing stress can help reduce HS flares, but it does not provide specific strategies or considerations for managing HS specifically during the menstrual period. The answer lacks focus on the hormonal changes and potential exacerbation of HS symptoms during menstruation, which are likely relevant to the question.",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.2,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",20.0,The transcript does not directly address the question of managing HS during a menstrual period. It provides general advice on finding a knowledgeable clinician for HS management but lacks specific strategies or tips related to managing HS symptoms during menstruation. The response is too vague and does not offer practical guidance for the specific situation described in the question.,2326.0,How to Manage Overwhelming Stress Levels,0.752383769,1077.0,"Healthy Habits | E2 
Reducing Low Blood Sugar",0.748351932,4647.0,Managing Your Mental Health,0.746142566
Can menopause improve hidradenitis suppurativa?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can menopause improve hidradenitis suppurativa?,Can menopause improve hidradenitis suppurativa?,Can menopause improve Hidradenitis Suppurativa?,No,,,searchable,loose-match,womens health,,"[{""id"":1918},{""id"":1855},{""id"":1950},{""id"":1861}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.4,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",40.0,"The transcript does not directly answer the question about menopause improving Hidradenitis Suppurativa (HS). It discusses the role of hormones and mentions a medication, spironolactone, used to manage HS symptoms related to hormonal changes, particularly in women experiencing menstrual flares. However, it does not address menopause specifically or whether it can improve HS. The information provided is somewhat relevant as it touches on hormonal influences on HS, but it lacks a direct connection to menopause.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.1,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",10.0,"The transcript does not address the question about whether menopause can improve Hidradenitis Suppurativa (HS). Instead, it discusses the co-occurrence of acne with HS and the treatment overlap between the two conditions. There is no mention of menopause or its effects on HS, making the response largely irrelevant to the question asked.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,The transcript does not address the question about menopause and its effects on Hidradenitis Suppurativa. It discusses the lack of awareness and common misdiagnosis of the condition but does not provide any information related to menopause or its potential impact on HS.,450.0,I Have Endometriosis,0.753819287,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.743546188,2321.0,Health Conditions Impacted by the Microbiome,0.739925206
Will HS get better after menopause?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,will hs get better after menopause?,Will HS get better after menopause?,Will HS get better after menopause?,No,,,searchable,loose-match,"womens health,condition management,prognosis",,"[{""id"":1918},{""id"":1846},{""id"":1933},{""id"":1969}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.3,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",30.0,"The transcript does not directly answer the question about whether HS will get better after menopause. It discusses the role of hormones in HS and mentions a specific medication, spironolactone, used to manage symptoms in women, particularly those experiencing flares related to menstruation. However, it does not address the impact of menopause on HS or provide any information on whether symptoms improve post-menopause. The response is somewhat relevant as it touches on hormonal influences, but it lacks a direct answer to the question posed.",4872.0,CON1-CH6-Q3-Will there ever be a cure-Garg.mp4,0.2,Will there ever be a cure?,"Even just five years ago, if you had asked me, is there ever going to be a cure for HS, I'm not sure I could look you in the eye and say yes. But we've got treatments that I thought were never even possible. The progress is slow and steady, but we're getting there. And I think that there will be a near term in which we can at least think about a cure, at least discuss remission of symptoms.",20.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) will get better after menopause. Instead, it discusses the general progress in treatments and the potential for a cure or remission of symptoms in the future. There is no mention of menopause or its effects on HS, which is the specific focus of the question. Therefore, the transcript provides very little relevant information to answer the question.",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.1,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",10.0,"The transcript does not address the question about whether HS (Hidradenitis Suppurativa) will get better after menopause. Instead, it discusses the relationship between HS, fertility, and PCOS, which is unrelated to the question asked. Therefore, the transcript provides little to no relevant information regarding the impact of menopause on HS.",933.0,HSS Minute | Early Life Low Bone Density,0.771711051,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.751202404,2306.0,Heart Health | Benefits of Exercise,0.7417413
Can I get pregnant if I have hidradenitis suppurativa?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can i get pregnant if i have hidradenitis suppurativa?,Can I get pregnant if I have hidradenitis suppurativa?,Can I get pregnant if I have hidradenitis suppurativa?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1933},{""id"":1935},{""id"":1934},{""id"":1927}]",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.85,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",85.0,"The transcript effectively answers the question by clarifying that hidradenitis suppurativa (HS) itself does not affect fertility, which directly addresses the concern about pregnancy. It also provides additional context by mentioning that polycystic ovarian syndrome (PCOS), which can sometimes accompany HS, may affect fertility. This additional information is relevant and helpful, although the primary question about HS and pregnancy is clearly answered. The response could be improved by explicitly stating that having HS alone does not prevent pregnancy, but overall, it provides a clear and informative answer.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.5,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",50.0,"The transcript does not directly answer the question of whether someone with hidradenitis suppurativa (HS) can get pregnant. Instead, it discusses the potential risks and considerations during pregnancy for someone with HS, such as the likelihood of a C-section and the presence of other conditions like high blood pressure or diabetes. While these are relevant considerations for someone with HS who is pregnant, the transcript does not address the fundamental question of whether HS affects the ability to conceive. Therefore, the answer is only partially relevant to the question asked.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.3,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",30.0,"The transcript does not directly answer the question of whether a person with hidradenitis suppurativa (HS) can get pregnant. Instead, it discusses treatment options for HS that are safe during pregnancy, such as certain antibiotics and biologics like Cimzia and Humira. It also mentions that HS may improve during pregnancy for some patients. However, the transcript does not address the core question of whether HS affects the ability to conceive or become pregnant, which is the primary concern of the question.",450.0,I Have Endometriosis,0.769444346,448.0,I Couldn't Stay Pregnant,0.760697961,832.0,A Couple's Journey From Infertility to Parenthood,0.760657966
Does HS affect fertility?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,does hs affect fertility?,Does HS affect fertility?,Does HS affect fertility?,No,,,searchable,exact-match,womens health,,"[{""id"":1933},{""id"":1935},{""id"":1833},{""id"":1969}]",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,1.0,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",90.0,"The transcript effectively answers the question by stating that HS (Hidradenitis Suppurativa) itself does not affect fertility. It also provides additional context by mentioning that while HS does not impact fertility, a condition that can accompany HS, namely PCOS, can affect fertility. This additional information is relevant and helpful, although the primary question about HS is directly addressed. The response is clear and accurate, but it could be slightly improved by explicitly stating what HS is for those unfamiliar with the term.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.3,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",30.0,"The transcript does not directly address the question of whether HS affects fertility. It discusses the impact of HS on pregnancy risk and delivery method, mentioning associated conditions like high blood pressure or diabetes, and the likelihood of a C-section. However, it does not provide information on whether HS affects the ability to conceive or fertility itself. Therefore, the response is not well-aligned with the question about fertility.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.1,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",10.0,"The transcript does not address the question about whether HS (Hidradenitis Suppurativa) affects fertility. Instead, it discusses the two-hit hypothesis related to the development of diseases, including HS, focusing on genetic predisposition and environmental factors like smoking and weight. There is no mention of fertility or how HS might impact it, making the transcript largely irrelevant to the question asked.",933.0,HSS Minute | Early Life Low Bone Density,0.770987272,832.0,A Couple's Journey From Infertility to Parenthood,0.767580569,3605.0,How does obesity affect sex?,0.761752188
Can hidradenitis suppurativa cause infertility?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can hidradenitis suppurativa cause infertility?,Can hidradenitis suppurativa cause infertility?,Can hidradenitis suppurativa cause infertility?,No,,,searchable,exact-match,,,"[{""id"":1933},{""id"":1927},{""id"":1885},{""id"":1950}]",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.9,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",90.0,"The transcript effectively answers the question by clarifying that hidradenitis suppurativa (HS) itself does not cause infertility. It further provides relevant information by mentioning that polycystic ovarian syndrome (PCOS), which can sometimes accompany HS, may affect fertility. This additional context helps in understanding the relationship between HS, PCOS, and fertility, making the answer comprehensive. However, the transcript could be slightly improved by explicitly stating that HS has no direct impact on fertility, which would make the answer even clearer.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.2,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",20.0,"The transcript primarily discusses the non-contagious nature of hidradenitis suppurativa (HS) and its impact on intimacy, but it does not address the question of whether HS can cause infertility. The information provided is relevant to understanding HS as a chronic skin condition, but it lacks any direct connection to fertility or reproductive health, which is the focus of the question.",4931.0,CON3-CH1-Q1-How are antibiotics used and will they work-Garg.mp4,0.2,"How are antibiotics used, and will they work?","I think there's somewhat of a misperception that HS is an infection. And, in fact, it's not. We know that there are organisms, a microbiome, that's related to having the condition. A microbiome on the skin surface, and even within the skin. However, we don't think yet, or we don't know yet, that that's really a driver of the inflammation. So really our strategy involves targeting the inflammation in HS to help improve the symptoms. Now, antibiotics can be used to treat HS. It's not really addressing the microbiome. There are several antibiotics which actually also treat inflammation and probably the most common ones include the tetracycline, doxycycline being the most common example. And so it wouldn't be unusual for your doctor to suggest use of doxycycline, not because they're trying to treat an infection, but really they're trying to address some of the inflammation that's related to HS that doxycycline has the potential to mitigate.",20.0,"The transcript primarily discusses the nature of hidradenitis suppurativa (HS) as an inflammatory condition rather than an infection, and the use of antibiotics like doxycycline to manage inflammation. However, it does not address the specific question of whether HS can cause infertility. The transcript lacks any direct information or connection between HS and infertility, making it largely irrelevant to the question posed.",450.0,I Have Endometriosis,0.763929069,832.0,A Couple's Journey From Infertility to Parenthood,0.760260463,2321.0,Health Conditions Impacted by the Microbiome,0.740311086
Is it safe to get pregnant with HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,is it safe to get pregnant with hs?,Is it safe to get pregnant with HS?,Is it safe to get pregnant with HS?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1935},{""id"":1934},{""id"":1933},{""id"":1976}]",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.85,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",85.0,"The transcript provides a comprehensive answer to the question about the safety of getting pregnant with HS (Hidradenitis Suppurativa). It clarifies that HS itself does not make a pregnancy high risk unless accompanied by other conditions like high blood pressure or diabetes, which are more common in people with HS. It also discusses the increased likelihood of a C-section due to HS lesions, which is relevant information for someone considering pregnancy. However, the transcript could improve by explicitly stating that it is generally safe to get pregnant with HS, assuming no other complicating conditions are present. Overall, the response is informative and addresses potential concerns related to HS and pregnancy.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.7,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",70.0,"The transcript provides a partial answer to the question about the safety of getting pregnant with HS (Hidradenitis Suppurativa). It discusses the safety of certain medications during pregnancy, such as specific antibiotics and biologics like Cimzia and Humira, which are relevant for managing HS. It also mentions that some patients experience an improvement in HS symptoms during pregnancy, potentially reducing the need for medication. However, the transcript does not directly address the overall safety of pregnancy for someone with HS, such as potential risks or complications related to the condition itself, outside of medication management. Therefore, while it provides useful information, it does not fully answer the question about the general safety of pregnancy with HS.",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.6,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",60.0,"The transcript partially addresses the question by discussing the impact of HS (Hidradenitis Suppurativa) on fertility, indicating that HS itself does not affect fertility. However, it does not directly address the safety of getting pregnant with HS, which is the main focus of the question. The mention of PCOS is relevant for fertility but not directly related to the safety of pregnancy with HS. Therefore, the response lacks a comprehensive answer regarding the safety aspect of pregnancy with HS.",832.0,A Couple's Journey From Infertility to Parenthood,0.763695419,1056.0,"Pregnancy with Diabetes | E2 
The Pregnancy",0.761240423,181.0,Is it Safe to Resume Sex After a Heart Attack?,0.761016846
Will pregnancy make my hidradenitis suppurativa worse?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,will pregnancy make my hidradenitis suppurativa worse?,Will pregnancy make my hidradenitis suppurativa worse?,Will pregnancy make my hidradenitis suppurativa worse?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1934},{""id"":1935},{""id"":1823},{""id"":1950}]",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.75,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",75.0,"The transcript provides relevant information about the management of hidradenitis suppurativa (HS) during pregnancy, including safe medication options and the potential for improvement in symptoms. However, it does not directly address whether pregnancy will make HS worse, only mentioning that 25% of patients may experience improvement. The answer could be more comprehensive by discussing the variability in HS symptoms during pregnancy and the factors that might influence worsening or improvement.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.4,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",40.0,"The transcript does not directly address whether pregnancy will worsen hidradenitis suppurativa (HS). It provides information on the risk factors associated with HS during pregnancy, such as the likelihood of a C-section and the presence of other conditions like high blood pressure or diabetes, but it does not specifically answer if pregnancy will exacerbate HS symptoms. The response is more focused on pregnancy risks and delivery methods rather than the impact of pregnancy on HS itself.",4832.0,CON1-CH1-Q13-Will sweating make my HS worse-Daveluy.mp4,0.2,Will sweating make my HS worse?,"A lot of patients report sweat as a trigger for the HS. And so that's something we see quite a bit and we talk about quite a bit. It's hard to avoid sweating altogether. Sometimes you're in a situation where you just can't help it, but if it is possible to avoid sweating and you find that sweating is a trigger, there are some techniques you can use. If it's really hot out and you don't have air conditioning, sometimes you can go to a store, like the grocery store, and spend a little time in the air conditioning. Maybe hang out in the freezer section for a while where it's nice and cool. And what's interesting about sweating is that if you notice that sweating is a trigger for you, some of the treatments we have to reduce sweating have been shown to be helpful for HS. So it's an important conversation to have with your doctor if sweat is a trigger, because that might help them choose a different treatment that's going to work for both your sweating and your HS.",20.0,"The transcript does not directly address the question about whether pregnancy will worsen hidradenitis suppurativa (HS). Instead, it discusses sweating as a trigger for HS and offers advice on managing sweating. While sweating might be relevant to HS, the transcript fails to connect this information to pregnancy or its effects on HS. Therefore, it provides minimal relevant information to answer the specific question about pregnancy's impact on HS.",1666.0,Migraine | Pregnancy,0.737659097,1060.0,"Pregnancy with Diabetes | E6 
Postpartum - Bringing Home Baby",0.734184802,1058.0,"Pregnancy with Diabetes | E4 
Finding Support",0.734073758
Can pregnancy improve HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can pregnancy improve hs?,Can pregnancy improve HS?,Can pregnancy improve HS?,No,,,searchable,exact-match,womens health,,"[{""id"":1934},{""id"":1933},{""id"":1935},{""id"":1834}]",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.85,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",85.0,"The transcript provides a partial answer to the question by stating that for 25% of patients, their HS (Hidradenitis Suppurativa) will actually improve during pregnancy. This directly addresses the question of whether pregnancy can improve HS. However, the transcript primarily focuses on medication options that are safe during pregnancy, which is not directly related to the question. Therefore, while the transcript does answer the question, it includes a lot of additional information that is not directly relevant to the question asked.",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.2,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",20.0,"The transcript does not directly address whether pregnancy can improve HS (Hidradenitis Suppurativa). Instead, it discusses the relationship between HS, fertility, and PCOS, which is not relevant to the question. The answer lacks any information about the impact of pregnancy on HS symptoms or progression.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.2,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",20.0,"The transcript does not directly address whether pregnancy can improve HS (Hidradenitis Suppurativa). It discusses the implications of HS on pregnancy risk and delivery method but does not provide information on the impact of pregnancy on the condition itself. The answer lacks focus on the potential improvement or worsening of HS during pregnancy, which is the core of the question.",1056.0,"Pregnancy with Diabetes | E2 
The Pregnancy",0.766232848,1058.0,"Pregnancy with Diabetes | E4 
Finding Support",0.766197681,1060.0,"Pregnancy with Diabetes | E6 
Postpartum - Bringing Home Baby",0.763856113
What HS medications are safe during pregnancy?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,what hs medications are safe during pregnancy?,What HS medications are safe during pregnancy?,What high blood pressure medications are safe during pregnancy?,No,,,searchable,no-match,"womens health,treatments",,"[{""id"":1932},{""id"":1934},{""id"":1935},{""id"":1870}]",4989.0,CON4-CH2-Q1-Can I breastfeed while getting treated for HS-Okoye.mp4,0.05,Can I breastfeed while getting treated for HS?,"Not all medications are safe to use during breastfeeding, but there are a few options. Some of the antibiotics and some of the biologics have been shown to be safe. So discuss this with your OBGYN, your baby's pediatrician, and your dermatologist, and they can help you select the best option.",5.0,"The transcript does not address the question about high blood pressure medications safe during pregnancy. Instead, it discusses the safety of medications during breastfeeding, which is a different context. The mention of antibiotics and biologics is unrelated to the question about antihypertensive medications. Therefore, the transcript provides almost no relevant information to answer the question.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.05,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",5.0,"The transcript does not address the question about high blood pressure medications safe during pregnancy. Instead, it discusses biologic medications like Cimzia and Humira, which are not related to treating high blood pressure. The information provided is irrelevant to the question asked, resulting in a very low score.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.05,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",5.0,"The transcript does not address the question about which high blood pressure medications are safe during pregnancy. Instead, it discusses the implications of having HS (Hidradenitis Suppurativa) during pregnancy and its potential impact on delivery methods. There is no mention of specific medications or their safety during pregnancy.",1327.0,Hypertension in Pregnancy,0.819860935,213.0,Preventive Cardiology | High Blood Pressure | What You Need to Know About Medications,0.807902455,1666.0,Migraine | Pregnancy,0.791276276
Can I take Humira while pregnant?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can i take humira while pregnant?,Can I take Humira while pregnant?,Can I take Humira while pregnant?,No,,,contact_doctor,,"womens health,treatments",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Should I stop my HS medication if I'm trying to conceive?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,should i stop my hs medication if i'm trying to conceive?,Should I stop my HS medication if I'm trying to conceive?,Should I stop my HS medication if I'm trying to conceive?,No,,,contact_doctor,,"womens health,condition management",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Can I breastfeed while taking HS medications?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can i breastfeed while taking hs medications?,Can I breastfeed while taking HS medications?,Can I breastfeed while taking HS medications?,No,,,searchable,exact-match,"womens health,treatments",,"[{""id"":1932},{""id"":1934},{""id"":1842},{""id"":1855}]",4989.0,CON4-CH2-Q1-Can I breastfeed while getting treated for HS-Okoye.mp4,0.75,Can I breastfeed while getting treated for HS?,"Not all medications are safe to use during breastfeeding, but there are a few options. Some of the antibiotics and some of the biologics have been shown to be safe. So discuss this with your OBGYN, your baby's pediatrician, and your dermatologist, and they can help you select the best option.",75.0,"The transcript provides a general answer to the question by indicating that not all medications are safe during breastfeeding, but some antibiotics and biologics may be. It advises consulting with healthcare providers to determine safe options. However, it does not specifically address 'HS medications' (likely referring to medications for Hidradenitis Suppurativa) or provide detailed information on which specific medications are safe, which would be necessary for a more complete answer.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.2,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",20.0,"The transcript primarily discusses the safety of certain medications during pregnancy, specifically mentioning antibiotics, Cimzia, and Humira. However, the question is about the safety of breastfeeding while taking HS medications, not pregnancy. The transcript does not address breastfeeding at all, which is a critical aspect of the question. Therefore, the response is largely irrelevant to the question asked, resulting in a low rating.",4855.0,CON1-CH4-Q5-Will depression medications affect my HS treatment-Okoye.mp4,0.2,Will depression medications affect my HS?,Medications for depression and anxiety don't affect HS treatments. And actually many of my patients are on medications to help their mental health as well.,20.0,"The transcript does not directly address the question about breastfeeding while taking HS medications. It only mentions that medications for depression and anxiety do not affect HS treatments and that many patients take mental health medications. There is no information provided about the safety of breastfeeding while on HS medications, which is the core of the question.",443.0,Formula or Breast Milk | What's Better For Your Baby?,0.769840598,4533.0,What Will My Treatment Be Like?,0.767343938,1095.0,Breast Cancer | Chemotherapy,0.757601559
Is Humira safe while breastfeeding?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,is humira safe while breastfeeding?,Is Humira safe while breastfeeding?,Is Humira safe while breastfeeding?,No,,,searchable,loose-match,"womens health,treatments",,"[{""id"":1932},{""id"":1934},{""id"":1896},{""id"":1895}]",4989.0,CON4-CH2-Q1-Can I breastfeed while getting treated for HS-Okoye.mp4,0.4,Can I breastfeed while getting treated for HS?,"Not all medications are safe to use during breastfeeding, but there are a few options. Some of the antibiotics and some of the biologics have been shown to be safe. So discuss this with your OBGYN, your baby's pediatrician, and your dermatologist, and they can help you select the best option.",40.0,"The transcript provides a general response about medication safety during breastfeeding but does not specifically address Humira. It suggests consulting healthcare providers, which is good advice, but it lacks specific information about the safety of Humira while breastfeeding. Therefore, it only partially answers the question.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.4,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",40.0,"The transcript primarily discusses the safety of Humira during pregnancy, not breastfeeding. While it provides information on Humira's safety for pregnant women and their children, it does not directly address its safety for breastfeeding mothers or their infants. The question specifically asks about breastfeeding, which is not covered in the transcript, leading to a low relevance score.",4944.0,CON3-CH2-Q5-How long have biologics been in use-Okoye.mp4,0.2,How long have biologics been in use?,"The biologics have actually been around for a really long time. The first biologic that was FDA-approved for HS is called Humira. And Humira has been around for about 20 years. We first used Humira in other diseases like psoriasis and rheumatoid arthritis. And then the second FDA-approved biologic we have for HS is called Cosentyx. That's been around for 10 years. We also used that in psoriasis long before we ever used it in HS. And now we have a third FDA-approved option. And this one is the newest kid on the block. It's called Bimzelx, and that was approved in 2023, so that's the newest biologic. So we have at least 20 years of safety information and real comfort with using the biologics for our patients with HS and other inflammatory diseases.",20.0,"The transcript provides background information on Humira and other biologics, mentioning their long-term use and safety in treating certain conditions. However, it does not specifically address the safety of Humira while breastfeeding, which is the focus of the question. The answer lacks direct information about breastfeeding safety, making it largely irrelevant to the question asked.",443.0,Formula or Breast Milk | What's Better For Your Baby?,0.757463336,302.0,Should I Get The COVID-19 Vaccine? Yale Medicine Experts Answer Your Questions,0.755631328,4533.0,What Will My Treatment Be Like?,0.752677
Will I have a flare after giving birth?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,will i have a flare after giving birth?,Will I have a flare after giving birth?,Will I have a flare after giving birth?,No,,,searchable,exact-match,"womens health,condition management",,"[{""id"":1877},{""id"":1878},{""id"":1879},{""id"":1875}]",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.6,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",60.0,"The transcript provides a general discussion about the likelihood of experiencing flares, which are common in HS (Hidradenitis Suppurativa), and mentions that flares can occur on a weekly, monthly, or quarterly basis. However, it does not specifically address the context of postpartum flares or how childbirth might influence flare frequency or severity. The response does offer some information on managing flares, but it lacks a direct connection to the specific situation of flares after giving birth. Therefore, while it partially answers the question by discussing the general likelihood of flares, it does not fully address the specific concern about postpartum flares.",4913.0,CON2-CH5-Q2-How can I prevent flare-ups-Garg.mp4,0.3,How can I prevent flare-ups?," It's such a good question because flares just are so troublesome for people in so many ways. They're unpredictable. They stop what you need to do, or want to do, dead in your tracks. And so it's just so hard. But the reality is there's not much you can do to prevent a flare, or even to predict it. If it's going to happen in this condition, it just happens.",30.0,"The transcript acknowledges the unpredictability and difficulty of managing flares, which is relevant to the question about experiencing a flare after giving birth. However, it does not directly address the specific context of postpartum flares or provide any information about the likelihood or management of flares in the postpartum period. The response lacks specific guidance or information related to the question, resulting in a low score.",4917.0,CON2-CH5-Q4-What is an acute flare-Garg.mp4,0.2,What is an acute flare?,"So from time to time your disease is going to flare up. It's going to be like an abrupt onset of more spots or just more painful spots. When that happens, you have to let me know, and we’ll think about what strategy makes the most sense to help relieve that acute intensified pain. It might be some of the home remedies, it might be over-the-counter medications, it might even be rescue medications that we use depending on how intense the activity is.",20.0,"The transcript does not directly address the question about the likelihood of experiencing a flare after giving birth. It provides general information about disease flares, their symptoms, and potential management strategies, but it does not specifically relate this information to the postpartum period. Therefore, it only partially answers the question by discussing flares in general without connecting it to childbirth.",1060.0,"Pregnancy with Diabetes | E6 
Postpartum - Bringing Home Baby",0.771963596,1059.0,"Pregnancy with Diabetes | E5 
Labor & Delivery",0.759499073,1055.0,"Pregnancy with Diabetes | E1 
Preparation",0.754197061
Can vaginal delivery cause HS flares?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can vaginal delivery cause hs flares?,Can vaginal delivery cause HS flares?,Can vaginal delivery cause HS flares?,No,,,searchable,loose-match,womens health,,"[{""id"":1935},{""id"":1838},{""id"":1877},{""id"":1934}]",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.4,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",40.0,"The transcript does not directly answer the question of whether vaginal delivery can cause HS flares. It discusses the potential for HS patients to have a C-section instead of a vaginal delivery due to lesions, but it does not address the specific concern about flares associated with vaginal delivery. The information provided is relevant to delivery options for HS patients but does not directly answer the question posed.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript discusses the relationship between stress and HS (Hidradenitis Suppurativa) flares, emphasizing that stress can cause flares and vice versa. However, it does not specifically address whether vaginal delivery can cause HS flares. The transcript lacks direct information about the impact of vaginal delivery on HS, making it largely irrelevant to the question asked.",4911.0,CON2-CH5-Q1-What is a flareup-Garg.mp4,0.2,What is a flare-up?,"Flares are part of everybody's HS. So the likelihood of you getting one is pretty good. And people describe flares happening on a weekly basis, sometimes monthly, sometimes every three months. It's kind of hard to predict how often it'll happen for you, but the likelihood is it's going to happen along the way. And when it does, we can think about what is the right strategy based on the flare that you're experiencing. If it's just a spot, sometimes we can inject a medicine right into that spot to take care of it and cool it off. But oftentimes it involves several spots or several areas, and in that case, we have to do something to help reset the level of inflammation in your body. That might involve a short course of antibiotics, which sometimes can do the trick, but oftentimes it does involve use of a steroid such as prednisone, which is so powerful that it can cool things off and give you the relief by resetting the level of inflammation in your body back to its baseline.",20.0,The transcript discusses the general nature of HS flares and treatment options but does not specifically address whether vaginal delivery can cause HS flares. It provides information on the unpredictability and management of flares but lacks a direct answer to the question about the impact of vaginal delivery on HS flares.,1059.0,"Pregnancy with Diabetes | E5 
Labor & Delivery",0.771122873,1020.0,Herniated Disc | Treating Flare-ups,0.767028272,1060.0,"Pregnancy with Diabetes | E6 
Postpartum - Bringing Home Baby",0.764172494
Should I have a C-section if I have groin HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,should i have a c-section if i have groin hs?,Should I have a C-section if I have groin HS?,Should I have a C-section if I have groin HS?,No,,,contact_doctor,,"womens health,condition management",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
Can HS affect C-section healing?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can hs affect c-section healing?,Can HS affect C-section healing?,Can HS affect C-section healing?,No,,,searchable,loose-match,"womens health,condition management",,"[{""id"":1935},{""id"":1904},{""id"":1934},{""id"":1926}]",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.4,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",40.0,"The transcript provides some relevant information about HS (Hidradenitis Suppurativa) and its impact on pregnancy and delivery choices, particularly the increased likelihood of C-sections due to HS lesions. However, it does not directly address the question of whether HS affects C-section healing. The focus is more on the decision-making process for delivery rather than post-operative healing outcomes. Therefore, while it touches on related topics, it does not sufficiently answer the specific question about C-section healing.",4955.0,CON3-CH3-Q1-Are there risks to having surgery-Daveluy.mp4,0.2,Are there risks to having surgery?,"There are always risks to surgery, any surgery, not just HS surgery. Some of the common risks for HS surgery are an infection afterward, which is again a risk of any surgery or anytime you get a cut or a scratch, really. Luckily we see a very low infection rate in HS surgery. Even when we do surgery in areas like the groin or the buttocks, where you would think it's a sort of a dangerous area because when we're using the bathroom, there's bacteria, we see a pretty low infection rate, which is reassuring. And that's even true when we don't sew the areas up and we let the skin just slowly heal by itself, which is always reassuring for me and makes me feel more comfortable. But infection is a risk. If you started to see a lot more redness spreading around the surgical area, if it feels warm, if you're having fevers, then it's important to talk to your surgeon who did the surgery. Another risk is scarring. It's always a funny one when I talk to my HS patients and say, well, the surgery is going to leave a scar and they say, do you see what the HS is doing? It's already destroying my skin in that area. As long as the scar is not painful and draining pus and causing me problems, I'll be happy with it. There's also a risk of what we call a contracture. So a contracture happens when the skin heals tighter than it should be or kind of shrinks in the healing process. So if you think we take skin out of your armpit, the scar might contract and not allow you to lift your arm as much. So it's important to talk to your surgeon, or whatever doctor is doing your surgery, about the physical therapy you should do afterward because a lot of times doing some stretches during the healing process can help prevent those contracture. And the HS can cause those contracture itself because it causes scarring.",20.0,"The transcript discusses general risks associated with HS surgery, such as infection, scarring, and contractures, but does not specifically address how HS might affect C-section healing. The information provided is relevant to surgical healing in general but lacks direct connection to C-section healing in the context of HS. Therefore, it does not adequately answer the question posed.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.1,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",10.0,"The transcript discusses medications for HS during pregnancy, but it does not address the specific question about whether HS can affect C-section healing. The information provided is related to treatment options and safety during pregnancy, not the impact of HS on surgical recovery.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.77116245,2328.0,Foods that Help You Heal Faster,0.768690288,2878.0,Surgical Site Care After Surgery,0.764648855
Will I get HS in my C-section scar?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,will i get hs in my c-section scar?,Will I get HS in my C-section scar?,Will I get HS in my C-section scar?,No,,,searchable,loose-match,"womens health,risk factors",,"[{""id"":1821},{""id"":1935},{""id"":1969},{""id"":1904}]",4834.0,CON1-CH1-Q11-How can I prevent scarring-Daveluy.mp4,0.3,How do I prevent scarring?,"The best way to prevent scarring in HS is to turn the disease off. We are talking a lot about the window of opportunity, which is we need to try to get people's HS under control as soon as possible before it starts causing scars and tunnels to form. We've got a lot of work to do and a lot of room to improve in this area because we need to recognize HS better, get to diagnosis sooner, and get on treatment sooner. But that is our goal with treatment, is to turn the disease off so it stops causing scars and it stops causing tunnels. So a really important thing is if you're seeing scar formation, it means you probably need to step up your therapy, add onto your regimen, talk to your doctor, let them know that you're having scars and tunnels forming, and that we want to prevent that from happening by getting on effective therapies that get the disease activity to a minimum or completely stopped.",30.0,"The transcript discusses general strategies for preventing scarring in HS (Hidradenitis Suppurativa) by controlling the disease early and effectively. However, it does not specifically address the likelihood of developing HS in a C-section scar, nor does it provide information on whether HS can affect surgical scars. The response lacks direct relevance to the question about HS occurring in a C-section scar, focusing instead on general HS management.",4991.0,CON4-CH2-Q4-Will HS make my pregnancy high risk-Okoye.mp4,0.2,Will HS make my pregnancy high-risk?,"HS itself doesn't necessarily make a pregnancy high risk, but what I've seen is some of our patients with HS have other conditions like high blood pressure or diabetes, which are more common in people with HS. And those can make a pregnancy more high risk. But if you have HS and you don't have any of these other conditions, the pregnancy itself is not high risk. However, research has shown that patients with HS are more likely to have a C-section compared to a vaginal delivery. And that may just be because if you have HS lesions in the vaginal area, the care team who's delivering the baby may be concerned, and so they will opt for a C-section instead. This is something you should absolutely talk to your OB GYN about as you prepare for delivery, especially if you prefer to have a vaginal delivery as far as possible.",20.0,"The transcript does not directly address the question of whether an individual will develop HS (Hidradenitis Suppurativa) in a C-section scar. Instead, it discusses the general relationship between HS and pregnancy, including the potential for a C-section due to HS lesions in the vaginal area. However, it does not provide information on the likelihood of developing HS in a C-section scar specifically. The response lacks focus on the specific concern of HS occurring in surgical scars, which is the core of the question.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.2,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",20.0,"The transcript provides general information about the genetic predisposition of HS (Hidradenitis Suppurativa) but does not directly address the specific question about the likelihood of developing HS in a C-section scar. The response lacks information on the relationship between HS and surgical scars, which is crucial to answering the question effectively.",2878.0,Surgical Site Care After Surgery,0.768680215,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.754969776,907.0,HSS Overview,0.753469825
How do I manage HS while caring for a newborn?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,how do i manage hs while caring for a newborn?,How do I manage HS while caring for a newborn?,How do I manage HS while caring for a newborn?,No,,,searchable,exact-match,,,"[{""id"":1932},{""id"":1934},{""id"":1939},{""id"":1967}]",4989.0,CON4-CH2-Q1-Can I breastfeed while getting treated for HS-Okoye.mp4,0.6,Can I breastfeed while getting treated for HS?,"Not all medications are safe to use during breastfeeding, but there are a few options. Some of the antibiotics and some of the biologics have been shown to be safe. So discuss this with your OBGYN, your baby's pediatrician, and your dermatologist, and they can help you select the best option.",60.0,"The transcript partially addresses the question by suggesting that some medications for managing HS (Hidradenitis Suppurativa) are safe during breastfeeding, which is relevant for someone caring for a newborn. It advises consulting with healthcare providers to choose safe treatment options. However, it does not provide specific strategies for managing HS symptoms or practical advice on balancing HS management with newborn care, which are likely important aspects of the original question.",4983.0,CON4-CH2-Q3-How will my HS be managed while I'm pregnant-Okoye.mp4,0.4,How will my HS be managed while I'm pregnant?,"We have a few options of medications that are safe during pregnancy. One option is certain types of antibiotics. There's actually a specific biologic medicine that, it's not FDA-approved for HS, but it doesn't cross the placenta. So we know it's safe in pregnancy. So sometimes I'll switch patients from whatever biologic they're on to this other biologic. It's called Cimzia. And then we have decades of information on Humira. Humira has been given to pregnant women with other diseases for many, many years. They followed these women and their children and there haven't been any issues with the moms or the babies. Humira seems to be fine during pregnancy. The good news is for 25% of patients, their HS will actually improve while they're pregnant. So there's always a chance that you may not need any medications at all.",40.0,"The transcript provides some information relevant to managing HS during pregnancy, such as safe medication options like certain antibiotics, Cimzia, and Humira. However, it does not directly address the specific challenges of managing HS while caring for a newborn. The focus is more on medication safety during pregnancy rather than postpartum care or practical advice for managing HS symptoms while also caring for a newborn. Therefore, the transcript only partially answers the question.",4835.0,CON1-CH1-Q15-Are there groups that support parents and caregivers-Brooks.mp4,0.2,Are there groups that support parents and caregivers?,"Yes, there are groups for parents and caregivers. So HS Connect has a teen group and we also have a parent support group as well. So we find a lot of parents coming into our parent support group, especially looking for understanding and relief and how to handle these situations because these are your children, right? You want to help them and it pains you to see them going through this process. So, we highly encourage parents to join us, whether you have HS or you don't have HS. It doesn't mean that you lack the experience that your child needs, but by joining these groups, there's normalcy in the feelings that you will find other parents experiencing. And just the exchange of information between parents is a wonderfully beautiful thing to watch because you're gaining insight from other people along that same journey.",20.0,"The transcript does not directly address the question of managing Hidradenitis Suppurativa (HS) while caring for a newborn. Instead, it discusses support groups for parents and caregivers, which may provide emotional support and shared experiences but does not offer specific advice or strategies for managing HS in the context of newborn care. The response lacks practical information on managing the condition itself, such as treatment options, lifestyle adjustments, or specific challenges related to caring for a newborn while dealing with HS.",1042.0,"Parents of Children with Diabetes | E6 
Managing Illness, Family & Career",0.761894941,3634.0,Stress Management,0.760708928,1060.0,"Pregnancy with Diabetes | E6 
Postpartum - Bringing Home Baby",0.757219255
Can postpartum hormones trigger hidradenitis suppurativa?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can postpartum hormones trigger hidradenitis suppurativa?,Can postpartum hormones trigger hidradenitis suppurativa?,Can postpartum hormones trigger Hidradenitis Suppurativa?,No,,,searchable,loose-match,womens health,,"[{""id"":1918},{""id"":1950},{""id"":1953},{""id"":1823}]",4967.0,CON3-CH5-Q2-Are there hormonal treatments-Garg.mp4,0.4,Are there hormonal treatments?,"We're not quite sure how hormones influence HS. Having said that, there are medications which either bring down hormone levels or influence the way hormones interact with the skin that can be helpful in HS. One of these medications is called spironolactone. Spironolactone is primarily a medication we use in women with HS. It's not really appropriate for men with a condition, but we find that it can be helpful for many women to control their symptoms, particularly women who talk about flares with menstruation. And in those circumstances, spironolactone can be a helpful treatment. I wouldn't say it's the single or the main treatment for patients with HS, but it's certainly something we use sometimes to start with, or often in combination with other medications such as a biologic.",40.0,"The transcript does not directly answer the question about postpartum hormones triggering Hidradenitis Suppurativa (HS). It discusses the influence of hormones on HS in general and mentions a medication, spironolactone, used to manage HS symptoms related to hormonal changes, particularly in women. However, it does not specifically address postpartum hormones or their potential role in triggering HS. The response provides some relevant information about hormonal treatment but lacks a direct connection to the question asked.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,"The transcript does not address the question about postpartum hormones triggering Hidradenitis Suppurativa. It discusses the lack of awareness and common misdiagnoses associated with HS, but does not mention hormonal factors or postpartum conditions.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.1,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",10.0,"The transcript does not directly address the question about whether postpartum hormones can trigger Hidradenitis Suppurativa (HS). Instead, it discusses the relationship between acne and HS, which is not relevant to the hormonal aspect of the question. Therefore, the transcript provides minimal information related to the question asked.",1060.0,"Pregnancy with Diabetes | E6 
Postpartum - Bringing Home Baby",0.760451734,829.0,Postpartum Depression | Yale Medicine Explains,0.758960605,439.0,It's Time to Normalize Mom Bods,0.749937832
Why is HS more common in women?,searchable,Expert_Clinical,Hidradenitis Suppurativa,why is hs more common in women?,Why is HS more common in women?,Why is HS more common in women?,No,,,searchable,loose-match,womens health,,"[{""id"":1833},{""id"":1979},{""id"":1836},{""id"":1835}]",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.4,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",40.0,"The transcript provides a general explanation of the two-hit hypothesis and environmental factors that might contribute to the development of HS (Hidradenitis Suppurativa), such as genetic predisposition, smoking, and higher weight. However, it does not specifically address why HS is more common in women. The response lacks a direct connection to gender-specific factors or hormonal influences that could explain the higher prevalence in women, which is a critical aspect of the original question.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.3,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",30.0,"The transcript does not directly answer the question of why HS is more common in women. Instead, it challenges the notion that HS affects women more than men, suggesting that this belief might be a myth and could be due to underreporting in men. The transcript focuses on dispelling myths about HS, including those related to gender prevalence, but does not provide any specific reasons or evidence for why HS might be more common in women. Therefore, it does not adequately address the question posed.",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.1,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",10.0,"The transcript does not address the question of why HS (Hidradenitis Suppurativa) is more common in women. Instead, it discusses the prevalence of the condition among different races and ethnicities, particularly focusing on African-Americans. There is no mention of gender differences or reasons why women might be more affected by HS. Therefore, the transcript is largely irrelevant to the question asked.",413.0,Heart Disease in Women | E8,0.783703685,933.0,HSS Minute | Early Life Low Bone Density,0.78073436,831.0,Warning Signs of Cardiovascular Disease in Women | Yale Medicine Explains,0.768550634
Are women three times more likely to get hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,are women three times more likely to get hidradenitis suppurativa?,Are women three times more likely to get hidradenitis suppurativa?,Are women three times more likely to get hidradenitis suppurativa?,No,,,searchable,loose-match,womens health,,"[{""id"":1979},{""id"":1950},{""id"":1953},{""id"":1836}]",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.3,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",30.0,"The transcript does not directly answer the question about whether women are three times more likely to get hidradenitis suppurativa (HS). Instead, it discusses myths surrounding HS, including the belief that women are more affected than men, and questions the validity of this belief. The speaker suggests that the perception of women being more affected might be due to underreporting in men, but does not provide any specific statistics or evidence to confirm or refute the claim that women are three times more likely to have HS. Therefore, the transcript only partially addresses the question by challenging the myth without providing a clear answer.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.1,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",10.0,The transcript does not directly address the question about the likelihood of women getting hidradenitis suppurativa compared to men. It discusses the general lack of awareness and diagnostic challenges associated with the condition but does not provide any statistical information or comparison regarding gender prevalence.,5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.05,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",5.0,"The transcript does not address the question about whether women are three times more likely to get hidradenitis suppurativa. Instead, it discusses the relationship between acne and hidradenitis suppurativa, which is unrelated to the gender-specific prevalence of the condition. Therefore, the transcript provides almost no relevant information to answer the question.",450.0,I Have Endometriosis,0.761367261,1063.0,"Women with Diabetes | E3 
Dealing with Bad Days",0.751229405,1062.0,"Women with Diabetes | E2
Stigmas, Misconceptions & Negativity",0.749126136
Why is hidradenitis suppurativa more common in Black people?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,why is hidradenitis suppurativa more common in black people?,Why is hidradenitis suppurativa more common in Black people?,Why is hidradenitis suppurativa more common in Black people?,No,,,searchable,exact-match,,,"[{""id"":1836},{""id"":1833},{""id"":1979},{""id"":1950}]",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.7,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",70.0,"The transcript addresses the question by acknowledging that African-Americans are disproportionately affected by hidradenitis suppurativa. It suggests potential reasons such as genetic makeup or differences in hair follicles, but it does not provide a definitive answer. The response is informative but lacks specific details or conclusive evidence, which limits its completeness.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.4,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",40.0,"The transcript provides a general explanation of the two-hit hypothesis, which involves genetic predisposition and environmental factors, as a potential mechanism for diseases like hidradenitis suppurativa (HS). However, it does not specifically address why HS is more common in Black people. The transcript mentions factors like tobacco smoking, higher weight, and frictional forces, but these are not directly linked to racial differences. The response lacks a direct answer to the question about racial prevalence and does not provide specific information about genetic or environmental factors that might explain the higher incidence in Black individuals.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.2,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",20.0,"The transcript does not directly address the question of why hidradenitis suppurativa (HS) is more common in Black people. Instead, it focuses on debunking myths about HS, such as its causes and who it affects. While it mentions race and ethnicity in passing, it does not provide any specific information or explanation related to the prevalence of HS in Black people. The transcript is more about general misconceptions and the need for accurate information, rather than answering the specific question posed.",3494.0,Inflammation | Dr. Jim Januzzi,0.761941,3515.0,Why am I gaining more weight as I get older?,0.751630187,3596.0,Why did it take so long for obesity to be recognized as a disease?,0.747837603
Is HS more severe in African Americans?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,is hs more severe in african americans?,Is HS more severe in African Americans?,Is HS more severe in African Americans?,No,,,searchable,exact-match,,,"[{""id"":1836},{""id"":1979},{""id"":1969},{""id"":1962}]",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.75,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",75.0,"The transcript addresses the question by indicating that African Americans are disproportionately affected by HS, suggesting a higher prevalence or severity. However, it does not explicitly state that HS is more severe in African Americans, nor does it provide detailed evidence or explanations regarding severity. The transcript focuses more on prevalence and potential reasons for disproportionate impact, leaving some ambiguity about severity.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.3,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",30.0,"The transcript does not directly address the question of whether HS is more severe in African Americans. It discusses myths surrounding HS, including misconceptions about hygiene, weight, smoking, and gender, but does not provide specific information about racial differences in severity. The transcript emphasizes that HS can affect anyone regardless of race, but it does not specifically answer whether HS is more severe in African Americans. Therefore, the response is not well aligned with the question.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) is more severe in African Americans. It provides general information about the genetic predisposition and familial patterns of HS but does not discuss racial or ethnic differences in severity. Therefore, it only minimally relates to the question asked.",407.0,Racial Disparities in Healthcare | E2,0.766346872,1101.0,HSS Minute | Whole Lupus Patient,0.764230728,1227.0,Weight Bias & Race,0.761895239
Can genetics explain higher HS rates in Black patients?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,can genetics explain higher hs rates in black patients?,Can genetics explain higher HS rates in Black patients?,Can genetics explain higher HS rates in Black patients?,No,,,searchable,exact-match,,,"[{""id"":1836},{""id"":1833},{""id"":1835},{""id"":1969}]",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.7,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",70.0,"The transcript partially addresses the question by acknowledging that African-Americans are disproportionately affected by the condition and that there is an ongoing effort to understand the reasons behind this disparity. It mentions the possibility of genetic factors but does not provide a definitive answer or detailed explanation about the role of genetics. The transcript also suggests other potential factors, such as differences in hair follicles, but overall, it lacks specific information on the genetic aspect. Therefore, while it touches on the topic, it does not fully answer the question about the genetic explanation for higher HS rates in Black patients.",4854.0,CON1-CH3-Q1-How does my environment affect my HS-Garg-.mp4,0.7,How does my environment affect my HS?,"So for many diseases in medicine we have this concept of a two-hit hypothesis. One is your genetic makeup, but that alone doesn't necessarily trigger the disease. For example, having a gene for it. We think that in some ways sometimes the influence of the environment is that second hit that ultimately results in developing a disease. And there's the possibility here that HS is one of these conditions where you have a genetic predisposition and then there are things in the environment that might influence whether the disease gets triggered. Some of those things might include tobacco smoking. Some of those things might include, for example, a higher weight. And it may not be necessarily just having a higher weight alone, but just for example, when you have higher weight, there are more frictional forces involving your underarms or involving the groin area. It may be those excessive frictional forces along with your genetic predisposition that might result in triggering the condition. But truth be told, we don't really have all of those answers really figured out. But in some ways we just know that some of these factors are related to having the condition.",70.0,"The transcript provides a partial answer to the question by discussing the role of genetics in hidradenitis suppurativa (HS) through the concept of a 'two-hit hypothesis,' where genetic predisposition is one factor, and environmental influences are another. It suggests that genetics may play a role in HS, but it does not specifically address why Black patients might have higher rates of HS. The transcript mentions environmental factors like smoking and weight, but it lacks a direct connection to racial differences in HS prevalence. Therefore, while it touches on the genetic aspect, it does not fully answer the question regarding racial disparities.",4850.0,CON1-CH3-Q3-Is there a hereditary factor to HS-Garg-.mp4,0.6,Is there a hereditary factor to HS?,"That's also a really great question. When I meet patients with HS, I often hear them tell me that, oh yeah, my mother has this condition or my brother has this condition. And a common question of course is can I pass it on to my children? I think we're still really trying to understand how HS runs in families, and to do that, we just need a better understanding of what genes are involved and that's ongoing research. We're still trying to understand how HS is passed within families. What I can say is at this point, there probably is some kind of genetic link, but how exactly that works, we still aren't sure yet.",60.0,"The transcript partially addresses the question by acknowledging a potential genetic link in HS (Hidradenitis Suppurativa) and mentioning ongoing research into genetic factors. However, it does not specifically address the aspect of higher rates in Black patients, which is a key component of the question. The response is more focused on familial transmission and the general understanding of genetic involvement in HS, rather than racial or ethnic differences in prevalence.",907.0,HSS Overview,0.764039755,191.0,Genetic Counseling for Hypertrophic Cardiomyopathy,0.760037959,432.0,Routine Genetic Carrier Screening,0.758819878
Is there a family history component to HS in Black families?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,is there a family history component to hs in black families?,Is there a family history component to HS in Black families?,Is there a family history component to HS in Black families?,No,,,searchable,exact-match,,,"[{""id"":1835},{""id"":1969},{""id"":1836},{""id"":1833}]",4850.0,CON1-CH3-Q3-Is there a hereditary factor to HS-Garg-.mp4,0.75,Is there a hereditary factor to HS?,"That's also a really great question. When I meet patients with HS, I often hear them tell me that, oh yeah, my mother has this condition or my brother has this condition. And a common question of course is can I pass it on to my children? I think we're still really trying to understand how HS runs in families, and to do that, we just need a better understanding of what genes are involved and that's ongoing research. We're still trying to understand how HS is passed within families. What I can say is at this point, there probably is some kind of genetic link, but how exactly that works, we still aren't sure yet.",75.0,"The transcript addresses the question by acknowledging that there is likely a genetic component to Hidradenitis Suppurativa (HS) and mentions anecdotal evidence of family history in patients. However, it does not specifically address whether there is a family history component in Black families, which was the specific focus of the question. The response provides a general answer about the genetic link in families but lacks specificity regarding racial or ethnic differences.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.6,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",60.0,"The transcript partially addresses the question by acknowledging a genetic predisposition to HS, which implies a potential family history component. However, it does not specifically address the prevalence or significance of family history in Black families, which was the focus of the question. The response is general and lacks specificity regarding racial or ethnic differences in genetic predisposition.",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.4,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",40.0,"The transcript provides some relevant information by acknowledging that African-Americans are disproportionately affected by the condition, which could imply a potential genetic or familial component. However, it does not directly address the question of whether there is a family history component to HS specifically in Black families. The transcript mentions ongoing research into genetic factors but does not provide a definitive answer regarding family history.",1620.0,Breast Cancer Awareness,0.737282932,414.0,Caregiving - the Sandwich Generation | E6,0.737166524,933.0,HSS Minute | Early Life Low Bone Density,0.73682183
Should I get genetic testing for hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,should i get genetic testing for hidradenitis suppurativa?,Should I get genetic testing for hidradenitis suppurativa?,Should I get genetic testing for Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1950},{""id"":1951},{""id"":1964},{""id"":1826}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly address the question of whether genetic testing for Hidradenitis Suppurativa is recommended or necessary. It discusses the lack of awareness and common misdiagnosis of the condition, but does not provide any information about genetic testing or its relevance to HS. Therefore, the transcript is largely irrelevant to the question asked.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.2,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",20.0,"The transcript does not directly address the question of whether genetic testing should be done for Hidradenitis Suppurativa (HS). Instead, it discusses the diagnostic process for HS, emphasizing clinical observation and symptoms. It suggests seeing a dermatologist for diagnosis but does not mention genetic testing or its relevance to HS. Therefore, the transcript provides little information related to the question about genetic testing.",5015.0,CON6-Q27-Does HS increase my risk of cancer-Daveluy.mp4,0.2,Does HS increase my risk of cancer?,"I'm glad you asked. We actually have some research that helps answer that question. I don't want to alarm you, but technically your HS does slightly increase your risk of getting skin cancer in the areas where you have HS. Any kind of chronic inflammation in the skin has that risk. So HS is included as it has that chronic inflammation. Why this is important is because the skin cancer most commonly develops in the buttocks or genital region in longstanding severe HS. So if you have bad HS for a long time, that's uncontrolled, that's when it can show up. It's important that it shows up in those areas because sometimes it's easier to just show your armpits or your chest at your visit and not show your dermatologist all the areas that your HS involves. But it's really important that you're having your dermatologist check all the areas at least once a year to make sure that there's nothing that looks like it could be skin cancer developing in those spots. It's really tricky because here's how skin cancer looks, an area of the skin that bleeds and won't heal well. And that's just how HS looks, so it can be really hard to distinguish them, and that's why it's important that you're allowing your dermatologist to examine those areas at least once a year, if not every visit, so we can make sure we're not missing that skin cancer. And like I said, don't freak out. It's not a huge elevated risk, but the risk is there, and it's important that you have those areas examined.",20.0,"The transcript does not directly address the question about genetic testing for Hidradenitis Suppurativa (HS). Instead, it focuses on the risk of skin cancer associated with HS and the importance of regular dermatological examinations. There is no mention of genetic testing or its relevance to HS, which makes the response largely irrelevant to the question asked.",2327.0,When to See a Dietitian for Your Microbiome,0.767007053,429.0,To Prenatal Genetic Test or Not?,0.76658237,2321.0,Health Conditions Impacted by the Microbiome,0.761463881
Can my children inherit HS from me?,searchable,Patient_Forums,Hidradenitis Suppurativa,can my children inherit hs from me?,Can my children inherit HS from me?,Can my children inherit HS from me?,No,,,searchable,exact-match,,,"[{""id"":1969},{""id"":1936},{""id"":1835},{""id"":1976}]",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.85,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",85.0,"The transcript provides a clear answer to the question by explaining that while there is a genetic predisposition to HS, most children of patients with HS will not develop the disease. This directly addresses the concern about inheritance, indicating that while there is a possibility, it is not highly likely. The answer could be improved by providing more specific information about the genetic factors involved or statistical likelihood, but it sufficiently answers the question as posed.",4985.0,CON4-CH2-Q5-Will I pass HS on to my kids-Okoye.mp4,0.85,Will I pass HS on to my kids?,"One of the questions I get from my patients is, will I pass this disease on to my children? And it's a tough question to answer, but it's an important one. We know that most patients with HS will not pass the disease onto their children, but it can happen, and we cannot predict who that will happen in.",85.0,"The transcript addresses the question by acknowledging the concern about hereditary transmission of HS (Hidradenitis Suppurativa) to children. It provides a clear answer that most patients with HS will not pass the disease to their children, but it also notes that it can happen and is unpredictable. This directly answers the question about the potential for inheritance, though it could be improved by providing more specific information about genetic factors or probabilities.",4850.0,CON1-CH3-Q3-Is there a hereditary factor to HS-Garg-.mp4,0.75,Is there a hereditary factor to HS?,"That's also a really great question. When I meet patients with HS, I often hear them tell me that, oh yeah, my mother has this condition or my brother has this condition. And a common question of course is can I pass it on to my children? I think we're still really trying to understand how HS runs in families, and to do that, we just need a better understanding of what genes are involved and that's ongoing research. We're still trying to understand how HS is passed within families. What I can say is at this point, there probably is some kind of genetic link, but how exactly that works, we still aren't sure yet.",75.0,"The transcript addresses the question by acknowledging the common concern about the hereditary nature of HS (Hidradenitis Suppurativa) and suggests that there is likely a genetic component. However, it also emphasizes the current lack of complete understanding and ongoing research in this area. While it provides a general answer, it does not offer a definitive yes or no, which may leave some ambiguity for the person asking the question. The response is informative but lacks specificity due to the current state of scientific knowledge.",1039.0,"Parents of Children with Diabetes | E3 
School & Activities",0.737402081,1042.0,"Parents of Children with Diabetes | E6 
Managing Illness, Family & Career",0.733453929,1043.0,"Parents of Children with Diabetes | E7 
Diabetes Community, Advice & the Future",0.729778409
How do I find a doctor who understands HS in Black patients?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,how do i find a doctor who understands hs in black patients?,How do I find a doctor who understands HS in Black patients?,How do I find a doctor who understands HS in Black patients?,No,,,searchable,exact-match,,,"[{""id"":1827},{""id"":1828},{""id"":1826},{""id"":1968}]",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.85,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",85.0,"The transcript provides a comprehensive answer to the question by acknowledging the difficulty in finding a doctor who understands HS, particularly in Black patients, and offers practical resources to address this issue. It mentions specific tools like the HS Foundation website and HSconnect.org, which have clinic finders to locate knowledgeable doctors. Additionally, it suggests patient support groups as a resource. However, it does not specifically address finding a doctor who understands HS in Black patients, which slightly limits the completeness of the answer.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.7,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",70.0,"The transcript provides general advice on finding a dermatologist with expertise in HS, such as looking for board-certified dermatologists or those affiliated with universities. However, it does not specifically address finding a doctor who understands HS in Black patients, which is a key aspect of the question. The advice to check the dermatologist's website for their focus on medical diseases is helpful, but it lacks specific guidance on cultural competence or experience with diverse patient populations.",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.7,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",70.0,"The transcript provides a general approach to finding a doctor for HS, suggesting starting with a board-certified dermatologist and possibly getting a referral to an HS specialist. However, it does not specifically address finding a doctor who understands HS in Black patients, which is the focus of the question. The response could be improved by mentioning the importance of cultural competence or experience with diverse patient populations.",907.0,HSS Overview,0.789076626,3630.0,I’m facing racism when I go to the doctor. How do I handle this?,0.785293818,1101.0,HSS Minute | Whole Lupus Patient,0.780682445
Why do Black patients with HS face longer diagnostic delays?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,why do black patients with hs face longer diagnostic delays?,Why do Black patients with HS face longer diagnostic delays?,Why do Black patients with HS face longer diagnostic delays?,No,,,searchable,loose-match,"diagnosis,risk factors,condition management",,"[{""id"":1979},{""id"":1951},{""id"":1836},{""id"":1980}]",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.4,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",40.0,"The transcript addresses general myths and misconceptions about Hidradenitis Suppurativa (HS) that could contribute to diagnostic delays, such as incorrect beliefs about its causes and who it affects. However, it does not specifically address why Black patients, in particular, face longer diagnostic delays. The transcript lacks a focused discussion on systemic issues like racial bias in healthcare, socioeconomic factors, or access to care that might specifically impact Black patients. Therefore, while it touches on relevant themes, it does not directly answer the question about racial disparities in HS diagnosis.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.4,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",40.0,"The transcript provides some context about the challenges in diagnosing HS (Hidradenitis Suppurativa) due to the lack of specific tests and the reliance on clinical observation. However, it does not directly address why Black patients specifically face longer diagnostic delays. The transcript focuses more on general diagnostic challenges rather than the racial disparities in diagnosis. To fully answer the question, the transcript would need to discuss factors such as potential biases in healthcare, differences in symptom presentation, or access to dermatologists that might contribute to longer diagnostic delays for Black patients.",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.3,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",30.0,"The transcript does not directly address the question of why Black patients with HS face longer diagnostic delays. Instead, it discusses the prevalence of the condition among different racial groups and speculates on potential genetic or physiological differences. The question specifically asks about diagnostic delays, which could involve factors like healthcare access, provider bias, or awareness, none of which are mentioned in the transcript. Therefore, the transcript only tangentially relates to the question, resulting in a low score.",407.0,Racial Disparities in Healthcare | E2,0.78254354,3596.0,Why did it take so long for obesity to be recognized as a disease?,0.780133545,1227.0,Weight Bias & Race,0.774143934
Can I find a Black dermatologist who specializes in HS?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,can i find a black dermatologist who specializes in hs?,Can I find a Black dermatologist who specializes in HS?,Can I find a black dermatologist who specializes in HS?,No,,,searchable,exact-match,,,"[{""id"":1827},{""id"":1828},{""id"":1826},{""id"":1967}]",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.6,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",60.0,"The transcript provides general guidance on finding a dermatologist who specializes in HS (Hidradenitis Suppurativa) by suggesting resources like the HS Foundation website and HSconnect.org, which offer clinic finders. However, it does not specifically address the request for a 'black dermatologist,' which is a key part of the question. The response is helpful for finding an HS specialist but lacks information on finding a dermatologist of a specific ethnicity.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.4,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",40.0,"The transcript provides general advice on how to find a dermatologist with experience in HS (Hidradenitis Suppurativa) but does not specifically address the request for a black dermatologist. It suggests looking for board-certified dermatologists, especially those affiliated with big universities, and checking their practice focus on medical skin conditions. However, it lacks guidance on finding a dermatologist of a specific ethnicity, which is a key part of the question.",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.3,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",30.0,"The transcript does not directly address the specific question of finding a black dermatologist who specializes in HS. It provides general advice on seeing a dermatologist or an HS specialist but does not address the racial or ethnic background of the dermatologist, which is a key part of the question. The response could be improved by suggesting ways to find a black dermatologist, such as using specific directories or networks that focus on black healthcare professionals.",907.0,HSS Overview,0.767892957,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.761697829,3630.0,I’m facing racism when I go to the doctor. How do I handle this?,0.759956539
Are there special considerations for HS treatment in darker skin?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,are there special considerations for hs treatment in darker skin?,Are there special considerations for HS treatment in darker skin?,Are there special considerations for HS treatment in darker skin?,No,,,searchable,no-match,,,"[{""id"":1836},{""id"":1828},{""id"":1826},{""id"":1855}]",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.2,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",20.0,"The transcript does not directly address the question about special considerations for HS treatment in darker skin. It mentions that African-Americans are disproportionately affected by the condition and speculates on potential reasons, such as genetic makeup or differences in hair follicles, but it does not provide any information on treatment considerations specific to darker skin. The response lacks details on how treatment might differ or require special attention for individuals with darker skin tones.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.2,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",20.0,The transcript does not directly address the question about special considerations for HS treatment in darker skin. It provides general advice on finding a dermatologist with experience in HS but does not mention any specific treatment considerations related to skin color or darker skin. The response lacks relevance to the specific inquiry about darker skin.,4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.1,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",10.0,"The transcript does not address the specific question about special considerations for HS treatment in darker skin. Instead, it focuses on the general advice of consulting a specialist or dermatologist for HS treatment. There is no mention of skin color or any specific considerations related to treating HS in darker skin tones.",4533.0,What Will My Treatment Be Like?,0.762954116,1101.0,HSS Minute | Whole Lupus Patient,0.759110034,3652.0,Your Guide to Sunscreen,0.753499448
Can HS scars look different on Black skin?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,can hs scars look different on black skin?,Can HS scars look different on Black skin?,Can HS scars look different on black skin?,No,,,searchable,no-match,,,"[{""id"":1821},{""id"":1836},{""id"":1964},{""id"":1860}]",4834.0,CON1-CH1-Q11-How can I prevent scarring-Daveluy.mp4,0.2,How do I prevent scarring?,"The best way to prevent scarring in HS is to turn the disease off. We are talking a lot about the window of opportunity, which is we need to try to get people's HS under control as soon as possible before it starts causing scars and tunnels to form. We've got a lot of work to do and a lot of room to improve in this area because we need to recognize HS better, get to diagnosis sooner, and get on treatment sooner. But that is our goal with treatment, is to turn the disease off so it stops causing scars and it stops causing tunnels. So a really important thing is if you're seeing scar formation, it means you probably need to step up your therapy, add onto your regimen, talk to your doctor, let them know that you're having scars and tunnels forming, and that we want to prevent that from happening by getting on effective therapies that get the disease activity to a minimum or completely stopped.",20.0,"The transcript does not directly address the question about whether HS scars look different on black skin. Instead, it focuses on the prevention of scarring in HS by controlling the disease early. There is no mention of how HS scars might appear on different skin tones, including black skin. The response lacks any specific information about the appearance of scars on black skin, which is the core of the question.",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.1,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",10.0,"The transcript does not directly address the question about how HS scars might look different on black skin. Instead, it discusses the prevalence of the condition among different racial groups, particularly African-Americans, and mentions ongoing research into why this might be the case. There is no information provided about the appearance of HS scars on black skin specifically.",5015.0,CON6-Q27-Does HS increase my risk of cancer-Daveluy.mp4,0.1,Does HS increase my risk of cancer?,"I'm glad you asked. We actually have some research that helps answer that question. I don't want to alarm you, but technically your HS does slightly increase your risk of getting skin cancer in the areas where you have HS. Any kind of chronic inflammation in the skin has that risk. So HS is included as it has that chronic inflammation. Why this is important is because the skin cancer most commonly develops in the buttocks or genital region in longstanding severe HS. So if you have bad HS for a long time, that's uncontrolled, that's when it can show up. It's important that it shows up in those areas because sometimes it's easier to just show your armpits or your chest at your visit and not show your dermatologist all the areas that your HS involves. But it's really important that you're having your dermatologist check all the areas at least once a year to make sure that there's nothing that looks like it could be skin cancer developing in those spots. It's really tricky because here's how skin cancer looks, an area of the skin that bleeds and won't heal well. And that's just how HS looks, so it can be really hard to distinguish them, and that's why it's important that you're allowing your dermatologist to examine those areas at least once a year, if not every visit, so we can make sure we're not missing that skin cancer. And like I said, don't freak out. It's not a huge elevated risk, but the risk is there, and it's important that you have those areas examined.",10.0,"The transcript does not address the question about whether HS scars look different on black skin. Instead, it discusses the risk of skin cancer associated with HS and the importance of dermatological examinations. There is no mention of skin color or how HS scars might appear differently on black skin, which is the focus of the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.740591,919.0,Can a Herniated Disc Heal on its Own?,0.740094423,907.0,HSS Overview,0.737073123
What skin care products work for HS on Black skin?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,what skin care products work for hs on black skin?,What skin care products work for HS on Black skin?,What skin care products work for HS on Black skin?,No,,,searchable,exact-match,,,"[{""id"":1815},{""id"":1944},{""id"":1857},{""id"":1828}]",4830.0,CON1-CH1-Q5-What soaps and cleansers are best for HS-Daveluy.mp4,0.6,What soaps and cleansers are best for HS?,"When it comes to HS, we actually have some studies that show some soaps and cleansers can be helpful, and we have others that we don't have studies, but have used for a long time, and our experience tells us they can help. One of the most common is benzoyl peroxide wash, which we sometimes use for acne as well. It's an antibacterial wash that you can use on the areas of HS every time you have a shower, and it's been shown to be helpful. Another one is called Chlorhexidine. And both of those are available over the counter or by prescription, and it similarly, chlorhexidine kills bacteria so you can try out and see which one works better for you and seems to help. Sometimes you can even rotate between them. Another one is soaps that contain zinc. So zinc may be in some dandruff shampoos or you can get zinc bar soap by itself as well. And zinc is not only antibacterial but a little anti-inflammatory. So it's been shown to be helpful for HS. And lastly is diluted bleach. So it sounds a little scary to put bleach on your skin, but you're diluting it in water to the point that it's about like swimming pool chlorine bleach. So all of these things can be helpful ways to sort of clean the areas that are affected by HS, maybe actually get the disease under a little bit better control. For most patients, you're going to need more than a soap or a cleanser, but I recommend them to all my HS patients because you're going to be washing anyway, why not wash those areas with something that can be helpful.",60.0,"The transcript provides a general overview of skincare products that can be used for managing HS (Hidradenitis Suppurativa), mentioning benzoyl peroxide wash, chlorhexidine, zinc-containing soaps, and diluted bleach. However, it does not specifically address the effectiveness of these products on Black skin, which was a key aspect of the question. The response lacks information on how these products might interact with or affect Black skin specifically, such as considerations for pigmentation, sensitivity, or any specific studies or experiences related to Black skin. Therefore, while the transcript offers useful general advice for HS, it does not fully answer the question as it pertains to Black skin.",4886.0,CON2-CH2-Q4-Are there soaps that work best to get rid of the odor-Brooks.mp4,0.6,What soaps work best for the odor caused by HS?,"As far as managing the odor, the best thing that we recommend is CLN body wash. We've actually run a survey study of 145 patients. The majority of the patients were stage two and three and have had HS for 15 plus years. So, they're your lifers who are like, sure, send me your body wash, I'll try it and see what happens. And the results we had were actually amazing. We had a 62 % reduction in the frequency and duration of flares. We had a two point reduction in pain and we had a huge decrease in odor as well. So I would highly recommend that. A lot of us are recommended to use Hibiclens as a cleanser, but the problem with Hibiclens is it's very, very drying on our skin. So you're almost creating another problem in order to solve for the odor problem. So we recommend CLN because it can be used every day. It's gentle and safe and the efficacy is wonderful. So you can use other antibacterial washes on your HS, but they may not have the same efficacy and do as good of a job of helping with the odor as clean body wash does.",60.0,"The transcript provides information about a specific skin care product, CLN body wash, which is recommended for managing odor and reducing flares in HS patients. It also mentions Hibiclens but notes its drying effect. However, the transcript does not specifically address the effectiveness of these products on Black skin, which is a key aspect of the question. Therefore, while it offers relevant information about HS skin care, it lacks specificity regarding Black skin, resulting in a moderate score.",4888.0,CON2-CH2-Q2-Is there any way to get rid of the smell-Daveluy.mp4,0.4,Is there any way to get rid of the smell?,"That's a great question and a lot of my patients ask me how do I deal with the odor? How do I get rid of the smell of my HS? And fortunately, we do have a few treatment options. We haven't had any really big studies that specifically looked at odor because odor is really hard to measure in a study, but we have a lot of experience that we can build on. One of the main things that we use for the odor is antibacterial washes that help to kill some of that bacteria that's living on the skin and releasing the odor. This could be something called benzoyl peroxide, which you may have heard of as an acne wash. It actually does have some evidence. It can even help the HS itself. So it's an antibacterial wash that you can use to kill those bacteria and normalize the flora or the bacteria living on your skin. Similarly, there's one that's called chlorhexidine. It's another wash that has an activity against those bacteria to sort of cleanse the skin of them. And then some people will even use a diluted bleach bath where you add a very small amount of bleach into a bath and that way it's sort of like a swimming pool, chlorine bleach, and it has a little bit of antibacterial effect. And another wash that can be used is actually zinc. So with some dandruff shampoos, the active ingredient is zinc ion and it's antibacterial and it also calms inflammation a little bit. So it might be a two for one deal. There's no one wash that's the clear winner, so you may have to try each one out, see which one works the best for you, and then stick with it. Or I even have some patients who find it useful to rotate through washes and throughout the week use different washes on different days because they all work a little bit differently. Sometimes topical antibiotics can be used for HS, too. The most common one is called clindamycin and it comes in a lotion or a solution, and that can be useful if your dermatologist prescribes it for you. The washes are available over the counter, so that's something that you can use on your own and try out on your own, but you can also work with your dermatologist to figure out which one's the best for you. And then sometimes when we can't get the odor under control completely, we have other ways to block it from interfering with your life. So there's clothing that has charcoal infused into certain areas because charcoal works by filtering things out. You may have heard of water filters that contain charcoal. And so the charcoal can sort of absorb some of that smell as it's passing through the fabric of the clothing so it doesn't get out and people around you can't smell it or even you don't have to smell it because a lot of my HS patients say, not only am I worried other people will smell me, but I don't like the smell myself, which I don't blame them. It's not a pleasant odor when it flares up.",40.0,"The transcript primarily addresses the issue of odor management in HS (Hidradenitis Suppurativa) and discusses various antibacterial washes and treatments that can help with odor control. However, it does not specifically address skin care products for HS on Black skin, which was the focus of the question. While some of the mentioned products may be applicable, the transcript lacks specific guidance or considerations for Black skin, such as potential differences in skin sensitivity, pigmentation issues, or culturally relevant products. Therefore, the answer is only partially relevant to the question asked.",3652.0,Your Guide to Sunscreen,0.748520255,3651.0,How to Check Your Skin,0.745415568,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.73956573
Can laser treatments work on dark skin with HS?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,can laser treatments work on dark skin with hs?,Can laser treatments work on dark skin with HS?,Can laser treatments work on dark skin with HS?,No,,,searchable,loose-match,treatments,,"[{""id"":1908},{""id"":1828},{""id"":1826},{""id"":1855}]",4953.0,CON3-CH3-Q4-What are the different types of surgery-Daveluy.mp4,0.3,What happens during the different types of surgery?,"Glad you asked because there's a wide variety of surgeries available for HS. One that is a surgery but doesn't really fit with the others is actually laser hair removal. And it's been shown to be beneficial, especially earlier in the disease. By getting rid of the hair follicles, it seems to help calm the HS down and prevent it from flaring up. So it's sort of a surgery because it's not a medication, but it doesn't really fit as well with the other surgeries. When we think about surgeries to deal with the tunnels or the spots that won't go away, those surgeries usually aim to either remove the tunnel or to get rid of the lining of the tunnel. And we can think of them from the easiest one to recover from all the way up to the one that's a little bit more work to recover. So one that you might see in the office a lot is injections. Sometimes we inject medication into or around HS lesions to help focus it right in that area and calm them down. And for some patients that can be a huge benefit. I tell all my patients that if you need to come in for an injection, you can call the office, say my HS is flaring, I need an injection, and my staff knows to get you in as soon as possible so we can give you that injection. So that might be something you want to talk to your doctor about if injections do work well for you. The next layer up is something we call deroofing. Deroofing is where if you think of the tunnel as sort of a pocket under your skin, we take the roof off of it, scrape out the lining from the floor, and then let it heal in from the bottom and it just turns into a scar that doesn't get swollen and drain and cause you pain the way that that tunnel did. And so usually it's not too much recovery time after deroofing maybe a few weeks of keeping it covered with petroleum jelly and a bandage while it heals. And then we can go all the way up to the most invasive, we'll say surgery, which is excision. And with excision we actually remove the tunnel and the skin around it. So we often reach for this in patients who have a lot of tunnels and a lot of scars. We sort of remove the skin in the area and the HS goes with it. We often let that heal by what we call secondary intention, which is again, letting it heal in not sewing it closed because we don't want to make a new pocket. But depending on your surgeon and your disease and the body area and the surgery, they may sew it up or they may do a flap where they move some skin into the area to close it or a graft where they take skin from another part of the body and sew it there to help it heal up. So it's really important if you're thinking about surgery and talking to your doctor that you talk about the whole process, what's going to happen. The other piece of surgery, that's sort of the non-surgery, but it isn't, is incision and drainage, also known as lancing. So this can give temporary relief. When you have a pocket full of pus that's really painful, just draining it by lancing it, can be really helpful. The problem with IND, or incision and drainage, is that the spots usually come back pretty much always come back because you've left that lining, you've just drained it to get temporary relief. So I see a lot of patients who say, I've had over 20 surgeries for my HS, I don't want to talk about surgery. And I tell them, IND, all those lancings, those don't count. That's not a curative surgery. All the other surgeries that we do for HS attempt to cure it, that's just temporary relief. So let's talk about some of the surgeries that can actually lead to a cure for those spots.",30.0,"The transcript discusses various surgical options for treating HS, including laser hair removal, but does not specifically address the effectiveness of laser treatments on dark skin. The focus is more on the general benefits of laser hair removal for HS rather than its applicability or effectiveness on different skin types. Therefore, the answer is incomplete regarding the specific question about dark skin.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.2,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",20.0,"The transcript does not directly address the question about the effectiveness of laser treatments on dark skin with HS. Instead, it provides general advice on finding a dermatologist with experience in HS, which is not relevant to the specific inquiry about laser treatment efficacy on dark skin.",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.2,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",20.0,The transcript does not directly address the question about the effectiveness of laser treatments on dark skin with HS. It focuses on the importance of consulting a specialist or dermatologist for HS management but does not provide information on laser treatments or their suitability for dark skin. The response lacks specific details related to the question asked.,4492.0,Is My Treatment Working?,0.739154339,940.0,HSS Minute | Minimally Invasive Lumbar Surgery,0.738377154,1101.0,HSS Minute | Whole Lupus Patient,0.736530542
Are there culturally competent HS support groups?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,are there culturally competent hs support groups?,Are there culturally competent HS support groups?,Are there culturally competent HS support groups?,No,,,searchable,loose-match,,,"[{""id"":1939},{""id"":1813},{""id"":1841},{""id"":1978}]",4835.0,CON1-CH1-Q15-Are there groups that support parents and caregivers-Brooks.mp4,0.4,Are there groups that support parents and caregivers?,"Yes, there are groups for parents and caregivers. So HS Connect has a teen group and we also have a parent support group as well. So we find a lot of parents coming into our parent support group, especially looking for understanding and relief and how to handle these situations because these are your children, right? You want to help them and it pains you to see them going through this process. So, we highly encourage parents to join us, whether you have HS or you don't have HS. It doesn't mean that you lack the experience that your child needs, but by joining these groups, there's normalcy in the feelings that you will find other parents experiencing. And just the exchange of information between parents is a wonderfully beautiful thing to watch because you're gaining insight from other people along that same journey.",40.0,"The transcript mentions support groups related to HS (Hidradenitis Suppurativa) but does not specifically address whether these groups are culturally competent. It talks about the existence of teen and parent support groups and the benefits of joining them, but it does not provide information on cultural competence or how these groups cater to diverse cultural needs. Therefore, the answer is only partially relevant to the question.",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.4,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",40.0,"The transcript provides a general overview of the benefits of HS support groups and mentions specific groups like Hope For HS and HSconnect.org. However, it does not directly address the question of whether there are culturally competent HS support groups. The response lacks specific information about cultural competence, such as whether these groups cater to diverse cultural backgrounds or offer culturally sensitive support. Therefore, while it partially answers the question by listing support groups, it does not fully address the cultural competence aspect.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.4,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",40.0,"The transcript provides general information about the existence of support groups for HS (Hidradenitis Suppurativa) and emphasizes the importance of community and a supportive care team. However, it does not specifically address the question of whether there are culturally competent HS support groups. The response lacks details on cultural competence, which involves understanding and respecting cultural differences and providing support that is sensitive to these differences. Therefore, while the transcript partially addresses the concept of support groups, it does not adequately answer the specific question about cultural competence.",3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.786475837,866.0,A Hub of Resources at Your Fingertips,0.772679746,3490.0,Support | Dr. Tiffany Lowe Clayton,0.769048274
How do I advocate for myself as a Black patient with hidradenitis suppurativa?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,how do i advocate for myself as a black patient with hidradenitis suppurativa?,How do I advocate for myself as a Black patient with hidradenitis suppurativa?,How do I advocate for myself as a Black patient with hidradenitis suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1828},{""id"":1859},{""id"":1951},{""id"":1950}]",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.5,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",50.0,"The transcript provides general advice on finding a dermatologist with experience in treating hidradenitis suppurativa (HS), which is relevant to advocating for oneself as a patient. However, it does not specifically address the unique challenges or strategies for Black patients, such as potential biases in healthcare or specific advocacy tips related to racial disparities. The response lacks tailored advice for Black patients, which is a crucial aspect of the original question.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.4,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",40.0,"The transcript provides general information about hidradenitis suppurativa (HS) and treatment options, but it does not specifically address how a Black patient can advocate for themselves. It mentions the importance of discussing symptoms with a doctor and raising public awareness, but lacks specific strategies for self-advocacy, especially in the context of racial disparities in healthcare. The response could be improved by including advice on how to communicate effectively with healthcare providers, seek culturally competent care, and navigate potential biases in the healthcare system.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.4,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",40.0,"The transcript provides some general advice on how to approach a doctor with symptoms that may suggest hidradenitis suppurativa (HS), such as describing specific symptoms and locations of lesions. However, it does not specifically address the unique challenges or strategies for advocating as a Black patient, which is a key aspect of the question. The transcript lacks guidance on potential biases in healthcare, cultural competency, or specific advocacy strategies that might be relevant for Black patients.",3630.0,I’m facing racism when I go to the doctor. How do I handle this?,0.769568861,3490.0,Support | Dr. Tiffany Lowe Clayton,0.765689731,1093.0,Breast Cancer | Feeling Empowered,0.76266861
Why don't more doctors know about HS in the Black community?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,why don't more doctors know about hs in the black community?,Why don't more doctors know about HS in the Black community?,Why don't more doctors know about HS in the Black community?,No,,,searchable,loose-match,,,"[{""id"":1836},{""id"":1967},{""id"":1827},{""id"":1980}]",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.4,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",40.0,"The transcript provides some context about the prevalence of HS (Hidradenitis Suppurativa) in the Black community, mentioning that African-Americans are disproportionately affected. However, it does not directly address why more doctors might not know about HS in the Black community. The response lacks information on potential factors such as medical education, awareness, or systemic issues that could contribute to the lack of knowledge among doctors. Therefore, while it touches on the topic, it does not fully answer the question posed.",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.3,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",30.0,"The transcript does not directly address the specific question of why more doctors don't know about HS in the Black community. It provides a general statement about clinicians' unfamiliarity with advances in managing HS but does not discuss any specific factors related to the Black community or reasons for the lack of awareness among doctors. The response lacks details on potential systemic issues, educational gaps, or cultural factors that might contribute to the problem. Therefore, it only partially addresses the question.",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.3,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",30.0,"The transcript does not directly address the question of why more doctors don't know about HS in the Black community. It discusses the general difficulty in finding HS experts and mentions resources for finding knowledgeable doctors, but it does not specifically address the lack of awareness among doctors regarding HS in the Black community or provide reasons for this issue.",3490.0,Support | Dr. Tiffany Lowe Clayton,0.783127785,907.0,HSS Overview,0.781125307,407.0,Racial Disparities in Healthcare | E2,0.778383732
Can I find HS clinical trials for Black patients?,searchable,Black_Patients_Focus,Hidradenitis Suppurativa,can i find hs clinical trials for black patients?,Can I find HS clinical trials for Black patients?,Can I find HS clinical trials for Black patients?,No,,,searchable,exact-match,clinical trials,,"[{""id"":1845},{""id"":1844},{""id"":1836},{""id"":1827}]",4871.0,CON1-CH6-Q2-Are there any clinical trials for HS-Garg.mp4,0.7,Are there clinical trials for HS?,"So when you have a chronic condition and the currently available treatments aren't effectively addressing your disease, that's really the time to think about participation in a clinical trial because that’s where you get the access to the most innovative therapies that we have. And finding a clinical trial can be easy. The main resource that I look to is clinicaltrials.gov. If you go to the website, punch in your disease, it will tell you all the trials that are happening for HS and where you can find them.",70.0,"The transcript provides a general approach to finding clinical trials for a condition like HS (Hidradenitis Suppurativa) by suggesting the use of clinicaltrials.gov, which is a comprehensive resource for finding clinical trials. However, it does not specifically address the aspect of finding trials specifically for Black patients. The answer could be improved by mentioning how to filter or search for trials that focus on or include diverse populations, or by suggesting additional resources or strategies for finding trials that cater to specific demographic groups.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.2,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",20.0,"The transcript does not directly address the specific question about finding clinical trials for Black patients with HS. It provides general information about ongoing research and clinical trials for HS, but it does not mention any resources or specific trials that focus on Black patients. The response lacks guidance on how to find such trials or any mention of diversity in clinical trials.",4849.0,CON1-CH3-Q4-Is there a racial component in the risk of developing HS-Garg-.mp4,0.1,Is there a racial component to the risk of developing HS?,"People of any race or ethnicity can get this condition in the U.S. population. Caucasians probably have it most often, but what we've also learned is that people of color, and in particular, African-Americans, are disproportionately affected with this condition. We're trying to understand why black Americans may be disproportionately affected by this condition. We don't know yet if it has something to do with genetic makeup or something as simple as just something different about the hair follicle with certain race or ethnic groups compared to others.",10.0,"The transcript does not address the question about finding clinical trials for Black patients with HS. It discusses the prevalence of HS among different racial groups, particularly African-Americans, but does not provide any information on clinical trials or how to find them.",4288.0,How to Find and Participate in Clinical Trials,0.803533316,4543.0,Why Should I Consider Being In A Clinical Trial?,0.797097147,21.0,Clinical trials,0.78761375
Is HS more common in young adults?,searchable,Expert_Clinical,Hidradenitis Suppurativa,is hs more common in young adults?,Is HS more common in young adults?,Is HS more common in young adults?,No,,,searchable,exact-match,,,"[{""id"":1953},{""id"":1979},{""id"":1967},{""id"":1836}]",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.6,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",60.0,"The transcript mentions that HS is most commonly seen between the ages of 20 to 40, which partially answers the question by indicating that HS is prevalent in young adults. However, it does not directly address whether HS is more common in young adults compared to other age groups, nor does it provide specific prevalence data or comparisons. The focus is more on the coexistence of HS and acne rather than the age-related prevalence of HS.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.2,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",20.0,"The transcript does not directly address the question of whether HS is more common in young adults. It focuses on dispelling myths about HS related to hygiene, weight, smoking, race, and gender, but does not provide information about age prevalence. The discussion is more about general misconceptions and the need for accurate representation of HS across different demographics, without specific mention of age groups.",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.1,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",10.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) is more common in young adults. Instead, it discusses the general familiarity of clinicians with the disease and the importance of finding a knowledgeable clinician. There is no information provided about the prevalence of HS in young adults or any age-related data, which is necessary to answer the question.",380.0,Millennial Health,0.77045995,418.0,Anxiety | E7,0.769164085,933.0,HSS Minute | Early Life Low Bone Density,0.760219693
Why did my HS start in my 20s?,searchable,Patient_Forums,Hidradenitis Suppurativa,why did my hs start in my 20s?,Why did my HS start in my 20s?,Why did my HS start in my 20s?,No,,,searchable,loose-match,,,"[{""id"":1979},{""id"":1969},{""id"":1953},{""id"":1970}]",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.3,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",30.0,"The transcript addresses common myths about HS (Hidradenitis Suppurativa) and emphasizes that it can affect anyone, regardless of various factors like hygiene, weight, smoking, race, or gender. However, it does not directly answer the question of why HS might start in one's 20s. The transcript lacks specific information about the onset age of HS or potential triggers or risk factors that could explain why it begins in the 20s. Therefore, while it provides some context about HS, it does not adequately address the specific question asked.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.3,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",30.0,"The transcript provides some context about the genetic predisposition to HS (Hidradenitis Suppurativa) but does not directly address why the condition might start in someone's 20s. It lacks specific information about potential triggers or risk factors that could explain the onset of HS in early adulthood, such as hormonal changes, lifestyle factors, or environmental influences. Therefore, it only partially answers the question.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.2,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",20.0,"The transcript does not directly address why HS (Hidradenitis Suppurativa) starts in the 20s. It discusses the commonality of acne and HS in the age range of 20 to 40 and the possibility of having both conditions, but it does not provide a specific explanation for the onset of HS in the 20s. The response lacks information on potential causes or risk factors that could explain the timing of HS onset.",3515.0,Why am I gaining more weight as I get older?,0.763143063,3626.0,Why am I gaining more weight as I get older?,0.754179716,380.0,Millennial Health,0.750637591
Can teenagers get hidradenitis suppurativa?,searchable,Expert_Clinical,Hidradenitis Suppurativa,can teenagers get hidradenitis suppurativa?,Can teenagers get hidradenitis suppurativa?,Can teenagers get Hidradenitis Suppurativa?,No,,,searchable,no-match,,,"[{""id"":1950},{""id"":1953},{""id"":1855},{""id"":1952}]",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.2,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",20.0,"The transcript does not directly answer the question of whether teenagers can get Hidradenitis Suppurativa. It discusses the general lack of awareness and common misdiagnosis of the condition, but does not provide any information about the age groups affected by HS, including teenagers. Therefore, it does not address the specific inquiry about teenagers.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.2,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",20.0,"The transcript does not directly address the question of whether teenagers can get Hidradenitis Suppurativa (HS). It discusses the common age range for HS (20 to 40 years) and mentions the coexistence of acne and HS, but it does not provide information about the possibility of teenagers developing HS. Therefore, the transcript is largely irrelevant to the specific question asked.",4879.0,CON2-CH1-Q9-Can I be treated for acne and HS at the same time-Okoye.mp4,0.2,Can I be treated for acne and HS at the same time?,"Many patients with HS actually have acne as well. And so yes, you can be treated for both at the same time. And some of the medications that we use for HS also happen to treat acne.",20.0,"The transcript does not directly answer the question of whether teenagers can get Hidradenitis Suppurativa (HS). It discusses the treatment of HS and acne, implying that patients with HS might also have acne, but it does not address the age group or the possibility of teenagers developing HS. The connection to teenagers is not made, leaving the question largely unanswered.",2321.0,Health Conditions Impacted by the Microbiome,0.745492,3772.0,Understanding Type 1 and Type 2 Diabetes,0.742815137,3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.740485847
How do I manage HS as a college student?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage hs as a college student?,How do I manage HS as a college student?,How do I manage HS as a college student?,No,,,searchable,loose-match,,,"[{""id"":1826},{""id"":1841},{""id"":1967},{""id"":1970}]",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.4,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",40.0,"The transcript provides some general advice on managing HS by suggesting seeing a specialist or a dermatologist, but it does not specifically address the unique challenges or considerations for managing HS as a college student. It lacks tailored advice for balancing treatment with college life, such as managing stress, accessing healthcare on campus, or handling potential impacts on social and academic activities.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.4,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",40.0,"The transcript provides some general advice on managing the emotional and social aspects of Hidradenitis Suppurativa (HS), such as connecting with support groups and having a trusted care team. However, it does not specifically address the unique challenges a college student might face, such as managing HS while attending classes, dealing with stress, or accessing healthcare on campus. The response lacks practical strategies or tips tailored to a college student's lifestyle, which would be necessary for a more comprehensive answer.",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.3,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",30.0,"The transcript acknowledges the importance of finding a knowledgeable clinician to manage HS, which is a relevant point for a college student. However, it does not provide specific advice or strategies tailored to managing HS as a college student, such as lifestyle adjustments, stress management, or how to access healthcare services on campus. The response lacks practical guidance and details that would directly address the unique challenges faced by a college student with HS.",4647.0,Managing Your Mental Health,0.761414647,2326.0,How to Manage Overwhelming Stress Levels,0.757892787,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.753036618
Can hidradenitis suppurativa affect my social life in my 20s?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hidradenitis suppurativa affect my social life in my 20s?,Can hidradenitis suppurativa affect my social life in my 20s?,Can hidradenitis suppurativa affect my social life in my 20s?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1927},{""id"":1973},{""id"":1953},{""id"":1950}]",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.85,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",85.0,"The transcript addresses the social implications of hidradenitis suppurativa (HS) by explaining that it is not contagious and cannot be spread to others, which is a common concern in social interactions. It also acknowledges the potential stress of discussing HS with others and suggests educating partners about the condition, which is relevant to social life. However, it does not explicitly discuss broader social life impacts beyond intimate relationships, such as friendships or social activities, which could be relevant to someone in their 20s. Therefore, while the transcript provides a good answer, it could be more comprehensive in addressing the full scope of social life.",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.75,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",75.0,"The transcript addresses the impact of hidradenitis suppurativa (HS) on social life, particularly focusing on intimacy and relationships, which are significant aspects of social life in one's 20s. It discusses the challenges of intimacy due to physical symptoms and the importance of communication with partners. However, it doesn't explicitly cover other social aspects like friendships, work, or general social interactions, which could also be affected by HS. Therefore, while it provides a detailed answer regarding intimate relationships, it doesn't fully address the broader scope of social life.",5023.0,CON6-Q13-Was I misdiagnosed with acne-Garg.mp4,0.2,Was I mis-diagnosed with acne?,"Having acne alone, especially between the ages of 20 to 40, where we most commonly see HS, acne alone is a common problem, and we know that patients with HS also frequently have or develop acne. And so it doesn't mean that if you have acne all along, and then were diagnosed with HS, it doesn't mean that you were misdiagnosed. It just may mean that you have both conditions.",20.0,"The transcript does not directly address the question about the impact of hidradenitis suppurativa (HS) on social life in one's 20s. Instead, it discusses the relationship between acne and HS, which is not relevant to the social implications of the condition. The response lacks any mention of social life, emotional impact, or how HS might affect social interactions, which are crucial to answering the question effectively.",2321.0,Health Conditions Impacted by the Microbiome,0.750426471,4642.0,Coping With Cancer,0.745041,4533.0,What Will My Treatment Be Like?,0.735792518
How do I date in my 30s with HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,how do i date in my 30s with hs?,How do I date in my 30s with HS?,How do I date in my 30s with HS?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1972},{""id"":1929},{""id"":1931},{""id"":1841}]",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.85,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",85.0,"The transcript provides a comprehensive and empathetic response to the question about dating in one's 30s with HS (Hidradenitis Suppurativa). It addresses the emotional aspects of dating with a chronic condition, emphasizing the importance of vulnerability, communication, and self-worth. The speaker shares personal experiences and offers advice on discussing HS with potential partners, highlighting the need for mutual understanding and support. However, the response could be improved by including more practical dating tips or strategies specific to navigating the dating scene with HS, which would make it more actionable.",4982.0,CON4-CH1-Q4-How do I date with HS-Daveluy.mp4,0.75,How do I date with HS?,"Disclosing a chronic health condition like HS can be really stressful when you're thinking about entering a relationship. When do you tell the person? How do you tell them? Do you do it right before intimacy? Do you do it when you're moving toward intimacy? Are you sending them a signal that you want to be intimate by having the conversation? So there's a lot that goes into it. And I think one of the best things that I've encountered is patients going to support groups that talk about these issues. It can be super helpful to know how other people have navigated it - when they disclose, when they didn't - because you're going to have to find what works for you. There's no one size fits all answer of when to talk to your partner about HS. You've got to think about your personality. Are you out there educating the world about HS and passionate about everyone knowing about it and you can't wait to tell a partner? Or, are you a little more private, keeping things to yourself and only disclosing when the time comes and you need to? And hearing perspectives from other patients going through it can be really helpful to find something that works for you.",75.0,"The transcript addresses the question by focusing on the challenges of dating with HS (Hidradenitis Suppurativa) in one's 30s, particularly around the topic of disclosing the condition to a partner. It provides practical advice on considering personal comfort levels and suggests joining support groups to learn from others' experiences. However, it doesn't cover other aspects of dating in one's 30s with HS, such as managing symptoms during dates or the emotional impact of HS on self-esteem and relationships. Therefore, while it provides valuable insights, it doesn't fully address all potential concerns someone might have about dating with HS in their 30s.",4980.0,CON4-CH1-Q6-My relationship is deteriorating because of my HS-what can I do-Daveluy.mp4,0.75,"My relationship is deteriorating because of my HS, what can I do?","That's a tough question. I think there are a few elements there that can help any relationship with HS or without. One is open, clear communication. So talk to your partner about the struggles that you're having and what is interfering with the relationship. We have a tendency to want to bottle things up and not put our problems on other people, but I'm sure your partner will actually be grateful to know what's going on because they're probably feeling that the relationship isn't going super great as well, and they want to stay with you and make it work. And so having that open conversation about how your HS is impacting you, and why it is impacting your intimacy, can be a great way to open that door for your partner to also talk about how things are going in the relationship and what maybe you could modify to help things. It can be great to reach out to a mental health professional. I know there's a lot of stigma around getting help from a professional. It doesn't mean you're crazy, it just means you need a little bit of help. I think everybody should have a therapist. It's like a coach who's just helping you navigate life and deal with your issues and gives you that outside perspective. That can be really helpful, especially for relationship counseling, to have that outsider say, here's my viewpoint and here's what may be helpful.",75.0,"The transcript provides a thoughtful response to the question by emphasizing the importance of open communication with a partner about the challenges of living with HS (Hidradenitis Suppurativa) and how it affects the relationship. It suggests discussing the impact of HS on intimacy and encourages seeking help from a mental health professional, which can be beneficial for relationship counseling. However, the response could be improved by offering more specific advice on dating strategies or addressing common concerns for individuals dating in their 30s with HS, such as managing flare-ups or dealing with self-esteem issues.",1067.0,"Dating with Diabetes | E3 
Self-Awareness and Communication",0.746677101,1069.0,"Dating with Diabetes | E5 
Intimacy and Body Confidence",0.743893504,1066.0,"Dating with Diabetes | E2 
Sharing and Understanding Diabetes",0.743500948
Will HS get worse as I get older?,searchable,Patient_Forums,Hidradenitis Suppurativa,will hs get worse as i get older?,Will HS get worse as I get older?,Will HS get worse as I get older?,No,,,searchable,exact-match,"condition overview,prognosis",,"[{""id"":1945},{""id"":1969},{""id"":1838},{""id"":1823}]",5019.0,CON6-Q1-Why is my HS getting worse-Garg.mp4,0.85,Why is my HS getting worse?,"Unfortunately, what we are appreciating about this condition is that once you get it, there is often a slow trajectory to it becoming worse over time and that at some point we feel like the symptoms maybe even burn out a little bit. When that happens is a little bit variable from person to person. But we have appreciated that over time that the condition can get worse. What does that mean? You might have more spots in the same area or you may develop new areas with other kinds of boils, for example. Both of those are ways the condition can get worse.",85.0,"The transcript provides a clear answer to the question, explaining that HS (Hidradenitis Suppurativa) often worsens over time, although the progression can vary between individuals. It mentions that symptoms may eventually 'burn out,' but overall, the condition tends to get worse, with more spots or new areas developing. The response is detailed and directly addresses the question, but it could be improved by discussing factors that might influence the progression or mentioning potential treatments to manage the condition.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.2,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",20.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) will get worse with age. It provides some background information about the genetic predisposition and family history related to HS, but it does not discuss the progression of the disease over time or how it might change as a person ages. Therefore, it only partially addresses the context of the question and does not provide a clear answer.",4858.0,"CON1-CH4-Q1-I am stressed when I have flare-ups, does my increased stress make my HS worse-Okoye.mp4",0.2,"I get stressed when I have flare-ups, does my increased stress make my HS worse?","Stress and HS have a really important relationship that goes in both directions. So HS flares cause stress and stress causes HS flares. And so it's really important to manage both. If you manage your HS well, you're going to have fewer flares, which will hopefully cause less stress. And if you are stressed, you are anxious, you're depressed, then managing that will actually decrease how many HS flares you have. So you have to treat both.",20.0,"The transcript does not directly address whether HS (Hidradenitis Suppurativa) will get worse with age. Instead, it focuses on the relationship between stress and HS, suggesting that managing stress and HS can reduce flares. While this information is useful for managing the condition, it does not answer the specific question about the progression of HS with age.",3515.0,Why am I gaining more weight as I get older?,0.767764091,3626.0,Why am I gaining more weight as I get older?,0.763122499,933.0,HSS Minute | Early Life Low Bone Density,0.750580251
Can HS improve after age 40?,searchable,Patient_Forums,Hidradenitis Suppurativa,can hs improve after age 40?,Can HS improve after age 40?,Can HS improve after age 40?,No,,,searchable,no-match,,,"[{""id"":1965},{""id"":1834},{""id"":1969},{""id"":1953}]",5013.0,CON6-Q28-When should I start treatment for HS-Garg.mp4,0.2,When should I start treatment for HS?,"So with HS, early is always better. We really feel like when we can catch this disease in its earlier stages, we have a much better chance at controlling the symptoms that you have today and slow or even altogether prevent it from getting worse over time.",20.0,"The transcript does not directly address the question of whether HS can improve after age 40. It focuses on the importance of early intervention in managing HS, suggesting that early treatment can help control symptoms and prevent progression. However, it does not provide any information about the potential for improvement specifically after age 40, which is the core of the question.",4853.0,CON1-CH3-Q2-If I lose weight will my HS go away-Garg.mp4,0.1,If I lose weight will my HS go away?,"The question around weight is also one of the more common questions I get. So I'm glad you're asking about it, and there's kind of a lot to think about here. But again, I just want you to understand most importantly, there are many factors involved in addition to higher weight in developing HS. So weight alone is not a reason, or the only reason, one person has this condition. Our studies show that people with higher weight are more likely to have the condition. Our studies also show, however, that losing weight doesn't necessarily mean your HS is simply going to melt away or even get better. Having said that, we also know that patients with HS have lots of other medical conditions that can be worsened or exacerbated by higher weight. So what I try to explain to my HS patients is that having a better, or even ideal body weight, is important for your overall health. It potentially influences how your HS goes. And so it's important in general to consider weight management, but it doesn't necessarily mean that your HS will go away or that you will get it to be cured simply by losing weight.",10.0,"The transcript does not directly address the question of whether HS can improve after age 40. It focuses on the relationship between weight and HS, suggesting that weight management is important for overall health and may influence HS, but it does not provide information about age-related changes in HS. Therefore, it does not answer the question about improvement after age 40.",5003.0,CON6-Q25-Does having HS mean my kids will get it-Gelfand.mp4,0.1,Does having HS mean my kids will get it?,"HS is a complicated disease. There is some genetic predisposition to HS, but most patients who develop it don't have a family history, and most children of patients who have HS will never develop it.",10.0,"The transcript does not directly address the question of whether HS (Hidradenitis Suppurativa) can improve after age 40. It provides some background information about the genetic predisposition and family history related to HS, but it does not discuss the progression or improvement of the disease with age. Therefore, it is not a relevant or complete answer to the question asked.",933.0,HSS Minute | Early Life Low Bone Density,0.759629607,1820.0,"House Calls | Healthy Brain, Fuller Life",0.752129674,3515.0,Why am I gaining more weight as I get older?,0.747962713
How do I manage long-term hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i manage long-term hidradenitis suppurativa?,How do I manage long-term hidradenitis suppurativa?,How do I manage long-term hidradenitis suppurativa?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1859},{""id"":1911},{""id"":1890},{""id"":1908}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.75,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",75.0,"The transcript provides a reasonable answer to the question about managing long-term hidradenitis suppurativa (HS) by discussing treatment options such as surgery and medication to control disease activity and drainage. It emphasizes the importance of consulting a doctor to tailor the approach based on individual needs. However, it lacks specific details on long-term management strategies, lifestyle modifications, or preventive measures, which would provide a more comprehensive answer to the question.",4948.0,CON3-CH3-Q7-Will I keep needing surgery-Daveluy.mp4,0.75,Will I keep needing surgery?,"There's a lot of elements that go into answering that question, which again, just talks to how complicated HS can be. Some patients need only one surgery just to get rid of one spot and then they don't need it again. Other patients need a series of surgeries to treat different areas of the body where they have tunnels or lesions that require surgery. And then the other aspect of that is the disease activity. So we always aim to get your disease under control with medications and then do surgery for the spots that are left. But if you don't keep the disease under control, it may flare up again, cause new tunnels, and then you may need surgery again in that area. So, it's a little unpredictable, but we do our best to treat with both medications and surgeries to give the best care and the best chance that you won't need any surgery in the future.
",75.0,"The transcript provides a general overview of managing hidradenitis suppurativa (HS) by discussing the use of medications and surgeries. It emphasizes the importance of controlling disease activity with medications to prevent flare-ups and reduce the need for surgeries. However, it lacks specific details on long-term management strategies, such as lifestyle changes, specific medications, or other non-surgical interventions that might be beneficial for HS patients. The response is somewhat comprehensive but could be improved with more detailed guidance on long-term management.",4926.0,CON3-CH1-Q6-When should I be on oral antibiotics vs a topical one-Daveluy.mp4,0.7,When should I be on oral antibiotics vs. a topical one?,"We often use topical antibiotics which go on the skin in early disease HS, where it hasn't gotten as severe - in those stages where you still have spots that are coming and going, but you don't have a lot of scars and a lot of tunnels forming yet. But we often still use the topicals even in later stage disease, and I always tell my patients, use these topical antibiotics, they're quick, they're easy, they don't really have side effects usually, other than some people get a little irritation, and even if we're not sure how much it's helping, every little bit counts with HS. We need every bit of help we can get to get it under control. The most common one we use is topical clindamycin, which comes as lotion or solution, and can be put on once or twice a day. And we actually have studies that show it works, and I know for a lot of my patients it can be helpful as part of a regimen in later disease or maybe by itself in earlier disease. And then the oral antibiotics tend to come into play when you're having a flareup, they can be useful, or we use them for courses to calm the disease down when you have disease activity, which is spots that are coming and going and getting red and swollen and draining puss.",70.0,"The transcript provides a partial answer to the question about managing long-term hidradenitis suppurativa (HS). It discusses the use of topical antibiotics, specifically clindamycin, and oral antibiotics for flare-ups, which are relevant treatments for HS. However, it lacks a comprehensive overview of long-term management strategies, such as lifestyle changes, surgical options, or other systemic treatments like biologics, which are often part of a long-term management plan for HS. Therefore, while it addresses some aspects of management, it does not fully cover the breadth of long-term strategies.",3635.0,Drain Care,0.75688082,586.0,Surgical Approaches,0.756202281,3770.0,Minimally Invasive Approach to Treating Pituitary Tumors,0.754283071
Can I still start a family in my 30s with HS?,searchable,Women_20to40_Focus,Hidradenitis Suppurativa,can i still start a family in my 30s with hs?,Can I still start a family in my 30s with HS?,Can I still start a family in my 30s with HS?,No,,,searchable,exact-match,"womens health,condition management,living with",,"[{""id"":1933},{""id"":1976},{""id"":1972},{""id"":1969}]",4986.0,CON4-CH2-Q2-Does HS affect fertility-Okoye.mp4,0.85,Does HS affect fertility?,"HS itself does not affect your fertility thankfully. One of the diseases that can sometimes accompany HS is PCOS or polycystic ovarian syndrome. So if you have PCOS and HS, you may have some problems with fertility, but it's related to the PCOS, not the HS.",85.0,"The transcript provides a clear and relevant answer to the question by stating that HS (Hidradenitis Suppurativa) itself does not affect fertility, which directly addresses the concern about starting a family. It also adds valuable context by mentioning that PCOS, a condition that can accompany HS, might affect fertility, but clarifies that this is due to PCOS, not HS. This additional information is useful for someone concerned about fertility issues related to HS. However, the transcript could be improved by briefly explaining what HS is, for those unfamiliar with the condition, and by offering reassurance or advice on managing PCOS if applicable. Overall, the response is informative and mostly complete, hence the high rating.",5035.0,CON5-Q13-Should I avoid having biological children-Brooks.mp4,0.7,Should I avoid having biological children?,"Having children with HS is a really, really personal choice. Some people opt not to have children because of their journey and how much trauma that they've experienced on their journey. And that is 100 % your right to choose whether having children is something that you want to do. For me, I chose to have a child knowing that I could potentially have passed this on to her. But I also know that I have lived an absolutely wonderful and incredible life. And that I want, and know, that even if my child had HS, which she does, that she can also live a wonderful and incredibly fulfilled life as well. So, there's always a risk with everything. You know, there are parents, my parents did not have HS. So the fact that they didn't know that they would have a child with HS, it's always a crap shoot, just like any other disease that your child can be born with, or develop later on down the road. but it is 100 % your right to choose as to whether that is the right path for you. And being a parent with HS is also difficult. And there are difficulties that we face in dealing with having a child as a parent with HS that are important to take into consideration as well. So thinking through that thoroughly, I think is a wonderful idea either way. And just know that there is no judgment whether you choose to have children or choose not to have children. You have to make the decision that is best for you.",70.0,"The transcript addresses the question by discussing the personal nature of the decision to have children when living with HS (Hidradenitis Suppurativa). It acknowledges the potential genetic risk of passing HS to offspring and shares a personal perspective on having a child with HS. However, it does not directly address specific medical or fertility concerns related to starting a family in one's 30s with HS, such as potential impacts on fertility or pregnancy. The response is more focused on the emotional and personal decision-making aspects rather than providing a comprehensive medical perspective.",5042.0,CON5-Q8-I want to date but Im scared-will anyone love me with my HS-Brooks.mp4,0.3,Will anyone love me with my HS?,"Dating is one of the number one most talked about topics in the HS community. I always start off by saying, look, I didn't have one husband, I've had two. So there's plenty of people who love people with HS. Just because you have HS, does not mean that you are less deserving of love, that there are fewer people that will love you. You are just as deserving of love and intimacy as anybody else around you. We're not everyone's cup of tea. It does take a special person to love us the way that we need to be loved, to deal with some of the uncertainty that comes with our disease, to have the patience and the gentleness and the empathy of what it's like to live with HS. I kind of consider it in my personal opinion, it's almost like it helps us be more selective of who we're going to choose as a partner. So, I look at it in a positive way like that. It's a very difficult conversation to have. And again, it's up to you as to whether you have that conversation or don't. There's benefits and drawbacks to both when you're entering into a relationship. I do think that it is fair to tell someone what you deal with because they also have to make a decision as to whether this is something that they can handle long-term versus whether it's something they can't. So I do think it is fair for both of you to have that conversation about what your disease entails, and the ways that it impacts you in life. I think that the number one thing is to be, being vulnerable is very, very difficult and can be ⁓ hard to do, but it's so important, especially if you're choosing a life partner, to be vulnerable with them about the way that your HS makes you feel. I think a lot of us can get a little bit, I don't want to say combative, but defensive in the way that our HS makes us feel and the way that that impacts a partner, but we never give them the opportunity to really understand why. To have those discussions about how I don't feel like I'm worthy of love or that you'll never see me as beautiful because of my scars or my abscesses, having those conversations is so necessary. It's necessary for you to get what you need out of a relationship and for your partner to be able to support you the way that you need to be supported. So again, it's totally up to you if you want to have those conversations or not. I would highly encourage you to. People notice and that's okay. But if we arm them with the information about what our disease actually is, then we're doing them a favor and us. And then as that vulnerability grows in your relationship, having those really in-depth conversations and letting them experience a piece of you that you've kept hidden from a lot of people in your life is very freeing.",30.0,"The transcript primarily addresses the topic of dating and relationships for individuals with HS (Hidradenitis Suppurativa), focusing on the emotional aspects and the importance of communication and vulnerability in relationships. However, it does not directly address the specific question of starting a family in one's 30s with HS. The question likely pertains to concerns about fertility, pregnancy, or parenting with HS, which are not covered in the transcript. Therefore, while the transcript may provide some relevant context about relationships, it does not adequately answer the question about starting a family.",832.0,A Couple's Journey From Infertility to Parenthood,0.764946699,933.0,HSS Minute | Early Life Low Bone Density,0.743235648,444.0,Why I Decided to Freeze My Eggs,0.742472708
How do I advocate for myself with doctors who dismiss HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i advocate for myself with doctors who dismiss hs?,How do I advocate for myself with doctors who dismiss HS?,How do I advocate for myself with doctors who dismiss HS?,No,,,searchable,exact-match,"womens health,mental and emotional health,condition management",,"[{""id"":1981},{""id"":1968},{""id"":1828},{""id"":1967}]",5039.0,CON5-Q19-How do you respond to unkind things people say-Brooks.mp4,0.85,How do you respond to unkind things people say?,"This is a tricky one because we do hear a lot of information and a lot of times it's coming from a doctor at a doctor's appointment, in all honesty, where the first thing that you'll be told when you're diagnosed with HS is that you need to lose weight and quit smoking.  And that's even said to non-smokers. So it just feels like a rhetoric that's been said for a really long time. And I think the retort to that is, you can handle that in a multiple, multitude of ways. You can have the discussion about, okay, so talk to me as if I was thin. And kind of put them back in that place of we're not talking about my weight. I'm here for medical management. What can you offer me? And really putting that back on them. We're encouraging physicians not to have these discussions about weight or smoking until you've built a rapport with your patient, and have resources to offer them. Because just telling g someone to lose weight and quit smoking is so unhelpful without any resources attached to that. So, you know, it's fair to ask them the question, to put that back on them, to say, I'm here for medical management. What can you offer me? What are the next steps? Or to ask, do you have resources for that? Because if it was just that easy, I wouldn't be overweight.  So I think it's fair to ask, it's fair to push back. I think it's also fair to go in with the knowledge and say, I know that my weight may be contributing to my HS, but it's not the cause of my HS. And we do know that there are a lot of doctors who need additional education on HS. HS Connect is working on filling that gap as well. But I think it's a hard thing to do because we've really been trained to see physicians, especially, in a different light.  So, pushing back on them is very unnatural, but I think that it's the way that the world is starting to work. We are deserving of care just like everybody else. So when we come in with a problem, we deserve medical management just like everybody else.",85.0,"The transcript provides a comprehensive answer to the question about advocating for oneself with doctors who dismiss HS. It acknowledges the common issue of doctors focusing on weight and smoking, even when irrelevant, and suggests strategies for redirecting the conversation towards medical management. It advises patients to ask specific questions about treatment options and resources, and to assertively communicate their needs. The transcript also highlights the importance of patient empowerment and the need for doctors to be better educated about HS. However, it could be improved by offering more specific examples or phrases to use during consultations.",5021.0,CON6-Q24-How do I find the right doctor-Gelfand.mp4,0.7,How do I find the right doctor?,"Finding the right care provider is critical for success when living with HS. I think the most important things you could ask a clinician is, one is do they take care of patients with HS? Do they have a lot of patients they manage with this condition? Two is, are they comfortable doing procedures, minor procedures in the office in order to help relieve acute flares of HS and help patients feel better when they're in pain? Are they up to date on the most recent medical advances in managing HS? And probably most importantly, are they going to be there for you when you need them? HS can be so unpredictable, so you need to know that when you're having a flare, you'll be able to get into the office and see that doctor on short notice.",70.0,"The transcript provides useful advice on how to find a supportive and knowledgeable healthcare provider for managing HS, which is a key aspect of advocating for oneself. It suggests asking specific questions to assess the provider's experience and availability, which can empower patients. However, it does not directly address strategies for dealing with doctors who dismiss HS, such as how to communicate effectively, seek second opinions, or use patient advocacy resources. Therefore, while the advice is relevant, it does not fully answer the question about advocating for oneself with dismissive doctors.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.6,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",60.0,"The transcript provides some useful advice on finding a dermatologist who might be more experienced with HS, such as looking for board-certified dermatologists or those affiliated with big universities. It also suggests checking the dermatologist's website to see if they treat medical skin conditions, which could indicate experience with HS. However, the transcript does not directly address the question of how to advocate for oneself with doctors who dismiss HS. It lacks specific strategies for self-advocacy, such as preparing questions, bringing documentation, or seeking second opinions, which would be more directly relevant to the question.",3572.0,My doctor is shaming me for my weight,0.779217482,1093.0,Breast Cancer | Feeling Empowered,0.773669899,4722.0,Mental Health Provider,0.77264756
What should I do if my doctor says HS is no big deal?,searchable,Patient_Forums,Hidradenitis Suppurativa,what should i do if my doctor says hs is no big deal?,What should I do if my doctor says HS is no big deal?,What should I do if my doctor says HS is no big deal?,No,,,searchable,exact-match,,,"[{""id"":1967},{""id"":1828},{""id"":1826},{""id"":1970}]",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.7,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",70.0,"The transcript provides a partial answer to the question by suggesting that the individual should seek a clinician who understands HS and can manage it with the best treatment options. However, it does not directly address what to do if a current doctor dismisses HS as 'no big deal.' It implies finding a more knowledgeable doctor but doesn't explicitly guide the patient on how to handle the situation with their current doctor. More specific advice on how to communicate with the current doctor or steps to take if they feel their concerns are not being taken seriously would improve the response.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.6,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",60.0,"The transcript provides some guidance on what to do if a doctor downplays HS by suggesting finding a board-certified dermatologist, preferably one affiliated with a big university or one who treats medical skin conditions. However, it doesn't directly address the emotional or practical aspects of dealing with a doctor who minimizes the condition, nor does it suggest any immediate actions or second opinions. The advice is somewhat indirect and assumes the listener can access or find another dermatologist, which may not be feasible for everyone. Therefore, while it offers some useful steps, it doesn't fully address the question's context or potential barriers.",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.6,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",60.0,"The transcript partially addresses the question by suggesting that seeing a specialist or a board-certified dermatologist is a good step if a doctor downplays the condition. However, it does not directly address what to do if a doctor specifically says HS is 'no big deal.' The response could be improved by advising the patient to seek a second opinion or to discuss their concerns further with their current doctor.",909.0,Osteoarthritis | When to See Your Doctor,0.767776668,933.0,HSS Minute | Early Life Low Bone Density,0.759428859,4533.0,What Will My Treatment Be Like?,0.75451988
How do I get my doctor to take hidradenitis suppurativa seriously?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i get my doctor to take hidradenitis suppurativa seriously?,How do I get my doctor to take hidradenitis suppurativa seriously?,How do I get my doctor to take Hidradenitis Suppurativa seriously?,No,,,searchable,exact-match,,,"[{""id"":1968},{""id"":1963},{""id"":1951},{""id"":1828}]",5021.0,CON6-Q24-How do I find the right doctor-Gelfand.mp4,0.85,How do I find the right doctor?,"Finding the right care provider is critical for success when living with HS. I think the most important things you could ask a clinician is, one is do they take care of patients with HS? Do they have a lot of patients they manage with this condition? Two is, are they comfortable doing procedures, minor procedures in the office in order to help relieve acute flares of HS and help patients feel better when they're in pain? Are they up to date on the most recent medical advances in managing HS? And probably most importantly, are they going to be there for you when you need them? HS can be so unpredictable, so you need to know that when you're having a flare, you'll be able to get into the office and see that doctor on short notice.",85.0,"The transcript provides a comprehensive approach to ensuring a doctor takes Hidradenitis Suppurativa (HS) seriously. It suggests asking specific questions to assess the doctor's experience and commitment to treating HS, such as their familiarity with the condition, their ability to perform procedures, their knowledge of recent medical advances, and their availability during acute flares. These points directly address the concern of getting a doctor to take HS seriously by focusing on their expertise and responsiveness. However, it does not explicitly address how to communicate the seriousness of the condition to the doctor, which could be a part of the question's intent.",5008.0,CON6-Q26-What are your tips for a great doctor visit-Daveluy.mp4,0.85,What are your tips for a great doctor visit?,"I have several tips to share about having a successful visit with your doctor that hopefully will make things go better for you. I think one of the important things is to share your goals with your doctor. So if your goal is a particular thing like horseback riding or riding a bicycle or just being able to do exercises you like again or spend more time with your kids, let them know that that's why you want to get your HS under control. Because sometimes it helps us to adjust our treatments and target the things that are really getting in the way at that moment. Also, it’s really important to bring up your mental health. I'll be honest, a lot of us doctors don't love asking about it because it's a difficult conversation, but we do need to know how your HS is impacting your mental health to make sure that we are providing resources and helping to stop it from interfering with the things that you want to do. It can be helpful to come prepared to your visit. So know what medications you've been on, if possible, keep a list, know what things have worked well for you, bring up things that you've heard online. Sometimes patients are sort of embarrassed or shy about sharing with me things that they've looked up online. So I'll ask, what have you learned about HS? What questions do you have? Because you may have read something online and you're not really sure if it's information you should trust or something that's going to help you. So it's a good idea to just have that conversation with your doctor and they may not know. They may say, I don't know either. I'll have to do a little more research and look into that. But at least then if there is something that's dangerous that someone said online, we'll be able to tell you, no, don't do that, that's not a good idea to do because unfortunately, a lot of people are sharing information online trying to help others, and they don't always realize that some things may not be safe.",85.0,"The transcript provides a comprehensive approach to ensuring a doctor takes Hidradenitis Suppurativa (HS) seriously. It emphasizes the importance of communicating personal goals and the impact of HS on mental health, which can help the doctor understand the severity and personal impact of the condition. It also suggests being prepared with a list of medications and treatments tried, and encourages open communication about information found online. These strategies are practical and directly address the question of how to get a doctor to take HS seriously. However, the transcript could be improved by explicitly stating the importance of advocating for oneself and possibly seeking a second opinion if the doctor is not responsive, which is why it does not receive a perfect score.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.75,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",75.0,"The transcript provides useful advice on how to approach a doctor about Hidradenitis Suppurativa (HS). It suggests seeing a dermatologist for a more accurate diagnosis and advises the patient to describe specific symptoms and patterns to their doctor, which can help in taking the condition seriously. However, it does not directly address strategies for ensuring the doctor takes the condition seriously beyond symptom description, such as advocating for oneself, seeking a second opinion, or discussing treatment options. Therefore, while it offers practical steps, it could be more comprehensive in addressing the question.",3572.0,My doctor is shaming me for my weight,0.778792799,3499.0,What kind of doctor should I see if I have obesity?,0.766534507,3597.0,Do I have to see an obesity specialist?,0.765085578
Can I educate my doctor about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i educate my doctor about hs?,Can I educate my doctor about HS?,Can I educate my doctor about HS?,No,,,searchable,loose-match,,,"[{""id"":1967},{""id"":1963},{""id"":1826},{""id"":1968}]",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.4,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",40.0,"The transcript acknowledges that many clinicians may not be familiar with the latest advances in managing HS, which indirectly suggests that educating a doctor could be beneficial. However, it does not directly address whether or how a patient can educate their doctor about HS. Instead, it advises finding a clinician who already understands the condition, which partially answers the question but does not fully explore the possibility of patient-led education.",5008.0,CON6-Q26-What are your tips for a great doctor visit-Daveluy.mp4,0.4,What are your tips for a great doctor visit?,"I have several tips to share about having a successful visit with your doctor that hopefully will make things go better for you. I think one of the important things is to share your goals with your doctor. So if your goal is a particular thing like horseback riding or riding a bicycle or just being able to do exercises you like again or spend more time with your kids, let them know that that's why you want to get your HS under control. Because sometimes it helps us to adjust our treatments and target the things that are really getting in the way at that moment. Also, it’s really important to bring up your mental health. I'll be honest, a lot of us doctors don't love asking about it because it's a difficult conversation, but we do need to know how your HS is impacting your mental health to make sure that we are providing resources and helping to stop it from interfering with the things that you want to do. It can be helpful to come prepared to your visit. So know what medications you've been on, if possible, keep a list, know what things have worked well for you, bring up things that you've heard online. Sometimes patients are sort of embarrassed or shy about sharing with me things that they've looked up online. So I'll ask, what have you learned about HS? What questions do you have? Because you may have read something online and you're not really sure if it's information you should trust or something that's going to help you. So it's a good idea to just have that conversation with your doctor and they may not know. They may say, I don't know either. I'll have to do a little more research and look into that. But at least then if there is something that's dangerous that someone said online, we'll be able to tell you, no, don't do that, that's not a good idea to do because unfortunately, a lot of people are sharing information online trying to help others, and they don't always realize that some things may not be safe.",40.0,"The transcript does not directly address the question of whether a patient can educate their doctor about HS (Hidradenitis Suppurativa). Instead, it provides general advice on how to have a successful visit with a doctor, including sharing personal goals, discussing mental health, and bringing up information found online. While it suggests that patients can share what they've learned online and have a conversation with their doctor, it does not explicitly discuss the concept of educating the doctor or provide guidance on how to do so effectively. Therefore, the transcript only partially addresses the question.",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.3,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",30.0,"The transcript does not directly address the question of whether a patient can educate their doctor about HS (Hidradenitis Suppurativa). Instead, it focuses on the importance of seeing a specialist or a dermatologist for treatment. While it implies that dermatologists are knowledgeable about HS, it does not discuss the patient's role in educating their doctor or provide guidance on how to do so. Therefore, the transcript only indirectly relates to the question and does not provide a clear answer.",909.0,Osteoarthritis | When to See Your Doctor,0.778308,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.775822282,907.0,HSS Overview,0.77362746
What should I bring to my doctor appointment for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what should i bring to my doctor appointment for hs?,What should I bring to my doctor appointment for HS?,What should I bring to my doctor appointment for HS?,No,,,searchable,exact-match,,,"[{""id"":1963},{""id"":1951},{""id"":1968},{""id"":1825}]",5008.0,CON6-Q26-What are your tips for a great doctor visit-Daveluy.mp4,0.6,What are your tips for a great doctor visit?,"I have several tips to share about having a successful visit with your doctor that hopefully will make things go better for you. I think one of the important things is to share your goals with your doctor. So if your goal is a particular thing like horseback riding or riding a bicycle or just being able to do exercises you like again or spend more time with your kids, let them know that that's why you want to get your HS under control. Because sometimes it helps us to adjust our treatments and target the things that are really getting in the way at that moment. Also, it’s really important to bring up your mental health. I'll be honest, a lot of us doctors don't love asking about it because it's a difficult conversation, but we do need to know how your HS is impacting your mental health to make sure that we are providing resources and helping to stop it from interfering with the things that you want to do. It can be helpful to come prepared to your visit. So know what medications you've been on, if possible, keep a list, know what things have worked well for you, bring up things that you've heard online. Sometimes patients are sort of embarrassed or shy about sharing with me things that they've looked up online. So I'll ask, what have you learned about HS? What questions do you have? Because you may have read something online and you're not really sure if it's information you should trust or something that's going to help you. So it's a good idea to just have that conversation with your doctor and they may not know. They may say, I don't know either. I'll have to do a little more research and look into that. But at least then if there is something that's dangerous that someone said online, we'll be able to tell you, no, don't do that, that's not a good idea to do because unfortunately, a lot of people are sharing information online trying to help others, and they don't always realize that some things may not be safe.",60.0,"The transcript provides some relevant advice for preparing for a doctor's appointment for HS (Hidradenitis Suppurativa), such as sharing personal goals, discussing mental health, and bringing a list of medications and treatments. However, it does not directly answer the question of what specific items to bring to the appointment. The response is more focused on the type of information to prepare and discuss rather than a checklist of items to physically bring, which would more directly answer the question.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.4,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",40.0,"The transcript does not directly answer the question about what to bring to a doctor's appointment for HS (Hidradenitis Suppurativa). Instead, it focuses on the diagnosis process and symptoms to discuss with the doctor. While it suggests bringing up specific symptoms and the possibility of HS with the doctor, it does not provide a comprehensive list of items or information to bring to the appointment, such as medical history, a list of current medications, or photographs of the affected areas, which would be more directly relevant to the question.",5021.0,CON6-Q24-How do I find the right doctor-Gelfand.mp4,0.1,How do I find the right doctor?,"Finding the right care provider is critical for success when living with HS. I think the most important things you could ask a clinician is, one is do they take care of patients with HS? Do they have a lot of patients they manage with this condition? Two is, are they comfortable doing procedures, minor procedures in the office in order to help relieve acute flares of HS and help patients feel better when they're in pain? Are they up to date on the most recent medical advances in managing HS? And probably most importantly, are they going to be there for you when you need them? HS can be so unpredictable, so you need to know that when you're having a flare, you'll be able to get into the office and see that doctor on short notice.",10.0,"The transcript does not directly answer the question about what to bring to a doctor appointment for HS. Instead, it focuses on what to look for in a healthcare provider for managing HS, such as their experience with the condition, their ability to perform procedures, and their availability. While this information might be useful for someone with HS, it does not address the specific question of what items or information a patient should bring to their appointment.",909.0,Osteoarthritis | When to See Your Doctor,0.773611307,4372.0,Tips For Navigating Your Cancer Care,0.765474379,2310.0,Heart Health | Exercise Guidelines,0.759961069
How do I ask for a referral to an HS specialist?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i ask for a referral to an hs specialist?,How do I ask for a referral to an HS specialist?,How do I ask for a referral to an HS specialist?,No,,,searchable,exact-match,,,"[{""id"":1828},{""id"":1827},{""id"":1826},{""id"":1967}]",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.7,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",70.0,"The transcript provides useful guidance on how to find a dermatologist who might be knowledgeable about HS (Hidradenitis Suppurativa), which indirectly answers the question about getting a referral. It suggests looking for board-certified dermatologists, especially those affiliated with big universities, and checking their practice focus on medical skin conditions. However, it does not directly address the process of asking for a referral, such as discussing it with a primary care physician or specific steps to take in a healthcare setting. Therefore, while the information is relevant, it does not fully answer the question about the referral process itself.",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.6,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",60.0,"The transcript provides useful information on finding an HS specialist, such as using clinic finders on the HS Foundation website and HSconnect.org, and suggests patient support groups as resources. However, it does not directly address how to ask for a referral from a primary care physician or another healthcare provider, which is the core of the question. The response focuses more on finding specialists independently rather than the process of obtaining a referral.",4845.0,CON1-CH2-Q3-Would a specialized doctor for HS be helpful-Okoye.mp4,0.6,Would a specialized doctor for HS be helpful?,"I think a specialist in HS would be extremely helpful to manage your HS. However, there aren't that many HS specialists around the country. So if you're lucky enough to live close enough to one, then yes, I would absolutely see a specialist. However, all dermatologists are trained on how to treat HS, and so I would at least start there. Start with a board-certified dermatologist. They will know at least the basics of how to treat you, and then they may help with a referral to an HS specialist if that's needed.",60.0,"The transcript provides some useful information related to the question by suggesting starting with a board-certified dermatologist who can manage HS and potentially refer to an HS specialist. However, it does not directly address how to ask for a referral, such as specific steps or language to use when requesting a referral from a healthcare provider. The response is somewhat helpful but lacks direct guidance on the process of asking for a referral.",4722.0,Mental Health Provider,0.772503674,907.0,HSS Overview,0.77004087,4380.0,Call Us!,0.767855883
When should I get a second opinion for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,when should i get a second opinion for hidradenitis suppurativa?,When should I get a second opinion for hidradenitis suppurativa?,When should I get a second opinion for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1954},{""id"":1951},{""id"":1828},{""id"":1950}]",5012.0,CON6-Q14-Should I get a second opinion-Garg.mp4,0.75,Should I get a second opinion?,"I encourage all my patients that whenever they feel a sense of uncertainty about the diagnosis or even about the treatment plan, it's always important to get another opinion about your disease, about your treatment.",75.0,"The transcript provides a general guideline for when to seek a second opinion, suggesting it is appropriate whenever there is uncertainty about the diagnosis or treatment plan. This advice is applicable to Hidradenitis Suppurativa, as it is a condition that can have complex management. However, the response could be improved by addressing specific scenarios related to Hidradenitis Suppurativa that might warrant a second opinion, such as lack of improvement with current treatment, severe symptoms, or when considering surgical options. The answer is somewhat generic and not tailored specifically to the condition in question.",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.4,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",40.0,"The transcript provides some context about diagnosing Hidradenitis Suppurativa (HS) and suggests seeing a dermatologist for confirmation. However, it does not directly address when a second opinion should be sought. It implies that if there is uncertainty or if symptoms match those described, one might consider discussing it with a doctor, but it lacks specific guidance on when a second opinion is necessary. The response could be improved by explicitly stating scenarios where a second opinion is advisable, such as persistent symptoms despite treatment, disagreement with a diagnosis, or lack of improvement.",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.4,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",40.0,"The transcript provides general advice on how to find a dermatologist with experience in treating Hidradenitis Suppurativa (HS), but it does not directly address when a patient should seek a second opinion. It suggests looking for board-certified dermatologists or those affiliated with universities, but it lacks specific guidance on the circumstances or timing for seeking a second opinion for HS.",564.0,When to Consider Surgery,0.783986926,2327.0,When to See a Dietitian for Your Microbiome,0.77865833,909.0,Osteoarthritis | When to See Your Doctor,0.758985341
Can I switch doctors if they don't understand HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i switch doctors if they don't understand hs?,Can I switch doctors if they don't understand HS?,Can I switch doctors if they don't understand HS?,No,,,searchable,exact-match,"condition management,living with",,"[{""id"":1828},{""id"":1967},{""id"":1827},{""id"":1968}]",4847.0,CON1-CH2-Q5-What if there are no local HS doctors nearby-Okoye.mp4,0.85,What if there are no HS doctors nearby?,"It is really tough for so many people to reach dermatologists at all. Far less HS experts. But I would say depending on where you live, I would find a board certified dermatologist and start there. Another option, is in general, dermatologists who work at big universities may have more experience with HS. Take a look at the dermatologist's website. If most of their practice involves cosmetic treatments, then they're going to see fewer HS patients. But if you look at a website and you see that this dermatologist is seeing patients with medical diseases like psoriasis and eczema and skin cancer, then chances are they see patients with HS as well.",85.0,"The transcript provides a comprehensive answer to the question by suggesting practical steps for finding a dermatologist who understands HS. It advises looking for board-certified dermatologists, especially those affiliated with big universities, and checking their practice focus on medical skin conditions. However, it doesn't directly address the process of switching doctors, which slightly limits the completeness of the answer.",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.85,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",85.0,"The transcript effectively addresses the question by acknowledging that not all clinicians are familiar with HS and suggesting that it is best to find a clinician who understands the condition. This implies that switching doctors is a reasonable option if the current doctor does not understand HS. However, the transcript could be more explicit in directly stating that switching doctors is an option, which would provide a clearer answer to the question.",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.85,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",85.0,"The transcript provides a comprehensive answer to the question by acknowledging the difficulty in finding doctors who understand HS and offering practical solutions, such as using clinic finders on specific websites and patient support groups. However, it does not directly address the aspect of switching doctors, which is implied but not explicitly stated.",909.0,Osteoarthritis | When to See Your Doctor,0.767503917,907.0,HSS Overview,0.766982794,3597.0,Do I have to see an obesity specialist?,0.763168
How do I correct doctors who call HS just boils?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i correct doctors who call hs just boils?,How do I correct doctors who call HS just boils?,How do I correct doctors who call HS just boils?,No,,,searchable,exact-match,"condition management,mental and emotional health,living with",,"[{""id"":1951},{""id"":1859},{""id"":1967},{""id"":1968}]",5006.0,CON6-Q11-Why did it take so long for me to get a diagnosis-Garg.mp4,0.7,Why did it take so long for me to get a diagnosis?,"There's no blood test or tissue test to really confirm the diagnosis of HS. It really relies on the powers of observations of people experienced with this disease. Seeing a dermatologist is probably the most sure way to confirm a diagnosis, but there are also things that you can think about to bring to the attention of your doctor. Do you get these boils or abscesses and nodules or tunnels that drain in your skin in particular areas such as under the arms, under the breasts, in the groin, on the buttocks? Do you get waxing and waning of those lesions? If so, I think it's fair to bring those symptoms and even the diagnosis of HS to your doctor.",70.0,"The transcript provides useful information on how to approach a doctor regarding HS (Hidradenitis Suppurativa) by describing symptoms that differentiate HS from simple boils. It suggests seeing a dermatologist for a more accurate diagnosis and encourages patients to discuss specific symptoms with their doctor. However, it does not directly address how to correct doctors who mislabel HS as boils, which is the core of the question. The transcript could be improved by offering specific strategies for communicating the distinction between HS and boils to healthcare providers.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.4,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",40.0,"The transcript provides some information about HS (Hidradenitis Suppurativa) and its treatment options, emphasizing the importance of discussing symptoms with a doctor. However, it does not directly address how to correct doctors who mistakenly refer to HS as boils. The transcript touches on public awareness and educating others about HS, but lacks specific guidance on how to communicate with healthcare professionals about the distinction between HS and boils. The response is somewhat relevant but does not fully answer the question posed.",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.3,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",30.0,"The transcript acknowledges the issue of clinicians not being familiar with HS (Hidradenitis Suppurativa) and suggests finding a clinician who understands the condition. However, it does not directly address how to correct doctors who mistakenly refer to HS as just boils. The response lacks specific advice or strategies for correcting this misconception, which is the core of the question.",4380.0,Call Us!,0.768633187,3572.0,My doctor is shaming me for my weight,0.757389903,4372.0,Tips For Navigating Your Cancer Care,0.755571127
What do I do if my doctor won't prescribe biologics for HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,what do i do if my doctor won't prescribe biologics for hs?,What do I do if my doctor won't prescribe biologics for HS?,What do I do if my doctor won't prescribe biologics for HS?,No,,,contact_doctor,,"treatments,condition management",,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
How do I push for better treatment for hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i push for better treatment for hidradenitis suppurativa?,How do I push for better treatment for hidradenitis suppurativa?,How do I push for better treatment for Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1949},{""id"":1859},{""id"":1888},{""id"":1950}]",4999.0,CON6-Q5-What if common treatments don’t work-Garg.mp4,0.7,What if common treatments don't work?,"It's not uncommon that topical treatments and even common treatments such as spironolactone or doxycycline, even when used in combination, just aren't providing the amount of relief of the symptoms that are necessary. Or they may be providing adequate relief, but then you're developing new areas of disease. In either of those circumstances, we try to escalate to treatments that we think are effective and safe, appropriate for the disease stage that you have. And usually the next step is what's called a biologic medication.",70.0,"The transcript provides a partial answer to the question by discussing the escalation of treatment for Hidradenitis Suppurativa when common treatments are ineffective. It mentions the use of biologic medications as a next step, which implies a more aggressive treatment approach. However, it does not directly address how a patient can advocate or ""push"" for better treatment options, such as discussing strategies for communicating with healthcare providers or seeking second opinions. Therefore, while it provides useful information about treatment escalation, it lacks guidance on patient advocacy.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.6,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",60.0,"The transcript provides some useful information about treatment options for Hidradenitis Suppurativa (HS), such as surgery and medications, and emphasizes the importance of discussing these with a doctor. However, it does not directly address how to 'push for better treatment,' which implies advocating for oneself in a medical setting. The transcript lacks specific advice on how to effectively communicate with healthcare providers, seek second opinions, or access specialized care, which would be more directly relevant to the question.",4930.0,CON3-CH1-Q4-What are the best oral antibiotics to treat HS-Daveluy.mp4,0.4,What are the best oral antibiotics to treat HS?,"I'm glad you asked because there's often a misconception that HS is an infection and it's not. And so you can't just reach for any antibiotic. Some have studies that show that they work, others don't. And you may be getting some that work and some that don't based on if your doctor knows that they're treating HS. The ones that have the most studies to support their use are doxycycline and minocycline, which are cousins of each other. They're in the same family of antibiotics, and they both have studies that show they can help to stop new spots from coming, get rid of the nodules, which are the sort of red swollen lumps, and the abscesses, which are the fluid-filled pockets. They don't tend to work as well for the tunnels, but that's true of a lot of treatments. Another antibiotic that's been very well studied is called clindamycin. And when we use antibiotics on HS, it's a little different than infections. We often use them for weeks at a time because we actually want to control the disease activity and calm the inflammation down versus when you're treating an infection, you just do a short course just enough to kill the bacteria. Another antibiotic that might be used for your HS is actually an IV medication that has to be given through an IV in your vein. It's called ertapenem. It works incredibly well for HS, but only while you're on it, so it's sort of a temporary treatment while we figure out what else we're going to do to get your HS under control. There are a few other antibiotics that your doctor may talk to you about, like metronidazole, moxifloxacin, and rifampin. And so it's a good thing to have a conversation with your doctor about which antibiotics have evidence for HS, and have proven benefits, and then figure out based on your personal health and your history which one's the best for you.",40.0,"The transcript provides detailed information about the use of antibiotics in treating Hidradenitis Suppurativa (HS), including which antibiotics have evidence supporting their use. However, it does not directly address the question of how to 'push for better treatment.' It lacks guidance on advocating for oneself in a medical setting, such as how to communicate effectively with healthcare providers, seek second opinions, or explore alternative treatments beyond antibiotics. The response is informative about treatment options but does not focus on patient advocacy or strategies to ensure better care.",3490.0,Support | Dr. Tiffany Lowe Clayton,0.776244462,464.0,"#StopWeightBias 
Meet Amber",0.7689538,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.76894
Can I request specific HS medications from my doctor?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i request specific hs medications from my doctor?,Can I request specific HS medications from my doctor?,Can I request specific HS medications from my doctor?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
How do I explain the severity of my HS to doctors?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i explain the severity of my hs to doctors?,How do I explain the severity of my HS to doctors?,How do I explain the severity of my HS to doctors?,No,,,searchable,loose-match,"condition management,symptoms,diagnosis",,"[{""id"":1967},{""id"":1968},{""id"":1843},{""id"":1937}]",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.3,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",30.0,"The transcript acknowledges the challenge of explaining HS to doctors and suggests finding a clinician familiar with the condition. However, it does not provide specific guidance or strategies on how to effectively communicate the severity of HS to doctors. The response lacks actionable advice or examples that would directly help the patient in explaining their condition's severity.",5021.0,CON6-Q24-How do I find the right doctor-Gelfand.mp4,0.3,How do I find the right doctor?,"Finding the right care provider is critical for success when living with HS. I think the most important things you could ask a clinician is, one is do they take care of patients with HS? Do they have a lot of patients they manage with this condition? Two is, are they comfortable doing procedures, minor procedures in the office in order to help relieve acute flares of HS and help patients feel better when they're in pain? Are they up to date on the most recent medical advances in managing HS? And probably most importantly, are they going to be there for you when you need them? HS can be so unpredictable, so you need to know that when you're having a flare, you'll be able to get into the office and see that doctor on short notice.",30.0,"The transcript does not directly address the question of how to explain the severity of HS to doctors. Instead, it focuses on finding the right care provider and what to look for in a clinician managing HS. While it provides useful information about the qualities of a good healthcare provider for HS, it does not offer guidance on communicating the severity of the condition to doctors. Therefore, it only partially relates to the question and does not provide a direct answer.",4866.0,CON1-CH5-Q1-Should I tell my employer about my HS-Daveluy.mp4,0.2,Should I tell my employer about my HS?,"That's a question that I get from patients quite a bit. Some patients need my help in telling their employer because they need work accommodation and we know that HS can impact your ability to work. People with HS, in studies, have missed more days of work because of their HS because they have a painful flareup and can't go to work that day. And maybe they have a mobility issue when they're having a flareup and they can't do certain activities at work. So I have written a lot of letters to employers helping them understand HS and what limitations it might set on one of their employees. It can also be helpful, I have some patients who work from home when they have a flare, so they just needed a letter that it's okay for them to still work, but to be allowed to work from home on those days. So, if you're facing issues at work, it's a good idea to bring it up to your employer. Talk to HR if you have an HR department, because they can guide you through the process. It's a really important thing to bring up because if you keep it a secret and they don't understand why you're missing more days of work or why you can't do certain things, then they might have a different view, and think that you're just not a good employee. So, helping your employer understand your chronic condition can help them understand ways that they might need to modify your work to help you succeed and thrive.",20.0,"The transcript does not directly address the question of how to explain the severity of HS to doctors. Instead, it focuses on explaining HS to employers for work accommodations. While it touches on the impact of HS on daily life, which could be relevant when discussing severity with a doctor, it does not provide specific guidance or strategies for communicating with healthcare professionals. The response lacks direct advice on medical communication, which is the core of the original question.",909.0,Osteoarthritis | When to See Your Doctor,0.769543052,4632.0,Talking About Your Diagnosis,0.76718,4639.0,I'm Completely Overwhelmed. What Do I Do?,0.765844822
Should I take photos of my HS to show my doctor?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i take photos of my hs to show my doctor?,Should I take photos of my HS to show my doctor?,Should I take photos of my HS to show my doctor?,No,,,contact_doctor,,,,,,,,,,,,,,,,,,,,,,,,,,3234.0,Prepping for your doctor's visit,1.0,2411.0,What's important to tell your doctor?,1.0,,,
How do I raise awareness about hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i raise awareness about hidradenitis suppurativa?,How do I raise awareness about hidradenitis suppurativa?,How do I raise awareness about Hidradenitis Suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1859},{""id"":1937},{""id"":1950},{""id"":1951}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.4,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",40.0,"The transcript only partially addresses the question about raising awareness of Hidradenitis Suppurativa (HS). It briefly mentions the importance of public awareness and suggests that if more people knew about HS, there would be less need to explain it. However, it does not provide specific strategies or methods for raising awareness, such as community outreach, social media campaigns, or educational programs. The focus of the transcript is more on treatment options and personal management of the condition rather than on public awareness efforts.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.4,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",40.0,"The transcript primarily focuses on personal disclosure of Hidradenitis Suppurativa (HS) to friends and family, rather than broader awareness-raising strategies. It discusses the importance of sharing information with close contacts for personal support and understanding, but does not address public awareness campaigns, educational initiatives, or community outreach, which are key components of raising awareness on a larger scale. Therefore, while it provides useful advice for personal communication, it does not comprehensively answer the question about raising general awareness of HS.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.3,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",30.0,"The transcript acknowledges the lack of awareness about Hidradenitis Suppurativa (HS) and the need to improve awareness in both medical and public sectors. However, it does not provide specific strategies or methods for raising awareness, which is the core of the question. The transcript focuses more on the challenges of diagnosing HS and the common misdiagnoses, rather than offering actionable steps or suggestions for increasing awareness. Therefore, it only partially addresses the question.",1092.0,Breast Cancer | Understanding Your Disease,0.77136761,1615.0,Bladder Cancer Awareness Month,0.763799965,1620.0,Breast Cancer Awareness,0.763728082
Can I help educate others about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i help educate others about hs?,Can I help educate others about HS?,Can I help educate others about HS?,No,,,searchable,exact-match,,,"[{""id"":1978},{""id"":1943},{""id"":1970},{""id"":1841}]",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.75,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",75.0,"The transcript provides information about HS Connect, a platform that offers resources, advocacy, and community support for individuals with HS. It implies that one can help educate others by utilizing these resources and being part of the community. However, it does not explicitly state how an individual can actively participate in educating others, such as through specific programs or initiatives. The answer is somewhat indirect but provides a foundation for understanding how one might engage in educational activities.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.7,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",70.0,"The transcript addresses the question indirectly by discussing the personal choice involved in educating others about HS (Hidradenitis Suppurativa). It emphasizes the benefits of sharing one's experience, such as lifting a burden and potentially helping others who suffer in silence. However, it does not provide specific methods or strategies for educating others, nor does it address broader educational efforts beyond personal sharing. The response is more focused on personal experiences and choices rather than structured educational initiatives.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.3,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",30.0,"The transcript primarily focuses on reassuring individuals with HS that their condition is not their fault and encourages them to join a community for support. While it touches on the idea of community, it does not directly address how one can educate others about HS. The transcript lacks specific guidance or strategies for educating others, which is the core of the question.",910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.759015203,4632.0,Talking About Your Diagnosis,0.755875587,907.0,HSS Overview,0.755141318
What can I do to spread the word about hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,what can i do to spread the word about hidradenitis suppurativa?,What can I do to spread the word about hidradenitis suppurativa?,What can I do to spread the word about Hidradenitis Suppurativa?,No,,,searchable,loose-match,,,"[{""id"":1937},{""id"":1859},{""id"":1950},{""id"":1927}]",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.4,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",40.0,"The transcript primarily focuses on how to communicate about Hidradenitis Suppurativa (HS) to friends and family, emphasizing the importance of sharing personal experiences and the impact of the condition on relationships. However, it does not directly address the broader aspect of 'spreading the word' about HS to a wider audience or community, which the question implies. The response lacks strategies for public awareness, advocacy, or educational outreach, which are key components of spreading awareness about a medical condition. Therefore, while it provides useful advice for personal disclosure, it only partially answers the question.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.4,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",40.0,"The transcript only partially addresses the question about spreading awareness of Hidradenitis Suppurativa (HS). It briefly mentions the importance of public awareness and suggests that explaining the condition to others can help, but it does not provide specific strategies or actions for spreading the word about HS. The majority of the transcript focuses on treatment options and managing the condition, which is not directly relevant to the question asked. Therefore, the response is not comprehensive in answering the question about spreading awareness.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.3,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",30.0,"The transcript provides some context about the lack of awareness and common misdiagnosis of Hidradenitis Suppurativa, which indirectly highlights the need for spreading awareness. However, it does not directly answer the question of what specific actions can be taken to spread the word about the condition. It lacks practical suggestions or strategies for raising awareness, such as organizing events, using social media, or collaborating with healthcare professionals. Therefore, while it touches on the importance of awareness, it does not effectively address the 'what can I do' aspect of the question.",4632.0,Talking About Your Diagnosis,0.763072789,1092.0,Breast Cancer | Understanding Your Disease,0.760614038,3519.0,How can I talk to my child about losing weight?,0.755556345
Are there HS awareness campaigns I can support?,searchable,Patient_Forums,Hidradenitis Suppurativa,are there hs awareness campaigns i can support?,Are there HS awareness campaigns I can support?,Are there HS awareness campaigns I can support?,No,,,searchable,loose-match,,,"[{""id"":1978},{""id"":1813},{""id"":1939},{""id"":1841}]",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.3,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",30.0,"The transcript provides information about HS Connect, a resource for individuals with Hidradenitis Suppurativa (HS), including community support, resources, and advocacy. However, it does not directly address the question about specific HS awareness campaigns that one can support. The transcript focuses more on the resources available through HS Connect rather than detailing any campaigns or how to support them.",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.2,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",20.0,"The transcript does not directly address the question about HS awareness campaigns. Instead, it focuses on the importance of support groups for individuals with HS, mentioning specific groups like Hope For HS and HSconnect.org. While these groups may indirectly contribute to awareness, the transcript does not explicitly mention any campaigns or ways to support them. Therefore, the response is largely off-topic in relation to the original question.",4835.0,CON1-CH1-Q15-Are there groups that support parents and caregivers-Brooks.mp4,0.2,Are there groups that support parents and caregivers?,"Yes, there are groups for parents and caregivers. So HS Connect has a teen group and we also have a parent support group as well. So we find a lot of parents coming into our parent support group, especially looking for understanding and relief and how to handle these situations because these are your children, right? You want to help them and it pains you to see them going through this process. So, we highly encourage parents to join us, whether you have HS or you don't have HS. It doesn't mean that you lack the experience that your child needs, but by joining these groups, there's normalcy in the feelings that you will find other parents experiencing. And just the exchange of information between parents is a wonderfully beautiful thing to watch because you're gaining insight from other people along that same journey.",20.0,"The transcript does not directly address the question about HS awareness campaigns. Instead, it discusses support groups for parents and caregivers of individuals with HS. While these groups may indirectly raise awareness among participants, they are not the same as public awareness campaigns that one can support. The response lacks information on specific campaigns or initiatives aimed at raising public awareness of HS.",846.0,What is Kids Heart Challenge + American Heart Challenge?,0.750950396,866.0,A Hub of Resources at Your Fingertips,0.748345733,1615.0,Bladder Cancer Awareness Month,0.747748315
How can I help reduce stigma around hidradenitis suppurativa?,searchable,Patient_Forums,Hidradenitis Suppurativa,how can i help reduce stigma around hidradenitis suppurativa?,How can I help reduce stigma around hidradenitis suppurativa?,How can I help reduce stigma around Hidradenitis Suppurativa?,No,,,searchable,exact-match,,,"[{""id"":1859},{""id"":1980},{""id"":1950},{""id"":1930}]",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.75,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",75.0,"The transcript addresses the question by suggesting raising public awareness about Hidradenitis Suppurativa (HS) to reduce stigma. It mentions educating others about the condition, explaining that it is not contagious, and clarifying its nature as an inflammatory skin condition. However, the transcript primarily focuses on treatment options for HS rather than directly addressing stigma reduction strategies. While it touches on the importance of awareness, it could provide more specific actions or campaigns to actively reduce stigma, such as community engagement or advocacy efforts.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.6,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",60.0,"The transcript addresses the stigma associated with Hidradenitis Suppurativa (HS) by emphasizing that the condition is not the patient's fault and highlighting the importance of healthcare providers reinforcing this message. It suggests that reducing stigma involves changing the narrative around blame and guilt, which is a relevant approach to addressing stigma. However, the transcript does not provide specific actions or strategies for individuals to actively reduce stigma in broader contexts, such as public awareness campaigns, education, or advocacy efforts. Therefore, while it touches on an important aspect of reducing stigma, it lacks comprehensive guidance on how an individual can help reduce stigma around HS.",5018.0,CON6-Q10-How do I know if I have the right diagnosis-Garg.mp4,0.3,How do I know if I have the right diagnosis?,"Unfortunately, not a lot of doctors, and not even a lot of patients are familiar with the diagnosis of Hidradenitis Suppurativa. It's relatively less known. And we've got to do a better job at creating a lot more awareness in the medical and public sectors around this disease. The reality is that the lesions of HS can mimic other common problems that patients can present with, such as abscesses, cellulitis, folliculitis. And so for all those reasons, it's not uncommon for HS to be misdiagnosed, and ultimately for people with HS to be diagnosed seven to 10 years after their symptoms start.",30.0,"The transcript provides some context about the lack of awareness and common misdiagnosis of Hidradenitis Suppurativa (HS), which indirectly suggests that increasing awareness could help reduce stigma. However, it does not directly address specific actions or strategies that an individual can take to help reduce stigma around HS. The response lacks practical advice or steps that could be taken to achieve the goal stated in the question.",3568.0,How do I handle the stigma and weight bias?,0.787571311,3490.0,Support | Dr. Tiffany Lowe Clayton,0.782652855,3491.0,Doctor Bias | Dr. Tiffany Lowe Clayton,0.779856503
Should I share my HS story publicly?,searchable,Patient_Forums,Hidradenitis Suppurativa,should i share my hs story publicly?,Should I share my HS story publicly?,Should I share my HS story publicly?,No,,,searchable,exact-match,,,"[{""id"":1943},{""id"":1974},{""id"":1937},{""id"":1929}]",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.85,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",85.0,"The transcript provides a comprehensive answer to the question of whether to share one's HS story publicly. It emphasizes that the decision is personal and that there is no right or wrong answer, which directly addresses the question. The transcript discusses the potential benefits of sharing, such as lifting a burden and receiving empathy, as well as the risks, like fear of judgment. It also highlights the positive impact sharing can have on others who might be silently struggling. However, it could be improved by offering more structured guidance or criteria to help the individual make their decision, which is why it doesn't receive a perfect score.",5045.0,CON5-Q10-How do I know which friends I should tell about my HS-Brooksoks-V.mp4,0.75,How do I know what friends I should tell about my HS?,"Dealing with friends can be really, really challenging. You have to decide ultimately if these people are worthy of knowing the vulnerabilities that you face or not. And I think that it's an important decision and distinction to make because this is where it can become, sometimes your HS can be weaponized against you in relationships, even outside of friendships.  Your journey is sacred and your HS is sacred. And if you decide not to talk to people about it because you don't feel like they will understand, that's completely fair. But you do leave them to fill in their own gaps and their own blanks in the story if you do not give them the opportunity to talk to them about what's going on with you. The other thing is if you are constantly canceling plans, your friends may feel some type of way about that because you're not giving them an explanation, and they know that it’s not necessarily genuine. So they're like, well, does she just not like hanging out with us anymore? What's going on? So you also have to understand from their perspective, maybe they're coming from a place of care and concern, but it doesn't necessarily feel like that. So you get to be the judge of that character and what you want to do, and how much you want to open up to that person. But again, I do think that it's worth having those conversations with them, and letting them know what you've been dealing with because we become so good at hiding it. I wish I could give an Oscar and Emmy to every single person who deals with HS and works on hiding this, and coming up with little white lies about covering our entire lives. So please do think long and hard about whether that person is worthy of the inside and the vulnerable piece of you, but also make sure you know that you're not filling in those gaps and telling them the story, then they're going to make up their own story. And that's just a natural people thing. It doesn't have anything to do with your HS. You could insert anything else in there and people would do the same thing.",75.0,"The transcript provides a thoughtful discussion on the considerations of sharing personal stories, particularly focusing on the vulnerabilities associated with HS (Hidradenitis Suppurativa). It emphasizes the importance of evaluating whether friends are worthy of knowing such personal details and the potential consequences of sharing or not sharing. However, it does not directly answer whether one should share their HS story publicly, as it focuses more on interpersonal relationships rather than public disclosure. The advice is more applicable to sharing within personal circles rather than a broader public audience.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.7,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",70.0,"The transcript provides a thoughtful discussion on the considerations of sharing one's HS (Hidradenitis Suppurativa) story, focusing on the importance of context and the nature of relationships. It suggests that sharing can be beneficial, especially with close friends and family, to gain support and understanding. However, it does not directly address the public aspect of sharing one's story, such as through social media or public forums, which is implied in the question. The response is more about personal disclosure rather than public sharing, which limits its direct applicability to the question.",1030.0,Our Story,0.747811913,22.0,Sharing your Diagnosis,0.747033477,4632.0,Talking About Your Diagnosis,0.744159102
Can social media help raise awareness about HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can social media help raise awareness about hs?,Can social media help raise awareness about HS?,Can social media help raise awareness about HS?,No,,,searchable,loose-match,,,"[{""id"":1813},{""id"":1841},{""id"":1978},{""id"":1939}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.4,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",40.0,"The transcript primarily discusses the importance of support groups for HS patients, emphasizing the benefits of connecting with others who have the condition. While it mentions online support groups, it does not directly address how social media can raise awareness about HS. The focus is more on personal support and shared experiences rather than broader awareness campaigns or educational outreach that social media platforms can facilitate.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.3,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",30.0,"The transcript does not directly address the question of whether social media can help raise awareness about HS. It mentions online support groups, which implies some use of social media, but does not explicitly discuss awareness-raising. The focus is more on community support and reducing isolation rather than awareness.",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.3,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",30.0,"The transcript does not directly address the question of whether social media can help raise awareness about HS. It discusses HS Connect, a resource platform for HS patients, and mentions various resources and community support available, but does not explicitly link these activities to social media or its role in raising awareness. The answer lacks a direct connection to the impact or use of social media in this context.",3776.0,Virtual Reality Helping Young People with Cancer Find Support,0.777638376,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.766050875,866.0,A Hub of Resources at Your Fingertips,0.764252663
What is the HS Foundation?,searchable,Patient_Forums,Hidradenitis Suppurativa,what is the hs foundation?,What is the HS Foundation?,What is the HS Foundation?,No,,,searchable,loose-match,,,"[{""id"":1827},{""id"":1978},{""id"":1841},{""id"":1970}]",4841.0,CON1-CH2-Q4-How do I find a good provider who understands my HS-Daveluy.mp4,0.3,How do I find a good provider who understands my HS?,"That's an issue that a lot of patients with HS face, how do I find someone who's an expert at treating my HS? And I wish it were easy. I wish I could say go to any dermatologist, they're all experts, but we're not quite there yet. But we are working on it. Every doctor is more interested in HS. We're seeing more research, more activity, so we will see a day when it's very easy to find an HS expert. In the meantime, there are a few resources that can help you find someone who's really knowledgeable and experienced in HS. On the HS Foundation website, there's a clinic finder where you can punch in your address and look for who is close by and see an expert there. HSconnect.org also has a clinic finder that can help you find experts. And then patient support groups are another great resource here.",30.0,"The transcript does not directly answer the question 'What is the HS Foundation?' Instead, it mentions the HS Foundation in the context of finding an HS expert through their website's clinic finder. The transcript provides some information about resources related to HS, but it does not explain what the HS Foundation is, its purpose, or its activities. Therefore, the answer is incomplete and lacks direct relevance to the question.",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.2,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",20.0,"The transcript does not directly answer the question about what the HS Foundation is. Instead, it describes HS Connect, which appears to be a different entity focused on providing resources and support for patients with HS. The transcript provides information about HS Connect's mission and resources but does not clarify if HS Connect is related to or part of the HS Foundation. Therefore, the answer is largely irrelevant to the question asked.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.1,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",10.0,"The transcript does not directly address the question about the HS Foundation. It discusses the community and support groups for patients with HS, but does not mention or explain what the HS Foundation is. The response is largely unrelated to the specific inquiry about the HS Foundation.",2316.0,The Physical Fitness Performance Pyramid,0.77858156,907.0,HSS Overview,0.774966836,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.768461
Are there HS patient advocacy organizations?,searchable,Patient_Forums,Hidradenitis Suppurativa,are there hs patient advocacy organizations?,Are there HS patient advocacy organizations?,Are there HS patient advocacy organizations?,No,,,searchable,exact-match,,,"[{""id"":1813},{""id"":1978},{""id"":1841},{""id"":1827}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.85,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",85.0,"The transcript provides a detailed answer to the question by confirming the existence of HS patient advocacy organizations, specifically mentioning Hope For HS and HSconnect.org. It emphasizes the importance of support groups for HS patients, describing their benefits and the options available for participation. However, the transcript focuses more on the concept of support groups rather than explicitly discussing advocacy organizations, which slightly limits the directness of the answer.",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.85,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",85.0,"The transcript effectively answers the question by mentioning HS Connect, which is an organization that provides advocacy for HS patients. It describes the mission of HS Connect, which includes advocacy, and lists various resources and community support it offers. However, the transcript does not explicitly state that HS Connect is a 'patient advocacy organization,' which could make the connection less clear to someone unfamiliar with the term. Therefore, while the transcript provides relevant information, it could be more direct in confirming the existence of patient advocacy organizations for HS.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.6,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",60.0,"The transcript mentions support groups for HS patients, which implies some level of advocacy and community support, but it does not explicitly mention formal patient advocacy organizations. The answer partially addresses the question by suggesting ways to connect with others, but lacks direct information about specific advocacy organizations.",1101.0,HSS Minute | Whole Lupus Patient,0.783439755,907.0,HSS Overview,0.779597402,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.778707266
How can I get involved in HS research?,searchable,Patient_Forums,Hidradenitis Suppurativa,how can i get involved in hs research?,How can I get involved in HS research?,How can I get involved in HS research?,No,,,searchable,exact-match,,,"[{""id"":1845},{""id"":1844},{""id"":1978},{""id"":1841}]",4871.0,CON1-CH6-Q2-Are there any clinical trials for HS-Garg.mp4,0.85,Are there clinical trials for HS?,"So when you have a chronic condition and the currently available treatments aren't effectively addressing your disease, that's really the time to think about participation in a clinical trial because that’s where you get the access to the most innovative therapies that we have. And finding a clinical trial can be easy. The main resource that I look to is clinicaltrials.gov. If you go to the website, punch in your disease, it will tell you all the trials that are happening for HS and where you can find them.",85.0,"The transcript provides a clear and practical answer to the question by suggesting participation in clinical trials as a way to get involved in HS research. It specifically mentions using clinicaltrials.gov to find relevant trials, which is a direct and actionable step. However, the response could be improved by mentioning other ways to get involved in research, such as contacting research institutions or joining patient advocacy groups, which would provide a more comprehensive answer.",4870.0,CON1-CH6-Q1-What research is being done-Garg.mp4,0.2,What research is being done?,"The great news about having HS is that there is a flurry of research activity in trying to understand how the disease happens, what are the pathways and mechanisms of inflammation in the tissue. And with that knowledge, we can then develop targets to address those specific pathways of inflammation. And that's where clinical trials come into play. There are more than 20 different molecules being studied for the treatment of HS, and the hope is that over the next year or two, we're going to have new approved treatments to effectively treat this disease. ",20.0,"The transcript does not directly address the question of how to get involved in HS research. Instead, it provides information about ongoing research and clinical trials related to HS. To effectively answer the question, the response should include specific steps or suggestions for getting involved in research, such as contacting research institutions, joining patient registries, or participating in clinical trials.",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.2,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",20.0,"The transcript primarily describes the resources and community support available through HS Connect, focusing on patient empowerment, advocacy, and mental health resources. However, it does not directly address how an individual can get involved in HS research. The information provided is more about support and resources for patients rather than opportunities or steps to participate in research. Therefore, it only tangentially relates to the question about getting involved in research, resulting in a low score.",4288.0,How to Find and Participate in Clinical Trials,0.765135169,910.0,How HSS is Innovating in Orthopedic Anesthesia & Pain Relief,0.747894466,1103.0,HSS Minute | Approaches to Rheumatologic Care Using Big Data,0.740461469
Can I participate in HS awareness walks or events?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i participate in hs awareness walks or events?,Can I participate in HS awareness walks or events?,Can I participate in HS awareness walks or events?,No,,,searchable,loose-match,,,"[{""id"":1813},{""id"":1841},{""id"":1970},{""id"":1939}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.3,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",30.0,"The transcript does not directly address the question about participating in HS awareness walks or events. Instead, it focuses on the importance of support groups for HS patients, mentioning specific groups and the benefits of connecting with others who have HS. While it emphasizes community involvement, it does not mention awareness walks or events, which are the specific focus of the question.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.2,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",20.0,"The transcript does not directly address the question about participating in HS awareness walks or events. It discusses the community and support groups for HS patients, which is somewhat related, but it does not provide information on whether one can participate in awareness walks or events. The answer lacks specificity regarding the question asked.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.1,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",10.0,"The transcript does not directly address the question about participating in HS awareness walks or events. Instead, it focuses on reassuring the patient that their condition is not their fault and encourages joining an HS community for support. There is no mention of awareness walks or events, which is the specific focus of the question.",882.0,Why Join,0.773470104,883.0,Favorite Moments | Slideshow 2022 Parkinson's Unity Walk,0.766756654,881.0,How to Fundraise,0.759505928
What is HS Awareness Month?,searchable,Patient_Forums,Hidradenitis Suppurativa,what is hs awareness month?,What is HS Awareness Month?,What is HS Awareness Month?,No,,,searchable,no-match,,,"[{""id"":1978},{""id"":1841},{""id"":1979},{""id"":1970}]",5025.0,CON5-Q16-What can I find on HS Connect-Brooks.mp4,0.1,What can I find on HS Connect?,"The mission of HS Connect is to empower our patient population through resources, advocacy, working with medical experts, and bringing patients to treatment and doing that on a global level. I don't think there's much you won't find on HS Connect, but what you'll come and find is a community, a vibrant community of people just like you. We have product resources, we have  links to images of HS so that you can see what other people's HS looks like. We have a litany of resources. We have Healing Space, which is a mental health program developed just specifically for HS. There are school letters for children. There are letters for lunches, if  your child needs special lunches. There are articles and blogs. It's a plethora of information that can be found there.
",10.0,"The transcript does not directly address the question about HS Awareness Month. It discusses HS Connect, a resource for people with Hidradenitis Suppurativa (HS), but does not mention anything about an awareness month or related activities. The response is largely irrelevant to the specific question asked.",4860.0,CON1-CH4-Q4-What can I do not to feel so alone-Okoye.mp4,0.1,What can I do to not feel so alone?,"HS can be an isolating disease, but know that you are not alone. There is a large community of patients with HS in the United States. And over the years, I've been happy to see that patients have organized support groups, some of them online, some of them in person. And so I think that's one way to connect with other people who are dealing with the same thing. I also think having a care team that you really resonate with, that you feel like you can trust, is another way to dispel some of that isolation.",10.0,"The transcript does not address the question about HS Awareness Month at all. It discusses the community and support for people with HS, but it does not mention anything about an awareness month or related activities. Therefore, it is not a relevant answer to the question.",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.1,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",10.0,"The transcript does not address the question about HS Awareness Month at all. Instead, it focuses on dispelling myths about HS (Hidradenitis Suppurativa) and emphasizes the importance of accurate information and diagnosis. There is no mention of an awareness month or any related activities, goals, or significance. Therefore, the transcript is not relevant to the question asked.",1615.0,Bladder Cancer Awareness Month,0.78234458,1616.0,Colorectal Cancer Awareness Month,0.776605964,577.0,Awareness of Non-motor Symptoms,0.773935
How do I talk about hidradenitis suppurativa without feeling ashamed?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i talk about hidradenitis suppurativa without feeling ashamed?,How do I talk about hidradenitis suppurativa without feeling ashamed?,How do I talk about hidradenitis suppurativa without feeling ashamed?,No,,,searchable,exact-match,"mental and emotional health,living with",,"[{""id"":1973},{""id"":1937},{""id"":1980},{""id"":1929}]",5034.0,CON5-Q9-How do I handle intimacy with all of these symptoms-Brooks.mp4,0.85,How do I handle intimacy with all of these symptoms?,"Oh Lord, intimacy is a really, really difficult topic with HS in that so many of us carry really, really deep wounds and scars about the way that we look compared to a “quote unquote” normal person, and whether someone could actually love us and find us attractive and beautiful with the scarring, with the abscesses, with the odor, with the drainage. And the answer to that is yes. They absolutely can and they will, but you have to find that right person who can see through all of those things and be that person. The biggest piece of intimacy that I've discovered in my journey is being open with your partner. You know, he used to come by and give me smacks on the butt and I was like, I can't. And it's not because I don't love you, it's not because I don't enjoy that piece of intimacy with you. But if I'm flaring, it hurts. And I don't also want to have to say every time I'm flaring because that's also something that if you're like me, you try to keep kind of hidden and just muscle through it. So I don't want to talk about it every time I'm flaring. And talking and being vulnerable with your partner about your inner feelings is really, really important for them to understand where you're coming from. Because without that, It's impossible for a partner not to start taking it personally. So having those discussions is really, really important. And again, it's very vulnerable to do, but I think it's so necessary in order to have a healthy relationship and redefining what intimacy means. Intimacy does not always mean sex. Intimacy means cuddling. It means hanging out together. It means having those in-depth conversations where you bear your soul to someone else. So understanding, and asking your partner, being open with them, I need to do this differently today, or can we explore something else because this isn't working for me right now. It's also a very important thing. So intimacy is, there's a lot of baggage, I feel like, that comes with this for us because of our own self-worth and feelings. But I think that that can be overcome by having those discussions with your partner and really being open with them about that. And you are worthy of intimacy in every single way that you want that intimacy with a partner. So please just express that to them so that you don't feel like you're being shortchanged because of your HS because that should not be a thing.",85.0,"The transcript addresses the emotional and psychological aspects of discussing hidradenitis suppurativa (HS) with a partner, focusing on intimacy and vulnerability. It provides practical advice on being open and honest with a partner, redefining intimacy, and overcoming feelings of shame. While it doesn't directly address talking about HS in broader social contexts, it effectively covers the interpersonal aspect, which is a significant part of feeling ashamed. The response is empathetic and offers reassurance, which is crucial for someone struggling with self-worth due to HS.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.85,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",85.0,"The transcript provides a comprehensive answer to the question by addressing the emotional aspect of discussing hidradenitis suppurativa (HS) and offering practical advice on how to approach conversations about the condition. It suggests varying the level of detail based on the closeness of the relationship and emphasizes the importance of sharing with close friends and family for support. The transcript also includes a real-life example of a patient who benefited from sharing her experience, which can help reduce feelings of shame. However, it could be improved by directly addressing strategies to overcome feelings of shame, such as focusing on the chronic nature of the condition and the importance of self-acceptance.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.75,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",75.0,"The transcript addresses the question by emphasizing that hidradenitis suppurativa (HS) is not the patient's fault, which can help alleviate feelings of shame. It highlights the importance of understanding that the condition is not due to personal actions and encourages seeking support from the community and healthcare providers. However, it doesn't provide specific strategies or language for discussing HS without feeling ashamed, which would have made the response more directly aligned with the question.",3590.0,I am feeling shameful about my weight,0.781032443,3571.0,I am feeling shameful about my weight,0.781032443,3624.0,How can I talk to a loved one about losing weight?,0.780247569
Can sharing my experience help other people with HS?,searchable,Patient_Forums,Hidradenitis Suppurativa,can sharing my experience help other people with hs?,Can sharing my experience help other people with HS?,Can sharing my experience help other people with HS?,No,,,searchable,exact-match,"living with,mental and emotional health,caregiving",,"[{""id"":1813},{""id"":1943},{""id"":1970},{""id"":1841}]",4837.0,CON1-CH1-Q2-Are there support groups for people with HS-Daveluy.mp4,0.9,Are there support groups for people with HS?,"I couldn't be happier that you asked that question. Not only are there support groups for HS, I really think support groups are the one thing that every HS patient should do. I think it's so powerful and impactful and I've seen such a difference at our local HS support group when patients meet someone else who has HS. It is a disease that's very isolating. You feel like you're alone and people don't understand you. And when you meet someone else who has the same experiences and can share their struggles, their successes, things that have worked well for them, ideas about things like emergency kits or how to pack when you're going to be going on your first flight after you've been diagnosed with HS and what you need to bring on your carry on. Those experiences are invaluable. And as much as I know about HS, I will never know as much as someone who is living with it, and there are experiences that they can share with you that I will never be able to. So I think it's crucially important to get involved with patient support groups. There are a lot of options. Some of the popular ones are Hope For HS and HSconnect.org where you can talk to other patients and some have live meetings and some have virtual options so that way you can connect from home if there's not a convenient way for you to get there. But it's really, really important to engage and meet other patients with HS because it helps you understand that you're not alone, you're not the only person going through these issues and these struggles and you can share stories and bond with other people in a way that you can't do it outside of a support group.",90.0,"The transcript effectively answers the question by emphasizing the importance and impact of sharing experiences with others who have HS. It highlights the benefits of support groups, where individuals can share their struggles, successes, and practical advice, which can be invaluable for others with the condition. The response also provides specific examples of support groups and how they can help, reinforcing the idea that sharing experiences is beneficial. However, the transcript could be slightly improved by directly stating that sharing experiences can help others, rather than focusing primarily on the benefits to the individual sharing their experience.",4863.0,CON1-CH5-Q5-Should I tell my co-workers about my HS-Brooks.mp4,0.85,Should I tell my boss and co-workers about my HS?,"This is an issue that a lot of people struggle with, and it's one of the major issues is telling people about HS. It's ultimately your choice. You don't owe anyone an explanation about what is going on with you. It is truly your choice as to how and when you tell people or even if you tell people. There is no right answer to this question. I can tell you personally that the burden that is lifted off of your shoulders in talking to people about your HS is unlike anything you have ever experienced. Keeping your HS a secret is a very, very heavy weight. And you don't even understand how heavy it is until you start talking to people about your own experience with HS. There's always a fear of being judged that comes with this. And that's okay, we're not for everybody, and that's fine. But most of what you'll find from people is a sense of empathy, that they had no idea how much you were struggling, and that they wish they had known so they could have helped. So I think there's always a risk in talking to people about it, but there's also an incredible benefit of being open with your journey that I feel personally well outweighs the risk of talking to people about your HS. People need to know. We also need to educate people because what you don't understand is that the more you talk about your HS, you will have people coming to you saying that they deal with the same thing you do in silence. We hear it every single day. And if you can impact one other person's life by helping them talk about their own experience and helping them get to the point where they can get on treatment or even just have a friend who experiences the same thing, you as an individual are making a huge impact. And I promise you, as soon as you have that weight lifted, it's amazing. And if you opt not to, that is completely okay too. You don't owe anyone sharing your journey with them.",85.0,"The transcript provides a comprehensive answer to the question by discussing the potential benefits of sharing one's experience with HS, such as lifting a personal burden and helping others who may be suffering in silence. It emphasizes the choice and autonomy of the individual in deciding whether to share their experience, acknowledging both the risks and benefits. While it doesn't directly state that sharing can help others, it strongly implies it by mentioning empathy, education, and the impact on others who might be dealing with similar issues. The answer could be improved by explicitly stating that sharing experiences can indeed help others, but overall, it effectively addresses the question.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.75,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",75.0,"The transcript indirectly addresses the question by encouraging the listener to join an HS community, implying that sharing experiences within such a community can be beneficial. However, it does not explicitly state that sharing one's experience can help others, nor does it provide specific examples or mechanisms of how sharing can be helpful. The focus is more on the communal aspect and support rather than the direct impact of sharing personal experiences.",22.0,Sharing your Diagnosis,0.770846426,4372.0,Tips For Navigating Your Cancer Care,0.764924645,4647.0,Managing Your Mental Health,0.764678538
What misconceptions about HS should I correct?,searchable,Patient_Forums,Hidradenitis Suppurativa,what misconceptions about hs should i correct?,What misconceptions about HS should I correct?,What misconceptions about HS should I correct?,No,,,searchable,exact-match,,,"[{""id"":1979},{""id"":1980},{""id"":1970},{""id"":1967}]",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.95,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",95.0,"The transcript effectively addresses the question by identifying several common misconceptions about Hidradenitis Suppurativa (HS). It clarifies that HS is not caused by poor hygiene, weight, or smoking, and challenges the myth that it predominantly affects women or certain races. The response emphasizes that HS can affect anyone and highlights the importance of dispelling these myths to ensure proper diagnosis and treatment. The only slight gap is that it doesn't explicitly list every possible misconception, but it covers the major ones comprehensively.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.75,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",75.0,"The transcript addresses a significant misconception about HS, which is the belief that the condition is the patient's fault. It emphasizes the importance of correcting this misconception to reduce shame and stigma, which can prevent individuals from seeking treatment. However, the transcript focuses primarily on this single misconception and does not explore other potential misconceptions about HS, such as its causes, treatment options, or the nature of the disease. A broader discussion of various misconceptions would provide a more comprehensive answer to the question.",5027.0,CON5-Q1-What do you want people with HS to know-Brooks-V.mp4,0.4,What do you want other people with HS to know?,"The first thing that I want you to know as a newly diagnosed patient, or even if you think that you have HS but haven't officially been diagnosed, your HS is not your fault. If you take one thing away, it is that your HS is not your fault. It's not something you're doing or not doing. You did not cause your HS. And I want to assure you that there are so many people around you that are also suffering with their HS. But there is light at the end of the tunnel. And I would highly encourage you to join an HS community where you will find other people just like you experiencing the same things. And together we can help move through this process of HS.",40.0,"The transcript partially addresses misconceptions about Hidradenitis Suppurativa (HS) by emphasizing that HS is not the patient's fault, which is a common misconception. However, it does not comprehensively address other potential misconceptions about HS, such as its causes, treatment options, or lifestyle factors. The response is supportive and reassuring but lacks detailed information on correcting a broader range of misconceptions about the condition.",4043.0,Myths and Misperceptions,0.764680147,4056.0,Myths and Misperceptions,0.764351368,557.0,Misconceptions,0.754675448
How do I explain that HS is not contagious?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i explain that hs is not contagious?,How do I explain that HS is not contagious?,How do I explain that HS is not contagious?,No,,,searchable,exact-match,,,"[{""id"":1966},{""id"":1927},{""id"":1937},{""id"":1936}]",5001.0,CON6-Q30-Is HS an infection and is it contagious so that I can spread it to others or other areas of my body-Okoye.mp4,0.95,"Is HS an infection, and is it contagious so that I can spread it to other people or other parts of my body?","This is a really common concern, especially given the parts of the body where people tend to get HS. A lot of my patients are worried that they may pass this along to their partners, and it just is not how it works. HS is not infectious, it is not contagious. HS is an inflammatory disease where your immune system is overreacting to something in your hair follicles. And so anywhere you have hair follicles and friction together, you can develop a lesion of HS.",95.0,"The transcript effectively addresses the question by clearly stating that HS (Hidradenitis Suppurativa) is not contagious. It explains that HS is an inflammatory disease related to the immune system's reaction to hair follicles, rather than an infectious process. This directly answers the question about explaining the non-contagious nature of HS. The only minor improvement could be a more explicit suggestion on how to communicate this information to others, but the core explanation is well covered.",4977.0,CON4-CH1-Q2-Can I give HS to my partner through sex-Daveluy.mp4,0.95,Can I give HS to my partner through sex?,"HS is not an infection. It is not contagious. So you cannot spread it to anyone else no matter what you do. HS has to do with the genetics of your immune system, your hair follicles, and it is not contagious. So you don't need to worry about giving it to anyone else, but I understand that it can be a stressful conversation if someone isn't familiar with HS and the first time they see it and they mistake it for an infection. So I often say, if you feel like your relationship is approaching that intimacy level, it may be time to teach your partner a little bit about HS. Tell them it's a chronic skin condition. It causes these flare-ups with these painful bumps, and sometimes it drains pus, but it's not an infection and it's not contagious, and there are still ways that we can have a great, fulfilling intimacy life and romance life with the HS.",95.0,"The transcript effectively answers the question by clearly stating that HS (Hidradenitis Suppurativa) is not contagious and explaining why it is not an infection. It provides a detailed explanation about the nature of HS, emphasizing its genetic basis and distinguishing it from infectious conditions. Additionally, it offers practical advice on how to communicate this information to others, particularly in intimate relationships, which adds depth to the explanation. The only minor improvement could be a brief mention of what HS stands for, but overall, the response is comprehensive and well-targeted to the question.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.4,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",40.0,"The transcript provides a general approach to discussing HS (Hidradenitis Suppurativa) with others, focusing on the importance of sharing information based on the closeness of the relationship and the potential impact on social activities. However, it does not directly address the specific question of explaining that HS is not contagious. While it mentions that HS is a chronic skin condition and not an infection, it lacks a clear, direct statement or explanation about the non-contagious nature of HS, which is the core of the original question.",1112.0,Vaccine Hesitancy | E8,0.756639481,4632.0,Talking About Your Diagnosis,0.750943065,4636.0,I Can't Get Past The Shame and Guilt Over My Diagnosis,0.74865216
What do I say when people think HS is caused by poor hygiene?,searchable,Patient_Forums,Hidradenitis Suppurativa,what do i say when people think hs is caused by poor hygiene?,What do I say when people think HS is caused by poor hygiene?,What do I say when people think HS is caused by poor hygiene?,No,,,searchable,exact-match,,,"[{""id"":1979},{""id"":1858},{""id"":1853},{""id"":1980}]",5026.0,CON5-Q17-What are some common myths about HS-Brooks.mp4,0.85,What are some common myths about HS?,"Some of the most common myths with HS are that it's caused by hygiene, it's caused by weight, it's caused by smoking. It's your fault that you're having HS. There are some very, very damaging myths out there that keep circulating. There are some myths about what race and ethnicity are most affected, that women are most affected. And I think what needs to happen with all of these myths is that what we understand to be the truth now, is that HS can impact anyone, anywhere, anytime. So we've built a patient profile, so to speak, of past experiences and data. And I think what some of the myths that are continuing to be circulated are actually keeping people from being diagnosed. And one of the main things that comes to mind for me about that is when we talk about how it affects women more than men. My question to you is, does it really affect women more than men, or do we just keep saying this and then are dealing with the fact that because we keep saying this, men aren't coming forward about their HS and not being counted? So I think we’re kind of, at a really pivotal point where we need to turn all of these myths on their head. Your weight does not cause HS. Weight can make HS worse, but it's not the cause of your HS. Neither is smoking. You know, there's a lot of misinformation that is constantly circling about HS and we really at HS Connect want to set the record straight and make sure that every person who's dealing with HS, regardless of your race, color, sexual orientation, geographic location, everyone is identified, counted, and seen and validated with your HS and your experience.
",85.0,"The transcript effectively addresses the myth that HS is caused by poor hygiene by categorizing it among other common misconceptions about HS, such as being caused by weight or smoking. It emphasizes that these are damaging myths and clarifies that HS can affect anyone, regardless of various factors. While it doesn't provide a specific phrase to say when confronted with the hygiene myth, it offers a strong foundation for understanding and countering such misconceptions, which is useful for formulating a response.",4890.0,CON2-CH2-Q3-Why does my HS still smell when I bathe all the time-Okoye.mp4,0.85,Why does my HS still smell when I bathe all the time?,"Some patients really struggle with the smell of HS. And just to be clear, this has nothing to do with hygiene or cleanliness. What this has to do with is bacteria. So there are bacteria that live on your skin, they're supposed to be there, but when they get trapped in that pocket of the HS bump, they just overgrow and they produce these bad smells.",85.0,"The transcript effectively addresses the misconception that HS is caused by poor hygiene by explaining that the smell associated with HS is due to bacterial overgrowth, not a lack of cleanliness. It clarifies that bacteria naturally live on the skin and are not a result of poor hygiene. However, it could be improved by explicitly stating that HS is a medical condition unrelated to hygiene, which would directly counter the misconception.",4877.0,CON2-CH1-Q7-Why does HS smell-Okoye.mp4,0.85,Why does HS smell?,"Some patients really struggle with the smell of HS. And just to be clear, this has nothing to do with hygiene or cleanliness. What this has to do with is bacteria. So there are bacteria that live on your skin, they're supposed to be there, but when they get trapped in that pocket of the HS bump, they just overgrow and they produce these bad smells.",85.0,"The transcript effectively addresses the misconception that HS is caused by poor hygiene by explaining that the smell associated with HS is due to bacterial overgrowth, not a lack of cleanliness. It clarifies that bacteria naturally live on the skin and are not related to hygiene practices. However, it could be improved by explicitly stating that HS is a medical condition unrelated to personal hygiene, which would directly counter the misconception.",4636.0,I Can't Get Past The Shame and Guilt Over My Diagnosis,0.752441,3570.0,My family and friends are making insensitive comments about my weight,0.741067648,1112.0,Vaccine Hesitancy | E8,0.73797226
How do I educate people that hidradenitis suppurativa is not my fault?,searchable,Patient_Forums,Hidradenitis Suppurativa,how do i educate people that hidradenitis suppurativa is not my fault?,How do I educate people that hidradenitis suppurativa is not my fault?,How do I educate people that Hidradenitis Suppurativa is not my fault?,No,,,searchable,exact-match,,,"[{""id"":1980},{""id"":1937},{""id"":1859},{""id"":1981}]",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.85,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",85.0,"The transcript effectively addresses the question by emphasizing that Hidradenitis Suppurativa (HS) is not the patient's fault, which is the core message the question seeks to convey. It discusses the stigma and shame associated with HS and the importance of healthcare providers reinforcing that the condition is not due to the patient's actions. However, it could be improved by providing specific strategies or language that individuals can use to educate others about this fact, which would directly answer the 'how to educate' aspect of the question.",4995.0,CON4-CH3-Q1-How do I let people know that I’m not contagious-Daveluy.mp4,0.75,How do I let people know that I'm not contagious?,"That is a tough conversation and a lot of my patients ask me about it, so I'm really glad you brought it up. I think there are different levels when it comes to explaining HS to others. Some people who are sort of not that close, maybe you're just not going to explain too much to them. You're just going to say, I have a chronic health condition and that's enough. But as people are closer and closer and your circle of friends and family, you're probably going to want to disclose a little bit more to them so they can understand what you're going through. And it can be really helpful to have people that you can talk to about your HS. So if you have close friends or family members that you feel comfortable confiding in and sharing about your HS, they can be a valuable place to go when you need a little bit of support and maybe when your HS is really stressing you out and causing a mental health burden. It's nice to have someone who knows your disease at least a little bit and can share it with you and sort of help you out. So that's one of the first things when it comes to telling people about your HS is sort of figuring out what's this relationship and why am I sharing it with them? Is this something that I want them to know about because it may impact our relationship and that's an important angle that you sort of take is I'm sharing that with them because maybe I won't be able to go out every time they call me or maybe I won't be able to do certain activities that they like to do because it triggers my HS. Like if they're an avid cyclist and riding a bicycle causes your thighs to flare up, that's a good thing to disclose with them. And that can be really powerful. I remember one of my patients recently told me that she disclosed to her immediate friend circle her, sort of besties, that she had HS and told them a little bit about what it is, shared some of the resources she got from some of the online patient organizations about how to talk to people about HS, and explain it's a chronic skin condition, it's not an infection, and she said it made her and her friends so much closer now that they could understand why sometimes she didn't feel like going out if she was having a flare or sometimes she skipped certain activities or wouldn't go swimming on certain days and they said, it all makes sense now all this time that's been what's going on. And so she said it actually brought her and her friends closer once she did share with them.",75.0,"The transcript provides a thoughtful approach to educating others about Hidradenitis Suppurativa (HS) by emphasizing the importance of understanding the relationship with the person being informed and the context of sharing. It suggests sharing more details with close friends and family, using resources from patient organizations, and explaining HS as a chronic skin condition rather than an infection. However, it does not directly address the aspect of educating others that HS is not the patient's fault, which is the core of the question. The response could be improved by explicitly discussing how HS is a medical condition not caused by personal actions or negligence.",4895.0,CON2-CH3-Q1-How can I keep the sores from oozing-Daveluy.mp4,0.75,How can I keep the sores from oozing?,"I'm glad you asked that because it gets to the bigger idea with treating HS is that we really want to stop the disease activity, and having these areas and lesions that are draining shows that your disease is still active. It's a really important topic for you to talk to your doctor about because there may be different approaches based on what your doctor sees and what they're going to do for you. In some cases, the best way to stop the drainage is actually with surgery, and we have a bunch of different surgery options for HS. Some are little things that we can do in our office that I do every day. Others take a little more time and you might go to the operating room and work with the surgeon or it might still be your dermatologist. So especially if you have spots where everything's doing pretty good, but it's still draining, make sure you bring it to your doctor's attention because they may need to do some surgery for that spot. But sometimes medications can help to stop the drainage too. And we see that in clinic and in our clinical trials that patients, the number of draining tunnels can actually reduce when they're on treatments that help control the inflammation that's causing the drainage. So there's a few different ways that you can deal with the drainage and you can work with your doctor to figure out which one's the best for you and your HS.  Not enough people know what it is, and if we can raise public awareness, we'll probably see a day where you don't have to explain that it's not contagious because everyone will know what it is. Having said that, I also know that it's not your job to educate other people about your skin conditions. So if you don't feel comfortable educating them, that's fine. If you do, it's a good opportunity to say, I have a condition called HS. It's an inflammatory skin condition where my immune system is sort of attacking my skin and it causes these symptoms. It looks like an infection, but it's not an infection. It's not contagious. You can't catch it from me.",75.0,"The transcript provides a reasonable answer to the question by suggesting ways to educate others about Hidradenitis Suppurativa (HS). It emphasizes that HS is an inflammatory skin condition, not an infection, and is not contagious, which helps clarify that it is not the patient's fault. It also acknowledges the patient's choice in educating others and suggests raising public awareness. However, the transcript primarily focuses on treatment options and disease management, which, while informative, does not directly address the educational aspect of the question. More emphasis on specific strategies for educating others would improve the response.",3572.0,My doctor is shaming me for my weight,0.768633842,4636.0,I Can't Get Past The Shame and Guilt Over My Diagnosis,0.765456617,3570.0,My family and friends are making insensitive comments about my weight,0.760628045
Can I help improve HS diagnosis rates?,searchable,Patient_Forums,Hidradenitis Suppurativa,can i help improve hs diagnosis rates?,Can I help improve HS diagnosis rates?,Can I help improve HS diagnosis rates?,No,,,searchable,no-match,"diagnosis,condition management",,"[{""id"":1967},{""id"":1956},{""id"":1980},{""id"":1841}]",5016.0,CON6-Q23-Do I need to see an HS specialist-Gelfand.mp4,0.2,Do I need to see an HS specialist?,"This is a great question. Although it's a common disease, many clinicians aren't familiar with the advances we've made, or how to manage it. That's why it's best to find a clinician who understands HS and who can manage your condition with the best treatment options available.",20.0,"The transcript acknowledges the importance of understanding and managing HS (Hidradenitis Suppurativa) but does not directly address how an individual can help improve diagnosis rates. It suggests finding a knowledgeable clinician, which is more about personal management rather than contributing to broader diagnostic improvements. The response lacks specific actions or strategies that could be taken to improve diagnosis rates, such as raising awareness, educating others, or supporting research.",5005.0,CON6-Q16-Can a biopsy help confirm my HS diagnosis-Garg.mp4,0.2,Can a biopsy help confirm my HS diagnosis?,"We don't use biopsy to confirm or to diagnose HS. In exceptional circumstances, we may perform a biopsy to rule out another condition, but typically HS is really made just with the powers of observation.",20.0,"The transcript does not directly address the question of how to improve HS diagnosis rates. It provides information about the diagnostic process for HS, specifically mentioning that biopsies are not typically used, but it does not offer any strategies or suggestions for improving diagnosis rates. The response lacks guidance on actions or methods that could be employed to enhance the accuracy or frequency of HS diagnoses.",5043.0,CON5-Q18-What do you wish your doctor had said to you when you were first diagnosed-Brooks-V.mp4,0.2,What do you wish your doctor had told you when you were first diagnosed?,"What I needed to hear when I was officially diagnosed was that my HS is not my fault. There's so much shame and stigma that comes with this condition that it felt like that blame was put right back on me for some unknown reason that I had no control over. So instead of feeling relieved of that shame and stigma when I was diagnosed, it got worse from that point. And so many of us don't seek treatment because of that shame and stigma. And we know that that is an issue. So I really needed, and everyone who is diagnosed with HS, needs to hear that their HS is not their fault and that they've reached a point where they're coming to dermatology or to a physician because it is unmanageable and affecting their lives so greatly that they are finally raising their hand. And our goal is to shorten the amount of time that people suffer in silence with HS to come and hear from their community, like HS Connect or from their physician or both. I ask physicians, please tell your patient every single time they come in, remind them that their HS is not their fault. We've been conditioned to believe that it's something that we're doing for so long, that being relieved of that guilt is a huge thing for an HS patient.",20.0,"The transcript primarily addresses the emotional and psychological aspects of being diagnosed with HS (Hidradenitis Suppurativa), focusing on the importance of removing shame and stigma from the diagnosis process. It emphasizes the need for patients to be reassured that their condition is not their fault. However, it does not directly address the question of how an individual can help improve HS diagnosis rates. The transcript lacks specific strategies or actions that could be taken to enhance diagnosis rates, such as increasing awareness, improving education among healthcare providers, or advocating for better diagnostic tools. Therefore, it only tangentially relates to the question by suggesting that reducing stigma might encourage more people to seek diagnosis, but it does not provide a clear answer or actionable steps.",1380.0,Early Diagnosis,0.769771338,1103.0,HSS Minute | Approaches to Rheumatologic Care Using Big Data,0.769144595,1092.0,Breast Cancer | Understanding Your Disease,0.768911362
What can I do to help other patients get diagnosed faster?,searchable,Patient_Forums,Hidradenitis Suppurativa,what can i do to help other patients get diagnosed faster?,What can I do to help other patients get diagnosed faster?,What can I do to help other patients get diagnosed faster?,No,,,searchable,loose-match,"diagnosis,caregiving",,"[{""id"":1830},{""id"":1954},{""id"":1968},{""id"":1970}]",4838.0,CON1-CH2-Q7-How do I get the most out of an appointment due to time constraints-Okoye.mp4,0.3,How do I get the most out of an appointment with my doctor's time restraints?,"The time constraints in medicine are only getting tighter, and we would love to see patients for a longer time. However, most dermatologists will have 15 minutes with you. And so one thing you can do to prepare is to come with three or four questions, the three or four main questions you have. And a pro tip for you is when the staff person puts you into the examination room, give the questions to the staff person and ask them, can you give these questions to my doctor, please? That would be really helpful because then the doctor can scan the questions ahead of time so they know what your main concerns are.",30.0,"The transcript provides advice on how a patient can prepare for a dermatology appointment to make the most of the limited time with the doctor. However, it does not directly address the question of how to help other patients get diagnosed faster. The advice given is more about individual preparation rather than systemic changes or actions that could benefit other patients. The connection to helping other patients is indirect and not explicitly addressed.",5012.0,CON6-Q14-Should I get a second opinion-Garg.mp4,0.2,Should I get a second opinion?,"I encourage all my patients that whenever they feel a sense of uncertainty about the diagnosis or even about the treatment plan, it's always important to get another opinion about your disease, about your treatment.",20.0,"The transcript does not directly address the question of how to help other patients get diagnosed faster. Instead, it focuses on the importance of seeking a second opinion for one's own diagnosis or treatment plan. While this advice might indirectly suggest that patients should advocate for thorough evaluations, it does not provide specific actions or strategies to assist other patients in achieving faster diagnoses.",5021.0,CON6-Q24-How do I find the right doctor-Gelfand.mp4,0.2,How do I find the right doctor?,"Finding the right care provider is critical for success when living with HS. I think the most important things you could ask a clinician is, one is do they take care of patients with HS? Do they have a lot of patients they manage with this condition? Two is, are they comfortable doing procedures, minor procedures in the office in order to help relieve acute flares of HS and help patients feel better when they're in pain? Are they up to date on the most recent medical advances in managing HS? And probably most importantly, are they going to be there for you when you need them? HS can be so unpredictable, so you need to know that when you're having a flare, you'll be able to get into the office and see that doctor on short notice.",20.0,"The transcript primarily focuses on how to choose a care provider for someone with HS, emphasizing the importance of finding a clinician experienced with HS, capable of performing procedures, and available for urgent care. However, it does not directly address the question of how to help other patients get diagnosed faster. The advice given is more relevant to individual patient care rather than systemic improvements or actions that could expedite diagnosis for others.",4632.0,Talking About Your Diagnosis,0.798680365,4551.0,Getting Started,0.792800128,1092.0,Breast Cancer | Understanding Your Disease,0.790458